Journal of Applied Research in Intellectual Disabilities最新文献

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The Impact of Menopause on the Mental Health of Women With an Intellectual Disability: A Scoping Review 绝经对智力残疾妇女心理健康的影响:一项范围综述。
IF 2.1 3区 医学
Journal of Applied Research in Intellectual Disabilities Pub Date : 2025-01-28 DOI: 10.1111/jar.70017
Stephanie Corrigan, Mary McCarron, Philip McCallion, Éilish Burke
{"title":"The Impact of Menopause on the Mental Health of Women With an Intellectual Disability: A Scoping Review","authors":"Stephanie Corrigan,&nbsp;Mary McCarron,&nbsp;Philip McCallion,&nbsp;Éilish Burke","doi":"10.1111/jar.70017","DOIUrl":"10.1111/jar.70017","url":null,"abstract":"<div>\u0000 \u0000 \u0000 <section>\u0000 \u0000 <h3> Background</h3>\u0000 \u0000 <p>Negative mental health implications of menopause found in the general population, combined with high rates of mental health conditions found in women with intellectual disabilities, provide rationale to examine the existing literature to determine the impact of menopause on women with intellectual disabilities.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Methods</h3>\u0000 \u0000 <p>The review was conducted using scoping review methodology by Arksey and O'Malley. A systematic search was conducted across multiple databases. Relevant articles were screened according to inclusion/exclusion criteria. Braun and Clarke's thematic analysis was utilised to identify themes.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Results</h3>\u0000 \u0000 <p>After screening, eight articles satisfied the inclusion/exclusion criteria, and after thematic analysis, themes found were: <i>changes in mood, lack of reporting of psychological symptoms</i> and <i>difficulty attributing psychological symptoms to menopause</i>.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Conclusions</h3>\u0000 \u0000 <p>Findings indicate the paucity of literature and the lack of attention paid to examining the impact of menopause on the experiences and mental health of women with intellectual disabilities.</p>\u0000 </section>\u0000 </div>","PeriodicalId":51403,"journal":{"name":"Journal of Applied Research in Intellectual Disabilities","volume":"38 1","pages":""},"PeriodicalIF":2.1,"publicationDate":"2025-01-28","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11774133/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143054374","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Australian Registered Nurse's' Awareness of Key Issues, Ambivalence and Education Related to the Health of People With Intellectual Disability and/or Autism 澳大利亚注册护士对智力残疾和/或自闭症患者健康相关关键问题、矛盾心理和教育的认识。
IF 2.1 3区 医学
Journal of Applied Research in Intellectual Disabilities Pub Date : 2025-01-27 DOI: 10.1111/jar.70016
A. Cashin, A. Pracilio, T. Buckley, K. Griffin, J. Trollor, N. J. Wilson
{"title":"Australian Registered Nurse's' Awareness of Key Issues, Ambivalence and Education Related to the Health of People With Intellectual Disability and/or Autism","authors":"A. Cashin,&nbsp;A. Pracilio,&nbsp;T. Buckley,&nbsp;K. Griffin,&nbsp;J. Trollor,&nbsp;N. J. Wilson","doi":"10.1111/jar.70016","DOIUrl":"10.1111/jar.70016","url":null,"abstract":"<div>\u0000 \u0000 \u0000 <section>\u0000 \u0000 <h3> Background</h3>\u0000 \u0000 <p>Health outcomes of people with Autism Spectrum Disorder and/or Intellectual Disability are poor. Yet there is a paucity of nurse education and preparation to care for people with Autism Spectrum Disorder and Intellectual Disability.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Method</h3>\u0000 \u0000 <p>A cross sectional survey of Australian Registered Nurses related to their educational experience, awareness of the national disability support scheme and the concept of making reasonable adjustments.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Results</h3>\u0000 \u0000 <p>The majority of Australian Registered Nurses did not experience undergraduate content related to caring for people with Autism Spectrum Disorder and/or Intellectual Disability. Few participants experienced a dedicated clinical placement. Just over one half of the participants were aware of reasonable adjustments. Continuing professional education was significantly related to a greater awareness of reasonable adjustments and less ambivalence.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Conclusion</h3>\u0000 \u0000 <p>Education plays a key role in promoting awareness and reducing ambivalence. Education focussed on understanding the diversity in the particular types of neurodiversity is particularly efficacious.</p>\u0000 </section>\u0000 </div>","PeriodicalId":51403,"journal":{"name":"Journal of Applied Research in Intellectual Disabilities","volume":"38 1","pages":""},"PeriodicalIF":2.1,"publicationDate":"2025-01-27","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11772910/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143054372","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Inclusive Education for University Students With and Without Intellectual Disabilities: Effectiveness of an Anti-Stigma Intervention 智障与非智障大学生全纳教育:反污名化干预的效果。
IF 2.1 3区 医学
Journal of Applied Research in Intellectual Disabilities Pub Date : 2025-01-23 DOI: 10.1111/jar.70012
Álvaro Moraleda Ruano, Diana Ruiz Vicente, Joanne Mampaso Desbrow, Diego Galán-Casado
{"title":"Inclusive Education for University Students With and Without Intellectual Disabilities: Effectiveness of an Anti-Stigma Intervention","authors":"Álvaro Moraleda Ruano,&nbsp;Diana Ruiz Vicente,&nbsp;Joanne Mampaso Desbrow,&nbsp;Diego Galán-Casado","doi":"10.1111/jar.70012","DOIUrl":"10.1111/jar.70012","url":null,"abstract":"<div>\u0000 \u0000 \u0000 <section>\u0000 \u0000 <h3> Background</h3>\u0000 \u0000 <p>This study examines stigma and self-stigma towards individuals with intellectual disabilities among university students, focusing on cognitive, emotional and behavioural dimensions. It highlights the negative impact on social inclusion and the importance of educational interventions.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Methods</h3>\u0000 \u0000 <p>A quantitative pre-/post-test design with a control group assessed stigma towards intellectual disabilities. Differences based on the presence of intellectual disabilities and the effectiveness of an anti-stigma intervention was evaluated using the Goratu questionnaire.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Results</h3>\u0000 \u0000 <p>No significant gender differences in stigma levels were found. Students with intellectual disabilities showed significantly higher stigma levels compared to their peers without disabilities. The anti-stigma intervention improved attitudes in the experimental group versus the control group.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Conclusions</h3>\u0000 \u0000 <p>Findings support the efficacy of educational interventions in reducing stigma and promoting inclusive attitudes. Despite limitations like potential social desirability bias, this research offers valuable insights for policymakers and educators to enhance social inclusion and reduce stigma.</p>\u0000 </section>\u0000 </div>","PeriodicalId":51403,"journal":{"name":"Journal of Applied Research in Intellectual Disabilities","volume":"38 1","pages":""},"PeriodicalIF":2.1,"publicationDate":"2025-01-23","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143034809","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Exploring the Intersection of Gender Diversity and Intellectual Disability: A Scoping Review With a Focus on Clinical Care 探索性别多样性与智力残疾的交叉点:以临床护理为重点的范围综述。
IF 2.1 3区 医学
Journal of Applied Research in Intellectual Disabilities Pub Date : 2025-01-22 DOI: 10.1111/jar.70010
Kady F. Sternberg, Joanna G. Cloutier, Kaitlyn Ahlers, Christina Moore, Kathleen A. Koth, Takahiro Soda, Narpinder Kaur Malhi, Shikha Verma, Lisa C. Yeh, Jennifer L. McLaren
{"title":"Exploring the Intersection of Gender Diversity and Intellectual Disability: A Scoping Review With a Focus on Clinical Care","authors":"Kady F. Sternberg,&nbsp;Joanna G. Cloutier,&nbsp;Kaitlyn Ahlers,&nbsp;Christina Moore,&nbsp;Kathleen A. Koth,&nbsp;Takahiro Soda,&nbsp;Narpinder Kaur Malhi,&nbsp;Shikha Verma,&nbsp;Lisa C. Yeh,&nbsp;Jennifer L. McLaren","doi":"10.1111/jar.70010","DOIUrl":"10.1111/jar.70010","url":null,"abstract":"<div>\u0000 \u0000 \u0000 <section>\u0000 \u0000 <h3> Background</h3>\u0000 \u0000 <p>Little research has been conducted solely exploring gender diversity in people with intellectual disabilities. This review explores the literature, discusses the prevalence, and identifies clinical best practices for people at the intersection of gender diversity and intellectual disability.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Method</h3>\u0000 \u0000 <p>A scoping review was conducted utilising PRISMA methodology of the following databases: PubMed, CINAHL Complete (EBSCO), Cochrane Library (Wiley), Dissertations &amp; Theses Global (ProQuest), PsycInfo (EBSCO), Scopus and Web of Science.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Results</h3>\u0000 \u0000 <p>Five hundred seventy five titles and abstracts were screened, 61 full-text articles were reviewed and 17 met inclusion criteria. Four major themes were identified: prevalence, trauma and co-occurring mental health disorders, barriers to care and best practices.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Conclusion</h3>\u0000 \u0000 <p>This review highlights the lack of research and provides valuable insight into the experiences of people with gender diversity and intellectual disability. Further research is needed to understand the prevalence and explore the intersection and experience of gender-diverse people with intellectual disabilities.</p>\u0000 </section>\u0000 </div>","PeriodicalId":51403,"journal":{"name":"Journal of Applied Research in Intellectual Disabilities","volume":"38 1","pages":""},"PeriodicalIF":2.1,"publicationDate":"2025-01-22","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143025933","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Evaluating a Virtual Community-of-Practice as Implementation Strategy for the Needs Assessment Framework in Intellectual Disability Care: A Quasi-Experimental Multi-Methods Study 评估虚拟实践社区作为智障护理需求评估框架的实施策略:一项准实验的多方法研究。
IF 2.1 3区 医学
Journal of Applied Research in Intellectual Disabilities Pub Date : 2025-01-18 DOI: 10.1111/jar.70007
Esther H. Bisschops, Noud Frielink, J. Clasien de Schipper, Carlo Schuengel, Petri J. C. M. Embregts
{"title":"Evaluating a Virtual Community-of-Practice as Implementation Strategy for the Needs Assessment Framework in Intellectual Disability Care: A Quasi-Experimental Multi-Methods Study","authors":"Esther H. Bisschops,&nbsp;Noud Frielink,&nbsp;J. Clasien de Schipper,&nbsp;Carlo Schuengel,&nbsp;Petri J. C. M. Embregts","doi":"10.1111/jar.70007","DOIUrl":"10.1111/jar.70007","url":null,"abstract":"<div>\u0000 \u0000 \u0000 <section>\u0000 \u0000 <h3> Background</h3>\u0000 \u0000 <p>The Needs Assessment Framework (NAF) stimulates awareness of care staff to consider perspectives of clients with intellectual disabilities in decisions on involuntary care. We explored the effect of implementers' participation in a Virtual Community-of-Practice (VCoP) for designing implementation plans, on NAF implementation and staff awareness.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Method</h3>\u0000 \u0000 <p>A quasi-experimental design was used to compare implementation and awareness by care staff (<i>n =</i> 54) between organisations that implemented NAF with VCoP participation (<i>N =</i> 4) and organisations that implemented NAF as usual (<i>N =</i> 3). The ItFits toolkit work routine in the VCoP was qualitatively analysed to understand choices regarding implementation plans.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Results</h3>\u0000 \u0000 <p>No statistical differences in implementation and awareness among care staff were found between the intervention and control groups. Implementers evaluated collaboration on implementation and the ItFits toolkit as helpful.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Conclusions</h3>\u0000 \u0000 <p>Evaluation of implementation effectiveness and process are both needed to offer unique insights for iteratively changing daily practice around involuntary care.</p>\u0000 </section>\u0000 </div>","PeriodicalId":51403,"journal":{"name":"Journal of Applied Research in Intellectual Disabilities","volume":"38 1","pages":""},"PeriodicalIF":2.1,"publicationDate":"2025-01-18","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11742692/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143017501","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
‘It Feels Very Weird and Normal at the Same Time’: Sibling Perceptions of Their Relationships With an Autistic Brother or Sister With Complex Care Needs “感觉很奇怪,同时又很正常”:兄弟姐妹对他们与有复杂照顾需求的自闭症兄弟姐妹关系的看法。
IF 2.1 3区 医学
Journal of Applied Research in Intellectual Disabilities Pub Date : 2025-01-16 DOI: 10.1111/jar.70009
Louise Rixon, Richard P. Hastings, Hanna Kovshoff
{"title":"‘It Feels Very Weird and Normal at the Same Time’: Sibling Perceptions of Their Relationships With an Autistic Brother or Sister With Complex Care Needs","authors":"Louise Rixon,&nbsp;Richard P. Hastings,&nbsp;Hanna Kovshoff","doi":"10.1111/jar.70009","DOIUrl":"10.1111/jar.70009","url":null,"abstract":"<div>\u0000 \u0000 \u0000 <section>\u0000 \u0000 <h3> Background</h3>\u0000 \u0000 <p>The impact of having a disabled brother or sister on siblings' psychological well-being and sibling relationships has been the subject of several research studies. However, research which focuses on the relationship between siblings and their autistic brother or sister with an intellectual disability and complex care needs is rare. We explored siblings' views and experiences of their sibling relationship with their autistic brother or sister with complex care needs.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Method</h3>\u0000 \u0000 <p>Eleven children and early adolescents (4 male/7 female) between the ages of 8 and 14 years took part in semi-structured interviews with questions focussing on their relationship with their autistic brother or sister who had complex care needs. Reflexive thematic analysis was used as a guide to analyse the data.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Results</h3>\u0000 \u0000 <p>Four themes are presented: positive interactions bring joy, sibling conflict is driven by verbal interactions, behaviours may have different meanings for the sibling, perceptions of change in the sibling relationship.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Conclusions</h3>\u0000 \u0000 <p>The siblings of autistic brothers and sisters with an intellectual disability and complex care needs described warmth and positivity. Siblings of autistic children, who have complex care needs, deeply valued their interactions with their brother or sister despite reciprocity being on their terms. When autistic brothers and sisters had some functional spoken language, this often changed the context for the siblings relationship; perhaps leading to an increased chance of conflict or perceived negative experiences. These findings highlight the importance of understanding the individual meaning of these sibling relationships.</p>\u0000 </section>\u0000 </div>","PeriodicalId":51403,"journal":{"name":"Journal of Applied Research in Intellectual Disabilities","volume":"38 1","pages":""},"PeriodicalIF":2.1,"publicationDate":"2025-01-16","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11736244/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143017515","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
The Valemee Visual System Helps Reduce Risk for Chronic Illness by Promoting Physical Fitness, Self-Efficacy and Independence in Adults With Intellectual Disabilities Valemee 视觉系统通过增强智障成人的体能、自我效能和独立性,帮助他们降低罹患慢性疾病的风险。
IF 2.1 3区 医学
Journal of Applied Research in Intellectual Disabilities Pub Date : 2025-01-13 DOI: 10.1111/jar.70011
Anthony Dujmovic-Bračak, Alisa D. Blazek, Emily M. Post, Jacqueline D. Goodway, Carmen B. Swain
{"title":"The Valemee Visual System Helps Reduce Risk for Chronic Illness by Promoting Physical Fitness, Self-Efficacy and Independence in Adults With Intellectual Disabilities","authors":"Anthony Dujmovic-Bračak,&nbsp;Alisa D. Blazek,&nbsp;Emily M. Post,&nbsp;Jacqueline D. Goodway,&nbsp;Carmen B. Swain","doi":"10.1111/jar.70011","DOIUrl":"10.1111/jar.70011","url":null,"abstract":"<div>\u0000 \u0000 \u0000 <section>\u0000 \u0000 <h3> Introduction</h3>\u0000 \u0000 <p>Sedentary behaviour among individuals with intellectual disabilities, driven by barriers such as limited access to adapted programs and low self-efficacy, contributes to chronic health conditions. This study evaluates the effectiveness of the Valemee Visual System (VVS), a novel tool offering visual support and structured exercise programming, in improving physical fitness and promoting exercise independence in this population.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Methods</h3>\u0000 \u0000 <p>A repeated measures design was employed with an 8-week intervention involving 22 participants aged 22–44 with mild to moderate intellectual disabilities. The program utilised the VVS for total body fitness training.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Results</h3>\u0000 \u0000 <p>Participants demonstrated significant improvements in grip strength, sit-to-stand performance, bench press capacity, 400-m walk time, and flexibility. Self-efficacy increased, and reduced reliance on prompts indicated greater exercise independence and autonomy.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Conclusions</h3>\u0000 \u0000 <p>The VVS shows promise in enhancing physical fitness, accessibility, and adherence in adults with intellectual disabilities, supporting long-term health and reducing chronic disease risk.</p>\u0000 </section>\u0000 </div>","PeriodicalId":51403,"journal":{"name":"Journal of Applied Research in Intellectual Disabilities","volume":"38 1","pages":""},"PeriodicalIF":2.1,"publicationDate":"2025-01-13","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11730804/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142980920","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
‘I Don't Think I Have Ever Worked Harder on a Case’: Needs of Canadian Child Protection Workers and Parents With Intellectual Disabilities “我想我从来没有更努力地处理过一个案件”:加拿大儿童保护工作者和智障父母的需求。
IF 2.1 3区 医学
Journal of Applied Research in Intellectual Disabilities Pub Date : 2025-01-13 DOI: 10.1111/jar.70006
Munazza Tahir, Virginie Cobigo
{"title":"‘I Don't Think I Have Ever Worked Harder on a Case’: Needs of Canadian Child Protection Workers and Parents With Intellectual Disabilities","authors":"Munazza Tahir,&nbsp;Virginie Cobigo","doi":"10.1111/jar.70006","DOIUrl":"10.1111/jar.70006","url":null,"abstract":"<div>\u0000 \u0000 \u0000 <section>\u0000 \u0000 <h3> Background</h3>\u0000 \u0000 <p>The current literature has established that prejudice in child protection cases with parents with intellectual disabilities continues to persist. However, complexities of these cases are not well-understood from the perspective of child protection workers. This study aimed to identify the needs of child protection workers and their views on factors that influence supports for parents with intellectual disabilities.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Method</h3>\u0000 \u0000 <p>This qualitative study conducted semistructured interviews with child protection workers who have worked directly with parents with intellectual disabilities across five child protective agencies in three regions in Ontario, Canada (<i>n</i> = 11).</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Results</h3>\u0000 \u0000 <p>Three major themes emerged after content analysis of interviews: (1) training and support needs of child protection workers; (2) key sources of support for parents; and (3) intersecting factors impacting decision-making.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Conclusion</h3>\u0000 \u0000 <p>Social service agencies continue to be fragmented and better coordination across agencies is needed to meet the cross-sectoral needs of parents with intellectual disabilities.</p>\u0000 </section>\u0000 </div>","PeriodicalId":51403,"journal":{"name":"Journal of Applied Research in Intellectual Disabilities","volume":"38 1","pages":""},"PeriodicalIF":2.1,"publicationDate":"2025-01-13","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11729718/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142980919","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Expressing Sexuality in Silent and Weep: Experience of Chinese People With Intellectual Disabilities and Parents 在沉默与哭泣中表达性:中国智障人士与父母的经验。
IF 2.1 3区 医学
Journal of Applied Research in Intellectual Disabilities Pub Date : 2025-01-11 DOI: 10.1111/jar.70008
Angus Y. K. Lam, Matthew K. S. Yau, Richard C. Franklin, Peter A. Leggat
{"title":"Expressing Sexuality in Silent and Weep: Experience of Chinese People With Intellectual Disabilities and Parents","authors":"Angus Y. K. Lam,&nbsp;Matthew K. S. Yau,&nbsp;Richard C. Franklin,&nbsp;Peter A. Leggat","doi":"10.1111/jar.70008","DOIUrl":"10.1111/jar.70008","url":null,"abstract":"<div>\u0000 \u0000 \u0000 <section>\u0000 \u0000 <h3> Background</h3>\u0000 \u0000 <p>Sexual well-being significantly impacts the overall quality of life for individuals with and without intellectual disabilities. Notably, parents play a pivotal role in influencing their children's sexual development, and their attitudes towards this topic are shaped by Chinese sociocultural values.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Methods</h3>\u0000 \u0000 <p>This study employed Interpretative phenomenological analysis to explore the experiences and attitudes of five individuals with intellectual disabilities and seven parents/caregivers regarding the sexual needs of their adult offspring with intellectual disabilities.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Results</h3>\u0000 \u0000 <p>The findings revealed participants' experiences and concerns, often navigating the challenges posed by traditional Chinese cultural restrictions through responses characterised as ‘Silent’ (avoidance of discussion) and ‘Weep’ (deep-seated psycho-emotional burden).</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Conclusions</h3>\u0000 \u0000 <p>This research emphasises the importance of a pluralistic society and advocates for promoting sexual autonomy among individuals with intellectual disabilities. The findings have implications for future practises and highlight the need for a more inclusive and compassionate approach to their sexual well-being.</p>\u0000 </section>\u0000 </div>","PeriodicalId":51403,"journal":{"name":"Journal of Applied Research in Intellectual Disabilities","volume":"38 1","pages":""},"PeriodicalIF":2.1,"publicationDate":"2025-01-11","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11733526/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143056164","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
“They Don't Understand People With Learning Disabilities”: Exploring the Experiences of People With Intellectual Disabilities Undergoing Welfare Assessments “他们不了解有学习障碍的人”:探索智障人士接受福利评估的经历。
IF 2.1 3区 医学
Journal of Applied Research in Intellectual Disabilities Pub Date : 2025-01-07 DOI: 10.1111/jar.70000
Bethan Ward, Ste Weatherhead, Beth Greenhill
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