Journal of Applied Research in Intellectual Disabilities最新文献

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Language and Ageing in Adults With Down Syndrome: An Analysis of Receptive and Expressive Language Measures 唐氏综合症成人的语言与衰老:接受性和表达性语言测量的分析。
IF 2.1 3区 医学
Journal of Applied Research in Intellectual Disabilities Pub Date : 2024-12-08 DOI: 10.1111/jar.13330
Mario Figueroa, Sònia Darbra
{"title":"Language and Ageing in Adults With Down Syndrome: An Analysis of Receptive and Expressive Language Measures","authors":"Mario Figueroa,&nbsp;Sònia Darbra","doi":"10.1111/jar.13330","DOIUrl":"10.1111/jar.13330","url":null,"abstract":"<div>\u0000 \u0000 \u0000 <section>\u0000 \u0000 <h3> Background</h3>\u0000 \u0000 <p>The evidence on the effect of age on the receptive and expressive language skills of individuals with Down syndrome is inconclusive. Recent research highlights the relevance of having tools to detect age-related changes in language skills.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Method</h3>\u0000 \u0000 <p>Data were collected on 45 adults with Down syndrome. All were assessed with the Peabody test, token test, verbal fluency tasks and an expressive language sample.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Results</h3>\u0000 \u0000 <p>Scores on token and Peabody showed a decline in older adults, whereas no significant effect of age was observed for expressive language measures. A quadratic regression confirmed the association between age and receptive language measures. Highly significant associations were also found between the performance on receptive and expressive language measures.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Conclusions</h3>\u0000 \u0000 <p>Receptive language skills are more age-sensitive than the expressive language skills. In addition to expressive language skills, receptive language skills should be measured because they show age associated changes not observed in expressive language.</p>\u0000 </section>\u0000 </div>","PeriodicalId":51403,"journal":{"name":"Journal of Applied Research in Intellectual Disabilities","volume":"38 1","pages":""},"PeriodicalIF":2.1,"publicationDate":"2024-12-08","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11625501/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142796456","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Using Virtual Care to Assess the Health Needs of People With Intellectual Disabilities: A Scoping Review 利用虚拟护理评估智障人士的健康需求:范围审查》。
IF 2.1 3区 医学
Journal of Applied Research in Intellectual Disabilities Pub Date : 2024-12-08 DOI: 10.1111/jar.13328
Alison Devitt, Melissa Nott, Stephanie Nelson, Julia Sgarlata, Michelle Gray, Srilaxmi Balachandran, Asma Taskin
{"title":"Using Virtual Care to Assess the Health Needs of People With Intellectual Disabilities: A Scoping Review","authors":"Alison Devitt,&nbsp;Melissa Nott,&nbsp;Stephanie Nelson,&nbsp;Julia Sgarlata,&nbsp;Michelle Gray,&nbsp;Srilaxmi Balachandran,&nbsp;Asma Taskin","doi":"10.1111/jar.13328","DOIUrl":"10.1111/jar.13328","url":null,"abstract":"<div>\u0000 \u0000 \u0000 <section>\u0000 \u0000 <h3> Background</h3>\u0000 \u0000 <p>The COVID-19 pandemic precipitated a rapid roll-out of virtual health care services to people with intellectual disabilities. Limited evidence is available for clinicians to guide virtual care delivery.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Method</h3>\u0000 \u0000 <p>Twenty-three studies were identified through systematic searching of 16 databases. Extracted data were mapped to the NSW Virtual Health Strategy.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Results</h3>\u0000 \u0000 <p>Evidence exists to support the use of virtual care for screening, diagnosis, assessment, and review of people with intellectual disabilities, with benefits for clients, carers, and clinicians. Evidence mapped well to the priority areas of the NSW Virtual Health Strategy, highlighting the need for clinician training and specific supports and adaptations to ensure accessibility for people with intellectual disabilities.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Conclusions</h3>\u0000 \u0000 <p>The use of virtual care to assess the health needs of people with intellectual disabilities across the lifespan is nascent. An opportunity exists for co-design with people with intellectual disabilities to reduce barriers to accessing and engaging in virtual care.</p>\u0000 </section>\u0000 </div>","PeriodicalId":51403,"journal":{"name":"Journal of Applied Research in Intellectual Disabilities","volume":"38 1","pages":""},"PeriodicalIF":2.1,"publicationDate":"2024-12-08","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11626090/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142796511","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
To Identify and Compare ActivPAL Objectively Measured Activity Levels With Self-Reported Activity From the International Physical Activity Questionnaire in Older Adults With Intellectual Disability 识别并比较ActivPAL客观测量的活动水平与国际体育活动问卷中老年人智力残疾的自我报告活动水平
IF 2.1 3区 医学
Journal of Applied Research in Intellectual Disabilities Pub Date : 2024-12-02 DOI: 10.1111/jar.13327
Louise Lynch, Mary McCarron, Philip McCallion, Eilish Burke
{"title":"To Identify and Compare ActivPAL Objectively Measured Activity Levels With Self-Reported Activity From the International Physical Activity Questionnaire in Older Adults With Intellectual Disability","authors":"Louise Lynch,&nbsp;Mary McCarron,&nbsp;Philip McCallion,&nbsp;Eilish Burke","doi":"10.1111/jar.13327","DOIUrl":"https://doi.org/10.1111/jar.13327","url":null,"abstract":"<div>\u0000 \u0000 \u0000 <section>\u0000 \u0000 <h3> Background</h3>\u0000 \u0000 <p>The positive impact of physical activity on health is widely known. A comparison between activPAL objective measures and International Physical Activity Questionnaire short form (IPAQ-SF) self-reported activity levels was completed with older adults with intellectual disability. Understanding differences between the two methodologies will better support the interpretations of findings and recommendations.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Methods</h3>\u0000 \u0000 <p>ActivPAL measures including intensity, time and type were considered for 72 participants. Similarly, the IPAQ-determined measures were investigated. Implications of different numbers of activPAL valid days were considered. Comparisons between the activPAL and IPAQ-SF scores were examined using multiple correlation coefficients.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Results</h3>\u0000 \u0000 <p>Low to moderate agreement was found between the activPAL and IPAQ-SF using Spearman's Rho and Pearson's correlation coefficients.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Conclusions</h3>\u0000 \u0000 <p>The IPAQ-SF may not be the optimal tool for the accurate determination of activity levels in this population.</p>\u0000 </section>\u0000 </div>","PeriodicalId":51403,"journal":{"name":"Journal of Applied Research in Intellectual Disabilities","volume":"38 1","pages":""},"PeriodicalIF":2.1,"publicationDate":"2024-12-02","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://onlinelibrary.wiley.com/doi/epdf/10.1111/jar.13327","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142764271","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Identifying Patient Safety Competencies for Healthcare Staff Treating Children and Young People With Intellectual Disability in Hospitals: A Delphi Study 识别医院中治疗智障儿童和青少年的医护人员的患者安全能力:一项德尔菲研究
IF 2.1 3区 医学
Journal of Applied Research in Intellectual Disabilities Pub Date : 2024-12-02 DOI: 10.1111/jar.13329
Natalie Ong, Kelsie Boulton, Jacqueline Milne, Gail Tomsic, Adam Guastella, Natalie Silove, Janelle Weise, Janet Long, Merrilyn Walton, Annette Burgess
{"title":"Identifying Patient Safety Competencies for Healthcare Staff Treating Children and Young People With Intellectual Disability in Hospitals: A Delphi Study","authors":"Natalie Ong,&nbsp;Kelsie Boulton,&nbsp;Jacqueline Milne,&nbsp;Gail Tomsic,&nbsp;Adam Guastella,&nbsp;Natalie Silove,&nbsp;Janelle Weise,&nbsp;Janet Long,&nbsp;Merrilyn Walton,&nbsp;Annette Burgess","doi":"10.1111/jar.13329","DOIUrl":"https://doi.org/10.1111/jar.13329","url":null,"abstract":"<div>\u0000 \u0000 \u0000 <section>\u0000 \u0000 <h3> Background</h3>\u0000 \u0000 <p>Children and young people with intellectual disability have poor healthcare and are at risk of patient safety events due to lack of staff training and consensus on competencies for safe and quality care. For the adoption of reasonable adjustments in mainstream paediatric healthcare clinical competencies needed to be adapted to an existing patient safety education framework.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Methods</h3>\u0000 \u0000 <p>Thirteen experts in intellectual disability health and patient safety participated in an eDelphi survey aimed at reaching consensus on core competencies required of the paediatric healthcare workforce. Four rounds were completed with descriptive and thematic analyses undertaken.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Results</h3>\u0000 \u0000 <p>Consensus was achieved for 120 competencies across seven domains. Results highlighted the need for adaptations in all the domains, particularly communication, working safely and specific areas unique to this population.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Conclusion</h3>\u0000 \u0000 <p>An adapted framework that addresses competencies for safe and quality care that included reasonable adjustments is critical for improving care for this population.</p>\u0000 </section>\u0000 </div>","PeriodicalId":51403,"journal":{"name":"Journal of Applied Research in Intellectual Disabilities","volume":"38 1","pages":""},"PeriodicalIF":2.1,"publicationDate":"2024-12-02","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142764274","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Perceptual Experiences of Autistic People With an Intellectual Disability and People With Williams Syndrome: A Reflexive Thematic Analysis 孤独症伴智障者与威廉姆斯综合症者的知觉经验:反身性主题分析
IF 2.1 3区 医学
Journal of Applied Research in Intellectual Disabilities Pub Date : 2024-11-29 DOI: 10.1111/jar.13326
Freya Elise, Brian Irvine, Jana Brinkert, Charlie Hamilton, Emily K. Farran, Elizabeth Milne, Gaia Scerif, Anna Remington
{"title":"Perceptual Experiences of Autistic People With an Intellectual Disability and People With Williams Syndrome: A Reflexive Thematic Analysis","authors":"Freya Elise,&nbsp;Brian Irvine,&nbsp;Jana Brinkert,&nbsp;Charlie Hamilton,&nbsp;Emily K. Farran,&nbsp;Elizabeth Milne,&nbsp;Gaia Scerif,&nbsp;Anna Remington","doi":"10.1111/jar.13326","DOIUrl":"https://doi.org/10.1111/jar.13326","url":null,"abstract":"<div>\u0000 \u0000 \u0000 <section>\u0000 \u0000 <h3> Background</h3>\u0000 \u0000 <p>Autistic people without intellectual disabilities have increased perceptual capacity: they can process more information at any given time compared to non-autistic people. We examined whether increased perceptual capacity is evident across the autistic spectrum (i.e. for autistic people with intellectual disabilities) and whether it is specific to autism, or also experienced by people with Williams Syndrome (WS).</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Methods</h3>\u0000 \u0000 <p>Five autistic adults with intellectual disabilities and five adults with WS took part in accessible, qualitative interviews. Responses were analysed using thematic analysis.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Results</h3>\u0000 \u0000 <p>Both groups expressed enjoyment of focussed attention, with autistic participants preferring multiple simultaneous inputs. Responses suggested increased perceptual capacity for autistic participants only. The sensory environment was reported to be anxiety-inducing for both groups.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Conclusions</h3>\u0000 \u0000 <p>This study gives preliminary evidence that increased perceptual capacity may be universal across the autistic spectrum, and specific to autism. Understanding differences in capacity offers more targeted suggestions to support sensory challenges.</p>\u0000 </section>\u0000 </div>","PeriodicalId":51403,"journal":{"name":"Journal of Applied Research in Intellectual Disabilities","volume":"38 1","pages":""},"PeriodicalIF":2.1,"publicationDate":"2024-11-29","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://onlinelibrary.wiley.com/doi/epdf/10.1111/jar.13326","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142749342","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Leveraging Observation Research to Improve Instruction for Students With Intellectual Disability: Guidance for Adapting Tools 利用观察研究改进智障学生的教学:工具改编指南》。
IF 2.1 3区 医学
Journal of Applied Research in Intellectual Disabilities Pub Date : 2024-11-20 DOI: 10.1111/jar.13320
Esther R. Lindström, Kimberly A. McFadden
{"title":"Leveraging Observation Research to Improve Instruction for Students With Intellectual Disability: Guidance for Adapting Tools","authors":"Esther R. Lindström,&nbsp;Kimberly A. McFadden","doi":"10.1111/jar.13320","DOIUrl":"10.1111/jar.13320","url":null,"abstract":"<div>\u0000 \u0000 \u0000 <section>\u0000 \u0000 <h3> Background and Aims</h3>\u0000 \u0000 <p>Students with intellectual disability benefit from high-quality instruction in reading and mathematics.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Methods</h3>\u0000 \u0000 <p>This Theoretical Paper outlines the need for effective, evidence-based instructional practices for this population and the potential for observation research to inform such advancements. We report our systematic process of adapting two widely used observation tools initially developed for students with learning disabilities, to address content and instructional practices relevant to classrooms serving elementary students with intellectual disability.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Results</h3>\u0000 \u0000 <p>Our revised observation tools facilitated more inclusive data collection, taking into account the needs and goals of students with intellectual disability, in addition to their peers for whom the original tool was designed.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Conclusions</h3>\u0000 \u0000 <p>We offer guidance for researchers and practitioners to make similar adaptations when using research tools intended for other populations or instructional settings.</p>\u0000 </section>\u0000 </div>","PeriodicalId":51403,"journal":{"name":"Journal of Applied Research in Intellectual Disabilities","volume":"38 1","pages":""},"PeriodicalIF":2.1,"publicationDate":"2024-11-20","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11579562/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142683686","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Transitions-Related Support for Ageing Family Carers of Older People With Intellectual Disabilities Who Convey Behaviours That Challenge Others: A Systematic Rapid Scoping Review 为有挑战他人行为的智障老年人的家庭照顾者提供与过渡相关的支持:系统性快速范围界定审查》。
IF 2.1 3区 医学
Journal of Applied Research in Intellectual Disabilities Pub Date : 2024-11-20 DOI: 10.1111/jar.13322
J. Jordan, M. Larkin, E. Tilley, J. Vseteckova, S. Ryan, L. Wallace
{"title":"Transitions-Related Support for Ageing Family Carers of Older People With Intellectual Disabilities Who Convey Behaviours That Challenge Others: A Systematic Rapid Scoping Review","authors":"J. Jordan,&nbsp;M. Larkin,&nbsp;E. Tilley,&nbsp;J. Vseteckova,&nbsp;S. Ryan,&nbsp;L. Wallace","doi":"10.1111/jar.13322","DOIUrl":"10.1111/jar.13322","url":null,"abstract":"<div>\u0000 \u0000 \u0000 <section>\u0000 \u0000 <h3> Background</h3>\u0000 \u0000 <p>There are increasing numbers of ageing family carers of older (40+) adults with intellectual disabilities who convey behaviours that challenge others in the UK. It is important to understand the needs and experiences of these carers as they support their older family member to transition to different care contexts.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Method</h3>\u0000 \u0000 <p>A rapid scoping review of published and unpublished literature, using systematic methods of data searching, extraction and analysis.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Results</h3>\u0000 \u0000 <p>Exhaustion, reluctance to burden others, distrust of alternative living arrangements and deep interpersonal ties with their family member with intellectual disabilities mean ageing carers can avoid planning ahead. There is a lack of appropriate information, support and professional advice available. Developing trust in services is critical, as is a ‘whole family’ approach to planning.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Conclusions</h3>\u0000 \u0000 <p>More research is vital to understand the support ageing carers receive to make choices, and how it meets their needs.</p>\u0000 </section>\u0000 </div>","PeriodicalId":51403,"journal":{"name":"Journal of Applied Research in Intellectual Disabilities","volume":"38 1","pages":""},"PeriodicalIF":2.1,"publicationDate":"2024-11-20","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://onlinelibrary.wiley.com/doi/epdf/10.1111/jar.13322","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142683690","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
A Systematic Review of Burnout Among Staff Working in Services for Adults With Intellectual and Developmental Disabilities 智障和发育障碍成人服务机构员工职业倦怠的系统回顾
IF 2.1 3区 医学
Journal of Applied Research in Intellectual Disabilities Pub Date : 2024-11-18 DOI: 10.1111/jar.13325
Peter Baker, Josephine Chishty-Collins, Nick Gore
{"title":"A Systematic Review of Burnout Among Staff Working in Services for Adults With Intellectual and Developmental Disabilities","authors":"Peter Baker,&nbsp;Josephine Chishty-Collins,&nbsp;Nick Gore","doi":"10.1111/jar.13325","DOIUrl":"https://doi.org/10.1111/jar.13325","url":null,"abstract":"<div>\u0000 \u0000 \u0000 <section>\u0000 \u0000 <h3> Background</h3>\u0000 \u0000 <p>The psychological wellbeing of staff who provide support to people with intellectual and developmental disabilities is one of the crucial factors in determining the quality of provision offered. An understanding of the current status and influencing variables of staff psychological wellbeing is considered to be vital in this respect.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Method</h3>\u0000 \u0000 <p>A systematic review of all studies involving staff working with people with intellectual disabilities using the Maslach Burnout Inventory Human Services Version (MBI-HS) published from May 2004 up to and including April 2024 was conducted.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Results</h3>\u0000 \u0000 <p>Twenty-one studies were found which allowed updated norms and comparisons with previously published norms (Skirrow and Hatton, <i>Journal of Applied Research in Intellectual Disabilities</i> 2007; 20(2):131–144) and normative scores from staff working in human services. Scores indicated significantly lower levels of Emotional Exhaustion and Depersonalisation and less Personal Accomplishment compared to norms for people working in human services. The positive trend in improving burnout scores previously reported by Skirrow and Hatton (<i>Journal of Applied Research in Intellectual Disabilities</i> 2007; 20(2):131–144) had not continued.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Conclusions</h3>\u0000 \u0000 <p>A ‘National Observatory’ approach is recommended to enable regular monitoring of staff wellbeing and exploration of influencing variables.</p>\u0000 </section>\u0000 </div>","PeriodicalId":51403,"journal":{"name":"Journal of Applied Research in Intellectual Disabilities","volume":"38 1","pages":""},"PeriodicalIF":2.1,"publicationDate":"2024-11-18","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://onlinelibrary.wiley.com/doi/epdf/10.1111/jar.13325","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142665905","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Outcomes of a Creative Ability–Based Intervention: Advancing Independence in Learners With Severe Intellectual Disability 基于创造性能力的干预措施的成果:提高严重智障学习者的独立性
IF 2.1 3区 医学
Journal of Applied Research in Intellectual Disabilities Pub Date : 2024-11-18 DOI: 10.1111/jar.13323
Annamarie Elisabet van Wyngaard, Catharina Jacoba Elizabeth Uys
{"title":"Outcomes of a Creative Ability–Based Intervention: Advancing Independence in Learners With Severe Intellectual Disability","authors":"Annamarie Elisabet van Wyngaard,&nbsp;Catharina Jacoba Elizabeth Uys","doi":"10.1111/jar.13323","DOIUrl":"https://doi.org/10.1111/jar.13323","url":null,"abstract":"<div>\u0000 \u0000 \u0000 <section>\u0000 \u0000 <h3> Background</h3>\u0000 \u0000 <p>When supporting learners with severe intellectual disabilities, teaching methods needs to be adapted. Vona du Toit Model of Creative Ability (VdTMoCA) aims to enhance participation and facilitate adaptive responses through targeted intervention principles. This study aimed to develop and evaluate the impact of an intervention programme for learners with severe intellectual disability based on the VdTMoCA to improve independence in an Instrumental Activity of Daily Living (IADL), namely doing a laundry activity.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Method</h3>\u0000 \u0000 <p>A multiple case study with a literal replication design, including six subjects with severe intellectual disability, was used. The intervention consisted of a 1-week baseline assessment and four intervention sessions. To identify changes, levels of prompting and the time taken to initiate each step were measured.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Results</h3>\u0000 \u0000 <p>This study showed that a meticulously designed intervention programme based on the VdTMoCA principles rendered positive outcomes. Activity analysis and adaptation of the steps in a laundry activity, according to the principles of therapeutic relationship, presentation and structuring, contributed to this success.</p>\u0000 </section>\u0000 </div>","PeriodicalId":51403,"journal":{"name":"Journal of Applied Research in Intellectual Disabilities","volume":"38 1","pages":""},"PeriodicalIF":2.1,"publicationDate":"2024-11-18","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://onlinelibrary.wiley.com/doi/epdf/10.1111/jar.13323","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142665906","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Exploring the Strengths and Resilience of Siblings of People With Intellectual and Developmental Disabilities 探索智力和发育障碍人士兄弟姐妹的优势和复原力。
IF 2.1 3区 医学
Journal of Applied Research in Intellectual Disabilities Pub Date : 2024-11-16 DOI: 10.1111/jar.13324
Chung Eun Lee, Sehrish Shikarpurya
{"title":"Exploring the Strengths and Resilience of Siblings of People With Intellectual and Developmental Disabilities","authors":"Chung Eun Lee,&nbsp;Sehrish Shikarpurya","doi":"10.1111/jar.13324","DOIUrl":"10.1111/jar.13324","url":null,"abstract":"<div>\u0000 \u0000 \u0000 <section>\u0000 \u0000 <h3> Background and Aims</h3>\u0000 \u0000 <p>Siblings play a crucial role in shaping and guiding the experiences of their brother or sister with a disability across the lifespan. However, little is known about the positive outcomes of their roles and experiences as siblings. Understanding the positive outcomes challenges stereotypes and the stigma associated with disabilities and allows for a more holistic view of sibling experiences.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Methods</h3>\u0000 \u0000 <p>We conducted a survey with 140 adult siblings of people with disabilities to explore their strengths, resilience and community belonging.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Results</h3>\u0000 \u0000 <p>We found that siblings highly rated their perceived strengths across various domains. Furthermore, siblings maintained high levels of resilience and most belonged to various organisations for social support. We also noted several strengths-based factors that predicted siblings' resilience.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Conclusion</h3>\u0000 \u0000 <p>Our findings offer significant insights into siblings' inherent and developed strengths and the role of community networks in promoting sibling resilience and expanding their support systems.</p>\u0000 </section>\u0000 </div>","PeriodicalId":51403,"journal":{"name":"Journal of Applied Research in Intellectual Disabilities","volume":"38 1","pages":""},"PeriodicalIF":2.1,"publicationDate":"2024-11-16","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142645263","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
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