{"title":"‘I Don't Think I Have Ever Worked Harder on a Case’: Needs of Canadian Child Protection Workers and Parents With Intellectual Disabilities","authors":"Munazza Tahir, Virginie Cobigo","doi":"10.1111/jar.70006","DOIUrl":"10.1111/jar.70006","url":null,"abstract":"<div>\u0000 \u0000 \u0000 <section>\u0000 \u0000 <h3> Background</h3>\u0000 \u0000 <p>The current literature has established that prejudice in child protection cases with parents with intellectual disabilities continues to persist. However, complexities of these cases are not well-understood from the perspective of child protection workers. This study aimed to identify the needs of child protection workers and their views on factors that influence supports for parents with intellectual disabilities.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Method</h3>\u0000 \u0000 <p>This qualitative study conducted semistructured interviews with child protection workers who have worked directly with parents with intellectual disabilities across five child protective agencies in three regions in Ontario, Canada (<i>n</i> = 11).</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Results</h3>\u0000 \u0000 <p>Three major themes emerged after content analysis of interviews: (1) training and support needs of child protection workers; (2) key sources of support for parents; and (3) intersecting factors impacting decision-making.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Conclusion</h3>\u0000 \u0000 <p>Social service agencies continue to be fragmented and better coordination across agencies is needed to meet the cross-sectoral needs of parents with intellectual disabilities.</p>\u0000 </section>\u0000 </div>","PeriodicalId":51403,"journal":{"name":"Journal of Applied Research in Intellectual Disabilities","volume":"38 1","pages":""},"PeriodicalIF":2.1,"publicationDate":"2025-01-13","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11729718/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142980919","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Angus Y. K. Lam, Matthew K. S. Yau, Richard C. Franklin, Peter A. Leggat
{"title":"Expressing Sexuality in Silent and Weep: Experience of Chinese People With Intellectual Disabilities and Parents","authors":"Angus Y. K. Lam, Matthew K. S. Yau, Richard C. Franklin, Peter A. Leggat","doi":"10.1111/jar.70008","DOIUrl":"10.1111/jar.70008","url":null,"abstract":"<div>\u0000 \u0000 \u0000 <section>\u0000 \u0000 <h3> Background</h3>\u0000 \u0000 <p>Sexual well-being significantly impacts the overall quality of life for individuals with and without intellectual disabilities. Notably, parents play a pivotal role in influencing their children's sexual development, and their attitudes towards this topic are shaped by Chinese sociocultural values.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Methods</h3>\u0000 \u0000 <p>This study employed Interpretative phenomenological analysis to explore the experiences and attitudes of five individuals with intellectual disabilities and seven parents/caregivers regarding the sexual needs of their adult offspring with intellectual disabilities.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Results</h3>\u0000 \u0000 <p>The findings revealed participants' experiences and concerns, often navigating the challenges posed by traditional Chinese cultural restrictions through responses characterised as ‘Silent’ (avoidance of discussion) and ‘Weep’ (deep-seated psycho-emotional burden).</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Conclusions</h3>\u0000 \u0000 <p>This research emphasises the importance of a pluralistic society and advocates for promoting sexual autonomy among individuals with intellectual disabilities. The findings have implications for future practises and highlight the need for a more inclusive and compassionate approach to their sexual well-being.</p>\u0000 </section>\u0000 </div>","PeriodicalId":51403,"journal":{"name":"Journal of Applied Research in Intellectual Disabilities","volume":"38 1","pages":""},"PeriodicalIF":2.1,"publicationDate":"2025-01-11","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11733526/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143056164","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"“They Don't Understand People With Learning Disabilities”: Exploring the Experiences of People With Intellectual Disabilities Undergoing Welfare Assessments","authors":"Bethan Ward, Ste Weatherhead, Beth Greenhill","doi":"10.1111/jar.70000","DOIUrl":"10.1111/jar.70000","url":null,"abstract":"<div>\u0000 \u0000 \u0000 <section>\u0000 \u0000 <h3> Background</h3>\u0000 \u0000 <p>The Welfare Reform Act (2012) has been criticised for harming claimants, particularly through functional assessments. Although many people with intellectual disabilities in the UK receive welfare benefits, their experiences of undergoing functional assessments are under-researched.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Method</h3>\u0000 \u0000 <p>Eight participants with intellectual disabilities were interviewed about experiences of welfare assessment. Transcripts were analysed qualitatively using interpretative phenomenological analysis.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Results</h3>\u0000 \u0000 <p>Analysis suggested five group experiential themes: ‘Living in fear: I was nervous and scared’; ‘The system is marginalising: Other people are better than me’; ‘Relationship with the assessor: His attitude fucking stunk’; ‘Others as a safe base: Someone there that you know, and you trust’; and ‘Responding with empowerment: That's where I really shined’.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Conclusions</h3>\u0000 \u0000 <p>People with intellectual disabilities experience functional assessments as scary and oppressive. Assessment reinforced the stigma associated with having an intellectual disability and, to a lesser extent, claiming benefits. Individual, structural and policy levels interventions are discussed.</p>\u0000 </section>\u0000 </div>","PeriodicalId":51403,"journal":{"name":"Journal of Applied Research in Intellectual Disabilities","volume":"38 1","pages":""},"PeriodicalIF":2.1,"publicationDate":"2025-01-07","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11707405/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142959836","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Macey Barratt, Peter Lewis, Natalie Duckworth, Natasha Jojo, Viktorija Malecka, Signe Tomsone, Dita Rituma, Nathan J. Wilson
{"title":"Parental Experiences of Quality of Life When Caring for Their Children With Intellectual Disability: A Meta-Aggregation Systematic Review","authors":"Macey Barratt, Peter Lewis, Natalie Duckworth, Natasha Jojo, Viktorija Malecka, Signe Tomsone, Dita Rituma, Nathan J. Wilson","doi":"10.1111/jar.70005","DOIUrl":"10.1111/jar.70005","url":null,"abstract":"<div>\u0000 \u0000 \u0000 <section>\u0000 \u0000 <h3> Background</h3>\u0000 \u0000 <p>Parents of children with moderate to profound intellectual disabilities play a crucial role in providing direct care but often demonstrate heightened parental stress and reduced quality of life. This review explores perceived quality of life from the experiences of parents when caring for young and adult children.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Method</h3>\u0000 \u0000 <p>A qualitative systematic review following Joanna Briggs Institute meta-aggregation approach has been completed and reported according to PRISMA guidelines.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Findings</h3>\u0000 \u0000 <p>Seventeen qualitative studies were included. Three synthesised findings were identified: ‘Challenges and rewards of being a parent carer’, ‘The real cost of caregiver burden’ and ‘Surrendering self for duty – the mothers role’.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Conclusion</h3>\u0000 \u0000 <p>Parents of children with moderate to profound intellectual disabilities reported diminished quality of life for themselves and their families, experiencing increased physical and mental health issues associated with caregiving burdens. Future research is needed that determine what effective support systems and interventions are needed to alleviate parental caregiver burden.</p>\u0000 </section>\u0000 </div>","PeriodicalId":51403,"journal":{"name":"Journal of Applied Research in Intellectual Disabilities","volume":"38 1","pages":""},"PeriodicalIF":2.1,"publicationDate":"2025-01-06","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11724350/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142959837","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
S. Collings, G. Hindmarsh, H. Wilkinson, G. Llewellyn
{"title":"The Sociodemographic Characteristics of Mothers With Intellectual Disability: A Review of Population-Level Studies","authors":"S. Collings, G. Hindmarsh, H. Wilkinson, G. Llewellyn","doi":"10.1111/jar.13331","DOIUrl":"https://doi.org/10.1111/jar.13331","url":null,"abstract":"<div>\u0000 \u0000 \u0000 <section>\u0000 \u0000 <h3> Background</h3>\u0000 \u0000 <p>Population studies confirm mothers with intellectual disability have poorer antenatal outcomes than other mothers but less is known about any differences in sociodemographic characteristics between these groups.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Method</h3>\u0000 \u0000 <p>A systematic review of population-level studies on parents with intellectual disability was undertaken from January to August 2023. Seven electronic databases and references from two literature reviews were examined and 27 studies met inclusion criteria for the review.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Results</h3>\u0000 \u0000 <p>All studies reported on mothers and only one on fathers. Maternal age and socioeconomic status were most frequently reported; age in 26 studies and socioeconomic status in 23 studies. Most studies found mothers with intellectual disability were significantly younger (73%) and more disadvantaged (83%) than their peers.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Conclusions</h3>\u0000 \u0000 <p>Maternal intellectual disability co-occurs with established parenting risk factors in the general population. Social welfare programs must become disability-inclusive and population datasets should routinely include disability items. A knowledge gap remains in relation to fathers with intellectual disability.</p>\u0000 </section>\u0000 </div>","PeriodicalId":51403,"journal":{"name":"Journal of Applied Research in Intellectual Disabilities","volume":"38 1","pages":""},"PeriodicalIF":2.1,"publicationDate":"2025-01-06","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143112293","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Lauren A. Cameron, Bruce J. Tonge, Patricia Howlin, Stewart L. Einfeld, Roger J. Stancliffe, Kylie M. Gray
{"title":"Childhood and Adulthood Predictors of Community Participation by Autistic Adults With and Without Intellectual Disability","authors":"Lauren A. Cameron, Bruce J. Tonge, Patricia Howlin, Stewart L. Einfeld, Roger J. Stancliffe, Kylie M. Gray","doi":"10.1111/jar.70001","DOIUrl":"10.1111/jar.70001","url":null,"abstract":"<div>\u0000 \u0000 \u0000 <section>\u0000 \u0000 <h3> Background</h3>\u0000 \u0000 <p>Few studies have explored community participation for autistic adults, with or without intellectual disability. This study aims to investigate how autistic adults participate in the community, and the childhood and adulthood factors that predict community participation in adulthood.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Method</h3>\u0000 \u0000 <p>Eighty-four autistic adults (mean age 34 years; 67% with co-occurring intellectual disability) initially recruited as children and adolescents, participated in the current study. Community participation frequency and variety were measured in adulthood. Childhood and adulthood predictors of community participation were investigated.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Results</h3>\u0000 \u0000 <p>Participants engaged in the community an average of 18.2 times (range 0–49) over the previous 30-day period, in an average of 6.3 different activities (range 0–13). Childhood and adulthood factors (autism symptoms, intellectual disability, living arrangements) were associated with community participation.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Conclusion</h3>\u0000 \u0000 <p>Areas for additional support and resources were identified.</p>\u0000 </section>\u0000 </div>","PeriodicalId":51403,"journal":{"name":"Journal of Applied Research in Intellectual Disabilities","volume":"38 1","pages":""},"PeriodicalIF":2.1,"publicationDate":"2024-12-23","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11666882/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142883761","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Daniel Sutherland, Samantha Flynn, Joanna Griffin, Richard P. Hastings
{"title":"Programme Recipient and Facilitator Experiences of Positive Family Connections for Families of Children With Intellectual Disabilities and/or Who Are Autistic","authors":"Daniel Sutherland, Samantha Flynn, Joanna Griffin, Richard P. Hastings","doi":"10.1111/jar.70003","DOIUrl":"10.1111/jar.70003","url":null,"abstract":"<div>\u0000 \u0000 \u0000 <section>\u0000 \u0000 <h3> Background</h3>\u0000 \u0000 <p>Family members of children with developmental disabilities on average report poorer family functioning and mental health. Positive Family Connections is a co-produced, positively-oriented, family-systems support programme for families of children with developmental disabilities aged 8–13. We investigated experiences of Positive Family Connections, and the processes involved in change.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Method</h3>\u0000 \u0000 <p>We conducted semi-structured interviews with eight family carers who took part in Positive Family Connections and nine facilitators. Data were analysed using framework analysis.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Results</h3>\u0000 \u0000 <p>Programme recipients' and facilitators generally reported positive experiences of Positive Family Connections and described beneficial effects on wellbeing and family relationships. We developed a model showing how the lived experience of facilitators and positive approach led to reductions in isolation and perceived changes in mindset that were described as improving family carers' wellbeing and family relationships.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Conclusions</h3>\u0000 \u0000 <p>Positive Family Connections appears to be an acceptable programme which programme recipients and facilitators perceive to be beneficial.</p>\u0000 </section>\u0000 </div>","PeriodicalId":51403,"journal":{"name":"Journal of Applied Research in Intellectual Disabilities","volume":"38 1","pages":""},"PeriodicalIF":2.1,"publicationDate":"2024-12-19","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://onlinelibrary.wiley.com/doi/epdf/10.1111/jar.70003","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142866521","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Helen K. Røstad-Tollefsen, Benedicte Hagen Venås, Svein O. Kolset, Kjetil Retterstøl, Hanne Hennig Havdal, Marianne Nordstrøm
{"title":"External Factors Influencing the Motivation and Performance of Staff in Their Nutritional Work With Adults With Intellectual Disabilities","authors":"Helen K. Røstad-Tollefsen, Benedicte Hagen Venås, Svein O. Kolset, Kjetil Retterstøl, Hanne Hennig Havdal, Marianne Nordstrøm","doi":"10.1111/jar.70002","DOIUrl":"10.1111/jar.70002","url":null,"abstract":"<div>\u0000 \u0000 \u0000 <section>\u0000 \u0000 <h3> Background</h3>\u0000 \u0000 <p>Staff working in municipal care homes with adults with intellectual disabilities impact their diet significantly.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Aim</h3>\u0000 \u0000 <p>To explore how external factors influence staff's motivation and performance of nutritional work with these residents.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Method</h3>\u0000 \u0000 <p>Semi-structured qualitative interviews with 11 staff using systematic text condensation for analysis.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Results</h3>\u0000 \u0000 <p>Five main themes were revealed: Need for the implementation of the official nutritional guidelines, lack of nutritional skills and knowledge, prioritisation of nutritional work tasks, staff's ethical dilemmas with the different legislations and management anchoring and collaboration.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Conclusions</h3>\u0000 \u0000 <p>Implementing systematic nutritional routines and clarifying nutritional work in practice were emphasised to promote continuity and better cooperation among the staff. This, and the need for increased nutritional competence in the municipality organisation, adequate framework conditions for nutritional work and practical and pedagogical measures for nutritional tasks, were crucial factors for staff's motivation, performance, consistency and equality in nutritional practice.</p>\u0000 </section>\u0000 </div>","PeriodicalId":51403,"journal":{"name":"Journal of Applied Research in Intellectual Disabilities","volume":"38 1","pages":""},"PeriodicalIF":2.1,"publicationDate":"2024-12-18","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://onlinelibrary.wiley.com/doi/epdf/10.1111/jar.70002","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142848622","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Louise D. Denne, Gwenllian Moody, Elinor Coulman, David Gillespie, Kate Ingarfield, Nicholas Manktelow, Corinna F. Grindle, J. Carl Hughes, Zac Taylor, Richard P. Hastings
{"title":"Teaching Early Reading Skills to Adults With Intellectual Disabilities Using a Support Worker/Family Carer Mediated Online Reading Programme: A Feasibility Randomised Controlled Trial","authors":"Louise D. Denne, Gwenllian Moody, Elinor Coulman, David Gillespie, Kate Ingarfield, Nicholas Manktelow, Corinna F. Grindle, J. Carl Hughes, Zac Taylor, Richard P. Hastings","doi":"10.1111/jar.13332","DOIUrl":"10.1111/jar.13332","url":null,"abstract":"<div>\u0000 \u0000 \u0000 <section>\u0000 \u0000 <h3> Background</h3>\u0000 \u0000 <p>There is a paucity of research into interventions that help people with intellectual disabilities learn to read. This feasibility study examines whether an online reading programme, Headsprout, with additional support strategies and supervision (the intervention), can be delivered by support workers/family carers and the feasibility of conducting a later large-scale effectiveness trial.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Methods</h3>\u0000 \u0000 <p>The study used a 2-arm randomised controlled trial (RCT) design with an embedded process evaluation using a mixed methods approach.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Results</h3>\u0000 \u0000 <p>Thirty-six adults with intellectual disabilities were recruited. Informed consent and data were obtained remotely. Progression criteria for recruitment, retention, randomisation and usual practice were met; intervention adherence and fidelity were poor. Pressure on support services was a key barrier.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Conclusions</h3>\u0000 \u0000 <p>Whilst progression to a large-scale effectiveness trial was not recommended, the success of conducting an RCT and remotely obtaining informed consent and data from adults with intellectual disabilities opens opportunities for increased participation in research for a currently under-represented group.</p>\u0000 \u0000 <p><b>Registration:</b> ISRCTN11409097</p>\u0000 </section>\u0000 </div>","PeriodicalId":51403,"journal":{"name":"Journal of Applied Research in Intellectual Disabilities","volume":"38 1","pages":""},"PeriodicalIF":2.1,"publicationDate":"2024-12-11","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11635184/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142815078","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"Adapting a Self-Concept Questionnaire for Students With Intellectual Disabilities: An Inclusive Research Approach","authors":"Montserrat Yepes-Baldó, Marina Romeo, Núria Codina, Gemma Pallarés","doi":"10.1111/jar.13333","DOIUrl":"10.1111/jar.13333","url":null,"abstract":"<div>\u0000 \u0000 \u0000 <section>\u0000 \u0000 <h3> Background</h3>\u0000 \u0000 <p>Given the significant gap in tailored assessment tools, this research seeks to adapt the Self-concept (Form 5-AF5) questionnaire for young students with intellectual disabilities, employing an inclusive approach.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Method</h3>\u0000 \u0000 <p>Twenty-three disability experts initially assessed questionnaire suitability, leading to revisions for clarity. Cognitive interviews with eight students with intellectual disabilities clarified questions, and both original and adapted questionnaires were administered to students with and without intellectual disabilities for equivalence verification.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Results</h3>\u0000 \u0000 <p>The adapted scale showed good internal consistency. The correlation between scores of students without intellectual disabilities on original and adapted questionnaires exceeded 0.70. Students with intellectual disabilities reported higher levels of academic self-concept than their peers without intellectual disabilities.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Conclusions</h3>\u0000 \u0000 <p>The adaptation of the Self-concept (Form 5-AF5) questionnaire in this research facilitates the comparison of diverse student populations, as demonstrated by the alignment of results between the original and adapted questionnaires in the general student population.</p>\u0000 </section>\u0000 </div>","PeriodicalId":51403,"journal":{"name":"Journal of Applied Research in Intellectual Disabilities","volume":"38 1","pages":""},"PeriodicalIF":2.1,"publicationDate":"2024-12-11","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142808830","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}