Jodie Rawles, Sue Caton, Dawn Cavanagh, Chris Hatton, Richard P. Hastings, the Coronavirus and People with Learning Disabilities Study Team
{"title":"Three Years on From “Stay at Home”: Perspectives of People With Intellectual Disabilities About the Ongoing Impact of the COVID-19 Pandemic","authors":"Jodie Rawles, Sue Caton, Dawn Cavanagh, Chris Hatton, Richard P. Hastings, the Coronavirus and People with Learning Disabilities Study Team","doi":"10.1111/jar.70076","DOIUrl":"https://doi.org/10.1111/jar.70076","url":null,"abstract":"<div>\u0000 \u0000 \u0000 <section>\u0000 \u0000 <h3> Background</h3>\u0000 \u0000 <p>People with intellectual disabilities were disproportionately negatively affected during the COVID-19 pandemic, but there has been limited research about the perceived longer-term impact.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Methods</h3>\u0000 \u0000 <p>Data were collected through a two-stage narrative interview process with eight adults with intellectual disabilities. Participants told their storey about their lives at the time of the first lockdown in 2020, what their lives were like 3 years later, and what they hoped for the future. A second interview filled any gaps in the narrative. Data were analysed thematically.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Results</h3>\u0000 \u0000 <p>Four themes were identified: navigating disruptions to meaningful activities; unique challenges associated with residing in group-living environments; anger at the Government; barriers to moving forward.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Conclusions</h3>\u0000 \u0000 <p>The themes identified reflect powerful emotional memories of challenging experiences during the COVID-19 pandemic. Life continues to be difficult for many due to ongoing difficulties in getting the right support.</p>\u0000 </section>\u0000 </div>","PeriodicalId":51403,"journal":{"name":"Journal of Applied Research in Intellectual Disabilities","volume":"38 4","pages":""},"PeriodicalIF":2.1,"publicationDate":"2025-07-07","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://onlinelibrary.wiley.com/doi/epdf/10.1111/jar.70076","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144573860","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"Father Involvement in the Lives of Their Children With Intellectual and Developmental Disabilities in the UK","authors":"Emma Langley","doi":"10.1111/jar.70091","DOIUrl":"https://doi.org/10.1111/jar.70091","url":null,"abstract":"<div>\u0000 \u0000 \u0000 <section>\u0000 \u0000 <h3> Background</h3>\u0000 \u0000 <p>Father involvement in parenting has received scarce attention in the disability field. This qualitative study explored the involvement, roles and responsibilities of fathers of individuals with Intellectual and Developmental Disabilities (aged 5–24 years).</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Methods</h3>\u0000 \u0000 <p>Thirteen fathers participated in online, semi-structured interviews. Fathers were asked to describe their involvement in caregiving, their roles and responsibilities, and the factors that had an impact on these domains.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Results</h3>\u0000 \u0000 <p>Fathers were involved in the direct and indirect care of their child, and provided support for their partner and any siblings, alongside work commitments. A range of individual, interpersonal and contextual factors impacted their involvement and parenting role.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Conclusions</h3>\u0000 \u0000 <p>Fathers play an important role in the lives of children with Intellectual and Developmental Disabilities. Ways in which services could improve the quantity and quality of paternal involvement in parenting are discussed.</p>\u0000 </section>\u0000 </div>","PeriodicalId":51403,"journal":{"name":"Journal of Applied Research in Intellectual Disabilities","volume":"38 4","pages":""},"PeriodicalIF":2.1,"publicationDate":"2025-07-05","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://onlinelibrary.wiley.com/doi/epdf/10.1111/jar.70091","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144558174","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Zuyu Wang, Andrew Sommerlad, Joan K. Monin, Angela Hassiotis, Gill Livingston
{"title":"Hear Our Voice: A Photo-Elicitation Study to Explore the Social Participation of Older People With Mild/Moderate Intellectual Disability","authors":"Zuyu Wang, Andrew Sommerlad, Joan K. Monin, Angela Hassiotis, Gill Livingston","doi":"10.1111/jar.70083","DOIUrl":"https://doi.org/10.1111/jar.70083","url":null,"abstract":"<div>\u0000 \u0000 \u0000 <section>\u0000 \u0000 <h3> Background</h3>\u0000 \u0000 <p>People with intellectual disability are more socially isolated than the general population.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Aims</h3>\u0000 \u0000 <p>To explore the social participation experiences and enablers and barriers of older people with mild/moderate intellectual disability.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Methods</h3>\u0000 \u0000 <p>Following co-production of the research with an advocacy group, we purposively recruited people aged over 50 with mild/moderate intellectual disability, using photo-elicitation methods and qualitative interviews, analysed thematically.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Results</h3>\u0000 \u0000 <p>We recruited 14 participants (5 women) from London, UK. Themes were (1) negotiating social belonging in a world of barriers, (2) obstacles go beyond intellectual disability, (3) support must be tailored and personalised. Their experiences of discrimination made them afraid to go out and often to mix with people without disabilities. However, they enjoyed socialising, appreciating variety, social connection and learning.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Conclusion</h3>\u0000 \u0000 <p>People with intellectual disability wished to socialise but encountered multiple obstacles. Such barriers limit meaningful community engagement and inclusivity, underscoring the need for interventions to combat isolation.</p>\u0000 </section>\u0000 </div>","PeriodicalId":51403,"journal":{"name":"Journal of Applied Research in Intellectual Disabilities","volume":"38 4","pages":""},"PeriodicalIF":2.1,"publicationDate":"2025-06-29","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://onlinelibrary.wiley.com/doi/epdf/10.1111/jar.70083","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144514676","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Coralie Mercerat, Laura Pacheco, Marjorie Aunos, Marie-Marthe Cousineau, Ami Goulden, Michelle Swab, Bethany Brenton, Sibusiso Moyo
{"title":"The Role of Reproductive Injustice in the Access of Motherhood for Women With Intellectual Disabilities: A Narrative Literature Review","authors":"Coralie Mercerat, Laura Pacheco, Marjorie Aunos, Marie-Marthe Cousineau, Ami Goulden, Michelle Swab, Bethany Brenton, Sibusiso Moyo","doi":"10.1111/jar.70086","DOIUrl":"https://doi.org/10.1111/jar.70086","url":null,"abstract":"<div>\u0000 \u0000 \u0000 <section>\u0000 \u0000 <h3> Background</h3>\u0000 \u0000 <p>Even though becoming a parent and forming meaningful relationships are considered fundamental rights, research shows that there are significant barriers for people with intellectual disabilities within these social roles, as they are still seen as unfit for parenthood. Given limited research knowledge about the reproductive trajectories of women with intellectual disabilities, this paper presents the results of a narrative literature review on reproductive injustices against women with intellectual disabilities.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Methods</h3>\u0000 \u0000 <p>We conducted in-depth research within the scientific literature to better understand the reproductive injustice experienced by women with intellectual disabilities.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Results</h3>\u0000 \u0000 <p>Thirty-two publications were included in this narrative literature review. The main results are related to the nature and actors involved in the reproductive injustice and six types of discourses underpinning the non-consensual contraception, including sterilisation.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Conclusion</h3>\u0000 \u0000 <p>The findings have implications for future community-based research and intersectoral policies and practices that promote agency and relational autonomy of women with intellectual disabilities.</p>\u0000 </section>\u0000 </div>","PeriodicalId":51403,"journal":{"name":"Journal of Applied Research in Intellectual Disabilities","volume":"38 4","pages":""},"PeriodicalIF":2.1,"publicationDate":"2025-06-29","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://onlinelibrary.wiley.com/doi/epdf/10.1111/jar.70086","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144514675","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
M. van Nieuwenhuijzen, P. Riksten, S. Koet, M. Lever
{"title":"Paternal Role of Fathers in Families of Parents With Intellectual Disabilities: Views, Barriers and Facilitators in Fulfilling This Role","authors":"M. van Nieuwenhuijzen, P. Riksten, S. Koet, M. Lever","doi":"10.1111/jar.70090","DOIUrl":"https://doi.org/10.1111/jar.70090","url":null,"abstract":"<div>\u0000 \u0000 \u0000 <section>\u0000 \u0000 <h3> Background</h3>\u0000 \u0000 <p>This study examined the paternal role of fathers from families headed by parents with intellectual disabilities, their views and their barriers and facilitators in fulfilling this role.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Method</h3>\u0000 \u0000 <p>Nine fathers of families headed by parents with intellectual disabilities and 14 professionals were interviewed. Transcriptions were coded using a framework analysis.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Results</h3>\u0000 \u0000 <p>Fathers find their paternal role important and want to fulfil it by providing for the family, doing activities and teaching their child. However, they are hampered in fulfilling their paternal role due to several barriers at the family, professional and societal levels. Facilitators are co-parenting, recognising fathers in parenting support, working relations and supporting parents in roles and rights.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Conclusion</h3>\u0000 \u0000 <p>The awareness of the importance of the paternal role in parenting should increase. Professionals should support both mothers and fathers in fulfilling their parental roles to improve parental rights and the development and well-being of their children.</p>\u0000 </section>\u0000 </div>","PeriodicalId":51403,"journal":{"name":"Journal of Applied Research in Intellectual Disabilities","volume":"38 4","pages":""},"PeriodicalIF":2.1,"publicationDate":"2025-06-27","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://onlinelibrary.wiley.com/doi/epdf/10.1111/jar.70090","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144493035","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Hendrien Kaal, David Gast, Jacob Scholte ter Horst
{"title":"Prevalence and Characteristics of Hoarding Behaviour and Domestic Squalor Among Adults With Mild Intellectual Disability Receiving Residential or Outpatient Care","authors":"Hendrien Kaal, David Gast, Jacob Scholte ter Horst","doi":"10.1111/jar.70089","DOIUrl":"https://doi.org/10.1111/jar.70089","url":null,"abstract":"<div>\u0000 \u0000 \u0000 <section>\u0000 \u0000 <h3> Background</h3>\u0000 \u0000 <p>To date, no studies have examined the prevalence of hoarding behaviour and domestic squalor among individuals with mild intellectual disability. To address this gap, we conducted a prevalence study within a population supported by a medium-sized care organisation in the Netherlands.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Method</h3>\u0000 \u0000 <p>Data were collected on 437 individuals with mild intellectual disability receiving care in residential facilities or through outpatient services. Assessments were conducted using the Hoarding Rating Scale-Interview, the Environmental Cleanliness and Clutter Scale, and the Clutter Image Rating Scale.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Results</h3>\u0000 \u0000 <p>Hoarding behaviour and/or domestic squalor were observed in 16.8% of the residents. Support staff identified 8.3% of dwellings as posing significant safety risks or health hazards. Additionally, 6.7% of residents had been threatened with eviction due to hoarding or squalor.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Conclusions</h3>\u0000 \u0000 <p>Hoarding behaviour and domestic squalor appear to be more prevalent among individuals with mild intellectual disability in care settings than among the overall population.</p>\u0000 </section>\u0000 </div>","PeriodicalId":51403,"journal":{"name":"Journal of Applied Research in Intellectual Disabilities","volume":"38 4","pages":""},"PeriodicalIF":2.1,"publicationDate":"2025-06-26","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144492964","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Dawn E. Cavanagh, Sue Caton, Jodie Rawles, Chris Hatton, Richard P. Hastings, the Coronavirus and People with Learning Disabilities Study Team
{"title":"Living Through the COVID-19 Pandemic: The Experiences of People With Profound and Multiple Intellectual Disabilities Through a Family Carer Lens","authors":"Dawn E. Cavanagh, Sue Caton, Jodie Rawles, Chris Hatton, Richard P. Hastings, the Coronavirus and People with Learning Disabilities Study Team","doi":"10.1111/jar.70088","DOIUrl":"https://doi.org/10.1111/jar.70088","url":null,"abstract":"<div>\u0000 \u0000 \u0000 <section>\u0000 \u0000 <h3> Background</h3>\u0000 \u0000 <p>People with profound and multiple intellectual disabilities were disproportionately negatively affected by the COVID-19 pandemic. Few studies exist about the perceived longer-term impact of the pandemic on this group.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Methods</h3>\u0000 \u0000 <p>Data were collected through a two-stage narrative interview process. Six family members told their story about what their relative's lives were like at the first COVID-19 ‘lockdown’, what their lives were like now, and what they hoped their lives would be like in the future. A second interview filled any gaps in the narrative. Data were analysed thematically.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Results</h3>\u0000 \u0000 <p>Four themes were identified: Deeping exclusion and inequality; ‘I still haven't recovered’- Exhausted by the pandemic; A traumatic time–Disrupted routines, activities, and relationships and ‘The future is a scary place.’</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Conclusions</h3>\u0000 \u0000 <p>The COVID-19 pandemic exacerbated pre-existing health and social inequalities, leading to new uncertainties post-pandemic. Addressing the existing deficit in service provision should be an urgent priority.</p>\u0000 </section>\u0000 </div>","PeriodicalId":51403,"journal":{"name":"Journal of Applied Research in Intellectual Disabilities","volume":"38 4","pages":""},"PeriodicalIF":2.1,"publicationDate":"2025-06-26","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://onlinelibrary.wiley.com/doi/epdf/10.1111/jar.70088","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144482292","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Victoria Hogan, Martin Power, Michael Hogan, Margaret Hodgins
{"title":"Work-Related Quality of Life and Well-Being of Social Care Workers in the Disability Sector in Ireland","authors":"Victoria Hogan, Martin Power, Michael Hogan, Margaret Hodgins","doi":"10.1111/jar.70087","DOIUrl":"https://doi.org/10.1111/jar.70087","url":null,"abstract":"<div>\u0000 \u0000 \u0000 <section>\u0000 \u0000 <h3> Background</h3>\u0000 \u0000 <p>Scant attention has been paid to the quality of working life of social care workers in Ireland. This study sought to characterise both the quality of working life and the well-being of social care workers in the disability sector.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Method</h3>\u0000 \u0000 <p>A cross-sectional survey of social care workers (<i>n</i> = 307) was conducted. Measures of work-related quality of life, well-being, organisational constraints, workload and turnover intention were included in the survey.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Results</h3>\u0000 \u0000 <p>Experiencing higher organisational constraints, longer work hours and higher workload were related to lower quality of working life, <i>F</i>(9,242) = 24.953, <i>p</i> < 0.001. Higher organisational constraints and higher workload also negatively influenced well-being, <i>F</i>(9,240) = 11.494, <i>p</i> < 0.001. Linear regression indicated that higher turnover intention was influenced by lower quality of working life, <i>F</i>(1, 279) = 306.319, <i>p</i> < 0.001.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Conclusions</h3>\u0000 \u0000 <p>The results indicate the importance of the influence of work-related factors on both quality of working life and well-being in social care workers in disability services in Ireland.</p>\u0000 </section>\u0000 </div>","PeriodicalId":51403,"journal":{"name":"Journal of Applied Research in Intellectual Disabilities","volume":"38 3","pages":""},"PeriodicalIF":2.1,"publicationDate":"2025-06-19","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://onlinelibrary.wiley.com/doi/epdf/10.1111/jar.70087","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144315373","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Gillian Young, Maria Mathews, Leslie Meredith, Shannon L. Sibbald, Dana Ryan
{"title":"Person-Centred Plans From the Perspective of Persons-Supported in a Community Care Setting: A Qualitative Study","authors":"Gillian Young, Maria Mathews, Leslie Meredith, Shannon L. Sibbald, Dana Ryan","doi":"10.1111/jar.70084","DOIUrl":"https://doi.org/10.1111/jar.70084","url":null,"abstract":"<div>\u0000 \u0000 \u0000 <section>\u0000 \u0000 <h3> Background</h3>\u0000 \u0000 <p>In partnership with PHSS, a community care agency in London, Ontario, we describe the person-centred planning model. Person-centred plans (PCPs) are mandated in the community care sector and created annually through discussions with the person-supported, staff, family/friends and community members. PCPs are individualised, integrated into daily activities and contribute towards larger goals.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Methods</h3>\u0000 \u0000 <p>We interviewed 18 persons-supported and one family member. Participants were individuals with developmental, medical, or complex physical needs and supported by PHSS. We explored goals, accomplishments, the individualisation of PCPs, experiences with the process, and supports/barriers.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Results</h3>\u0000 \u0000 <p>PCPs are tailored to the person-supported's needs and preferences, linked to daily activities, and guide larger goals. PCPs are facilitated by the person-supported's goals and capacity and organisational factors (e.g., funding, staffing).</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Conclusions</h3>\u0000 \u0000 <p>This study evaluates person-centred planning from the perspectives of persons-supported, providing insights to enhance these processes within community care settings.</p>\u0000 </section>\u0000 </div>","PeriodicalId":51403,"journal":{"name":"Journal of Applied Research in Intellectual Disabilities","volume":"38 3","pages":""},"PeriodicalIF":2.1,"publicationDate":"2025-06-18","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://onlinelibrary.wiley.com/doi/epdf/10.1111/jar.70084","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144315196","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Annie S. Mills, Teresa Sellitto, Dallas D. Sorken, Katie Saunders, Lauren Bishop, Jan Willem Gorter, Jonathan A. Weiss
{"title":"Thriving for Adolescents With Intellectual Disability: A Photo-Elicitation Qualitative Study","authors":"Annie S. Mills, Teresa Sellitto, Dallas D. Sorken, Katie Saunders, Lauren Bishop, Jan Willem Gorter, Jonathan A. Weiss","doi":"10.1111/jar.70077","DOIUrl":"https://doi.org/10.1111/jar.70077","url":null,"abstract":"<div>\u0000 \u0000 \u0000 <section>\u0000 \u0000 <h3> Background</h3>\u0000 \u0000 <p>There has been a shift in recent decades towards studying the strengths of people with intellectual disability to promote wellbeing. This study developed a conceptualisation of <i>thriving</i> specific to adolescents with intellectual disability.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Method</h3>\u0000 \u0000 <p>A photo-elicitation qualitative design was used. Participants were 12 adolescents (ages 12–19) with a diagnosis of intellectual disability and their parents. Adolescents and their parents separately chose photos demonstrating thriving for the adolescent. Semi-structured interviews were conducted.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Results</h3>\u0000 \u0000 <p>Reflexive thematic analysis was used. Five core themes that interact and contribute to thriving were developed: <i>Enjoying Life</i>, <i>Developing</i>, <i>Having a Positive Sense of Self</i>, <i>Connecting,</i> and <i>Mattering</i>. Parents also identified the importance of adolescents being <i>Safe & Supported</i>.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Conclusions</h3>\u0000 \u0000 <p>This thriving framework can serve as a guiding template for community supports and future quantitative research studies for adolescents with intellectual disability.</p>\u0000 </section>\u0000 </div>","PeriodicalId":51403,"journal":{"name":"Journal of Applied Research in Intellectual Disabilities","volume":"38 3","pages":""},"PeriodicalIF":2.1,"publicationDate":"2025-06-16","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://onlinelibrary.wiley.com/doi/epdf/10.1111/jar.70077","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144299633","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}