Journal of Applied Research in Intellectual Disabilities最新文献

{"title":"Exploring Resilience in Mothers of Adolescents With Intellectual Disabilities in Thailand: A Qualitative Study","authors":"Wattana Tejakum,&nbsp;Maria Truesdale,&nbsp;Deborah Cairns","doi":"10.1111/jar.70271","DOIUrl":"https://doi.org/10.1111/jar.70271","url":null,"abstract":"<div>\u0000 \u0000 \u0000 <section>\u0000 \u0000 <h3> Background</h3>\u0000 \u0000 <p>Raising adolescents with intellectual disabilities in Thailand is challenging. Whilst some mothers show resilience, limited understanding exists of the factors within these cultural contexts that contribute to resilience. This qualitative study explores experiences of mothers caring for adolescent children with intellectual disabilities in Thailand.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Methods</h3>\u0000 \u0000 <p>Semi-structured interviews were conducted with 12 Thai mothers of adolescents with intellectual disabilities at the Rajanukul Institute in Thailand. Interview transcripts were analysed using thematic analysis, guided by Braun and Clarke (2006).</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Results</h3>\u0000 \u0000 <p>Six themes were developed, detailing mothers' resilience journeys: becoming a mother of a child with intellectual disabilities, finding my way, navigating challenges, support systems, holding on to faith, and forward-thinking strategies.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Conclusion</h3>\u0000 \u0000 <p>This study reveals that resilience amongst mothers is a dynamic process shaped by personal attributes, coping strategies, social support, and cultural and spiritual beliefs. These findings highlight the need for culturally sensitive interventions to strengthen parental resilience.</p>\u0000 </section>\u0000 </div>","PeriodicalId":51403,"journal":{"name":"Journal of Applied Research in Intellectual Disabilities","volume":"39 4","pages":""},"PeriodicalIF":2.2,"publicationDate":"2026-06-23","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://onlinelibrary.wiley.com/doi/epdf/10.1111/jar.70271","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"148300095","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Intergenerational Change in Health, Well-Being and Social Inclusion for Two Groups of Adults With Intellectual Disability Aged 40–49: Findings From a National Longitudinal Study","authors":"Kálya Yasmine Nunes de Lima,&nbsp;Darren McCausland,&nbsp;Philip McCallion,&nbsp;Mary McCarron","doi":"10.1111/jar.70254","DOIUrl":"10.1111/jar.70254","url":null,"abstract":"<div>\u0000 \u0000 \u0000 <section>\u0000 \u0000 <h3> Background</h3>\u0000 \u0000 <p>This paper examines differences in health, well-being and social inclusion between two generations of adults with intellectual disability in their 40s, measured 12 years apart.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Method</h3>\u0000 \u0000 <p>Data was drawn from Waves 1 and 5 of the Intellectual Disability Supplement to the Irish Longitudinal Study on Ageing. Descriptive statistics were calculated at Waves 1 and 5 and outcomes were analysed using CHAID (Chi Squared Automatic Interaction Detection) decision tree.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Results</h3>\u0000 \u0000 <p>Wave was the main predictor of increased weekly contact with friends (<i>p</i> &lt; 0.001), internet use (<i>p</i> &lt; 0.001) and alcohol consumption (<i>p</i> &lt; 0.001). Mild exercise (<i>p</i> &lt; 0.001) and moderate exercise decreased (<i>p</i> &lt; 0.001). Self-rated health (<i>p</i> &lt; 0.001) and mental health ratings (<i>p</i> = 0.006) improved, while loneliness declined (<i>p</i> = 0.041). Use of general practitioners (<i>p</i> &lt; 0.001), social work (<i>p</i> &lt; 0.001) and home help (<i>p</i> = 0.020) declined, whereas optician (<i>p</i> = 0.001) and dermatological services (<i>p</i> = 0.048) increased.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Conclusion</h3>\u0000 \u0000 <p>Intergenerational changes were observed, with improved social inclusion and health perceptions, alongside shifts in behaviour and healthcare use.</p>\u0000 </section>\u0000 </div>","PeriodicalId":51403,"journal":{"name":"Journal of Applied Research in Intellectual Disabilities","volume":"39 3","pages":""},"PeriodicalIF":1.9,"publicationDate":"2026-06-03","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://onlinelibrary.wiley.com/doi/epdf/10.1111/jar.70254","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"148159329","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"A Pilot Cluster Evaluation of an Experiential Learning–Based First Aid Training Program for Mothers of Children With Intellectual Disabilities","authors":"Ayşe Sezer Balci,&nbsp;Kerime Öğüt Düzen","doi":"10.1111/jar.70255","DOIUrl":"10.1111/jar.70255","url":null,"abstract":"<div>\u0000 \u0000 \u0000 <section>\u0000 \u0000 <h3> Aim</h3>\u0000 \u0000 <p>This study evaluated the effects of an experiential learning–based first aid training program on knowledge and self-efficacy among mothers of children with intellectual disabilities.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Methods</h3>\u0000 \u0000 <p>A pretest–posttest control-group design was conducted in four special education schools. The intervention group received a 4-week training program. Data were collected using the Self-Efficacy Scale for Home Accidents and the First Aid Information Form. Linear mixed-effects models assessed group × time effects, and intraclass correlation coefficients (ICCs) evaluated clustering.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Results</h3>\u0000 \u0000 <p>A significant group × time interaction was found for self-efficacy (<i>p</i> = 0.006), with greater improvement in the intervention group. The ICC was 0.21, indicating moderate clustering. Correct responses to several first aid items also increased.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Conclusion</h3>\u0000 \u0000 <p>Experiential learning–based training may improve first aid knowledge and self-efficacy. Findings remained robust after accounting for data dependencies but should be interpreted cautiously given the limited number of clusters.</p>\u0000 </section>\u0000 </div>","PeriodicalId":51403,"journal":{"name":"Journal of Applied Research in Intellectual Disabilities","volume":"39 3","pages":""},"PeriodicalIF":1.9,"publicationDate":"2026-06-02","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"148145709","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Sibling Brokerage: Recasting Sibling Roles as Systemic Labour Across Disability Service Systems","authors":"Jane Y. Jeong","doi":"10.1111/jar.70252","DOIUrl":"10.1111/jar.70252","url":null,"abstract":"<div>\u0000 \u0000 \u0000 <section>\u0000 \u0000 <h3> Background and Aims</h3>\u0000 \u0000 <p>The study examines sibling brokerage as a form of cultural, linguistic and institutional labour performed by siblings of individuals with intellectual and developmental disabilities from historically marginalised communities.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Methods</h3>\u0000 \u0000 <p>Ten adult sibling brokers were recruited and completed open-ended questionnaires. Data were analysed thematically, guided by conceptual frameworks of epistemic injustice.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Results</h3>\u0000 \u0000 <p>Findings reveal that sibling brokers serve as system navigators, translating institutional logics, advocating for services and rearticulating family knowledge. Their labour often began in childhood, was shaped by hegemonic expectations to fit into the system and was frequently unacknowledged or co-opted by professionals.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Conclusion</h3>\u0000 \u0000 <p>Sibling brokerage is not ancillary but structurally embedded labour that compensates for systemic gaps in accessibility and inclusion. Future research should examine how such roles are institutionally produced and sustained and envision justice-oriented systems that recognise the expertise of sibling brokers.</p>\u0000 </section>\u0000 </div>","PeriodicalId":51403,"journal":{"name":"Journal of Applied Research in Intellectual Disabilities","volume":"39 3","pages":""},"PeriodicalIF":1.9,"publicationDate":"2026-06-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"148145657","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Geographies of Parents With Intellectual Disabilities in Selected Regions of Namibia","authors":"Cynthy K. Haihambo","doi":"10.1111/jar.70245","DOIUrl":"10.1111/jar.70245","url":null,"abstract":"<div>\u0000 \u0000 \u0000 <section>\u0000 \u0000 <p>This study examined the geographies of parents with intellectual disabilities in specific regions of Namibia. It aimed to understand how these parents perceive themselves and their identities within their social and cultural contexts as they manage their parenting roles. Parents with intellectual disabilities in Namibia face many challenges from their families and communities.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Methods and Results</h3>\u0000 \u0000 <p>After obtaining ethical approval, permission was received from all relevant institutions. The study employed a qualitative research approach, including key informant interviews and non-participant observation with nine parents with intellectual disabilities.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Conclusion</h3>\u0000 \u0000 <p>The study recommends raising awareness campaigns about the parenting rights of individuals with intellectual disabilities and establishing safe spaces for everyone.</p>\u0000 </section>\u0000 </div>","PeriodicalId":51403,"journal":{"name":"Journal of Applied Research in Intellectual Disabilities","volume":"39 3","pages":""},"PeriodicalIF":1.9,"publicationDate":"2026-05-31","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://onlinelibrary.wiley.com/doi/epdf/10.1111/jar.70245","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"148140029","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Communicative Dilemmas for Practitioners in Service Encounters With People With Intellectual Disabilities: Insights From a Systematic Review of Conversation Analytic Research","authors":"Deborah Chinn,&nbsp;Andrea Bruun,&nbsp;Deborah Worrall,&nbsp;Susan Buell,&nbsp;Jessica La","doi":"10.1111/jar.70239","DOIUrl":"10.1111/jar.70239","url":null,"abstract":"<div>\u0000 \u0000 \u0000 <section>\u0000 \u0000 <h3> Background</h3>\u0000 \u0000 <p>How do practitioners in service settings respond to communication support needs of people with intellectual disabilities? Conversation Analysis (CA) uses recordings of everyday encounters to understand the challenges practitioners face.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Method</h3>\u0000 \u0000 <p>Following specialist guidance on systematically reviewing CA research, we reviewed 65 CA research articles examining staff communication in healthcare, education, social care and the police.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Results</h3>\u0000 \u0000 <p>We identified five themes in the synthesis. Two were categories of interactional practices (<i>Questions and Answers; Decision-Making</i>), one examined non-verbal communication (<i>Embodied and Non-Verbal Communication</i>) and two considered contributions of other material and human agents (<i>Communication Aids and Supports; Involvement of Companions</i>). In each theme, we saw examples of competency-enhancing and competency-inhibiting practices.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Conclusions</h3>\u0000 \u0000 <p>Practitioners face interactional dilemmas: (1) Orienting to the Person's Self-determination versus Getting the Job Done; (2) Adapting Communication versus Downplaying Difference. Future research should build on this review to develop and evaluate communication training for staff.</p>\u0000 </section>\u0000 </div>","PeriodicalId":51403,"journal":{"name":"Journal of Applied Research in Intellectual Disabilities","volume":"39 3","pages":""},"PeriodicalIF":1.9,"publicationDate":"2026-05-29","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://onlinelibrary.wiley.com/doi/epdf/10.1111/jar.70239","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"148058619","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"","authors":"","doi":"","DOIUrl":"","url":null,"abstract":"","PeriodicalId":51403,"journal":{"name":"Journal of Applied Research in Intellectual Disabilities","volume":"39 3","pages":""},"PeriodicalIF":1.9,"publicationDate":"2026-05-26","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"148091908","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"","authors":"","doi":"","DOIUrl":"","url":null,"abstract":"","PeriodicalId":51403,"journal":{"name":"Journal of Applied Research in Intellectual Disabilities","volume":"39 3","pages":""},"PeriodicalIF":1.9,"publicationDate":"2026-05-22","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"148087299","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"","authors":"","doi":"","DOIUrl":"","url":null,"abstract":"","PeriodicalId":51403,"journal":{"name":"Journal of Applied Research in Intellectual Disabilities","volume":"39 3","pages":""},"PeriodicalIF":1.9,"publicationDate":"2026-05-22","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"148087298","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"","authors":"","doi":"","DOIUrl":"","url":null,"abstract":"","PeriodicalId":51403,"journal":{"name":"Journal of Applied Research in Intellectual Disabilities","volume":"39 3","pages":""},"PeriodicalIF":1.9,"publicationDate":"2026-05-13","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"148078802","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}