Meaningful Engagement: Exploring Principles and Actions to Build Client and Caregiver Engagement Within a Community-Based Dual Diagnosis Service

IF 2.1 3区医学 Q2 PSYCHOLOGY, EDUCATIONAL

Journal of Applied Research in Intellectual Disabilities Pub Date : 2025-03-20 DOI:10.1111/jar.70033

Andrea Almas, Rosemary Lysaght, Susan Farrell, Lorrie Heffernan

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引用次数: 0

Abstract

Background

Engagement of individuals with an intellectual disability and their caregivers in health care has been highlighted as an essential factor in developing services that better meet client needs; however, few studies have focused on the engagement of individuals with a dual diagnosis (intellectual disability co-occurring with a mental health illness and/or challenging behaviour) in health care.

Methods

This qualitative participatory action study engaged clients and their caregivers in exploring principles and actions that can be applied to build active and meaningful engagement within a specialised community-based mental health service for adults with a dual diagnosis.

Results

The four themes that emerged from the data–Collaboration, Communication, Empowering Environment, and Tailored Service–offered a way to conceptualise client and caregiver engagement.

Conclusion

This study underscores the importance of building a culture of service delivery that values, encourages, and supports client and caregiver engagement. Practical strategies for increasing engagement are provided.

查看原文本刊更多论文

有意义的参与：探索在基于社区的双重诊断服务中建立客户和护理人员参与的原则和行动。

背景：人们强调，让智障人士及其照顾者参与卫生保健是开发更好地满足客户需求的服务的一个重要因素；然而，很少有研究关注双重诊断（智力残疾与精神健康疾病和/或具有挑战性的行为共存）个体在卫生保健中的参与情况。方法：这个定性的参与性行动研究让客户和他们的照顾者参与探索原则和行动，这些原则和行动可以应用于为双重诊断的成年人建立积极和有意义的专业社区精神卫生服务。结果：从数据中出现的四个主题——协作、沟通、赋权环境和定制服务——提供了一种概念化客户和护理人员参与的方法。结论：本研究强调了建立一种重视、鼓励和支持客户和护理人员参与的服务提供文化的重要性。提供了增加参与的实际战略。

本文章由计算机程序翻译，如有差异，请以英文原文为准。

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来源期刊

Journal of Applied Research in Intellectual Disabilities Multiple-

CiteScore

4.70

自引率

12.50%

发文量

期刊介绍： JARID is an international, peer-reviewed journal which draws together findings derived from original applied research in intellectual disabilities. The journal is an important forum for the dissemination of ideas to promote valued lifestyles for people with intellectual disabilities. It reports on research from the UK and overseas by authors from all relevant professional disciplines. It is aimed at an international, multi-disciplinary readership. Topics covered include community living, quality of life, challenging behaviour, communication, sexuality, medication, ageing, supported employment, family issues, mental health, physical health, autism, economic issues, social networks, staff stress, staff training, epidemiology and service provision.