Lorena Costa Ferreira, Egmar Longo, Alexandre Varella Giannetti, Yanca Luiza Sabarense Rezende, Eduarda de Assis Oliveira, Tuane Fernandes Silva, Robert J Palisano, Hércules Ribeiro Leite, Ana Cristina Resende Camargos
{"title":"Factors Associated with Participation Patterns of Young Brazilian Children with Myelomeningocele.","authors":"Lorena Costa Ferreira, Egmar Longo, Alexandre Varella Giannetti, Yanca Luiza Sabarense Rezende, Eduarda de Assis Oliveira, Tuane Fernandes Silva, Robert J Palisano, Hércules Ribeiro Leite, Ana Cristina Resende Camargos","doi":"10.1080/01942638.2024.2447025","DOIUrl":"https://doi.org/10.1080/01942638.2024.2447025","url":null,"abstract":"<p><strong>Aims: </strong>To describe participation patterns and identify factors associated with participation of young Brazilian children with myelomeningocele (MMC) in their home, daycare/preschool, and community settings.</p><p><strong>Methods: </strong>The participants were parents/caregivers of 70 children with MMC, averaging 26.7 (±17.3) months in age. Participation was measured by the Young Children's Participation and Environment Measure (YC-PEM) completed by interview. Simple and stepwise multiple linear egression models were used to examine factors associated with participation.</p><p><strong>Results: </strong>On average children participated in home activities a few times a week, community activities once a month to a few times in the last month, and daycare or preschool activities once to a few times in the past four months. Age was associated with participation frequency (<i>R</i><sup>2</sup> = 0.32; <i>p</i> < .0001) and number of activities (<i>R</i><sup>2</sup> = 0.27; <i>p</i> < .02) in daycare/preschool and in the number of activities in the community (<i>R</i><sup>2</sup> = 0.30; <i>p</i> < .0001). Number of environmental facilitators was associated with the desire for change in participation in daycare/preschool (<i>R</i><sup>2</sup> = 0.21; <i>p</i> < .04). Mobility performance was associated with children's level of involvement (<i>R</i><sup>2</sup> = 0.10; <i>p</i> = .006) and caregivers' desire for change in community participation (<i>R</i><sup>2</sup> = 0.11; <i>p</i> = .006).</p><p><strong>Conclusion: </strong>Knowledge of participation and factors that influence participation can help in designing interventions to improve participation opportunities for young children with MMC.</p>","PeriodicalId":49138,"journal":{"name":"Physical & Occupational Therapy in Pediatrics","volume":" ","pages":"1-17"},"PeriodicalIF":1.5,"publicationDate":"2025-01-06","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142933001","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Náguia Letícia de Medeiros, Fabiane Ribeiro Ferreira, Daniela Virgínia Vaz, Hiane Aparecida Silva, Mihee An, Robert J Palisano, Hércules Ribeiro Leite, Ana Cristina Resende Camargos
{"title":"Family-Professional Collaborative Physical Therapy Intervention via Telehealth for Children with Developmental Disabilities: A Mixed-Method Feasibility Study.","authors":"Náguia Letícia de Medeiros, Fabiane Ribeiro Ferreira, Daniela Virgínia Vaz, Hiane Aparecida Silva, Mihee An, Robert J Palisano, Hércules Ribeiro Leite, Ana Cristina Resende Camargos","doi":"10.1080/01942638.2024.2447024","DOIUrl":"https://doi.org/10.1080/01942638.2024.2447024","url":null,"abstract":"<p><strong>Aims: </strong>To evaluate attendance rates, daily therapy engagement, parents' perceptions regarding feasibility, acceptability, family-centeredness, and individualized outcomes of a collaborative telehealth-based physical therapy intervention for children with disabilities.</p><p><strong>Method: </strong>Mixed-method design involving 15 families and 17 children with disabilities (range age 4-90 months). Parents recorded time spent on home activities. Family-centeredness was assessed using the Measure of Processes of Care-20-item (MPOC-20). The Canadian Occupational Performance Measure (COPM) and Goal Attainment Scaling (GAS) were used to measure individualized outcomes. Interviews were conducted on families' perceptions of the telehealth service.</p><p><strong>Results: </strong>Parents attended an average of 8.29 out of 9 scheduled telehealth sessions and spent an average of 1.32 (±0.58) hours per day on therapy activities. Parents rated the services as family-centered \"to a fairly great extent\" or \"to a great extent\". On average, children achieved individualized goals. Parents identified therapists' collaborative behaviors and information sharing as facilitators, beliefs about their abilities and technical issues as barriers, and empowerment and active engagement as benefits of the telehealth sessions.</p><p><strong>Conclusion: </strong>The family-professional collaborative telehealth physical therapy was perceived by parents as acceptable and feasible to address their children needs. Children achieved individualized goals and participating families actively engaged in the intervention process.</p>","PeriodicalId":49138,"journal":{"name":"Physical & Occupational Therapy in Pediatrics","volume":" ","pages":"1-14"},"PeriodicalIF":1.5,"publicationDate":"2025-01-05","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142933020","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Esra Kınacı-Biber, Bilge N Yardımcı-Lokmanoğlu, Akmer Mutlu
{"title":"Early Motor Repertoire and Developmental Functioning at Later Age of Children Who Were Diagnosed with Autism Spectrum Disorder: A Pilot Study.","authors":"Esra Kınacı-Biber, Bilge N Yardımcı-Lokmanoğlu, Akmer Mutlu","doi":"10.1080/01942638.2024.2447020","DOIUrl":"https://doi.org/10.1080/01942638.2024.2447020","url":null,"abstract":"<p><strong>Aims: </strong>Autism Spectrum Disorder (ASD) may exhibit early motor delay, and long-term motor impairments in addition to social and communicative problems. This pilot study aimed to describe (i) the early motor repertoire using General Movements Assessment (GMA) of infants later diagnosed with ASD, (ii) the developmental outcomes in these children between 24- and 42-months, and (iii) the relationship between GMA and developmental outcomes.</p><p><strong>Methods: </strong>Ten children diagnosed with ASD were included. All infants were assessed using Motor Optimality Score for 3- to 5-month-old Infants-Revised score sheet for GMA, and the Bayley Scales of Infant and Toddler Development, Third Edition (Bayley-III) for developmental functioning aged between 24- and 42-months.</p><p><strong>Results: </strong>The median Motor Optimality Score-Revised (MOS-R) was 10 (range: 6-28), considered reduced optimal, and 80% of children had less than optimal MOS-R. 60% of the children had aberrant fidgety movements and abnormal postural patterns, and 80% had abnormal but not cramped-synchronized movement character. The mean composite scores of all subdomains in Bayley-III were below 69 (extremely low) in all children.</p><p><strong>Conclusions: </strong>This study highlighted the importance of early motor repertoire and longitudinal developmental assessments in children with ASD. Further research is needed to explore the potential of this assessment as a screening tool.</p>","PeriodicalId":49138,"journal":{"name":"Physical & Occupational Therapy in Pediatrics","volume":" ","pages":"1-15"},"PeriodicalIF":1.5,"publicationDate":"2025-01-05","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142933052","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Kristine Fortin, Teniola Egbe, Nicole Briskin, Anne-Ashley Field, Jordan Wentz, Judith Dawson, Susan Friedman, M Katherine Henry
{"title":"Occupational Therapists Enhance Comprehensive Health Assessments for Children in Foster Care.","authors":"Kristine Fortin, Teniola Egbe, Nicole Briskin, Anne-Ashley Field, Jordan Wentz, Judith Dawson, Susan Friedman, M Katherine Henry","doi":"10.1080/01942638.2024.2447022","DOIUrl":"https://doi.org/10.1080/01942638.2024.2447022","url":null,"abstract":"<p><strong>Aims: </strong>Children in foster care (CFC) have prevalent developmental health needs. Comprehensive health assessments (CHA) that include development evaluation are recommended for CFC. The impact of adding occupational therapy (OT) to multidisciplinary CHA teams is unknown. We aimed to describe findings from OT evaluations performed as part of CHA for CFC and determine if OT evaluation influences developmental health recommendations.</p><p><strong>Methods: </strong>Retrospective study at a clinic for CFC that included 335 children with OT evaluation during their CHA and 217 without OT evaluation due to limited availability. OTs performed developmental components of CHA using observation and standardized testing. We used descriptive statistics, and chi-square and Fisher's exact tests to compare developmental health recommendations between patients with and without OT assessment.</p><p><strong>Results: </strong>Median age was 8.3 years (range 0, 19). At least one aspect of development was delayed in 230/335 (69%) children evaluated by OT. OTs provided strategies to strengthen development to 74% of evaluated youth. Children seen by OT received significantly more developmental referrals compared to controls (38% versus 58%, <i>p</i><.001).</p><p><strong>Conclusions: </strong>Our findings suggest rehabilitation specialists such as OTs can enhance detection of developmental needs and provide strategies to strengthen development when included in CHA for CFC.</p>","PeriodicalId":49138,"journal":{"name":"Physical & Occupational Therapy in Pediatrics","volume":" ","pages":"1-12"},"PeriodicalIF":1.5,"publicationDate":"2025-01-02","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142916039","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Ariel Schwartz, Fiorella Guerrero Calle, Elizabeth Barbour, Andrew Persch, Beth Pfeiffer, Daniel K Davies, Erik J Mugele, Jessica Kramer
{"title":"Interpretability and Clinical Utility of the Pediatric Evaluation of Disability Inventory - Patient Reported Outcome (PEDI-PRO) Score Report.","authors":"Ariel Schwartz, Fiorella Guerrero Calle, Elizabeth Barbour, Andrew Persch, Beth Pfeiffer, Daniel K Davies, Erik J Mugele, Jessica Kramer","doi":"10.1080/01942638.2024.2378064","DOIUrl":"10.1080/01942638.2024.2378064","url":null,"abstract":"<p><strong>Aims: </strong>Well-designed score reports can support therapists to accurately interpret assessments. We piloted a score report for the Pediatric Evaluation Disability Inventory-Patient Reported Outcome (PEDI-PRO) and evaluated: 1) To what extent can occupational and physical therapists (OT, PT) accurately interpret item-response theory (IRT)-based PEDI-PRO assessment results? 2) What is the perceived clinical utility of the pilot score report?</p><p><strong>Methods: </strong>Exploratory, sequential mixed methods design. Focus groups with OT and PTs (<i>n</i> = 20) informed the development of the final score report; revisions were made in response to feedback. Next, OTs and PTs (<i>n</i> = 33) reviewed score reports from two fictional clients and answered survey questions about the interpretation of the PEDI-PRO results. Additional questions evaluated clinical utility.</p><p><strong>Results: </strong>Focus groups: Visual cues supported score interpretation, but therapists requested additional explanations for advanced IRT measurement concepts. Survey: Therapists accurately interpreted foundational IRT concepts (e.g. identifying most/least difficult items, highest scores), but were less accurate when interpreting advanced concepts (e.g. fit, unexpected responses). Therapists anticipated sharing different components of the score report with family members, clinicians, and payers to support their clinical practice.</p><p><strong>Conclusions: </strong>The pilot PEDI-PRO score report was highly endorsed by therapists, but therapists may need additional training to interpret advanced IRT concepts.</p>","PeriodicalId":49138,"journal":{"name":"Physical & Occupational Therapy in Pediatrics","volume":" ","pages":"22-40"},"PeriodicalIF":1.5,"publicationDate":"2025-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11634644/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141749417","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Grace-Anne M Herard, Ya-Ching Hung, Marina B Brandao, Andrew M Gordon
{"title":"Bimanual Coordination in Children with Bilateral Cerebral Palsy: A Cross-Sectional Study.","authors":"Grace-Anne M Herard, Ya-Ching Hung, Marina B Brandao, Andrew M Gordon","doi":"10.1080/01942638.2024.2376062","DOIUrl":"10.1080/01942638.2024.2376062","url":null,"abstract":"<p><strong>Aim: </strong>To compare bimanual coordination in children with bilateral cerebral palsy (BCP) with that of children with typical development (TD) and correlate bimanual coordination with clinical measures of hand function.</p><p><strong>Methods: </strong>3-D kinematic data were collected from 14 children with BCP (mean age 13 years 1 month; range 7.3-17.2 years, 5 females) and 14 age-matched children with TD (mean age 13 years 1 month, range 7.0-16.0 years, 7 females) as they opened a drawer with one hand and activated a switch inside it with the other hand at self-paced and as-fast-as-possible speeds. Hand roles varied in each condition. Participants' hand function levels were classified using the Manual Ability Classification System. Unimanual dexterity and bimanual performance were evaluated using the Box and Blocks Test and Both Hands Assessment respectively.</p><p><strong>Results: </strong>Participants with BCP performed the bimanual task more slowly (<i>p</i> < 0.001) and sequentially, as evidenced by greater time differences between the two hands achieving the end goal (<i>p</i> = 0.01). Faster speeds, particularly when the less affected hand opened the drawer, facilitated time-related measures of bimanual coordination (<i>p</i> < 0.05). Bimanual coordination correlated with all clinical measures of hand function (<i>p</i> < 0.05).</p><p><strong>Conclusion: </strong>For children with BCP, speed and hand used for each subcomponent of the task influence bimanual coordination. Better bimanual coordination is associated with less impairment of both hands.</p>","PeriodicalId":49138,"journal":{"name":"Physical & Occupational Therapy in Pediatrics","volume":" ","pages":"68-83"},"PeriodicalIF":1.5,"publicationDate":"2025-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141617479","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
G Osman, J Chemtov, C Mercier, J Collins, T Wong, V Gagnon, S Thierry, C Poitras-Quiniou, U Steen, O de Vries, V Quann, M Barbu, F Rauch, A Tsimicalis
{"title":"The Creation of an Individualized School Plan for Optimal Inclusion of Students with Osteogenesis Imperfecta.","authors":"G Osman, J Chemtov, C Mercier, J Collins, T Wong, V Gagnon, S Thierry, C Poitras-Quiniou, U Steen, O de Vries, V Quann, M Barbu, F Rauch, A Tsimicalis","doi":"10.1080/01942638.2024.2389881","DOIUrl":"10.1080/01942638.2024.2389881","url":null,"abstract":"<p><strong>Aims: </strong>The aims of this study were to: (1) synthesize existing evidence regarding the integration of students with osteogenesis imperfecta (OI) into the school setting, (2) tabulate existing school integration tools for OI, and (3) create an individualized school plan to facilitate school integration.</p><p><strong>Methods: </strong>Guided by the process of developing evidence-informed guidelines, an international, interprofessional, expert task force was convened. The process entailed: (1) reviewing of the literature, (2) developing recommendations, and (3) creating a clinically meaningful, person-focused plan to facilitate the integration and promotion of school inclusivity. The 13-member task force relied on empirical studies, grey literature, and their experiential knowledge (from clinical, teaching or patient experiences) to devise the plan.</p><p><strong>Results: </strong>Over a series of eight meetings and five drafts, the Task Force prioritized 14 core items for inclusion. These items consisted of general student information, fracture response protocol, student inclusion recommendations, mobility considerations, transfer considerations, toileting protocol, physical education recommendations, fieldtrip information, transportation considerations, evacuation plan, environmental and scholarly considerations, consent and authorization, and an annual renewal document.</p><p><strong>Conclusion: </strong>Further research is recommended to pilot the plan, solicit ongoing feedback, implement and evaluate the plan into routine education and health care practices.</p>","PeriodicalId":49138,"journal":{"name":"Physical & Occupational Therapy in Pediatrics","volume":" ","pages":"84-101"},"PeriodicalIF":1.5,"publicationDate":"2025-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141917871","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Sonja Andersson Marforio, Eva Ekvall Hansson, Annika Lundkvist Josenby
{"title":"The Use of Evaluation Methods for Physiotherapy Treatment in Infants With Bronchiolitis-a Survey Study.","authors":"Sonja Andersson Marforio, Eva Ekvall Hansson, Annika Lundkvist Josenby","doi":"10.1080/01942638.2024.2386475","DOIUrl":"10.1080/01942638.2024.2386475","url":null,"abstract":"<p><strong>Aims: </strong>The aim of this study was to identify and describe methods that physiotherapists use to evaluate the immediate effects of their interventions for infants in hospital with acute respiratory tract infections.</p><p><strong>Methods: </strong>We constructed an anonymous digital survey to physiotherapists working with infants aged 0-24 months in Sweden. The survey was distributed by e-mail and posted on web pages for seven weeks, which included a reminder.</p><p><strong>Results: </strong>Replies were obtained from 88 respondents, and 52 completed surveys remained to be analyzed. All 21 counties in Sweden were represented. The most prevalent answer options were as follows: more productive/increased or decreased cough (73%), increased oxygen saturation (35%), changed secretion sounds (33%), reduced work of breathing (20%), and parental report (16%).</p><p><strong>Conclusions: </strong>The physiotherapists reported to use diverse methods for evaluation of their interventions. However, to a large degree they used subjective measures, which depend on the individual clinician's assessment and interpretation. The evaluation methods vary in psychometric properties and robustness. This study identifies the need for consensus about valid, reliable, and clinically relevant evaluation methods for this patient group.</p>","PeriodicalId":49138,"journal":{"name":"Physical & Occupational Therapy in Pediatrics","volume":" ","pages":"55-67"},"PeriodicalIF":1.5,"publicationDate":"2025-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141917872","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Hessah M Bin Zuair, Joanne M Baird, Angela R Caldwell
{"title":"Parent-Mediated Occupational Therapy Interventions for Children with Developmental Disabilities: A Scoping Review.","authors":"Hessah M Bin Zuair, Joanne M Baird, Angela R Caldwell","doi":"10.1080/01942638.2024.2378063","DOIUrl":"10.1080/01942638.2024.2378063","url":null,"abstract":"<p><strong>Aim: </strong>This scoping review synthesizes literature about occupational therapy parent-mediated interventions (PMIs) that target occupation-based outcomes for children with developmental disabilities (DD).</p><p><strong>Methods: </strong>A search of PubMed, Web of Science, and CINAHL from 2010 through 2023 was performed resulting in 471 publications. Studies were included if they involved PMIs for participants with DD aged 3-12 years and were published in English. Studies were excluded if the outcomes were not occupation-based. A thematic analysis was conducted following an iterative review of charted data.</p><p><strong>Results: </strong>Twelve studies met the inclusion criteria reflecting four themes across occupational therapy PMIs, including variation in terminologies, types of PMIs, key components of PMIs, and the overall impact. While the effects of PMIs are difficult to define due to the variability in the samples, interventions, and outcomes, this review suggests general positive impacts of PMIs.</p><p><strong>Conclusion: </strong>The emerging body of evidence supporting PMIs within the field of occupational therapy suggests they are feasible and have the potential to improve child and parent outcomes when delivered to children with DD. Further research is needed to clarify PMIs' components, unify the identification terminology, and test the efficacy of different types of PMIs for specific populations.</p>","PeriodicalId":49138,"journal":{"name":"Physical & Occupational Therapy in Pediatrics","volume":" ","pages":"5-21"},"PeriodicalIF":1.5,"publicationDate":"2025-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141628143","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"Letter to the Editor.","authors":"Vialu Carlo, Peggy Morris","doi":"10.1080/01942638.2024.2420987","DOIUrl":"10.1080/01942638.2024.2420987","url":null,"abstract":"","PeriodicalId":49138,"journal":{"name":"Physical & Occupational Therapy in Pediatrics","volume":" ","pages":"1-4"},"PeriodicalIF":1.5,"publicationDate":"2025-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142577060","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}