Advances in Neurodevelopmental Disorders最新文献

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A Systematic Review of Vocational Preference Assessment Research by Individuals with Developmental Disabilities 发育障碍人士职业偏好评估研究系统回顾
IF 1.3
Advances in Neurodevelopmental Disorders Pub Date : 2023-08-24 DOI: 10.1007/s41252-023-00354-1
Courtney L. Kane, Ruth M. DeBar, Tina M. Covington, Meghan A. Deshais
{"title":"A Systematic Review of Vocational Preference Assessment Research by Individuals with Developmental Disabilities","authors":"Courtney L. Kane,&nbsp;Ruth M. DeBar,&nbsp;Tina M. Covington,&nbsp;Meghan A. Deshais","doi":"10.1007/s41252-023-00354-1","DOIUrl":"10.1007/s41252-023-00354-1","url":null,"abstract":"<div><h3>Objectives</h3><p>Individuals with developmental disabilities (DD) may have limited vocational preference choice making opportunities. The utility of vocational preference assessments (VPA) is receiving more attention. The purpose of this review was to evaluate VPA research and assess study characteristics, participant characteristics, VPA procedures, validation of VPAs, acquisition of vocational skills, generalization, maintenance, and social validity.</p><h3>Method</h3><p>A systematic review of peer-reviewed vocational preference research using PsycINFO and ERIC databases. Inclusionary criteria required articles to be published in a peer-reviewed journal, in English, have keywords related to <i>vocation</i> and <i>preference</i> within titles, abstracts, or key words, include at least one participant diagnosed with a developmental disability, intellectual disability, or an IQ below 70, and a primary purpose of assessing vocational preference (either direct or indirect measures) and/ or correspondence with preference and vocational performance.</p><h3>Results</h3><p>Thirty articles published between 1978–2023 were reviewed. We found that VPA research included participants with a range of ages and diagnoses. The majority of VPAs have been conducted using a paired-choice format and have included a range of stimulus modalities (e.g., pictures and videos). Limitations include inadequate descriptions of participant repertoires, varied terminology or criteria to identify preferred tasks, and few formal evaluations of skill acquisition.</p><h3>Conclusions</h3><p>This review shows s range of procedures have successfully identified vocational preferences for individuals with DD. Additional research is needed to enhance emerging (e.g., necessity of contingent access) and limited areas (e.g., role of history on preference) within VPA literature.</p></div>","PeriodicalId":36163,"journal":{"name":"Advances in Neurodevelopmental Disorders","volume":null,"pages":null},"PeriodicalIF":1.3,"publicationDate":"2023-08-24","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"76623854","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Using Mindfulness to Improve Quality of Life in Caregivers of Individuals with Intellectual Disabilities and Autism Spectrum Disorder: Agency Outcomes for Caregivers and Clients 使用正念来提高智力残疾和自闭症谱系障碍患者照顾者的生活质量:照顾者和客户的代理结果
Advances in Neurodevelopmental Disorders Pub Date : 2023-08-23 DOI: 10.1007/s41252-023-00353-2
Nirbhay N. Singh, Giulio E. Lancioni, Yoon-Suk Hwang, Rachel E. Myers, Kishani Townshend, Oleg N. Medvedev
{"title":"Using Mindfulness to Improve Quality of Life in Caregivers of Individuals with Intellectual Disabilities and Autism Spectrum Disorder: Agency Outcomes for Caregivers and Clients","authors":"Nirbhay N. Singh,&nbsp;Giulio E. Lancioni,&nbsp;Yoon-Suk Hwang,&nbsp;Rachel E. Myers,&nbsp;Kishani Townshend,&nbsp;Oleg N. Medvedev","doi":"10.1007/s41252-023-00353-2","DOIUrl":"10.1007/s41252-023-00353-2","url":null,"abstract":"<div><h3>Objectives</h3><p>Research suggests that the quality of life of professional caregivers of individuals with intellectual disabilities and autism spectrum disorder can be enhanced through mindfulness-based training. The effects of such training have been evidenced in terms of perceived psychological stress, compassion satisfaction, compassion fatigue (i.e., burnout, secondary traumatic stress), and symptoms of depression. In addition to changes in caregiver personal outcomes, mindfulness-based training may have effects on the quality assurance variables of the agency that employs these caregivers. The aim of the present study was to examine the changes from a systems perspective in terms of quality assurance variables related to caregivers and clients in community-based group homes.</p><h3>Methods</h3><p>Professional caregivers (<i>n</i> = 216) were randomized into three experimental conditions based on the training they received: mindfulness, psychoeducation, or inservice training-as-usual (control). The effects of the training were assessed in terms of quality assurance indices pertaining to caregivers (progressive discipline, call-ins, days absent, medical referrals, hospitalizations, and caregiver turnover) and clients (learning objectives, behavioral episodes, use of physical restraints, emergency medications [stat], medical emergencies, hospitalizations, aggression to staff, aggression to peers, and level of supervision).</p><h3>Results</h3><p>Overall, caregivers in the mindfulness group exhibited significantly fewer progressive discipline and call-ins when compared to the psychoeducation and control groups. Caregivers in both the mindfulness and psychoeducation groups exhibited significantly fewer days of absence from work, medical referrals, and caregiver turnover when compared to the control group. There was no difference across the three groups in terms of hospitalizations. Clients under the care of mindfulness-trained caregivers showed significantly greater improvement in completing learning objectives, fewer behavioral episodes, reduced need for physical restraints and stat medication for behavioral episodes, fewer episodes of aggression to peers, and lower levels of supervision when compared to those in the psychoeducation and control groups. Clients did equally well in terms of medical emergencies, hospitalizations, and aggression to staff in the mindfulness and psychoeducation groups when compared to those in the control group.</p><h3>Conclusions</h3><p>Differential effects of mindfulness training, psychoeducation, and inservice training-as-usual were evident in quality assurance variables related to caregivers and clients. The results suggest that training caregivers in different approaches to self-care may differentially affect not only their clinical status but also at a systems level in terms of quality assurance indices.</p></div>","PeriodicalId":36163,"journal":{"name":"Advances in Neurodevelopmental Disorders","volume":null,"pages":null},"PeriodicalIF":0.0,"publicationDate":"2023-08-23","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://link.springer.com/content/pdf/10.1007/s41252-023-00353-2.pdf","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"78459059","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Identifying and Validating Indices of Happiness and Unhappiness in Autistic Children and Examining Them as Quality of Life Indicators During Presession Pairing 识别和验证自闭症儿童的快乐和不快乐指数,并在会前配对中将其作为生活质量指标进行研究
IF 1.3
Advances in Neurodevelopmental Disorders Pub Date : 2023-08-22 DOI: 10.1007/s41252-023-00352-3
Tuhina Agarwal, Devon Ramey
{"title":"Identifying and Validating Indices of Happiness and Unhappiness in Autistic Children and Examining Them as Quality of Life Indicators During Presession Pairing","authors":"Tuhina Agarwal,&nbsp;Devon Ramey","doi":"10.1007/s41252-023-00352-3","DOIUrl":"10.1007/s41252-023-00352-3","url":null,"abstract":"<div><h3>Objectives</h3><p>Happiness is paramount to an improved quality of life (QoL), but there are barriers to assessing the happiness and overall QoL of autistic children using traditional measures. To address this, Study 1 aimed to identify and validate the idiosyncratic mood indices of three autistic children. In Study 2, these indices were measured as QoL indicators during discrete trial teaching (DTT) sessions that followed presession pairing. Task engagement was recorded as a secondary measure.</p><h3>Methods</h3><p>Three preschool boys on the autism spectrum participated in both studies. Their individualized indices of happiness and unhappiness were first identified and validated using an abbreviated procedure that extended previous research. The effects of presession pairing were then examined using a concurrent multiple baseline design across participants. The idiosyncratic mood indices were measured using 10-s partial interval recording, while task engagement was measured using 15-s whole interval recording.</p><h3>Results</h3><p>Study 1 demonstrated that the abbreviated procedure was efficient for identifying and validating the idiosyncratic mood indices of the participants. Study 2 found that presession pairing improved the mood of all three children during DTT, but there were minimal increases in task engagement. Percentage of nonoverlapping data (PND) scores initially revealed no effects for indices of happiness (<i>M</i> = 43.2%), large effects for indices of unhappiness (<i>M</i> = 76.4%), and no effects for task engagement (<i>M</i> = 37.6%). Contrary to this, omnibus Tau-U scores suggested large effects for indices of happiness (Tau-U = 0.7), very large effects for indices of unhappiness (Tau-U = 0.9), and moderate effects for task engagement (Tau-U = 0.5).</p><h3>Conclusions</h3><p>Individualized indices of happiness and unhappiness can and should be used as QoL indicators during behavioral interventions for autistic children.</p></div>","PeriodicalId":36163,"journal":{"name":"Advances in Neurodevelopmental Disorders","volume":null,"pages":null},"PeriodicalIF":1.3,"publicationDate":"2023-08-22","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://link.springer.com/content/pdf/10.1007/s41252-023-00352-3.pdf","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"90044016","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
A Prospective, Longitudinal Study of Caregiver-Reported Adaptive Skills and Function of Individuals with HNRNPH2-related Neurodevelopmental Disorder 一项关于 HNRNPH2 相关神经发育障碍患者的护理人员报告的适应技能和功能的前瞻性纵向研究。
IF 1.3
Advances in Neurodevelopmental Disorders Pub Date : 2023-08-07 DOI: 10.1007/s41252-023-00346-1
Thomas J. Davis, Rachel Salazar, Sarah Beenders, Amelia Boehme, Nicole M. LaMarca, Jennifer M. Bain
{"title":"A Prospective, Longitudinal Study of Caregiver-Reported Adaptive Skills and Function of Individuals with HNRNPH2-related Neurodevelopmental Disorder","authors":"Thomas J. Davis,&nbsp;Rachel Salazar,&nbsp;Sarah Beenders,&nbsp;Amelia Boehme,&nbsp;Nicole M. LaMarca,&nbsp;Jennifer M. Bain","doi":"10.1007/s41252-023-00346-1","DOIUrl":"10.1007/s41252-023-00346-1","url":null,"abstract":"<div><h3>Objectives</h3><p>This study presents a cohort of individuals in a natural history study with de novo pathogenic missense variants in <i>HNRNPH2</i> causative of <i>HNRNPH2</i>-related neurodevelopmental disorder (NDD) to describe individuals’ adaptive functional abilities.</p><h3>Methods</h3><p>We measured adaptive function using the Pediatric Evaluation of Disability Inventory Computer Adaptive Test (PEDI-CAT) and the Vineland Adaptive Behavior Scale (VABS-III). Results were compared using inferential statistics and regression analysis.</p><h3>Results</h3><p>Sixty-seven individuals carried known pathogenic or likely pathogenic variants in <i>HNRNPH2</i>. Thirty-five participants (2.89–42.04 years, 83% female) and caregivers completed PEDI-CAT assessments with 25 of these participants completing the VABS-III. Sixteen, three and two participants completed a follow-up PEDI-CAT assessment at one, two and three years respectively. Individuals had mean normative scores less than age-matched peers across all domains on both PEDI-CAT and VABS-III measures, with 91% participants &lt; 5<sup>th</sup> percentile on both the PEDI- CAT and VABS-III. Verbal and ambulatory participants had significantly higher PEDI-CAT scores across all domains, using both raw and normative data. There was no significant change in PEDI-CAT scores over 3 years.</p><h3>Conclusions</h3><p>Overall scores, both raw and normative, are low across all individuals with <i>HNRNPH2</i>-related NDD using both the PEDI-CAT and VABS-III. PEDI-CAT normative scores do not likely represent the clinical variability, but raw scores may be able to capture functional variability. In a small sample, longitudinal data from the PEDI-CAT domain scores demonstrate stability in performance at 3 years.</p><p><b>Trial Registration</b>: ClinicalTrials.gov NCT03492060.</p></div>","PeriodicalId":36163,"journal":{"name":"Advances in Neurodevelopmental Disorders","volume":null,"pages":null},"PeriodicalIF":1.3,"publicationDate":"2023-08-07","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11358239/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"87974096","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Rights Are Necessary but Insufficient for the Achievement of the Full Inclusion of People with Intellectual and Developmental Disabilities 权利是必要的,但不足以实现智力和发育障碍者的全面融入
IF 1.3
Advances in Neurodevelopmental Disorders Pub Date : 2023-08-03 DOI: 10.1007/s41252-023-00351-4
Trevor R. Parmenter
{"title":"Rights Are Necessary but Insufficient for the Achievement of the Full Inclusion of People with Intellectual and Developmental Disabilities","authors":"Trevor R. Parmenter","doi":"10.1007/s41252-023-00351-4","DOIUrl":"10.1007/s41252-023-00351-4","url":null,"abstract":"<div><h3>Objectives</h3><p>Two forces which are in juxtaposition have been impacting upon the achievement of full inclusion and emancipation of people with intellectual and related developmental disabilities into society. The first is the history of the United Nations human rights declarations and conventions. While human rights initiatives have supported grassroots movements such as choice, self-determination, and person-centred supports, the second force, neoliberal philosophy, has commandeered these concepts into a culture of managerialism and individualism. Whether rights are necessary but insufficient for the achievement of the full inclusion of people with intellectual and developmental disabilities needed to be addressed.</p><h3>Methods</h3><p>The history of the human rights movement was explored leading up to the United Nations Convention on the Rights of Persons with Disabilities (CRPD). The impact of countervailing forces of neoliberal policies were explored. The ongoing development of models of disability were examined, as were threats to implementation and the realisation of outcomes.</p><h3>Results</h3><p>The impact of neoliberal policies by member nations and the juridical nature of the CRDP were found to be limiting factors for genuine community acceptance and inclusion of people with disabilities, especially those with intellectual disabilities.</p><h3>Conclusions</h3><p>Member nations conforming to human rights imperatives also need to encourage the building an ethical community in which reciprocal relationships are fostered and celebrated. Individualism and the market-based economies have failed to recognise the important role communality has played in the history of the human species.</p></div>","PeriodicalId":36163,"journal":{"name":"Advances in Neurodevelopmental Disorders","volume":null,"pages":null},"PeriodicalIF":1.3,"publicationDate":"2023-08-03","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://link.springer.com/content/pdf/10.1007/s41252-023-00351-4.pdf","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"79150662","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Neurodiversity in Practice: a Conceptual Model of Autistic Strengths and Potential Mechanisms of Change to Support Positive Mental Health and Wellbeing in Autistic Children and Adolescents 实践中的神经多样性:自闭症优势的概念模型以及支持自闭症儿童和青少年积极心理健康和福祉的潜在变革机制
IF 1.3
Advances in Neurodevelopmental Disorders Pub Date : 2023-07-25 DOI: 10.1007/s41252-023-00348-z
Megan Cherewick, Michael Matergia
{"title":"Neurodiversity in Practice: a Conceptual Model of Autistic Strengths and Potential Mechanisms of Change to Support Positive Mental Health and Wellbeing in Autistic Children and Adolescents","authors":"Megan Cherewick,&nbsp;Michael Matergia","doi":"10.1007/s41252-023-00348-z","DOIUrl":"10.1007/s41252-023-00348-z","url":null,"abstract":"<div><h3>Objectives</h3><p>Neurodiversity affirming frameworks are a paradigm shift from a deficit-focused approach to autism to recognizing autism as a heterogeneous constellation of differences in abilities and strengths. This article completed a literature review and data synthesis to (1) identify autistic strengths used in the design of psychosocial interventions, (2) propose mechanisms of change that explain strength-based psychosocial intervention effects on mental health and wellbeing outcomes, and (3) integrate findings in a conceptual model for testing in future research studies.</p><h3>Methods</h3><p>A search for articles was completed in June 2023 and resulted in 24 articles that met the inclusion criteria. The Distillation and Matching Model methods were used to code articles and subsequent conceptual groupings generated categorical domains included in the conceptual model.</p><h3>Results</h3><p>Autistic strengths identified in the design of psychosocial interventions were grouped into four domains: (1) perceptual, (2) reasoning, (3) expertise, and (4) character strengths. Mechanisms of change were grouped into four domains: (1) affective, (2) behavioral, (3) cognitive, and (4) physiological. The resulting conceptual model presents autistic strengths that can be leveraged in psychosocial interventions and potential mechanisms of change that explain intervention effects on mental health and wellbeing.</p><h3>Conclusions</h3><p>Growing focus on the translation of positive psychology has resulted in strength-based psychosocial intervention programs. However, intervention strategies have not leveraged the diverse array of autistic strengths identified by autistic individuals, their families, and their communities. Furthermore, research is needed to determine mechanistic paths by which strength-based interventions achieve positive effects on mental health outcomes in autistic children and adolescents.</p></div>","PeriodicalId":36163,"journal":{"name":"Advances in Neurodevelopmental Disorders","volume":null,"pages":null},"PeriodicalIF":1.3,"publicationDate":"2023-07-25","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://link.springer.com/content/pdf/10.1007/s41252-023-00348-z.pdf","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"83167950","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Advanced Language Models: Potential to Improve Augmentative and Alternative Communication for Individuals with Intellectual and Developmental Disabilities 高级语言模型:改善智力和发育障碍者增强和替代交流的潜力
Advances in Neurodevelopmental Disorders Pub Date : 2023-07-24 DOI: 10.1007/s41252-023-00350-5
Russell Lang, Laurie McLay, Mandy Rispoli
{"title":"Advanced Language Models: Potential to Improve Augmentative and Alternative Communication for Individuals with Intellectual and Developmental Disabilities","authors":"Russell Lang,&nbsp;Laurie McLay,&nbsp;Mandy Rispoli","doi":"10.1007/s41252-023-00350-5","DOIUrl":"10.1007/s41252-023-00350-5","url":null,"abstract":"<div><h3>Objective</h3><p>This paper explores the potential of advanced language models (ALMs) in enhancing augmentative and alternative communication (AAC) options for individuals with intellectual and developmental disabilities (IDDs).</p><h3>Method</h3><p>Possibilities and limitations of utilizing ALMs, such as ChatGPT, to address the communication challenges faced by individuals with IDDs are considered. Potential strategies for leveraging ALM-based technologies in promoting social communication are discussed while emphasizing the need for careful consideration and research.</p><h3>Results</h3><p>The paper presents an overview of the potential capabilities of AAC with integrated ALM for supporting social communication for individuals with IDDs. Directions for future research are identified, including evaluating message authenticity, enhancing customization options, addressing ethical considerations, exploring long-term adaptation and learning, and conducting user-centered design studies.</p><h3>Conclusion</h3><p>The integration of ALMs into AAC holds promise for promoting social communication and empowering individuals with IDDs, but careful consideration and research are necessary to ensure their effectiveness, ethical use, and user satisfaction.</p></div>","PeriodicalId":36163,"journal":{"name":"Advances in Neurodevelopmental Disorders","volume":null,"pages":null},"PeriodicalIF":0.0,"publicationDate":"2023-07-24","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"50510552","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 1
Dennis H. Reid and Mary Rosswurm: Promoting Desired Lifestyles Among Adults with Severe Autism and Intellectual Disabilities: Person-centered Applications of Behavior Analysis. Elsevier, 2023, 322 pp Dennis H.Reid和Mary Rosswurm:在患有严重自闭症和智力残疾的成年人中促进渴望的生活方式:行为分析的以人为本的应用。爱思唯尔,2023232页
Advances in Neurodevelopmental Disorders Pub Date : 2023-07-22 DOI: 10.1007/s41252-023-00347-0
Cooper R. Woodard
{"title":"Dennis H. Reid and Mary Rosswurm: Promoting Desired Lifestyles Among Adults with Severe Autism and Intellectual Disabilities: Person-centered Applications of Behavior Analysis. Elsevier, 2023, 322 pp","authors":"Cooper R. Woodard","doi":"10.1007/s41252-023-00347-0","DOIUrl":"10.1007/s41252-023-00347-0","url":null,"abstract":"","PeriodicalId":36163,"journal":{"name":"Advances in Neurodevelopmental Disorders","volume":null,"pages":null},"PeriodicalIF":0.0,"publicationDate":"2023-07-22","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"50504821","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Technological Innovations in the Education and Treatment of Persons with Intellectual and Developmental Disabilities 智力和发育障碍者教育和治疗方面的技术创新
Advances in Neurodevelopmental Disorders Pub Date : 2023-07-19 DOI: 10.1007/s41252-023-00349-y
Russell Lang, Laurie McLay
{"title":"Technological Innovations in the Education and Treatment of Persons with Intellectual and Developmental Disabilities","authors":"Russell Lang,&nbsp;Laurie McLay","doi":"10.1007/s41252-023-00349-y","DOIUrl":"10.1007/s41252-023-00349-y","url":null,"abstract":"<div><h3>Objectives</h3><p>As technological innovations continue to emerge, the range of potential applications for people with intellectual and developmental disabilities (IDD) is widening. In this article, we introduce a special issue on technological innovations in the education and treatment of persons with IDD.</p><h3>Method</h3><p>For this special issue, we sought empirical studies, literature reviews, and program descriptions that focused on the use of technology (e.g., artificial intelligence, virtual reality, telehealth, portable smart devices, advanced language models) to improve the quality of life of people with IDD.</p><h3>Results</h3><p>Articles accepted for this special issue included (a) intervention studies and systematic reviews focused on applications of technology to improve daily living skills, social interactions, and communication, as well as mobility and occupational skills; (b) program descriptions involving telehealth service delivery to support families and train clinicians; (c) an empirical study utilizing technology to measure biophysical variables (heart rate variability) to inform behavioral assessment; and (d) a commentary on the potential of advanced language models.</p><h3>Conclusion</h3><p>Technological advances continue to inspire research aimed at improving the quality of life of people with IDD.</p></div>","PeriodicalId":36163,"journal":{"name":"Advances in Neurodevelopmental Disorders","volume":null,"pages":null},"PeriodicalIF":0.0,"publicationDate":"2023-07-19","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"50496255","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Remote Intensive Intervention for Young Children on the Autism Spectrum During COVID-19: the Experience of Caregivers and Service Providers COVID-19 期间对自闭症谱系幼儿的远程强化干预:照顾者和服务提供者的经验
IF 1.3
Advances in Neurodevelopmental Disorders Pub Date : 2023-07-13 DOI: 10.1007/s41252-023-00339-0
Hilary Wood de Wilde, Nada Kojovic, Céline Robertson, Catherine Karr, Leyla Akman, Florence Caccia, Astrid Costes, Morgane Etienne, Martina Franchini, Edouard Gentaz, Marie Schaer
{"title":"Remote Intensive Intervention for Young Children on the Autism Spectrum During COVID-19: the Experience of Caregivers and Service Providers","authors":"Hilary Wood de Wilde,&nbsp;Nada Kojovic,&nbsp;Céline Robertson,&nbsp;Catherine Karr,&nbsp;Leyla Akman,&nbsp;Florence Caccia,&nbsp;Astrid Costes,&nbsp;Morgane Etienne,&nbsp;Martina Franchini,&nbsp;Edouard Gentaz,&nbsp;Marie Schaer","doi":"10.1007/s41252-023-00339-0","DOIUrl":"10.1007/s41252-023-00339-0","url":null,"abstract":"<div><h3>Objectives</h3><p>Community-based early autism intervention programs in Geneva, Switzerland, converted their in-person services to a telehealth format during the COVID-19 home confinement period. The current study was aimed at measuring the engagement and satisfaction of service providers and caregivers as they experienced telehealth services for the first time and at monitoring child progress.</p><h3>Methods</h3><p>Forty-five families from diverse backgrounds and their 45 service providers had daily videoconferencing sessions of primarily parent-mediated intervention. Satisfaction questionnaires were completed at three time points over a 2-month period. Session frequency and program participation were recorded. Caregiver and service provider’s answers were compared. Results were also analyzed by family annual income. Child progress was monitored using the Early Start Denver Model Curriculum Checklist.</p><h3>Results</h3><p>Caregivers and service providers maintained high levels of participation and satisfaction throughout the telehealth service period and appreciated how the telehealth format allowed them to meet more frequently. Lower-income families tended to be more unanimously positive about the services when compared with mid- and high-income families. We found significant group differences in service providers’ and caregivers’ perceptions of each other’s comfort level with the remote sessions. Child progress followed a pattern of continued significant improvement across most developmental domains during the telehealth service period.</p><h3>Conclusions</h3><p>These findings underscore the potential of telehealth as a promising and appreciated approach for delivering intensive early autism interventions in community settings. Further research is needed to determine optimal session frequency for remote parent-mediated intervention and to determine ways to make telehealth services more accessible for low-income families.</p></div>","PeriodicalId":36163,"journal":{"name":"Advances in Neurodevelopmental Disorders","volume":null,"pages":null},"PeriodicalIF":1.3,"publicationDate":"2023-07-13","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://link.springer.com/content/pdf/10.1007/s41252-023-00339-0.pdf","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"82258924","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
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