Danbee Kang, Eunjee Kang, Kyeongrok Choi, Sooyeon Kim, Woo Shun Lee, Juhee Cho
{"title":"Development and Validation of Facial Line Distress Scale-Glabellar Lines (FINE-GL).","authors":"Danbee Kang, Eunjee Kang, Kyeongrok Choi, Sooyeon Kim, Woo Shun Lee, Juhee Cho","doi":"10.2147/PPA.S497415","DOIUrl":"10.2147/PPA.S497415","url":null,"abstract":"<p><strong>Purpose: </strong>We developed and validated facial line distress scale-glabellar lines (FINE-GL) to evaluate the severity and psychosocial distress associated with GL.</p><p><strong>Patients and methods: </strong>In Phase I, a preliminary item pool for the FINE-GL was developed through a literature review and expert consultation. This was followed by cognitive interviews to ensure comprehensibility of the items. In Phase II, we conducted a cross-sectional survey at a tertiary hospital and two local clinics in Korea. Exploratory factor analysis (EFA) was conducted to identify the underlying factor structure of the FINE-GL, and internal consistency and test-retest reliability were also examined.</p><p><strong>Results: </strong>We yielded 20 items in four domains. The model fit was good. Coefficient alphas ranged from 0.92 to 0.95 for sub-domains and 0.97 for the total. The FINE-GL was moderately correlated with the appearance appraisal score and body image. In the test-retest, the range of ICC was 0.77-0.90.</p><p><strong>Conclusion: </strong>FINE-GL is a reliable, valid, and comprehensive patient-reported outcome measure for assessing GL severity and distress. This will be helpful to determine a patient's eligibility for inclusion of study and to measure primary or secondary effectiveness endpoints for glabellar line treatment.</p>","PeriodicalId":19972,"journal":{"name":"Patient preference and adherence","volume":"19 ","pages":"419-429"},"PeriodicalIF":2.0,"publicationDate":"2025-02-21","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11853867/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143503316","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Prima Soultoni Akbar, Heni Elmiani Sari, Yeni Tri Utami
{"title":"Enhancing Patient Satisfaction in Primary Health Care Services in Mogadishu, Somalia [Letter].","authors":"Prima Soultoni Akbar, Heni Elmiani Sari, Yeni Tri Utami","doi":"10.2147/PPA.S521760","DOIUrl":"10.2147/PPA.S521760","url":null,"abstract":"","PeriodicalId":19972,"journal":{"name":"Patient preference and adherence","volume":"19 ","pages":"393-394"},"PeriodicalIF":2.0,"publicationDate":"2025-02-19","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11847441/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143483823","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Yu-Quan Tian, Xiu-Fang Lv, Min Zhang, Meng Gao, Lei Zhao
{"title":"Implementation of Pathway-Based Care for Patients Undergoing Daytime Cholecystectomy.","authors":"Yu-Quan Tian, Xiu-Fang Lv, Min Zhang, Meng Gao, Lei Zhao","doi":"10.2147/PPA.S492763","DOIUrl":"10.2147/PPA.S492763","url":null,"abstract":"<p><strong>Objective: </strong>To investigate the impact of pathway-based care on patients with cholelithiasis undergoing daytime cholecystectomy.</p><p><strong>Methods: </strong>Two hundred fifty-eight patients scheduled for daytime cholecystectomy were randomly assigned to a pathway care group and a control group (129 each). The control group received standard care, while the pathway care group received additional pathway-based care to assess its effectiveness.</p><p><strong>Results: </strong>Before surgery (T<sub>0</sub>), there were no significant differences between the groups in stress response indicators, including body temperature (T), heart rate (HR), blood oxygen saturation (SpO<sub>2</sub>), and blood glucose levels (<i>P</i> > 0.05). Ten minutes after the onset of intraoperative pneumoperitoneum (T<sub>1</sub>), the pathway care group did not exhibit significant changes in T, HR, or blood glucose levels compared to pre-surgery values (<i>P</i> > 0.05), but SpO<sub>2</sub> significantly improved (<i>P</i> < 0.05). In contrast, all stress response indicators in the control group worsened at T<sub>1</sub> compared to baseline (<i>P</i> < 0.05). At the end of surgery (T<sub>2</sub>), the pathway care group maintained stable stress response indicators relative to baseline (<i>P</i> > 0.05), while the control group showed significant increases (<i>P</i> < 0.05). Additionally, hospitalization time in the pathway care group was significantly lower compared to the control group (<i>P</i> < 0.05). Comparisons of postoperative complication rates in the pathway care group revealed that the pathway care group had significantly lower incidences of abdominal pain, incisional infection, and venous thrombosis compared to the control group (<i>P</i> < 0.05). When comparing the postoperative quality of life (SF-36) scores, the pathway care group had higher quality of life scores than the control group (<i>P</i> < 0.05), as well as in scores across all dimensions (<i>P</i> < 0.05).</p><p><strong>Conclusion: </strong>Pathway-based care for cholecystectomy patients enhances operating room nursing quality and efficiency. It minimizes intraoperative stress response, reduces complications, and improves patient quality of life.</p>","PeriodicalId":19972,"journal":{"name":"Patient preference and adherence","volume":"19 ","pages":"383-392"},"PeriodicalIF":2.0,"publicationDate":"2025-02-18","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11846526/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143483830","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"Knowledge, Attitudes, and Practices of Patients from the Anesthesia Clinic in Jinshan District, Shanghai, Regarding Visiting the Anesthesia Clinic.","authors":"Guang Min Yin, Jia Hui Chen, Wei Xu","doi":"10.2147/PPA.S496835","DOIUrl":"10.2147/PPA.S496835","url":null,"abstract":"<p><strong>Background: </strong>Anesthesia assessment outpatient clinics (AAOCs) can help personalize the anesthesia experience, alleviate anesthesia-related anxiety, and offer health management advice. This study investigated the knowledge, attitude, and practice (KAP) of patients from the anesthesia clinic in Jinshan District, Shanghai, China, regarding AAOCs.</p><p><strong>Methods: </strong>This cross-sectional study was conducted from July 10, 2023, to October 15, 2023, at Jinshan Hospital affiliated to Fudan University. The final version of the questionnaire included four dimensions: demographic information, knowledge dimension (seven items, scores 0-7), attitude dimension (six items, scores 6-30), and practice dimension (six items, scores 6-30). The Cronbach's α was 0.935. The risk factors for the practice dimension were examined through univariable and multivariable logistic regression. The relationships among the KAP dimensions were explored using a structural equation model (SEM).</p><p><strong>Results: </strong>A total of 531 questionnaires were included for analysis. The mean knowledge score was 5.5±1.9 (/7 points, 79.0%). The mean attitude score was 26.3±3.7 (/30, 87.8%). The mean practice score was 25.5±3.4 (/30, 85.0%). However, still over 10% of participants did not recognize AAOCs' ability to alleviate anesthesia-related fears and did not believe AAOCs affect future health management. The knowledge scores correlated to the attitude (r=0.401, P<0.001) and practice (r=0.379, P<0.001) scores, while the attitude scores correlated to the practice scores (r=0.742, P<0.001). The SEM showed that knowledge influenced attitude (β=2.409, P<0.001), while attitude influenced practice (β=0.721, P<0.001). The attitude scores (OR=2.055, 95% CI: 1.756-2.404, P<0.001) and personal/relative/friend experience with AAOCs (OR=2.771, 95% CI: 1.002-7.664, P=0.050) were independently associated with the practice scores.</p><p><strong>Conclusion: </strong>Patients in Jinshan District had a good KAP toward AAOCs. Improving knowledge of AAOCs should improve attitudes and the use of AAOCs to improve the patient experience and outcomes of anesthesia.</p>","PeriodicalId":19972,"journal":{"name":"Patient preference and adherence","volume":"19 ","pages":"363-372"},"PeriodicalIF":2.0,"publicationDate":"2025-02-18","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11846519/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143483878","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"Association of the Driving Distance, Driving Time, and Public Transit Time to the Hospital with the Persistence of Tumor Necrosis Factor Inhibitors in Patients With Ankylosing Spondylitis: A Retrospective Cohort Study.","authors":"Aran Kim, Min Wook So, Seung-Geun Lee","doi":"10.2147/PPA.S504479","DOIUrl":"10.2147/PPA.S504479","url":null,"abstract":"<p><strong>Purpose: </strong>Research on the impact of geographical distance from or travel time to healthcare facilities on treatment adherence among patients with rheumatic diseases is lacking. Therefore, we investigated the association of the driving distance, driving time, and public transit time to the hospital with the persistence of tumor necrosis factor-alpha (TNF-α) inhibitors in patients with ankylosing spondylitis (AS).</p><p><strong>Patients and methods: </strong>This 19-year retrospective cohort study was performed in the rheumatology department of a tertiary hospital in Korea and analyzed 313 adult patients with AS who were newly initiated on TNF-α inhibitors. The driving distance, driving time, and public transit time to the hospital were calculated using the Naver Map application. Drug persistence of TNF-α inhibitors was defined as the time duration between the index date and the date of discontinuation without exceeding a treatment gap of 90 days.</p><p><strong>Results: </strong>The most commonly prescribed TNF-α inhibitor in patients with AS was adalimumab (69.3%), followed by etanercept (21.4%) and infliximab (9.3%). The median driving distance, driving time, and public transit time to the hospital were 16 kilometers (km), 0.6 hours, and 0.8 hours, respectively. In total, 120 (38.3%) patients with AS stopped TNF-α inhibitors over a median follow-up period of 67.1 months. After adjusting confounding factors, the driving distance to the hospital per 10-km increase (hazard ratio [HR]=1.09, p=0.017) and the driving distance to hospital ≧16 km (HR=1.9, p=0.001) were significantly associated with a higher risk of TNF-α inhibitor discontinuation. Neither the driving time nor the public transit time to the hospital was significantly associated with TNF-α inhibitor persistence.</p><p><strong>Conclusion: </strong>Longer driving distances significantly increased the risk of treatment discontinuation, highlighting the need for healthcare systems to address these barriers.</p>","PeriodicalId":19972,"journal":{"name":"Patient preference and adherence","volume":"19 ","pages":"373-382"},"PeriodicalIF":2.0,"publicationDate":"2025-02-18","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11846483/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143483818","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Sari Luthfiyah, Triwiyanto Triwiyanto, Mohammed Ismath
{"title":"Preferences and Attitudes Towards Digital Communication and Symptom Reporting Methods in Clinical Trials [Letter].","authors":"Sari Luthfiyah, Triwiyanto Triwiyanto, Mohammed Ismath","doi":"10.2147/PPA.S520244","DOIUrl":"10.2147/PPA.S520244","url":null,"abstract":"","PeriodicalId":19972,"journal":{"name":"Patient preference and adherence","volume":"19 ","pages":"361-362"},"PeriodicalIF":2.0,"publicationDate":"2025-02-17","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11844262/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143483879","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"Overcoming Barriers for Breast Cancer Detection in Women with High Breast Density [Letter].","authors":"Xiaopeng Wu, Yanping Miao","doi":"10.2147/PPA.S518898","DOIUrl":"10.2147/PPA.S518898","url":null,"abstract":"","PeriodicalId":19972,"journal":{"name":"Patient preference and adherence","volume":"19 ","pages":"359-360"},"PeriodicalIF":2.0,"publicationDate":"2025-02-15","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11837740/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143458950","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"Adherence Definitions, Measurement Modalities, and Psychometric Properties in HIV, Diabetes, and Nutritional Supplementation Studies: A Scoping Review.","authors":"Julia Burleson, Daryl E Stephens, Rajiv N Rimal","doi":"10.2147/PPA.S498537","DOIUrl":"10.2147/PPA.S498537","url":null,"abstract":"<p><p>Measuring adherence has been a priority for researchers to help inform effective care for patients regularly consuming medications for chronic conditions. As a widely accepted \"gold standard\" adherence measure or operational definition does not exist, studies measure adherence using different modalities, which may lead to different conclusions about adherence patterns. The purpose of the scoping review was to identify modalities used to measure adherence to HIV medication, diabetes medication, and nutritional supplementation and explore the variation in adherence definitions, measurement modalities, and psychometric properties being reported across studies. Comprehensive searches were performed in PubMed, Scopus, and PsycINFO from January 2012 to January 2022. We included studies reporting psychometric properties of adherence/compliance to HIV medication, diabetes medication, or nutritional supplements. In total, we included 88 studies in the review. The 8-item Morisky Medication Adherence Scale (MMAS-8) was the most frequently used self-reported measure. We found almost no relationship between country income level and triangulation levels. The operational definition of adherence fell into four categories: numerical, dichotomous, ranked ordinal, and undefined. The amount of variation in an adherence definition category within a modality depended on whether the measures within the modality could be assessed numerically and whether widely accepted cutoffs existed for the measure. Across studies, 46 (52%) reported both validity and reliability, 28 (31%) reported validity only, and 14 (16%) reported reliability only. Fourteen types of validity and six types of reliability were identified across the studies. Measuring adherence accurately and reliably continues to be a challenge for research in HIV, diabetes, and nutritional supplementations. When reporting adherence measurements, we suggest including adherence results from multiple measures and modalities, presenting adherence results numerically, and reporting multiple types of validity and reliability.</p>","PeriodicalId":19972,"journal":{"name":"Patient preference and adherence","volume":"19 ","pages":"319-344"},"PeriodicalIF":2.0,"publicationDate":"2025-02-11","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11829600/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143433621","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"Implementing a Care Model for Bedridden Stroke Survivors: A Qualitative Study in Northeastern Thailand.","authors":"Ladawan Panpanit, Darunee Jongudomkarn, Aurawan Doungmungkorn, Kwansuda Boontoch, Somsakhool Neelasmith, Monrudee Manorat, Thirakorn Maneerat","doi":"10.2147/PPA.S494046","DOIUrl":"10.2147/PPA.S494046","url":null,"abstract":"<p><strong>Background: </strong>Stroke remains a significant global health concern, including in Thailand, with high mortality rates. Despite investments in stroke prevention, inadequate support exists for severely disabled stroke survivors (SSs) and their caregivers, particularly in enhancing their quality of life.</p><p><strong>Purpose: </strong>This research aimed to explore the experiences of SSs receiving home care, develop and implement a care model to enhance community volunteer caregivers' (CVCGs) capabilities, and evaluate the outcomes of this model for bedridden stroke survivors in Northeastern Thailand.</p><p><strong>Methods: </strong>A research and development study was conducted in low-income, semi-urban communities in Northeastern Thailand, comprising three phases: 1) situation analysis, 2) development of a community care model, and 3) implementation and evaluation. Forty participants were purposively selected, including SSs, family caregivers (FCGs), CVCGs, and relevant community leaders (RCLs). Data collection involved focus group discussions, in-depth interviews, and participant observations, with content analysis used for data interpretation.</p><p><strong>Results: </strong>Key themes emerged: SSs experienced \"Feeling Isolation & Powerlessness\" and \"Hopelessness & Being Burden to Family\", FCGs expressed \"Sorrow & Gratitude\", and CVCGs identified \"Inadequate Capacity & Need for Training\". These findings underscored the lack of sufficient support for all groups. The study proposed the KKU Bedridden Care Model, derived from the KKU Family Health Nursing Model, to strengthen families' and communities' caregiving capacities. After five months, the themes \"Heartwarming\" (SSs, FCGs) and \"Being Proud of Capability\" (CVCGs) highlighted improved outcomes.</p><p><strong>Conclusion: </strong>The KKU Bedridden Care Model shows promise for long-term care in resource-limited settings. Its adoption by local administrative organizations could provide ongoing support, offering a scalable solution for improving the care of bedridden individuals both in Thailand and globally.</p>","PeriodicalId":19972,"journal":{"name":"Patient preference and adherence","volume":"19 ","pages":"345-358"},"PeriodicalIF":2.0,"publicationDate":"2025-02-11","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11829710/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143433622","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Ahmed Al Musawi, Malin Axelsson, Tommy Eriksson, Margareta Rämgård
{"title":"Experiences and Perspectives of Medication Information and Use Among Arabic-Speaking Migrant Women in Sweden: A Multistage Focus Group Study.","authors":"Ahmed Al Musawi, Malin Axelsson, Tommy Eriksson, Margareta Rämgård","doi":"10.2147/PPA.S498953","DOIUrl":"10.2147/PPA.S498953","url":null,"abstract":"<p><strong>Purpose: </strong>Medication non-adherence is a global public health issue influenced by various factors, including the quality and comprehensiveness of medication information provided to patients. Migrants, particularly women, face unique healthcare and societal challenges in their new home countries. This study aims to explore Arabic-speaking migrant women's experiences and perspectives on medication information and use.</p><p><strong>Methods: </strong>This study was part of the Equal Health program, a health promotion initiative established in socially vulnerable areas to address health inequities. Arabic-speaking women aged 40-80 years with chronic illnesses participated in multistage focus group sessions exploring their experiences with medication information from healthcare, medication use, and perspectives on necessary improvements in medication information at hospital discharge. The sessions were conducted in Arabic, audio-recorded, transcribed verbatim, and translated into Swedish for analysis. Data were analyzed using Braun and Clark's six-phase reflexive thematic analysis.</p><p><strong>Results: </strong>Four multistage focus group sessions with 15 participants were conducted. The analysis generated three themes: <i>receiving or not receiving professional medication information, medication adherence patterns</i>, and <i>needs and suggestions for improved medication information-a call for action</i>. Participants reported inadequate medication information from physicians, particularly at the time of discharge from the hospital, and described instances of intentional and unintentional non-adherence. Suggestions for improvement included providing written medication information at discharge in their native language, using interpreters, and including a current medication list detailing overall medication information and potential drug interactions.</p><p><strong>Conclusion: </strong>This study highlights inadequate medication information provision to Arabic-speaking migrant women, which may impact medication use and pose patient safety risks. Although the adherence patterns of the study subjects resembled those of the general population, unique barriers require additional healthcare support. This study can inform healthcare practices and establish a foundation for further research on medication information and use in this group, including comparisons with native-born individuals.</p>","PeriodicalId":19972,"journal":{"name":"Patient preference and adherence","volume":"19 ","pages":"305-318"},"PeriodicalIF":2.0,"publicationDate":"2025-02-08","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11818829/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143410008","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}