Journal of Intellectual Disability Research最新文献

{"title":"Prevalence of Mental Disorders in Parents With Intellectual Disabilities: A Systematic Review","authors":"Sonya Rudra,&nbsp;Louise Marston,&nbsp;Angela Hassiotis,&nbsp;Giovanni Boido,&nbsp;Mary Baginsky,&nbsp;Claire A. Wilson","doi":"10.1111/jir.70167","DOIUrl":"10.1111/jir.70167","url":null,"abstract":"<div>\u0000 \u0000 \u0000 <section>\u0000 \u0000 <h3> Background</h3>\u0000 \u0000 <p>Research indicates that an increasing number of adults with intellectual disabilities (IDs) are becoming parents. Parents with ID face multiple challenges that increase their mental health risks. In order to ensure better detection and tailored care for parents with ID, this systematic review aimed to summarise the prevalence of mental disorders in parents with ID during pregnancy, postpartum and parenthood.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Methods</h3>\u0000 \u0000 <p>Studies included individuals with clinically diagnosed ID who had experienced pregnancy or parenthood and reported prevalence figures of mental disorders. Searches of MEDLINE, APA PsycINFO, EMBASE and grey literature were conducted from inception to July 2025. Risk of bias was assessed using the Mixed Methods Appraisal Tool.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Results</h3>\u0000 \u0000 <p>The review identified 10 studies involving 42 207 individuals aged 18–58 years. Across the studies, the prevalence of mental disorders specifically during pregnancy was not reported; two studies screened women within 12 months postpartum; the remaining studies included parents of children aged 0–21 years. The results indicate an overall prevalence of 45% for any mental disorder in parents with ID. Studies using screening tools reported prevalence rates of up to 63% for depression, 30% for anxiety and 17% for psychosis. One large cohort study assessing mental health over the perinatal period reported increased odds of all mental disorders in mothers with ID. Due to the heterogeneity of methodologies used across studies data was not pooled.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Conclusion</h3>\u0000 \u0000 <p>This review indicates a high prevalence of mental disorders in parents with ID. The findings highlight the need for tailored screening and support for parents with ID. However, literature is limited and more research is required.</p>\u0000 </section>\u0000 </div>","PeriodicalId":16163,"journal":{"name":"Journal of Intellectual Disability Research","volume":"70 11","pages":"1133-1150"},"PeriodicalIF":2.4,"publicationDate":"2026-10-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://onlinelibrary.wiley.com/doi/epdf/10.1111/jir.70167","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"148840356","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"When Words Isolate: Associations Between Verbal Violence and Loneliness Among People With Intellectual Disabilities.","authors":"N Karni-Vizer, E Brusilovskiy, M S Salzer","doi":"10.1111/jir.70185","DOIUrl":"https://doi.org/10.1111/jir.70185","url":null,"abstract":"<p><strong>Objectives: </strong>To investigate the association between experiencing and perpetrating verbal violence and loneliness among people with intellectual disabilities.</p><p><strong>Method: </strong>One hundred and nine individuals with an intellectual disability who reported on their exposure to and perpetration of various types of verbal violence and experience of loneliness.</p><p><strong>Results: </strong>Approximately half of the participants experienced at least one type of verbal violence 'a lot' or 'all of the time' in the past month. Those who frequently experienced humiliation, being yelled at, being insulted and being laughed at reported greater loneliness than those who did not. Twenty-five participants reported that they perpetrated at least one type of verbal violence frequently over the past month and reported more loneliness than those who did not.</p><p><strong>Conclusions: </strong>The study findings highlight an association between frequently experiencing and perpetrating verbal violence and loneliness. It underscores the importance of early identification, increased awareness and the development of interventions aimed at reducing the occurrence of verbal violence and mitigating its potential adverse effects.</p>","PeriodicalId":16163,"journal":{"name":"Journal of Intellectual Disability Research","volume":" ","pages":""},"PeriodicalIF":2.4,"publicationDate":"2026-10-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"149110837","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Behaviours That Challenge in Special Schools: Heterogeneity of Profiles Among Students With Intellectual and Developmental Disabilities and Implications for Educational Support","authors":"Zakaria Mestari,&nbsp;Severine Pradel,&nbsp;Aline Veyre,&nbsp;Rachel Sermier Dessemontet","doi":"10.1111/jir.70155","DOIUrl":"10.1111/jir.70155","url":null,"abstract":"<div>\u0000 \u0000 \u0000 <section>\u0000 \u0000 <h3> Background</h3>\u0000 \u0000 <p>This study aimed to examine the types and frequency of challenging behaviours (CB) among students with intellectual and developmental disabilities in special education schools and identify profiles among them.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Methods</h3>\u0000 \u0000 <p>Data were collected from 239 special school staff members, who reported information on 635 students via an online survey. A multilevel latent class analysis was used to identify subgroups of students based on the type and frequency of CB while controlling for respondent nesting.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Results</h3>\u0000 \u0000 <p>According to respondents, among students in their classrooms (<i>M</i> = 6.02, SD = 2.54) about half displayed persistent CB (<i>M</i> = 2.88, SD = 2.08). Oppositional and socially inappropriate behaviours were the most frequently reported, displayed by over 90% of students with CB and occurring daily. Group 1 (<i>n</i> = 169, <i>M</i> = 11.00 years) exhibited the most severe and frequent CB across nearly all categories, mainly physical and verbal aggression and destructive behaviours. Group 2 (<i>n</i> = 200, <i>M</i> = 9.90 years) showed high levels of physical aggression, self-injurious and destructive behaviours, but very low levels of verbal aggression. Group 3 (<i>n</i> = 131, <i>M</i> = 12.17 years) was characterised by overall low levels of CB, with some verbal aggression. Finally, Group 4 (<i>n</i> = 135, <i>M</i> = 10.86 years) showed elevated rates of destructive behaviours, a moderate prevalence of physical aggression and self-injurious behaviours, in addition to the lowest rate of socially inappropriate behaviours.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Conclusions</h3>\u0000 \u0000 <p>These profiles highlight the heterogeneity of CB presentations among students in specialised educational settings and underscore the need for tailored educational and behavioural support and intervention.</p>\u0000 </section>\u0000 </div>","PeriodicalId":16163,"journal":{"name":"Journal of Intellectual Disability Research","volume":"70 11","pages":"1203-1214"},"PeriodicalIF":2.4,"publicationDate":"2026-10-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://onlinelibrary.wiley.com/doi/epdf/10.1111/jir.70155","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"148663981","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Psychosocial Well-Being and Caregiving Challenges Among Parents of Children With 1p36 Deletion Syndrome","authors":"Motoko Watanabe,&nbsp;Chieko Kibe,&nbsp;Masumi Sugawara,&nbsp;Toshiyuki Yamamoto,&nbsp;Hidehiko Miyake","doi":"10.1111/jir.70147","DOIUrl":"10.1111/jir.70147","url":null,"abstract":"<div>\u0000 \u0000 \u0000 <section>\u0000 \u0000 <h3> Background</h3>\u0000 \u0000 <p>The 1p36 deletion syndrome is a subtelomeric deletion syndrome characterized by developmental delay, epilepsy, and distinctive facial features. The diagnostic rate has improved with advances in genetic testing, including chromosomal microarray analysis. However, little is known about the psychosocial impact of a child's diagnosis on parents. This study aimed to explore the psychosocial experiences related to parenting among parents of children with 1p36 deletion syndrome.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Methods</h3>\u0000 \u0000 <p>The questionnaire survey was conducted among parents of children with 1p36 deletion syndrome, through the Japanese family association related to the syndrome. The questionnaire included items on the characteristics of parents and their children, information sources for 1p36 deletion syndrome, and complications and issues related to this syndrome. Parental mental health was assessed using measures of psychological distress and subjective well-being, with affiliate stigma examined as a key factor associated with mental health outcomes, along with other psychological variables including parental strain and self-esteem.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Results</h3>\u0000 \u0000 <p>Thirty-nine parents (mean age: 43.1 years) responded to the questionnaire. The mean age of the child at diagnosis was 1.9 years. Most parents obtained information from the internet, and information from medical and genetic specialists was limited. Parental challenges in medical and welfare aspects were diverse and varied by the child's developmental stage. Exploratory path analysis suggested that the association between affiliate stigma and mental health may be mediated by parental strain and self-esteem. Furthermore, affiliate stigma was significantly higher in parents of children with 1p36 deletion syndrome than in those with Down syndrome.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Conclusions</h3>\u0000 \u0000 <p>Parents of children with 1p36 deletion syndrome experience limited access to information from medical and genetic specialists, diverse medical and welfare challenges across developmental stages, and potentially high levels of affiliate stigma. These findings suggest the need for psychosocial support that considers the potential impact of affiliate stigma and is tailored to the evolving challenges experienced across the child's developmental stages.</p>\u0000 </section>\u0000 </div>","PeriodicalId":16163,"journal":{"name":"Journal of Intellectual Disability Research","volume":"70 11","pages":"1151-1159"},"PeriodicalIF":2.4,"publicationDate":"2026-10-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"148471203","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Tablet Assessment of Cognition in Down Syndrome: Comparison of Researcher and Caregiver Administration","authors":"Emily K. Schworer,&nbsp;Emily K. Hoffman,&nbsp;Anna J. Esbensen","doi":"10.1111/jir.70160","DOIUrl":"10.1111/jir.70160","url":null,"abstract":"<div>\u0000 \u0000 \u0000 <section>\u0000 \u0000 <h3> Background</h3>\u0000 \u0000 <p>Identifying flexible and rigorous methods to administer assessments in Down syndrome research is critical for limiting participation burden. Tablet assessments have the potential to be presented remotely, but consistency between researcher and caregiver administrations is unknown.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Method</h3>\u0000 \u0000 <p>Participants were 24 children with Down syndrome aged 10–17 years and their caregivers. Children completed two sessions: one administered by their caregiver and one administered by research staff. Tablet measures were selected from the NIH Toolbox and the Cambridge Neuropsychological Test Automated Battery (CANTAB).</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Results</h3>\u0000 \u0000 <p>There were no significant differences between child performance on researcher-administered compared to caregiver-administered NIH Toolbox Flanker, CANTAB RTI and CANTAB PAL measures. Floor effects impacted additional measures with high agreement (NIH Toolbox Pattern Comparison).</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Conclusions</h3>\u0000 \u0000 <p>Task completion did not differ across administrators, demonstrating evidence for parents' ability to facilitate assessments. Inconsistent agreement statistics warrant future work in larger samples and additional understanding of child tablet assessment performance.</p>\u0000 </section>\u0000 </div>","PeriodicalId":16163,"journal":{"name":"Journal of Intellectual Disability Research","volume":"70 11","pages":"1240-1245"},"PeriodicalIF":2.4,"publicationDate":"2026-10-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://onlinelibrary.wiley.com/doi/epdf/10.1111/jir.70160","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"148760135","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Testing the Reliability of the Short Physical Performance Battery in Institutionalized Individuals With Intellectual and Developmental Disabilities.","authors":"Filipa Lopes, Filipe Rodrigues, Susana Diz, Diogo Monteiro, Nuno Amaro, Rui Matos, Raúl Antunes, Miguel Jacinto","doi":"10.1111/jir.70188","DOIUrl":"https://doi.org/10.1111/jir.70188","url":null,"abstract":"<p><strong>Background: </strong>This study aimed to evaluate the reliability of the Short Physical Performance Battery (SPPB) in institutionalized adults with intellectual and developmental disabilities.</p><p><strong>Methods: </strong>The final sample consisted of 32 individuals with intellectual and developmental disabilities (15 men and 17 women), with a mean age of 35.31 ± 15.93 years and all participants were institutionalized.</p><p><strong>Results: </strong>The total SPPB score exhibited excellent internal consistency (α = 0.929) and excellent test-retest reliability (ICC = 0.931; p ≤ 0.001), indicating a high degree of measurement stability for the composite score.</p><p><strong>Conclusions: </strong>It is concluded that the SPPB may be a reliable tool for assessing physical function in institutionalized individuals with intellectual and developmental disabilities, although specific adaptations may be necessary to maximize its reliability. However, results should be interpreted as preliminary considering the relatively small and heterogeneous sample.</p>","PeriodicalId":16163,"journal":{"name":"Journal of Intellectual Disability Research","volume":" ","pages":""},"PeriodicalIF":2.4,"publicationDate":"2026-10-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"149110853","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"The Gap Between Humanistic Ideals and Everyday Direct Support for Adults With Intellectual Disabilities: Reflections of Young Volunteers in Residential ID Services","authors":"Ran Neuman","doi":"10.1111/jir.70161","DOIUrl":"10.1111/jir.70161","url":null,"abstract":"<div>\u0000 \u0000 \u0000 <section>\u0000 \u0000 <h3> Background</h3>\u0000 \u0000 <p>Humanistic and rights-based approaches emphasize dignity, autonomy, self-determination and meaningful participation in community life for adults with intellectual disabilities (ID). Yet, in many ID services, everyday support is often shaped by risk-averse routines, safeguarding responsibilities and normalization-oriented expectations, creating tensions between declared commitments and daily practice.</p>\u0000 \u0000 <p>This study focuses on a year-long residential volunteer programme in which Generation Z young adults live and volunteer alongside adults with ID in a residential community. Their close involvement in everyday life, combined with their absence of formal professional responsibilities, offers a unique vantage point for re-examining how autonomy, protection and expectations of progress are negotiated in everyday support.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Method</h3>\u0000 \u0000 <p>Using a qualitative design, the study drew on focus-group data collected over 6 months with 12 young volunteers aged 18–19 in a year-long residential programme within a professionally guided residential ID service. The discussions explored volunteers' reflections on everyday support relationships, autonomy, protection, social inclusion and the meanings they attributed to volunteering. Data were transcribed verbatim and analysed manually using reflexive thematic analysis.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Results</h3>\u0000 \u0000 <p>The findings are organized according to the study's three research questions. Volunteers perceived the goals of support as extending beyond functional independence towards authentic dialogue, supported challenge and a more flexible understanding of progress. They also described volunteering as a developmental encounter that reshaped their self-perceptions through vulnerability, responsibility and relational acceptance. Finally, they viewed social change as dependent on everyday exposure to people with ID, through which their presence becomes familiar, ordinary and less stigmatized.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Conclusions</h3>\u0000 \u0000 <p>Volunteers' reflections offer a distinctive lens for examining how humanistic commitments are translated into everyday residential support. Their accounts illuminate the relational and ethical tensions involved in balancing autonomy, protection, normalization and expectations of independence. The findings suggest the value of strengthening reflective practice in ID services and of re-examining how ‘progress’ is defined in everyday support, beyond functional goals and standardized expectations.</p>\u0000 </section>\u0000 </div>","PeriodicalId":16163,"journal":{"name":"Journal of Intellectual Disability Research","volume":"70 11","pages":"1229-1239"},"PeriodicalIF":2.4,"publicationDate":"2026-10-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"148706802","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Prompted Voiding Utilising Toilet Alarms and Individual Toileting Plans for Adults With an Intellectual Disability And Incontinence","authors":"Janet Finlayson,&nbsp;Nick Gore,&nbsp;Dawn A. Skelton","doi":"10.1111/jir.70149","DOIUrl":"10.1111/jir.70149","url":null,"abstract":"<div>\u0000 \u0000 \u0000 <section>\u0000 \u0000 <h3> Background</h3>\u0000 \u0000 <p>Urinary incontinence is common amongst adults with an intellectual disability, yet there is a paucity of interventions to promote continence in this population. The aim was to test the feasibility of a toileting intervention with adults with an intellectual disability.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Method</h3>\u0000 \u0000 <p>We conducted a feasibility study. Seventeen adults with an intellectual disability and incontinence participated in a 12-week prompted voiding toileting support programme, which utilised wrist-worn toilet alarms and individual plans to prompt regular toilet visits for voiding.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Results</h3>\u0000 \u0000 <p>Thirteen (77%) followed their toileting plan over the 12-week period with support, and 15 (88%) intended to continue with their plan beyond the study period.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Conclusion</h3>\u0000 \u0000 <p>Prompted toilet visits, which incorporate individual toileting plans and meaningful personal goals-setting, were found to be a feasible toileting intervention for the majority in the sample.</p>\u0000 </section>\u0000 </div>","PeriodicalId":16163,"journal":{"name":"Journal of Intellectual Disability Research","volume":"70 11","pages":"1179-1191"},"PeriodicalIF":2.4,"publicationDate":"2026-10-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://onlinelibrary.wiley.com/doi/epdf/10.1111/jir.70149","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"148620397","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Reduced Psychiatric Hospitalizations and Treatment Goal Attainment: Results From the Dual Diagnosis Treatment Team.","authors":"Duncan J Mayer, Kathryn Gallagher, Anthony Destefano, Kimberly Shaffer, Frank Koerber","doi":"10.1111/jir.70186","DOIUrl":"https://doi.org/10.1111/jir.70186","url":null,"abstract":"<p><strong>Background: </strong>Mental health conditions are prevalent among those with intellectual disabilities, and their co-occurrence can increase healthcare use and spending, including psychiatric hospitalizations, while reducing quality of life and compromising community placement. This paper presents results from the Dual Diagnosis Treatment Team (DDTT), a multidisciplinary treatment programme for individuals with intellectual and/or developmental disabilities with a co-occurring mental health diagnosis. DDTT is designed to reduce hospitalizations by connecting clients with services and allowing participants to maintain community placement.</p><p><strong>Method: </strong>After describing the programme, the study considers changes in 12-month hospitalization rates and treatment goal attainment with the programme's administrative data from Pennsylvania using hierarchical Poisson and Bernoulli observational models, respectively.</p><p><strong>Results: </strong>The results show programme admission predicts a decrease in 12-month hospitalization rates of nearly 40% (IRR = 0.62, p < 0.001) following programme admission, with predicted decreases for those with psychotic disorders approaching 60% (IRR = 0.63, p < 0.05). Nearly 70% of clients attained treatment goals, and the model results suggest treatment goal attainment is most likely among older individuals and those with mild, moderate and unspecified intellectual disability.</p><p><strong>Conclusion: </strong>Admission to DDTT predicts reduced psychiatric hospitalizations with larger reductions predicted for vulnerable subpopulations; the results for treatment goal attainment show that the majority of programme participants are stabilized in the community. Further research is required to decompose variation due to programme components and understand temporal patterns in hospitalization.</p>","PeriodicalId":16163,"journal":{"name":"Journal of Intellectual Disability Research","volume":" ","pages":""},"PeriodicalIF":2.4,"publicationDate":"2026-09-29","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"149080951","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Participation in Organised and Non-Organised Physical Activity Among Autistic Adolescents and Young Adults With Co-Occurring Intellectual Disability.","authors":"Rachel A Kennedy, Katrina Alford, Nora Shields","doi":"10.1111/jir.70177","DOIUrl":"https://doi.org/10.1111/jir.70177","url":null,"abstract":"<p><strong>Background: </strong>Few studies have explored participation in organised and non-organised physical activities among Autistic adolescents and young adults, including those with intellectual disability. This study aimed to explore participation in organised and non-organised physical activity, including measures of attendance and involvement.</p><p><strong>Method: </strong>Forty Autistic adolescents (n = 20) and young adults (n = 20) aged 13 to 28 years (34 male) were included; 75% reported co-occurring intellectual disability. Physical activity participation in organised and non-organised activities was measured as attendance (diversity, frequency and time spent active) and involvement. Data were collected via four self-reported questionnaires and accelerometry.</p><p><strong>Results: </strong>Participation in non-organised activities, for example walking, was most commonly reported. Autistic adolescents and young adults reported spending 39 (SD 25) mins/day in moderate to vigorous physical activity. Average time spent sedentary was high (420 to 499 mins/day).</p><p><strong>Conclusions: </strong>Autistic adolescents and young adults with co-occurring intellectual disability report participating in non-organised activities rather than organised activities, and many do not meet recommended physical activity guidelines. Further investigation is required to determine factors and supports to facilitate greater physical activity participation among Autistic adolescents and young adults, including those with intellectual disability.</p>","PeriodicalId":16163,"journal":{"name":"Journal of Intellectual Disability Research","volume":" ","pages":""},"PeriodicalIF":2.4,"publicationDate":"2026-09-25","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"149039228","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}