Journal of Intellectual Disability Research最新文献

{"title":"Exploring the Barriers and Facilitators to Physical Activity Behaviour in Older Adults With Intellectual Disabilities: Lessons From and for a Co-Design Study","authors":"Kim Adriaanse,&nbsp;Jos J. Kraal,&nbsp;Marije S. Bunskoek,&nbsp;Alyt Oppewal,&nbsp;Niko J. H. Vegt","doi":"10.1111/jir.70094","DOIUrl":"10.1111/jir.70094","url":null,"abstract":"<div>\u0000 \u0000 \u0000 <section>\u0000 \u0000 <h3> Background</h3>\u0000 \u0000 <p>Physical activity (PA) is one of the core components of healthy ageing. For older adults with intellectual disabilities (ID), PA is even more important because they often have a more sedentary and inactive lifestyle and more health problems than do older adults without ID. To promote PA, we explored personal and contextual barriers and facilitators to PA for this group.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Methods</h3>\u0000 \u0000 <p>We used a research-through-design approach with six older adults with ID in a specific care home facility. By applying co-design methods, older adults with ID, caregivers and other stakeholders were involved from the beginning in (1) listing barriers and facilitators, (2) exploring PA-promoting interventions and (3) adapting co-design methods to the target group.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Results</h3>\u0000 \u0000 <p>Our work resulted in a list of barriers and facilitators for the participants to perform PA, related to the personal characteristics of the participants, the provided PAs and the physical and social context. Further, a PA-stimulating intervention prototype and lessons learned regarding co-design with older adults with ID were developed. It became clear that a modular, adaptive intervention is necessary to accommodate the individual needs and wishes of older adults with ID. The same adaptive approach was required to meaningfully involve them in the research and design process.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Conclusions</h3>\u0000 \u0000 <p>Older adults with ID cannot be regarded as a homogeneous group, and there is no one-size-fits-all solution for promoting their PA. Basic components for an intervention can be provided, yet they always require adaptations to personal and contextual circumstances. The identified barriers and facilitators, intervention prototype and co-design lessons can provide guidance for creating tailored interventions.</p>\u0000 </section>\u0000 </div>","PeriodicalId":16163,"journal":{"name":"Journal of Intellectual Disability Research","volume":"70 5","pages":"541-550"},"PeriodicalIF":2.0,"publicationDate":"2026-04-09","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC13065436/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"147433343","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Assessment of Posttraumatic Stress Disorder in Adults With Severe or Moderate Intellectual Disability Using the Diagnostic Interview Trauma and Stressors–Severe Intellectual Disability","authors":"Annemieke Hoogstad,&nbsp;Samantha Bouwmeester,&nbsp;Liesbeth Mevissen,&nbsp;Robert Didden","doi":"10.1111/jir.70084","DOIUrl":"10.1111/jir.70084","url":null,"abstract":"<div>\u0000 \u0000 \u0000 <section>\u0000 \u0000 <h3> Introduction</h3>\u0000 \u0000 <p>Until recently, no diagnostic instrument was available to classify posttraumatic stress disorder (PTSD) in individuals with severe or moderate intellectual disability (SID). This study investigates the Diagnostic Interview Trauma and Stressors–Severe Intellectual Disability (DITS-SID), a caregiver-administered interview corresponding with DSM-5(TR) PTSD criteria for children ≤ 6 years. Interrater reliability and convergent and content validity were examined.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Methods</h3>\u0000 \u0000 <p>The DITS-SID, Aberrant Behavior Checklist (ABC) and Child and Adolescent Trauma Screener 3–6 (KJTS 3–6) were administered to relatives and professional caregivers of 97 adults with SID.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Results</h3>\u0000 \u0000 <p>Interrater reliability was good to excellent. Convergent validity was supported by correlations with ABC and KJTS 3–6 scores. Content validity appeared good as adults who met PTSD symptom criteria had, on average, higher interference scores, higher DITS-SID atypical symptom scores and a greater number of experienced traumas and stressors. No association was found between meeting PTSD symptom criteria and PTSD criterion A.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Conclusion</h3>\u0000 \u0000 <p>The DITS-SID appears feasible for classifying PTSD in adults with SID. Future research should evaluate its validity in children with SID.</p>\u0000 </section>\u0000 </div>","PeriodicalId":16163,"journal":{"name":"Journal of Intellectual Disability Research","volume":"70 5","pages":"472-480"},"PeriodicalIF":2.0,"publicationDate":"2026-04-09","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC13065437/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"146064222","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Outcomes of an Exercise Intervention in Adults With Down Syndrome and Congenital Heart Disease: A Secondary Analysis","authors":"Julianne G. Clina,&nbsp;Brian C. Helsel,&nbsp;David A. White,&nbsp;Joseph R. Sherman,&nbsp;Anna M. Rice,&nbsp;Daniel E. Forsha,&nbsp;Jessica C. Danon,&nbsp;Amy E. Bodde,&nbsp;Joseph E. Donnelly,&nbsp;Richard A. Washburn,&nbsp;Lauren T. Ptomey","doi":"10.1111/jir.70087","DOIUrl":"10.1111/jir.70087","url":null,"abstract":"<div>\u0000 \u0000 \u0000 <section>\u0000 \u0000 <h3> Background</h3>\u0000 \u0000 <p>Adults with Down syndrome (DS) are less physically active than those without DS. Among adults with DS, those with congenital heart disease (CHD) have lower physical activity than those without CHD. Many trials exclude people with CHD from exercise trials; thus, the safety and effectiveness of these interventions for increasing physical activity and fitness in adults with DS and CHD are not known. The purpose of this analysis was to evaluate the safety and preliminary effectiveness of an exercise intervention in adults with DS and CHD for increasing physical activity and fitness.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Method</h3>\u0000 \u0000 <p>This secondary analysis used data from a 12-month randomized controlled physical activity intervention for adults with DS. Safety of the intervention was assessed as number and severity of adverse events and compared by CHD status. Changes in physical activity (accelerometry) and fitness (VO_2peak) among those with CHD were evaluated using mixed effects models.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Results</h3>\u0000 \u0000 <p>Thirty-six participants had CHD and were randomized to one of the exercise intervention arms (average age 25.5 years, 55.6% female). There were no differences in number (CHD: 18 vs. no CHD 22 events; rate ratio 1.02, <i>p</i> = 0.94) or severity (<i>p</i> = 0.25) of adverse events between those with and without CHD. Participants significantly increased moderate-to-vigorous physical activity minutes per day (+8.6 min/day, <i>p</i> = 0.045) and VO_2peak (+2.1 mL/kg/min, <i>p</i> = 0.036).</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Discussion</h3>\u0000 \u0000 <p>Results from this analysis show preliminary support for young adults with DS and CHD to safely participate in exercise interventions that are appropriately designed for their inclusion. These interventions also demonstrate preliminary effectiveness for increasing physical activity and fitness. Findings should be repeated and confirmed in a larger, more diverse sample to understand the safety and impact of exercise on health in persons with DS and CHD.</p>\u0000 </section>\u0000 </div>","PeriodicalId":16163,"journal":{"name":"Journal of Intellectual Disability Research","volume":"70 5","pages":"491-499"},"PeriodicalIF":2.0,"publicationDate":"2026-04-09","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC12893337/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"146113409","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Factors Associated With the Receipt of Female Breast Cancer Treatment Among People Living With Intellectual or Developmental Disabilities: A Population-Based Retrospective Cohort Study","authors":"Rebecca L. W. Hansford,&nbsp;Brooke Wilson,&nbsp;Rebecca Griffiths,&nbsp;Alyson L. Mahar","doi":"10.1111/jir.70089","DOIUrl":"10.1111/jir.70089","url":null,"abstract":"<div>\u0000 \u0000 \u0000 <section>\u0000 \u0000 <h3> Background</h3>\u0000 \u0000 <p>People with intellectual or developmental disabilities (IDD) experience breast cancer care inequities relative to those without IDD. Identifying factors associated with receipt of breast cancer treatment among those with IDD is needed to provide guidance and inform resources for improving patient-centred care. This study explores factors associated with receipt of breast cancer treatment among individuals with IDD.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Methods</h3>\u0000 \u0000 <p>We conducted a population-based retrospective cohort study with administrative health data in Ontario, Canada. Adults with IDD diagnosed with Stage I–III female breast cancer between 2007 and 2018 were included. We examined factors associated with receipt of breast cancer treatment based on stage-specific guideline recommendations. Sociodemographic (e.g., age, region, and rurality), clinical (e.g., comorbidities), cancer-related (e.g., stage at diagnosis and nodal status) and health system (e.g., family interview with a physician) factors associated with overall treatment, surgical resection, mastectomy and radiation were explored using modified Poisson regression with robust standard error variance. Crude and adjusted risk ratios with 95% confidence intervals were estimated.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Results</h3>\u0000 \u0000 <p>The overall treatment cohort, surgical resection cohort, mastectomy cohort and radiation cohort included 365, 365, 333 and 138 females with IDD, respectively. Age, stage at diagnosis and lymph node status were significantly associated with overall breast cancer treatment. We identified that age, grade, lymph node status and radiation consult were significantly associated with surgical resection receipt. Among individuals who received surgery, those who were older, who had more advanced stages at diagnosis or who had a family interview were more likely to have mastectomy rather than breast-conserving surgery. Age and lymph node status were significantly associated with receipt of radiation.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Conclusions</h3>\u0000 \u0000 <p>Sociodemographic, clinical, cancer-related and health system factors were associated with receipt of breast cancer treatment in a sample of breast cancer patients with IDD. Overall, these findings suggest that health system factors could contribute to disparities in treatment among individuals with IDD diagnosed with breast cancer.</p>\u0000 </section>\u0000 </div>","PeriodicalId":16163,"journal":{"name":"Journal of Intellectual Disability Research","volume":"70 5","pages":"500-517"},"PeriodicalIF":2.0,"publicationDate":"2026-04-09","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC13065434/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"147271260","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Feasibility of Accelerometry in Adults With Intellectual Disabilities in Health Promotion Research","authors":"J. M. Kirschmann,&nbsp;A. B. Cepni,&nbsp;D. W. Walsh,&nbsp;C. A. Johnston","doi":"10.1111/jir.70102","DOIUrl":"10.1111/jir.70102","url":null,"abstract":"<div>\u0000 \u0000 \u0000 <section>\u0000 \u0000 <h3> Background and Purpose</h3>\u0000 \u0000 <p>Despite its health benefits, physical activity levels remain low in adults with intellectual disabilities. Efforts to promote engagement in activity are limited in part by a lack of appropriate assessment tools for evaluating activity levels in this population. This study aims to assess the feasibility of applying standard accelerometer wear protocols among adults with intellectual disabilities.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Methods</h3>\u0000 \u0000 <p>This retrospective study included 28 adults with intellectual disabilities. Demographic and accelerometer wear and activity data were analysed via descriptive statistics. Paired sample <i>t</i>-tests were conducted to assess differences in activity intensities on weekdays versus weekend days.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Results</h3>\u0000 \u0000 <p>The majority (67.9%) of participants met standard wear time criteria. Participants engaged in an average of 19.51 min of moderate-to-vigorous physical activity (MVPA) and 602 min of sedentary behaviour per day. Engagement in light intensity physical activity and MVPA was higher on weekdays compared to weekends.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Conclusion</h3>\u0000 \u0000 <p>Standard accelerometry protocols appear feasible for use in populations of adults with intellectual disabilities.</p>\u0000 </section>\u0000 </div>","PeriodicalId":16163,"journal":{"name":"Journal of Intellectual Disability Research","volume":"70 5","pages":"551-557"},"PeriodicalIF":2.0,"publicationDate":"2026-04-09","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"147498874","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"‘Name It to Tame It’: Dementia Diagnostic Procedure in Austrian Care Facilities for People With Intellectual Disabilities. An Interview Study","authors":"Annalisa La Face,&nbsp;Dominik Pendl,&nbsp;Barbara Gasteiger-Klicpera","doi":"10.1111/jir.70085","DOIUrl":"10.1111/jir.70085","url":null,"abstract":"<div>\u0000 \u0000 \u0000 <section>\u0000 \u0000 <h3> Background</h3>\u0000 \u0000 <p>Despite the growing relevance of dementia in people with intellectual disabilities, there are currently no national recommendations in Austria to inform diagnostic protocols within care facilities. In order to gain a state-of-the-art understanding of the issue, the aim of this study was to map out the process currently followed by formal caregivers when they suspect a person in their care has dementia.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Method</h3>\u0000 \u0000 <p>We conducted 30 interviews with formal caregivers working in three care facilities for people with intellectual disabilities in Styria, an Austrian province. The interviews were transcribed and analysed using structured qualitative content analysis.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Results</h3>\u0000 \u0000 <p>In order to notice signs of early dementia and start the diagnostic process, a long-term relationship between formal caregivers and the person with intellectual disabilities appears to be crucial. Standardised observational instruments for monitoring changes were used by only three formal caregivers. In 19 out of 30 cases, no diagnostic assessment was carried out, even though dementia was suspected.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Conclusions</h3>\u0000 \u0000 <p>To uphold the right to health for older adults with intellectual disabilities, policies and recommendations must be established in Austria to ensure timely and accurate dementia diagnoses. This requires the introduction of standardised observational and documentation tools, clear diagnostic pathways and specialist diagnostic centres.</p>\u0000 </section>\u0000 </div>","PeriodicalId":16163,"journal":{"name":"Journal of Intellectual Disability Research","volume":"70 5","pages":"481-490"},"PeriodicalIF":2.0,"publicationDate":"2026-04-09","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC13065438/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"146104756","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Emphasising Learning in Health Promotion Targeting Individuals With Intellectual Disabilities","authors":"Elin Fägerstam,&nbsp;Kristin Alfredsson Ågren,&nbsp;Maria Kvarnström,&nbsp;Tove Törnqvist,&nbsp;Madeleine Abrandt Dahlgren,&nbsp;Ulrika Müssener","doi":"10.1111/jir.70091","DOIUrl":"10.1111/jir.70091","url":null,"abstract":"&lt;div&gt;\u0000 \u0000 \u0000 &lt;section&gt;\u0000 \u0000 &lt;h3&gt; Background&lt;/h3&gt;\u0000 \u0000 &lt;p&gt;Individuals with intellectual disabilities (ID) face disproportionately poor health profiles, underscoring the need for targeted and tailored health promotion strategies. Increasing health-related knowledge is essential for making lifestyle changes. However, difficulties associated with ID can affect the learning processes within health promotion, challenging professionals to apply various strategies to promote health. There is a lack of research exploring strategies perceived as meaningful and helpful in everyday health promotion informed by the lived experiences of individuals with ID and the insights of those who support them. The aim of this study is to explore strategies and organisational prerequisites for health promotion targeting individuals with ID by including the perspectives of individuals with ID, their significant others and professionals within healthcare, social services and educational systems.&lt;/p&gt;\u0000 &lt;/section&gt;\u0000 \u0000 &lt;section&gt;\u0000 \u0000 &lt;h3&gt; Methods&lt;/h3&gt;\u0000 \u0000 &lt;p&gt;The study was conducted in the southeast of Sweden. Data collection included eight workshops involving 30 participants in total. Individuals with ID (&lt;i&gt;n&lt;/i&gt; = 14) participated in two constellations: one group attended a series of three workshops, whereas the other group attended a single workshop. Support persons, including significant others and professionals (&lt;i&gt;n&lt;/i&gt; = 16), were divided into four separate groups, attending one workshop each. All workshops were audio-recorded and transcribed verbatim. The data were analysed using qualitative content analysis.&lt;/p&gt;\u0000 &lt;/section&gt;\u0000 \u0000 &lt;section&gt;\u0000 \u0000 &lt;h3&gt; Results&lt;/h3&gt;\u0000 \u0000 &lt;p&gt;Three categories emerged during analysis: enabling informed decision-making for health promotion, promoting health and well-being through encouraging relations, and organisational factors influencing prerequisites for health promotion.&lt;/p&gt;\u0000 &lt;/section&gt;\u0000 \u0000 &lt;section&gt;\u0000 \u0000 &lt;h3&gt; Conclusions&lt;/h3&gt;\u0000 \u0000 &lt;p&gt;Learning about health among individuals with ID appears to constitute a vital component of healthy decision-making, and support persons play a central role in facilitating health-related learning in everyday contexts. Prominent strategies for health promotion targeting individuals with ID include enabling informed decision-making and fostering encouraging relationships. These strategies must be responsive to individual needs, grounded in everyday relationships and supported by organisational structures. Hindering organisational structures and limited health promotion knowledge among professionals may constrain these efforts. Strengthening professional capacity and organis","PeriodicalId":16163,"journal":{"name":"Journal of Intellectual Disability Research","volume":"70 5","pages":"529-540"},"PeriodicalIF":2.0,"publicationDate":"2026-04-09","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC13065435/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"147365443","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Feasibility of Physical Fitness Measurements in Older Adults With Intellectual Disabilities Within Two Large Cohort Studies: The HA-ID and IDS-TILDA Study.","authors":"Alyt Oppewal, Louise Lynch, Eilish Burke","doi":"10.1111/jir.70103","DOIUrl":"https://doi.org/10.1111/jir.70103","url":null,"abstract":"<p><strong>Background: </strong>Research has shown significant underdiagnoses in adults with intellectual disabilities, highlighting the need for objective health measurements to prevent overshadowing. Physical fitness, crucial for health and functioning, is consistently poor in this population, increasing the risk of adverse outcomes. Fitness tests are promising but to date lack specific reference values from large datasets for broader applicability. This study examines the feasibility of four physical fitness tests in two large European cohort studies, IDS-TILDA in Ireland and the HA-ID study in the Netherlands, to address barriers and improve inclusion in research and care.</p><p><strong>Method: </strong>This study used data from IDS-TILDA (40+ years) and HA-ID (60+ years) cohort studies. Static balance was measured by the capability of maintaining three stances; muscle strength was measured as grip strength; muscular endurance was measured with the Five-Times Chair Stand; and cardiorespiratory fitness was measured with the Two-Minute Step Test. Reasons for non-compliance were documented. The feasibility of these tests and reasons for non-successful performance were described for the total group and across participant characteristics.</p><p><strong>Results: </strong>The IDS-TILDA sample was younger than the HA-ID sample, with more participants being independent in mobility. All fitness tests showed moderate to good feasibility, except the Full-Tandem stance in the IDS-TILDA sample. Lower feasibility was found in adults with severe and profound intellectual disabilities, walking aids and wheelchair users. Key barriers for participation were physical limitations and difficulties understanding the task.</p><p><strong>Conclusions: </strong>This study showed overall moderate to good feasibility. Physical limitations and difficulties understanding the task were important barriers, emphasising the need for the person-centred approach taken by both studies. Feasibility for including standardised physical fitness assessments, with a person-centred approach, in large cohort studies is shown. Including physical fitness assessment is recommended to allow for comparability and combining of data for more knowledge on physical fitness in adults with intellectual disabilities.</p>","PeriodicalId":16163,"journal":{"name":"Journal of Intellectual Disability Research","volume":" ","pages":""},"PeriodicalIF":2.0,"publicationDate":"2026-04-09","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"147645523","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Examining the Predictors of Life Satisfaction in College Students With Intellectual Disability","authors":"Emily K. Van Gaasbeek,&nbsp;Marc J. Tassé","doi":"10.1111/jir.70090","DOIUrl":"10.1111/jir.70090","url":null,"abstract":"<div>\u0000 \u0000 \u0000 <section>\u0000 \u0000 <h3> Background</h3>\u0000 \u0000 <p>Young adults with intellectual disability (ID) are increasingly attending college through inclusive post-secondary education (IPSE) programmes. However, little is known about their psychological experiences at college. The current study aimed to examine the role of belongingness, anxiety and depressive symptoms in predicting life satisfaction for college students with ID enrolled in IPSE programmes at 4-year American colleges and universities.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Method</h3>\u0000 \u0000 <p>College students with ID (<i>n</i> = 129) from 21 IPSE programmes across the United States completed an online survey reporting on mental health symptoms, belongingness and life satisfaction. Programme staff (<i>n</i> = 21) from each of the IPSE programmes also completed an online survey providing information about their programmes.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Results</h3>\u0000 \u0000 <p>Results of the study indicated that there were significant differences in life satisfaction and level of anxiety based on gender, residential status and access to mental health services. A hierarchical regression analysis revealed that belongingness was significantly associated with life satisfaction and accounted for 12.5% additional variance in life satisfaction, above and beyond the variance accounted for by race, ethnicity, residential status and mental health symptoms.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Conclusion</h3>\u0000 \u0000 <p>This study provides information on the well-being of college students with ID attending IPSE programmes, indicating high rates of mental health symptoms along with the role played by their sense of belonging in relation to their reported life satisfaction.</p>\u0000 </section>\u0000 </div>","PeriodicalId":16163,"journal":{"name":"Journal of Intellectual Disability Research","volume":"70 5","pages":"518-528"},"PeriodicalIF":2.0,"publicationDate":"2026-04-09","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC13065439/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"146219973","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Factors Influencing the Implementation of Transitional Care for Adolescents With Profound Intellectual and Multiple Disabilities: Experiences of Dutch Healthcare Professionals.","authors":"Ilse Ooms, AnneLoes van Staa, Erica Witkamp, Agnes van der Heide","doi":"10.1111/jir.70101","DOIUrl":"https://doi.org/10.1111/jir.70101","url":null,"abstract":"<p><strong>Background: </strong>The transition from paediatric to adult healthcare is particularly challenging for adolescents with profound intellectual and multiple disabilities (PIMD) and their families. This study aims to identify factors that Dutch healthcare professionals perceived as relevant to successful implementation of transitional care for adolescents with PIMD.</p><p><strong>Methods: </strong>Semi-structured interviews were conducted with 20 professionals working in paediatric and adult healthcare. Data were analysed using directed content analysis, guided by Flottorp's checklist (2013) on preventing and enabling factors of improvements in healthcare.</p><p><strong>Results: </strong>Transitional care approaches vary at interpersonal, organisational and environmental levels. Enabling factors were parental self-reliance and competencies, a holistic perspective, professional networks, continuity and coordination of care, flexibility to deviate from standards and guidance from nonmedical actors. Preventing factors were family burden and emotions, suboptimal information transfer, insufficient agenda-setting, shortages of expert physicians and legal and administrative challenges. Continuous parental involvement and appropriate financial funding were enabling. The provision of person-centred care was considered essential.</p><p><strong>Conclusions: </strong>Successful implementation of transitional care for adolescents with PIMD is a multifaceted process characterised by structural and personal challenges. Providing person-centred care increases the likelihood of appropriate transitional care in PIMD-care.</p>","PeriodicalId":16163,"journal":{"name":"Journal of Intellectual Disability Research","volume":" ","pages":""},"PeriodicalIF":2.0,"publicationDate":"2026-03-13","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"147443856","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}