{"title":"Assisted dying and the future of palliative care.","authors":"Daniel Kelly","doi":"10.12968/ijpn.2024.30.12.627","DOIUrl":"https://doi.org/10.12968/ijpn.2024.30.12.627","url":null,"abstract":"","PeriodicalId":94055,"journal":{"name":"International journal of palliative nursing","volume":"30 12","pages":"627-628"},"PeriodicalIF":0.0,"publicationDate":"2024-12-02","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142840367","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Nadia Sedri, Mohammad Ali Zakeri, Hakimeh Sheykhasadi, Ala Shamsi, Hosna Akbari, Mostafa Hejazi, Asghar Tavan
{"title":"The relationship between the quality of oncology nursing care and the resiliency and hope of patients with cancer: a cross-sectional study.","authors":"Nadia Sedri, Mohammad Ali Zakeri, Hakimeh Sheykhasadi, Ala Shamsi, Hosna Akbari, Mostafa Hejazi, Asghar Tavan","doi":"10.12968/ijpn.2024.30.12.636","DOIUrl":"https://doi.org/10.12968/ijpn.2024.30.12.636","url":null,"abstract":"<p><strong>Background: </strong>Patients with cancer require emotional support in addition to specialised medical treatments for their physical ailments. The quality of nursing care, resilience and hope can influence a person's cancer trajectory, and understanding these factors and their relationship can be influential in improving the process for these patients.</p><p><strong>Aim: </strong>This study examined the relationship between the quality of oncology nursing care and resilience and hope in patients with cancer.</p><p><strong>Methods: </strong>The present study is a descriptive analytics study conducted on 160 patients with cancer from April-August 2023. The data collection tools included four questionnaires: a demographic information questionnaire, the Connor-Davidson Resilience Scale (CD-RSC), the Snyder Hope Scale, and the Oncology Nursing Care Quality Scale. The data were analysed using SPSS version 22 statistical software.</p><p><strong>Results: </strong>In examining the relationship between demographic 'variables' and 'resilience', marital status and place of residence had statistically significant correlations (P<0.05). Place of residence, education level, job and first cancer treatment (P=0.004) had statistically significant correlations with hope (P<0.05). There was no statistically significant relationship between the quality of oncology nursing (QON) and its domain with two variables: 'resilience' (P=0.76) and 'hope' (P=0.37). However, a statistically significant relationship existed between the variables 'resilience' and 'hope' (P<0.001). The linear regression model results showed that among the entered demographic variables, only the variable 'hope' predicted resilience (P<0.001; R=27%). Additionally, the 'resilience' variables (P<0.001) and the 'first cancer treated' variable (P=0.001; R=34%) were predictors of 'hope'.</p><p><strong>Conclusion: </strong>Given the interrelationship between 'resilience' and 'hope' for patients with cancer, it is necessary to focus on the factors that impact these qualities. In addition, paying attention to the concept of resilience can improve the level of hope in patients with cancer. Based on the results, it is recommended that interventions to increase QON in patients with cancer be planned and implemented.</p>","PeriodicalId":94055,"journal":{"name":"International journal of palliative nursing","volume":"30 12","pages":"636-645"},"PeriodicalIF":0.0,"publicationDate":"2024-12-02","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142840632","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"The place and importance of palliative care in the fight against COVID-19.","authors":"Hicran Yildiz, Serkan Budak","doi":"10.12968/ijpn.2024.30.11.592","DOIUrl":"10.12968/ijpn.2024.30.11.592","url":null,"abstract":"<p><strong>Background: </strong>In a pandemic, existing palliative care units may be inadequate and palliative care may need to be provided in other hospital units.</p><p><strong>Aims: </strong>To review and improve the palliative care approach applied during a pandemic.</p><p><strong>Methods: </strong>Studies published between 2019 and 2020 were examined using the keywords 'fighting against COVID-19 'and 'organisation' in the PubMed, Ebsco, ScienceDirect and Web of Science databases.</p><p><strong>Findings: </strong>It was determined that the US Mass Critical Care Task Force created a framework for organising palliative care in the fight against the pandemic. It was determined that institutions and organisations implemented practices aligned with this framework during the pandemic. However, due to the evaluation, this framework was limited, and its scope should be expanded.</p><p><strong>Conclusions: </strong>The recommendations in this review and indicated in italics will improve the palliative care approach to be applied during the pandemic.</p>","PeriodicalId":94055,"journal":{"name":"International journal of palliative nursing","volume":"30 11","pages":"592-598"},"PeriodicalIF":0.0,"publicationDate":"2024-11-02","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142776007","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Jackie Robinson, Deborah Raphael, Susan Waterworth, Merryn Gott
{"title":"Family caregivers' experiences of accessing information from healthcare professionals in heart failure.","authors":"Jackie Robinson, Deborah Raphael, Susan Waterworth, Merryn Gott","doi":"10.12968/ijpn.2024.30.11.600","DOIUrl":"https://doi.org/10.12968/ijpn.2024.30.11.600","url":null,"abstract":"<p><strong>Background: </strong>With growing reliance on family caregivers to support people with advanced heart failure and to help them die at home, family caregivers need the relevant information to support this. However, evidence has shown that families continue to have deficits in their knowledge of heart failure and what to expect as the disease advances. This can lead to a high level of uncertainty and stress for family.</p><p><strong>Aim: </strong>To explore family caregivers experiences of accessing information from healthcare professionals when caring for someone with heart failure.</p><p><strong>Method: </strong>A qualitative exploratory study design was adopted using a critical realist approach. The study was conducted in one large urban area of Aotearoa New Zealand. Participants were family caregivers of people who had died between April and November 2019. Data was collected using semi-structured telephone interviews.</p><p><strong>Results: </strong>A total of 15 family caregivers participated. A thematic analysis identified three themes related to accessing information from healthcare professionals: 1) gaining access to healthcare professionals 2) developing, understanding and translating information and 3) receiving information in a timely manner.</p><p><strong>Conclusions: </strong>Findings highlight the difficulites that family carers of people with heart failure experience in accessing, receiving and understanding the information they require. Further research is needed on supporting healthcare professionals to develop skills in appearing accessible within an environment of 'busyness'. Furthermore, investigating strategies which will enable healthcare settings to be more responsive and flexible to the needs of family caregivers is needed.</p>","PeriodicalId":94055,"journal":{"name":"International journal of palliative nursing","volume":"30 11","pages":"600-610"},"PeriodicalIF":0.0,"publicationDate":"2024-11-02","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142776003","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Maria Claire M Bautista, Nicca A Indicar, Rodney F Suarez, Roison Andro Narvaez
{"title":"Nightingale by the death bed: A review on nurses' role and experiences in death and dying.","authors":"Maria Claire M Bautista, Nicca A Indicar, Rodney F Suarez, Roison Andro Narvaez","doi":"10.12968/ijpn.2024.30.11.578","DOIUrl":"https://doi.org/10.12968/ijpn.2024.30.11.578","url":null,"abstract":"<p><strong>Background: </strong>As nurses care for patients at the end of life, they face situations that affect not only their jobs, but other aspects of their lives. However, there is very little research on the psychological impact of caring for terminally ill patients, the challenges that nurses face and their specific coping strategies have not been the subject of much research.</p><p><strong>Aim: </strong>To synthesise the psychological behaviour of nurses working with terminally ill patients and identify their concept of death after caring for terminally ill patients.</p><p><strong>Method: </strong>An integrative review.</p><p><strong>Results: </strong>A total of 17 articles were deemed eligible, wherein 6 themes were generated: (1) the highs and lows of terminal illness care, (2) challenges faced by nurses caring for the terminally ill, (3) the role of nurses in terminal illness care, (4) coping with the effects, (5) coming face to face with one's mortality, and (6) continuing education in terminal illness care. Coping with the effects has two subthemes: (a) coping strategies used by nurses and (b) the role of professional relationships in coping.</p><p><strong>Conclusion: </strong>Nurses need to have a sound mind and body in order for them to be effective when caring for people at the end of life.</p>","PeriodicalId":94055,"journal":{"name":"International journal of palliative nursing","volume":"30 11","pages":"578-590"},"PeriodicalIF":0.0,"publicationDate":"2024-11-02","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142776004","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"Research Roundup.","authors":"Laura Green","doi":"10.12968/ijpn.2024.30.11.620","DOIUrl":"https://doi.org/10.12968/ijpn.2024.30.11.620","url":null,"abstract":"<p><p>Synopses of a selection of recently published research articles of relevance to palliative care.</p>","PeriodicalId":94055,"journal":{"name":"International journal of palliative nursing","volume":"30 11","pages":"620-622"},"PeriodicalIF":0.0,"publicationDate":"2024-11-02","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142776005","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"A new consultant editor: 'pushing the boundaries of the circle'.","authors":"Sonja McIlfatrick","doi":"10.12968/ijpn.2024.30.11.575","DOIUrl":"https://doi.org/10.12968/ijpn.2024.30.11.575","url":null,"abstract":"","PeriodicalId":94055,"journal":{"name":"International journal of palliative nursing","volume":"30 11","pages":"575-576"},"PeriodicalIF":0.0,"publicationDate":"2024-11-02","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142776002","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Rita Sampaio Dos Santos, Tiago Domingues, Manuel Luís Capelas, Sílvia Caldeira
{"title":"Spiritual care in Portuguese palliative care settings: a cross-sectional study.","authors":"Rita Sampaio Dos Santos, Tiago Domingues, Manuel Luís Capelas, Sílvia Caldeira","doi":"10.12968/ijpn.2024.30.11.612","DOIUrl":"10.12968/ijpn.2024.30.11.612","url":null,"abstract":"<p><strong>Background: </strong>Spirituality is a core dimension of palliative care. However, Portuguese palliative care teams do not have many spiritual care resources.</p><p><strong>Methods: </strong>Cross-sectional and observational survey studies were used to characterise spiritual care resources in Portuguese palliative care teams based on a non-probabilistic convenience sampling. An electronic questionnaire was used for data collection.</p><p><strong>Results: </strong>A total of 150 responses were obtained. In 68.7% of the teams, there was no specific professional dedicated to spiritual care, although 68% of the participants considered that a spiritual assessment or intervention was a part of their role; 47.3% considered that their colleagues were reasonably prepared to develop a spiritual assessment or follow-up; for a patient, and 54.7% were considered to be reasonably involved. However, 50.0% did not consider themseleves to be competent at providing spiritual care. Most referred to not using any specific assessment tool or document (67.3%); 49.3% dedicated less than 10% of their time to specific education or training about spirituality.</p><p><strong>Conclusion: </strong>This study involved different professionals from multidisciplinary teams. Most recognised the importance of attending to the patient's spirituality and spiritual care. Results suggest that there is a need for specific training, resources and techniques to meet a patient's spiritual care needs at the end of life. This need may be similar in all teams, not just palliative care teams, to facilitate comparing indicators and promote the implementation of holistic care in palliative care.</p>","PeriodicalId":94055,"journal":{"name":"International journal of palliative nursing","volume":"30 11","pages":"612-618"},"PeriodicalIF":0.0,"publicationDate":"2024-11-02","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142776006","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Leonie Iskov, Kurt Andersson-Noorgard, Greg Fairbrother
{"title":"Working with carer grief in community palliative care nursing.","authors":"Leonie Iskov, Kurt Andersson-Noorgard, Greg Fairbrother","doi":"10.12968/ijpn.2024.30.10.556","DOIUrl":"https://doi.org/10.12968/ijpn.2024.30.10.556","url":null,"abstract":"<p><strong>Background: </strong>Community nurses (CN), both generalist and palliative care-specific, are key to supporting the carer with their experience of grief.</p><p><strong>Aim: </strong>To identify the grief-related needs of carers and the capacity of CNs to provide for those needs.</p><p><strong>Methods: </strong>A convergent parallel mixed-methods study which employed i) a needs questionnaire among carers of palliative care patients who had recently died; ii) a qualitative interview study among carers and iii) a questionnaire among CNs which canvassed their confidence and skills in working with carer grief.</p><p><strong>Findings: </strong>In the carer survey, just one-third of carers reported engagement with CNs regarding prolonged and anticipatory grief. In the CN survey, low confidence and skill regarding supporting carers with their grief was reported. CNs with palliative care training were more confident and knowledgeable than generalist CNs.</p><p><strong>Conclusions: </strong>Despite offering high ratings for CN compassion and overall quality of support during the dying process, grief support was reported by carers to be missing from their experience of CN care. The role of CNs in providing for the grief-related needs of carers is yet to be established.</p>","PeriodicalId":94055,"journal":{"name":"International journal of palliative nursing","volume":"30 10","pages":"556-566"},"PeriodicalIF":0.0,"publicationDate":"2024-10-02","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142484201","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"Research Roundup.","authors":"Laura Green","doi":"10.12968/ijpn.2024.30.10.568","DOIUrl":"https://doi.org/10.12968/ijpn.2024.30.10.568","url":null,"abstract":"<p><p>Synopses of a selection of recently published research articles of relevance to palliative care.</p>","PeriodicalId":94055,"journal":{"name":"International journal of palliative nursing","volume":"30 10","pages":"568-570"},"PeriodicalIF":0.0,"publicationDate":"2024-10-02","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142484200","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}