Andrea Beghè, Stefano Mancin, Elena Cacciapaglia, Giacoma Piccolomini, Monica Trombetta, Gaia Bonotti, Emanuele Tognetti, Daniela Cattani, Alessandra Dacomi, Diego Lopane, Camilla Crippa, Chiara Coldani, Giuseppina Tomaiuolo, Antonio Iadeluca, Beatrice Mazzoleni
{"title":"Electronic nursing documentation in paediatric palliative care: a scoping review.","authors":"Andrea Beghè, Stefano Mancin, Elena Cacciapaglia, Giacoma Piccolomini, Monica Trombetta, Gaia Bonotti, Emanuele Tognetti, Daniela Cattani, Alessandra Dacomi, Diego Lopane, Camilla Crippa, Chiara Coldani, Giuseppina Tomaiuolo, Antonio Iadeluca, Beatrice Mazzoleni","doi":"10.12968/ijpn.2024.0029","DOIUrl":"10.12968/ijpn.2024.0029","url":null,"abstract":"<p><strong>Background: </strong>Nursing documentation within electronic medical records (EMRs) is crucial in paediatric palliative care.</p><p><strong>Methods: </strong>A scoping review was conducted to assess the state of nursing documentation in EMRs following Arksey and O'Malley's framework and Joanna Briggs Institute methodology.</p><p><strong>Results: </strong>Out of 1723 records, six studies were included. Electronic nursing documentation was used to record basic assessments, medication management, wound care management, catheters and devices management. EMRs should be simple to use, text searchable and have specific places for specific documentation. The participation of end users in development could make the system more efficient and complete.</p><p><strong>Conclusion: </strong>Electronic nursing documentation in paediatric palliative care signifies a notable evolution from traditional paper methods. Future research is essential to ascertain electronic nursing documentation needs, leverage technology advancements and explore artificial intelligence integration possibilities.</p>","PeriodicalId":94055,"journal":{"name":"International journal of palliative nursing","volume":"31 6","pages":"278-286"},"PeriodicalIF":0.0,"publicationDate":"2025-06-02","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144328227","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"Health education programme for nursing students regarding the monkeypox pandemic and the necessity for palliative care.","authors":"Ateya Megahed Ibrahim, Donia Elsaid Fathi Zaghamir","doi":"10.12968/ijpn.2023.0062","DOIUrl":"https://doi.org/10.12968/ijpn.2023.0062","url":null,"abstract":"<p><strong>Aim: </strong>Assess the impact of an educational programme on nursing students' knowledge and attitudes toward the monkeypox pandemic and the necessity for palliative care.</p><p><strong>Methods: </strong>A quasi-experimental study was conducted which involved 250 nursing students at Prince Sattam Bin Abdulaziz University. A standardised, anonymous and closed-ended questionnaire about monkeypox was completed by the participants. Furthermore, a questionnaire to assess nursing students' knowledge of and attitude towards palliative care was also completed.</p><p><strong>Results: </strong>Overall, the intervention group showed significantly higher scores than the control group in both knowledge of and attitudes towards monkeypox and palliative care. For monkeypox, the control group had a knowledge score of 45.43±6.29, while the intervention group scored 65.03±2.93. Attitude scores were 55.67±19 in the control group and 60.24±1.52 in the intervention group. For palliative care, the control group's knowledge score was 48.62±4.78, compared to 70.65±5.13 in the intervention group, and attitude scores were 34.12±25 versus 46.89±7.8, respectively.</p><p><strong>Conclusion: </strong>Following implementation of the educational programme, there was an improvement in total knowledge and attitudes scores of the nursing students regarding the monkeypox pandemic and the palliative care required for patients.</p>","PeriodicalId":94055,"journal":{"name":"International journal of palliative nursing","volume":"31 6","pages":"266-276"},"PeriodicalIF":0.0,"publicationDate":"2025-06-02","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144328228","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"The feasibility, sustainability and impact of embedding the AMBER care bundle at a tertiary cancer centre.","authors":"Claire Cadwallader, Helen Wong, Daniel Monnery","doi":"10.12968/ijpn.2024.0072","DOIUrl":"https://doi.org/10.12968/ijpn.2024.0072","url":null,"abstract":"<p><strong>Background: </strong>The AMBER care bundle facilitates earlier conversations with patients and their family about uncertain recovery and has been validated in acute hospitals. However, this tool has not been reported in a tertiary cancer setting to date.</p><p><strong>Aim: </strong>Determine the feasibility and impact of embedding the AMBER care bundle within a tertiary cancer centre.</p><p><strong>Method: </strong>The AMBER care bundle was launched in 2020 at a tertiary cancer centre, facilitated by a rolling education programme, digital tools and designated clinical leadership. Confidence with communicating uncertainty was collected pre- and post-training and clinical outcomes for patients supported by the AMBER care bundle were compared between baseline and 3 years post implementation.</p><p><strong>Results: </strong>Trainees' confidence in communicating uncertainty was statistically significantly improved following training (P<0.01). Patient outcomes improved, including achievement of preferred place of death, which increased from 8 to 80% over 3 years. The AMBER care bundle is feasible and effective when implemented within a tertiary cancer setting.</p>","PeriodicalId":94055,"journal":{"name":"International journal of palliative nursing","volume":"31 6","pages":"288-293"},"PeriodicalIF":0.0,"publicationDate":"2025-06-02","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144328231","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"Efficiency of a palliative education programme for nursing students.","authors":"Ateya Megahed Ibrahim","doi":"10.12968/ijpn.2023.0072","DOIUrl":"https://doi.org/10.12968/ijpn.2023.0072","url":null,"abstract":"<p><strong>Background: </strong>Many nursing students are ill-prepared to care for patients nearing the end of their lives and lack knowledge about palliative care. A focused teaching strategy could help students better understand their own feelings and conduct. It could also foster positive attitudes that make it easier to provide outstanding care.</p><p><strong>Objective: </strong>To evaluate the efficiency of palliative education programme for nursing students caring for patients at the end of life.</p><p><strong>Methods: </strong>A quasi-experimental study was carried out with 216 nursing students from Prince Sattam Bin Abdulaziz University in Alkharj, Saudi Arabia, using a proportionate stratified random sampling approach. The educational intervention consisted of three key modules: bereavement support, understanding the dying process and specialised palliative nursing care. Students engaged with 60 video segments through the Blackboard platform, available on a smartphone or tablet. Data collection involved four questionnaires: (a) a demographic survey, (b) the Palliative Care Quiz for Nursing, (c) the Frommelt Attitudes Towards Care of the Dying Scale, and (d) the Death Attitude Profile-Revised.</p><p><strong>Results: </strong>Slightly over half of the nursing students (51.9%) were younger than 20 years, with a mean age of 22.8±13.5 years, and 51.4% were female. The vast majority of participants in this study (86.6%) had no prior education or training in palliative care. After participating in the palliative education programme, students showed significant improvements in their overall knowledge, Frommelt Attitudes and Death Attitude Profile-Revised scores in the post-test assessment. These results highlight the programme's effectiveness in enhancing nursing students' comprehension and attitudes toward palliative care.</p><p><strong>Conclusion: </strong>A palliative care education programme can improve nursing students' knowledge and attitudes toward caring for patients at the end of life and supporting their families. Therefore, it is recommended that a palliative care course should be a mandatory part of nursing curricula. This course should incorporate experiential learning activities, including postmortem care, small group reflections and simulation-based training. To provide a well-rounded educational experience, these practical components should be reinforced with theoretical lectures.</p><p><strong>Recommendations: </strong>Changing nurses' perceptions of mortality requires specialised training, and this should be prioritised in Saudi Arabia.</p>","PeriodicalId":94055,"journal":{"name":"International journal of palliative nursing","volume":"30 5","pages":"160-173"},"PeriodicalIF":0.0,"publicationDate":"2025-05-02","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144121844","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"Bereaved carers' experiences of a partnership model of after-hours and extended palliative care delivery in rural Australia.","authors":"Pauline Smith, Graeme Browne, David Schmidt","doi":"10.12968/ijpn.2024.0003","DOIUrl":"https://doi.org/10.12968/ijpn.2024.0003","url":null,"abstract":"<p><strong>Background: </strong>Caregivers are fundamental to achieving effective home-based palliative care. Lack of access to after-hours visiting palliative care and non-clinical home support in rural areas increases caregiver burden, unplanned hospital admissions and impacts patients' ability to die at home. To support end-of-life care at home, the New South Wales Government endorsed partnership models between specialist community-based palliative services and non-government organisations to provide end of life support packages to enhance after-hours access and non-clinical support.</p><p><strong>Aim: </strong>To explore bereaved rural carers' experiences of supporting dying at home within this model.</p><p><strong>Method: </strong>Bereaved carers accessing lend of life support packages were purposively recruited. A total of 10 semi-structured interviews were conducted. Data was thematically analysed using interpretive phenomenological analysis. The COnsolidated criteria for REporting Qualitative research (COREQ) framework guided study reporting.</p><p><strong>Findings: </strong>Collaboration, after-hours visiting access and extended non-clinical support facilitated end-of-life care at the patient's home. Participants of the study had a positive experience of this partnership.</p><p><strong>Conclusion: </strong>This integrative model addressed existing service gaps, maximised carer support and facilitated home deaths. Further public policy, funding and research is needed to support integrated rural palliative care models.</p>","PeriodicalId":94055,"journal":{"name":"International journal of palliative nursing","volume":"30 5","pages":"180-190"},"PeriodicalIF":0.0,"publicationDate":"2025-05-02","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144121881","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"Critical incident analysis: prescribing opioids in palliative care.","authors":"Daisy Jacobs","doi":"10.12968/ijpn.2023.0065","DOIUrl":"https://doi.org/10.12968/ijpn.2023.0065","url":null,"abstract":"<p><strong>Background: </strong>Opioids provide relief from severe cancer-related pain, but have the potential to cause significant adverse effects. They are among the top five drugs that are wrongly prescribed and can have potentially fatal consequences. This group of drugs has remained under scrutiny following the Gosport Enquiry. A lack of training and education can lead to significant prescribing errors. Education and training in end-of-life care and the prescribing of higher dose opioids than is seen in regular practice is not the norm and further work needs to be done to enhance the confidence of generalist prescribers in the community and acute setting. This incident led to changes in practice and made improvements locally with regional training, yet further work remains to be done nationally.</p>","PeriodicalId":94055,"journal":{"name":"International journal of palliative nursing","volume":"30 5","pages":"174-180"},"PeriodicalIF":0.0,"publicationDate":"2025-05-02","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144121840","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"Is dying a new chronic morbidity?","authors":"Ahmed Abdelhafiz","doi":"10.12968/ijpn.2024.0064","DOIUrl":"https://doi.org/10.12968/ijpn.2024.0064","url":null,"abstract":"","PeriodicalId":94055,"journal":{"name":"International journal of palliative nursing","volume":"30 5","pages":"202"},"PeriodicalIF":0.0,"publicationDate":"2025-05-02","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144121846","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Roison Andro Narvaez, André Canaria, Stephen Nifras, Niño Listones, Ronalyn Topacio, Josephine Lorica
{"title":"The lived experience of therapeutic intimacy among Filipino palliative care nurses.","authors":"Roison Andro Narvaez, André Canaria, Stephen Nifras, Niño Listones, Ronalyn Topacio, Josephine Lorica","doi":"10.12968/ijpn.2024.0073","DOIUrl":"https://doi.org/10.12968/ijpn.2024.0073","url":null,"abstract":"<p><strong>Background: </strong>Therapeutic intimacy is a cornerstone of palliative care nursing, requiring nurses to balance emotional connection and professional boundaries. Filipino palliative care nurses, influenced by their collectivist cultural values, offer unique perspectives on this phenomenon.</p><p><strong>Methods: </strong>A phenomenological design employed using a adopted and validated semi-structured interviews were conducted and analysed using Colaizzi's method.</p><p><strong>Findings: </strong>Among the 12 participating Filipino palliative care nurses, four themes emerged: (1) building therapeutic relationships, emphasising trust and holistic care; (2) navigating emotional and ethical complexities, highlighting challenges in balancing compassion and professionalism; (3) personal and professional growth, showcasing enhanced emotional resilience and fulfillment; and (4) cultural foundations in care, reflecting the role of Filipino values in caregiving. Nurses stressed the importance of trust, holistic care and familial bonds, while also confronting challenges, such as burnout and ethical conflict. The findings underscore the interplay of empathy, cultural values and reflective practice in shaping therapeutic care.</p><p><strong>Conclusion: </strong>This study demonstrates that therapeutic intimacy-rooted in trust, holistic care and reflective practice-significantly enriches palliative care by improving patient outcomes and bolstering nurse resilience.</p>","PeriodicalId":94055,"journal":{"name":"International journal of palliative nursing","volume":"30 5","pages":"192-200"},"PeriodicalIF":0.0,"publicationDate":"2025-05-02","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144121884","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"Old dogs and new tricks.","authors":"Philip Larkin","doi":"10.12968/ijpn.2025.0043","DOIUrl":"https://doi.org/10.12968/ijpn.2025.0043","url":null,"abstract":"","PeriodicalId":94055,"journal":{"name":"International journal of palliative nursing","volume":"30 5","pages":"159"},"PeriodicalIF":0.0,"publicationDate":"2025-05-02","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144121888","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}