{"title":"Research Roundup.","authors":"Laura Green","doi":"10.12968/ijpn.2025.0039","DOIUrl":"https://doi.org/10.12968/ijpn.2025.0039","url":null,"abstract":"<p><p>Synopses of a selection of recently published research articles of relevance to palliative care.</p>","PeriodicalId":94055,"journal":{"name":"International journal of palliative nursing","volume":"30 5","pages":"204-206"},"PeriodicalIF":0.0,"publicationDate":"2025-05-02","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144121890","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Aakash Hinduja, Praneeth Suvvari, Wasimul Hoda, Praveen Kumar Kodisharapu, Divya Sai Vanumu, Rupal Kamei, Kaduhole Shubha Pai, Dean George
{"title":"7C model: An easy way to understand the role of palliative nurses.","authors":"Aakash Hinduja, Praneeth Suvvari, Wasimul Hoda, Praveen Kumar Kodisharapu, Divya Sai Vanumu, Rupal Kamei, Kaduhole Shubha Pai, Dean George","doi":"10.12968/ijpn.2024.0034","DOIUrl":"https://doi.org/10.12968/ijpn.2024.0034","url":null,"abstract":"<p><strong>Background: </strong>The holistic approach of palliative care emphasises the importance of specialised nursing to improve the quality of life for patients and families.</p><p><strong>Aim: </strong>To propose a theoretical model encapsulating essential aspects of palliative nursing.</p><p><strong>Method: </strong>A review of previous literature and existing models were used to identify the key competencies essential for palliative care nurses.</p><p><strong>Conclusions: </strong>The proposed 7C model highlights the critical skills of caring and comforting, collaboration and coordination, communication and cohesion, compassion, conflict management, competence and cultural sensitivity as foundational to effective palliative nursing practice. Formal training is essential for nurses to master palliative care skills. The proposed 7C model for palliative nursing aims to integrate holistic care principles into training, practice and thereby improving nursing efficacy and patient care standards.</p>","PeriodicalId":94055,"journal":{"name":"International journal of palliative nursing","volume":"31 4","pages":"189-194"},"PeriodicalIF":0.0,"publicationDate":"2025-04-02","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144063559","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Núbia Pereira Pedreira, Elaine Thayna Trindade Costa, Cinthia Costa de Castro, Gissele Almeida Dantas Rodrigues, Nábia Pereira Pedreira, Gleiciane Moraes Gonçalves Ramos, Flavine Evangelista Gonçalves, Iaron Leal Seabra, Fabianne de Jesus Dias de Sousa, Cintia Yolette Urbano Pauxis Aben-Athar, Aline Maria Pereira Cruz Ramos
{"title":"Satisfaction with nursing care among patients with cancer receiving palliative care in a hospital.","authors":"Núbia Pereira Pedreira, Elaine Thayna Trindade Costa, Cinthia Costa de Castro, Gissele Almeida Dantas Rodrigues, Nábia Pereira Pedreira, Gleiciane Moraes Gonçalves Ramos, Flavine Evangelista Gonçalves, Iaron Leal Seabra, Fabianne de Jesus Dias de Sousa, Cintia Yolette Urbano Pauxis Aben-Athar, Aline Maria Pereira Cruz Ramos","doi":"10.12968/ijpn.2024.0031","DOIUrl":"https://doi.org/10.12968/ijpn.2024.0031","url":null,"abstract":"<p><strong>Background: </strong>Few studies evaluate the satisfaction of patients with cancer receiving palliative care with the nursing care received.</p><p><strong>Objective: </strong>To evaluate satisfaction among patients with cancer in hospitalised palliative care with respect to the nursing care they received.</p><p><strong>Method: </strong>This was a quantitative, descriptive-correlational and cross-sectional study that was reported in accordance with Strengthening the Reporting of Observational Studies in Epidemiology (STROBE) guidelines. It was carried out in a university hospital in the city of Belém, Brazil. The participants were adults with cancer who were receiving palliative care and who had been hospitalised for more than 72 hours. Data collection took place between December 2022 and September 2023, and instruments were used for bedside interviews.</p><p><strong>Results: </strong>Patients receiving minimal care reported being satisfied with their nursing care in the technical-professional dimension (p=0.04).</p><p><strong>Conclusion: </strong>The association between patient satisfaction and the degree of dependence is unprecedented in the scientific scenario and has the potential to motivate more in-depth studies in this area.</p>","PeriodicalId":94055,"journal":{"name":"International journal of palliative nursing","volume":"31 4","pages":"195-204"},"PeriodicalIF":0.0,"publicationDate":"2025-04-02","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144002203","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Juan Esteban Correa-Morales, Maria Alejandra Umbacia, Catalina Martinez, Ignacio Zarante, Aurora Marixa Guerrero Liñeiro, Sara Giraldo-Moreno, Marta Ximena León
{"title":"The paramount role of palliative care in low-prevalence diseases.","authors":"Juan Esteban Correa-Morales, Maria Alejandra Umbacia, Catalina Martinez, Ignacio Zarante, Aurora Marixa Guerrero Liñeiro, Sara Giraldo-Moreno, Marta Ximena León","doi":"10.12968/ijpn.2023.0039","DOIUrl":"https://doi.org/10.12968/ijpn.2023.0039","url":null,"abstract":"<p><strong>Background: </strong>Low-prevalence diseases (LPDs), previously referred to as orphan diseases or rare diseases, entail a substantial potential for mortality and impose a remarkable burden of symptoms for patients. The process of diagnosing these diseases is often lengthy, and viable treatment options for such conditions are scarce, or in some cases, non-existent.</p><p><strong>Methods: </strong>A narrative review was carried out following the Scale for the Assessment of Narrative Review Articles (SANRA) methodology to establish the role of palliative care in the treatment and follow-up of patients with LPDs. A search was carried out by a multidisciplinary team in EMBASE, PUBMED, Web of Science, CINHAL and OVID. Peer-reviewed articles reporting on the role of palliative care in the multidisciplinary treatment of LPDs were included.</p><p><strong>Results: </strong>The review identified significant areas where palliative care specialists play a crucial role in caring for LPDs. These areas include addressing complex physical and emotional symptoms, assisting patients in adjusting their expectations through genetic counselling, facilitating decision-making across short, medium and long-term perspectives based on disease prognosis, and offering support with care transitions, advanced planning and the grieving process for families.</p><p><strong>Conclusion: </strong>Patients with LPDs and their caregivers experience complex care needs that should be assessed by a palliative care specialist and supported by a multidisciplinary medical group.</p>","PeriodicalId":94055,"journal":{"name":"International journal of palliative nursing","volume":"31 4","pages":"181-188"},"PeriodicalIF":0.0,"publicationDate":"2025-04-02","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144056391","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"The effect of the 5A Self-Management Model approach on sleep quality of patients with cancer.","authors":"Ehsan Dastafkan, Behnam Khaledi, Nader Salari, Aliakbar Visi-Rayegani, Alireza Abdi","doi":"10.12968/ijpn.2023.0044","DOIUrl":"https://doi.org/10.12968/ijpn.2023.0044","url":null,"abstract":"<p><strong>Background: </strong>Patients with cancer can have problems sleeping. One measure that can help patients with cancer to improve the quality of their sleep is the 5A Self Management Model method.</p><p><strong>Aim: </strong>This study aimed to determine the effect of the 5A Self Management Model on the quality of sleep of patients with cancer.</p><p><strong>Methods: </strong>In this clinical trial, 106 patients with cancer were recruited by convenient sampling, and randomly allocated to experimental and control groups. Data collection tools were a demographic checklist and Pittsburgh Sleep Quality Questionnaire. Patients in the experimental group received a self-management programme with the 5A method for 3 months and the control group obtained the routine intervention. Data were analysed via SPSS 25 software using Wilcoxon, Mann-Whitney U, independent t-test, paired t-test and descriptive statistics.</p><p><strong>Results: </strong>Before the intervention, the mean scores of sleep quality were 13.41 (1.78) in the experimental group and 9.64 (2.45) in the control group. However, after the intervention, the mean score of sleep quality decreased in the experimental group to 5.07 (1.19) and increased by 12.81 (2.26) in the control group, significantly.</p><p><strong>Conclusion: </strong>The 5A Self Management Model programme improved the quality of sleep of patients with cancer in this trial. It is recommended nurses consider this method as a part of caring for patients with cancer.</p>","PeriodicalId":94055,"journal":{"name":"International journal of palliative nursing","volume":"31 4","pages":"173-180"},"PeriodicalIF":0.0,"publicationDate":"2025-04-02","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144065485","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"An exploration of perceived impact of receiving complementary therapies on service users during the palliative and end-of-life care phase.","authors":"Jason Vickers, Brian Nyatanga, Hayley Holden","doi":"10.12968/ijpn.2024.0040","DOIUrl":"https://doi.org/10.12968/ijpn.2024.0040","url":null,"abstract":"<p><strong>Background: </strong>To explore and understand the narratives of service users in the hospice setting regarding the value they place on complementary therapies and their perceived impact on overall wellbeing.</p><p><strong>Methods: </strong>This qualitative pilot study, informed by narrative inquiry principles, used purposive sampling to recruit and interview 11 service users receiving complementary therapies in a hospice setting. Data were analysed using a two-cycle coding approach, through manual inductive recognition of patterns.</p><p><strong>Findings: </strong>Three themes were identified: developing trust in complementary therapy; informal psychological support and applications to everyday life. The benefits derived from complementary therapy sessions include managing anxiety and stress, developing better sleep strategies and devising coping techniques for personal situations and contexts through guided discussions and personal reflection.</p><p><strong>Implications: </strong>The study suggests a need for further inquiry and professional complementary therapist development to fully harness the therapeutic potential of complementary therapy in a palliative care context. There is potential for palliative settings that incorporate and provide complementary therapies to enhance the role that complementary therapy services play in facilitating coping abilities, reducing anxiety and potentially improving sleep and pain management.</p>","PeriodicalId":94055,"journal":{"name":"International journal of palliative nursing","volume":"31 4","pages":"160-172"},"PeriodicalIF":0.0,"publicationDate":"2025-04-02","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144059159","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Siobhan P Aaron, Katherine Supiano, Ronit Elk, Beverly Wallace
{"title":"Towards a framework for a culturally centered evidence based prolonged grief group therapy intervention.","authors":"Siobhan P Aaron, Katherine Supiano, Ronit Elk, Beverly Wallace","doi":"10.12968/ijpn.2024.0027","DOIUrl":"10.12968/ijpn.2024.0027","url":null,"abstract":"<p><strong>Background: </strong>Black Americans are twice as likely to die from the leading causes of death in the US due to economic and social disparities, which exacerbate the emotional and social burdens of bereavement and increase the risk of prolonged grief (PG). Untreated, PG leads to depression, self-harm risk, deteriorating health, elevated healthcare use and mortality risk. Studies reveal a reluctance among Black Americans to seek bereavement support, compounded by limited care access, mental health stigma, biased providers and cultural gaps.</p><p><strong>Aims: </strong>To evaluate the acceptability and efficacy of a culturally adapted Prolonged Grief Group Therapy intervention for Black Americans.</p><p><strong>Methods: </strong>This protocol outlines a study employing a pilot three-arm quasi-experimental design. The study aims to explore cultural, systemic and psychological factors shaping grief in this population and refine the intervention to enhance its relevance and effectiveness.</p><p><strong>Conclusions: </strong>By addressing this significant gap, the research seeks to provide evidence for an accessible and culturally sensitive therapeutic approach, ultimately improving emotional wellbeing and mitigating the adverse impacts of prolonged grief in this underrepresented population.</p>","PeriodicalId":94055,"journal":{"name":"International journal of palliative nursing","volume":"31 3","pages":"109-118"},"PeriodicalIF":0.0,"publicationDate":"2025-03-02","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143712676","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}