International journal of palliative nursing最新文献_第4页

Avoidable emergency admissions: defining the concept. 可避免的急诊入院：界定概念。

International journal of palliative nursing Pub Date : 2024-08-02 DOI: 10.12968/ijpn.2024.30.8.432

Tânia Dos Santos Afonso, Lurdes Martins, Manuel Luís Capelas

{"title":"Avoidable emergency admissions: defining the concept.","authors":"Tânia Dos Santos Afonso, Lurdes Martins, Manuel Luís Capelas","doi":"10.12968/ijpn.2024.30.8.432","DOIUrl":"10.12968/ijpn.2024.30.8.432","url":null,"abstract":"Background: The transfer of end-of-life patients to hospital via admission to an emergency service mainly happens because of a lack of community support nearby and a lack of resources in palliative care.Aims: This study aimed to define the concept of avoidable admission to an emergency department for palliative patients.Methods: An integrative literature review was performed. The results of this were put to a panel of palliative care experts via a Delphi process to determine their consensus and agreement with the statements.Findings: The results of the two-step Delphi process reached a high level of consensus and agreement that patients with palliative needs accompanied by home palliative care teams should not go to the emergency department. There was a low level of consensus and agreement about the appropriate admission of a patient in pain in the absence of any information about previous community support.Conclusion: The findings allowed the definition of an 'avoidable emergency admission', which is an emergency admission for any symptom or condition that could be supported in a home context or primary health care, or any emergency admission that does not require immediate nursing or medical intervention, nor leads to greater comfort or quality of life for the patient.","PeriodicalId":94055,"journal":{"name":"International journal of palliative nursing","volume":"30 8","pages":"432-443"},"PeriodicalIF":0.0,"publicationDate":"2024-08-02","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142304883","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Iranian Muslim women's adaptation after mastectomy. 伊朗穆斯林妇女在乳房切除术后的适应情况。

International journal of palliative nursing Pub Date : 2024-08-02 DOI: 10.12968/ijpn.2024.30.8.451

Marzieh Beygom Bigdeli Shamloo, Nasrin Elahi, Aziz Shamsi

{"title":"Iranian Muslim women's adaptation after mastectomy.","authors":"Marzieh Beygom Bigdeli Shamloo, Nasrin Elahi, Aziz Shamsi","doi":"10.12968/ijpn.2024.30.8.451","DOIUrl":"https://doi.org/10.12968/ijpn.2024.30.8.451","url":null,"abstract":"Background: Breast cancer is the most common malignancy among women. Women with breast cancer need to adapt all aspects of their life following their diagnosis.Aim: To investigate how women with breast cancer make adaptations in their lives to cope with the condition.Methods: A directed content analysis was used for this study and 23 participants were interviewed. The participants included women undergoing a mastectomy and their husbands, oncologists, oncology ward nurses and psychologists. Questions were asked regarding the participants' experiences of their adaptation to a mastectomy and cancer.Results: Data analysis led to the emergence of four dimensions; the physical dimension, self-concept, role-playing and interdependence. These four dimensions consisted of 21 main categories, 59 subcategories and 111 codes.Conclusion: The present study showed that despite the emergence of different coping approaches, women undergoing mastectomy have had various physical and mental problems that lead to role disruption. It is recommended that solutions be adopted to increase the adaptation of these patients.","PeriodicalId":94055,"journal":{"name":"International journal of palliative nursing","volume":"30 8","pages":"451-463"},"PeriodicalIF":0.0,"publicationDate":"2024-08-02","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142304885","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Synopses of a selection of recently published research articles of relevance to palliative care. 近期发表的与姑息关怀相关的研究文章选摘。

International journal of palliative nursing Pub Date : 2024-08-02 DOI: 10.12968/ijpn.2024.30.8.464

Laura Green

引用次数: 0

Welcoming the new consultant editor. 欢迎新任顾问编辑。

International journal of palliative nursing Pub Date : 2024-08-02 DOI: 10.12968/ijpn.2024.30.8.422

Brian Nyatanga

引用次数: 0

Reflecting: Ten years on from the World Health Assembly resolution. 反思：世界卫生大会决议十年之后。

International journal of palliative nursing Pub Date : 2024-08-02 DOI: 10.12968/ijpn.2024.30.8.419

Julie Ling

引用次数: 0

Experience of caregivers and healthcare professionals using a telemedicine programme in a paediatric palliative care unit. 儿科姑息关怀病房的护理人员和医护人员使用远程医疗项目的经验。

International journal of palliative nursing Pub Date : 2024-08-02 DOI: 10.12968/ijpn.2024.30.8.424

Ana Suárez Carrasco, María José Peláez Cantero, Jose Miguel García Piñero, Aurora Madrid Rodriguez

{"title":"Experience of caregivers and healthcare professionals using a telemedicine programme in a paediatric palliative care unit.","authors":"Ana Suárez Carrasco, María José Peláez Cantero, Jose Miguel García Piñero, Aurora Madrid Rodriguez","doi":"10.12968/ijpn.2024.30.8.424","DOIUrl":"https://doi.org/10.12968/ijpn.2024.30.8.424","url":null,"abstract":"Background: Telemedicine is a means of providing efficient treatment for children with complex chronic conditions and/or subsidiary palliative paediatric care.Aim: To evaluate how satisfied families and healthcare professionals are with a telemedicine programme.Methodology: This is a qualitative study of narrative design. Ten interviews were conducted with family members and professionals who had been using telemedicine for a year. Sampling was intentional and a discourse and content analysis was conducted.Results: Six thematic categories emerged from the analysis of the interviews: degree of satisfaction; usefulness; benefits according to patient needs and attention; technical and human difficulties; and implantation of the system and proposals for improvement.Conclusions: The study shows that telemedicine is a very useful complementary tool for healthcare professionals in a palliative care context. It is necessary to take into account the perception and needs of both families and healthcare professionals with regard to this tool since it can improve patient care.","PeriodicalId":94055,"journal":{"name":"International journal of palliative nursing","volume":"30 8","pages":"424-431"},"PeriodicalIF":0.0,"publicationDate":"2024-08-02","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142304884","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

ABCDE assessment for palliative care truth-telling dilemmas: a case study. 针对姑息关怀真相困境的 ABCDE 评估：案例研究。

International journal of palliative nursing Pub Date : 2024-08-02 DOI: 10.12968/ijpn.2024.30.8.444

Rismia Agustina, Susan Jane Fetzer, Wei-Shu Lai, Kennedy Diema Konlan, Pradana Zaky Romadhon, Mei-Feng Lin

{"title":"ABCDE assessment for palliative care truth-telling dilemmas: a case study.","authors":"Rismia Agustina, Susan Jane Fetzer, Wei-Shu Lai, Kennedy Diema Konlan, Pradana Zaky Romadhon, Mei-Feng Lin","doi":"10.12968/ijpn.2024.30.8.444","DOIUrl":"10.12968/ijpn.2024.30.8.444","url":null,"abstract":"Background: In Indonesia, the diagnosis of a serious illness is often mediated through the patient's family, reflecting the cultural importance of family involvement in the patient's care and collective decision-making.Aim: To use a case study to show the difficulty that healthcare professionals face telling the patient the truth about their condition in Indonesia.Method: The Kagawa-Singer and Blackhall ABCDE framework was used during truth-telling dilemmas to assess patients' and families' attitudes (A), beliefs (B), contexts (C), decision-making styles (D) and environments (E).Findings: Studies have shown that family involvement in health-related communications can alleviate the stress associated with the disclosure of a serious illness. Palliative care nurses must acknowledge the importance of family in the patient's cultural context, by involving them in the disclosure of a diagnosis and disease trajectory by integrating every element of the ABCDE model in palliative care.","PeriodicalId":94055,"journal":{"name":"International journal of palliative nursing","volume":"30 8","pages":"444-450"},"PeriodicalIF":0.0,"publicationDate":"2024-08-02","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142304882","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

A qualitative study of Samoan cancer patients' experiences. 萨摩亚癌症患者经历的定性研究。

International journal of palliative nursing Pub Date : 2024-07-02 DOI: 10.12968/ijpn.2024.30.7.380

Alice Every, Beatriz Cuesta-Briand, Dyxon Hansell, Shelley Burich, Fuamatala Tofilua, Gregory B Crawford, Aileen Collier

{"title":"A qualitative study of Samoan cancer patients' experiences.","authors":"Alice Every, Beatriz Cuesta-Briand, Dyxon Hansell, Shelley Burich, Fuamatala Tofilua, Gregory B Crawford, Aileen Collier","doi":"10.12968/ijpn.2024.30.7.380","DOIUrl":"10.12968/ijpn.2024.30.7.380","url":null,"abstract":"Methods: This qualitative interview study was part of a larger study that interviewed19 participants recruited among patients with cancer registered with Samoa Cancer Society, or patients recently discharged from the main tertiary hospital in Samoa. Interview transcripts were reviewed, and the research team identified the key palliative-care-related themes.Results: Analysis led to the generation of the following key themes: living with pain; resource constraints; support from family and faith; and interactions with healthcare professionals. Most participants were experiencing unresolved pain as a result of poor health knowledge, lack of access to medications and practical issues, such as financial limitations and lack of transport. Participants also reported a lack of resources, including financial constraints, as a significant barrier to effective healthcare. Sources of support for patients with cancer were most commonly strong family relationships and religious faith. Although it was difficult for the participants to access care from healthcare professionals, they found that honest communication about their condition was comforting. However, they were frustrated if they felt communication was unsatisfactory.Conclusion: This study provides much needed evidence on the issues that affect the quality of life patients with cancer receiving palliative care and their families in Samoa. It also highlights the intersectionality of these issues and how this compounds the patient experience. Practical recommendations for improving palliative care lie in a few key areas, including a need for improved access to opioids and support for family caregivers. However, from a systemic perspective, the way forward should lie in harnessing the strengths of Samoan culture, including the strong sense of family and the role of religion, to provide support and care for palliative patients.","PeriodicalId":94055,"journal":{"name":"International journal of palliative nursing","volume":"30 7","pages":"380-388"},"PeriodicalIF":0.0,"publicationDate":"2024-07-02","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141725405","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Inflammatory indexes predict mortality in non-malignant patients in palliative care. 炎症指数可预测姑息治疗中非恶性肿瘤患者的死亡率。

International journal of palliative nursing Pub Date : 2024-07-02 DOI: 10.12968/ijpn.2024.30.7.404

Serdar Ceylan, Abbas Faruk Akkurt, Mehtap Gurses, Ayfer Aydemir, Taylan Ozgur Dede, Ruya Acaroglu, Fatma Utkan Duran Ugur

{"title":"Inflammatory indexes predict mortality in non-malignant patients in palliative care.","authors":"Serdar Ceylan, Abbas Faruk Akkurt, Mehtap Gurses, Ayfer Aydemir, Taylan Ozgur Dede, Ruya Acaroglu, Fatma Utkan Duran Ugur","doi":"10.12968/ijpn.2024.30.7.404","DOIUrl":"https://doi.org/10.12968/ijpn.2024.30.7.404","url":null,"abstract":"Background: The literature on the use of inflammatory indexes for palliative care patients without malignancy is scarce.Aims: To determine which inflammatory indexes are associated with the mortality risks of non-malignant patients hospitalised and receiving palliative care.Methods: Discharged or deceased patients in a palliative care unit of a secondary care hospital were included. The laboratory values were obtained during the first 48 hours of hospitalisation.Findings: As a result of univariate Cox regression analysis, 14-day mortality rate was affected by lymphocyte ratio, neutrophil-to-albumin ratio (NAR), C-reactive protein/albumin ratio (CAR), multi-inflammatory indexes (MII-1) and MII-2 (p<0.001, p=0.001, p=0.002, p=0.009 and p=0.003, respectively); NLR, CLR, NAR, CAR, MII-1 and MII-2 (respectively p=0.005, p<0.001, p<0.001, p<0.001, p=0.001 and p<0.001) affected 28-day mortality rate. Indexes that statistically significantly increased both 14-day and 28-day mortality rates independently of other variables were CLR, NAR, CAR, MII-1 and MII-2.Conclusion: High values in inflammatory indexes, including C-reactive protein and albumin increase the risk of 14-day and 28-day mortality rates in palliative care non-malignant patients.","PeriodicalId":94055,"journal":{"name":"International journal of palliative nursing","volume":"30 7","pages":"404-412"},"PeriodicalIF":0.0,"publicationDate":"2024-07-02","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141725409","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Using telehealth for people at the end of life with chronic illness in Australia. 在澳大利亚，为生命末期的慢性病患者使用远程医疗。

International journal of palliative nursing Pub Date : 2024-07-02 DOI: 10.12968/ijpn.2024.30.7.398

Margaret O'Connor, Tim Moore, Yaping Zhong

{"title":"Using telehealth for people at the end of life with chronic illness in Australia.","authors":"Margaret O'Connor, Tim Moore, Yaping Zhong","doi":"10.12968/ijpn.2024.30.7.398","DOIUrl":"https://doi.org/10.12968/ijpn.2024.30.7.398","url":null,"abstract":"Background: Traditional models of palliative care have been tested by the challenges of caring for increasing numbers of people at the end stages of a chronic non-malignant illness. The COVID-19 pandemic and consequent reliance on telehealth services, has enabled the development of creative models of care.Aims: To improve home-based palliative care for people with chronic illness using telehealth, and this was demonstrated using quality-of-life measures.Methods: A total of 35 non-cancer referrals to a community palliative care service were recommended for the pilot project, with one specialist palliative care nurse as their contact. All were offered a telehealth service with a specially designed app to self-monitor their symptoms, a session on advance care directives, and self-rated quality-of-life measures using the RAND 36-Item Health Survey (Version 1.0), consisting of 36 items that cover nine domains. Statistical analysis was performed using SPSS software.Findings: Over the 21 months of the pilot study, 13 people chose to participate in the pilot. For participants, telehealth meant more control over their symptoms, fewer emergency presentations and appointment travel time was alleviated. Quality-of-life surveys highlighted physical impairments, which did not change over time.Conclusion: This pilot programme demonstrated an innovative approach to addressing the demands of people dying of chronic illness, with further work required to explore the place of telehealth consultations in the overall healthcare system.","PeriodicalId":94055,"journal":{"name":"International journal of palliative nursing","volume":"30 7","pages":"398-403"},"PeriodicalIF":0.0,"publicationDate":"2024-07-02","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141725411","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0