International journal of palliative nursing最新文献_第4页

Research Roundup. 研究综述。

International journal of palliative nursing Pub Date : 2025-03-02 DOI: 10.12968/ijpn.2025.0019

Laura Green

引用次数: 0

Web-based psychoeducational intervention for bereaved parents. 基于网络的丧亲父母心理教育干预。

International journal of palliative nursing Pub Date : 2025-03-02 DOI: 10.12968/ijpn.2023.0057

Daniel H Grossoehme, Sarah Friebert, Verna Hendricks-Ferguson, Rachel Jenkins, Gwendolyn Richner, Nancy Carst, Suzzanne Schmidt, Laural Duellman, Alexander M Schoemann, Nancy Dias

{"title":"Web-based psychoeducational intervention for bereaved parents.","authors":"Daniel H Grossoehme, Sarah Friebert, Verna Hendricks-Ferguson, Rachel Jenkins, Gwendolyn Richner, Nancy Carst, Suzzanne Schmidt, Laural Duellman, Alexander M Schoemann, Nancy Dias","doi":"10.12968/ijpn.2023.0057","DOIUrl":"10.12968/ijpn.2023.0057","url":null,"abstract":"Background: There is a lack of theoretically sound, scientifically-tested interventions for bereaved parents.Aims: To describe the acceptability and feasibility testing of an online grief-support-resource platform for bereaved parents.Methods: Participants included 20 parents of children who had died from a disease. The study involved a quasi-experimental treatment-only two-site design.Findings: The study was not able to recruit the intended number of participants. The website designed to support parents during grieving was found to be helpful by participants (43% enrolment rate), though not feasible. Lessons learned from this trial include: to use a well-defined eligibility criteria; follow a model for behavioural intervention development in a stepwise fashion, not exceed the individual stage's purpose; cautiously approach bereaved parents less than 6 months after a child's death; and comprehensive parent orientation to the grief-support-resource platform.Conclusion: Transparent sharing of lessons learned provide opportunities for investigators who are planning studies to learn from this team's experience.","PeriodicalId":94055,"journal":{"name":"International journal of palliative nursing","volume":"31 3","pages":"119-127"},"PeriodicalIF":0.0,"publicationDate":"2025-03-02","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143712677","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Global equality, complicated systems and assisted death in palliative care. 全球平等，复杂的系统和临终关怀中的协助死亡。

International journal of palliative nursing Pub Date : 2025-02-02 DOI: 10.12968/ijpn.2025.31.2.55

Kusum Kumari, Samadhi Rajapaksa

引用次数: 0

Synopses of a selection of recently published research articles of relevance to palliative care. 最近发表的与姑息治疗相关的研究文章的摘要。

International journal of palliative nursing Pub Date : 2025-02-02 DOI: 10.12968/ijpn.2025.31.2.100

Laura Green

引用次数: 0

Assessment of nurses' approaches to palliative and end-of-life care in the intensive care and high-dependency unit. 评估护士在重症监护和高依赖单位的姑息治疗和临终关怀方法。

International journal of palliative nursing Pub Date : 2025-02-02 DOI: 10.12968/ijpn.2025.31.2.90

Anastasios Tzenalis, Vasdeki Maria, George Kipourgos, Angelikh Gkotsi, Albani Eleni

{"title":"Assessment of nurses' approaches to palliative and end-of-life care in the intensive care and high-dependency unit.","authors":"Anastasios Tzenalis, Vasdeki Maria, George Kipourgos, Angelikh Gkotsi, Albani Eleni","doi":"10.12968/ijpn.2025.31.2.90","DOIUrl":"10.12968/ijpn.2025.31.2.90","url":null,"abstract":"Background: Palliative care provision is a serious challenge for nursing staff as it involves end-of-life care decisions, as well as a very close relationship with the grief and pain of the patient and their relatives. Their beliefs and attitudes regarding palliative care affect the quality of care, and can potentially influence whether a nurse experiences burnout in their career.Aims: To investigate the attitudes and beliefs of nursing staff about palliative care and correlation with various demographic factors.Methods: The study used a cross-sectional design and included nurses and nursing assistants who worked at Intensive Care Units and High Dependency Units. The authors assessed the attitudes on palliative care using the Frommelt Attitudes Toward Care of the Dying Scale (FATCOD) scale.Findings: A total of 150 nurses/nursing assistants. Their satisfaction with care and the months since the patient's initial diagnosis were positively associated with a more positive quality of life. Participants' beliefs about end-of-life care are positively and sometimes negatively influenced by demographic factors, such as their gender and previous work experience.Conclusion: The findings of the study may prove valuable in understanding the challenges faced by nurses caring for patients in the final stretch of the patient's life and may be the starting basis for initiating educational programmes on palliative care.","PeriodicalId":94055,"journal":{"name":"International journal of palliative nursing","volume":"31 2","pages":"90-98"},"PeriodicalIF":0.0,"publicationDate":"2025-02-02","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143451208","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Decisions in end-of-life care: perspectives from family caregivers. 临终关怀中的决定：来自家庭照顾者的观点。

International journal of palliative nursing Pub Date : 2025-02-02 DOI: 10.12968/ijpn.2025.31.2.81

Elham H Othman, Mohammad Alosta, Huda Atiyeh, Inaam Abdallah Khalaf, Ruqayya Zeilani

{"title":"Decisions in end-of-life care: perspectives from family caregivers.","authors":"Elham H Othman, Mohammad Alosta, Huda Atiyeh, Inaam Abdallah Khalaf, Ruqayya Zeilani","doi":"10.12968/ijpn.2025.31.2.81","DOIUrl":"10.12968/ijpn.2025.31.2.81","url":null,"abstract":"Background: Making healthcare decisions on behalf of loved ones can be highly stressful for family members to act as surrogate decision makers, especially when decisions are relevant to terminal care.Aim: To understand the challenges that caregivers face when making decisions for family members at the end of life.Methods: A descriptive phenomenological approach using semi-structured interviews with seven family caregivers recruited from two palliative care institutions in Amman.Results: Family caregivers mentioned several reasons to avoid participating in decisions near their relative's end-of-life, such as holding on to hope that their family member would recover and fearing loss. Others expressed that they felt their relationship to the patient impaired their ability to make reliable judgments and they found it hard to know what the right decisions were. They were worried about being held responsible for the result of decisions and were concerned about felling guilty.Conclusion: To conclude, caregivers do not feel prepared to make decisions about their relative's care and feel that they are too emotional and attached to the patient, or are afraid of the consequences of their decisions.","PeriodicalId":94055,"journal":{"name":"International journal of palliative nursing","volume":"31 2","pages":"81-88"},"PeriodicalIF":0.0,"publicationDate":"2025-02-02","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143451210","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

A modified systematic review of the impact of cultural beliefs on the acceptability and accessibility of adult palliative care in Tanzania. 对坦桑尼亚成人姑息治疗的可接受性和可及性的文化信仰影响的修改系统审查。

International journal of palliative nursing Pub Date : 2025-02-02 DOI: 10.12968/ijpn.2025.31.2.68

Amelia Breese, Maria Clark, Lesley Halliday

{"title":"A modified systematic review of the impact of cultural beliefs on the acceptability and accessibility of adult palliative care in Tanzania.","authors":"Amelia Breese, Maria Clark, Lesley Halliday","doi":"10.12968/ijpn.2025.31.2.68","DOIUrl":"10.12968/ijpn.2025.31.2.68","url":null,"abstract":"Background: Palliative care (PC) is recognised by the United Nations as a crucial element of universal health coverage. This article explores the cultural beliefs around the acceptability and accessibility of PC in Tanzania, East Africa.Aim: To provide insight into barriers for the provision of culturally safe PC in this region.Method: Qualitative studies researching adult perspectives on PC in Tanzania between 2010 and 2022 were critically appraised.Findings: Of 153 studies identified in the initial search, seven met the inclusion criteria. Four key themes were identified: acceptability of PC for recipients; acceptability of PC for providers; accessibility of PC for recipients and accessibility of PC for providers.Conclusion: Cultural beliefs around the acceptability of PC included shared values for individuals at the end of life and challenges around breaking bad news. Barriers to the accessibility of PC included training opportunities and opioid availability. Further research prioritising 'cultural safety' is necessary to improve PC provision in Tanzania.","PeriodicalId":94055,"journal":{"name":"International journal of palliative nursing","volume":"31 2","pages":"68-80"},"PeriodicalIF":0.0,"publicationDate":"2025-02-02","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143451207","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Exploring the viability of telehealth integration into specialised paediatric palliative care. 探索将远程医疗纳入儿科专科姑息治疗的可行性。

International journal of palliative nursing Pub Date : 2025-02-02 DOI: 10.12968/ijpn.2025.31.2.58

Rebecca Toenne, Ursula Neuhaus, Maike Höcker, Annika Koch, Anke Menzel, Dirk Scharfe, Julia Geffron, Felix Reschke

{"title":"Exploring the viability of telehealth integration into specialised paediatric palliative care.","authors":"Rebecca Toenne, Ursula Neuhaus, Maike Höcker, Annika Koch, Anke Menzel, Dirk Scharfe, Julia Geffron, Felix Reschke","doi":"10.12968/ijpn.2025.31.2.58","DOIUrl":"10.12968/ijpn.2025.31.2.58","url":null,"abstract":"Background: Specialised outpatient paediatric palliative care (SOPPC) is vital for young people with life-limiting conditions and telehealth integration might improve this care.Aim: Evaluate the acceptance and challenges of implementing teleconsultations among SOPPC healthcare professionals.Methods: A questionnaire, tailored to various professions in SOPPC, was developed. After pilot testing, it was distributed to all healthcare professionals in SOPPC in the county of Lower Saxony, Northern Germany. Statistical analyses, using descriptive methods, ensured the reliability of the findings.Findings: The survey involved 96 participants from SOPPC teams. Teleconsultations were perceived as time-saving (physicians (80%), nursing (68%), psychosocial varied), facilitating patient-centred discussions (physicians (87%), nursing staff (72%), psychosocial had varied responses) and maintaining intensive contact during restrictions (85% agreement). Improved team communication (91%) and patient-family communication (physicians (80%), nursing (68%), psychosocial (62%) were perceived benefits. Concerns included language barriers (84%) and technical readiness (80%). While physicians and nursing professionals saw telehealth enhancing patient safety (64-95%), psychosocial professionals were more skeptical (38-62%).Conclusion: This study highlights telehealth's potential in SOPPC, stressing the need for tailored strategies. While nursing staff and physicians generally accept telehealth, psychosocial professionals express reservations. Overcoming barriers like language and technical readiness is crucial for maximising telehealth benefits.","PeriodicalId":94055,"journal":{"name":"International journal of palliative nursing","volume":"31 2","pages":"58-67"},"PeriodicalIF":0.0,"publicationDate":"2025-02-02","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143451212","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

End of life and the holiday period. 生命结束，假期来临。

International journal of palliative nursing Pub Date : 2025-01-02 DOI: 10.12968/ijpn.2025.31.1.3

Bridget Johnston

引用次数: 0

Creative pathways to comfort: the transformative role of art therapy in palliative and hospice care. 舒适的创造性途径：艺术治疗在姑息治疗和临终关怀中的变革作用。

International journal of palliative nursing Pub Date : 2025-01-02 DOI: 10.12968/ijpn.2025.31.1.18

Maria Catherine I Alvarez, Whindie Clemente, Ronald Joseph A Rillo, Roison Andro Narvaez

{"title":"Creative pathways to comfort: the transformative role of art therapy in palliative and hospice care.","authors":"Maria Catherine I Alvarez, Whindie Clemente, Ronald Joseph A Rillo, Roison Andro Narvaez","doi":"10.12968/ijpn.2025.31.1.18","DOIUrl":"10.12968/ijpn.2025.31.1.18","url":null,"abstract":"Background: Art therapy offers a creative outlet for patients in palliative and hospice care to express emotions, manage distress and enhance wellbeing by addressing physical, emotional and spiritual challenges.Aims: This review evaluates the effectiveness, challenges and outcomes of art therapy in improving the quality of life for patients in palliative and hospice care.Methods: An integrative review.Findings: The review of 27 studies identified four key themes: (1) the effects of art therapy on the quality of life of patients, (2) intervention and patient outcomes, (3) improved wellbeing through self-expression, and (4) challenges in care delivery. Art therapy significantly reduced emotional distress, including anxiety, depression and psychological fatigue, while alleviating physical symptoms, like pain and exhaustion. It fostered emotional expression, personal growth and coping skills, helping patients manage their conditions more effectively. Participants also reported enhanced self-awareness, stronger interpersonal connection and a greater sense of control over their lives, leading to improved emotional and physical wellbeing.Conclusion: Art therapy provides significant benefits by alleviating emotional and physical distress and enhancing wellbeing. Integrating art therapy into palliative and hospice care supports holistic, patient-centered care, though further research is needed to address access barriers and ensure consistent delivery.","PeriodicalId":94055,"journal":{"name":"International journal of palliative nursing","volume":"31 1","pages":"18-28"},"PeriodicalIF":0.0,"publicationDate":"2025-01-02","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143034884","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0