{"title":"A qualitative study on burnout and coping in palliative nurses.","authors":"Laurence Tan, Lim Siao Ee, Toh Hui Jin","doi":"10.12968/ijpn.2024.30.12.654","DOIUrl":"https://doi.org/10.12968/ijpn.2024.30.12.654","url":null,"abstract":"<p><strong>Background: </strong>With burnout rates highly prevalent in palliative care nurses, it is important to have a holistic understanding of the causes of burnout and strategies both to prevent burnout and to cope with burnout.</p><p><strong>Aim: </strong>To understand the causes of burnout and strategies used to prevent and cope with burnout in palliative care nurses. This would allow the implementation of strategies on a personal level and organisational level to mitigate the effects of burnout.</p><p><strong>Methods: </strong>A thematic analysis to explore palliative care nurses' experiences and their interpretations. In total, 11 in-depth interviews and one focus group discussion with 19 nurses were conducted. The study participants were recruited from three palliative care units within a health cluster in Singapore and had at least 1 year of experience working in palliative care.</p><p><strong>Results: </strong>Five themes were identified: (a) description of burnout and its attributes; (b) factors that contribute to burnout; (c) triggers that initiate burnout; (d) coping with burnout; and (e) resilience to burnout. The nurses were competent in recognising signs of burnout and understood the use of coping strategies to manage burnout. They were also able to develop resilience to burnout through meaning-making and personal experiences.</p><p><strong>Significance of results: </strong>Helping palliative nurses find a deep purpose in their work builds resilience. Managers, organisation leaders, researchers and peers should look into ways to increase resilience in this group of nurses.</p>","PeriodicalId":94055,"journal":{"name":"International journal of palliative nursing","volume":"30 12","pages":"654-662"},"PeriodicalIF":0.0,"publicationDate":"2024-12-02","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142840364","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
José Tubal Pérez-Pérez, Juan Manuel Vázquez-Sánchez, Irene Martín-Romero, Iñigo de Noriega
{"title":"Nurses' knowledge of paediatric palliative care in a children's hospital.","authors":"José Tubal Pérez-Pérez, Juan Manuel Vázquez-Sánchez, Irene Martín-Romero, Iñigo de Noriega","doi":"10.12968/ijpn.2024.30.12.646","DOIUrl":"https://doi.org/10.12968/ijpn.2024.30.12.646","url":null,"abstract":"<p><strong>Background: </strong>Effective training of health professionals is essential to end-of-life care.</p><p><strong>Aims: </strong>To explore the level of knowledge on paediatric palliative care (PPC) of nurses in a children's monographic hospital.</p><p><strong>Methods: </strong>Cross-sectional observational analytical study. A sample of 53 nurses were selected. The translated and validated Spanish version of the Palliative Care Quiz for Nurses was used.</p><p><strong>Findings: </strong>Statistically significant differences (Mann-Whitney U; p=0.0346) were found between the knowledge of nurses in non-PPC-specific wards and nurses working in PPC, with the latter having a higher level of training in PPC (Chi-square; p=0.042).</p><p><strong>Conclusion: </strong>Professional experience with children with palliative needs and training seems to be related to increased knowledge of palliative care.</p>","PeriodicalId":94055,"journal":{"name":"International journal of palliative nursing","volume":"30 12","pages":"646-652"},"PeriodicalIF":0.0,"publicationDate":"2024-12-02","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142840516","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"Creutzfeldt-Jakob disease: a single institution case series.","authors":"Eswaran Waran, Danielle Bach, Jo-Anne Amos","doi":"10.12968/ijpn.2024.30.12.630","DOIUrl":"https://doi.org/10.12968/ijpn.2024.30.12.630","url":null,"abstract":"<p><p>Creutzfeldt-Jakob disease (CJD) is a rare neurodegenerative condition. This report presents the largest published case series on the condition. The palliative care symptom burden and management of these patients is considered. Early advanced care planning and goals of care discussions are necessary.</p>","PeriodicalId":94055,"journal":{"name":"International journal of palliative nursing","volume":"30 12","pages":"630-634"},"PeriodicalIF":0.0,"publicationDate":"2024-12-02","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142840514","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"Synopses of a selection of recently published research articles of relevance to palliative care.","authors":"Laura Green","doi":"10.12968/ijpn.2024.30.12.672","DOIUrl":"https://doi.org/10.12968/ijpn.2024.30.12.672","url":null,"abstract":"","PeriodicalId":94055,"journal":{"name":"International journal of palliative nursing","volume":"30 12","pages":"672-674"},"PeriodicalIF":0.0,"publicationDate":"2024-12-02","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142840587","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Erna Rochmawati, Fany Riska Berliana, Helen Octavira Wisdaningrum, Anindita Paramastri
{"title":"Patient-reported hope and its predicting factors in malignant and non-malignant chronic illness: a cross-sectional study.","authors":"Erna Rochmawati, Fany Riska Berliana, Helen Octavira Wisdaningrum, Anindita Paramastri","doi":"10.12968/ijpn.2024.30.12.664","DOIUrl":"https://doi.org/10.12968/ijpn.2024.30.12.664","url":null,"abstract":"<p><strong>Background: </strong>Hope is important to patients with a life-limiting illness. Identifying factors that influence hope is important. However, little research has been undertaken to understand patient-reported hope in malignant and non-malignant chronic disease.</p><p><strong>Aim: </strong>This research aimed to determine hope level and its influencing factors in patients with malignant and non-malignant illness in advanced stages.</p><p><strong>Methods: </strong>A total of 155 patients with malignant and non-malignant illness participated in this cross-sectional study. Data was collected on sociodemographic, disease characteristics and measures of hope. Hope was assessed using the validated Herth Hope Index (HHI). Multiple linear regression models were used to determine associations of identified factors with the patient's level of hope. This paper adhered to the Strengthening the Reporting of Observational Studies in Epidemiology (STROBE) guidelines.</p><p><strong>Findings: </strong>A total of 155 patients were enrolled (mean age=54.4±10.97 years, 60% female and 54.8.% were diagnosed with chronic kidney disease and the mean duration of illness was 35.61±3.192 months. Patients had an average HHI score of 35.52 (range 26-46), were in the medium range of the HHI as specified by Herth to be 24-35. Patients who were younger and had completed higher education had a higher level of hope. These variables explained a total of 11.6% of the variation in hope.</p><p><strong>Conclusions: </strong>The level of hope was not optimal, and still needs to be improved further. Thus, nurses and other healthcare professionals should pay special attention to older patients, patients with a low-education level and support them to have a positive attitude.</p>","PeriodicalId":94055,"journal":{"name":"International journal of palliative nursing","volume":"30 12","pages":"664-670"},"PeriodicalIF":0.0,"publicationDate":"2024-12-02","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142840586","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"Assisted dying and the future of palliative care.","authors":"Daniel Kelly","doi":"10.12968/ijpn.2024.30.12.627","DOIUrl":"https://doi.org/10.12968/ijpn.2024.30.12.627","url":null,"abstract":"","PeriodicalId":94055,"journal":{"name":"International journal of palliative nursing","volume":"30 12","pages":"627-628"},"PeriodicalIF":0.0,"publicationDate":"2024-12-02","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142840367","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Nadia Sedri, Mohammad Ali Zakeri, Hakimeh Sheykhasadi, Ala Shamsi, Hosna Akbari, Mostafa Hejazi, Asghar Tavan
{"title":"The relationship between the quality of oncology nursing care and the resiliency and hope of patients with cancer: a cross-sectional study.","authors":"Nadia Sedri, Mohammad Ali Zakeri, Hakimeh Sheykhasadi, Ala Shamsi, Hosna Akbari, Mostafa Hejazi, Asghar Tavan","doi":"10.12968/ijpn.2024.30.12.636","DOIUrl":"https://doi.org/10.12968/ijpn.2024.30.12.636","url":null,"abstract":"<p><strong>Background: </strong>Patients with cancer require emotional support in addition to specialised medical treatments for their physical ailments. The quality of nursing care, resilience and hope can influence a person's cancer trajectory, and understanding these factors and their relationship can be influential in improving the process for these patients.</p><p><strong>Aim: </strong>This study examined the relationship between the quality of oncology nursing care and resilience and hope in patients with cancer.</p><p><strong>Methods: </strong>The present study is a descriptive analytics study conducted on 160 patients with cancer from April-August 2023. The data collection tools included four questionnaires: a demographic information questionnaire, the Connor-Davidson Resilience Scale (CD-RSC), the Snyder Hope Scale, and the Oncology Nursing Care Quality Scale. The data were analysed using SPSS version 22 statistical software.</p><p><strong>Results: </strong>In examining the relationship between demographic 'variables' and 'resilience', marital status and place of residence had statistically significant correlations (P<0.05). Place of residence, education level, job and first cancer treatment (P=0.004) had statistically significant correlations with hope (P<0.05). There was no statistically significant relationship between the quality of oncology nursing (QON) and its domain with two variables: 'resilience' (P=0.76) and 'hope' (P=0.37). However, a statistically significant relationship existed between the variables 'resilience' and 'hope' (P<0.001). The linear regression model results showed that among the entered demographic variables, only the variable 'hope' predicted resilience (P<0.001; R=27%). Additionally, the 'resilience' variables (P<0.001) and the 'first cancer treated' variable (P=0.001; R=34%) were predictors of 'hope'.</p><p><strong>Conclusion: </strong>Given the interrelationship between 'resilience' and 'hope' for patients with cancer, it is necessary to focus on the factors that impact these qualities. In addition, paying attention to the concept of resilience can improve the level of hope in patients with cancer. Based on the results, it is recommended that interventions to increase QON in patients with cancer be planned and implemented.</p>","PeriodicalId":94055,"journal":{"name":"International journal of palliative nursing","volume":"30 12","pages":"636-645"},"PeriodicalIF":0.0,"publicationDate":"2024-12-02","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142840632","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Jackie Robinson, Deborah Raphael, Susan Waterworth, Merryn Gott
{"title":"Family caregivers' experiences of accessing information from healthcare professionals in heart failure.","authors":"Jackie Robinson, Deborah Raphael, Susan Waterworth, Merryn Gott","doi":"10.12968/ijpn.2024.30.11.600","DOIUrl":"https://doi.org/10.12968/ijpn.2024.30.11.600","url":null,"abstract":"<p><strong>Background: </strong>With growing reliance on family caregivers to support people with advanced heart failure and to help them die at home, family caregivers need the relevant information to support this. However, evidence has shown that families continue to have deficits in their knowledge of heart failure and what to expect as the disease advances. This can lead to a high level of uncertainty and stress for family.</p><p><strong>Aim: </strong>To explore family caregivers experiences of accessing information from healthcare professionals when caring for someone with heart failure.</p><p><strong>Method: </strong>A qualitative exploratory study design was adopted using a critical realist approach. The study was conducted in one large urban area of Aotearoa New Zealand. Participants were family caregivers of people who had died between April and November 2019. Data was collected using semi-structured telephone interviews.</p><p><strong>Results: </strong>A total of 15 family caregivers participated. A thematic analysis identified three themes related to accessing information from healthcare professionals: 1) gaining access to healthcare professionals 2) developing, understanding and translating information and 3) receiving information in a timely manner.</p><p><strong>Conclusions: </strong>Findings highlight the difficulites that family carers of people with heart failure experience in accessing, receiving and understanding the information they require. Further research is needed on supporting healthcare professionals to develop skills in appearing accessible within an environment of 'busyness'. Furthermore, investigating strategies which will enable healthcare settings to be more responsive and flexible to the needs of family caregivers is needed.</p>","PeriodicalId":94055,"journal":{"name":"International journal of palliative nursing","volume":"30 11","pages":"600-610"},"PeriodicalIF":0.0,"publicationDate":"2024-11-02","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142776003","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"The place and importance of palliative care in the fight against COVID-19.","authors":"Hicran Yildiz, Serkan Budak","doi":"10.12968/ijpn.2024.30.11.592","DOIUrl":"10.12968/ijpn.2024.30.11.592","url":null,"abstract":"<p><strong>Background: </strong>In a pandemic, existing palliative care units may be inadequate and palliative care may need to be provided in other hospital units.</p><p><strong>Aims: </strong>To review and improve the palliative care approach applied during a pandemic.</p><p><strong>Methods: </strong>Studies published between 2019 and 2020 were examined using the keywords 'fighting against COVID-19 'and 'organisation' in the PubMed, Ebsco, ScienceDirect and Web of Science databases.</p><p><strong>Findings: </strong>It was determined that the US Mass Critical Care Task Force created a framework for organising palliative care in the fight against the pandemic. It was determined that institutions and organisations implemented practices aligned with this framework during the pandemic. However, due to the evaluation, this framework was limited, and its scope should be expanded.</p><p><strong>Conclusions: </strong>The recommendations in this review and indicated in italics will improve the palliative care approach to be applied during the pandemic.</p>","PeriodicalId":94055,"journal":{"name":"International journal of palliative nursing","volume":"30 11","pages":"592-598"},"PeriodicalIF":0.0,"publicationDate":"2024-11-02","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142776007","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Maria Claire M Bautista, Nicca A Indicar, Rodney F Suarez, Roison Andro Narvaez
{"title":"Nightingale by the death bed: A review on nurses' role and experiences in death and dying.","authors":"Maria Claire M Bautista, Nicca A Indicar, Rodney F Suarez, Roison Andro Narvaez","doi":"10.12968/ijpn.2024.30.11.578","DOIUrl":"https://doi.org/10.12968/ijpn.2024.30.11.578","url":null,"abstract":"<p><strong>Background: </strong>As nurses care for patients at the end of life, they face situations that affect not only their jobs, but other aspects of their lives. However, there is very little research on the psychological impact of caring for terminally ill patients, the challenges that nurses face and their specific coping strategies have not been the subject of much research.</p><p><strong>Aim: </strong>To synthesise the psychological behaviour of nurses working with terminally ill patients and identify their concept of death after caring for terminally ill patients.</p><p><strong>Method: </strong>An integrative review.</p><p><strong>Results: </strong>A total of 17 articles were deemed eligible, wherein 6 themes were generated: (1) the highs and lows of terminal illness care, (2) challenges faced by nurses caring for the terminally ill, (3) the role of nurses in terminal illness care, (4) coping with the effects, (5) coming face to face with one's mortality, and (6) continuing education in terminal illness care. Coping with the effects has two subthemes: (a) coping strategies used by nurses and (b) the role of professional relationships in coping.</p><p><strong>Conclusion: </strong>Nurses need to have a sound mind and body in order for them to be effective when caring for people at the end of life.</p>","PeriodicalId":94055,"journal":{"name":"International journal of palliative nursing","volume":"30 11","pages":"578-590"},"PeriodicalIF":0.0,"publicationDate":"2024-11-02","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142776004","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}