Siobhan P Aaron, Katherine Supiano, Ronit Elk, Beverly Wallace
{"title":"Towards a framework for a culturally centered evidence based prolonged grief group therapy intervention.","authors":"Siobhan P Aaron, Katherine Supiano, Ronit Elk, Beverly Wallace","doi":"10.12968/ijpn.2024.0027","DOIUrl":"https://doi.org/10.12968/ijpn.2024.0027","url":null,"abstract":"<p><strong>Background: </strong>Black Americans are twice as likely to die from the leading causes of death in the US due to economic and social disparities, which exacerbate the emotional and social burdens of bereavement and increase the risk of prolonged grief (PG). Untreated, PG leads to depression, self-harm risk, deteriorating health, elevated healthcare use and mortality risk. Studies reveal a reluctance among Black Americans to seek bereavement support, compounded by limited care access, mental health stigma, biased providers and cultural gaps.</p><p><strong>Aims: </strong>To evaluate the acceptability and efficacy of a culturally adapted Prolonged Grief Group Therapy intervention for Black Americans.</p><p><strong>Methods: </strong>This protocol outlines a study employing a pilot three-arm quasi-experimental design. The study aims to explore cultural, systemic and psychological factors shaping grief in this population and refine the intervention to enhance its relevance and effectiveness.</p><p><strong>Conclusions: </strong>By addressing this significant gap, the research seeks to provide evidence for an accessible and culturally sensitive therapeutic approach, ultimately improving emotional wellbeing and mitigating the adverse impacts of prolonged grief in this underrepresented population.</p>","PeriodicalId":94055,"journal":{"name":"International journal of palliative nursing","volume":"31 3","pages":"109-118"},"PeriodicalIF":0.0,"publicationDate":"2025-03-02","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143712676","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"Palliative care interventions used by village health volunteers in Thailand.","authors":"Shamara Jordan, Kittikorn Nilmanat, Yanique Duffus, Cathy Campbell","doi":"10.12968/ijpn.2024.0019","DOIUrl":"https://doi.org/10.12968/ijpn.2024.0019","url":null,"abstract":"<p><strong>Background: </strong>Palliative care (PC) is described by the World Health Organization (WHO) as an interprofessional approach that improves the quality of life of patients (adults and children) and their families who are facing problems associated with life-threatening illness. One strategy for increasing access to PC services is to integrate village health volunteers (VHVs) into community-based palliative care teams in Thailand.</p><p><strong>Aims: </strong>The study had two specific aims: (1) to describe the cultural context of death and dying in a southern province in Thailand, and (2) to identify palliative care interventions used by VHV to promote dying in a southern province in Thailand.</p><p><strong>Methods: </strong>The study was conducted using a qualitative, explorative descriptive design. Descriptive statistics were used to describe the sample's characteristics, such as means for continuous variables and frequencies for categorical variables. The transcripts from the interviews and field notes were the data sources for analysis. A 6-step thematic analysis method was used in this study to analyse transcripts from the focus group discussion (FGD) interviews and the field notes. A total of 77 VHV participants from two community hospitals and one rural health promoting hospital participated in the FGD. Of the participants, 96% were women. The mean age was 47.13 years, and the mean number of years spent in their current position was 11.24 years.</p><p><strong>Results: </strong>Five major themes emerged, the importance of the Thai cultural context, VHVs are the point of connection, basic physical care, supporting spiritual care and providing emotional support.</p><p><strong>Conclusion: </strong>Future studies should explore how to integrate the findings of this study into culturally-tailored palliative care programmes and to provide training for VHV on effective interventions to provide emotional and spiritual support. Having the VHV on the interprofessional team could be a way to ensure compassionate end-of-life care for palliative care patients and their circles of support.</p>","PeriodicalId":94055,"journal":{"name":"International journal of palliative nursing","volume":"31 3","pages":"128-140"},"PeriodicalIF":0.0,"publicationDate":"2025-03-02","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143712674","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Jessica L Peck, Renee Flippo, Tanya Sudia, Libby E Rosonet, Madhuri Maganthi, Amy Siew, Sarah Ruby Johnson, Shelby L Garner
{"title":"Neonatal and paediatric palliative care interdisciplinary education in India.","authors":"Jessica L Peck, Renee Flippo, Tanya Sudia, Libby E Rosonet, Madhuri Maganthi, Amy Siew, Sarah Ruby Johnson, Shelby L Garner","doi":"10.12968/ijpn.2025.0005","DOIUrl":"https://doi.org/10.12968/ijpn.2025.0005","url":null,"abstract":"<p><strong>Background: </strong>Newborns and children with chronic and life-limiting illnesses and their families benefit from family-centered interdisciplinary palliative care, PC). The value of PC for patients and their families, coupled with health inequities, especially in low- and middle-income countries, LMICs) and limited resource settings, make neonatal and paediatric palliative care, NPPC) a worldwide public health necessity.</p><p><strong>Aims: </strong>To explore the evidence concerning an interprofessional healthcare provider adoption of culturally responsive policies, procedures and clinical protocols in India for PC following an education programme.</p><p><strong>Methods: </strong>An integrated literature review including electronic data search of CINAHL, PubMed and Embase.</p><p><strong>Findings: </strong>Health professional audiences express high interest in education regarding effective PC delivery. However, there is a lack of specificity and inclusion of neonatal and paediatric populations when addressing PC knowledge and care delivery in India.</p><p><strong>Conclusion: </strong>Although interest in education on PC delivery is high, additional research and resources are needed to adequately equip healthcare providers to develop evidence-based NPPC education programmes that effectively guide PC programme construction and care delivery.</p>","PeriodicalId":94055,"journal":{"name":"International journal of palliative nursing","volume":"31 3","pages":"141-151"},"PeriodicalIF":0.0,"publicationDate":"2025-03-02","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143712673","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"Research Roundup.","authors":"Laura Green","doi":"10.12968/ijpn.2025.0019","DOIUrl":"https://doi.org/10.12968/ijpn.2025.0019","url":null,"abstract":"<p><p>Synopses of a selection of recently published research articles of relevance to palliative care.</p>","PeriodicalId":94055,"journal":{"name":"International journal of palliative nursing","volume":"31 3","pages":"152-154"},"PeriodicalIF":0.0,"publicationDate":"2025-03-02","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143712675","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Daniel H Grossoehme, Sarah Friebert, Verna Hendricks-Ferguson, Rachel Jenkins, Gwendolyn Richner, Nancy Carst, Suzzanne Schmidt, Laural Duellman, Alexander M Schoemann, Nancy Dias
{"title":"Web-based psychoeducational intervention for bereaved parents.","authors":"Daniel H Grossoehme, Sarah Friebert, Verna Hendricks-Ferguson, Rachel Jenkins, Gwendolyn Richner, Nancy Carst, Suzzanne Schmidt, Laural Duellman, Alexander M Schoemann, Nancy Dias","doi":"10.12968/ijpn.2023.0057","DOIUrl":"https://doi.org/10.12968/ijpn.2023.0057","url":null,"abstract":"<p><strong>Background: </strong>There is a lack of theoretically sound, scientifically-tested interventions for bereaved parents.</p><p><strong>Aims: </strong>To describe the acceptability and feasibility testing of an online grief-support-resource platform for bereaved parents.</p><p><strong>Methods: </strong>Participants included 20 parents of children who had died from a disease. The study involved a quasi-experimental treatment-only two-site design.</p><p><strong>Findings: </strong>The study was not able to recruit the intended number of participants. The website designed to support parents during grieving was found to be helpful by participants (43% enrolment rate), though not feasible. Lessons learned from this trial include: to use a well-defined eligibility criteria; follow a model for behavioural intervention development in a stepwise fashion, not exceed the individual stage's purpose; cautiously approach bereaved parents less than 6 months after a child's death; and comprehensive parent orientation to the grief-support-resource platform.</p><p><strong>Conclusion: </strong>Transparent sharing of lessons learned provide opportunities for investigators who are planning studies to learn from this team's experience.</p>","PeriodicalId":94055,"journal":{"name":"International journal of palliative nursing","volume":"31 3","pages":"119-127"},"PeriodicalIF":0.0,"publicationDate":"2025-03-02","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143712677","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"Global equality, complicated systems and assisted death in palliative care.","authors":"Kusum Kumari, Samadhi Rajapaksa","doi":"10.12968/ijpn.2025.31.2.55","DOIUrl":"https://doi.org/10.12968/ijpn.2025.31.2.55","url":null,"abstract":"","PeriodicalId":94055,"journal":{"name":"International journal of palliative nursing","volume":"31 2","pages":"55-57"},"PeriodicalIF":0.0,"publicationDate":"2025-02-02","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143451213","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Anastasios Tzenalis, Vasdeki Maria, George Kipourgos, Angelikh Gkotsi, Albani Eleni
{"title":"Assessment of nurses' approaches to palliative and end-of-life care in the intensive care and high-dependency unit.","authors":"Anastasios Tzenalis, Vasdeki Maria, George Kipourgos, Angelikh Gkotsi, Albani Eleni","doi":"10.12968/ijpn.2025.31.2.90","DOIUrl":"https://doi.org/10.12968/ijpn.2025.31.2.90","url":null,"abstract":"<p><strong>Background: </strong>Palliative care provision is a serious challenge for nursing staff as it involves end-of-life care decisions, as well as a very close relationship with the grief and pain of the patient and their relatives. Their beliefs and attitudes regarding palliative care affect the quality of care, and can potentially influence whether a nurse experiences burnout in their career.</p><p><strong>Aims: </strong>To investigate the attitudes and beliefs of nursing staff about palliative care and correlation with various demographic factors.</p><p><strong>Methods: </strong>The study used a cross-sectional design and included nurses and nursing assistants who worked at Intensive Care Units and High Dependency Units. The authors assessed the attitudes on palliative care using the Frommelt Attitudes Toward Care of the Dying Scale (FATCOD) scale.</p><p><strong>Findings: </strong>A total of 150 nurses/nursing assistants. Their satisfaction with care and the months since the patient's initial diagnosis were positively associated with a more positive quality of life. Participants' beliefs about end-of-life care are positively and sometimes negatively influenced by demographic factors, such as their gender and previous work experience.</p><p><strong>Conclusion: </strong>The findings of the study may prove valuable in understanding the challenges faced by nurses caring for patients in the final stretch of the patient's life and may be the starting basis for initiating educational programmes on palliative care.</p>","PeriodicalId":94055,"journal":{"name":"International journal of palliative nursing","volume":"31 2","pages":"90-98"},"PeriodicalIF":0.0,"publicationDate":"2025-02-02","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143451208","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"Synopses of a selection of recently published research articles of relevance to palliative care.","authors":"Laura Green","doi":"10.12968/ijpn.2025.31.2.100","DOIUrl":"https://doi.org/10.12968/ijpn.2025.31.2.100","url":null,"abstract":"","PeriodicalId":94055,"journal":{"name":"International journal of palliative nursing","volume":"31 2","pages":"100-102"},"PeriodicalIF":0.0,"publicationDate":"2025-02-02","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143451215","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Elham H Othman, Mohammad Alosta, Huda Atiyeh, Inaam Abdallah Khalaf, Ruqayya Zeilani
{"title":"Decisions in end-of-life care: perspectives from family caregivers.","authors":"Elham H Othman, Mohammad Alosta, Huda Atiyeh, Inaam Abdallah Khalaf, Ruqayya Zeilani","doi":"10.12968/ijpn.2025.31.2.81","DOIUrl":"https://doi.org/10.12968/ijpn.2025.31.2.81","url":null,"abstract":"<p><strong>Background: </strong>Making healthcare decisions on behalf of loved ones can be highly stressful for family members to act as surrogate decision makers, especially when decisions are relevant to terminal care.</p><p><strong>Aim: </strong>To understand the challenges that caregivers face when making decisions for family members at the end of life.</p><p><strong>Methods: </strong>A descriptive phenomenological approach using semi-structured interviews with seven family caregivers recruited from two palliative care institutions in Amman.</p><p><strong>Results: </strong>Family caregivers mentioned several reasons to avoid participating in decisions near their relative's end-of-life, such as holding on to hope that their family member would recover and fearing loss. Others expressed that they felt their relationship to the patient impaired their ability to make reliable judgments and they found it hard to know what the right decisions were. They were worried about being held responsible for the result of decisions and were concerned about felling guilty.</p><p><strong>Conclusion: </strong>To conclude, caregivers do not feel prepared to make decisions about their relative's care and feel that they are too emotional and attached to the patient, or are afraid of the consequences of their decisions.</p>","PeriodicalId":94055,"journal":{"name":"International journal of palliative nursing","volume":"31 2","pages":"81-88"},"PeriodicalIF":0.0,"publicationDate":"2025-02-02","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143451210","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}