Daniel H Grossoehme, Sarah Friebert, Verna Hendricks-Ferguson, Rachel Jenkins, Gwendolyn Richner, Nancy Carst, Suzzanne Schmidt, Laural Duellman, Alexander M Schoemann, Nancy Dias
{"title":"基于网络的丧亲父母心理教育干预。","authors":"Daniel H Grossoehme, Sarah Friebert, Verna Hendricks-Ferguson, Rachel Jenkins, Gwendolyn Richner, Nancy Carst, Suzzanne Schmidt, Laural Duellman, Alexander M Schoemann, Nancy Dias","doi":"10.12968/ijpn.2023.0057","DOIUrl":null,"url":null,"abstract":"<p><strong>Background: </strong>There is a lack of theoretically sound, scientifically-tested interventions for bereaved parents.</p><p><strong>Aims: </strong>To describe the acceptability and feasibility testing of an online grief-support-resource platform for bereaved parents.</p><p><strong>Methods: </strong>Participants included 20 parents of children who had died from a disease. The study involved a quasi-experimental treatment-only two-site design.</p><p><strong>Findings: </strong>The study was not able to recruit the intended number of participants. The website designed to support parents during grieving was found to be helpful by participants (43% enrolment rate), though not feasible. Lessons learned from this trial include: to use a well-defined eligibility criteria; follow a model for behavioural intervention development in a stepwise fashion, not exceed the individual stage's purpose; cautiously approach bereaved parents less than 6 months after a child's death; and comprehensive parent orientation to the grief-support-resource platform.</p><p><strong>Conclusion: </strong>Transparent sharing of lessons learned provide opportunities for investigators who are planning studies to learn from this team's experience.</p>","PeriodicalId":94055,"journal":{"name":"International journal of palliative nursing","volume":"31 3","pages":"119-127"},"PeriodicalIF":0.0000,"publicationDate":"2025-03-02","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":"0","resultStr":"{\"title\":\"Web-based psychoeducational intervention for bereaved parents.\",\"authors\":\"Daniel H Grossoehme, Sarah Friebert, Verna Hendricks-Ferguson, Rachel Jenkins, Gwendolyn Richner, Nancy Carst, Suzzanne Schmidt, Laural Duellman, Alexander M Schoemann, Nancy Dias\",\"doi\":\"10.12968/ijpn.2023.0057\",\"DOIUrl\":null,\"url\":null,\"abstract\":\"<p><strong>Background: </strong>There is a lack of theoretically sound, scientifically-tested interventions for bereaved parents.</p><p><strong>Aims: </strong>To describe the acceptability and feasibility testing of an online grief-support-resource platform for bereaved parents.</p><p><strong>Methods: </strong>Participants included 20 parents of children who had died from a disease. The study involved a quasi-experimental treatment-only two-site design.</p><p><strong>Findings: </strong>The study was not able to recruit the intended number of participants. The website designed to support parents during grieving was found to be helpful by participants (43% enrolment rate), though not feasible. Lessons learned from this trial include: to use a well-defined eligibility criteria; follow a model for behavioural intervention development in a stepwise fashion, not exceed the individual stage's purpose; cautiously approach bereaved parents less than 6 months after a child's death; and comprehensive parent orientation to the grief-support-resource platform.</p><p><strong>Conclusion: </strong>Transparent sharing of lessons learned provide opportunities for investigators who are planning studies to learn from this team's experience.</p>\",\"PeriodicalId\":94055,\"journal\":{\"name\":\"International journal of palliative nursing\",\"volume\":\"31 3\",\"pages\":\"119-127\"},\"PeriodicalIF\":0.0000,\"publicationDate\":\"2025-03-02\",\"publicationTypes\":\"Journal Article\",\"fieldsOfStudy\":null,\"isOpenAccess\":false,\"openAccessPdf\":\"\",\"citationCount\":\"0\",\"resultStr\":null,\"platform\":\"Semanticscholar\",\"paperid\":null,\"PeriodicalName\":\"International journal of palliative nursing\",\"FirstCategoryId\":\"1085\",\"ListUrlMain\":\"https://doi.org/10.12968/ijpn.2023.0057\",\"RegionNum\":0,\"RegionCategory\":null,\"ArticlePicture\":[],\"TitleCN\":null,\"AbstractTextCN\":null,\"PMCID\":null,\"EPubDate\":\"\",\"PubModel\":\"\",\"JCR\":\"\",\"JCRName\":\"\",\"Score\":null,\"Total\":0}","platform":"Semanticscholar","paperid":null,"PeriodicalName":"International journal of palliative nursing","FirstCategoryId":"1085","ListUrlMain":"https://doi.org/10.12968/ijpn.2023.0057","RegionNum":0,"RegionCategory":null,"ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":null,"EPubDate":"","PubModel":"","JCR":"","JCRName":"","Score":null,"Total":0}
Web-based psychoeducational intervention for bereaved parents.
Background: There is a lack of theoretically sound, scientifically-tested interventions for bereaved parents.
Aims: To describe the acceptability and feasibility testing of an online grief-support-resource platform for bereaved parents.
Methods: Participants included 20 parents of children who had died from a disease. The study involved a quasi-experimental treatment-only two-site design.
Findings: The study was not able to recruit the intended number of participants. The website designed to support parents during grieving was found to be helpful by participants (43% enrolment rate), though not feasible. Lessons learned from this trial include: to use a well-defined eligibility criteria; follow a model for behavioural intervention development in a stepwise fashion, not exceed the individual stage's purpose; cautiously approach bereaved parents less than 6 months after a child's death; and comprehensive parent orientation to the grief-support-resource platform.
Conclusion: Transparent sharing of lessons learned provide opportunities for investigators who are planning studies to learn from this team's experience.