{"title":"Caring ability and its related factors in the family caregivers of patients with cancer.","authors":"Maryam Rassouli, Samira Beiranvand, Maryam Karami, Azam Eshaghian Dorcheh, Hadis Ashrafizadeh","doi":"10.12968/ijpn.2023.29.9.422","DOIUrl":"10.12968/ijpn.2023.29.9.422","url":null,"abstract":"<p><strong>Background: </strong>Caregivers of cancer patients experience a variety of challenges caused by the prolonged burden of care. Many of these caregivers do not have the necessary knowledge, skills and caring ability to fulfil their caring role. Therefore, healthcare providers should support them in learning to provide high-quality care. Evaluating caregivers' ability will be the first step of this supportive programme.</p><p><strong>Aim: </strong>The aim of this study was to determine the caring ability of the caregivers of cancer patients and its related factors.</p><p><strong>Methods: </strong>This descriptive correlational study was performed with 271 caregivers of cancer patients who were selected through convenience sampling conducted from July to December 2021 in selected hospitals in Tehran, the capital city of Iran. The data were collected using the caring ability of family caregivers of patients with cancer scale (CAFCPCS), which was developed by Nemati et al (2020). In addition, the stability reliability coefficient was calculated to be ICC=0.93. Data analysis was performed through Statistical Package for the Social Sciences (version 26), using descriptive and inferential statistics and correlation coefficient tests at a significance level of 0.05.</p><p><strong>Results: </strong>The mean score for the caring ability of the family caregivers of cancer patients in this study was 91.86±7.59. The mean total score of caring ability scale had a statistically significant correlation with the type of cancer and the duration of patient care (P-value=0.05).</p><p><strong>Conclusion: </strong>The results of the study demonstrated that the family caregivers of cancer patients do not have the necessary knowledge and awareness to perform their caring role effectively. Therefore, it is recommended to empower caregivers and use strategies to improve their trust, especially in caregivers who oversee patient care for a significant period of time.</p>","PeriodicalId":94055,"journal":{"name":"International journal of palliative nursing","volume":"29 9","pages":"422-432"},"PeriodicalIF":0.0,"publicationDate":"2023-09-02","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"41143352","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"Importance of palliative nursing in a critical healthcare world.","authors":"Bridget Johnston","doi":"10.12968/ijpn.2023.29.9.411","DOIUrl":"10.12968/ijpn.2023.29.9.411","url":null,"abstract":"","PeriodicalId":94055,"journal":{"name":"International journal of palliative nursing","volume":"29 9","pages":"411"},"PeriodicalIF":0.0,"publicationDate":"2023-09-02","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"41180735","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Johanna Saarinen, Kaisa Mishina, Anu Soikkeli-Jalonen, Hanne Konradsen, Elina Haavisto
{"title":"Participation in inpatient care from the perspective of family members of palliative care patients.","authors":"Johanna Saarinen, Kaisa Mishina, Anu Soikkeli-Jalonen, Hanne Konradsen, Elina Haavisto","doi":"10.12968/ijpn.2023.29.9.446","DOIUrl":"https://doi.org/10.12968/ijpn.2023.29.9.446","url":null,"abstract":"<p><strong>Background: </strong>The participation of family members in inpatient palliative care has been shown to be meaningful; it contributes to the wellbeing of the patient. Even so, little is known about the perspectives of family members regarding their participation in this type of care.</p><p><strong>Aim: </strong>The aim of this study was to describe participation in inpatient care from the perspective of family members of palliative care patients.</p><p><strong>Method: </strong>This study involved semi-structured individual interviews with family members (n=19) of patients receiving inpatient palliative care, as well as inductive thematic analysis.</p><p><strong>Findings: </strong>Four main themes describing the family members' perspectives of their participation in inpatient palliative care were identified: family members attending to everyday activities, importance of participation to family members, family members providing emotional support to patients and the role of family members in discussions and decision-making processes concerning patient care.</p><p><strong>Conclusion: </strong>Family members participate in inpatient palliative care in different ways. Participation was experienced as important to patients and family members, and some family members felt that participation may have supported their coping process.</p>","PeriodicalId":94055,"journal":{"name":"International journal of palliative nursing","volume":"29 9","pages":"446-454"},"PeriodicalIF":0.0,"publicationDate":"2023-09-02","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"41175983","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"Compassion in healthcare leadership and the reality of balancing it with effective and efficient service delivery at a time of crisis.","authors":"Steve Bass","doi":"10.12968/ijpn.2023.29.9.455","DOIUrl":"10.12968/ijpn.2023.29.9.455","url":null,"abstract":"","PeriodicalId":94055,"journal":{"name":"International journal of palliative nursing","volume":"29 9","pages":"455-458"},"PeriodicalIF":0.0,"publicationDate":"2023-09-02","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"41109342","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"A qualitative exploration of the spiritual wellbeing of women with advanced cervical cancer in Ghana.","authors":"Kafui Abra Hobenu, Florence Naab","doi":"10.12968/ijpn.2023.29.9.434","DOIUrl":"10.12968/ijpn.2023.29.9.434","url":null,"abstract":"<p><strong>Background: </strong>Spiritual wellbeing is one of the most important aspects of human health, alongside physical, psychological and social factors. Religiosity/spirituality can play a critical role in the lives of people experiencing life-threatening illnesses, such as cervical cancer. Most women with cervical cancer in Africa, including Ghana, are diagnosed at the advanced stage. These women lean on their spiritual connections for strength during their illness. Despite the fact that numerous studies have been conducted on the relevance of religiosity/spirituality in the experience of cancer in other jurisdictions, the same cannot be said about Ghana. The study aims to fill this gap in the literature.</p><p><strong>Aim: </strong>To explore the spiritual wellbeing of women diagnosed with advanced cervical cancer in Ghana.</p><p><strong>Method: </strong>A qualitative explorative design was employed, with purposive sampling used to recruit 15 women with advanced cervical cancer from a cancer treatment centre of a teaching hospital in Ghana. Individual face-to-face interviews, lasting between 45-90 minutes, were used to gather information. Interviews were audio taped with participants' consent. Data were analysed using thematic content analysis.</p><p><strong>Findings: </strong>The following sub-themes were identified within one overarching theme of the spiritual wellbeing of women with advanced cervical cancer: the meaning of illness and acceptance; a sense of hope and religiosity; uncertainty; and the will to live.</p><p><strong>Conclusion: </strong>Many participants believed they were bewitched, and the devil was responsible for their cervical cancer. Healthcare providers should adopt a multi-disciplinary approach and widen their care strategies to include spirituality, to enhance the treatment outcomes of women living with advanced cervical cancer.</p>","PeriodicalId":94055,"journal":{"name":"International journal of palliative nursing","volume":"29 9","pages":"434-444"},"PeriodicalIF":0.0,"publicationDate":"2023-09-02","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"41169499","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}