Deborah Parker, Liz Reymond, Karen Cooper, Jennifer Tieman, Serra Ivynian
{"title":"An evaluation of an online education programme to improve nurses' ability to support carers to use subcutaneous medicines.","authors":"Deborah Parker, Liz Reymond, Karen Cooper, Jennifer Tieman, Serra Ivynian","doi":"10.12968/ijpn.2023.29.11.538","DOIUrl":"10.12968/ijpn.2023.29.11.538","url":null,"abstract":"<p><strong>Background: </strong>Most Australians say they wish to die at home, but many are admitted to inpatient facilities for symptom management. Caring@home resources can be used to support informal carers to manage breakthrough symptoms safely using subcutaneous medicines. Nurses require education about how to teach informal carers to use these resources.</p><p><strong>Aim: </strong>To evaluate the effectiveness and relevance of an online education programme for registered nurses (RNs) about using the caring@home resources.</p><p><strong>Methods: </strong>Nurses must complete an online survey prior to the commencement of the online education programme and again upon completion to assess their change in skills, knowledge, confidence and attitudes of the RNs. T-tests were conducted to compare average pre- and post-education scores.</p><p><strong>Findings: </strong>The knowledge, skills and confidence of RNs to teach carers improved significantly following the completion of an education programme. There was a significant change in attitude, meaning that the perceived benefit of teaching informal carers to give subcutaneous medicines improved. All reported they would use the resources in their clinical practice.</p><p><strong>Conclusion: </strong>The online education programme is an effective and cost-efficient strategy to educate nurses to support informal carers to help manage breakthrough symptoms using subcutaneous medicines.</p>","PeriodicalId":94055,"journal":{"name":"International journal of palliative nursing","volume":"29 11","pages":"538-546"},"PeriodicalIF":0.0,"publicationDate":"2023-11-02","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"138471363","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"End-of-life care in the patient's home.","authors":"Pretty Manyimo, Kay de Vries","doi":"10.12968/ijpn.2023.29.11.528","DOIUrl":"10.12968/ijpn.2023.29.11.528","url":null,"abstract":"<p><strong>Background: </strong>Providing end-of-life care in a patient's home is challenging, especially if the nurse is from a different ethnic background from the patient. Evidence shows that people from an ethnic minority background often experience poorer end-of-life care due to care providers not understanding their care needs.</p><p><strong>Aim: </strong>To explore the experiences of community nursing staff caring for patients with an ethnic minority background at the end of their life.</p><p><strong>Method: </strong>Using a qualitative descriptive approach, 16 semi-structured interviews were conducted and the data was thematically analysed.</p><p><strong>Finding: </strong>Participants dealt with large tight-knit families, paternalism and controlling behaviours. There was a mistrust of Western palliative medicine. Language barriers and challenges were faced by the nursing staff, resulting in difficult conversations with the families. Different levels of the nursing staff's spiritual/cultural competencies were also identified. The COVID-19 pandemic intensified the challenges.</p><p><strong>Conclusion: </strong>This research has shed light on the challenges of individualising end-of-life care in a culturally diverse community in the UK. The nursing staff's cultural/spiritual competencies were challenged.</p>","PeriodicalId":94055,"journal":{"name":"International journal of palliative nursing","volume":"29 11","pages":"528-536"},"PeriodicalIF":0.0,"publicationDate":"2023-11-02","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"138471366","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Rosana Ribić, Tina Košanski, Marijana Neuberg, Tomislav Meštrović
{"title":"Changes in hair cortisol levels and cognitive function among older patients in palliative care.","authors":"Rosana Ribić, Tina Košanski, Marijana Neuberg, Tomislav Meštrović","doi":"10.12968/ijpn.2023.29.11.556","DOIUrl":"10.12968/ijpn.2023.29.11.556","url":null,"abstract":"<p><p>This monocentric pilot study aimed to assess whether there are significant changes in hair cortisol levels and cognitive functioning at baseline and after 3 weeks of hospitalisation in older palliative care patients, and to ascertain whether hair cortisol can be used as a pertinent stress biomarker in this population. Hair cortisol concentration levels were measured with the use of an enzyme-linked immunosorbent assay (ELISA), while cognitive functions were assessed by using 16-point Mini-Mental State Examination 2 (MMSE-2): brief version. A statistically significant difference in mean hair cortisol levels at the start of the hospitalisation was found when compared to the 3-week follow-up (p=0.007). No statistically significant differences were observed regarding MMSE-2 scores using the same time points. These results have direct clinical implications and set the stage for further research endeavours in the field.</p>","PeriodicalId":94055,"journal":{"name":"International journal of palliative nursing","volume":"29 11","pages":"556-560"},"PeriodicalIF":0.0,"publicationDate":"2023-11-02","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"138471364","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"Research Roundup.","authors":"Laura Green","doi":"10.12968/ijpn.2023.29.11.562","DOIUrl":"10.12968/ijpn.2023.29.11.562","url":null,"abstract":"<p><p>Synopses of a selection of recently published research articles of relevance to palliative care.</p>","PeriodicalId":94055,"journal":{"name":"International journal of palliative nursing","volume":"29 11","pages":"562-564"},"PeriodicalIF":0.0,"publicationDate":"2023-11-02","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"138471370","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"Effectiveness of home-based palliative care programmes for older people and their family caregivers in Thailand.","authors":"Kanyanat Supaporn, Sang-Arun Isaramalai, Uayart Chuchuen, Patcharin Manee","doi":"10.12968/ijpn.2023.29.11.518","DOIUrl":"10.12968/ijpn.2023.29.11.518","url":null,"abstract":"<p><strong>Background: </strong>People in Thailand receiving palliative care at home can have complex needs and this means that the family caregiver can have a high burden of care.</p><p><strong>Aim: </strong>To assess the impact of a nursing care activities for a home-based palliative care programme (NHBPC) on the care burden among family caregivers and the care quality in older people at the palliative care stage.</p><p><strong>Methods: </strong>This quasi-experimental repeated measure study was used to investigate the effects of the nursing care activities for a NHBPC programme.</p><p><strong>Results: </strong>The mean caregiving burden and care quality scores in the experimental and control groups at post-test and 2-weeks follow-up showed significant differences (p<.05). In addition, improvement was not seen in the control group.</p><p><strong>Conclusion: </strong>The NHBPC programme significantly improved caregiving burden and quality of care in Thai older people and their family caregiver. This confirms that the NHBPC programme plays a crucial role in helping them to improve quality of life.</p>","PeriodicalId":94055,"journal":{"name":"International journal of palliative nursing","volume":"29 11","pages":"518-526"},"PeriodicalIF":0.0,"publicationDate":"2023-11-02","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"138471365","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"Only the dead have seen the end of war.","authors":"Dion Smyth","doi":"10.12968/ijpn.2023.29.11.517","DOIUrl":"10.12968/ijpn.2023.29.11.517","url":null,"abstract":"Always Lost is a unique collection of photographs, poems, and prose that recognizes the sacrifices of our American troops in Iraq and Afghanistan. Retired Marine Corps Major Kevin Burns titled the exhibition after an observation by American writer Gertrude Stein: “War is never fatal but always lost. Always lost.” A sacred space in which to contemplate the personal and collective costs of war, Always Lost features the Wall of the Dead, photos and names of nearly 6,000 American service members who have perished in the Middle East since September 11, 2001; the literary work they inspired; Pulitzer Prize-winning combat photos by David Leeson and Cheryl Diaz Meyer (The Dallas Morning News); interviews and portraits of Iraq/Afghanistan student-veterans from Western Nevada College; and the poetry and profile of SPC Noah Pierce, who took his own life after serving two tours in Iraq. Your donation will support the effort to keep the Wall of the Dead current and to send Always Lost throughout the U.S. to colleges, universities, and veterans’ groups who are interested in hosting the exhibit. The exhibition’s national tour began at the University of Wisconsin, Marinette in fall 2010 and is currently scheduled through mid-2013. Always Lost has been invited to Washington D.C. by members of the U.S. Senate.","PeriodicalId":94055,"journal":{"name":"International journal of palliative nursing","volume":"29 11","pages":"517"},"PeriodicalIF":0.0,"publicationDate":"2023-11-02","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"138471367","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"Palliative care: economic challenges for researchers.","authors":"Joana C Vieira","doi":"10.12968/ijpn.2023.29.11.548","DOIUrl":"10.12968/ijpn.2023.29.11.548","url":null,"abstract":"<p><p>The economic challenges for researchers in palliative care is an emerging and challenging topic. Knowing where, how and how much is spent is fundamental for palliative care (PC) provision to be increasingly efficient and with lower costs. To accomplish this, there are three important factors to consider: early access to PC; specialised PC using standardised procedures and informal and home-based PC. Beyond costs, ethical aspects should always be present when this care is being provided in its different forms, locations and contexts. For those who want to study the economic challenges in PC, they need to comprehend the complexity of them, since they will always come from a careful articulation between ethics, the person´s needs, the cost of the care and who these costs are charged to.</p>","PeriodicalId":94055,"journal":{"name":"International journal of palliative nursing","volume":"29 11","pages":"548-552"},"PeriodicalIF":0.0,"publicationDate":"2023-11-02","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"138471368","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"Preferred place of death challenges the allocation of health resources in Iran.","authors":"Armin Fereidouni, Maryam Rassouli, Maryam Karami, Maryam Pakseresht, Salman Barasteh","doi":"10.12968/ijpn.2023.29.11.553","DOIUrl":"10.12968/ijpn.2023.29.11.553","url":null,"abstract":"","PeriodicalId":94055,"journal":{"name":"International journal of palliative nursing","volume":"29 11","pages":"553-554"},"PeriodicalIF":0.0,"publicationDate":"2023-11-02","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"138471369","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"Nursing students experiences of end-of-life care.","authors":"Kerry Jones, Jan Draper, Nerys Bolton","doi":"10.12968/ijpn.2023.29.10.466","DOIUrl":"10.12968/ijpn.2023.29.10.466","url":null,"abstract":"<p><strong>Background: </strong>Undergraduate nursing students spend a significant amount of time in clinical placements where they are involved in care at the end of a person's life and care after death. While their role is to provide compassionate care, some students feel wholly unprepared.</p><p><strong>Aims: </strong>The aim of this qualitative study was to explore student nurses' experiences of care in death, dying and post death care, and to explore how students can be better prepared to provide such care.</p><p><strong>Methods: </strong>This is a qualitative descriptive study that is concerned with the subjective reality of participant's experiences.</p><p><strong>Findings: </strong>Six themes were developed from the analysis: first encounters with death and dying; preparedness; mentoring and support received; the caring role; striving to cope; working with families and working through COVID-19.</p><p><strong>Conclusion: </strong>Students described their experience of placements in end-of-life care as challenging, yet were also able to adopt ways to develop as compassionate practitioners.</p>","PeriodicalId":94055,"journal":{"name":"International journal of palliative nursing","volume":"29 10","pages":"466-475"},"PeriodicalIF":0.0,"publicationDate":"2023-10-02","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"49686656","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"Spiritual care competence, moral distress and job satisfaction among Iranian oncology nurses.","authors":"Arpi Manookian, Javad Nadali, Shahrzad Ghiyasvandian, Kathryn Weaver, Shima Haghani, Anahita Divani","doi":"10.12968/ijpn.2023.29.10.487","DOIUrl":"10.12968/ijpn.2023.29.10.487","url":null,"abstract":"<p><strong>Background: </strong>Nurses have a crucial role in identifying spiritual needs and providing spiritual care to patients living with cancer.</p><p><strong>Aim: </strong>This study evaluated Iranian oncology nurses' spiritual care competence and its relationship with job satisfaction and moral distress.</p><p><strong>Method: </strong>This cross-sectional study was conducted on 280 Iranian oncology nurses in 2020 using four questionnaires: demographic questionnaires, the Spiritual Care Competence Questionnaire (SCCQ), the Minnesota Job Satisfaction Questionnaire (MSQ) and the nurses' Moral Distress Questionnaire (MDS-R).</p><p><strong>Findings: </strong>The mean scores indicated a medium to high Spiritual Care Competence (SCC), mild to moderate moral distress and high job satisfaction. There was a positive correlation between SCC and external job satisfaction (r=184, p<0.05) and a negative correlation between SCC and moral distress (r=-0.356, p<0.05).</p><p><strong>Conclusions: </strong>SCC diminishes with decreasing external job satisfaction and increasing moral distress. To improve the SCC of nurses working with patients living with cancer, it is recommended that nursing managers and policymakers revise the organisational policies to tackle the obstacles and consider the related factors to provide an ethical climate, implement quality spiritual care and increase job satisfaction.</p>","PeriodicalId":94055,"journal":{"name":"International journal of palliative nursing","volume":"29 10","pages":"487-497"},"PeriodicalIF":0.0,"publicationDate":"2023-10-02","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"49686658","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}