Steven Callaghan, Kim Sadler, Gassan Abudari, Kholoud Alhassan, Muneerah Almutairi, Ruth Evangelista, Mahmoud Sroor, Goncalo Placido, Lemon Bacalso, Mohammed AlGhamdi, Bashayer Albayjan, Lubna Shaltoot, Reema Alomari, Mohammed Azuny, Amjad Alsubaie
{"title":"Goals of care and advance directives: A 1-year retrospective analysis of a tertiary centre in Saudi Arabia.","authors":"Steven Callaghan, Kim Sadler, Gassan Abudari, Kholoud Alhassan, Muneerah Almutairi, Ruth Evangelista, Mahmoud Sroor, Goncalo Placido, Lemon Bacalso, Mohammed AlGhamdi, Bashayer Albayjan, Lubna Shaltoot, Reema Alomari, Mohammed Azuny, Amjad Alsubaie","doi":"10.12968/ijpn.2025.0078","DOIUrl":"10.12968/ijpn.2025.0078","url":null,"abstract":"<p><strong>Background: </strong>Despite its limited therapeutic value, high costs and the fact that it can compromise a patient's quality of life, aggressive care continues to be provided at the end of life. It has been associated with a significant symptom burden for patients, a greater use of healthcare resources, delay in accessing palliative care programmes and personal/family and healthcare costs.</p><p><strong>Aim: </strong>To investigate sociodemographic, clinical and community healthcare service factors associated with aggressive end-of-life care across malignant and non-malignant conditions.</p><p><strong>Method: </strong>A 1-year retrospective analysis was conducted in a tertiary care centre in Saudi Arabia. All deaths of adult patients that occurred between 1 January, 2023 and 1 January, 2024, were included. Data were retrieved from medical charts, including sociodemographics, medical history, invasive medical interventions and use of healthcare services in the last 3 months of life.</p><p><strong>Results: </strong>The study included 590 adults (mean age 59.6 years; 52.2% male), with 62% diagnosed with malignancy. The majority (71%) had one or more chronic comorbidities. In their last 90 days, 48.6% were admitted to the intensive care unit. Advance directives were present for only half of the patients included in this study. Non-malignant patients received significantly more aggressive end-of-life care, including intubation and cardiopulmonary resuscitation. Palliative care referrals were low overall (48.1%), but higher in cases of malignancy (70.5%). Patients with involvement in a palliative care team showed a lower symptom burden and less aggressive treatment.</p><p><strong>Conclusions: </strong>These findings suggest unequal access to end-of-life advocates for earlier palliative care referral, which could reduce aggressive treatments, especially for younger patients with non-malignant diseases. Non-cancer referral rates were low, highlighting a need for further collaboration and integration with palliative care services.</p>","PeriodicalId":94055,"journal":{"name":"International journal of palliative nursing","volume":"32 3","pages":"112-122"},"PeriodicalIF":0.0,"publicationDate":"2026-03-02","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"147492287","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Roison Andro Narvaez, Clarrissa Dinglasa, Carissa Mae Gomez, Mary Michelle Panimdim, Josephina Samonte, Johnsteven Tuazon, Marilane Ferrer, Joshua Jaime Nario, Alyssa Jenny Tupaz, Ralph Antonio Peco
{"title":"Mental health interventions for patients with haematological malignancies.","authors":"Roison Andro Narvaez, Clarrissa Dinglasa, Carissa Mae Gomez, Mary Michelle Panimdim, Josephina Samonte, Johnsteven Tuazon, Marilane Ferrer, Joshua Jaime Nario, Alyssa Jenny Tupaz, Ralph Antonio Peco","doi":"10.12968/ijpn.2024.0068","DOIUrl":"10.12968/ijpn.2024.0068","url":null,"abstract":"<p><strong>Background: </strong>Patients with haematological malignancies frequently experience significant psychological distress due to the complexity and chronic nature of their illness. Despite growing recognition of the mental health burden, an integrative synthesis of effective interventions remains limited.</p><p><strong>Aim: </strong>To identify, categorise and synthesise existing empirical studies on mental health interventions for individuals diagnosed with haematological malignancies.</p><p><strong>Methods: </strong>Following Whittemore and Knafl's integrative review framework, a comprehensive literature search was conducted across databases and academic platforms. A total of 20 studies published between 2000 and 2024 were included based on relevance, methodological quality and language. Study quality was assessed using the Critical Appraisal Skills Programme checklist, and level of evidence was evaluated based on Melnyk and Fineout-Overholt's hierarchy.</p><p><strong>Results: </strong>Three core categories emerged: (1) psychotherapeutic and behavioural therapies (e.g., cognitive behavioral therapy mindfulness); (2) spiritual and supportive care (e.g., religious support, guided presence); and (3) creative and multimodal therapies (e.g., music therapy, digital interventions). Most studies demonstrated moderate to high methodological rigor and reported significant improvements in anxiety, depression, emotional resilience and psychosocial wellbeing.</p><p><strong>Conclusion: </strong>Tailored mental health interventions are crucial in enhancing psychological outcomes and quality of life among patients with haematological cancers, underscoring their integration into oncology and palliative care frameworks.</p>","PeriodicalId":94055,"journal":{"name":"International journal of palliative nursing","volume":"32 2","pages":"86-98"},"PeriodicalIF":0.0,"publicationDate":"2026-02-02","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"147370806","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"The spiritual dimension: What gives meaning to patients with life-limiting illness?","authors":"Elisabeth Romarheim, Sidsel Ellingsen","doi":"10.12968/ijpn.2025.0020","DOIUrl":"10.12968/ijpn.2025.0020","url":null,"abstract":"<p><strong>Background: </strong>Including the spiritual dimension as a part of patient care is a key principle in palliative care. However, studies have shown that this aspect of care is often neglected, although healthcare professionals have a responsibility to provide holistic care.</p><p><strong>Aim: </strong>Explore what gives meaning to patients living with severe incurable disease.</p><p><strong>Method: </strong>Semi-structured interviews were conducted with patients suffering from life-threatening illness. All had cancer as main diagnosis. Data were analysed using a phenomenological-hermeneutic method described by Lindseth and Norberg.</p><p><strong>Findings: </strong>The analysis resulted in four main themes: previous life experiences, feeling significant to others, feeling prepared for end of life and life-giving impressions.</p><p><strong>Conclusion: </strong>Experiences, beliefs, impressions and relationships provide meaning to patients living with severe incurable disease. Focusing on these dimensions of spirituality can help healthcare professionals to understand and provide spiritual care. Spiritual care encompasses being open and sensitive to what patients express and focussing on what is important to the individual.</p>","PeriodicalId":94055,"journal":{"name":"International journal of palliative nursing","volume":"32 2","pages":"76-85"},"PeriodicalIF":0.0,"publicationDate":"2026-02-02","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"147370809","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Maria de Lurdes da Costa Martins, Ana Paula Rodrigues, Carlos Duarte Coelho Peixeira Marques, Rui Miguel Barros Cunha Carvalho
{"title":"Barriers to healthcare professionals' ability to provide end-of-life care: a cross-sectional study.","authors":"Maria de Lurdes da Costa Martins, Ana Paula Rodrigues, Carlos Duarte Coelho Peixeira Marques, Rui Miguel Barros Cunha Carvalho","doi":"10.12968/ijpn.2024.0016","DOIUrl":"10.12968/ijpn.2024.0016","url":null,"abstract":"<p><strong>Background: </strong>There is a growing need for end-of-life care and it is imperative that health professionals have the capacity to provide this care.</p><p><strong>Aim: </strong>To investigate the factors that can influence the levels of spirituality, emotional intelligence, palliative care knowledge, self-efficacy, attitudes towards end-of-life care and the perception of the ability of to provide end-of-life care for doctors and nurses.</p><p><strong>Method: </strong>Data collection was carried out using a questionnaire during May and July of 2022 of doctors and nurses in a public hospital in Portugal (<i>n</i>=380).</p><p><strong>Results: </strong>Statistically significant associations were found between sociodemographic and professional variables.</p><p><strong>Conclusions: </strong>According to the findings of this study, the palliative care knowledge, spirituality and the ability to provide end-of-life care increase with experience and training in palliative care. Self-efficacy and emotional intelligence also increase with experience in healthcare. Most professionals do not have training or experience in palliative care, but palliative care training should be mandatory during professional internships and workplace training.</p>","PeriodicalId":94055,"journal":{"name":"International journal of palliative nursing","volume":"32 2","pages":"67-74"},"PeriodicalIF":0.0,"publicationDate":"2026-02-02","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"147370699","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"Addressing the missing framework of paediatric palliative care in Saudi Arabia.","authors":"Albraa Abulhamail, Khaled AlGhamdi","doi":"10.12968/ijpn.2025.0054","DOIUrl":"10.12968/ijpn.2025.0054","url":null,"abstract":"<p><strong>Background: </strong>Paediatric palliative care is a multidisciplinary specialty focused on enhancing the quality of life of children facing life-limiting diseases and their families.</p><p><strong>Aims: </strong>To evaluate the impact of the lack of established paediatric palliative care on the comfort level of healthcare workers dealing with this patient population in Saudi Arabia.</p><p><strong>Methods: </strong>A multi-center cross-sectional study was conducted across various regions of Saudi Arabia, with data collected from 230 healthcare workers using a validated self-administered questionnaire.</p><p><strong>Conclusion: </strong>Among the participants, 119 (51.74%) reported feeling comfortable caring for paediatric palliative care patients, while 9.13% of healthcare workers reported receiving formal training in paediatric palliative care. A significant gap exists between the demand for paediatric palliative care and available services. Integrating paediatric palliative care education into medical and nursing curricula and establishing dedicated paediatric palliative care services are essential, along with ongoing training and assessment by field experts.</p>","PeriodicalId":94055,"journal":{"name":"International journal of palliative nursing","volume":"32 2","pages":"60-66"},"PeriodicalIF":0.0,"publicationDate":"2026-02-02","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"147370712","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"Continuity for family members of patients receiving palliative care.","authors":"Emilia Saudella","doi":"10.12968/ijpn.2025.0094","DOIUrl":"https://doi.org/10.12968/ijpn.2025.0094","url":null,"abstract":"","PeriodicalId":94055,"journal":{"name":"International journal of palliative nursing","volume":"32 2","pages":"58"},"PeriodicalIF":0.0,"publicationDate":"2026-02-02","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"147370770","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"Research Roundup.","authors":"Laura Green","doi":"10.12968/ijpn.2026.0026","DOIUrl":"10.12968/ijpn.2026.0026","url":null,"abstract":"<p><p>Synopses of a selection of recently published research articles of relevance to palliative care.</p>","PeriodicalId":94055,"journal":{"name":"International journal of palliative nursing","volume":"32 2","pages":"100-102"},"PeriodicalIF":0.0,"publicationDate":"2026-02-02","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"147370812","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"The relationship between the caregiving behaviours of ıntensive care nurses caring for dying patients and their attitudes towards death and euthanasia.","authors":"Berna Aksoy Kahraman, Ayşe Çuvadar","doi":"10.12968/ijpn.2024.0079","DOIUrl":"https://doi.org/10.12968/ijpn.2024.0079","url":null,"abstract":"<p><strong>Background: </strong>Nurses often intervene to extend patients' lives. However, sometimes patients may request euthanasia, and this situation can potentially affect their subsequent care.</p><p><strong>Aim: </strong>To examine the relationship between the caregiving behaviours of nurses caring for dying patients and their attitudes towards death and euthanasia in Türkiye.</p><p><strong>Methods: </strong>The study involved 229 intensive care nurses. Data collection was carried out using Attitudes Towards Euthanasia scale, and the caring behaviours assessment tool nursing version-short form.</p><p><strong>Findings: </strong>The termination of nursing care interventions for patients, defining euthanasia as a right to die and believing that individuals should have the right to euthanasia emerged as factors contributing to nurse's attitudes towards euthanasia and patients at the end of life. Also, the willingness of nurses to provide care for patients in the terminal stage, their thoughts that euthanasia can be applied to patients in the terminal stage, their questioning the reason for this request if their patients want euthanasia, and their attitudes towards death, emerged as factors contributing to the caring behaviours of nurses.</p><p><strong>Conclusion: </strong>Nurses should be aware of their attitudes towards dying patients and death, and they should be able to identify the effects of negative attitudes on the care they provide to terminally ill patients. They should also work on improving their caregiving behaviours.</p>","PeriodicalId":94055,"journal":{"name":"International journal of palliative nursing","volume":"32 1","pages":"19-28"},"PeriodicalIF":0.0,"publicationDate":"2026-01-02","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"148274297","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}