Mona Abed El-Rahman Mohamed, Noha Mohammed Ibrahim Ibrahim, Hanan Hassan Elezaby, Mariam Sabry Shehab
{"title":"Chemosensory changes during chemotherapy.","authors":"Mona Abed El-Rahman Mohamed, Noha Mohammed Ibrahim Ibrahim, Hanan Hassan Elezaby, Mariam Sabry Shehab","doi":"10.12968/ijpn.2024.30.3.147","DOIUrl":"10.12968/ijpn.2024.30.3.147","url":null,"abstract":"<p><strong>Background: </strong>Chemosensory changes that occur during chemotherapy can significantly impact food enjoyment, quality of life and recovery.</p><p><strong>Aim: </strong>To investigate chemosensory changes reported by oncology patients during chemotherapy.</p><p><strong>Methods: </strong>A mixed-method cross-sectional study design was used to explore 100 cancer patients' experiences of chemosensory changes during chemotherapy. All patients completed a questionnaire assessing their taste and smell preferences. A purposive sample of 30 patients underwent a semi-structured interview to elicit their thoughts on their experienced chemosensory changes. Descriptive statistics and themes were examined.</p><p><strong>Findings: </strong>The mean age of the sample was 50.56 years, and the majority of participants were female. The most stated taste alteration was bitter, while altered food preferences were also commonly experienced. Furthermore, most patients experienced unpleasant odours around food, while some experienced these odours even when food was not present. Overall, five themes were identified: changes in taste, changes in smell, changes in social life, altered comfort and food preferences.</p><p><strong>Conclusion: </strong>Chemosensory changes related to cancer and its treatment impact a person's nutrient intake, food-related behaviours, quality of life and treatment response. Patients who experience chemotherapy-associated chemosensory changes require specialised nutritional therapy to increase their eating-related pleasure. As part of the nutritional assessment, chemosensory alterations should be evaluated regularly.</p>","PeriodicalId":94055,"journal":{"name":"International journal of palliative nursing","volume":"30 3","pages":"147-155"},"PeriodicalIF":0.0,"publicationDate":"2024-03-02","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"140190515","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"Patient decision-making in left ventricular assist devices for destination therapy.","authors":"Megan L Morrison","doi":"10.12968/ijpn.2024.30.3.108","DOIUrl":"10.12968/ijpn.2024.30.3.108","url":null,"abstract":"<p><strong>Background: </strong>Heart failure is a common life-limiting disease. A destination therapy for people who will not have a heart transplant is a left ventricular assist device.</p><p><strong>Aims: </strong>To discover how patients who have a left ventricular assist device for destination therapy make decisions about their healthcare after implantation of the device.</p><p><strong>Methods: </strong>A descriptive qualitative design with semi-structured, in-depth interviews with 11 participants who are living with a left ventricular assist device for destination therapy.</p><p><strong>Findings: </strong>People with a left ventricular assist device felt they had 'no choice' when making decisions about their healthcare.</p><p><strong>Conclusion: </strong>Engaging with patients to contemplate present and future healthcare decisions is a complex process that includes cognitive processes within the patient. Clinicians need to be aware that a gap may occur between what is said and what is heard in communication.</p>","PeriodicalId":94055,"journal":{"name":"International journal of palliative nursing","volume":"30 3","pages":"108-117"},"PeriodicalIF":0.0,"publicationDate":"2024-03-02","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"140190519","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"The effect of a mobile application for patients living with gynaecological cancer on their physical and psychosocial adaptation.","authors":"Okan Vardar, Pınar Serçekuş","doi":"10.12968/ijpn.2024.30.3.128","DOIUrl":"10.12968/ijpn.2024.30.3.128","url":null,"abstract":"<p><strong>Background: </strong>Education of patients with cancer and patient self-management allow better clinical outcomes using e-health or mobile health applications.</p><p><strong>Aims: </strong>To develop a mobile application to increase the physical and psychosocial adaptation for patients with gynecological cancer who are receiving chemotherapy and to investigate the effectiveness of the mobile application.</p><p><strong>Methods: </strong>This study was planned as a parallel, single-blind, pre-post test randomised controlled experimental study in which two groups (intervention-control) will be compared. A total of 52 gynecological cancer patients were planned to be included in the study.</p><p><strong>Findings: </strong>This study is in the protocol stage. Therefore, the results of the study have not yet been reported.</p><p><strong>Conclusions: </strong>Evidence-based information within JineOnkolojik Destek provides rich data on coping with chemotherapy. In addition, the visual and auditory elements, real patient stories and videos, and the ability to ask questions and receive counselling from the research team can positively affect the physical and psychosocial health of the cancer survivors.</p>","PeriodicalId":94055,"journal":{"name":"International journal of palliative nursing","volume":"30 3","pages":"128-137"},"PeriodicalIF":0.0,"publicationDate":"2024-03-02","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"140190520","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"The experience of cancer pain in South African patients.","authors":"Rowan Robinson, Johanna E Maree","doi":"10.12968/ijpn.2024.30.2.79","DOIUrl":"https://doi.org/10.12968/ijpn.2024.30.2.79","url":null,"abstract":"<p><strong>Background: </strong>Most people with cancer experience pain caused by the disease and treatment.</p><p><strong>Aims: </strong>To describe the experience of cancer pain of South African patients.</p><p><strong>Methods: </strong>A qualitative descriptive design was used; 20 (n=20) participants were purposively selected and in-depth interviews were conducted. Inductive content analysis was used to analyse the data.</p><p><strong>Findings: </strong>Two themes and five subthemes were identified. The themes were pain as a unique multi-dimensional experience, and that the unmet needs of the patient can influence their experience of pain.</p><p><strong>Conclusion: </strong>The participants experienced total pain. Emotional pain, enhanced by loneliness and unmet information needs was experienced, and this was felt by participants as the worst kind of pain. Pain was mediated by means of medication that did not work well for all, support, compassionate care and hope that God would cure them and take the pain away.</p><p><strong>Recommendation: </strong>A person-centred approach to pain management is needed, especially in diverse countries, such as South Africa, to better understand the complexity and influence of culture, language and education on the pain experience and to guide individual pain management.</p>","PeriodicalId":94055,"journal":{"name":"International journal of palliative nursing","volume":"30 2","pages":"79-86"},"PeriodicalIF":0.0,"publicationDate":"2024-02-02","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"139975142","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"Research Roundup.","authors":"","doi":"10.12968/ijpn.2024.30.2.100","DOIUrl":"https://doi.org/10.12968/ijpn.2024.30.2.100","url":null,"abstract":"<p><p>Synopses of a selection of recently published research articles of relevance to palliative care.</p>","PeriodicalId":94055,"journal":{"name":"International journal of palliative nursing","volume":"30 2","pages":"100-102"},"PeriodicalIF":0.0,"publicationDate":"2024-02-02","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"139975141","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"Intention to sign an advance directive among nephrology medical staff and its related factors.","authors":"Li Fang, Li-Ping Hsiao, Shu-Hui Fang","doi":"10.12968/ijpn.2024.30.2.57","DOIUrl":"https://doi.org/10.12968/ijpn.2024.30.2.57","url":null,"abstract":"<p><strong>Background: </strong>Advance care planning enables people to record their future health and care wishes and appoint someone as an advocate. An advance directive can be made in the event that a person is incapacitated, so that their wishes are still upheld. The beliefs of the nephrology team might affect patients' choices and willingness to sign an advance directive. To increase the number of dialysis patients who have signed an advance directive, it is necessary to educate the nephrology medical staff.</p><p><strong>Aim: </strong>To explore the intention to sign an advance directive and its related factors among nephrology medical staff.</p><p><strong>Methods: </strong>A cross-sectional and correlational design was used. This study recruited 160 nephrology medical staff. Data were analysed by using the Statistical Package for Social Science 21.0 for Windows.</p><p><strong>Findings: </strong>The results found that the longer someone has worked as part of the nephology medical staff, the more knowledgeable they were about an advance directive. This led to them being more likely to want to sign an advance directive for themselves.</p><p><strong>Conclusion: </strong>In order to improve the knowledge and awareness of advance directives among nephrology medical staff, hospital managers should provide continuing education on this topic.</p>","PeriodicalId":94055,"journal":{"name":"International journal of palliative nursing","volume":"30 2","pages":"57-65"},"PeriodicalIF":0.0,"publicationDate":"2024-02-02","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"139975139","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Johanna Kero, Jaana-Maija Koivisto, Anne Kuusisto, Pauliina Kesonen, Elina Haavisto
{"title":"Nursing interventions for dyspnoea management among inpatients with cancer in palliative care.","authors":"Johanna Kero, Jaana-Maija Koivisto, Anne Kuusisto, Pauliina Kesonen, Elina Haavisto","doi":"10.12968/ijpn.2024.30.2.87","DOIUrl":"10.12968/ijpn.2024.30.2.87","url":null,"abstract":"<p><strong>Background: </strong>Dyspnoea, a commonly reported symptom among patients with cancer, necessitates the need for appropriate non-pharmacological interventions for its management and suitable assessment scales.</p><p><strong>Aims: </strong>To explore the nursing interventions and assessment scales for managing dyspnoea in patients with cancer receiving palliative care.</p><p><strong>Methods: </strong>Systematic review. Five databases (CINAHL Complete, PubMed, Web of Science, Scopus and the Cochrane Central Register of Controlled Trials) were searched, and seven studies were identified. Only studies that comprised randomised controlled trials (RCTs), non-randomised controlled trials or quasi-experimental settings were included.</p><p><strong>Findings: </strong>Nursing interventions, that support a patient's physical breathing and mental functioning, are effective in managing dyspnoea. It is crucial to use both subjective and physical assessment methods to accurately measure the outcomes of these interventions.</p><p><strong>Conclusion: </strong>These interventions have been proven to be effective, with outcomes centred on changes in physiological measurements and patients' subjective expressions.</p>","PeriodicalId":94055,"journal":{"name":"International journal of palliative nursing","volume":"30 2","pages":"87-98"},"PeriodicalIF":0.0,"publicationDate":"2024-02-02","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"139975140","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Brian Nyatanga, Rosemary Wormington, Lucy Wilkinson
{"title":"Exploring the experiences of adults adjustment when living with a primary brain tumour.","authors":"Brian Nyatanga, Rosemary Wormington, Lucy Wilkinson","doi":"10.12968/ijpn.2024.30.2.66","DOIUrl":"https://doi.org/10.12968/ijpn.2024.30.2.66","url":null,"abstract":"<p><strong>Background: </strong>Brain tumours are the ninth most common cancer in the UK, and account for 3% of all new cancer cases.</p><p><strong>Aim: </strong>To understand the impact of living with a primary brain tumour and identify adjustments that patients make in order to cope with their condition. This also encomapsses the impact of interventions like support groups in terms of care and therapeutic value.</p><p><strong>Methods: </strong>After ethical approval, a qualitative approach was employed, which set out to interview 11 adult patients living with primary brain tumours. The interviews were conducted face-to-face and were semi-structured interviews. Interview data were coded and thematic analysis used.</p><p><strong>Findings: </strong>Four themes were developed, namely: adjustment; loss of independence; support; and health and symptoms.</p><p><strong>Conclusion: </strong>Living with a brain tumour leads to an inevitable adjustment to maintain day-to-day life. The findings suggest there are a number of adjustments that patients make to maintain some independence. Many people valued the support they received from support groups, while others felt that the support they received was inadequate. The mandatory loss of a driving licence for people in the UK was the most concerning. Its removal led to a loss of confidence and made them immediately dependent on others for travel. While support was provided, there was an apparent omission in the provision of psychological support. Oncology and palliative care nurses are in key positions to explore psychological concerns and offer tailored support.</p>","PeriodicalId":94055,"journal":{"name":"International journal of palliative nursing","volume":"30 2","pages":"66-78"},"PeriodicalIF":0.0,"publicationDate":"2024-02-02","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"139975137","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Ling-Chun Tseng, Ya-Lie Ku, Chun-Hsiang Lee, Chin Tang Tu
{"title":"Spiritual care models of patients living with cancer in Taiwan.","authors":"Ling-Chun Tseng, Ya-Lie Ku, Chun-Hsiang Lee, Chin Tang Tu","doi":"10.12968/ijpn.2024.30.1.40","DOIUrl":"https://doi.org/10.12968/ijpn.2024.30.1.40","url":null,"abstract":"<p><strong>Background: </strong>Psychological, social and spiritual needs are often unmet during the care of patients with cancer in Taiwan.</p><p><strong>Aim: </strong>The purpose of this study was to confirm the spiritual care models including the spiritual distress symptoms (SDS), spiritual distress symptoms interventions (SDSI), and spiritual distress outcomes criteria (SDOC) of patients with cancer in the initial, relapse and terminal stages.</p><p><strong>Method: </strong>This cross-sectional survey collected data from 150 professional nurses about their perceptions of the SDS, SDSI and SDOC for patients with cancer.</p><p><strong>Results: </strong>The significant total effects of SDS on SDOC by SDSI of the patients with cancer in the initial, relapse and terminal stages were found. Additionally, the direct effects of SDS on SDOC by SDSI of the patients with cancer from the initial, relapse to terminal stage were gradually enhanced.</p><p><strong>Conclusions: </strong>The relationship between spiritual distress symptoms, interventions and outcomes was significantly higher from the initial to relapse state until at the end of life, based on the perceptions of 150 professional nurses.</p>","PeriodicalId":94055,"journal":{"name":"International journal of palliative nursing","volume":"30 1","pages":"40-46"},"PeriodicalIF":0.0,"publicationDate":"2024-01-02","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"139682195","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}