International journal of palliative nursing最新文献_第6页

Strengthening palliative care: the essential role of nurses. 加强姑息治疗：护士的重要作用。

International journal of palliative nursing Pub Date : 2026-01-02 DOI: 10.12968/ijpn.2026.0012

Julie Ling

引用次数: 0

Exploring the palliative care needs of patients with heart failure: A qualitative study. 探讨心力衰竭患者的缓和疗护需求：一项质性研究。

International journal of palliative nursing Pub Date : 2026-01-02 DOI: 10.12968/ijpn.2025.0013

Sima Sadat Ghaemizade Shushtari, Mahin Gheibizadeh, Maryam Rassouli, Dariush Rokhafroz, Simin Jahani, Ekhlas Torfi

{"title":"Exploring the palliative care needs of patients with heart failure: A qualitative study.","authors":"Sima Sadat Ghaemizade Shushtari, Mahin Gheibizadeh, Maryam Rassouli, Dariush Rokhafroz, Simin Jahani, Ekhlas Torfi","doi":"10.12968/ijpn.2025.0013","DOIUrl":"10.12968/ijpn.2025.0013","url":null,"abstract":"Background: Despite the increasing recognition of palliative care in the management of heart failure (HF), many patients continue to experience unmet care needs due to the delayed integration of supportive services. Identifying these needs is crucial for enhancing patient-centered care and informing healthcare policies. This qualitative study aimed to explore the palliative care needs of patients with HF.Methods: This qualitative study employed a directed content analysis approach. Semi-structured in-depth interviews were conducted with 22 adult patients with heart failure in Ahvaz, Iran. Data collection continued until saturation, ensuring no new themes emerged. To ensure the trustworthiness of the findings, Lincoln and Guba's criteria were used.Results: A total of 22 adult patients with heart failure participated in the study, with a mean age of 58.45±18.07 years. Data analysis revealed eight main categories of needs, including 'care structures and processes', 'physical aspects', 'psychological aspects', 'social aspects', 'cultural aspects', 'end-of-life care', 'ethical and legal aspects' and 'spiritual and existential aspects' with 30 subcategories.Conclusion: This study highlights the urgent need for early and thorough palliative care in heart failure management. By meeting patients' diverse needs with team-based, patient-focused methods, we can enhance quality of life, manage symptoms better and reduce healthcare challenges. These results are important for clinical practices and policies, supporting the creation of specialised palliative care programmes for heart failure patients.","PeriodicalId":94055,"journal":{"name":"International journal of palliative nursing","volume":"32 1","pages":"29-41"},"PeriodicalIF":0.0,"publicationDate":"2026-01-02","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"148274225","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Community nurses' roles in palliative care: the perceptions of family caregivers who provide palliative care for patients in a Thai community. 社区护士在姑息治疗中的作用：在泰国社区为患者提供姑息治疗的家庭照顾者的看法。

International journal of palliative nursing Pub Date : 2026-01-02 DOI: 10.12968/ijpn.2024.0066

Pornpun Manasatchakun, Paungpayom Jullapan

{"title":"Community nurses' roles in palliative care: the perceptions of family caregivers who provide palliative care for patients in a Thai community.","authors":"Pornpun Manasatchakun, Paungpayom Jullapan","doi":"10.12968/ijpn.2024.0066","DOIUrl":"https://doi.org/10.12968/ijpn.2024.0066","url":null,"abstract":"Background: The roles played by community nurses in caring for dying patients and their families are critical to deliver quality palliative care within the public healthcare system.Aim: To explore the perceptions of family caregivers of patients receiving palliative care regarding the roles of community nurses in providing palliative care within a Thai context.Method: A purposive sample of 16 primary palliative caregivers was used. In-depth interviews were conducted October-November 2021. A phenomenographic approach was employed for data analysis of variations in the roles of community nurses providing palliative care.Findings: Three main roles were revealed: (1) identifier; (2) manager of clinical uncertainty and (3) family caregiver advocate.Conclusions: Community nurses should address the needs of patients and their family caregivers. Healthcare systems should strengthen the roles of community nurses by providing specialised training and fostering partnerships with family caregivers as advocates during palliative care.","PeriodicalId":94055,"journal":{"name":"International journal of palliative nursing","volume":"32 1","pages":"10-18"},"PeriodicalIF":0.0,"publicationDate":"2026-01-02","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"148274189","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Evaluation of the quality of life among caregivers of patients receiving palliative care. 对接受姑息治疗患者的护理者的生活质量进行评估。

International journal of palliative nursing Pub Date : 2026-01-02 DOI: 10.12968/ijpn.2025.0035

Zeynep Aslan Hişmioğulları, Olgu Aygün, Bakiye Nurdan Tekgül, Merve Savcı, Meryem Çakır, Umut Gök

{"title":"Evaluation of the quality of life among caregivers of patients receiving palliative care.","authors":"Zeynep Aslan Hişmioğulları, Olgu Aygün, Bakiye Nurdan Tekgül, Merve Savcı, Meryem Çakır, Umut Gök","doi":"10.12968/ijpn.2025.0035","DOIUrl":"https://doi.org/10.12968/ijpn.2025.0035","url":null,"abstract":"Aim: To assess the quality of life of relatives of palliative care patients and to raise awareness about practices that may improve it.Methods: In this cross-sectional analytical study, the data collection form and the SF-36 Quality of Life Scale were applied to the participants. The study was conducted with 409 relatives of patients who cared for inpatients in the Palliative Care Department of Izmir City Hospital between 25.02.2024-25.08.2024.Results: Among the caregivers included in the study, 71.1% neglected themselves, 69.7% had restricted social lives, 61.9% had sleep problems, and felt that their quality of life had declined since becoming a caregiver. However, receiving professional training about the caregiving process and being informed about legal rights increased the quality of caregiver's lives.Conclusion: Family physicians should focus on both caregivers and patients, supporting caregivers psychosocially, and provide education on palliative care and legal rights.","PeriodicalId":94055,"journal":{"name":"International journal of palliative nursing","volume":"32 1","pages":"42-50"},"PeriodicalIF":0.0,"publicationDate":"2026-01-02","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"148274207","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Strengthening nursing. 加强护理。

International journal of palliative nursing Pub Date : 2026-01-02 DOI: 10.12968/ijpn.2026.0011

Sonja McIlfatrick

引用次数: 0

Co-designing a workforce career progression and development framework with Marie Curie UK. 与英国居里夫人共同设计劳动力职业发展框架。

International journal of palliative nursing Pub Date : 2025-12-02 DOI: 10.12968/ijpn.2024.0077

Carolyn Jackson, Lynn Furber, Sally Hardy

{"title":"Co-designing a workforce career progression and development framework with Marie Curie UK.","authors":"Carolyn Jackson, Lynn Furber, Sally Hardy","doi":"10.12968/ijpn.2024.0077","DOIUrl":"https://doi.org/10.12968/ijpn.2024.0077","url":null,"abstract":"Background: Marie Curie is the largest charitable provider of palliative and end-of-life care in the UK. This paper describes a 2-year project to co-design a career development and progression framework for their specialist palliative and end-of-life care workforce.Aims: To illustrate how a collaborative systematic approach to complex co-design supports large scale workforce transformation.Methods: A mixed-methods participatory action research design was used incorporating principles of co-design, appreciative inquiry and practice development.Finding: Nine core workforce capabilities were identified as being critical to the delivery of person centered safe and effective palliative and end-of-life care for Marie Curie UK. These capabilities were embedded into appraisal processes at pilot sites, supporting role clarity and professional development. The authors present illustrations of the outputs of each phase of the career framework development as an audit trail from which to capture lessons learned, as well as the enablers and barriers to complex co-design.Conclusion: The Marie Curie UK's Career Progression and Development framework provides clearly articulated expectations of all nursing roles within the workforce for each level of practice, including the learning and development activities that support ongoing professional development. Future plans are to extend this across the allied healthcare workforce so that it is fully integrative of all roles involved in supporting palliative and end-of-life care. This will help to support long-term workforce development planning for the future. It aligns with national plans to improve workforce recruitment, retention and development in the palliative and end-of-life care workforce and paves the way for illustrating how to do this effectively with front line staff involved in care, delivery.","PeriodicalId":94055,"journal":{"name":"International journal of palliative nursing","volume":"31 12","pages":"609-622"},"PeriodicalIF":0.0,"publicationDate":"2025-12-02","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"145764796","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Nursing education. 护理教育。

International journal of palliative nursing Pub Date : 2025-12-02 DOI: 10.12968/ijpn.2025.0117

Kusum Kumari, Samadhi Rajapaksa

引用次数: 0

Evaluation of the opinions of relatives of patients receiving palliative care. 姑息治疗患者家属意见的评价。

International journal of palliative nursing Pub Date : 2025-12-02 DOI: 10.12968/ijpn.2024.0054

Fatma Banu Demirdaş, Mustafa Levent Özgönül, Nilüfer Korkmaz Yaylagül, Mustafa Çoban

{"title":"Evaluation of the opinions of relatives of patients receiving palliative care.","authors":"Fatma Banu Demirdaş, Mustafa Levent Özgönül, Nilüfer Korkmaz Yaylagül, Mustafa Çoban","doi":"10.12968/ijpn.2024.0054","DOIUrl":"https://doi.org/10.12968/ijpn.2024.0054","url":null,"abstract":"Background: Palliative care is a care service that positively supports the quality of life of patients with a life-threatening disease and their relatives. Lack of knowledge and the associated negative perception of individuals in this respect may be an obstacle for patients and their relatives to request and receive this service.Aim: This study aims to determine the knowledge and opinions about palliative care of patients' relatives who apply to palliative care centers and request palliative care services.Method: This study, which has a quantitative, cross-sectional, descriptive and relational design, uses a questionnaire aimed at determining the demographic and experiential characteristics of the participants and a form containing statements to determine the knowledge and opinions of the participants regarding palliative care to collect data.Findings: The study revealed that most of the participants who applied for palliative care services had never received information about palliative care (56.3%) and most of them (78.5%) did not know or knew very little about this issue.Conclusion: It is recommended that comprehensive programmes should be planned and disseminated to raise awareness of not only the patients or their relatives, but also society as a whole in order to eliminate the lack of information and negative perception about end-of-life care, which is an important barrier to access to palliative care.","PeriodicalId":94055,"journal":{"name":"International journal of palliative nursing","volume":"31 12","pages":"598-608"},"PeriodicalIF":0.0,"publicationDate":"2025-12-02","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"145764750","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Exploration of COVID-19-related experiences through perspectives of children with advanced cancer and their caregivers. 从晚期癌症儿童及其照顾者的角度探讨与covid -19相关的经历

International journal of palliative nursing Pub Date : 2025-12-02 DOI: 10.12968/ijpn.2024.0038

Jennifer Lynn Newton, Brittany Cowfer, Anne Byrd Mahoney, Terrah Foster Akard, Haley Walker, Mary Jo Gilmer

{"title":"Exploration of COVID-19-related experiences through perspectives of children with advanced cancer and their caregivers.","authors":"Jennifer Lynn Newton, Brittany Cowfer, Anne Byrd Mahoney, Terrah Foster Akard, Haley Walker, Mary Jo Gilmer","doi":"10.12968/ijpn.2024.0038","DOIUrl":"https://doi.org/10.12968/ijpn.2024.0038","url":null,"abstract":"Background: During the COVID-19 pandemic, the challenges faced by families with children receiving treatment for cancer were magnified. Children with cancer are particularly vulnerable to both the psychological and physiological impacts of the virus, compared to other chronic health conditions.Objectives: To examine the perspectives of children with advanced cancer and their caregivers about their experiences during the COVID-19 pandemic.Design: Cross-sectional qualitative study. Children undergoing treatment for advanced cancer (n=14) and their caregivers (n=15) were recruited from one academic medical centre in the south-eastern United States.Measurements: Semi-structured interviews assessed the experiences of children and their caregivers during the COVID-19 pandemic throughout cancer treatment. A thematic content qualitative analysis identified themes.Results: Qualitative interviews highlighted three emergent themes regarding the shared experiences of children with cancer and their caregivers during the COVID-19 pandemic: (1) isolation, (2) psychological impact and (3) positive changes. Parents and children uniquely identified unshared themes of (4) virtual school and (5) sources of comfort, respectively.Conclusion: Children with cancer and their families experienced distressing medical challenges and negative psychological consequences throughout the COVID-19 pandemic. However, perceived 'silver linings' such as togetherness and self-care might serve as protective factors.","PeriodicalId":94055,"journal":{"name":"International journal of palliative nursing","volume":"31 12","pages":"586-596"},"PeriodicalIF":0.0,"publicationDate":"2025-12-02","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"145764766","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Attitudes of Palestinian nursing students toward family involvement in end-of-life care. 巴勒斯坦护理专业学生对家庭参与临终关怀的态度。

International journal of palliative nursing Pub Date : 2025-12-02 DOI: 10.12968/ijpn.2024.0060

Mohammed Qtait, Nesreen Alqaissi

{"title":"Attitudes of Palestinian nursing students toward family involvement in end-of-life care.","authors":"Mohammed Qtait, Nesreen Alqaissi","doi":"10.12968/ijpn.2024.0060","DOIUrl":"10.12968/ijpn.2024.0060","url":null,"abstract":"Background: Providing care for dying patients is a vital aspect of nursing practice, requiring emotional resilience and clinical competence. However, nursing students often exhibit varied attitudes toward end-of-life care, influenced by educational, personal and cultural factors. Understanding these attitudes is essential for developing effective nursing curricula.Aim: This study aimed to explore the attitudes of Palestinian undergraduate nursing students toward caring for dying patients and to identify the impact of academic progression and palliative care education on these attitudes.Methods: A cross-sectional correlational design was employed involving 355 third- and fourth-year nursing students from universities in the West Bank, Palestine. Data were collected using the Frommelt Attitudes Toward Care of the Dying Scale Form B (FATCOD-B) and analysed using SPSS version 26. Descriptive statistics, t-tests and Pearson correlations were used to assess attitudes and associated variables.Results: Students demonstrated generally positive attitudes toward caring for dying patients, with a mean FATCOD-B score of 103.5 (SD=8.30). Significant differences were observed by academic year (p=.015) and completion of a palliative care course (p<.001). Fourth-year students and those who had taken the course exhibited significantly more positive attitudes. A small but significant positive correlation was found between age and attitude (r=.143, p=.032).Conclusion: The findings underscore the positive impact of academic progression and structured palliative care education on students' attitudes. Incorporating end-of-life care training into nursing curricula is essential to enhance compassionate, culturally sensitive and competent care for dying patients and their families.","PeriodicalId":94055,"journal":{"name":"International journal of palliative nursing","volume":"31 12","pages":"577-584"},"PeriodicalIF":0.0,"publicationDate":"2025-12-02","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"145764817","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0