International journal of palliative nursing最新文献_第7页

Adults' perspectives of experiences and preferences for end-of-life care. 成年人对临终关怀的经验和偏好的看法。

International journal of palliative nursing Pub Date : 2023-12-02 DOI: 10.12968/ijpn.2023.29.12.588

Ya-Ling Huang, Shou-Yu Wang, Chun-Chih Lin, Fred Arne Thorberg, Chiung-Jung Jo Wu

{"title":"Adults' perspectives of experiences and preferences for end-of-life care.","authors":"Ya-Ling Huang, Shou-Yu Wang, Chun-Chih Lin, Fred Arne Thorberg, Chiung-Jung Jo Wu","doi":"10.12968/ijpn.2023.29.12.588","DOIUrl":"https://doi.org/10.12968/ijpn.2023.29.12.588","url":null,"abstract":"Background: Decisions about end-of-life care often raise clinical and ethical challenges, especially when the person's capacity to contribute in the decision making at the end of life is limited.Aim: This study aimed to explore Taiwanese adults' preferences associated with communication, healthcare planning, life-sustaining treatments and palliative care and experiences of end-of-life care.Methods: Semi-structured interviews were conducted with 16 adults aged 20 years and above. The sampling approach was a convenience strategy in a community centre located in a metropolitan area in the Southern region of Taiwan. A qualitative content analysis approach was used to elicit key themes from the data.Results: Significant findings related to the two main themes of adults' experiences, including the observed distress of those who were dying and the distress experienced by the family. Other key findings pertain to personal preferences for end-of-life care, such as preferred end-of-life communication, preparing for the end-of-life and maintenance of quality of life.Conclusions: This exploratory study offers insight into 16 Taiwanese community-dwelling adults' views of preferences regarding end-of-life communication, preparation for the end of life and maintenance of quality of life, as well as their experiences of end-of-life care. A further exploration is suggested to elicit how personal end-of-life experiences shape individuals' health practices in advance care planning for end-of-life care.","PeriodicalId":94055,"journal":{"name":"International journal of palliative nursing","volume":"29 12","pages":"588-596"},"PeriodicalIF":0.0,"publicationDate":"2023-12-02","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"138815332","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Relationship between quality of life, self-efficacy and social support in patients with multiple sclerosis. 多发性硬化症患者的生活质量、自我效能感和社会支持之间的关系。

International journal of palliative nursing Pub Date : 2023-12-02 DOI: 10.12968/ijpn.2023.29.12.598

Ilkay Zeynep Gurbuz, Semiha Akin

{"title":"Relationship between quality of life, self-efficacy and social support in patients with multiple sclerosis.","authors":"Ilkay Zeynep Gurbuz, Semiha Akin","doi":"10.12968/ijpn.2023.29.12.598","DOIUrl":"https://doi.org/10.12968/ijpn.2023.29.12.598","url":null,"abstract":"Background: Multiple sclerosis (MS) causes patients' perceptions of self-efficacy and social support to decline. Patients with MS have to change day-to-day activities and encounter various physical and psychosocial problems while adapting to the new lifestyle.Aims: The research aimed to define the quality of life, self-efficacy and social support in patients with MS and to determine the relationship between quality of life, perception of self-efficacy and perceived social support. It is descriptive and correlational research. Data were collected using surveys.Methods: The sample consisted of 116 patients with MS. Patients who applied at the neurology in-patient and outpatient clinics between March 2021 and September 2021 were assessed for inclusion criteria. Written and verbal consent was obtained. The patients read and answered the questionnaires. Their quality of life was assessed using the Functional Assessment of Multiple Sclerosis Scale (FAMS). Self-efficacy perception was measured using the General Self-Efficacy Scale (GSE), and social support was assessed using the Multidimensional Scale of Perceived Social Support (MSPSS).Results: The study found that the other concerns, symptoms, thinking and fatigue were most negatively affected the quality of life subscales. Perception of self-efficacy was found to be moderate, while social support was high. Analyses revealed a positive correlation between MSPSS scores, FAMS scores and GSE scores (p<0.05).Conclusion: Health professionals need to provide education and counselling to manage MS-related symptoms, use therapeutic communication techniques to improve self-efficacy, give positive reinforcement and cooperate with families to increase social support.","PeriodicalId":94055,"journal":{"name":"International journal of palliative nursing","volume":"29 12","pages":"598-612"},"PeriodicalIF":0.0,"publicationDate":"2023-12-02","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"138815340","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

An evaluation of an online education programme to improve nurses' ability to support carers to use subcutaneous medicines. 一项在线教育计划的评估，该计划旨在提高护士支持护理人员使用皮下药物的能力。

International journal of palliative nursing Pub Date : 2023-11-02 DOI: 10.12968/ijpn.2023.29.11.538

Deborah Parker, Liz Reymond, Karen Cooper, Jennifer Tieman, Serra Ivynian

{"title":"An evaluation of an online education programme to improve nurses' ability to support carers to use subcutaneous medicines.","authors":"Deborah Parker, Liz Reymond, Karen Cooper, Jennifer Tieman, Serra Ivynian","doi":"10.12968/ijpn.2023.29.11.538","DOIUrl":"10.12968/ijpn.2023.29.11.538","url":null,"abstract":"Background: Most Australians say they wish to die at home, but many are admitted to inpatient facilities for symptom management. Caring@home resources can be used to support informal carers to manage breakthrough symptoms safely using subcutaneous medicines. Nurses require education about how to teach informal carers to use these resources.Aim: To evaluate the effectiveness and relevance of an online education programme for registered nurses (RNs) about using the caring@home resources.Methods: Nurses must complete an online survey prior to the commencement of the online education programme and again upon completion to assess their change in skills, knowledge, confidence and attitudes of the RNs. T-tests were conducted to compare average pre- and post-education scores.Findings: The knowledge, skills and confidence of RNs to teach carers improved significantly following the completion of an education programme. There was a significant change in attitude, meaning that the perceived benefit of teaching informal carers to give subcutaneous medicines improved. All reported they would use the resources in their clinical practice.Conclusion: The online education programme is an effective and cost-efficient strategy to educate nurses to support informal carers to help manage breakthrough symptoms using subcutaneous medicines.","PeriodicalId":94055,"journal":{"name":"International journal of palliative nursing","volume":"29 11","pages":"538-546"},"PeriodicalIF":0.0,"publicationDate":"2023-11-02","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"138471363","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

End-of-life care in the patient's home. 病人家中的临终关怀。

International journal of palliative nursing Pub Date : 2023-11-02 DOI: 10.12968/ijpn.2023.29.11.528

Pretty Manyimo, Kay de Vries

{"title":"End-of-life care in the patient's home.","authors":"Pretty Manyimo, Kay de Vries","doi":"10.12968/ijpn.2023.29.11.528","DOIUrl":"10.12968/ijpn.2023.29.11.528","url":null,"abstract":"Background: Providing end-of-life care in a patient's home is challenging, especially if the nurse is from a different ethnic background from the patient. Evidence shows that people from an ethnic minority background often experience poorer end-of-life care due to care providers not understanding their care needs.Aim: To explore the experiences of community nursing staff caring for patients with an ethnic minority background at the end of their life.Method: Using a qualitative descriptive approach, 16 semi-structured interviews were conducted and the data was thematically analysed.Finding: Participants dealt with large tight-knit families, paternalism and controlling behaviours. There was a mistrust of Western palliative medicine. Language barriers and challenges were faced by the nursing staff, resulting in difficult conversations with the families. Different levels of the nursing staff's spiritual/cultural competencies were also identified. The COVID-19 pandemic intensified the challenges.Conclusion: This research has shed light on the challenges of individualising end-of-life care in a culturally diverse community in the UK. The nursing staff's cultural/spiritual competencies were challenged.","PeriodicalId":94055,"journal":{"name":"International journal of palliative nursing","volume":"29 11","pages":"528-536"},"PeriodicalIF":0.0,"publicationDate":"2023-11-02","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"138471366","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Changes in hair cortisol levels and cognitive function among older patients in palliative care. 姑息治疗中老年患者头发皮质醇水平和认知功能的变化。

International journal of palliative nursing Pub Date : 2023-11-02 DOI: 10.12968/ijpn.2023.29.11.556

Rosana Ribić, Tina Košanski, Marijana Neuberg, Tomislav Meštrović

引用次数: 0

Research Roundup. 研究综述。

International journal of palliative nursing Pub Date : 2023-11-02 DOI: 10.12968/ijpn.2023.29.11.562

Laura Green

引用次数: 0

Effectiveness of home-based palliative care programmes for older people and their family caregivers in Thailand. 泰国老年人及其家庭照顾者家庭姑息治疗规划的有效性。

International journal of palliative nursing Pub Date : 2023-11-02 DOI: 10.12968/ijpn.2023.29.11.518

Kanyanat Supaporn, Sang-Arun Isaramalai, Uayart Chuchuen, Patcharin Manee

{"title":"Effectiveness of home-based palliative care programmes for older people and their family caregivers in Thailand.","authors":"Kanyanat Supaporn, Sang-Arun Isaramalai, Uayart Chuchuen, Patcharin Manee","doi":"10.12968/ijpn.2023.29.11.518","DOIUrl":"10.12968/ijpn.2023.29.11.518","url":null,"abstract":"Background: People in Thailand receiving palliative care at home can have complex needs and this means that the family caregiver can have a high burden of care.Aim: To assess the impact of a nursing care activities for a home-based palliative care programme (NHBPC) on the care burden among family caregivers and the care quality in older people at the palliative care stage.Methods: This quasi-experimental repeated measure study was used to investigate the effects of the nursing care activities for a NHBPC programme.Results: The mean caregiving burden and care quality scores in the experimental and control groups at post-test and 2-weeks follow-up showed significant differences (p<.05). In addition, improvement was not seen in the control group.Conclusion: The NHBPC programme significantly improved caregiving burden and quality of care in Thai older people and their family caregiver. This confirms that the NHBPC programme plays a crucial role in helping them to improve quality of life.","PeriodicalId":94055,"journal":{"name":"International journal of palliative nursing","volume":"29 11","pages":"518-526"},"PeriodicalIF":0.0,"publicationDate":"2023-11-02","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"138471365","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Only the dead have seen the end of war. 只有死者才能看到战争的结束。

International journal of palliative nursing Pub Date : 2023-11-02 DOI: 10.12968/ijpn.2023.29.11.517

Dion Smyth

{"title":"Only the dead have seen the end of war.","authors":"Dion Smyth","doi":"10.12968/ijpn.2023.29.11.517","DOIUrl":"10.12968/ijpn.2023.29.11.517","url":null,"abstract":"Always Lost is a unique collection of photographs, poems, and prose that recognizes the sacrifices of our American troops in Iraq and Afghanistan. Retired Marine Corps Major Kevin Burns titled the exhibition after an observation by American writer Gertrude Stein: “War is never fatal but always lost. Always lost.” A sacred space in which to contemplate the personal and collective costs of war, Always Lost features the Wall of the Dead, photos and names of nearly 6,000 American service members who have perished in the Middle East since September 11, 2001; the literary work they inspired; Pulitzer Prize-winning combat photos by David Leeson and Cheryl Diaz Meyer (The Dallas Morning News); interviews and portraits of Iraq/Afghanistan student-veterans from Western Nevada College; and the poetry and profile of SPC Noah Pierce, who took his own life after serving two tours in Iraq. Your donation will support the effort to keep the Wall of the Dead current and to send Always Lost throughout the U.S. to colleges, universities, and veterans’ groups who are interested in hosting the exhibit. The exhibition’s national tour began at the University of Wisconsin, Marinette in fall 2010 and is currently scheduled through mid-2013. Always Lost has been invited to Washington D.C. by members of the U.S. Senate.","PeriodicalId":94055,"journal":{"name":"International journal of palliative nursing","volume":"29 11","pages":"517"},"PeriodicalIF":0.0,"publicationDate":"2023-11-02","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"138471367","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 1

Palliative care: economic challenges for researchers. 缓和医疗:研究人员面临的经济挑战。

International journal of palliative nursing Pub Date : 2023-11-02 DOI: 10.12968/ijpn.2023.29.11.548

Joana C Vieira

引用次数: 0

Preferred place of death challenges the allocation of health resources in Iran. 首选死亡地点对伊朗卫生资源的分配提出了挑战。

International journal of palliative nursing Pub Date : 2023-11-02 DOI: 10.12968/ijpn.2023.29.11.553

Armin Fereidouni, Maryam Rassouli, Maryam Karami, Maryam Pakseresht, Salman Barasteh

引用次数: 0