失去亲人的照顾者的经验,一个伙伴关系模式的小时后和延长姑息治疗提供在澳大利亚农村。

Pauline Smith, Graeme Browne, David Schmidt
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引用次数: 0

摘要

背景:护理人员是实现有效的以家庭为基础的姑息治疗的基础。农村地区无法获得非工作时间探访的姑息治疗和非临床家庭支助,增加了护理人员的负担,增加了计划外住院,并影响了患者在家中死亡的能力。为了支持居家临终关怀,新南威尔士州政府批准了社区专业姑息治疗服务和非政府组织之间的伙伴关系模式,以提供临终支持一揽子计划,以加强非工作时间的获取和非临床支持。目的:探讨在此模式下,丧失亲人的农村照顾者支持在家死亡的体验。方法:有目的地招募获得生命支持包贷款的丧亲照护者。共进行了10次半结构化访谈。使用解释现象学分析对数据进行主题分析。定性研究综合报告准则(COREQ)框架指导研究报告。研究结果:合作、下班后的探视和延长的非临床支持促进了患者家中的临终关怀。该研究的参与者对这种伙伴关系有积极的体验。结论:这种综合模式解决了现有的服务差距,最大限度地提高了护理人员的支持,并促进了家庭死亡。需要进一步的公共政策、资金和研究来支持农村综合姑息治疗模式。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
Bereaved carers' experiences of a partnership model of after-hours and extended palliative care delivery in rural Australia.

Background: Caregivers are fundamental to achieving effective home-based palliative care. Lack of access to after-hours visiting palliative care and non-clinical home support in rural areas increases caregiver burden, unplanned hospital admissions and impacts patients' ability to die at home. To support end-of-life care at home, the New South Wales Government endorsed partnership models between specialist community-based palliative services and non-government organisations to provide end of life support packages to enhance after-hours access and non-clinical support.

Aim: To explore bereaved rural carers' experiences of supporting dying at home within this model.

Method: Bereaved carers accessing lend of life support packages were purposively recruited. A total of 10 semi-structured interviews were conducted. Data was thematically analysed using interpretive phenomenological analysis. The COnsolidated criteria for REporting Qualitative research (COREQ) framework guided study reporting.

Findings: Collaboration, after-hours visiting access and extended non-clinical support facilitated end-of-life care at the patient's home. Participants of the study had a positive experience of this partnership.

Conclusion: This integrative model addressed existing service gaps, maximised carer support and facilitated home deaths. Further public policy, funding and research is needed to support integrated rural palliative care models.

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