{"title":"失去亲人的照顾者的经验,一个伙伴关系模式的小时后和延长姑息治疗提供在澳大利亚农村。","authors":"Pauline Smith, Graeme Browne, David Schmidt","doi":"10.12968/ijpn.2024.0003","DOIUrl":null,"url":null,"abstract":"<p><strong>Background: </strong>Caregivers are fundamental to achieving effective home-based palliative care. Lack of access to after-hours visiting palliative care and non-clinical home support in rural areas increases caregiver burden, unplanned hospital admissions and impacts patients' ability to die at home. To support end-of-life care at home, the New South Wales Government endorsed partnership models between specialist community-based palliative services and non-government organisations to provide end of life support packages to enhance after-hours access and non-clinical support.</p><p><strong>Aim: </strong>To explore bereaved rural carers' experiences of supporting dying at home within this model.</p><p><strong>Method: </strong>Bereaved carers accessing lend of life support packages were purposively recruited. A total of 10 semi-structured interviews were conducted. Data was thematically analysed using interpretive phenomenological analysis. The COnsolidated criteria for REporting Qualitative research (COREQ) framework guided study reporting.</p><p><strong>Findings: </strong>Collaboration, after-hours visiting access and extended non-clinical support facilitated end-of-life care at the patient's home. Participants of the study had a positive experience of this partnership.</p><p><strong>Conclusion: </strong>This integrative model addressed existing service gaps, maximised carer support and facilitated home deaths. Further public policy, funding and research is needed to support integrated rural palliative care models.</p>","PeriodicalId":94055,"journal":{"name":"International journal of palliative nursing","volume":"30 5","pages":"180-190"},"PeriodicalIF":0.0000,"publicationDate":"2025-05-02","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":"0","resultStr":"{\"title\":\"Bereaved carers' experiences of a partnership model of after-hours and extended palliative care delivery in rural Australia.\",\"authors\":\"Pauline Smith, Graeme Browne, David Schmidt\",\"doi\":\"10.12968/ijpn.2024.0003\",\"DOIUrl\":null,\"url\":null,\"abstract\":\"<p><strong>Background: </strong>Caregivers are fundamental to achieving effective home-based palliative care. Lack of access to after-hours visiting palliative care and non-clinical home support in rural areas increases caregiver burden, unplanned hospital admissions and impacts patients' ability to die at home. To support end-of-life care at home, the New South Wales Government endorsed partnership models between specialist community-based palliative services and non-government organisations to provide end of life support packages to enhance after-hours access and non-clinical support.</p><p><strong>Aim: </strong>To explore bereaved rural carers' experiences of supporting dying at home within this model.</p><p><strong>Method: </strong>Bereaved carers accessing lend of life support packages were purposively recruited. A total of 10 semi-structured interviews were conducted. Data was thematically analysed using interpretive phenomenological analysis. The COnsolidated criteria for REporting Qualitative research (COREQ) framework guided study reporting.</p><p><strong>Findings: </strong>Collaboration, after-hours visiting access and extended non-clinical support facilitated end-of-life care at the patient's home. Participants of the study had a positive experience of this partnership.</p><p><strong>Conclusion: </strong>This integrative model addressed existing service gaps, maximised carer support and facilitated home deaths. Further public policy, funding and research is needed to support integrated rural palliative care models.</p>\",\"PeriodicalId\":94055,\"journal\":{\"name\":\"International journal of palliative nursing\",\"volume\":\"30 5\",\"pages\":\"180-190\"},\"PeriodicalIF\":0.0000,\"publicationDate\":\"2025-05-02\",\"publicationTypes\":\"Journal Article\",\"fieldsOfStudy\":null,\"isOpenAccess\":false,\"openAccessPdf\":\"\",\"citationCount\":\"0\",\"resultStr\":null,\"platform\":\"Semanticscholar\",\"paperid\":null,\"PeriodicalName\":\"International journal of palliative nursing\",\"FirstCategoryId\":\"1085\",\"ListUrlMain\":\"https://doi.org/10.12968/ijpn.2024.0003\",\"RegionNum\":0,\"RegionCategory\":null,\"ArticlePicture\":[],\"TitleCN\":null,\"AbstractTextCN\":null,\"PMCID\":null,\"EPubDate\":\"\",\"PubModel\":\"\",\"JCR\":\"\",\"JCRName\":\"\",\"Score\":null,\"Total\":0}","platform":"Semanticscholar","paperid":null,"PeriodicalName":"International journal of palliative nursing","FirstCategoryId":"1085","ListUrlMain":"https://doi.org/10.12968/ijpn.2024.0003","RegionNum":0,"RegionCategory":null,"ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":null,"EPubDate":"","PubModel":"","JCR":"","JCRName":"","Score":null,"Total":0}
Bereaved carers' experiences of a partnership model of after-hours and extended palliative care delivery in rural Australia.
Background: Caregivers are fundamental to achieving effective home-based palliative care. Lack of access to after-hours visiting palliative care and non-clinical home support in rural areas increases caregiver burden, unplanned hospital admissions and impacts patients' ability to die at home. To support end-of-life care at home, the New South Wales Government endorsed partnership models between specialist community-based palliative services and non-government organisations to provide end of life support packages to enhance after-hours access and non-clinical support.
Aim: To explore bereaved rural carers' experiences of supporting dying at home within this model.
Method: Bereaved carers accessing lend of life support packages were purposively recruited. A total of 10 semi-structured interviews were conducted. Data was thematically analysed using interpretive phenomenological analysis. The COnsolidated criteria for REporting Qualitative research (COREQ) framework guided study reporting.
Findings: Collaboration, after-hours visiting access and extended non-clinical support facilitated end-of-life care at the patient's home. Participants of the study had a positive experience of this partnership.
Conclusion: This integrative model addressed existing service gaps, maximised carer support and facilitated home deaths. Further public policy, funding and research is needed to support integrated rural palliative care models.