IF 5.2 2区心理学

Autism Pub Date : 2024-09-28 DOI: 10.1177/13623613241281029

Paulina Buffle, Thalia Cavadini, María de Lourdes Ortega, Cristina Armijos, Patricia Soto, Edouard Gentaz, Laura Crane

{"title":"Journeys towards accessing an autism diagnosis and associated support: A survey of families of autistic children in Ecuador.","authors":"Paulina Buffle, Thalia Cavadini, María de Lourdes Ortega, Cristina Armijos, Patricia Soto, Edouard Gentaz, Laura Crane","doi":"10.1177/13623613241281029","DOIUrl":"https://doi.org/10.1177/13623613241281029","url":null,"abstract":"Lay abstract: There has been much research about the experiences of families of autistic children as they navigate the process of accessing a diagnosis and associated support. However, most of this work has been conducted in Europe, the United States, and Australia. In this study, we examined the experiences of 767 families in Ecuador via an in-depth survey. Of the families we surveyed, 651 had children whose journeys resulted in them receiving a formal autism diagnosis. Most families realized that their children might have developmental differences when they were between the ages of 6 and 48 months, after which they tended to seek support from a professional fairly quickly (i.e. within 6 months). Most families consulted with several different professionals before they accessed a diagnosis for their children, with children tending to receive a diagnosis before the age of 48 months. Families often reported negative emotions around their children's diagnostic and post-diagnostic journeys, which were commonly related to the lack of information and services available to them. We hope that through gaining a greater understanding of the experiences of families of autistic children in Ecuador, these findings can be used to inform public policies that lead to the development of supports and services that better meet the needs of autistic people and their families in this context.","PeriodicalId":8724,"journal":{"name":"Autism","volume":null,"pages":null},"PeriodicalIF":5.2,"publicationDate":"2024-09-28","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142340237","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"心理学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Is neurodiversity a Global Northern White paradigm? 神经多样性是全球北方白人的范式吗？

IF 5.2 2区心理学

Autism Pub Date : 2024-09-21 DOI: 10.1177/13623613241280835

Vishnu Kk Nair, Warda Farah, Mildred Boveda

{"title":"Is neurodiversity a Global Northern White paradigm?","authors":"Vishnu Kk Nair, Warda Farah, Mildred Boveda","doi":"10.1177/13623613241280835","DOIUrl":"https://doi.org/10.1177/13623613241280835","url":null,"abstract":"Lay abstract: Scholarship addressing neurodiversity has made enormous progress in challenging and providing alternative narratives to the dominant frameworks of medical model. Although this is a necessary and important development, scholars need to think and act beyond the immediate local context of theory generation (Global North-mainly the United Kingdom and the United States) and examine its impact on the racialized neurodivergent individuals of the Global Majority. This article will provide a decolonial framework that has been missing in the neurodiversity scholarship. The arguments presented in the article aligns well with the goals of critical autism studies and will further inform the knowledge in this area. Through a decolonial lens, this article brings the crucial issue of knowledge production outside of Global Northern countries, specifically, knowledge systems from the Global South that have parallels with neurodiversity. The article frames neurodiversity as part of an interconnected knowledge continuum rather than considering Global North alone as the only loci of knowledge production. Furthermore, it highlights the lack of focus on the intersections between racialisation and neurodivergence and the implications of this for the racialized neurodivergent individuals of the global majority. The article provides new avenues for theoretical discourses to emerge within the academy. It will have important research implications in relation to how neurodiversity will be viewed and framed outside Global Northern countries. The article highlights the importance of engaging in intersectional and interdisciplinary research and establishing a critical link with the scholars of neurodiversity, critical autism studies, and disability critical race studies.","PeriodicalId":8724,"journal":{"name":"Autism","volume":null,"pages":null},"PeriodicalIF":5.2,"publicationDate":"2024-09-21","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142279950","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"心理学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Is there evidence that playing games promotes social skills training for autistic children and youth? 是否有证据表明玩游戏能促进自闭症儿童和青少年的社交技能训练？

IF 5.2 2区心理学

Autism Pub Date : 2024-09-21 DOI: 10.1177/13623613241277309

Orla Walsh, Conor Linehan, Christian Ryan

{"title":"Is there evidence that playing games promotes social skills training for autistic children and youth?","authors":"Orla Walsh, Conor Linehan, Christian Ryan","doi":"10.1177/13623613241277309","DOIUrl":"https://doi.org/10.1177/13623613241277309","url":null,"abstract":"Lay abstract: There is growing interest in using games to help autistic children and youth learn social skills. However, there is no clear agreement on the best way to design these games to ensure they are most effective. In our research, we reviewed studies that used games to teach social skills to autistic children and youth. We aimed to describe the different types of games, identify which ones were most successful and understand the psychological methods used. We searched five databases and found 3070 studies, which we narrowed down to 17 that met our criteria. Each of these 17 studies reported that their game helped improve social skills in autistic children. Interestingly, all these studies used some form of technology, even though this was not a requirement. However, we noticed that many studies were not clear on what specific social skills they were targeting or how they defined 'social skills'. For future work, we suggest that game-based interventions should be more clearly based on established theories. In addition, it is important to involve autistic people in the design of these games to ensure they meet their needs effectively.","PeriodicalId":8724,"journal":{"name":"Autism","volume":null,"pages":null},"PeriodicalIF":5.2,"publicationDate":"2024-09-21","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142279951","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"心理学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Short report: Prison-reported rates of autism in female prisons in England. 简短报告：监狱报告的英格兰女子监狱自闭症发病率。

IF 5.2 2区心理学

Autism Pub Date : 2024-09-19 DOI: 10.1177/13623613241275477

Katy-Louise Payne, Emma Gooding

{"title":"Short report: Prison-reported rates of autism in female prisons in England.","authors":"Katy-Louise Payne, Emma Gooding","doi":"10.1177/13623613241275477","DOIUrl":"https://doi.org/10.1177/13623613241275477","url":null,"abstract":"Lay abstract: What is already known about the topic? Autistic people are reported to offend at lower or comparable rates to non-autistic people. However, autism is overrepresented within male prisons due to a number of suggested reasons including an increased chance of being caught and a lack of autistic sensitive interventions which lead to longer stays in prison. To the authors' knowledge, no papers currently exist focussing on autistic females in prison. What does this paper add? To the authors' knowledge, this is the first piece of research to solely include autistic females in prison settings. This research provides an estimate of how many autistic people are in female prisons. All 12 female prisons in England were contacted. Data provided indicate a prison-reported female autism rate of 4.78%. This prison-reported female autism rate is 13.7 times higher than the prevalence of autistic females in the general population. Implications for practice research or policy? Autism is overrepresented in female prisons; however, to the authors' knowledge no current research exists on this group to understand their needs or experience. Autistic females often have differing requirements to males and the lack of research highlights the need for future research to investigate areas such as factors which increase the risk of offending, offences typically committed and the female autistic experience of the Criminal Justice System.","PeriodicalId":8724,"journal":{"name":"Autism","volume":null,"pages":null},"PeriodicalIF":5.2,"publicationDate":"2024-09-19","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142279955","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"心理学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Community views of neurodiversity, models of disability and autism intervention: Mixed methods reveal shared goals and key tensions. 社区对神经多样性、残疾模式和自闭症干预的看法：混合方法揭示了共同目标和主要矛盾。

IF 5.2 2区心理学

Autism Pub Date : 2024-09-18 DOI: 10.1177/13623613241273029

Patrick Dwyer, Ava N Gurba, Steven K Kapp, Elizabeth Kilgallon, Lynnette H Hersh, David S Chang, Susan M Rivera, Kristen Gillespie-Lynch

{"title":"Community views of neurodiversity, models of disability and autism intervention: Mixed methods reveal shared goals and key tensions.","authors":"Patrick Dwyer, Ava N Gurba, Steven K Kapp, Elizabeth Kilgallon, Lynnette H Hersh, David S Chang, Susan M Rivera, Kristen Gillespie-Lynch","doi":"10.1177/13623613241273029","DOIUrl":"https://doi.org/10.1177/13623613241273029","url":null,"abstract":"Lay abstract: What is already known about the topic? Some people support the neurodiversity movement and other people criticize it. They often disagree about what the neurodiversity movement means. Confusion about what the neurodiversity movement is makes it hard for people to agree about how best to support autistic or disabled people.What does this article add? We studied autistic and autism community members' views on the neurodiversity movement and autism interventions. Most participants supported the neurodiversity movement. Support for the neurodiversity movement was related to wanting to change society and make places more comfortable for autistic people. Neurodiversity supporters felt autistic children should choose their own intervention goals and that autistic adults should help children choose goals. Neurodiversity supporters did not think autistic people should be taught to act less autistic. Both those agreeing and disagreeing with the neurodiversity movement said that it is important to help autistic people be well. Many participants said that society causes all the difficulties disabled people experience. Yet they were somewhat open to helping people grow by teaching them useful skills and trying to cure depression and epilepsy.Implications for practice, research or policy. To better help autistic people, we should listen to participants in this study. They called for improving society, building more spaces where autistic people feel comfortable and helping autistic people lead change. They warned against teaching autistic people to hide their autism. Critics of the neurodiversity movement should read this article to better understand what neurodiversity movement supporters believe. By taking time to learn from one another, we can work together to better support autistic people.","PeriodicalId":8724,"journal":{"name":"Autism","volume":null,"pages":null},"PeriodicalIF":5.2,"publicationDate":"2024-09-18","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142279947","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"心理学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

The development, feasibility and acceptability of Empower-Autism: A new psychoeducational and psychotherapeutic programme for caregivers of children recently diagnosed with autism. Empower-Autism 的开发、可行性和可接受性：针对新近被诊断为自闭症儿童的照顾者的新心理教育和心理治疗计划。

IF 5.2 2区心理学

Autism Pub Date : 2024-09-18 DOI: 10.1177/13623613241274566

Kathy Leadbitter, Louisa Harrison, Sophie Langhorne, Ceri Ellis, Richard Smallman, Amelia Pearson, Latha Hackett, Leo Kroll, Alison Dunkerley, Hilary Beach, June Gilbert, Amy van Gils, Tessa Hutton, Jonathan Green, Penny Bee

{"title":"The development, feasibility and acceptability of Empower-Autism: A new psychoeducational and psychotherapeutic programme for caregivers of children recently diagnosed with autism.","authors":"Kathy Leadbitter, Louisa Harrison, Sophie Langhorne, Ceri Ellis, Richard Smallman, Amelia Pearson, Latha Hackett, Leo Kroll, Alison Dunkerley, Hilary Beach, June Gilbert, Amy van Gils, Tessa Hutton, Jonathan Green, Penny Bee","doi":"10.1177/13623613241274566","DOIUrl":"https://doi.org/10.1177/13623613241274566","url":null,"abstract":"Lay abstract: What is already known about the topic?Parents and carers face many challenges following their child's autism diagnosis. They often look for information, and social and emotional support. There has been relatively little research into how best to provide this support and this means that there is no evidence to guide the delivery of services. Studies have suggested that an approach called Acceptance and Commitment Therapy can help parents and carers with their adjustment and emotional wellbeing.What does this article add?This article describes the development of a new group-based programme to address the diverse needs of caregivers after their child's autism diagnosis. The new programme was developed with caregivers, autistic people and professionals. It was called Empower-Autism and contained lots of information about autism and strategies to support autistic children, alongside therapeutic aspects based on Acceptance and Commitment Therapy. The programme was delivered to 29 parents/carers in three groups. Attendance at the groups was satisfactory. Both parents/carers and facilitators liked and valued the programme and found it accessible. They made suggestions for improvements. After the programme, parents and carers described improved wellbeing. They felt more positive and more connected to other people. They also described parenting their child in a more informed and sensitive way.Implications for practice, research or policyThe new programme is being tested within a large clinical trial. If there are positive results, the programme could be recommended for delivery and this would address an important gap in evidence-based practice.","PeriodicalId":8724,"journal":{"name":"Autism","volume":null,"pages":null},"PeriodicalIF":5.2,"publicationDate":"2024-09-18","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142279956","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"心理学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Autism and emotion recognition technologies in the workplace. 工作场所的自闭症和情绪识别技术。

IF 5.2 2区心理学

Autism Pub Date : 2024-09-16 DOI: 10.1177/13623613241279704

Amelia Katirai

{"title":"Autism and emotion recognition technologies in the workplace.","authors":"Amelia Katirai","doi":"10.1177/13623613241279704","DOIUrl":"https://doi.org/10.1177/13623613241279704","url":null,"abstract":"Lay abstract: Technologies using artificial intelligence to recognize people's emotional states are increasingly being developed under the name of emotional recognition technologies. Emotion recognition technologies claim to identify people's emotional states based on data, like facial expressions. This is despite research providing counterevidence that emotion recognition technologies are founded on bad science and that it is not possible to correctly identify people's emotions in this way. The use of emotion recognition technologies is widespread, and they can be harmful when they are used in the workplace, especially for autistic workers. Although previous research has shown that the origins of emotion recognition technologies relied on autistic people, there has been little research on the impact of emotion recognition technologies on autistic people when it is used in the workplace. Through a review of recent academic studies, this article looks at the development and implementation processes of emotion recognition technologies to show how autistic people in particular may be disadvantaged or harmed by the development and use of the technologies. This article closes with a call for more research on autistic people's perception of the technologies and their impact, with involvement from diverse participants.","PeriodicalId":8724,"journal":{"name":"Autism","volume":null,"pages":null},"PeriodicalIF":5.2,"publicationDate":"2024-09-16","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142279944","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"心理学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Insistence on sameness, repetitive negative thinking and mental health in autistic and non-autistic adults. 自闭症和非自闭症成人对同一性的坚持、重复性消极思维和心理健康。

IF 5.2 2区心理学

Autism Pub Date : 2024-09-14 DOI: 10.1177/13623613241275468

Kate Cooper, Ailsa Russell

{"title":"Insistence on sameness, repetitive negative thinking and mental health in autistic and non-autistic adults.","authors":"Kate Cooper, Ailsa Russell","doi":"10.1177/13623613241275468","DOIUrl":"https://doi.org/10.1177/13623613241275468","url":null,"abstract":"Lay abstract: Autistic people are more likely to have mental health problems than non-autistic people. We know that having repetitive and negative thoughts can contribute to multiple mental health problems such as depression and obsessive-compulsive disorder. Autistic people often do the same behaviours repetitively, and they may also have more repetitive thinking styles. This could contribute to higher rates of mental health problems in autistic people. In this research, we wanted to find out if higher rates of repetitive behaviours contributed to depression and anxiety, and whether this relationship was because of repetitive negative thinking. We asked three groups of autistic adults to take part in the research. Sixty-seven autistic clinical participants were recruited from clinical settings and had moderate depression. Fifty-four autistic community participants and 66 non-autistic community participants were recruited from community settings. All participants completed measures of repetitive behaviours; a measure of anxiety and depression; and two measures of repetitive negative thinking (ruminating and obsessing). Autistic community participants had significantly higher repetitive behaviours, rumination and obsessing scores than non-autistic community participants. We found that higher rates of repetitive behaviours contributed to more repetitive thinking (obsessing and ruminating), which contributed to higher rates of depression and anxiety. The higher rates of repetitive negative thinking found in autistic individuals may contribute to higher rates of mental health problems in this group. Mental health assessments and interventions for autistic people should therefore consider the role of multiple forms of repetitive negative cognition and behaviour, which cut across diagnostic categories such as anxiety, depression and obsessive-compulsive disorder. These should be considered when aiming to understand why individuals develop mental health conditions and why these conditions persist.","PeriodicalId":8724,"journal":{"name":"Autism","volume":null,"pages":null},"PeriodicalIF":5.2,"publicationDate":"2024-09-14","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142279949","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"心理学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Parental experiences of raising an autistic child in Ireland: A qualitative thematic analysis. 爱尔兰父母抚养自闭症儿童的经验：定性专题分析。

IF 5.2 2区心理学

Autism Pub Date : 2024-09-12 DOI: 10.1177/13623613241277040

Sally Whelan, Niall Caulfield, Sinéad O'Doherty, Arlene Mannion, Geraldine Leader

{"title":"Parental experiences of raising an autistic child in Ireland: A qualitative thematic analysis.","authors":"Sally Whelan, Niall Caulfield, Sinéad O'Doherty, Arlene Mannion, Geraldine Leader","doi":"10.1177/13623613241277040","DOIUrl":"https://doi.org/10.1177/13623613241277040","url":null,"abstract":"Lay abstract: Parenting an autistic child can be a challenging experience. Parents of autistic children often require social and professional support to cope with the various stresses they encounter and to ensure their children achieve their optimal potential. Recently, the way professional supports are organised in Ireland has changed. Very little previous recent research has investigated parents' experiences of raising an autistic child in Ireland. This study interviewed six parents asking them about their challenges, stress levels, coping strategies and their perceptions regarding professional support services. The data from these interviews were organised into themes. A major finding was that parents felt the healthcare system was failing to provide help for their children, and that support services in Ireland can cause more parental distress than dealing with their child's difficulties. Other causes of parental stress included the child's behaviours that they found challenging, stigma, a lack of awareness about autism and isolation. This study shows that both autistic children and their parents are at increased risk of developing mental health problems due to a flawed healthcare system that requires improvement urgently.","PeriodicalId":8724,"journal":{"name":"Autism","volume":null,"pages":null},"PeriodicalIF":5.2,"publicationDate":"2024-09-12","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142279952","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"心理学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Can combining existing behavioral tools improve identification of infants at elevated likelihood of autism in the first year of life? 结合现有的行为学工具，能否更好地识别出生后第一年内患自闭症可能性较高的婴儿？

IF 5.2 2区心理学

Autism Pub Date : 2024-09-12 DOI: 10.1177/13623613241275455

Meagan R Talbott, Gregory S Young, Sally Ozonoff

{"title":"Can combining existing behavioral tools improve identification of infants at elevated likelihood of autism in the first year of life?","authors":"Meagan R Talbott, Gregory S Young, Sally Ozonoff","doi":"10.1177/13623613241275455","DOIUrl":"10.1177/13623613241275455","url":null,"abstract":"Lay abstract: Many families have concerns about their infants' development in the first year of life. Current screeners cannot tell whether these differences might be related to autism, developmental delays, or likely to resolve on their own. As a result, many families are told to \"wait and see.\" In this study, we looked at whether combining multiple behavior measures can improve prediction of outcomes in toddlerhood. This could help to provide families with more information about the significance of early behavioral differences. We assessed 256 infants with an older autistic sibling at 6, 9, and 12 months. We created three markers of behavioral differences at these ages. We looked at whether infants who had two or more markers were more likely to be on the autism spectrum or have other developmental differences than to have typically developing outcomes at 36 months. We found that very few infants had more than one marker at any age. However, infants who showed two or more markers were more likely to be on the spectrum or have other developmental differences at 36 months than infants who showed only one marker. These findings suggest that when behavioral differences are present on multiple measures, there is no need to wait and see before referring for services.","PeriodicalId":8724,"journal":{"name":"Autism","volume":null,"pages":null},"PeriodicalIF":5.2,"publicationDate":"2024-09-12","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142279946","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"心理学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Autism最新文献