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COVID-19 health distress among autistic adults: Does psychological flexibility explain effects of health distress on mental health concerns? 自闭症成年人的COVID-19健康困扰:心理灵活性能否解释健康困扰对心理健康问题的影响?
IF 5.2 2区 心理学
Autism Pub Date : 2025-05-01 Epub Date: 2025-01-25 DOI: 10.1177/13623613241313403
Ty B Aller, Heather H Kelley, Audrey Juhasz, Benjamin Covington
{"title":"COVID-19 health distress among autistic adults: Does psychological flexibility explain effects of health distress on mental health concerns?","authors":"Ty B Aller, Heather H Kelley, Audrey Juhasz, Benjamin Covington","doi":"10.1177/13623613241313403","DOIUrl":"10.1177/13623613241313403","url":null,"abstract":"<p><p>The COVID-19 pandemic caused significant health distress among autistic adults in the United States. While there is considerable evidence that autistic adults' COVID-19 health distress was related to increases in mental health concerns (e.g. depression, anxiety, and stress), there is a less clear understanding of the possible mechanisms by which this process occurs. Accordingly, our participatory action research team assessed whether psychological flexibility, a strengths-based mechanism from acceptance and commitment therapy, mediated the association between COVID-19-related health distress and mental health concerns (e.g. depression, anxiety, and stress). We found that among 281 autistic adults the positive relationship between COVID-19 health distress and mental health concerns was partially mediated by values progress (a component of psychological flexibility) and values obstruction (a component of psychological inflexibility). Results provide preliminary support that the strengths-based mechanism of psychological flexibility might be a salient therapeutic target to improve mental health among autistic adults experiencing health distress.Lay Abstract<b><i>What is already known?</i></b>In the United States, the COVID-19 Pandemic caused many autistic adults to be fearful and worried about their health. There is a lot of research that says that when autistic adults experience health distress it can worsen their mental health. We do not know, however, what might explain how experiencing health distress negatively affects mental health. Because of this, our participatory action research team wanted to understand if there are strengths-based processes that help us understand the relationship between health distress and mental health concerns.<b><i>What does this paper add?</i></b>We examined among 281 autistic adults how a strengths-based construct from acceptance and commitment therapy called psychological flexibility might explain the relationship between health distress and mental health concerns. We found that for adults that had more values progress, doing the things that mattered to them, was associated with better mental health even while experiencing health distress. We also found that values obstruction, getting stuck on uncomfortable thoughts and feelings and trying to avoid them, explained worse mental health for autistic adults experiencing health distress.<b><i>Implications for research and practice?</i></b>The findings of this study provide initial support that psychological flexibility can explain the relationship between health distress and mental health concerns among autistic adults. Interventions that seek to improve psychological flexibility, like acceptance and commitment therapy, might be useful in improving autistic adults' mental health while they are experiencing health distress.</p>","PeriodicalId":8724,"journal":{"name":"Autism","volume":" ","pages":"1359-1363"},"PeriodicalIF":5.2,"publicationDate":"2025-05-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143036152","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"心理学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Longitudinal stability and Autism Diagnostic Observation Scale-2 predictors of the Childhood Joint Attention Rating Scale. 儿童联合注意评定量表的纵向稳定性和自闭症诊断观察量表-2预测因子。
IF 5.2 2区 心理学
Autism Pub Date : 2025-05-01 Epub Date: 2024-12-07 DOI: 10.1177/13623613241304208
Jennifer C Bullen, Sandy L Birkeneder, Matthew C Zajic, Lindsay Swain Lerro, Nancy McIntyre, Nicole Sparapani, Peter Mundy
{"title":"Longitudinal stability and Autism Diagnostic Observation Scale-2 predictors of the Childhood Joint Attention Rating Scale.","authors":"Jennifer C Bullen, Sandy L Birkeneder, Matthew C Zajic, Lindsay Swain Lerro, Nancy McIntyre, Nicole Sparapani, Peter Mundy","doi":"10.1177/13623613241304208","DOIUrl":"10.1177/13623613241304208","url":null,"abstract":"<p><p>A recent study suggests that parent report on the Social Symptom and Prosocial scales of the Childhood Joint Attention Rating Scale provides useful information about differences in the social development of school-aged autistic children. The current study provides additional psychometric data on the Childhood Joint Attention Rating Scale regarding the longitudinal stability of its scales, its construct validity, and its sensitivity to differences in the social development of clinical samples of children. The study included 64 autistic children without co-occurring intellectual disability, 27 children with symptoms of attention deficit/hyperactivity disorder, and 36 neurotypical children between the ages of 10 and 18 years. Results indicated that scores from parent report on the Childhood Joint Attention Rating Scale were stable across a 15-month period in middle childhood for the three groups and groups received significantly different Childhood Joint Attention Rating Scale scores. Finally, construct validity was supported by the observation of correlations between tester observations of items on Autism Diagnostic Observation Scale-2 Social Affect and subsequent parent report on the Childhood Joint Attention Rating Scale. These results provide further evidence that the Childhood Joint Attention Rating Scale provides meaningful and potentially unique information about prosocial and social symptom development of school-aged autistic children.Lay abstractThis study tested a measure designed to capture social development in childhood and adolescence called the Childhood Joint Attention Rating Scale. This is important to study as most measures of social behavior are for preschool-aged children. We asked parents of 64 autistic children, 27 children with attention deficit/hyperactivity disorder, and 36 neurotypical children to fill out a new parent questionnaire designed to assess social skills. Specifically, our measure asks about both strengths and difficulties their child has with sharing experiences, engaging in cooperative efforts with others, and more. It is important to have strengths included in measures, as many autism measures only take difficulties into account. The findings of this study show that this new measure can assess social skill strengths and difficulties in children and adolescents. This measure may be useful in future research to help us understand how strengths and challenges in social behaviors develop or change throughout childhood and adolescence in autistic people.</p>","PeriodicalId":8724,"journal":{"name":"Autism","volume":" ","pages":"1224-1235"},"PeriodicalIF":5.2,"publicationDate":"2025-05-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC12038067/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142791038","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"心理学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Autism as an international journal: Equity, inclusion and cultural humility for a global authorship and readership. 自闭症作为一份国际期刊:全球作者和读者的公平、包容和文化谦逊。
IF 5.2 2区 心理学
Autism Pub Date : 2025-05-01 Epub Date: 2025-04-16 DOI: 10.1177/13623613251333822
Kathy Leadbitter, Sheffali Gulati, Elizabeth Shephard, Rosa Hoekstra
{"title":"<i>Autism</i> as an international journal: Equity, inclusion and cultural humility for a global authorship and readership.","authors":"Kathy Leadbitter, Sheffali Gulati, Elizabeth Shephard, Rosa Hoekstra","doi":"10.1177/13623613251333822","DOIUrl":"https://doi.org/10.1177/13623613251333822","url":null,"abstract":"","PeriodicalId":8724,"journal":{"name":"Autism","volume":"29 5","pages":"1089-1094"},"PeriodicalIF":5.2,"publicationDate":"2025-05-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143964801","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"心理学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Focusing on autism symptoms masks sex-specific needs of autistic children: An example from the Sydney Child Neurodevelopment Research Registry. 关注自闭症症状掩盖了自闭症儿童的性别特异性需求:来自悉尼儿童神经发育研究登记处的一个例子。
IF 5.2 2区 心理学
Autism Pub Date : 2025-05-01 Epub Date: 2024-12-20 DOI: 10.1177/13623613241303550
Marie Antoinette Hodge, Rebecca Sutherland, Kelsie A Boulton, Sarah Jane Baracz, Natalie Ong, Beverley Bennett, Adam J Guastella, Natalie Silove
{"title":"Focusing on autism symptoms masks sex-specific needs of autistic children: An example from the Sydney Child Neurodevelopment Research Registry.","authors":"Marie Antoinette Hodge, Rebecca Sutherland, Kelsie A Boulton, Sarah Jane Baracz, Natalie Ong, Beverley Bennett, Adam J Guastella, Natalie Silove","doi":"10.1177/13623613241303550","DOIUrl":"10.1177/13623613241303550","url":null,"abstract":"&lt;p&gt;&lt;p&gt;Studies have shown that there are differences between the presentations of males and females diagnosed with autism. There remains a developing understanding about how the presentation of autism differs between boys (hereafter referred to as 'assigned males at birth') and girls (assigned females at birth). This study sought to investigate the presence of sex differences in autistic children. Participants (1.11-17.97 years) attended an assessment clinic and participated in measures of intelligence/development, social/communication skills and behaviour. Adaptive skills were evaluated using a range of standardised measures, and other clinical and demographic variables were collected (e.g. age, intelligence quotient, ratio of male to female). Assigned males at birth displayed more autism characteristics and greater symptom autism severity than assigned females at birth. No significant differences were found between assigned males at birth and assigned females at birth on any measure of intelligence. Children assigned males at birth received assessments 6 months earlier than children assigned females at birth on average. Externalising behaviour problems were more evident in assigned males at birth, but statistically significant differences in adaptive skills were not apparent between assigned males at birth and assigned females at birth. This study showed assigned females at birth and assigned males at birth differ in autism symptoms and severity and age at diagnosis based on a real-world sample. It highlights the importance of balancing assessments of symptoms with assessment of adaptive function.Lay abstractStudies have shown that there is a difference between biological sex at birth in autism spectrum disorder. There remains a lack of understanding about how the symptoms of autism differ between assigned males at birth and assigned females at birth. We looked at the presence of sex differences in a large group of autistic toddlers, children and adolescents, who were seen in a large diagnosis and assessment clinic. They participated in measures of intelligence/development, social/communication skills and behaviour. Their adaptive skills were evaluated and other clinical and information were collected. Assigned males at birth displayed more autism characteristics and greater symptom autism severity than assigned females at birth. There were no statistically significant differences between assigned males at birth and assigned females at birth on any measure of intellectual assessment. Assigned females at birth showed better nonverbal performance than assigned males at birth on formal developmental assessments. Children assigned males at birth received assessments 6 months earlier than children assigned females at birth. Externalising behaviour problems were more evident in assigned males at birth. This study provides evidence to show that autistic children assigned females at birth and assigned males at birth differ in terms of autism symptoms an","PeriodicalId":8724,"journal":{"name":"Autism","volume":" ","pages":"1318-1332"},"PeriodicalIF":5.2,"publicationDate":"2025-05-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142863185","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"心理学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Gender and family-role portrayals of autism in British newspapers: An intersectional corpus-based study. 英国报纸上自闭症的性别和家庭角色描述:一项基于交叉语料库的研究。
IF 5.2 2区 心理学
Autism Pub Date : 2025-05-01 Epub Date: 2024-12-11 DOI: 10.1177/13623613241303547
Themis Karaminis, Costas Gabrielatos, Ursula Maden-Weinberger, Geoffrey Beattie
{"title":"Gender and family-role portrayals of autism in British newspapers: An intersectional corpus-based study.","authors":"Themis Karaminis, Costas Gabrielatos, Ursula Maden-Weinberger, Geoffrey Beattie","doi":"10.1177/13623613241303547","DOIUrl":"10.1177/13623613241303547","url":null,"abstract":"<p><p>A recent large-scale study on the portrayal of autism in British newspapers revealed a deficit-based coverage, which concentrated on children and boys in particular, typically represented from the mothers' perspective. This follow-up study refines these representations, considering how they differ by gender and family role. We analysed 2998 text samples, which discussed autism in the context of four combinations of gender and family roles, namely, BOY, GIRL, FATHER and MOTHER. These samples included sources with different publication dates, reporting style and political orientation. Autism representations remained negative regardless of gender and family role. Over time, stories about autistic girls started to emerge, identifying them as a distinct group explicitly compared to autistic boys. Newspapers, especially broadsheets, associated girls with diagnostic difficulties, camouflaging and sometimes gender dysphoria - discussed particularly for those assigned female at birth. The child's autism was more often attributed to maternal than paternal behaviours or lifestyle. Autistic mothers were mentioned more often than fathers and were portrayed negatively. We conclude that newspapers portray female autism as less significant than male autism and, in addition, place mothers under more ethical scrutiny than fathers. These disparities reflect both historical biases in autism research and gender and family-role stereotypes.</p>","PeriodicalId":8724,"journal":{"name":"Autism","volume":" ","pages":"1285-1302"},"PeriodicalIF":5.2,"publicationDate":"2025-05-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142806100","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"心理学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Parental expectations and perceptions of augmentative and alternative communication: A Sri Lankan perspective. 父母对辅助和替代性交流的期望和看法:斯里兰卡的视角。
IF 5.2 2区 心理学
Autism Pub Date : 2025-05-01 Epub Date: 2024-11-25 DOI: 10.1177/13623613241298061
Shyamani Hettiarachchi, Shamra Nizar, Gopi Kitnasamy, Dilani Gopi
{"title":"Parental expectations and perceptions of augmentative and alternative communication: A Sri Lankan perspective.","authors":"Shyamani Hettiarachchi, Shamra Nizar, Gopi Kitnasamy, Dilani Gopi","doi":"10.1177/13623613241298061","DOIUrl":"10.1177/13623613241298061","url":null,"abstract":"<p><p>From a critical disability rights lens, everyone has a right to communicate using any means available, which includes augmentative and alternative communication. The uptake of augmentative and alternative communication beyond the therapy room may be influenced by awareness, perceptions and acceptance of augmentative and alternative communication by caregivers, family members and the wider society. This study aimed to uncover parental perceptions of augmentative and alternative communication in a Global South context. Ten mothers and six fathers (16 participants) of children with complex communication needs were invited to be part of the study. A focus-group discussion and semi-structured interviews were undertaken using an interview guide. The participant data were analysed using Framework Analysis and through the lens of gender and critical disability theory. The key theme expressed was fear of augmentative and alternative communication deterring speech development. In addition, there was also concern that siblings might adopt the alternative communication method and stop talking. The participants questioned whether the visibility of a communication device could highlight their child's disability, thereby fearing societal stigma and negativity. Overall, parents' attitudes towards perspectives of and openness to use augmentative and alternative communication impact its uptake. The results suggest the need to consider the preparedness of parents prior to introducing augmentative and alternative communication and the need to offer on-going parental training.Lay abstractEverybody has a right to communicate in any way they can, which includes augmentative and alternative communication. The uptake of augmentative and alternative communication in everyday life may be influenced by awareness, perceptions and acceptance of augmentative and alternative communication by caregivers, family members and the wider society. This study aimed to uncover what parents thought about augmentative and alternative communication in a Global South context. Eleven mothers and five fathers (16 participants) of children with complex communication needs were included. Data were collected using an interview guide from a focus-group discussion and semi-structured interviews. The data were analysed using Framework Analysis and from a gender and critical disability theory viewpoint. The key theme found was fear of augmentative and alternative communication stopping the child from learning to speak. The parents wondered if siblings might also use the alternative communication method and stop talking. They worried whether the communication device will negatively highlight their child in society. As parents' views on augmentative and alternative communication influence whether they use it with their child, informing and preparing parents before introducing augmentative and alternative communication to a child and on-going parent training should be considered.</p>","PeriodicalId":8724,"journal":{"name":"Autism","volume":" ","pages":"1157-1170"},"PeriodicalIF":5.2,"publicationDate":"2025-05-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142715158","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"心理学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
A non-systematic overview review of self-focused emotion regulation in autistic individuals through the lens of the extended process model. 扩展过程模型视角下自闭症个体自我关注情绪调节的非系统综述。
IF 5.2 2区 心理学
Autism Pub Date : 2025-05-01 Epub Date: 2025-01-08 DOI: 10.1177/13623613241302533
Ru Ying Cai, Andrea C Samson
{"title":"A non-systematic overview review of self-focused emotion regulation in autistic individuals through the lens of the extended process model.","authors":"Ru Ying Cai, Andrea C Samson","doi":"10.1177/13623613241302533","DOIUrl":"10.1177/13623613241302533","url":null,"abstract":"<p><p>Difficulties regulating emotions have been coined as inherent to autism, possibly even presenting a core difficulty of autism. While several models of emotion regulation have been proposed in the past, in this targeted review article, we aim to map emotion regulation difficulties in autistic individuals within the framework of the extended process model of emotion regulation. This model can be considered the most comprehensive one currently incorporating not only different emotion regulation strategy groups but also different stages and processes involved in successful self-focused emotion regulation. Within this model, we will identify areas and domains as specifically impacted by autistic individuals. We will also outline gaps in the literature and provide suggestions for future research that can help deepen our understanding of the emotion regulation processes of autistic individuals. The ultimate goal is to develop specific support programs that address specific emotion regulation mechanisms, providing a much more individualized support approach.Lay abstract<b><i>What do we already know about emotion regulation in autism?</i></b>We know that many autistic children, youth, and adults experience difficulties regulating emotions. Existing research has focused mainly on the differences in emotion regulation capabilities between autistic and non-autistic individuals, the relationships between autistic traits and emotion regulation, and how emotion regulation relates to other outcomes, such as social skills and mental health.<b><i>What does this paper add?</i></b>We want to take a new approach to review the existing emotion regulation research through the lens of a specific theoretical model: the extended process model of emotion regulation. Professor James Gross developed this model. It consists of four emotion regulation phases: identification, selection, implementation, and monitoring.Our review revealed specific areas within these emotion regulation phases that could significantly impact the emotion regulation experiences of autistic individuals. We also outline the gaps in the research and propose avenues for future investigation.<b><i>Implications for practice</i></b>By deepening our understanding of emotion regulation in autistic individuals through the proposed future research, researchers and clinicians can pave the way for the development of tailored support programs. These programs will directly target specific emotion regulation mechanisms, offering a much-needed individualized support approach.</p>","PeriodicalId":8724,"journal":{"name":"Autism","volume":" ","pages":"1118-1128"},"PeriodicalIF":5.2,"publicationDate":"2025-05-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC12038066/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142943483","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"心理学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Trait and state mathematics anxiety in autistic and non-autistic school-aged boys. 孤独症与非孤独症学龄男孩数学焦虑的特质与状态。
IF 5.2 2区 心理学
Autism Pub Date : 2025-05-01 Epub Date: 2024-12-03 DOI: 10.1177/13623613241299881
Rachele Lievore, Irene C Mammarella
{"title":"Trait and state mathematics anxiety in autistic and non-autistic school-aged boys.","authors":"Rachele Lievore, Irene C Mammarella","doi":"10.1177/13623613241299881","DOIUrl":"10.1177/13623613241299881","url":null,"abstract":"&lt;p&gt;&lt;p&gt;The aim of the study was to investigate mathematics anxiety in autistic school-aged boys compared with non-autistic peers, by considering the distinction between trait and state components of mathematics anxiety. The study involved 110 boys aged between 8 and 16 years old: 50 autistic participants without intellectual disability and 60 non-autistic peers. The two groups were matched for age and full-scale intelligence quotient. Trait mathematics anxiety was assessed with a self-report measure, whereas state components of mathematics anxiety were measured in the context of a real-time assessment, in which participants had to report their emotional (valence, arousal) and cognitive (perception of competence, worries) responses before and after completing a math task with time pressure. Findings revealed no significant group differences for trait mathematics anxiety. However, autistic participants performed worse in the timed math test than non-autistic peers. After controlling for age and trait mathematics anxiety, lower valence, higher pre-test emotional arousal, and higher worries were reported by the autistic boys compared with the non-autistic counterparts. No group differences emerged for perception of competence. This study emphasizes the importance of considering the distinction between trait and state mathematics anxiety, in addition to acknowledging the impact that emotional aspects, thoughts, and worries may have on the school experience of autistic students.Lay abstractAutistic children and adolescents may encounter difficulties at school, especially in mathematics, experiencing a pattern of negative feelings, distress, and concerns, which has been called mathematics anxiety. We asked 110 boys (50 autistic, 60 non-autistic) aged between 8 and 16 years old to report their feelings toward mathematics. Specifically, we asked them to fill in a questionnaire on their levels of mathematics anxiety at school and to report their emotional (valence, arousal) and cognitive (perception of competence, worries) responses before and after completing a mathematical task with time pressure. Mathematics anxiety might be an important factor to consider when assessing academic functioning of autistic children and adolescents, to understand whether it can interfere with their school success and well-being. In our sample, no significant group differences emerged for mathematics anxiety experienced at school. However, autistic children and adolescents performed worse in the timed math test than non-autistic peers. Regarding emotional and cognitive factors, lower valence, higher arousal, and higher worries were reported by the autistic participants compared with non-autistic peers. No group differences emerged for perception of competence. Teachers and clinicians should be aware that time pressure could be a negative factor in terms of proficiency and worries in autistic children and adolescents. Furthermore, it is essential to discourage the development ","PeriodicalId":8724,"journal":{"name":"Autism","volume":" ","pages":"1209-1223"},"PeriodicalIF":5.2,"publicationDate":"2025-05-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC12038072/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142766018","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"心理学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Adapting an early autism caregiver coaching intervention for telehealth delivery in low-resource settings: A South African study of the 'what' and the 'why'. 在资源匮乏的环境下,将早期自闭症护理人员指导干预措施用于远程医疗服务:一项关于“什么”和“为什么”的南非研究。
IF 5.2 2区 心理学
Autism Pub Date : 2025-05-01 Epub Date: 2024-12-10 DOI: 10.1177/13623613241300774
Marisa Viljoen, Noleen Seris, Nokuthula Shabalala, Minkateko Ndlovu, Petrus J de Vries, Lauren Franz
{"title":"Adapting an early autism caregiver coaching intervention for telehealth delivery in low-resource settings: A South African study of the 'what' and the 'why'.","authors":"Marisa Viljoen, Noleen Seris, Nokuthula Shabalala, Minkateko Ndlovu, Petrus J de Vries, Lauren Franz","doi":"10.1177/13623613241300774","DOIUrl":"10.1177/13623613241300774","url":null,"abstract":"&lt;p&gt;&lt;p&gt;The COVID-19 pandemic required in-person interventions to be adapted for remote delivery all over the globe. In South Africa, an in-person cascaded task-sharing naturalistic developmental behavioural intervention was adapted for telehealth delivery in a low-resource context. Here we describe the adaptations made (the 'what') and reasons for adaptations (the 'why'). The Framework for Modification and Adaptations (FRAME) was used to document the 'what', and the Exploration, Preparation, Implementation, Sustainment (EPIS) framework to describe the 'why'. Systematic member-checking ensured robustness of results. The 'what' included 10 adaptations: selecting WhatsApp as delivery platform, developing images with simple text to communicate intervention concepts, modifying session structure for hybrid delivery, including a caregiver self-reflection checklist, utilizing online practitioner training, supervision, assessment and consent procedures, developing session recording procedures, distributing session materials electronically, and developing caregiver-child interaction recording and uploading protocols. The 'why' included three outer contextual factors (the digital divide, WhatsApp security/privacy policy, and COVID-19 restrictions), three inner contextual factors (characteristics of caregivers and practitioners, ethics board guidance, and school leadership and organizational characteristics) and one innovation factor (support from intervention co-developers). Adaptations were made in response to unchangeable outer contextual factors and through identification of malleable inner contextual factors.Lay abstractWe were busy with an early autism caregiver-coaching programme in South Africa, when COVID-19 stopped all in-person work. We changed the programme so it could be done using computers and/or phones. Here, we describe programme changes (which we call the 'what') and the reasons for those changes (which we call the 'why'). We used a tool called the Framework for Modification and Adaptations (FRAME) to describe the 'what', and the Exploration, Preparation, Implementation, Sustainment (EPIS) framework to describe the 'why' of our programme changes. The team members who helped make these changes checked that the changes described were correct. We made 10 changes in total: we used WhatsApp to deliver the programme, made simple pictures with words as visual tools for the programme, changed some session activities, changed a self-reflection checklist, provided all activities online, changed the way assessment and consent was done, made a session recording guide, sent things needed for sessions by email and WhatsApp, and made a caregiver-child play recording guide. The reasons for changes (the 'why') were about factors outside schools (the types of phones and data people had, WhatsApp security rules, COVID-19 rules), things inside schools/workplace (about the caregivers and nonspecialists themselves, ethics boards, things about the school itself), ","PeriodicalId":8724,"journal":{"name":"Autism","volume":" ","pages":"1246-1262"},"PeriodicalIF":5.2,"publicationDate":"2025-05-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC12038070/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142799366","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"心理学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Autistic adults display different verbal behavior only in mixed-neurotype interactions: Evidence from a referential communication task. 自闭症成人仅在混合神经类型的互动中表现出不同的言语行为:来自参照交流任务的证据
IF 5.2 2区 心理学
Autism Pub Date : 2025-05-01 Epub Date: 2024-11-21 DOI: 10.1177/13623613241298376
Philippine Geelhand, Fanny Papastamou, Solène Jaspard, Mikhail Kissine
{"title":"Autistic adults display different verbal behavior only in mixed-neurotype interactions: Evidence from a referential communication task.","authors":"Philippine Geelhand, Fanny Papastamou, Solène Jaspard, Mikhail Kissine","doi":"10.1177/13623613241298376","DOIUrl":"10.1177/13623613241298376","url":null,"abstract":"&lt;p&gt;&lt;p&gt;Recent accounts of social difficulties in autism suggest that autistic and non-autistic individuals mutually misunderstand each other. This assumption aligns with findings that mixed-neurotype interactions are less efficient than same-neurotype interactions. However, it remains unclear whether different outcomes between mixed- and same-neurotype interactions are due to contact with a different neurotype or to inherently different communication styles, specific to each neurotype. A total of 134 adult participants were divided into three same-sex dyad types: 23 autistic dyads, 23 non-autistic dyads, and 21 mixed-neurotype dyads. Participants were unaware of their partner's neurotype. Dyads completed an online referential communication task where a \"Director\" guides a \"Matcher\" to rearrange abstract images, using both written (chat) and oral (microphone, no video) communication modes. Interaction outcome measures were task duration and verbosity of the Director. Across both communication modes, non-autistic dyads completed the task faster than autistic and mixed dyads, indicating that dyads with at least one autistic partner were generally slower. Notably, in mixed dyads, autistic Directors were more verbose than non-autistic Directors across both communication modes. These results, in conjunction with partners' unawareness of each other's neurotype, suggest that even in the absence of non-verbal cues neurotype mismatch triggers autistic adults to display different verbal behavior.Lay abstractRecent research shows that in conversations, both participants influence the outcome. More specifically, conversations do not go as smoothly when autistic and non-autistic people talk together compared to when people of the same neurotype (either all autistic or all non-autistic) talk to each other. In studies finding a \"same-neurotype communicative advantage\", interaction partners knew about each other's neurotype. Because of this methodological choice, it is unclear whether mixed-neurotype interactions go less smoothly because participants knew they were interacting with a different neurotype or because each neurotype really has a distinct communication style. In our study, 134 adults were grouped into same-sex pairs: 23 autistic, 23 non-autistic, and 21 mixed-neurotype pairs. The pairs did not know if the other person was autistic or not. They completed an online task where the \"Director\" instructs the \"Matcher\" to reorder abstract pictures. Pairs did this task in two ways: by typing in a live chat and by speaking into a microphone without video. The study looked at how long the task took and how much the Director talked/wrote. Results showed that non-autistic pairs were faster to complete the task than autistic pairs and mixed pairs, meaning pairs with at least one autistic person were slower in general to complete the task. Interestingly, in mixed pairs, only autistic Directors produced more words than non-autistic Directors, in both typing and speak","PeriodicalId":8724,"journal":{"name":"Autism","volume":" ","pages":"1129-1142"},"PeriodicalIF":5.2,"publicationDate":"2025-05-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142685835","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"心理学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
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