AutismPub Date : 2025-01-01Epub Date: 2024-06-13DOI: 10.1177/13623613241258546
Xiaotian Dai, Gareth J Williams, John A Groeger, Gary Jones, Keeley Brookes, Wei Zhou, Jing Hua, Wenchong Du
{"title":"The role of circadian rhythms and sleep in the aetiology of autism spectrum disorder and attention-deficit/hyperactivity disorder: New evidence from bidirectional two-sample Mendelian randomization analysis.","authors":"Xiaotian Dai, Gareth J Williams, John A Groeger, Gary Jones, Keeley Brookes, Wei Zhou, Jing Hua, Wenchong Du","doi":"10.1177/13623613241258546","DOIUrl":"10.1177/13623613241258546","url":null,"abstract":"<p><strong>Lay abstract: </strong>Research shows that people with autism spectrum disorder and attention-deficit/hyperactivity disorder often have sleep issues and problems with the body's natural daily rhythms, known as circadian rhythms. By exploring the genetic variants associated with these rhythms and the conditions, this study reveals that these rhythm changes and sleep patterns are directly linked to autism spectrum disorder and attention-deficit/hyperactivity disorder. It found that the timing of one's most active hours can increase the likelihood of having both autism spectrum disorder and attention-deficit/hyperactivity disorder. Importantly, it also shows that good sleep quality might protect against autism spectrum disorder, while disturbed sleep in people with attention-deficit/hyperactivity disorder seems to be a result rather than the cause of the condition. This understanding can help doctors and researchers develop better treatment approaches that focus on the specific ways sleep and body rhythms affect those with autism spectrum disorder and attention-deficit/hyperactivity disorder, considering their unique associations with circadian rhythms and sleep patterns. Understanding these unique links can lead to more effective, personalized care for those affected by these conditions.</p>","PeriodicalId":8724,"journal":{"name":"Autism","volume":" ","pages":"76-86"},"PeriodicalIF":5.2,"publicationDate":"2025-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141309934","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"心理学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
AutismPub Date : 2025-01-01Epub Date: 2024-06-18DOI: 10.1177/13623613241259932
Yung-Ting Tsou, Maedeh Nasri, Boya Li, Els M A Blijd-Hoogewys, Mitra Baratchi, Alexander Koutamanis, Carolien Rieffe
{"title":"Social connectedness and loneliness in school for autistic and allistic children.","authors":"Yung-Ting Tsou, Maedeh Nasri, Boya Li, Els M A Blijd-Hoogewys, Mitra Baratchi, Alexander Koutamanis, Carolien Rieffe","doi":"10.1177/13623613241259932","DOIUrl":"10.1177/13623613241259932","url":null,"abstract":"<p><strong>Lay abstract: </strong>Many previous studies reported that autistic children have fewer social connections. Yet, recent studies also show that autistic children more often feel lonely in school than allistic (i.e. non-autistic) children. This outcome seems to go against the traditional view that autistic children do not desire to have social connections. Therefore, this study aimed to find out how autistic and allistic children feel about their social connections. We included 47 autistic and 52 neurodiverse-allistic children from two special education primary schools (aged 8-13 years). We tested their social connections and loneliness in school, through a new approach. This new approach includes questionnaires, and sensors for tracking social contacts on playgrounds during school breaks. We found that allistic children felt more loneliness when they spent little time in social contacts during school breaks. Yet, autistic children felt more loneliness when their peers did not like to play with them. For these autistic children, feelings of loneliness may go beyond face-to-face contacts. Being liked as part of a peer group was key. Understanding differences in children's needs can lead to a more effective design for a welcoming school climate.</p>","PeriodicalId":8724,"journal":{"name":"Autism","volume":" ","pages":"87-101"},"PeriodicalIF":5.2,"publicationDate":"2025-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141417531","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"心理学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
AutismPub Date : 2025-01-01Epub Date: 2024-08-20DOI: 10.1177/13623613241270916
Ashley J Harrison, Matthew Madison, Nilofer Naqvi, Karrah Bowman, Jonathan Campbell
{"title":"The development of the Autism Stigma and Knowledge Questionnaire, Second edition (ASK-Q-2), through a cross-cultural psychometric investigation.","authors":"Ashley J Harrison, Matthew Madison, Nilofer Naqvi, Karrah Bowman, Jonathan Campbell","doi":"10.1177/13623613241270916","DOIUrl":"10.1177/13623613241270916","url":null,"abstract":"<p><strong>Lay abstract: </strong>The Autism Stigma and Knowledge Questionnaire (ASK-Q) was developed to assess autism knowledge across cultural contexts. The current study aimed to examine cultural equivalence of the measure using a large, international database. These analyses identified 18 items in need of examination for removal or revision. A team of autism experts recommended several additional changes to reduce stigma and increase cross-cultural sensitivity and accuracy of the items on the measure. These changes resulted in a briefer measure with maintained statistical support.</p>","PeriodicalId":8724,"journal":{"name":"Autism","volume":" ","pages":"195-206"},"PeriodicalIF":5.2,"publicationDate":"2025-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142003506","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"心理学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
AutismPub Date : 2025-01-01Epub Date: 2024-10-09DOI: 10.1177/13623613241273081
Kathleen Simcoe, J Alacia Stainbrook, Kate T Chazin, Elaina Schnelle, Liliana Wagner, Madison Hooper, A Pablo Juárez, Zachary Warren
{"title":"Use of telemediated caregiver coaching to increase access to naturalistic developmental behavioral interventions within a statewide early intervention system.","authors":"Kathleen Simcoe, J Alacia Stainbrook, Kate T Chazin, Elaina Schnelle, Liliana Wagner, Madison Hooper, A Pablo Juárez, Zachary Warren","doi":"10.1177/13623613241273081","DOIUrl":"10.1177/13623613241273081","url":null,"abstract":"<p><strong>Lay abstract: </strong>Many families seek access to evidence-based therapy to support their child's learning. Naturalistic developmental behavioral intervention is a set of practices that use a child's natural motivation and interest to teach skills in everyday routines. Many families find naturalistic developmental behavioral interventions appealing and they have been proven to be effective. However, families may not be able to enroll in naturalistic developmental behavioral intervention-based programs due to the limited availability of trained service providers. Telehealth is the use of technology to engage with care providers, including doctors and therapists. Telehealth is an effective tool for improving access to services, especially for people in rural and underserved communities. Telehealth offers a way for providers to connect with families but it does not address the low numbers of trained providers. In this article, we share a statewide model developed to increase access to naturalistic developmental behavioral interventions for families while increasing training opportunities for early intervention providers. Through this model, expert consultants worked with caregivers and providers via telehealth for a brief series of visits. During these visits, consultants taught caregivers and providers strategies based in naturalistic developmental behavioral interventions. Feedback from caregivers and providers, along with improvement in child skills, show that this model was effective and acceptable.</p>","PeriodicalId":8724,"journal":{"name":"Autism","volume":" ","pages":"207-221"},"PeriodicalIF":5.2,"publicationDate":"2025-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142387556","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"心理学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
AutismPub Date : 2025-01-01Epub Date: 2024-11-27DOI: 10.1177/13623613241300683
Elisa Genovesi, Sarah Grant, Tsegereda Haile Kifle, Jialing Li, Alanna J Shand, Rosa A Hoekstra
{"title":"Community involvement in PhD students' autism research projects: Challenges and opportunities.","authors":"Elisa Genovesi, Sarah Grant, Tsegereda Haile Kifle, Jialing Li, Alanna J Shand, Rosa A Hoekstra","doi":"10.1177/13623613241300683","DOIUrl":"10.1177/13623613241300683","url":null,"abstract":"","PeriodicalId":8724,"journal":{"name":"Autism","volume":" ","pages":"3-7"},"PeriodicalIF":5.2,"publicationDate":"2025-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142724665","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"心理学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
AutismPub Date : 2025-01-01Epub Date: 2024-09-04DOI: 10.1177/13623613241273042
Lyazzat Kosherbayeva, Laura Kozhageldiyeva, Yolanda Pena-Boquete, Aizhan Samambayeva, Maria Seredenko
{"title":"Effects of autism spectrum disorder on parents labour market: Productivity loss and policy evaluation in Kazakhstan.","authors":"Lyazzat Kosherbayeva, Laura Kozhageldiyeva, Yolanda Pena-Boquete, Aizhan Samambayeva, Maria Seredenko","doi":"10.1177/13623613241273042","DOIUrl":"10.1177/13623613241273042","url":null,"abstract":"<p><strong>Lay abstract: </strong>Kazakhstan has witnessed a significant increase in the number of Autism Spectrum Disorder cases due to the implementation of mechanisms for early detection. However, despite these efforts, accessing quality services and effective interventions for individuals with Autism Spectrum Disorder remains challenging. While the government has implemented various policies to address the impact of Autism Spectrum Disorder on the labour market, especially for those with disabilities, the effectiveness of these policies needs to be evaluated. Therefore, this article aims to estimate the loss of productivity by calculating the cost of non-working for parents of children with Autism Spectrum Disorder. To achieve this goal, we combine data from official sources with data from our own survey to estimate the loss of productivity using human capital models. In addition, we conduct policy simulations to assess the impact of the existing policy implemented in Kazakhstan that recognises the time of caring for children with Autism Spectrum Disorder and disability as working in the paid labour market. Our results reveal that the productivity loss is substantial, with mothers of children with Autism Spectrum Disorder being particularly affected. Furthermore, based on the outcomes of the policy simulations, it becomes evident that policies solely targeting parents of children with Autism Spectrum Disorder and disability are insufficient to address the labour market gaps and the consequent loss of productivity. To effectively mitigate the impact of Autism Spectrum Disorder in the labour market, a more comprehensive approach is needed. This approach should encompass a broader range of interventions and support mechanisms, including those for individuals without disabilities and parents of children with Autism Spectrum Disorder.</p>","PeriodicalId":8724,"journal":{"name":"Autism","volume":" ","pages":"169-181"},"PeriodicalIF":5.2,"publicationDate":"2025-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142124700","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"心理学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
AutismPub Date : 2025-01-01Epub Date: 2024-09-05DOI: 10.1177/13623613241273034
Megan G Bragg, Olivia Vesey, Jorge E Chavarro, Jaime E Hart, Loni Philip Tabb, Marc G Weisskopf, Lisa A Croen, Daniele Fallin, Irva Hertz-Picciotto, Craig Newschaffer, Rebecca J Schmidt, Heather Volk, Kristen Lyall
{"title":"Characterizing self-reported physical activity before and during a subsequent pregnancy among parents in a familial autism cohort.","authors":"Megan G Bragg, Olivia Vesey, Jorge E Chavarro, Jaime E Hart, Loni Philip Tabb, Marc G Weisskopf, Lisa A Croen, Daniele Fallin, Irva Hertz-Picciotto, Craig Newschaffer, Rebecca J Schmidt, Heather Volk, Kristen Lyall","doi":"10.1177/13623613241273034","DOIUrl":"10.1177/13623613241273034","url":null,"abstract":"<p><strong>Lay abstract: </strong>Parents of autistic children may have limited time and resources to participate in physical activity, a key aspect of health. Previous studies have been small and included mostly mothers, rather than fathers. No studies have examined physical activity in these parents during another pregnancy, when physical activity is especially important for maternal and fetal health. We aimed to fill this gap by examining physical activity levels among mothers and fathers caring for an autistic child before and during a subsequent pregnancy. We used data from a study which followed pregnant individuals who already had a child with autism. We asked mothers and fathers to report their levels of moderate and vigorous physical activity. We found that mothers and fathers of autistic children reported lower physical activity levels than the national average and were unlikely to meet Physical Activity Guidelines for Americans. Pregnant mothers were the least likely to participate in physical activity, particularly if their autistic child scored highly on a measure of autistic traits. Given that parental physical activity has benefits for parents and children, family-based interventions may be needed to help support parents' physical activity levels.</p>","PeriodicalId":8724,"journal":{"name":"Autism","volume":" ","pages":"143-154"},"PeriodicalIF":5.2,"publicationDate":"2025-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142131709","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"心理学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
AutismPub Date : 2025-01-01Epub Date: 2024-09-05DOI: 10.1177/13623613241272005
Monique Seymour, Laura Pecora, Grace McMahon, Catherine E Wood, Mark Feinberg, Rob Hock, Rebecca Giallo
{"title":"Trajectories of psychological distress for Australian fathers parenting a child on the autism spectrum: Evidence from early childhood to adolescence.","authors":"Monique Seymour, Laura Pecora, Grace McMahon, Catherine E Wood, Mark Feinberg, Rob Hock, Rebecca Giallo","doi":"10.1177/13623613241272005","DOIUrl":"10.1177/13623613241272005","url":null,"abstract":"<p><strong>Lay abstract: </strong>This study explores the mental health journey of fathers with children on the autism spectrum. Little is known about mental health over time for these fathers. This research spans six-timepoints from when children were aged 4 to 14 years, to track fathers' mental health. This study had three aims: (1) report estimates of fathers' psychological distress across 10 years of child development; (2) identify separate courses of psychological distress over time; and (3) identify early risk factors associated with these courses. This study used data from 281 fathers of children on the autism spectrum who took part in the Longitudinal Study of Australian Children. Using a statistical method to group fathers based on their psychological distress scores over 10 years of child development, the results showed that two groups best explained the data; this included a group of fathers who experienced low levels of psychological distress over the 10 years of child development (84%), and another group of fathers who experienced heightened psychological distress across this time (16%). Further analysis showed that fathers who had an ongoing medical condition and higher levels of interparental conflict with their partners were more likely to be in the heightened psychological distress group. These findings show that almost one in six fathers deal with persistent psychological distress throughout their child's early childhood and into early adolescence. This study advocates for interventions focusing on improving fathers' physical health and the couple relationship as ways to positively impact fathers' mental health in the long run.</p>","PeriodicalId":8724,"journal":{"name":"Autism","volume":" ","pages":"182-194"},"PeriodicalIF":5.2,"publicationDate":"2025-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142131710","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"心理学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
AutismPub Date : 2025-01-01Epub Date: 2024-11-05DOI: 10.1177/13623613241299946
{"title":"Corrigendum to \"Self-compassion, mental health, and parenting: Comparing parents of autistic and non-autistic children\".","authors":"","doi":"10.1177/13623613241299946","DOIUrl":"10.1177/13623613241299946","url":null,"abstract":"","PeriodicalId":8724,"journal":{"name":"Autism","volume":" ","pages":"271"},"PeriodicalIF":5.2,"publicationDate":"2025-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142581941","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"心理学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
AutismPub Date : 2025-01-01Epub Date: 2024-06-09DOI: 10.1177/13623613241258544
Alexander Woodman, Khawaja Bilal Waheed, Rehab Y Al-Ansari, Shakil Ahmad, Tanzeel Ur Rehman, Mohammad Rasheed, Nizar Jaoua
{"title":"Perception and behavior toward neuropsychiatric disorders in Saudi Arabia: A systematic review and quality assessment.","authors":"Alexander Woodman, Khawaja Bilal Waheed, Rehab Y Al-Ansari, Shakil Ahmad, Tanzeel Ur Rehman, Mohammad Rasheed, Nizar Jaoua","doi":"10.1177/13623613241258544","DOIUrl":"10.1177/13623613241258544","url":null,"abstract":"<p><strong>Lay abstract: </strong>In 2010, Saudi Arabia became the first country from the Gulf Cooperation Council states to join the World Mental Health Survey Initiative, which collaborates with Harvard University and has undertaken over 33 countries. The Saudi National Mental Health Survey revealed that 80% of Saudis with severe mental health disorders do not seek treatment. Considering the strong evidence set out in Saudi national study and the recommendations for future research, this systematic literature review was initiated to examine the most studied neurodevelopmental disorders reported in the Kingdom of Saudi Arabia to explore public knowledge, attitudes, and behaviors. Findings have shown that attention deficit hyperactivity disorder and autism spectrum disorder have been the most studied neurodevelopmental disorders in Saudi Arabia since 2010. However, various groups in Saudi society, including healthcare professionals, medical students, and the general public, lacked knowledge about these health conditions, often leading to stigmatized attitudes and behaviors toward people with attention deficit hyperactivity disorder and autism spectrum disorder. However, demographic data showed that most of the studies were carried out in the Central and Western provinces. More research is needed in all regions of the Kingdom of Saudi Arabia to contribute to the knowledge about mental health conditions of attention deficit hyperactivity disorder and autism spectrum disorder children and their parents to increase knowledge about neurodevelopmental disorders and mental health disorders in the Kingdom of Saudi Arabia, thereby enabling people to rethink their attitudes and behavior.</p>","PeriodicalId":8724,"journal":{"name":"Autism","volume":" ","pages":"8-25"},"PeriodicalIF":5.2,"publicationDate":"2025-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141295438","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"心理学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}