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Examining the effectiveness, feasibility, and acceptability of an advocacy program for Latinx families of transition-aged autistic youth. 研究针对过渡期自闭症青少年拉丁裔家庭的宣传计划的有效性、可行性和可接受性。
IF 5.2 2区 心理学
Autism Pub Date : 2025-04-01 Epub Date: 2024-11-12 DOI: 10.1177/13623613241292159
Janeth Aleman-Tovar, Meghan M Burke, Edwin Monárrez, Nicole Espinosa Zaldivar
{"title":"Examining the effectiveness, feasibility, and acceptability of an advocacy program for Latinx families of transition-aged autistic youth.","authors":"Janeth Aleman-Tovar, Meghan M Burke, Edwin Monárrez, Nicole Espinosa Zaldivar","doi":"10.1177/13623613241292159","DOIUrl":"10.1177/13623613241292159","url":null,"abstract":"<p><p>Families of autistic youth often support their children's transition from adolescence to adulthood. During this time, families learn to navigate the complex shift from school-based to adult disability services. For Latinx (vs non-Latinx White) families of autistic youth, transition is especially difficult because of the systemic barriers (e.g. language) Latinx families face when accessing services. Unfortunately, few interventions aim to improve the transition among Latinx families of autistic transition-aged youth. This study examines the effectiveness, feasibility, and acceptability of the ASISTIR (Apoyando a nueStros hIjo/as con autiSmo obTener servIcios de tRansición; Supporting our Children with Autism to Obtain Transition Services) program, a six-session program for Latinx families of autistic youth, with respect to increasing: school-based transition planning and adult disability services knowledge, empowerment, and advocacy. Twenty-nine participants were included in this single-group, intervention study. After completing the program, participants demonstrated significantly improved: knowledge of school-based transition planning and adult disability services, advocacy, and empowerment. In addition, participants were highly satisfied with the program, based on the formative and summative evaluations and individual interviews. Implications for research and practice are discussed.Lay abstractTo support Latinx families of autistic youth navigate school-based transition services and adult disability services, we provided a family advocacy program entitled, ASISTIR (Apoyando a nueStros hIjo/as con autiSmo obTener servIcios de tRansición; Supporting our Children with Autism to Obtain Transition Services). The ASISTIR program consisted of six, two-hour sessions and included the following topics: school-based transition planning, person-centered planning, Supplemental Security Income, Vocational Rehabilitation, and Home and Community-Based Medicaid Waiver. Twenty-nine Latinx family members completed the cohort-based ASISTIR program. After participating family members demonstrated increased knowledge of school-based transition planning and adult disability services. Participants also demonstrated increased empowerment and advocacy.</p>","PeriodicalId":8724,"journal":{"name":"Autism","volume":" ","pages":"1005-1018"},"PeriodicalIF":5.2,"publicationDate":"2025-04-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142613956","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"心理学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Trajectories of autism symptom severity for boys and girls across childhood. 儿童时期男孩和女孩自闭症症状严重程度的轨迹。
IF 5.2 2区 心理学
Autism Pub Date : 2025-04-01 DOI: 10.1177/13623613251325317
Einat Waizbard, Emilio Ferrer, Meghan Miller, Brianna Heath, Derek S Andrews, Sally J Rogers, Christine Wu Nordahl, Marjorie Solomon, David G Amaral
{"title":"Trajectories of autism symptom severity for boys and girls across childhood.","authors":"Einat Waizbard, Emilio Ferrer, Meghan Miller, Brianna Heath, Derek S Andrews, Sally J Rogers, Christine Wu Nordahl, Marjorie Solomon, David G Amaral","doi":"10.1177/13623613251325317","DOIUrl":"10.1177/13623613251325317","url":null,"abstract":"<p><p>Girls, more than boys, experience a decrease in the severity of autism symptoms during childhood. It is unclear, however, which specific autistic behaviors change more for girls than for boys. Trajectories of autism symptoms were evaluated using the Autism Diagnostic Observation Schedule-calibrated severity scores (ADOS-CSS). Change in the specific behavioral characteristics of autism was assessed by studying individual ADOS items for 183 children (55 girls) from age 3-to-11 years. Girls decreased in total autism symptom severity (ADOS-CSS) and restricted/repetitive behavior severity (RRB-CSS) across childhood, while boys remained stable in both. Girls showed decreasing-severity trajectories for seven ADOS items and an increasing-trajectory for one item. Boys showed decreasing-severity trajectories for six items and increasing-severity trajectories for three items. Girls with higher ADOS-CSS at age 3 were more likely to decrease in total symptom severity than other girls. Girls in our study mostly improved or remained stable in autism symptom severity and its specific behaviors during childhood, especially behaviors related to being socially engaged and responsive. Boys' symptom change was variable over time and included both improvement and worsening, especially in social behaviors that are key to interaction. Girls with high early severity levels can potentially decrease substantially in severity during childhood.Lay AbstractThe severity of overall autism symptoms tend to decrease more in autistic girls than in autistic boys during childhood, but we do not know which specific behaviors drive this difference. We studied how specific behaviors characteristic of autism change for girls and boys across childhood. We found that girls mostly improve or remain stable in the severity level of their autism symptoms and its specific behaviors during childhood. They improved mostly in behaviors related to being socially engaged and responsive to others. Furthermore, we found that it is possible for girls with high early autism symptoms to show major improvement during childhood. Boys improved in some specific behaviors but worsened in others. Boys worsened in some behaviors that are key to engaging in social interactions.</p>","PeriodicalId":8724,"journal":{"name":"Autism","volume":" ","pages":"13623613251325317"},"PeriodicalIF":5.2,"publicationDate":"2025-04-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143750910","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"心理学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Prevalence, incidence, and characteristics of autism spectrum disorder among children in Beijing, China. 中国北京儿童自闭症谱系障碍的患病率、发病率和特征。
IF 5.2 2区 心理学
Autism Pub Date : 2025-04-01 Epub Date: 2024-10-29 DOI: 10.1177/13623613241290388
Yanan Zhao, Feng Lu, Ruoxi Ding, Dawei Zhu, Rong Zhang, Siwei Sun, Ping He, Xiaoying Zheng
{"title":"Prevalence, incidence, and characteristics of autism spectrum disorder among children in Beijing, China.","authors":"Yanan Zhao, Feng Lu, Ruoxi Ding, Dawei Zhu, Rong Zhang, Siwei Sun, Ping He, Xiaoying Zheng","doi":"10.1177/13623613241290388","DOIUrl":"10.1177/13623613241290388","url":null,"abstract":"<p><p>The prevalence of autism spectrum disorder in the world has increased over the last decade, but the prevalence, incidence, and characteristics of autism spectrum disorder in China were not well understood. Using administrative data, we aimed to estimate the prevalence and incidence of autism spectrum disorder and describe the co-occurring conditions in preschoolers in Beijing, China. The study focused on 0- to 6-year-old children with registered residence in Beijing, using cohorts derived from the Beijing Municipal Health Big Data and Policy Research Center. We conducted a detailed analysis of autism spectrum disorder prevalence among the cohorts, comparing estimates across 2 to 3 years for the same birth cohort (4 years, 5 years). For the 6-year-old cohort, we obtained 1-year prevalence estimates in 2021. Annual incidence rate was also calculated. The prevalence in 6-year-old children in 2021 was 10.5 per 1000 (95% confidence interval = 9.7-10.9). The male-to-female prevalence ratio was 4.3. Between 40% and 43% of preschool children had at least one co-occurring condition. The incidence for children 6 years old and under was 0.11% in 2019 and increased to 0.18% in 2021. Both the prevalence and incidence rates in Beijing were comparable to those reported in developed countries.Lay abstractIt is the first study to explore the prevalence, incidence, and co-occurring conditions of autism spectrum disorder for the preschoolers in China. The prevalence and incidence of autism spectrum disorder has increased in recent decades. Autism spectrum disorder has become an important public concern worldwide. In this study, all hospital confirmed cases had an associated diagnosis (International Classification of Diseases, 10th revision (ICD-10) codes: F84.0, 84.5, F84.9). In total, 4457 children aged 4-6 years were identified as having autism spectrum disorder. In 2021, 1 in 95 children aged 6 years, 1 in 115 children aged 5 years, and 1 in 130 children aged 4 years were estimated to have autism spectrum disorder in Beijing. The incidence was 0.11% in 2019 and increased to 0.18% in 2021. There has been a great emphasis on the importance of early autism spectrum disorder diagnosis in large cities in China.</p>","PeriodicalId":8724,"journal":{"name":"Autism","volume":" ","pages":"884-895"},"PeriodicalIF":5.2,"publicationDate":"2025-04-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142520885","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"心理学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Disability barriers autistic girls face in secondary education: A systematic review. 自闭症女孩在中学教育中面临的残疾障碍:系统综述。
IF 5.2 2区 心理学
Autism Pub Date : 2025-04-01 Epub Date: 2024-11-12 DOI: 10.1177/13623613241294189
Kathryn Urbaniak, Miranda D'Amico
{"title":"Disability barriers autistic girls face in secondary education: A systematic review.","authors":"Kathryn Urbaniak, Miranda D'Amico","doi":"10.1177/13623613241294189","DOIUrl":"10.1177/13623613241294189","url":null,"abstract":"<p><p>Autistic adolescent girls face complex and diverse challenges in the school setting, specifically mental health issues, unmet social and education needs, and social exclusion. This review provides an overview of research relating to the barriers autistic females face in school settings by reporting on their experiences as well as those of autistic women reflecting on their past. This literature review presents peer-reviewed journal articles published from January 2013 to March 2023. Based on the 17 identified articles, the barriers girls face in the compulsory education setting centred on 4 themes of societal barriers grounded in gender; the institutional or physical barriers of schools; social and communicative expectations; and stigmatization. These results underscore the need for future research to centre diverse autistic lived experiences and knowledge, and autistic inclusion at all levels of participation, from self-advocacy and peer support spaces to the co-development of training and policy.Lay abstractAutistic adolescent girls face complex and diverse challenges in the school setting, specifically mental health issues, unmet social and education needs, and social exclusion. The purpose of this review was to provide a general idea of research relating to the experiences of autistic females in secondary school settings by reporting on their experiences and the lived experiences of autistic women reflecting on their past. Based on the identified articles, the barriers girls face in the compulsory education setting centred on four themes of societal barriers grounded in gender; the institutional or physical barriers of schools; social and communicative expectations; and stigmatization. The study highlighted that there is a need to sensitize and educate widely on the topic of autism for teachers, to support staff, school psychologists and peers of autistic youth. The results call attention to the need for future research to focus on the different lived experiences and knowledge of autistic girls.</p>","PeriodicalId":8724,"journal":{"name":"Autism","volume":" ","pages":"1019-1033"},"PeriodicalIF":5.2,"publicationDate":"2025-04-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11967090/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142614029","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"心理学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
From humble beginnings: Reflections on 10 years of the Participatory Autism Research Collective. 从卑微的开始:参与式自闭症研究团体10年的反思。
IF 5.2 2区 心理学
Autism Pub Date : 2025-04-01 Epub Date: 2025-03-11 DOI: 10.1177/13623613251319887
Damian Milton, Allison Moore, Nicola Martin
{"title":"From humble beginnings: Reflections on 10 years of the Participatory Autism Research Collective.","authors":"Damian Milton, Allison Moore, Nicola Martin","doi":"10.1177/13623613251319887","DOIUrl":"10.1177/13623613251319887","url":null,"abstract":"","PeriodicalId":8724,"journal":{"name":"Autism","volume":" ","pages":"827-828"},"PeriodicalIF":5.2,"publicationDate":"2025-04-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143603869","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"心理学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Methods to reduce fraudulent participation and highlight autistic voices in research. 在研究中减少欺诈性参与和突出自闭症声音的方法。
IF 5.2 2区 心理学
Autism Pub Date : 2025-04-01 Epub Date: 2024-11-24 DOI: 10.1177/13623613241298037
Meghan E Carey, Kiley J McLean, Kyle Chvasta, Ashley de Marchena, Anne M Roux
{"title":"Methods to reduce fraudulent participation and highlight autistic voices in research.","authors":"Meghan E Carey, Kiley J McLean, Kyle Chvasta, Ashley de Marchena, Anne M Roux","doi":"10.1177/13623613241298037","DOIUrl":"10.1177/13623613241298037","url":null,"abstract":"<p><p>Alongside the rise in online qualitative research, fraudulent representation of research participants is increasing, and current strategies to address this issue within studies of non-neurodiverse samples may exclude autistic voices. Seeking to reduce fraudulent or \"scammer\" participation in our focus group study, and increase data validity and expenditure efficiency, we implemented strategies suggested in the literature and tested additional strategies. This research adds to the growing conversation around best practices for reducing scammers in autism research using online methods by (1) providing data evaluating the utility of existing strategies; (2) testing emerging strategies; and (3) discussing ethical dilemmas involved in addressing scammers in studies. We received over 200 expressions of interest and the established strategies suggested in the literature plus emerging strategies proved critical for mitigating the enrollment of scammers in focus groups. Protecting the integrity of data about human subjects from fraud is essential for rigorous autism research; trustworthy conclusions cannot be otherwise drawn from analysis. However, the strategies inherently require subjective decision-making that could systematically exclude participants with more limited or atypical communication and result in unfair subject selection. Procedures we recommend incur resources and are time consuming but are beneficial to ensure data integrity and inclusivity.Lay abstractOver the last decade, especially since the pandemic, more research has been happening online. Conducting research online can create opportunities to include autistic people across the world and make our studies more diverse. However, conducting research online had led to scammers, or people pretending to be autistic, participating in autism research studies. Strategies to stop scammers may accidentally leave out autistic people who have difficulty with processing time and open-ended questions. We tried out documented strategies to stop scammers from participating in autism research. We also tested new strategies to understand how helpful they are. Using these strategies, we suspected over 100 people who wanted to participate were scammers and did not invite them to participate. As researchers, we must ensure we stop scammers from participating in our studies. It's important to highlight autistic voices and guarantee we get accurate results. However, the strategies to identify scammers may also leave out autistic people who have communication differences. This is unfair and could also make our results less reliable. The existing and new strategies to stop scammers take a lot of time and resources but they're worth it to make sure our data are reliable, and include only autistic voices.</p>","PeriodicalId":8724,"journal":{"name":"Autism","volume":" ","pages":"859-867"},"PeriodicalIF":5.2,"publicationDate":"2025-04-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142709117","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"心理学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Accuracy of the Screening Tool for Autism in Toddlers and Young Children in the primary care setting. 幼儿和幼儿自闭症筛查工具在基层医疗机构的准确性。
IF 5.2 2区 心理学
Autism Pub Date : 2025-04-01 Epub Date: 2024-11-06 DOI: 10.1177/13623613241292850
Rebecca McNally Keehn, Noha F Minshawi, Qing Tang, Brett Enneking, Tybytha Ryan, Ann Marie Martin, Angela Paxton, Patrick O Monahan, Mary Ciccarelli, Brandon Keehn
{"title":"Accuracy of the Screening Tool for Autism in Toddlers and Young Children in the primary care setting.","authors":"Rebecca McNally Keehn, Noha F Minshawi, Qing Tang, Brett Enneking, Tybytha Ryan, Ann Marie Martin, Angela Paxton, Patrick O Monahan, Mary Ciccarelli, Brandon Keehn","doi":"10.1177/13623613241292850","DOIUrl":"10.1177/13623613241292850","url":null,"abstract":"&lt;p&gt;&lt;p&gt;Feasible and accurate assessment tools developed for non-specialists are needed to scale community-based models of autism evaluation. The purpose of this study was to evaluate use of the Screening Tool for Autism in Toddlers and Young Children (STAT) when used by primary care practitioners (&lt;i&gt;n&lt;/i&gt; = 10) across a statewide system of early diagnosis set within seven United States primary care practices. Specifically, for 130, 14- to 48-month-old children, we examined (1) agreement between STAT classification and Autism Diagnostic Observation Schedule, Second Edition (ADOS-2) outcome and expert diagnosis of autism, (2) characteristics of children with inaccurate STAT classifications, (3) consistency between STAT classification and primary care practitioner diagnosis, and (4) the relationship between STAT/primary care practitioner classification and expert diagnosis. The STAT demonstrated good concurrent validity with the ADOS-2 (77% agreement). Concordance between specialty trained primary care practitioners with expert diagnosis was 80%-87% across three age-based subgroups of children. Children misclassified by the STAT were older, had higher developmental and adaptive skills, and lower autism symptoms. Primary care practitioner diagnosis aligned with STAT categorical risk classification in 86% of cases, and 73% of consistent classifications between STAT and primary care practitioner diagnosis matched expert diagnosis. Overall, the STAT demonstrates good accuracy when used by non-specialists as part of a diagnostic evaluation.Lay summarySpecialists conduct autism evaluations using tools that are expensive and difficult to get trained on. Families often wait a long time and travel far to get a diagnosis for their child. To help with this problem, primary care practitioners can be trained to provide evaluations in local communities. However, usable and accurate tools developed for non-specialists are needed. The Screening Tool for Autism in Toddlers and Young Children (STAT) was created for this purpose, but limited research has been done on accuracy of the tool in community primary care. This study tested the STAT when used by primary care practitioners as part of a diagnostic evaluation in 130, 14- to 48-month-old children. We tested (1) STAT agreement with the Autism Diagnostic Observation Schedule, Second Edition (ADOS-2), and diagnosis based on an expert research evaluation, and (2) the relationship between STAT classification, primary care practitioner diagnosis, and expert diagnosis. STAT classification matched the ADOS-2 in 77% of cases and expert diagnosis in 78% of cases. Autistic children incorrectly classified by the STAT were older, had higher developmental and adaptive skills, and fewer autism symptoms. In 86% of cases, the STAT classification agreed with primary care practitioner diagnosis. STAT classification, primary care practitioner diagnosis, and expert diagnosis agreed in 73% of cases. Overall, the STAT shows good accurac","PeriodicalId":8724,"journal":{"name":"Autism","volume":" ","pages":"945-957"},"PeriodicalIF":5.2,"publicationDate":"2025-04-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11968254/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142581975","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"心理学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Autism disproportionality in racially and ethnically minoritized and girl students in schools. 自闭症在少数种族和族裔学生以及在校女生中的比例失调。
IF 5.2 2区 心理学
Autism Pub Date : 2025-04-01 Epub Date: 2024-11-16 DOI: 10.1177/13623613241293046
Parker S Beckman, Maryellen Brunson McClain, Bryn Harris, Alexa Brownell, Britany M Beauchesne, Gwendolyn Davis, Jac'lyn Bera, Rabbiya Shahid
{"title":"Autism disproportionality in racially and ethnically minoritized and girl students in schools.","authors":"Parker S Beckman, Maryellen Brunson McClain, Bryn Harris, Alexa Brownell, Britany M Beauchesne, Gwendolyn Davis, Jac'lyn Bera, Rabbiya Shahid","doi":"10.1177/13623613241293046","DOIUrl":"10.1177/13623613241293046","url":null,"abstract":"<p><p>Special education services are crucial for enhancing outcomes and well-being among autistic students. Unfortunately, many racially and ethnically minoritized and girl autistic youth face challenges in timely and accurate identification. National-level data reveal autism prevalence rates differ across student gender, race, and ethnicity hindering access to services and appropriate education. As research focusing on autism disproportionality in schools is limited, we investigate autism identification disparities specific to racially and ethnically minoritized and girl students at the national and state levels in schools. State-level data from the 2019-2020 academic year were obtained from the United States Department of Education and analyzed to assess prevalence rate, relative risk, and systemic-level predictors of autism identification disparities. Girls were under-identified with autism in schools compared to their boy peers. The disproportionality risk of racially and ethnically minoritized students compared to White students had decreased in reference to prior reports, with the least improvement for Latine students. School locale proved significant in predicting the risk of autism identification for girl and Latine students. These findings can inform policy change, raise the collective consciousness, and encourage practitioners to seek out continued education regarding autism identification and girl students to reduce or eliminate these disparities.Lay abstractSpecial education services are important for helping autistic students succeed, but many racially and ethnically minoritized and girl students face difficulties in getting support because they are not identified appropriately in schools. This study looks at the identification of autism in racially and ethnically minoritized and girl students across schools in the United States during the 2019-2020 school year. We found that girls are less likely to be identified compared to boys, which means they might not get the help they need. The gap between racially and ethnically minoritized students and White students in autism identification has improved slightly, but Latinx students still face challenges. We also found that where students live (their locale) affects their chances of being identified, especially for girls and Latinx students. These findings show that there are disparities in school autism identification, and understanding them can help policymakers, educators, and communities make changes to ensure all autistic students get the support they need.</p>","PeriodicalId":8724,"journal":{"name":"Autism","volume":" ","pages":"907-919"},"PeriodicalIF":5.2,"publicationDate":"2025-04-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142643778","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"心理学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Exploratory analyses of sleep intraindividual variability and fatigue in parents of children on the autism spectrum. 自闭症谱系儿童父母的睡眠个体内变异性和疲劳的探索性分析。
IF 5.2 2区 心理学
Autism Pub Date : 2025-04-01 Epub Date: 2024-11-12 DOI: 10.1177/13623613241292691
Braden Hayse, Melanie A Stearns, Micah O Mazurek, Ashley F Curtis, Neetu Nair, Wai Sze Chan, Melissa Munoz, Kevin D McGovney, David Q Beversdorf, Mojgan Golzy, Kristin A Sohl, Zarah H Ner, Beth Ellen Davis, Nicole Takahashi, Christina S McCrae
{"title":"Exploratory analyses of sleep intraindividual variability and fatigue in parents of children on the autism spectrum.","authors":"Braden Hayse, Melanie A Stearns, Micah O Mazurek, Ashley F Curtis, Neetu Nair, Wai Sze Chan, Melissa Munoz, Kevin D McGovney, David Q Beversdorf, Mojgan Golzy, Kristin A Sohl, Zarah H Ner, Beth Ellen Davis, Nicole Takahashi, Christina S McCrae","doi":"10.1177/13623613241292691","DOIUrl":"10.1177/13623613241292691","url":null,"abstract":"&lt;p&gt;&lt;p&gt;Fatigue is associated with numerous harmful physical and mental health outcomes. Despite the established relationship between sleep and fatigue, research examining sleep variability within a person (i.e. intraindividual variability; IIV) and fatigue is limited. In addition, the associations between child and parent sleep regarding parent fatigue have not been explicitly explored, which could be relevant for parents of autistic children with increased sleep disturbance likelihood. The current study used two weeks of objective sleep (actigraphy) and subjective fatigue data from 81 parents and their children to explore associations among child sleep IIV, parent sleep IIV, and parent average daily fatigue, including evaluating evidence for mediation. Sleep IIV was estimated using a validated Bayesian model. Linear regression analyses indicated that greater parent total sleep time IIV predicted significantly higher fatigue levels. Child sleep IIV was unrelated to parent sleep IIV and fatigue, unsupportive of hypothesized mediation. Similarly, post hoc analyses examining child sleep averages, parent total sleep time IIV, and average parent fatigue were insignificant. Findings cautiously support the uniqueness of total sleep time IIV within parental sleep's relationship with fatigue, independent of child sleep. Objective sleep IIV should continue to be examined in addition to average levels.Lay abstractFatigue is associated with numerous harmful physical and mental health outcomes. Despite research indicating a relationship between fatigue and sleep, there has been a limited focus on how the variability of a person's sleep may be associated with fatigue. In addition, previous studies have not explicitly explored relationships among child sleep, parent sleep, and parent fatigue. Increasing knowledge about this area of research could be particularly relevant for families with autistic children with an increased likelihood of sleep disturbances. The current study used two weeks of objective sleep (actigraphy) data and subjective ratings of parent fatigue from 81 parents and their autistic children to examine associations among child and parent within-person sleep variability regarding average parent fatigue levels. Evidence was assessed for the role of parent sleep variability in hypothesized connections between child sleep variability and parent fatigue. We found that only greater variability in parents' total sleep time was associated with higher levels of parents' average daily fatigue rating over the two weeks. Child sleep variability was not significantly associated with parent sleep variability or average daily fatigue. In addition, average levels of child sleep were unrelated to parent total sleep time variability and fatigue. Although cautious interpretation is required, findings support the idea that variability in total sleep time may be a unique aspect of parental sleep's association with fatigue, independent of child sleep. In addition, s","PeriodicalId":8724,"journal":{"name":"Autism","volume":" ","pages":"958-974"},"PeriodicalIF":5.2,"publicationDate":"2025-04-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142613975","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"心理学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Longitudinal associations between autistic children's anxiety and social communication differences: The moderating role of executive function behaviours. 自闭症儿童的焦虑与社交沟通差异之间的纵向联系:执行功能行为的调节作用。
IF 5.2 2区 心理学
Autism Pub Date : 2025-04-01 Epub Date: 2024-11-27 DOI: 10.1177/13623613241296589
Elise Ng-Cordell, Hannah Pickard, Rachael Bedford, Annie Richard, Anat Zaidman-Zait, Lonnie Zwaigenbaum, Eric Duku, Teresa Bennett, Stelios Georgiades, Isabel M Smith, Tracy Vaillancourt, Peter Szatmari, Mayada Elsabbagh, Connor M Kerns
{"title":"Longitudinal associations between autistic children's anxiety and social communication differences: The moderating role of executive function behaviours.","authors":"Elise Ng-Cordell, Hannah Pickard, Rachael Bedford, Annie Richard, Anat Zaidman-Zait, Lonnie Zwaigenbaum, Eric Duku, Teresa Bennett, Stelios Georgiades, Isabel M Smith, Tracy Vaillancourt, Peter Szatmari, Mayada Elsabbagh, Connor M Kerns","doi":"10.1177/13623613241296589","DOIUrl":"10.1177/13623613241296589","url":null,"abstract":"<p><p>Anxiety has been associated with social communication and interaction differences among autistic children. We sought to clarify the direction of these associations longitudinally, and test executive function as a moderator. Participants were autistic children (<i>N</i> = 157; 15% female, 85% male) engaged in a longitudinal study. Analyses focused on two timepoints during preadolescence (<i>M</i> ages 9.7 and 10.7 years). A cross-lagged panel model tested whether parent-reported anxiety at age 9 years predicted teacher-reported social communication and interaction differences at age 10 years, and vice versa. Next, multigroup analyses tested for similarity in cross-lagged pathways at different levels of teacher-reported metacognition and behavioural regulation (two facets of executive function). At each time point, respectively, 22% and 21% of children had anxiety exceeding a suggested clinical threshold. Longitudinal associations between parent-reported anxiety and teacher-reported social communication and interaction differences were not significant in the full sample. However, multigroup analyses found lower levels of parent-reported anxiety at age 9 years predicted greater teacher-reported social communication and interaction differences at age 10 years among participants with clinically elevated behavioural dysregulation. Findings indicate low levels of anxiety, coupled with behavioural dysregulation, may signify potential for increasing social communication and interaction differences observed by teachers among autistic children entering adolescence.Lay abstractAnxiety is a mental health concern affecting many autistic children, and has been linked to greater differences in social communication and interaction style. Executive functioning (i.e. the ability to direct and regulate attention and behaviour) plays an important role in autistic children's social-emotional development. We tested whether anxiety (reported by parents) predicts social communication and interaction differences (reported by teachers) over time or vice versa among autistic preadolescents. We also investigated whether the link between anxiety and social communication and interaction differed depending on children's EF abilities (reported by teachers). We found <i>less</i> parent-reported anxiety predicted <i>more</i> teacher-reported social communication and interaction differences a year later - but only for children who had heightened behavioural dysregulation (an aspect of executive functioning that includes impulse and emotion control). Our work suggests autistic preadolescents with behavioural dysregulation and limited anxiety may be at greater risk for social difficulties, and may need more support in this area. Executive functioning may be a useful mechanism to target in treatment for this group of children.</p>","PeriodicalId":8724,"journal":{"name":"Autism","volume":" ","pages":"1058-1071"},"PeriodicalIF":5.2,"publicationDate":"2025-04-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11967098/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142738278","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"心理学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
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