IF 5.2 2区心理学

Autism Pub Date : 2024-11-01 Epub Date: 2024-03-18 DOI: 10.1177/13623613241238254

Zsófia Szlamka, Cukier Sebastián, Charlotte Hanlon, Rosa A Hoekstra

{"title":"Caregiver-centred empowerment for families raising autistic children: A qualitative case study from Argentina.","authors":"Zsófia Szlamka, Cukier Sebastián, Charlotte Hanlon, Rosa A Hoekstra","doi":"10.1177/13623613241238254","DOIUrl":"10.1177/13623613241238254","url":null,"abstract":"Lay abstract: Caregivers of children with developmental disabilities, including autism, often struggle to access services, information and resources in Argentina. Little is known about how caregivers can be empowered to support their children as they wish to in the Argentinian setting. We spoke with 32 people online to understand existing and potential practices of supporting caregivers. The people we spoke with included caregivers, health service providers, non-governmental organisations' representatives providing services or technical support, special education teachers and policy representatives. Participants said that poverty, and inequalities in accessing support, impact how caregivers can support their children. They mentioned examples that help caregivers feel empowered, such as peer support groups and caregiver training. Many caregivers spoke about how they became advocates for their children and how they developed initiatives such as advocacy campaigns and well-being support groups. Caregivers in Argentina may be empowered in various ways, and the following strategies can improve empowerment: strengthening collaboration between professionals and caregivers; focusing on caregiver mental health; and addressing the profound impact of poverty on the quality of life of families.","PeriodicalId":8724,"journal":{"name":"Autism","volume":null,"pages":null},"PeriodicalIF":5.2,"publicationDate":"2024-11-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11497749/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"140157529","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"心理学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Time is of the essence: Age at autism diagnosis, sex assigned at birth, and psychopathology. 时间是关键：自闭症诊断年龄、出生时的性别分配和精神病理学。

IF 5.2 2区心理学

Autism Pub Date : 2024-11-01 Epub Date: 2024-05-09 DOI: 10.1177/13623613241249878

Jessica V Smith, Goldie A McQuaid, Gregory L Wallace, Emily Neuhaus, Andrea Lopez, Allison B Ratto, Allison Jack, Alexis Khuu, Sara J Webb, Alyssa Verbalis, Kevin A Pelphrey, Lauren Kenworthy

{"title":"Time is of the essence: Age at autism diagnosis, sex assigned at birth, and psychopathology.","authors":"Jessica V Smith, Goldie A McQuaid, Gregory L Wallace, Emily Neuhaus, Andrea Lopez, Allison B Ratto, Allison Jack, Alexis Khuu, Sara J Webb, Alyssa Verbalis, Kevin A Pelphrey, Lauren Kenworthy","doi":"10.1177/13623613241249878","DOIUrl":"10.1177/13623613241249878","url":null,"abstract":"Lay abstract: Previous research has shown that girls/women are diagnosed later than boys/men with autism. Individuals who are diagnosed later in life, especially girls/women, have greater anxious and depressive symptoms. Previous research has been limited due to narrow inclusionary criteria for enrollment in studies. The present study uses two samples-one clinic-based, large \"real-world\" sample and another research-based sample with strict criteria for autism diagnosis-to understand the relationships between diagnostic age, sex assigned at birth, and symptoms of anxiety/depression. In both samples, those who were diagnosed later had greater anxious/depressive symptoms, and anxiety was not predicted by sex. In the clinic-based but not research-based sample, those assigned female at birth were diagnosed later than those assigned male at birth. In the clinic-based sample only, individuals assigned female at birth and who were later diagnosed experienced greater symptoms of anxiety/depression compared to those assigned male who benefited from earlier diagnostic timing. Within the research-based sample, those assigned female at birth had greater depressive symptoms than those assigned male. These findings highlight the importance of timely identification of autism, especially for girls/women who are often diagnosed later. Community-based samples are needed to better understand real-world sex-based and diagnostic age-based disparities in mental health.","PeriodicalId":8724,"journal":{"name":"Autism","volume":null,"pages":null},"PeriodicalIF":5.2,"publicationDate":"2024-11-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11496012/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"140897258","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"心理学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

'It's not always textbook social anxiety': A survey-based study investigating the nature of social anxiety and experiences of therapy in autistic people. 这并不总是教科书上的社交焦虑"：一项基于调查的研究，调查自闭症患者社交焦虑的性质和治疗经历。

IF 5.2 2区心理学

Autism Pub Date : 2024-11-01 Epub Date: 2024-05-14 DOI: 10.1177/13623613241251513

Alexander C Wilson, Fiona Gullon-Scott

{"title":"'It's not always textbook social anxiety': A survey-based study investigating the nature of social anxiety and experiences of therapy in autistic people.","authors":"Alexander C Wilson, Fiona Gullon-Scott","doi":"10.1177/13623613241251513","DOIUrl":"10.1177/13623613241251513","url":null,"abstract":"Lay abstract: The nature of social anxiety has been widely researched in non-autistic people. This existing research has allowed therapists to develop effective therapy for social anxiety in non-autistic people. Meanwhile, some research suggests that autistic people may have different experiences of anxiety compared to non-autistic people. In addition, there is some evidence that modified therapy may help autistic people with social anxiety, although we also know that many autistic people feel failed by existing mental health services.This article provides a detailed picture of social anxiety in autistic people. This includes similarities and differences compared to non-autistic people. In terms of similarities, people often described feeling afraid that others would judge them, and this would have negative consequences. In terms of differences, autistic people commonly reported a clash between their traits and their social environment, which caused them distress and discomfort. This included factors only rarely reported by non-autistic people (such as struggling with too much sensory stimulation or inaccessible forms of communication and encountering discrimination for these problems). Based on this, we propose a 'distinct' model of social anxiety with particular relevance to autistic people. In addition, many participants reported negative experiences in therapy for social anxiety. They thought therapists wrongly viewed their fears of social situations as irrational and ungrounded. They thought therapists did not adapt the therapy process in an individualised way and did not understand neurodiversity or recognise neurodivergence.Standard approaches for social anxiety may not always suit autistic people, so this needs further exploration. We highlight several practical recommendations for therapists offering therapy for social anxiety to autistic people.","PeriodicalId":8724,"journal":{"name":"Autism","volume":null,"pages":null},"PeriodicalIF":5.2,"publicationDate":"2024-11-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11497753/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"140915885","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"心理学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

The impact of educational and medical systems on autistic children from multilingual American homes: A systematic review. 教育和医疗系统对来自多语言美国家庭的自闭症儿童的影响：系统回顾。

IF 5.2 2区心理学

Autism Pub Date : 2024-11-01 Epub Date: 2024-04-10 DOI: 10.1177/13623613241242839

Hyejung Kim, Diana Baker, Sunyoung Kim, Cong Liu, Kelley Cook

{"title":"The impact of educational and medical systems on autistic children from multilingual American homes: A systematic review.","authors":"Hyejung Kim, Diana Baker, Sunyoung Kim, Cong Liu, Kelley Cook","doi":"10.1177/13623613241242839","DOIUrl":"10.1177/13623613241242839","url":null,"abstract":"Lay abstract: Research has found that autistic children can navigate multilingual schools and communities without harming their language skills or school success. However, they may encounter specific challenges within the United States, where educational and healthcare systems are insufficiently equipped to meet their needs. This review examined 46 US-based studies on the topic and findings reveal persistent deficit-based ideas about multilingualism and autism (e.g., professionals recommending that autistic students only speak and learn in English) accompanied by patterns of unequal identification of autism among multilingual children. These findings highlight issues of disproportionality and inadequate access to educational and healthcare resources. However, recent studies indicate that incorporating a child's native language in education not only enhances learning and behavioral outcomes but also boosts cognitive functions like problem-solving and planning. Taken as a whole, current research suggests that intentionally addressing linguistic diversity will allow educational and medical systems to better serve autistic children.","PeriodicalId":8724,"journal":{"name":"Autism","volume":null,"pages":null},"PeriodicalIF":5.2,"publicationDate":"2024-11-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"140849645","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"心理学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Neurodiversity paradigms and their development across cultures: Some reflections in East Asian contexts. 神经多样性范式及其在不同文化中的发展：东亚背景下的一些思考。

IF 5.2 2区心理学

Autism Pub Date : 2024-11-01 Epub Date: 2024-10-06 DOI: 10.1177/13623613241285678

Tomoya Hirota, Keun-Ah Cheon, Meng-Chuan Lai

引用次数: 0

Considerations for effective dissemination of evidence-based early intervention approaches. 有效传播循证早期干预方法的考虑因素。

IF 5.2 2区心理学

Autism Pub Date : 2024-11-01 Epub Date: 2024-05-05 DOI: 10.1177/13623613241253117

Sophia R D'Agostino, Kyle M Frost, Katherine Pickard

引用次数: 0

The Neurodiversity Attitudes Questionnaire: Development and Initial Validation. 神经多样性态度问卷：开发与初步验证。

IF 5.2 2区心理学

Autism Pub Date : 2024-11-01 Epub Date: 2024-04-28 DOI: 10.1177/13623613241245756

Rachel K Schuck, Sunghee Choi, Kaitlynn Mp Baiden, Patrick Dwyer, Mirko Uljarević

{"title":"The Neurodiversity Attitudes Questionnaire: Development and Initial Validation.","authors":"Rachel K Schuck, Sunghee Choi, Kaitlynn Mp Baiden, Patrick Dwyer, Mirko Uljarević","doi":"10.1177/13623613241245756","DOIUrl":"10.1177/13623613241245756","url":null,"abstract":"Lay abstract: Neurodiversity refers to the idea that brain differences (including disabilities) are valuable and should be accepted. Attitudes toward neurodiversity can have real-life impacts on the lives of neurodivergent people (those whose brains do not fit society's \"standard\"). These impacts can include effects on daily interactions, as well as how professionals such as teachers and doctors deliver services to neurodivergent people. In order to identify negative attitudes toward neurodiversity and potentially improve them, we first need to measure these attitudes. This article describes the development of the Neurodiversity Attitudes Questionnaire (NDAQ). NDAQ development included revision of questionnaire items based on feedback from experts and neurodivergent people, systematically evaluating the way participants responded to questionnaire items, and analysis of how the NDAQ items are grouped into different factors. A preliminary analysis with 351 individuals mostly living in the United States who were currently working or planning to work in a helping profession (e.g. doctors, teachers, therapists, and so on) indicates that the NDAQ measures attitudes toward neurodiversity, is well understood by participants, and fits a five-factor structure. While the NDAQ represents the first instrument designed to specifically assess attitudes toward the broad idea of neurodiversity, further work is still needed.","PeriodicalId":8724,"journal":{"name":"Autism","volume":null,"pages":null},"PeriodicalIF":5.2,"publicationDate":"2024-11-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11497738/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"140849119","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"心理学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Validating the Child Behavior Checklist 1.5-5 as a screening tool for autism spectrum disorder. 验证儿童行为检查表 1.5-5 作为自闭症谱系障碍筛查工具的有效性。

IF 5.2 2区心理学

Autism Pub Date : 2024-10-29 DOI: 10.1177/13623613241293088

Norton Kitanishi, Daniela Bordini, Marcos V V Ribeiro, Cristiane Silvestre Paula, Helena Brentani, Joana Portelese, Pamela J Surkan, Silvia S Martins, Jair de Jesus Mari, Paola Matiko Martins Okuda, Sheila C Caetano

{"title":"Validating the Child Behavior Checklist 1.5-5 as a screening tool for autism spectrum disorder.","authors":"Norton Kitanishi, Daniela Bordini, Marcos V V Ribeiro, Cristiane Silvestre Paula, Helena Brentani, Joana Portelese, Pamela J Surkan, Silvia S Martins, Jair de Jesus Mari, Paola Matiko Martins Okuda, Sheila C Caetano","doi":"10.1177/13623613241293088","DOIUrl":"10.1177/13623613241293088","url":null,"abstract":"Lay abstract: Early identification of Autism Spectrum Disorder is very important, especially in low and middle-income countries, where access to resources is often limited. The Child Behavior Checklist 1.5-5 is a tool that has been used to help identify children with autism spectrum disorder through specific behavior patterns. However, its effectiveness in low- and middle-income country settings has not been thoroughly studied. This research focused on evaluating the Child Behavior Checklist 1.5-5 as a screening tool for autism spectrum disorder among Brazilian children. The study involved 1292 children aged 3-5 years from the general population and 70 children with autism spectrum disorder aged 1-5 years. Using advanced statistical methods, the study tested how well the Child Behavior Checklist identified children with autism spectrum disorder and how reliable it was in this context. The findings showed that the Child Behavior Checklist 1.5-5 performed well in identifying autism spectrum disorder, with high reliability and consistency in the results. Although one item in each of the autism spectrum problems and withdrawn syndrome subscales did not perform as strongly, the overall tool was effective. In summary, the Child Behavior Checklist 1.5-5 proves to be a reliable and valid tool for early autism spectrum disorder screening in Brazilian children. This can help ensure that more children in low- and middle-income country settings are identified early and receive the necessary support and interventions to help them thrive. Future research should continue to test this tool in different contexts to confirm its usefulness across various populations.","PeriodicalId":8724,"journal":{"name":"Autism","volume":null,"pages":null},"PeriodicalIF":5.2,"publicationDate":"2024-10-29","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142520887","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"心理学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

'It's designed for someone who is not me': A reflexive thematic analysis of the unmet healthcare support needs in UK autistic adults aged 65 years and over. 这是为不是我的人设计的"：对英国 65 岁及以上自闭症成人未得到满足的医疗保健支持需求的反思性专题分析。

IF 5.2 2区心理学

Autism Pub Date : 2024-10-29 DOI: 10.1177/13623613241291081

Hassan Mansour, Amy Gillions, Jude Brown, Anoushka Pattenden, Susan Hartley, Sarifa Patel, Stephanie James, Martin Styles, Will Mandy, Joshua Stott, Elizabeth O'Nions

{"title":"'It's designed for someone who is not me': A reflexive thematic analysis of the unmet healthcare support needs in UK autistic adults aged 65 years and over.","authors":"Hassan Mansour, Amy Gillions, Jude Brown, Anoushka Pattenden, Susan Hartley, Sarifa Patel, Stephanie James, Martin Styles, Will Mandy, Joshua Stott, Elizabeth O'Nions","doi":"10.1177/13623613241291081","DOIUrl":"10.1177/13623613241291081","url":null,"abstract":"Lay abstract: Autistic people often face both physical and mental health challenges throughout their lives, which can lead to a higher risk of premature death due to health inequalities. However, we know very little about the healthcare experiences of autistic older adults. In this study, we talked with 19 autistic adults aged 65 years or above living in the United Kingdom. We found these main themes: (1) A lifetime of being misunderstood; (2) Autistic people falling between the gaps; (3) Processing autism diagnosis in later life; (4) Concerns about service pressures and scarce resources; (5) Lack of continuity of care, empathy and understanding; (6) Anxiety, alexithymia and sensory overload; and (7) Reduced social support and concerns for the future. Themes show that autistic older adults face unique healthcare access challenges because services don't consider their lifelong experiences of social exclusion. Participants also worried about age-related decline coupled with reduced social support, which makes it harder for them to get support. To address these challenges, healthcare services should provide more targeted support, make policies and funding consistent, and improve healthcare provision by providing staff training. Importantly, they must also speak with autistic older adults so they can advocate for their current and future care.","PeriodicalId":8724,"journal":{"name":"Autism","volume":null,"pages":null},"PeriodicalIF":5.2,"publicationDate":"2024-10-29","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142520884","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"心理学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Prevalence, incidence, and characteristics of autism spectrum disorder among children in Beijing, China. 中国北京儿童自闭症谱系障碍的患病率、发病率和特征。

IF 5.2 2区心理学

Autism Pub Date : 2024-10-29 DOI: 10.1177/13623613241290388

Yanan Zhao, Feng Lu, Ruoxi Ding, Dawei Zhu, Rong Zhang, Siwei Sun, Ping He, Xiaoying Zheng

引用次数: 0

Autism最新文献