Autism最新文献_第10页

A systematic review of pre-registration in autism research journals. 孤独症研究期刊预注册的系统回顾。

IF 5.2 2区心理学

Autism Pub Date : 2024-12-25 DOI: 10.1177/13623613241308312

Daniel Poole, Audrey Linden, Felicity Sedgewick, Oliver Allchin, Hannah Hobson

{"title":"A systematic review of pre-registration in autism research journals.","authors":"Daniel Poole, Audrey Linden, Felicity Sedgewick, Oliver Allchin, Hannah Hobson","doi":"10.1177/13623613241308312","DOIUrl":"https://doi.org/10.1177/13623613241308312","url":null,"abstract":"Lay abstract: When researchers write down their plans for a study ahead of time and make this public, this is called pre-registration. Pre-registration allows others to see if the researchers stuck to their original plan or changed as they went along. Pre-registration is growing in popularity but we do not know how widely it is used in autism research. In this study, we looked at papers published in six major autism journals between 2011 and 2022. We found that only 2.23% of papers published in autism journals had been pre-registered. We also took a close look at a selection of the pre-registrations to check how good they were and if researchers stuck to their plans. We found that the pre-registrations generally lacked specifics, particularly about how the study was designed and the data would be analysed. We also found that only 28% of the papers closely followed the pre-registered plans or reported the changes.Based on these findings, we recommend that autism researchers consider pre-registering their work and transparently report any changes from their original plans. We have provided some recommendations for researchers and journals on how pre-registration could be better used in autism research.","PeriodicalId":8724,"journal":{"name":"Autism","volume":" ","pages":"13623613241308312"},"PeriodicalIF":5.2,"publicationDate":"2024-12-25","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142885225","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"心理学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Design, methodology, and early findings of an autism registry program: ABBILAR project. 自闭症登记项目的设计、方法和早期发现：ABBILAR项目。

IF 5.2 2区心理学

Autism Pub Date : 2024-12-21 DOI: 10.1177/13623613241305723

Hassan Shahrokhi, Ayyoub Malek, Sanaz Norouzi, Shahrokh Amiri, Seyed Gholamreza Noorazar, Seifollah Heidarabadi, Ali Bahari Gharehgoz, Saeed Dastgiri, Mahsa Zali, Kamal Gholipour, Mohammad Barzegar, Raha Shahrokhi, Sahand Broumand, Shabnam Iezadi

引用次数: 0

'I did what I could to earn some money and be of use': A qualitative exploration of autistic people's journeys to career success and fulfilment. “我做了我能做的，赚一些钱，做一个有用的人”：对自闭症患者事业成功和成就之旅的定性探索。

IF 5.2 2区心理学

Autism Pub Date : 2024-12-20 DOI: 10.1177/13623613241292177

Jade Davies, Rachel Melinek, Adam Livesey, Estelle Killick, Evelyn Sam, Anna Melissa Romualdez, Elizabeth Pellicano, Anna Remington

{"title":"'I did what I could to earn some money and be of use': A qualitative exploration of autistic people's journeys to career success and fulfilment.","authors":"Jade Davies, Rachel Melinek, Adam Livesey, Estelle Killick, Evelyn Sam, Anna Melissa Romualdez, Elizabeth Pellicano, Anna Remington","doi":"10.1177/13623613241292177","DOIUrl":"10.1177/13623613241292177","url":null,"abstract":"Lay abstract: Many autistic people want to work but have trouble finding jobs they like and can stick with. Most research tries to help more autistic people get jobs, but does not look at whether those jobs are fulfilling, or how people progress once they start working. We spoke to 18 autistic people about their experiences at work, and their ideas about success at work. Participants said finding fulfilment in their careers was key. We found five common 'themes' across the interviews. First, autistic people's careers often take unexpected turns. For example, many participants only got diagnosed as adults, which sometimes changed their work plans. Second, autistic people might need ongoing help with their career, including help with finding jobs they would enjoy and be good at, and advice on how to progress in their job. Third, getting along with others at work is really important. Having supportive colleagues helped our participants thrive, but workplace bullying forced some to leave their jobs. Fourth, workplaces need to be welcoming to everybody. Adjustments and understanding managers helped, but many of our participants' workplaces were not inclusive. Finally, bad work experiences can be devastating for mental health and well-being and negative experiences like bullying led some participants to quit working entirely. Our findings show that lifelong support tailored to each person and welcoming workplaces are important for autistic people to thrive at work. It is not enough to just hire autistic people - we need to help them have jobs they like and can stick with long-term.","PeriodicalId":8724,"journal":{"name":"Autism","volume":" ","pages":"13623613241292177"},"PeriodicalIF":5.2,"publicationDate":"2024-12-20","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142863111","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"心理学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Pre-trained artificial intelligence language model represents pragmatic language variability central to autism and genetically related phenotypes. 预先训练的人工智能语言模型代表了自闭症和遗传相关表型的核心语用变异性。

IF 5.2 2区心理学

Autism Pub Date : 2024-12-20 DOI: 10.1177/13623613241304488

Joseph Cy Lau, Emily Landau, Qingcheng Zeng, Ruichun Zhang, Stephanie Crawford, Rob Voigt, Molly Losh

{"title":"Pre-trained artificial intelligence language model represents pragmatic language variability central to autism and genetically related phenotypes.","authors":"Joseph Cy Lau, Emily Landau, Qingcheng Zeng, Ruichun Zhang, Stephanie Crawford, Rob Voigt, Molly Losh","doi":"10.1177/13623613241304488","DOIUrl":"10.1177/13623613241304488","url":null,"abstract":"Lay abstract: Autism is clinically defined by challenges with social language, including difficulties offering on-topic language in a conversation. Similar differences are also seen in genetically related conditions such as fragile X syndrome (FXS), and even among those carrying autism-related genes who do not have clinical diagnoses (e.g., the first-degree relatives of autistic individuals and carriers of the FMR1 premutation), which suggests there are genetic influences on social language related to the genes involved in autism. Characterization of social language is therefore important for informing potential intervention strategies and understanding the causes of communication challenges in autism. However, current tools for characterizing social language in both clinical and research settings are very time and labor intensive. In this study, we test an automized computational method that may address this problem. We used a type of artificial intelligence known as pre-trained language model to measure aspects of social language in autistic individuals and their parents, non-autistic comparison groups, and individuals with FXS and the FMR1 premutation. Findings suggest that these artificial intelligence approaches were able to identify differences in social language in autism, and to provide insight into the individuals' ability to keep a conversation on-topic. These findings also were associated with broader measures of participants' social communication ability. This study is one of the first to use artificial intelligence models to capture important differences in social language in autism and genetically related groups, demonstrating how artificial intelligence might be used to provide automatized, efficient, and objective tools for language characterization.","PeriodicalId":8724,"journal":{"name":"Autism","volume":" ","pages":"13623613241304488"},"PeriodicalIF":5.2,"publicationDate":"2024-12-20","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142863117","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"心理学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Focusing on autism symptoms masks sex-specific needs of autistic children: An example from the Sydney Child Neurodevelopment Research Registry. 关注自闭症症状掩盖了自闭症儿童的性别特异性需求：来自悉尼儿童神经发育研究登记处的一个例子。

IF 5.2 2区心理学

Autism Pub Date : 2024-12-20 DOI: 10.1177/13623613241303550

Marie Antoinette Hodge, Rebecca Sutherland, Kelsie A Boulton, Sarah Jane Baracz, Natalie Ong, Beverley Bennett, Adam J Guastella, Natalie Silove

{"title":"Focusing on autism symptoms masks sex-specific needs of autistic children: An example from the Sydney Child Neurodevelopment Research Registry.","authors":"Marie Antoinette Hodge, Rebecca Sutherland, Kelsie A Boulton, Sarah Jane Baracz, Natalie Ong, Beverley Bennett, Adam J Guastella, Natalie Silove","doi":"10.1177/13623613241303550","DOIUrl":"https://doi.org/10.1177/13623613241303550","url":null,"abstract":"Lay abstract: Studies have shown that there is a difference between biological sex at birth in autism spectrum disorder. There remains a lack of understanding about how the symptoms of autism differ between assigned males at birth and assigned females at birth. We looked at the presence of sex differences in a large group of autistic toddlers, children and adolescents, who were seen in a large diagnosis and assessment clinic. They participated in measures of intelligence/development, social/communication skills and behaviour. Their adaptive skills were evaluated and other clinical and information were collected. Assigned males at birth displayed more autism characteristics and greater symptom autism severity than assigned females at birth. There were no statistically significant differences between assigned males at birth and assigned females at birth on any measure of intellectual assessment. Assigned females at birth showed better nonverbal performance than assigned males at birth on formal developmental assessments. Children assigned males at birth received assessments 6 months earlier than children assigned females at birth. Externalising behaviour problems were more evident in assigned males at birth. This study provides evidence to show that autistic children assigned females at birth and assigned males at birth differ in terms of autism symptoms and severity and age at diagnosis based on a sample recruited in a real-world clinic. It highlights the importance of the growing debate between balancing assessments of symptoms with assessment of adaptive function.","PeriodicalId":8724,"journal":{"name":"Autism","volume":" ","pages":"13623613241303550"},"PeriodicalIF":5.2,"publicationDate":"2024-12-20","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142863185","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"心理学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Identifying the unique determinants influencing rural families' engagement with an existing tele-assessment approach for autism identification: A qualitative study. 用现有的自闭症鉴定远程评估方法确定影响农村家庭参与的独特决定因素：一项定性研究。

IF 5.2 2区心理学

Autism Pub Date : 2024-12-20 DOI: 10.1177/13623613241307078

Liliana Wagner, Tori Foster, Kemberlee Bonnet, Anna Kathleen Spitler, David Schlundt, Zachary Warren

{"title":"Identifying the unique determinants influencing rural families' engagement with an existing tele-assessment approach for autism identification: A qualitative study.","authors":"Liliana Wagner, Tori Foster, Kemberlee Bonnet, Anna Kathleen Spitler, David Schlundt, Zachary Warren","doi":"10.1177/13623613241307078","DOIUrl":"10.1177/13623613241307078","url":null,"abstract":"Lay abstract: It is often difficult for families in rural communities to access autism evaluations for their children when they have concerns. Tele-assessment could make it easier for them to see specialists who give autism diagnoses, but we still need to figure out the best way to carry out these approaches. To understand how rural families view tele-assessment, as well as barriers they may face, we held focus groups with caregivers of children with autism and local service providers in the Southeastern United States. We met with 22 caregivers and 10 providers. We analyzed the discussions and found four key attitudes: (1) questions about whether autism assessment can really be done online; (2) level of trust in the evaluation process, especially tele-assessment; (3) beliefs about whether tele-assessment is practical for families; and (4) worries about privacy. These attitudes and beliefs are shaped by various factors at different stages, indicating that we need to improve tele-assessment by better supporting everyone involved at different stages of the tele-assessment process. This research highlights important areas for improvement to provide fair access to tele-assessment for rural families (e.g. creating education materials, conducting barrier counseling).","PeriodicalId":8724,"journal":{"name":"Autism","volume":" ","pages":"13623613241307078"},"PeriodicalIF":5.2,"publicationDate":"2024-12-20","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142863113","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"心理学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

A qualitative exploration of the experience of autistic females in Hong Kong. 香港自闭女性经历的质性探讨。

IF 5.2 2区心理学

Autism Pub Date : 2024-12-20 DOI: 10.1177/13623613241295318

Gary Yu Hin Lam, Constance Kit Ching Chow, Sibyl Wai Chan

{"title":"A qualitative exploration of the experience of autistic females in Hong Kong.","authors":"Gary Yu Hin Lam, Constance Kit Ching Chow, Sibyl Wai Chan","doi":"10.1177/13623613241295318","DOIUrl":"https://doi.org/10.1177/13623613241295318","url":null,"abstract":"Lay abstract: There are more males than females with autism. One of the reasons can be that we do not understand autistic females well. Some research in Western cultures has begun to document the lived experience of autistic females, but no such studies are conducted with Chinese autistic females. This study explored the first-person experience of living with autism in Hong Kong autistic women. We conducted qualitative interviews with 13 women with a formal diagnosis of autism or self-diagnosed as autistic. We used semi-structured interviews to discuss how they came to recognize or identify with autism, their diagnostic experience, and their understanding of autistic females. We summarized several broad themes that depicted their experience. Participants recognized autism in themselves when seeing other autistic people. They indicated mental health challenges that led them to seek help from professionals, who might sometimes reject their concerns about autism. Participants found it meaningful to have an autism diagnosis or identity, but other people's judgment would affect their self-understanding. Participants also described themselves different from the stereotypes of autism, not the same as autistic males, and were perceived by others as not autistic enough. Our findings suggested autistic women in Hong Kong faced challenges in identity development and support services. There is a need to increase awareness and knowledge about autism in professionals and the public. Understanding how unique cultural factors that influence the identity of autistic women or individuals in Chinese cultures is important to promote their well-being.","PeriodicalId":8724,"journal":{"name":"Autism","volume":" ","pages":"13623613241295318"},"PeriodicalIF":5.2,"publicationDate":"2024-12-20","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142863178","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"心理学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Material hardship and sources of support for autistic adolescents and their families. 自闭症青少年及其家庭的物质困难和支助来源。

IF 5.2 2区心理学

Autism Pub Date : 2024-12-20 DOI: 10.1177/13623613241304503

Kristy A Anderson, Melissa Radey, Lauren Bishop, Nahime G Aguirre Mtanous, Jamie Koenig, Lindsay Shea

{"title":"Material hardship and sources of support for autistic adolescents and their families.","authors":"Kristy A Anderson, Melissa Radey, Lauren Bishop, Nahime G Aguirre Mtanous, Jamie Koenig, Lindsay Shea","doi":"10.1177/13623613241304503","DOIUrl":"10.1177/13623613241304503","url":null,"abstract":"Lay abstract: Our study looks at how families with autistic teenagers manage financially compared with families with teenagers who do not have autism. We know that money matters are a big part of life's overall quality and that autistic individuals and their families often face more financial challenges. These challenges can affect their health, social connections, and access to needed services. What our research adds is a closer look at these financial difficulties by considering not just how much money a family has but also what they own, their struggles to meet basic needs, and the help they get from both government programs and their own social circles. We found that families with autistic teenagers often deal with more financial problems, including not having enough food, even though they might be using available support programs. This is important because it shows us that the current ways of helping may not be enough. Our findings suggest we need to think more broadly about how to support these families. This could mean making policies that better address their unique needs or coming up with new ways to help them that go beyond just looking at income. Understanding these challenges better can help us make life better for autistic individuals and their families.","PeriodicalId":8724,"journal":{"name":"Autism","volume":" ","pages":"13623613241304503"},"PeriodicalIF":5.2,"publicationDate":"2024-12-20","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142863116","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"心理学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Mental health care use of autistic adults: Identifying longitudinal patterns using sequence analysis. 自闭症成人使用心理保健的情况：利用序列分析确定纵向模式。

IF 5.2 2区心理学

Autism Pub Date : 2024-12-18 DOI: 10.1177/13623613241304513

Iris Selten, Tim Ziermans, Iris Rapoport, Kim Jonkman, Hilde M Geurts

{"title":"Mental health care use of autistic adults: Identifying longitudinal patterns using sequence analysis.","authors":"Iris Selten, Tim Ziermans, Iris Rapoport, Kim Jonkman, Hilde M Geurts","doi":"10.1177/13623613241304513","DOIUrl":"https://doi.org/10.1177/13623613241304513","url":null,"abstract":"Lay abstract: Many autistic adults experience co-occurring mental health problems, which have a negative effect on their well-being and result in increased use of mental health services. To improve mental healthcare for autistic adults, a better understanding is needed of what type of support they use in real life. Clinical guidelines recommend three kinds of mental health interventions: therapy, counseling, and medication. We investigated the use of these types of interventions in a sample of 445 autistic adults (aged 18-87 years) across a 5-to-7-year period. We found evidence for four different patterns of intervention use, or so-called subgroups: (1) least intervention use, (2) mostly counseling, (3) mostly medication, and (4) mixed intervention use. The group with mixed intervention use consisted of relatively more females and individuals with co-occurring psychiatric conditions, especially compared to the subgroup with the least intervention use. It appeared that many, but not all, autistic individuals used mental health services for an extended period. However, there was considerable variability in the type, combination, and duration of intervention use. This means that determining the optimal support for autistic adults is often a complex task, which requires collaboration of clinical experts and autistic individuals themselves, to make informed decisions.","PeriodicalId":8724,"journal":{"name":"Autism","volume":" ","pages":"13623613241304513"},"PeriodicalIF":5.2,"publicationDate":"2024-12-18","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142845664","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"心理学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

A systematic review of ecological momentary assessment in autism research. 孤独症研究中生态瞬时评价的系统综述。

IF 5.2 2区心理学

Autism Pub Date : 2024-12-18 DOI: 10.1177/13623613241305722

Yixin Chen, Zhenyang Xi, Talya Greene, Will Mandy

{"title":"A systematic review of ecological momentary assessment in autism research.","authors":"Yixin Chen, Zhenyang Xi, Talya Greene, Will Mandy","doi":"10.1177/13623613241305722","DOIUrl":"https://doi.org/10.1177/13623613241305722","url":null,"abstract":"Lay abstract: Ecological momentary assessments assess people's in-the-moment thoughts and behaviours in their daily lives in natural environments. The number of ecological momentary assessment studies with autistic people has increased over the last decade. For the first time, this review (1) summarises how well ecological momentary assessment works for allowing autistic people to describe and express their thoughts, emotions and experiences, and (2) provides suggestions for the design of ecological momentary assessment to make this research method more accessible to future autistic participants. In total, we synthesised participation experiences from 930 autistic people. Overall, ecological momentary assessment is generally acceptable for autistic adults aged from 18 to 60 and with average or above-average intelligence and language. We also identified several issues in the ecological momentary assessment procedure and suggested researchers consider these when designing future ecological momentary assessment studies with autistic people. The findings of this review provide evidence that ecological momentary assessment can be used to investigate many different questions with autistic people and suggest a wider application of ecological momentary assessment in future studies with autistic people.","PeriodicalId":8724,"journal":{"name":"Autism","volume":" ","pages":"13623613241305722"},"PeriodicalIF":5.2,"publicationDate":"2024-12-18","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142852102","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"心理学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0