“你觉得自己是更大事物的一部分”:利益相关者对长期社区-学术参与式研究伙伴关系的体验。

IF 5.2 2区 心理学 Q1 PSYCHOLOGY, DEVELOPMENTAL
Autism Pub Date : 2025-06-19 DOI:10.1177/13623613251348485
Elizabeth Pellicano, Catherine A Bent, Teresa Iacono, Kristy Capes, Shannon Upson, Kristelle Hudry
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引用次数: 0

摘要

许多社区学术伙伴关系的建立是为了进行有意义的研究和实践。然而,关于它们的可持续性的文章很少,而现有的情况表明,有效的伙伴关系很难维持。在这项研究中,我们试图深入了解什么可能支持成功、持久的社区-学术合作伙伴关系,重点关注早期儿童自闭症服务提供。我们对30名工作人员进行了半结构化访谈和焦点小组讨论,这些工作人员与一所大学的幼儿教育、联合健康、管理和研究服务有关,他们参与了长达十年的社区学术合作关系。我们采用归纳的方法,使用反身性主题分析来分析数据。我们确定了三个关键主题。工作人员对包容性实践和基于证据的实践有着强烈的价值观和承诺,这些都植根于伙伴关系的精神(主题1)。他们报告了合作带来的实实在在的互利,帮助自闭症儿童和家庭提高了学习和信心(主题2)。受访者还强调了牢固的公平关系、开放的沟通和公平程序的重要性,即使这些并不总是直截了当的实现(主题3)。这些见解说明了持续监测社区-学术伙伴关系的价值,这些伙伴关系旨在为自闭症研究规划、政策和实践提供信息,同时也建立持续的社区能力。当学术研究人员与社区成员合作时,所做的研究通常对人们的日常生活更有意义。但是这些“社区-学术伙伴关系”可能很难建立,更难以维持下去。在这个项目中,我们想知道哪些因素有助于支持长期社区-学术合作伙伴关系的成功,特别是对于早期儿童自闭症服务。我们深入采访了30名与大学早期儿童服务相关的工作人员,包括早期儿童教育工作者、联合卫生专业人员(心理学家、语言病理学家、职业治疗师)、服务管理人员和研究人员。所有人都参与了一个已经持续了十年的社区研究伙伴关系。两位独立于该服务的研究人员主持了访谈和分析,寻找参与者的反应模式。我们确定了三个主要理念或“主题”。工作人员谈到了他们对包容性实践和基于证据的实践的坚定价值观和承诺,这些在伙伴关系内部得到了分享(主题1)。他们觉得自己从这次合作中学到了很多,并对支持自闭症儿童和家庭有了信心(主题二)。不过,最重要的是,他们谈到了合作伙伴关系对成功的真正影响。他们强调信任、良好沟通和公平进程的重要性,但也指出这些事情并不总是可以实现的(主题3)。这些发现有助于我们了解研究人员和社区成员如何有效地合作,为自闭症研究和服务以及更广泛的社区带来持久的利益。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
'You feel part of something bigger': Stakeholders' experiences of a long-term community-academic participatory research partnership.

Many community-academic partnerships are established to conduct meaningful research and practice. Yet, little is written about their sustainability and what does exist suggests that effective partnerships are hard to sustain. In this study, we sought insights into what might support successful, enduring community-academic partnerships focused on early childhood autism service provision. We conducted semi-structured interviews and focus groups with 30 staff connected to a university-based early childhood service in education, allied health, management, and research roles, who had been involved in a decade-long community-academic partnership. We analysed the data using reflexive thematic analysis adopting an inductive approach. We identified three key themes. Staff shared strong values and commitments towards inclusive practice and evidence-based practice, which were embedded in the ethos of the partnership (Theme 1). They reported tangible, mutual benefits from working in partnership, with gains in learning and confidence supporting autistic children and families (Theme 2). Interviewees also highlighted the importance of strong equitable relationships, open communication, and fair processes, even if these were not always straightforward to achieve (Theme 3). These insights illustrate the value of ongoing monitoring of community-academic partnerships seeking to inform autism research programmes, policies and practices, while also building sustained community capacity.Lay AbstractWhen academic researchers work in partnership with community members, the research that gets done is usually more meaningful to people's everyday lives. But these 'community-academic partnerships' can be difficult to set up, and even more difficult to keep going. In this project, we wanted to know what factors help to support the success of long-term community-academic partnerships, specifically for early childhood autism services. We spoke in depth to 30 staff connected to a university-based early childhood service, including early childhood educators, allied health professionals (psychologists, speech pathologists, occupational therapists), people managing the service and researchers. All had been involved in a community-research partnership that had been going on for a decade. Two researchers independent of the service led the interviews and analysis, looking for patterns in participants' responses. We identified three main ideas or 'themes'. Staff spoke of their strong values and commitments towards inclusive practice and evidence-based practice, which were shared among those within the partnership (Theme 1). They felt they had learned a lot from being involved in the partnership and had gained confidence supporting autistic children and families (Theme 2). Above all, though, they spoke of how the relationships within the partnership really mattered to making it a success. They emphasised the importance of trust, good communication and fair processes - but also noted that these things were not always achievable (Theme 3). These findings help us understand how researchers and community members can work effectively together to bring lasting benefits to autism research and services, and to the community more broadly.

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来源期刊
Autism
Autism PSYCHOLOGY, DEVELOPMENTAL-
CiteScore
9.80
自引率
11.50%
发文量
160
期刊介绍: Autism is a major, peer-reviewed, international journal, published 8 times a year, publishing research of direct and practical relevance to help improve the quality of life for individuals with autism or autism-related disorders. It is interdisciplinary in nature, focusing on research in many areas, including: intervention; diagnosis; training; education; translational issues related to neuroscience, medical and genetic issues of practical import; psychological processes; evaluation of particular therapies; quality of life; family needs; and epidemiological research. Autism provides a major international forum for peer-reviewed research of direct and practical relevance to improving the quality of life for individuals with autism or autism-related disorders. The journal''s success and popularity reflect the recent worldwide growth in the research and understanding of autistic spectrum disorders, and the consequent impact on the provision of treatment and care. Autism is interdisciplinary in nature, focusing on evaluative research in all areas, including: intervention, diagnosis, training, education, neuroscience, psychological processes, evaluation of particular therapies, quality of life issues, family issues and family services, medical and genetic issues, epidemiological research.
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