Material hardship and sources of support for autistic adolescents and their families.

IF 5.2 2区 心理学 Q1 PSYCHOLOGY, DEVELOPMENTAL
Autism Pub Date : 2024-12-20 DOI:10.1177/13623613241304503
Kristy A Anderson, Melissa Radey, Lauren Bishop, Nahime G Aguirre Mtanous, Jamie Koenig, Lindsay Shea
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Abstract

Lay abstract: Our study looks at how families with autistic teenagers manage financially compared with families with teenagers who do not have autism. We know that money matters are a big part of life's overall quality and that autistic individuals and their families often face more financial challenges. These challenges can affect their health, social connections, and access to needed services. What our research adds is a closer look at these financial difficulties by considering not just how much money a family has but also what they own, their struggles to meet basic needs, and the help they get from both government programs and their own social circles. We found that families with autistic teenagers often deal with more financial problems, including not having enough food, even though they might be using available support programs. This is important because it shows us that the current ways of helping may not be enough. Our findings suggest we need to think more broadly about how to support these families. This could mean making policies that better address their unique needs or coming up with new ways to help them that go beyond just looking at income. Understanding these challenges better can help us make life better for autistic individuals and their families.

自闭症青少年及其家庭的物质困难和支助来源。
摘要:我们的研究着眼于有自闭症青少年的家庭与没有自闭症青少年的家庭如何管理经济。我们知道,金钱是生活质量的重要组成部分,自闭症患者和他们的家庭经常面临更多的经济挑战。这些挑战会影响他们的健康、社会关系和获得所需服务的机会。我们的研究不仅考虑了一个家庭有多少钱,还考虑了他们拥有的东西,他们为满足基本需求所做的努力,以及他们从政府项目和自己的社交圈得到的帮助,从而更仔细地审视了这些经济困难。我们发现,有自闭症青少年的家庭往往面临更多的经济问题,包括没有足够的食物,尽管他们可能正在使用现有的支持项目。这很重要,因为它告诉我们,目前的帮助方式可能还不够。我们的研究结果表明,我们需要更广泛地思考如何支持这些家庭。这可能意味着制定更好地满足他们独特需求的政策,或者提出新的方法来帮助他们,而不仅仅是看收入。更好地理解这些挑战可以帮助我们改善自闭症患者及其家庭的生活。
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来源期刊
Autism
Autism PSYCHOLOGY, DEVELOPMENTAL-
CiteScore
9.80
自引率
11.50%
发文量
160
期刊介绍: Autism is a major, peer-reviewed, international journal, published 8 times a year, publishing research of direct and practical relevance to help improve the quality of life for individuals with autism or autism-related disorders. It is interdisciplinary in nature, focusing on research in many areas, including: intervention; diagnosis; training; education; translational issues related to neuroscience, medical and genetic issues of practical import; psychological processes; evaluation of particular therapies; quality of life; family needs; and epidemiological research. Autism provides a major international forum for peer-reviewed research of direct and practical relevance to improving the quality of life for individuals with autism or autism-related disorders. The journal''s success and popularity reflect the recent worldwide growth in the research and understanding of autistic spectrum disorders, and the consequent impact on the provision of treatment and care. Autism is interdisciplinary in nature, focusing on evaluative research in all areas, including: intervention, diagnosis, training, education, neuroscience, psychological processes, evaluation of particular therapies, quality of life issues, family issues and family services, medical and genetic issues, epidemiological research.
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