PEC innovationPub Date : 2025-06-01Epub Date: 2025-01-25DOI: 10.1016/j.pecinn.2025.100377
Elise C. Tarbi , Natalie Ambrose , Eric C. Anderson , Rebecca N. Hutchinson , Paul K.J. Han , Maija Reblin , Robert Gramling
{"title":"“It's hard to talk to a computer, I get it”: An exploratory analysis of clinician connection-building communication practices in rural telepalliative care encounters","authors":"Elise C. Tarbi , Natalie Ambrose , Eric C. Anderson , Rebecca N. Hutchinson , Paul K.J. Han , Maija Reblin , Robert Gramling","doi":"10.1016/j.pecinn.2025.100377","DOIUrl":"10.1016/j.pecinn.2025.100377","url":null,"abstract":"<div><h3>Context/Objectives</h3><div>Establishing human connection is critical during serious illness conversations, however the sensory and relational environment of telehealth may require innovative communication practices for clinicians, patients, and families to do so effectively. We sought to explore if and how recommended in-person best practices for establishing human connection are adapted to the telehealth palliative care (telePC) setting, to enable discovery and description of practice innovations in this new care environment.</div></div><div><h3>Methods</h3><div>We analyzed data from the Northern New England Palliative Care TeleConsult Research Study – a formative mixed-methods pilot study at two academic medical centers in rural US states with patients with serious illness (2019–2020). We used a qualitative descriptive approach paired with directed content analysis to analyze video-recorded telePC consultations.</div></div><div><h3>Results</h3><div>Nine video-recorded telePC consultations were analyzed including 9 patients and 6 palliative care clinicians. Patient-participants had a mean age of 68 years, 56 % were women, and 38 % did not complete high school. Mean consultation duration was 52 min (standard deviation 10, range 40–70 min). Our qualitative analysis of visits resulted in three key themes describing clinician communication: 1) Practices for fostering human connection; 2) Practices for overcoming technical problems/difficulties; and 3) Practices for engaging in multi-participant tele-conversations.</div></div><div><h3>Conclusion</h3><div>Our study findings help to provide proof-of-concept evidence that clinicians can use recommended in-person connection-building communication practices in telePC. As palliative care clinicians naturally adapt to telehealth environments, more empirical research is needed to understand which innovative approaches most effectively foster human connection.</div></div><div><h3>Innovation</h3><div>TelePC represents an expanding, yet understudied, mode of palliative care delivery. This study is among the first to describe how the telePC context is catalyzing naturally-occurring communication innovations.</div></div>","PeriodicalId":74407,"journal":{"name":"PEC innovation","volume":"6 ","pages":"Article 100377"},"PeriodicalIF":0.0,"publicationDate":"2025-06-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143168204","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
PEC innovationPub Date : 2025-06-01Epub Date: 2025-03-17DOI: 10.1016/j.pecinn.2025.100388
Meghan Lindsay , Iyanuoluwa P. Odole , Olivia Belliveau , Fuad Abujarad , Cary P. Gross , Ilana B. Richman
{"title":"Developing a digital video to support lung cancer screening in diverse populations","authors":"Meghan Lindsay , Iyanuoluwa P. Odole , Olivia Belliveau , Fuad Abujarad , Cary P. Gross , Ilana B. Richman","doi":"10.1016/j.pecinn.2025.100388","DOIUrl":"10.1016/j.pecinn.2025.100388","url":null,"abstract":"<div><h3>Objective</h3><div>Lung cancer screening (LCS) with low dose computed tomography can reduce lung cancer mortality. However, awareness and knowledge of LCS are low. We developed and tested a video to support informed decision-making about LCS for use in diverse populations, including adults with low educational attainment.</div></div><div><h3>Methods</h3><div>We conducted a prospective pre-post pilot study of adults eligible for LCS at three primary care clinics in the USA from 08/2022–07/2023. We developed a brief digital video, incorporating iterative modifications using participant feedback. We assessed knowledge of LCS before and after viewing the video and solicited open-ended feedback on video format and content.</div></div><div><h3>Results</h3><div>The study included 29 adults (median [range] age, 62 [50–77] years; 52 % male). In interviews, participants commented on informational content, effect of the video on screening behaviors and intent, video style and appearance, and video features. After viewing the video, participant knowledge scores increased from baseline of 43 % correct to 59 %, <em>p</em> < 0.001. Knowledge scores increased across all levels of educational attainment.</div></div><div><h3>Conclusions</h3><div>A brief digital video about LCS, developed with feedback from end users, was motivating, clear, and effective in increasing knowledge across levels of educational attainment.</div></div><div><h3>Innovation</h3><div>Using a patient-engaged, theoretically grounded development process, we developed a digital tool specifically to support lung cancer screening in diverse populations, including those with varied educational attainment.</div></div>","PeriodicalId":74407,"journal":{"name":"PEC innovation","volume":"6 ","pages":"Article 100388"},"PeriodicalIF":0.0,"publicationDate":"2025-06-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143684433","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
PEC innovationPub Date : 2025-06-01Epub Date: 2025-05-18DOI: 10.1016/j.pecinn.2025.100404
Vera Voorwinde , Ingrid H.M. Steenhuis , Ignace M.C. Janssen , Valerie M. Monpellier , Maartje M. van Stralen
{"title":"Getting back on track: Development of a blended-care intervention for weight recurrence after metabolic bariatric surgery using intervention mapping","authors":"Vera Voorwinde , Ingrid H.M. Steenhuis , Ignace M.C. Janssen , Valerie M. Monpellier , Maartje M. van Stralen","doi":"10.1016/j.pecinn.2025.100404","DOIUrl":"10.1016/j.pecinn.2025.100404","url":null,"abstract":"<div><h3>Objective</h3><div>To systematically re-develop a blended-care intervention addressing weight recurrence after metabolic bariatric surgery (MBS). Weight recurrence poses a significant longterm challenge for around 20–30 % of MBS patients. The intervention aims to improve weight outcomes and enhance patient well-being. This study describes the novel application of the Intervention Mapping (IM) protocol, integrating scientific evidence and stakeholder input.</div></div><div><h3>Methods</h3><div>The six-step IM protocol guided the development process, ensuring the active involvement of patients and healthcare professionals. A comprehensive needs assessment using quantitative, qualitative, and literature-based approaches informed the creation of a logic model of the problem (Step 1) and a logic model of change (Step 2). Program outcomes and objectives were formulated through collaborative brainstorming and design-thinking sessions, leading to intervention design (Step 3). The intervention was co-produced with patients, implementers, and an app developer (Step 4). Detailed implementation (Step 5) and evaluation (Step 6) plans were subsequently developed.</div></div><div><h3>Results</h3><div>The IM process yielded a blended-care intervention grounded in theoretical frameworks and evidence-based methods. The intervention actively involved the target population and implementers, addressing key determinants of weight recurrence.</div></div><div><h3>Conclusion</h3><div>The IM protocol demonstrated utility in designing a tailored, theory-based intervention post-MBS. The process emphasized the value of integrating stakeholder perspectives and highlighted the feasibility of co-creating an evidence-informed intervention.</div></div><div><h3>Innovation</h3><div>This intervention incorporates newly developed elements in a novel blended-care structure. Future evaluation is necessary to determine its effectiveness in achieving the desired outcomes.</div></div>","PeriodicalId":74407,"journal":{"name":"PEC innovation","volume":"6 ","pages":"Article 100404"},"PeriodicalIF":0.0,"publicationDate":"2025-06-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144106301","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
PEC innovationPub Date : 2025-06-01Epub Date: 2025-05-06DOI: 10.1016/j.pecinn.2025.100400
Julia Jaschke, Sara Söling, Juliane Köberlein-Neu
{"title":"Let's talk about death, dying, and what matters most to you in life: Pretest and piloting of a translated and adapted conversation game","authors":"Julia Jaschke, Sara Söling, Juliane Köberlein-Neu","doi":"10.1016/j.pecinn.2025.100400","DOIUrl":"10.1016/j.pecinn.2025.100400","url":null,"abstract":"<div><h3>Objective</h3><div>This study aimed to pretest and pilot the German version of the <em>Hello</em> conversation game (German: <em>Hey du</em>) to assess its comprehensibility and acceptability. Like the original, <em>Hey du</em> is designed as a low-threshold method to empower people of almost all ages and health conditions to engage in advance care planning (ACP), particularly targeting young/healthy people for whom there are currently few or no ACP programmes.</div></div><div><h3>Methods</h3><div>The conversation game was systematically translated into German using the TRAPD process and cognitively pretested in 12 interviews. Subsequently, two observational studies were conducted: <em>Hey du</em> was used in 1) a nursing school (<em>n</em> = 16) and 2) with groups of family and friends (<em>n</em> = 50). After completing the game, participants were surveyed regarding the game's acceptability and comprehensibility.</div></div><div><h3>Results</h3><div>The results of the cognitive pretest and the observational studies show that the conversation game was acceptable and comprehensible in both settings. Most of the participants (>92 %) reported that <em>Hey du</em> helped them come to terms with their own wishes and preferences for medical and nursing care and that they felt comfortable playing the game.</div></div><div><h3>Conclusion</h3><div><em>Hey du</em> has the potential to motivate and empower people to deal with ACP.</div></div><div><h3>Innovation</h3><div><em>Hey du</em> is the first scientifically supported gamification approach in Germany to introduce ACP to people for whom no systematic ACP programs exist. The game provides a safe forum for people of almost all ages and health conditions to discuss their values regarding life, death, dying and what matters most.</div></div>","PeriodicalId":74407,"journal":{"name":"PEC innovation","volume":"6 ","pages":"Article 100400"},"PeriodicalIF":0.0,"publicationDate":"2025-06-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143928095","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
PEC innovationPub Date : 2025-06-01Epub Date: 2024-12-06DOI: 10.1016/j.pecinn.2024.100362
Jana Safarikova , Eliane Young , Kiki Mastroyannopoulou , Paul Fisher
{"title":"Taking a step back: Parents' experiences of the decision-making process for elective orthognathic surgery in cleft lip and palate (IPA)","authors":"Jana Safarikova , Eliane Young , Kiki Mastroyannopoulou , Paul Fisher","doi":"10.1016/j.pecinn.2024.100362","DOIUrl":"10.1016/j.pecinn.2024.100362","url":null,"abstract":"<div><h3>Objective</h3><div>This study explored parents' experiences of the transition of responsibility to their child for healthcare decisions relating to their cleft lip and/or palate (CL/P).</div></div><div><h3>Methods</h3><div>Online semi-structured interviews were conducted with 11 participants (six females and five males, aged 41 to 60 years). They were parents of young people who had decided whether to undergo orthognathic surgery. The data were transcribed and analysed using interpretative phenomenological analysis (IPA).</div></div><div><h3>Results</h3><div>A responsibility shift from participants to their children was identified in 2 main themes ‘A natural process <em>(or not)</em>’ and ‘It has to be their decision’.</div></div><div><h3>Conclusion</h3><div>The process of shifting responsibility for decision-making to the child comprised a spectrum of experiences from a relief to a shock and upset. Participants went through sometimes difficult negotiating of their ongoing involvement while supporting their child.</div></div><div><h3>Innovation</h3><div>The importance of addressing psychological aspects of the family system as well as the young person is highlighted here. Addressing the familial complexities of the transition may contribute to the success of the whole process. Clinicians need careful consideration of the potential emotional impact on parents which is not always shared.</div></div>","PeriodicalId":74407,"journal":{"name":"PEC innovation","volume":"6 ","pages":"Article 100362"},"PeriodicalIF":0.0,"publicationDate":"2025-06-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11699215/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142933621","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"Psychometric characteristics of Roter interaction analysis system (RIAS) in the context of health education in a Moroccan school","authors":"Khadija Daoudi, Khaoula Jounaidi, Abdellah Gantare","doi":"10.1016/j.pecinn.2025.100403","DOIUrl":"10.1016/j.pecinn.2025.100403","url":null,"abstract":"<div><h3>Objective</h3><div>The Roter Interaction Analysis System (RIAS) is widely used to assess communication in clinical settings but has not yet been applied in educational contexts. This study explores the psychometric properties of RIAS in Moroccan school health education, assessing its feasibility, reliability, and validity while examining its potential to improve communication strategies between health educators and students.</div></div><div><h3>Methods</h3><div>A cross-sectional study was conducted with 36 Moroccan primary school students. Health education session were recorded and analyzed using RIAS to evaluate communication patterns. Two trained raters independently coded the interactions into eight communication behavior categories. Psychometric analyses, including assessments of feasibility (coding versus session duration), inter-rater reliability (using correlation coefficients), and content validity (based on category usage), were conducted to evaluate RIAS's reliability and validity.</div></div><div><h3>Results</h3><div>RIAS demonstrated feasibility with extended coding times reflecting its comprehensive nature. High inter-rater reliability (ρ = 0.96–1.00, <em>p</em> < 0.01) validated its consistent application. Content validity confirmed adaptability, though challenges with social-emotional utterances and low-frequency categories suggest refinement to align with health education's unique dynamics.</div><div>Conclusion: This pilot study demonstrates the feasibility, reliability, and validity of RIAS in Moroccan school health education, highlighting its potential to enhance educator-student communication and improve health education outcomes in diverse cultural settings.</div></div><div><h3>Innovation</h3><div>This study pioneers the application of RIAS in Moroccan school health education, extending its use beyond clinical contexts. It highlights RIAS's adaptability to diverse, non-Western settings, bridging a gap in communication analysis. Findings provide a foundation for refining RIAS to align with health education and global health promotion strategies.</div></div>","PeriodicalId":74407,"journal":{"name":"PEC innovation","volume":"6 ","pages":"Article 100403"},"PeriodicalIF":0.0,"publicationDate":"2025-06-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144138427","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
PEC innovationPub Date : 2025-06-01Epub Date: 2024-12-20DOI: 10.1016/j.pecinn.2024.100365
Jacqueline M. Wilson , Oyinda Obigbesan , Elena Lopatina , Karen M. Benzies
{"title":"Direct, non-medical out-of-pocket expenditures for mothers of moderate or late preterm infants in a level II NICU: Comparison of Alberta Family Integrated Care versus standard care","authors":"Jacqueline M. Wilson , Oyinda Obigbesan , Elena Lopatina , Karen M. Benzies","doi":"10.1016/j.pecinn.2024.100365","DOIUrl":"10.1016/j.pecinn.2024.100365","url":null,"abstract":"<div><h3>Objective</h3><div>To compare direct, non-medical out-of-pocket expenditures (OOPE) between mothers receiving Alberta Family Integrated Care (FICare™) versus standard care (SC) during their infant's neonatal intensive care unit (NICU) admission and explore factors influencing spending extremes.</div></div><div><h3>Methods</h3><div>In this exploratory, concurrent mixed-methods sub-study, we compared mother-reported OOPE from Alberta FICare™ and SC parent journals. We thematically analyzed hand-written notes from 30 journals with the highest and lowest 5 % of OOPE.</div></div><div><h3>Results</h3><div>There was no difference in total direct, non-medical OOPE between Alberta FICare™ (<em>n</em> = 194) and SC (<em>n</em> = 132) groups (<em>U</em> = 12,679.50, <em>p</em> = 0.882). Compared to mothers receiving SC, mothers receiving Alberta FICare™ reported spending less for parking (<em>U</em> = 970.00, <em>p</em> < 0.001) and more for food (<em>U</em> = 14,857.50, <em>p =</em> 0.014) and lodging (<em>U</em> = 15,160.00, <em>p</em> < 0.001). Spending extremes related to travel and proximity of the NICU to their home.</div></div><div><h3>Conclusion</h3><div>Total family financial burden was similar between groups; there were differences in spending categories. Supports to offset OOPE, particularly for families living distant to the NICU or facing transportation challenges, would reduce financial burden and could enhance family-integrated care.</div></div><div><h3>Innovation</h3><div>This novel analysis describes mother-reported OOPEs and strategies to mitigate financial barriers to family integrated care.</div></div>","PeriodicalId":74407,"journal":{"name":"PEC innovation","volume":"6 ","pages":"Article 100365"},"PeriodicalIF":0.0,"publicationDate":"2025-06-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11732068/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142985709","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
PEC innovationPub Date : 2025-06-01Epub Date: 2024-12-28DOI: 10.1016/j.pecinn.2024.100371
Michelle A. Stage , Mackenzie M. Creamer , Mollie A. Ruben
{"title":"“Having providers who are trained and have empathy is life-saving”: Improving primary care communication through thematic analysis with ChatGPT and human expertise","authors":"Michelle A. Stage , Mackenzie M. Creamer , Mollie A. Ruben","doi":"10.1016/j.pecinn.2024.100371","DOIUrl":"10.1016/j.pecinn.2024.100371","url":null,"abstract":"<div><div>In the rapidly evolving field of healthcare research, Artificial Intelligence (AI) and conversational models like ChatGPT (Conversational Generative Pre-trained Transformer) offer promising tools for data analysis. The aim of this study was to: 1) apply ChatGPT methodology alongside human coding to analyze qualitative health services feedback, and 2) examine healthcare experiences among lesbian, gay, bisexual, transgender, and queer (LGBTQ+) patients (<em>N</em> = 41) to inform future intervention. The hybrid approach facilitated the identification of themes related to affirming care practices, provider education, communicative challenges and successes, and environmental cues. While ChatGPT accelerated the coding process, human oversight remained crucial for ensuring data integrity and context accuracy. This hybrid method promises significant improvements in analyzing patient feedback, providing actionable insights that could enhance patient-provider interactions and care for diverse populations.</div><div>Innovation: This study is the first to combine ChatGPT with human coding for rapid thematic analysis of LGBTQ+ patient primary care experiences.</div></div>","PeriodicalId":74407,"journal":{"name":"PEC innovation","volume":"6 ","pages":"Article 100371"},"PeriodicalIF":0.0,"publicationDate":"2025-06-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11758403/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143048962","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"Leveraging artificial intelligence chatbots for anemia prevention: A comparative study of ChatGPT-3.5, copilot, and Gemini outputs against Google Search results","authors":"Shinya Ito , Emi Furukawa , Tsuyoshi Okuhara , Hiroko Okada , Takahiro Kiuchi","doi":"10.1016/j.pecinn.2025.100390","DOIUrl":"10.1016/j.pecinn.2025.100390","url":null,"abstract":"<div><h3>Aim</h3><div>This study evaluated the understandability, actionability, and readability of text on anemia generated by artificial intelligence (AI) chatbots.</div></div><div><h3>Methods</h3><div>This cross-sectional study compared texts generated by ChatGPT-3.5, Microsoft Copilot, and Google Gemini at three levels: “normal,” “6th grade,” and “PEMAT-P version.” Additionally, texts retrieved from the top eight Google Search results for relevant keywords were included for comparison. All texts were written in Japanese. The Japanese version of the PEMAT-P was used to assess understandability and actionability, while jReadability was used for readability. A systematic comparison was conducted to identify the strengths and weaknesses of each source.</div></div><div><h3>Results</h3><div>Texts generated by Gemini at the 6th-grade level (<em>n</em> = 26, 86.7 %) and PEMAT-P version (<em>n</em> = 27, 90.0 %), as well as ChatGPT-3.5 at the normal level (<em>n</em> = 21, 80.8 %), achieved significantly higher scores (≥70 %) for understandability and actionability compared to Google Search results (<em>n</em> = 17, 25.4 %, <em>p</em> < 0.001). For readability, Copilot and Gemini texts demonstrated significantly higher percentages of “very readable” to “somewhat difficult” levels than texts retrieved from Google Search (<em>p</em> = 0.000–0.007).</div></div><div><h3>Innovation</h3><div>This study is the first to objectively and quantitatively evaluate the understandability and actionability of educational materials on anemia prevention. By utilizing PEMAT-P and jReadability, the study demonstrated the superiority of Gemini in terms of understandability and readability through measurable data. This innovative approach highlights the potential of AI chatbots as a novel method for providing public health information and addressing health disparities.</div></div><div><h3>Conclusion</h3><div>AI-generated texts on anemia were found to be more readable and easier to understand than traditional web-based texts, with Gemini demonstrating the highest level of understandability. Moving forward, improvements in prompts will be necessary to enhance the integration of visual elements that encourage actionable responses in AI chatbots.</div></div>","PeriodicalId":74407,"journal":{"name":"PEC innovation","volume":"6 ","pages":"Article 100390"},"PeriodicalIF":0.0,"publicationDate":"2025-06-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143835081","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
PEC innovationPub Date : 2025-06-01Epub Date: 2025-05-24DOI: 10.1016/j.pecinn.2025.100406
Karl Charlton , Tripta Rathour , Emma Burrow
{"title":"Perceptions of frailty and falls in older adults using an English regional ambulance service: A descriptive phenomenological study","authors":"Karl Charlton , Tripta Rathour , Emma Burrow","doi":"10.1016/j.pecinn.2025.100406","DOIUrl":"10.1016/j.pecinn.2025.100406","url":null,"abstract":"<div><h3>Objective</h3><div>Frailty is of increasing importance for healthcare systems as well as the personalised care agenda. Despite the evolving body of research exploring frailty and falls in the ambulance setting, the voices of frail older adults who use ambulance services, are seldom heard. Through first-hand accounts, this study set out to describe the experiences and perceptions of frailty for a cohort of older adults.</div></div><div><h3>Methods</h3><div>A descriptive phenomenological study involving eight participants with frailty who used a regional English National Health Service (NHS) ambulance service following a fall, conducted between July 2022–February 2023.</div></div><div><h3>Results</h3><div>Accounts from older adults highlight different perceptions of frailty and attitudes towards ageing. Frailty and falls were experienced through varying perceptions of identity and self<em>,</em> underpinned by acceptance, or otherwise, of an altered sense of embodiment and a life with limits<em>.</em></div></div><div><h3>Conclusion</h3><div>Older adults generally hold negative perceptions of frailty, falls and ageing, but also challenged the negative terms frequently used to describe frailty, suggesting some frail older adults remain positive and still value life. Paramedics are likely to require further training and support to manage patients with frailty effectively and improve patient experience.</div></div><div><h3>Innovation</h3><div>This study uniquely explores frailty and falls through the stories of older adults using an NHS ambulance service. It highlights that older adults in this setting often differ from the older population in general, have a higher frailty prevalence than patients in other settings and appear to view the future with greater pessimism.</div></div>","PeriodicalId":74407,"journal":{"name":"PEC innovation","volume":"6 ","pages":"Article 100406"},"PeriodicalIF":0.0,"publicationDate":"2025-06-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144154369","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}