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Measuring professionals' attitudes toward persistent somatic symptoms: Development, validation, and reliability of the professionals' Attitude to Persistent Somatic Symptoms Questionnaire (PAPSS) 测量专业人员对持续性躯体症状的态度:专业人员对持续性躯体症状的态度问卷 (PAPSS) 的开发、验证和可靠性
PEC innovation Pub Date : 2024-11-22 DOI: 10.1016/j.pecinn.2024.100359
Denise J.C. Hanssen , Charlotte A. Spiertz , Lineke M. Tak , Judith G.M. Rosmalen
{"title":"Measuring professionals' attitudes toward persistent somatic symptoms: Development, validation, and reliability of the professionals' Attitude to Persistent Somatic Symptoms Questionnaire (PAPSS)","authors":"Denise J.C. Hanssen ,&nbsp;Charlotte A. Spiertz ,&nbsp;Lineke M. Tak ,&nbsp;Judith G.M. Rosmalen","doi":"10.1016/j.pecinn.2024.100359","DOIUrl":"10.1016/j.pecinn.2024.100359","url":null,"abstract":"<div><h3>Objective</h3><div>The healthcare professional's attitude toward persistent somatic symptoms (PSS) seems to play an important role in access to and quality of care for patients with PSS. To encourage research on PSS attitude, we developed and validated the Professionals' Attitude to Persistent Somatic Symptoms Questionnaire (PAPSS).</div></div><div><h3>Methods</h3><div>A list of items was developed through theory and a focus group with PSS experts, with response categories on a 5-point Likert scale ranging from “strongly disagree” to “strongly agree”. These items were then validated through a sample (<em>N</em> = 411) consisting of medical specialists, general practitioners, and psychologists. Subscales of the PAPSS were constructed using repeated factor analyses and reliability analyses.</div></div><div><h3>Results</h3><div>Exploratory factor analyses resulted in a 15-item questionnaire with four subscales: “Perceived burden” and “Affinity” showed good reliability rates; “Perceived professional competence” and “Openness to patient-centered care” had questionable reliability rates. In general, psychologists had the most pronounced scores on subscales compared to medical specialists and general practitioners.</div></div><div><h3>Innovation</h3><div>The PAPSS is the first questionnaire for exploring the role of the professional's attitude toward PSS; it offers opportunities for further research on the influence of attitude on treatment of PSS.</div></div><div><h3>Conclusions</h3><div>The PAPPS is a relatively short questionnaire that can be used in both quantitative research and clinical care. However, it requires further research on psychometric qualities, including the validation of the translated versions of this questionnaire.</div></div>","PeriodicalId":74407,"journal":{"name":"PEC innovation","volume":"5 ","pages":"Article 100359"},"PeriodicalIF":0.0,"publicationDate":"2024-11-22","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142723263","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Single-encounter elicitation framework for diagnostic excellence patient-reported measures: SEE-Dx-PRM 卓越诊断患者报告测量的单次触发框架:SEE-Dx-PRM
PEC innovation Pub Date : 2024-11-17 DOI: 10.1016/j.pecinn.2024.100357
Vadim Dukhanin , Kathryn M. McDonald , Susan K. Peterson , Kelly T. Gleason
{"title":"Single-encounter elicitation framework for diagnostic excellence patient-reported measures: SEE-Dx-PRM","authors":"Vadim Dukhanin ,&nbsp;Kathryn M. McDonald ,&nbsp;Susan K. Peterson ,&nbsp;Kelly T. Gleason","doi":"10.1016/j.pecinn.2024.100357","DOIUrl":"10.1016/j.pecinn.2024.100357","url":null,"abstract":"<div><h3>Objective</h3><div>To create a conceptual framework for assessing patient-reported diagnostic excellence of a single diagnostic encounter.</div></div><div><h3>Methods</h3><div>We held multiple expert panel meetings to prioritize a priori identified diagnostically relevant patient-reported experience and outcome domains. We combined and synthesized expert feedback with our experience in measure development and the reflections of a patient focus group. We then developed the framework, SEE-Dx-PRM (Single-Encounter Elicitation Framework for Diagnostic Excellence Patient-Reported Measures).</div></div><div><h3>Results</h3><div>We defined the SEE-Dx-PRM's scope as intended for a single diagnostic encounter in emergency or urgent care, prospective and agnostic of the health condition, and with a timeframe of within several days up to a month from the encounter. The SEE-Dx-PRM's diagnostic excellence outcomes are: (1) accurate diagnosis and (2) either final, or working diagnosis, or specific next steps to establish diagnosis that were communicated and comprehended by patients. SEE-Dx-PRM encompasses 2 domains associated with accurate diagnosis, 5 domains of patient perception of iterative diagnostic process, 5 domains associated with communication and comprehension, and a domain associated with uncertainty.</div></div><div><h3>Conclusion</h3><div>SEE-Dx-PRM-informed measures might support quality improvement, prompt system response, and research on diagnostic excellence.</div></div><div><h3>Innovation</h3><div>SEE-Dx-PRM presents a novel patient-centered framework for the emerging diagnostic excellence construct and its measurement.</div></div>","PeriodicalId":74407,"journal":{"name":"PEC innovation","volume":"5 ","pages":"Article 100357"},"PeriodicalIF":0.0,"publicationDate":"2024-11-17","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142705579","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Tech + touch: A pilot study to facilitate access to health information technology for Spanish-speaking parents 技术+触摸:促进讲西班牙语的父母使用健康信息技术的试点研究
PEC innovation Pub Date : 2024-11-17 DOI: 10.1016/j.pecinn.2024.100358
Jennifer C. Gutierrez-Wu , Jennifer Pilotos McBride , Allison Pittman , Yumei Yang , Feng-Chang Lin , Kori B. Flower
{"title":"Tech + touch: A pilot study to facilitate access to health information technology for Spanish-speaking parents","authors":"Jennifer C. Gutierrez-Wu ,&nbsp;Jennifer Pilotos McBride ,&nbsp;Allison Pittman ,&nbsp;Yumei Yang ,&nbsp;Feng-Chang Lin ,&nbsp;Kori B. Flower","doi":"10.1016/j.pecinn.2024.100358","DOIUrl":"10.1016/j.pecinn.2024.100358","url":null,"abstract":"<div><h3>Objectives</h3><div>As Spanish-speaking parents face many barriers to care, we sought to: (1) understand HIT experiences and preferences; (2) pilot test a tablet/navigator intervention; (3) understand HIT uses and barriers.</div></div><div><h3>Methods</h3><div>Prospective, uncontrolled, non-randomized, pilot intervention examining facilitated access to a patient portal for Spanish-speaking parents. Parents were recruited from pediatric specialty clinics in an academic center. Parents received an electronic tablet pre-populated with health resources, plus 2 telephone calls from a navigator. Surveys assessed HIT perceptions/use; portal activation was assessed through electronic records.</div></div><div><h3>Results</h3><div>Twenty-five Spanish-speaking parents were enrolled. All parents wished they knew more about their child's health and that doctors knew them better. Most parents endorsed interest in HIT, however only 12% activated portals. Post-intervention, there were non-significant increases in using portals to make appointments, receive reminders, send/receive messages, and view labs/instructions. Uses of study tablets included video visits (56%), health/COVID information (16%), and schoolwork (16%).</div></div><div><h3>Innovation</h3><div>Spanish-speaking parents express high interest in HIT. Provision of tablets may augment electronic capacity and facilitate video visits. Greater Spanish-language support is needed for Spanish-speaking parents to meaningfully use portals.</div></div>","PeriodicalId":74407,"journal":{"name":"PEC innovation","volume":"5 ","pages":"Article 100358"},"PeriodicalIF":0.0,"publicationDate":"2024-11-17","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142705578","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
The effectiveness of integrating making every contact count into an undergraduate medical curriculum 将 "重视每次接触 "纳入医学本科课程的有效性
PEC innovation Pub Date : 2024-11-15 DOI: 10.1016/j.pecinn.2024.100356
Robyn Fletcher , Alexander Hammant , Rebecca Symes , Andrew Turvey , Andy Ward , Ary Mahdzir , Bharathy Kumaravel
{"title":"The effectiveness of integrating making every contact count into an undergraduate medical curriculum","authors":"Robyn Fletcher ,&nbsp;Alexander Hammant ,&nbsp;Rebecca Symes ,&nbsp;Andrew Turvey ,&nbsp;Andy Ward ,&nbsp;Ary Mahdzir ,&nbsp;Bharathy Kumaravel","doi":"10.1016/j.pecinn.2024.100356","DOIUrl":"10.1016/j.pecinn.2024.100356","url":null,"abstract":"<div><h3>Objective</h3><div>To evaluate the feasibility and effectiveness of integrating Making Every Contact Count (MECC) using Healthy Conversation Skills (HCS) into an undergraduate medical curriculum and test the performance of an associated assessment.</div></div><div><h3>Methods</h3><div>Concepts were introduced to second year students through lectures, small group seminars, role-plays and a new Objective Structured Clinical Examination (OSCE).</div><div>station. Students' feedback was gathered and their examination performance was analysed.</div></div><div><h3>Results</h3><div>MECC/HCS was integrated into the undergraduate medical curriculum at Leicester Medical School. Teaching had a positive impact on the students' self-reported confidence in carrying out MECC (7/10 to 9/10, <em>p</em> &gt; 0.001) and in their self-reported likelihood of doing so (7/10 to 9/10, p &gt; 0.001). The MECC OSCE station was good at discriminating between students' abilities (group discrimination metric 4.36–4.44). The small negative alpha differences for the MECC/HCS station (−0.032 and − 0.028) indicated this station positively contributed to the overall reliability of the assessment.</div></div><div><h3>Conclusion</h3><div>It was feasible to integrate MECC/HCS into an undergraduate medical curriculum, with a positive impact on students' confidence.</div></div><div><h3>Innovation</h3><div>In addition to teaching, this study describes the development and testing of OSCE stations to assess students' MECC skills in simulated clinical scenarios.</div></div>","PeriodicalId":74407,"journal":{"name":"PEC innovation","volume":"5 ","pages":"Article 100356"},"PeriodicalIF":0.0,"publicationDate":"2024-11-15","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142705577","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
How often are patients recording their healthcare consultations in Australia and why? An online survey 在澳大利亚,患者记录医疗咨询的频率如何?在线调查
PEC innovation Pub Date : 2024-11-08 DOI: 10.1016/j.pecinn.2024.100355
Megan Prictor , Glyn Elwyn , Amelia Hyatt
{"title":"How often are patients recording their healthcare consultations in Australia and why? An online survey","authors":"Megan Prictor ,&nbsp;Glyn Elwyn ,&nbsp;Amelia Hyatt","doi":"10.1016/j.pecinn.2024.100355","DOIUrl":"10.1016/j.pecinn.2024.100355","url":null,"abstract":"<div><h3>Purpose</h3><div>Recording important healthcare consultations can benefit patients. Technological developments enable recordings by patients and health professionals, as well as real-time ‘listening’ by AI scribes. Not enough is known about whether and why patients record their consultations.</div></div><div><h3>Objective</h3><div>To investigate people's experiences and preferences regarding consultation recording in Australia.</div></div><div><h3>Methods</h3><div>A 21-item online survey available for all Australians aged 18+ was distributed via social media and professional networks in 2022. Items explored recording behaviour (past and planned), and reasons for recording and sharing. Quantitative data were analysed descriptively; qualitative content analysis was used to analyse open-text items.</div></div><div><h3>Results</h3><div>A total of 486 responses were received, of which 236 responses were analysed. Of these, 26 % had openly recorded a healthcare consultation, and 15 % had recorded covertly. The majority (71 %) of participants would consider recording a visit and would like their clinic to allow this (56 %). Participants strongly opposed the idea of sharing a recording on social media (84 %). Open-text responses indicated participants valued the health professional's consent, and protecting their own privacy by not oversharing recordings.</div></div><div><h3>Conclusion</h3><div>Recording of consultations in Australia is common, usually to enhance patients' knowledge, understanding, and participation in their care. Patients value the possibility of recording, especially when they are experiencing vulnerability. Recording can help people navigate the impacts of disability and barriers to information access. Privacy and fairness remain paramount.</div></div><div><h3>Innovation</h3><div>This is the first survey of recording practices in Australia and is highly-relevant given recent technological developments. The findings indicate that changes in policy, law and technologies themselves are needed, to clarify parties' rights and responsibilities and to ensure the benefits of consultation recording are realised.</div></div>","PeriodicalId":74407,"journal":{"name":"PEC innovation","volume":"5 ","pages":"Article 100355"},"PeriodicalIF":0.0,"publicationDate":"2024-11-08","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142706106","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Improving communication to increase uptake of high-risk breast cancer prevention appointments: Building a better letter 改善沟通,提高高危乳腺癌预防预约的接受率:建立一封更好的信
PEC innovation Pub Date : 2024-11-06 DOI: 10.1016/j.pecinn.2024.100354
Evan K. Perrault , Maria K. Venetis , Tarah J. Ballinger
{"title":"Improving communication to increase uptake of high-risk breast cancer prevention appointments: Building a better letter","authors":"Evan K. Perrault ,&nbsp;Maria K. Venetis ,&nbsp;Tarah J. Ballinger","doi":"10.1016/j.pecinn.2024.100354","DOIUrl":"10.1016/j.pecinn.2024.100354","url":null,"abstract":"<div><h3>Objective</h3><div>Mailed letters to women identified as being at high-risk for developing breast cancer were not having the desired effect for encouraging appointments with prevention-focused providers at a large Midwest healthcare system. A partnership with communication scholars sought to revise the letter to increase awareness, intentions, and appointments.</div></div><div><h3>Methods</h3><div>Guided by the Extended Parallel Process Model, survey responses were collected from letter recipients over the course of two years, both pre and post letter revision. Appointments attributed to letters were also tracked.</div></div><div><h3>Results</h3><div>Recipients of the revised letter had increased knowledge regarding the length of prevention appointments and indicated greater self-efficacy and intentions to make and attend appointments compared to those who received the non-revised letter. A greater percentage who received the revised letter also made appointments.</div></div><div><h3>Conclusion</h3><div>Partnering with communication scholars helped with improving a letter mailed to thousands of patients each year. Finding ways to increase response-efficacy of breast cancer prevention activities within communications may assist in increasing appointments.</div></div><div><h3>Innovation</h3><div>Cross-disciplinary partnerships across the medical and social sciences – while not quick or simple – are essential for finding ways to improve patient wellbeing and hopefully reducing the prevalence of preventable diseases in the future.</div></div>","PeriodicalId":74407,"journal":{"name":"PEC innovation","volume":"5 ","pages":"Article 100354"},"PeriodicalIF":0.0,"publicationDate":"2024-11-06","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142653966","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Factors contributing to implementation of a father-friendly neonatal intensive care unit in Denmark 丹麦实施父亲友好型新生儿重症监护病房的因素
PEC innovation Pub Date : 2024-10-28 DOI: 10.1016/j.pecinn.2024.100353
Betty Noergaard , Karin Yde Waidtløw , Poul-Erik Kofoed , Signe Valkvist
{"title":"Factors contributing to implementation of a father-friendly neonatal intensive care unit in Denmark","authors":"Betty Noergaard ,&nbsp;Karin Yde Waidtløw ,&nbsp;Poul-Erik Kofoed ,&nbsp;Signe Valkvist","doi":"10.1016/j.pecinn.2024.100353","DOIUrl":"10.1016/j.pecinn.2024.100353","url":null,"abstract":"<div><h3>Objective</h3><div>Although family-centred care (FCC) is recommended in neonatal intensive care units (NICUs), barriers still exist. This study aimed to identify and understand and nurse-related factors contributing to the implementation of a father-friendly NICU (FF-NICU).</div></div><div><h3>Methods</h3><div>Eleven pre- and post-implementation focus groups were conducted with 21 nurses. Data were analysed using meaning condensation.</div></div><div><h3>Results</h3><div>Four pre-implementation themes emerged: 1) fathers' limited presence, 2) worries, vulnerability, and emotions, 3) types of fathers, and 4) involvement of fathers.</div><div>Eight themes contributed to the implementation of FF-NICU: 1) Advantage for the infant/family, 2) Presence of fathers, 3) Less work for the nurses, 4) Daily work routines, 5) Taking something from the mother, 6) Different approaches, 7) Creativity and flexibility, and 8) Implementation process.</div></div><div><h3>Conclusion</h3><div>Important for the implementation of FF-NICU were that the change was necessary, advantageous for the nurses, and beneficial for the families. Still, nurses needed to be flexible and creative in the care of the fathers/families.</div></div><div><h3>Innovation</h3><div>This study focused on fathers - an underexposed target group. Examining key factors for those executing the intervention and discussing the findings using the theoretical framework of John P. Kotter's implementation strategy, we contribute to a better understanding of implementation processes.</div></div>","PeriodicalId":74407,"journal":{"name":"PEC innovation","volume":"5 ","pages":"Article 100353"},"PeriodicalIF":0.0,"publicationDate":"2024-10-28","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142571271","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Patients' and health professionals' perspectives regarding shared decision making in the psychiatric inpatient setting – A multiple qualitative case study 病人和医护人员对精神病住院患者共同决策的看法--一项多重定性案例研究
PEC innovation Pub Date : 2024-10-21 DOI: 10.1016/j.pecinn.2024.100352
Caroline Gurtner , Jos M.G.A. Schols , Christa Lohrmann , Sabine Hahn
{"title":"Patients' and health professionals' perspectives regarding shared decision making in the psychiatric inpatient setting – A multiple qualitative case study","authors":"Caroline Gurtner ,&nbsp;Jos M.G.A. Schols ,&nbsp;Christa Lohrmann ,&nbsp;Sabine Hahn","doi":"10.1016/j.pecinn.2024.100352","DOIUrl":"10.1016/j.pecinn.2024.100352","url":null,"abstract":"<div><h3>Objective</h3><div>Shared decision-making is one promising approach to promoting recovery and person-centred care but seems challenging for implementation in clinical practice. This study aimed to explore how patients and health professionals experience shared decision-making and its facilitators and barriers.</div></div><div><h3>Methods</h3><div>A multiple qualitative case study design was chosen, using a constant comparative method. Multiple data sources were used, including individual interviews, observation, document analysis and a focus group.</div></div><div><h3>Results</h3><div>Through first a within-case analysis and then second a cross-case analysis, four patient profiles and their potential for shared decision-making were constructed. The results indicate that in the daily routine of the psychiatric inpatient setting different forms of decision making are used, even though health professionals advocate shared decision-making as the favored approach. Patients also have varying expectations and perceptions regarding shared decision-making, which is reflected in the degree of their involvement.</div></div><div><h3>Conclusion</h3><div>Shared decision-making could be enhanced in the future by a more proactive communication style and the proactive provision of information on the part of health professionals, in order to enhance patient participation in decision-making.</div></div><div><h3>Innovation</h3><div>The study identified different forms of decision-making within the acute psychiatric inpatient setting, highlighting the gap between the advocated SDM approach and its practical implementation. This divergence is a key aspect, as it underlines the complexity of implementing SDM in real clinical settings.</div></div>","PeriodicalId":74407,"journal":{"name":"PEC innovation","volume":"5 ","pages":"Article 100352"},"PeriodicalIF":0.0,"publicationDate":"2024-10-21","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142723262","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Uneasiness in interdisciplinary research and the importance of metaphors: A case story on building an interdisciplinary chronic pain research team 跨学科研究的不确定性和隐喻的重要性:建立跨学科慢性疼痛研究团队的案例故事
PEC innovation Pub Date : 2024-10-20 DOI: 10.1016/j.pecinn.2024.100350
T.C. Van Charldorp , M.A. Strick , J.C. de Grauw , S. Brugman , Y. Van de Burgt , L.H.H. Winkens , F.J. Meye , M. Rijsdijk , H.L.D.M. Willemen
{"title":"Uneasiness in interdisciplinary research and the importance of metaphors: A case story on building an interdisciplinary chronic pain research team","authors":"T.C. Van Charldorp ,&nbsp;M.A. Strick ,&nbsp;J.C. de Grauw ,&nbsp;S. Brugman ,&nbsp;Y. Van de Burgt ,&nbsp;L.H.H. Winkens ,&nbsp;F.J. Meye ,&nbsp;M. Rijsdijk ,&nbsp;H.L.D.M. Willemen","doi":"10.1016/j.pecinn.2024.100350","DOIUrl":"10.1016/j.pecinn.2024.100350","url":null,"abstract":"<div><div>Interdisciplinary research is increasingly recognized as a key method to tackle complex societal challenges and stimulate creativity to find innovative solutions. Our key goal when starting our collaboration was to come to innovative ways of treating chronic pain. An ambitious goal that requires out-of-the-box and high-risk-high-gain research. However, interdisciplinary research in practice can be uneasy and will not always be successful. This paper describes a case story focussing on the challenges we faced building an interdisciplinary team. One of the most important lessons is that researchers from different disciplines may think they speak a universal ‘language of science’, but a thorough understanding of each other's ways of working, research paradigms, methods, and concepts is necessary before they can start working together on solving scientific questions. In fact, if researchers cannot understand each other's language, they cannot expect patients to understand scientific language either. Lastly, for academics to engage with a non-scientific audience and vice-versa, we need to find and create places to meet and find ways to interact effectively. Language is the medium through which all these interactions take place. It is therefore essential that language takes a central place in the process of collaboration across disciplines, interdisciplinary research, patient participation and public engagement. In this case story, we share our experiences in creating a common language, summarized in five steps (1: creating the team; 2: metaphor-forced introduction to disciplines; 3: creating common ground; 4: outreach; 5: integration). Metaphors play an important role in this process. We will demonstrate how we reflectively progressed through these steps while enhancing interdisciplinarity, (scientific) innovation and public engagement. This five-step journey can be used as a process-tool for any other high-risk-high-gain research team seeking to innovate through interdisciplinarity – with the risk of becoming a brilliant failure.</div></div>","PeriodicalId":74407,"journal":{"name":"PEC innovation","volume":"5 ","pages":"Article 100350"},"PeriodicalIF":0.0,"publicationDate":"2024-10-20","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142528371","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Helping children cope with a mother's breast cancer diagnosis: ‘The telling box’ – A pilot study 帮助儿童应对母亲的乳腺癌诊断:"倾诉箱"--一项试点研究
PEC innovation Pub Date : 2024-10-18 DOI: 10.1016/j.pecinn.2024.100351
Joyce M.J. de Vos-Houben , Femke Bruls , Christel Heiyerjans , Rianne Roijen , Trijntje Völlink , Esther C. Bakker
{"title":"Helping children cope with a mother's breast cancer diagnosis: ‘The telling box’ – A pilot study","authors":"Joyce M.J. de Vos-Houben ,&nbsp;Femke Bruls ,&nbsp;Christel Heiyerjans ,&nbsp;Rianne Roijen ,&nbsp;Trijntje Völlink ,&nbsp;Esther C. Bakker","doi":"10.1016/j.pecinn.2024.100351","DOIUrl":"10.1016/j.pecinn.2024.100351","url":null,"abstract":"<div><h3>Objective</h3><div>Discussing cancer with children presents challenges. Evidence underscores the importance of transparent communication in aiding children's coping mechanisms amidst a parent's diagnosis. ‘The telling box’ intervention was developed to assist mothers in discussing cancer with their children. This study aimed to explore nurses' and mothers' perspectives on the ‘telling box’.</div></div><div><h3>Methods</h3><div>Semi-structured interviews were conducted with six oncology nurses and five mothers diagnosed with breast cancer to assess their experiences and opinions regarding ‘the telling box’.</div></div><div><h3>Results and conclusion</h3><div>Both nurses and mothers emphasize the significance of open communication with children. Nurses identified ‘the telling box’ as a valuable resource for starting discussions about cancer with children, but lack of time and knowledge were factors preventing them from distributing the boxes. The current design of the box did not meet the mothers' needs, and the timing of its distribution was suboptimal. We recommend education of nurses on the use of ‘the telling box’ and customizing its content based on the child's age and treatment stage of the mother.</div></div><div><h3>Innovation</h3><div>This study offers important insights from both patients and healthcare professionals. ‘The telling box’ was developed through collaborative efforts involving healthcare professionals and patients.</div></div>","PeriodicalId":74407,"journal":{"name":"PEC innovation","volume":"5 ","pages":"Article 100351"},"PeriodicalIF":0.0,"publicationDate":"2024-10-18","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142528370","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
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