PEC innovation最新文献

{"title":"Beyond motivation: Creating supportive healthcare environments for engaging in therapeutic patient education according to healthcare providers","authors":"Bob C. Mulder ,&nbsp;Hylkje Algra ,&nbsp;Esther Cruijsen ,&nbsp;J. Marianne Geleijnse ,&nbsp;Renate M. Winkels ,&nbsp;Willemieke Kroeze","doi":"10.1016/j.pecinn.2025.100405","DOIUrl":"10.1016/j.pecinn.2025.100405","url":null,"abstract":"<div><h3>Objective</h3><div>This article reports the findings of focus-group discussions with healthcare providers concerning the facilitators and barriers they experience when engaging in therapeutic patient education (TPE).</div></div><div><h3>Methods</h3><div>Five focus-group discussions were held with a total of 21 primary and secondary healthcare providers. Discussions were moderated using a topic list that was co-created with healthcare providers. All discussions were recorded, transcribed verbatim and analysed thematically.</div></div><div><h3>Results</h3><div>Healthcare providers consider TPE important, but it requires long-term, continuous effort in order to be effective. They sometimes doubt its effectiveness and their own efficacy. Moreover, healthcare providers experience a lack of a supportive environment. Overall, their experiences could be captured in four categories of determinants of engaging in TPE: Capabilities, Motivation, Physical Context and Social Context.</div></div><div><h3>Conclusion</h3><div>Therapeutic patient education requires healthcare providers to be capable and motivated. To maintain the continuous effort needed, healthcare providers need to be supported both socially (e.g. by colleagues and management) and physically (e.g. through communication infrastructure).</div></div><div><h3>Innovation</h3><div>In contrast to previous studies focusing on the motivation and capability of healthcare providers to perform TPE, this study contributes to innovation in health communication by identifying social and physical factors that determine whether TPE is delivered continuously under actual or perceived constraints in terms of time and effectiveness.</div></div>","PeriodicalId":74407,"journal":{"name":"PEC innovation","volume":"6 ","pages":"Article 100405"},"PeriodicalIF":0.0,"publicationDate":"2025-05-25","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144169444","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Perceptions of frailty and falls in older adults using an English regional ambulance service: A descriptive phenomenological study","authors":"Karl Charlton ,&nbsp;Tripta Rathour ,&nbsp;Emma Burrow","doi":"10.1016/j.pecinn.2025.100406","DOIUrl":"10.1016/j.pecinn.2025.100406","url":null,"abstract":"<div><h3>Objective</h3><div>Frailty is of increasing importance for healthcare systems as well as the personalised care agenda. Despite the evolving body of research exploring frailty and falls in the ambulance setting, the voices of frail older adults who use ambulance services, are seldom heard. Through first-hand accounts, this study set out to describe the experiences and perceptions of frailty for a cohort of older adults.</div></div><div><h3>Methods</h3><div>A descriptive phenomenological study involving eight participants with frailty who used a regional English National Health Service (NHS) ambulance service following a fall, conducted between July 2022–February 2023.</div></div><div><h3>Results</h3><div>Accounts from older adults highlight different perceptions of frailty and attitudes towards ageing. Frailty and falls were experienced through varying perceptions of identity and self<em>,</em> underpinned by acceptance, or otherwise, of an altered sense of embodiment and a life with limits<em>.</em></div></div><div><h3>Conclusion</h3><div>Older adults generally hold negative perceptions of frailty, falls and ageing, but also challenged the negative terms frequently used to describe frailty, suggesting some frail older adults remain positive and still value life. Paramedics are likely to require further training and support to manage patients with frailty effectively and improve patient experience.</div></div><div><h3>Innovation</h3><div>This study uniquely explores frailty and falls through the stories of older adults using an NHS ambulance service. It highlights that older adults in this setting often differ from the older population in general, have a higher frailty prevalence than patients in other settings and appear to view the future with greater pessimism.</div></div>","PeriodicalId":74407,"journal":{"name":"PEC innovation","volume":"6 ","pages":"Article 100406"},"PeriodicalIF":0.0,"publicationDate":"2025-05-24","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144154369","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Getting back on track: Development of a blended-care intervention for weight recurrence after metabolic bariatric surgery using intervention mapping","authors":"Vera Voorwinde ,&nbsp;Ingrid H.M. Steenhuis ,&nbsp;Ignace M.C. Janssen ,&nbsp;Valerie M. Monpellier ,&nbsp;Maartje M. van Stralen","doi":"10.1016/j.pecinn.2025.100404","DOIUrl":"10.1016/j.pecinn.2025.100404","url":null,"abstract":"<div><h3>Objective</h3><div>To systematically re-develop a blended-care intervention addressing weight recurrence after metabolic bariatric surgery (MBS). Weight recurrence poses a significant longterm challenge for around 20–30 % of MBS patients. The intervention aims to improve weight outcomes and enhance patient well-being. This study describes the novel application of the Intervention Mapping (IM) protocol, integrating scientific evidence and stakeholder input.</div></div><div><h3>Methods</h3><div>The six-step IM protocol guided the development process, ensuring the active involvement of patients and healthcare professionals. A comprehensive needs assessment using quantitative, qualitative, and literature-based approaches informed the creation of a logic model of the problem (Step 1) and a logic model of change (Step 2). Program outcomes and objectives were formulated through collaborative brainstorming and design-thinking sessions, leading to intervention design (Step 3). The intervention was co-produced with patients, implementers, and an app developer (Step 4). Detailed implementation (Step 5) and evaluation (Step 6) plans were subsequently developed.</div></div><div><h3>Results</h3><div>The IM process yielded a blended-care intervention grounded in theoretical frameworks and evidence-based methods. The intervention actively involved the target population and implementers, addressing key determinants of weight recurrence.</div></div><div><h3>Conclusion</h3><div>The IM protocol demonstrated utility in designing a tailored, theory-based intervention post-MBS. The process emphasized the value of integrating stakeholder perspectives and highlighted the feasibility of co-creating an evidence-informed intervention.</div></div><div><h3>Innovation</h3><div>This intervention incorporates newly developed elements in a novel blended-care structure. Future evaluation is necessary to determine its effectiveness in achieving the desired outcomes.</div></div>","PeriodicalId":74407,"journal":{"name":"PEC innovation","volume":"6 ","pages":"Article 100404"},"PeriodicalIF":0.0,"publicationDate":"2025-05-18","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144106301","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Psychometric characteristics of Roter interaction analysis system (RIAS) in the context of health education in a Moroccan school","authors":"Khadija Daoudi,&nbsp;Khaoula Jounaidi,&nbsp;Abdellah Gantare","doi":"10.1016/j.pecinn.2025.100403","DOIUrl":"10.1016/j.pecinn.2025.100403","url":null,"abstract":"<div><h3>Objective</h3><div>The Roter Interaction Analysis System (RIAS) is widely used to assess communication in clinical settings but has not yet been applied in educational contexts. This study explores the psychometric properties of RIAS in Moroccan school health education, assessing its feasibility, reliability, and validity while examining its potential to improve communication strategies between health educators and students.</div></div><div><h3>Methods</h3><div>A cross-sectional study was conducted with 36 Moroccan primary school students. Health education session were recorded and analyzed using RIAS to evaluate communication patterns. Two trained raters independently coded the interactions into eight communication behavior categories. Psychometric analyses, including assessments of feasibility (coding versus session duration), inter-rater reliability (using correlation coefficients), and content validity (based on category usage), were conducted to evaluate RIAS's reliability and validity.</div></div><div><h3>Results</h3><div>RIAS demonstrated feasibility with extended coding times reflecting its comprehensive nature. High inter-rater reliability (ρ = 0.96–1.00, <em>p</em> &lt; 0.01) validated its consistent application. Content validity confirmed adaptability, though challenges with social-emotional utterances and low-frequency categories suggest refinement to align with health education's unique dynamics.</div><div>Conclusion: This pilot study demonstrates the feasibility, reliability, and validity of RIAS in Moroccan school health education, highlighting its potential to enhance educator-student communication and improve health education outcomes in diverse cultural settings.</div></div><div><h3>Innovation</h3><div>This study pioneers the application of RIAS in Moroccan school health education, extending its use beyond clinical contexts. It highlights RIAS's adaptability to diverse, non-Western settings, bridging a gap in communication analysis. Findings provide a foundation for refining RIAS to align with health education and global health promotion strategies.</div></div>","PeriodicalId":74407,"journal":{"name":"PEC innovation","volume":"6 ","pages":"Article 100403"},"PeriodicalIF":0.0,"publicationDate":"2025-05-15","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144138427","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Empathy training via Kalamazoo Consensus in remote and in-person medical communication: A randomized controlled trial","authors":"Giovan Battista Previti ,&nbsp;Carlo Mazzatenta ,&nbsp;Tommaso Bellandi ,&nbsp;Francesco Niccolai ,&nbsp;Dario Nieri ,&nbsp;Valentina Ungaretti ,&nbsp;Irene Cavasini ,&nbsp;Alessandra Mazzoni ,&nbsp;Stefano Maiorano ,&nbsp;Luca Di Paolo ,&nbsp;Veronica D'Elia ,&nbsp;Monica Torre ,&nbsp;Licia Matteucci ,&nbsp;Guido Miccinesi ,&nbsp;Moreno Marcucci ,&nbsp;Michela Maielli ,&nbsp;Sergio Ardis","doi":"10.1016/j.pecinn.2025.100399","DOIUrl":"10.1016/j.pecinn.2025.100399","url":null,"abstract":"<div><h3>Background</h3><div>Empathy is crucial in healthcare, facilitating effective communication and improving patient outcomes.</div></div><div><h3>Objective</h3><div>This study aimed to evaluate the impact of tele-conference training based on the Kalamazoo Consensus Statement (KCS) on the empathy scores of newly hired physicians in a tele-visit simulation course.</div></div><div><h3>Methods</h3><div>From September 2021 to April 2022, we conducted a randomized controlled trial involving 129 medical doctors from 13 hospitals in north-western Tuscany, with an age range of 31 to 42 years. Partecipants were randomly assigned to a trained group (TG) or a control group (CG). Both groups completed the Toronto Empathy Questionnaire (TEQ) and the Balanced Emotional Empathy Scale (BEES) before (T0) and after (T1) the training. The TG underwent a 12-h online communication training course. The CG only completed the questionnaires without further intervention.</div></div><div><h3>Results</h3><div>Total sample <em>included 129 partecipants.</em> Results indicated a significant increase in TEQ scores for the TG (55,8 % of total sample; T0: 65.32; T1: 66.42, <em>p</em> = 0.032) and BEES scores (T0: 122.39; T1: 127.50, <em>p</em> = 0.000). The CG (44,2 %) experienced a decrease in TEQ scores (T0: 65.58; T1: 63.75, p = 0.000) but stable BEES scores (T0: 122.16; T1: 120.67, <em>p</em> = 0.317). Female participants consistently exhibited higher empathy scores than males, with training significantly enhancing scores for both genders.</div></div><div><h3>Conclusions</h3><div>The tele-conference training effectively improved empathy scores among newly hired physicians. We recommend the implementation of KCS-based training to enhance empathy and communication skills in medical practice.</div></div><div><h3>Innovation</h3><div>The pandemic has accelerated the use of tele-education and telemedicine, though opinions on their effectiveness remain divided. However, studies show that empathy can be enhanced through interactive online training, which offers significant innovations for both healthcare professionals' learning and patient care.</div></div>","PeriodicalId":74407,"journal":{"name":"PEC innovation","volume":"6 ","pages":"Article 100399"},"PeriodicalIF":0.0,"publicationDate":"2025-05-15","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144084189","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Acceptability of the ePOWER intervention: Managing previvors' cancer-related uncertainty and supporting decision making","authors":"Marleah Dean ,&nbsp;Bethany Jowers ,&nbsp;Claire Conley ,&nbsp;Erica Camacho ,&nbsp;Whitney Espinel ,&nbsp;Kimberly A. Kaphingst","doi":"10.1016/j.pecinn.2025.100402","DOIUrl":"10.1016/j.pecinn.2025.100402","url":null,"abstract":"<div><h3>Objective</h3><div>Previvors—unaffected individuals who have increased risk of cancer due to a pathogenic or likely pathogenic variant in a gene—experience high levels of uncertainty, which is associated with negative outcomes. The ePOWER (empowering Preventive Options for Women Experiencing Risk) intervention is designed to help <em>BRCA1/2</em> previvors manage their cancer-related uncertainty and make informed health decisions. In this study, we assessed the acceptability of ePOWER using a multiple methods approach.</div></div><div><h3>Methods</h3><div>Previvors (<em>N</em> = 24) completed individual, semi-structured interviews. Previvors first completed the Treatment Acceptability and Preference Scale (TAPS). Additionally, using a Learner Verification &amp; Revision (LV&amp;R) interviewing approach, we also elicited feedback on whether ePOWER was understandable, salient, and satisfactory to previvors. Acceptability was assessed by quantitative data (TAPS scores) and qualitative data (interviews). In analyzing the interview data and integrating the findings, deductive coding was utilized using LV&amp;R categories and inductive thematic analysis was utilized to capture additional nuances from participants' evaluation.</div></div><div><h3>Results</h3><div>Adequate acceptability was demonstrated by TAPS scores. 88 % of participants exceeded the a priori acceptability threshold (TAPS ≥3). Deductive coding using LV&amp;R categories also confirmed ePOWER was visually appealing, understandable, persuasive, cultural appropriate, and fostered self-efficacy. Inductive thematic analysis expanded on the LV&amp;R categories and identified two additional themes: (1) relatability and emotional support and (2) useful resource.</div></div><div><h3>Conclusion</h3><div>ePOWER is an acceptable intervention to help previvors manage cancer-related uncertainty and support decision making.</div></div><div><h3>Innovation</h3><div>The ePOWER intervention can be shared during healthcare appointments and then utilized continuously by previvors to manage uncertainty and facilitate decisions.</div></div>","PeriodicalId":74407,"journal":{"name":"PEC innovation","volume":"6 ","pages":"Article 100402"},"PeriodicalIF":0.0,"publicationDate":"2025-05-10","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143943104","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Let's talk about death, dying, and what matters most to you in life: Pretest and piloting of a translated and adapted conversation game","authors":"Julia Jaschke,&nbsp;Sara Söling,&nbsp;Juliane Köberlein-Neu","doi":"10.1016/j.pecinn.2025.100400","DOIUrl":"10.1016/j.pecinn.2025.100400","url":null,"abstract":"<div><h3>Objective</h3><div>This study aimed to pretest and pilot the German version of the <em>Hello</em> conversation game (German: <em>Hey du</em>) to assess its comprehensibility and acceptability. Like the original, <em>Hey du</em> is designed as a low-threshold method to empower people of almost all ages and health conditions to engage in advance care planning (ACP), particularly targeting young/healthy people for whom there are currently few or no ACP programmes.</div></div><div><h3>Methods</h3><div>The conversation game was systematically translated into German using the TRAPD process and cognitively pretested in 12 interviews. Subsequently, two observational studies were conducted: <em>Hey du</em> was used in 1) a nursing school (<em>n</em> = 16) and 2) with groups of family and friends (<em>n</em> = 50). After completing the game, participants were surveyed regarding the game's acceptability and comprehensibility.</div></div><div><h3>Results</h3><div>The results of the cognitive pretest and the observational studies show that the conversation game was acceptable and comprehensible in both settings. Most of the participants (&gt;92 %) reported that <em>Hey du</em> helped them come to terms with their own wishes and preferences for medical and nursing care and that they felt comfortable playing the game.</div></div><div><h3>Conclusion</h3><div><em>Hey du</em> has the potential to motivate and empower people to deal with ACP.</div></div><div><h3>Innovation</h3><div><em>Hey du</em> is the first scientifically supported gamification approach in Germany to introduce ACP to people for whom no systematic ACP programs exist. The game provides a safe forum for people of almost all ages and health conditions to discuss their values regarding life, death, dying and what matters most.</div></div>","PeriodicalId":74407,"journal":{"name":"PEC innovation","volume":"6 ","pages":"Article 100400"},"PeriodicalIF":0.0,"publicationDate":"2025-05-06","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143928095","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Use of digital flashcards for reproductive health counseling among adolescents","authors":"Meghan A. Anderson ,&nbsp;Rachel Price ,&nbsp;Tori P. Miller ,&nbsp;Rajan Lamichhane ,&nbsp;Jennie L. Yoost","doi":"10.1016/j.pecinn.2025.100401","DOIUrl":"10.1016/j.pecinn.2025.100401","url":null,"abstract":"<div><h3>Objective</h3><div>The purpose of this study is to determine whether “digital flashcard” graphics on a provider's smartphone are helpful in educating adolescents about reproductive health.</div></div><div><h3>Methods</h3><div>A randomized study compared the understanding of reproductive health topics among adolescents using digital flashcards during a clinical visit vs counseling as usual (control).</div></div><div><h3>Results</h3><div>There were 197 subjects (99 flashcards, 98 control) with mean age of 14.7 years. Among subjects in the flashcard group, new patients used more flashcards than return patients (3.48 vs 2.40, <em>p</em> = 0.001). The most frequently used flashcards were 7-day placebo birth control pills, the intrauterine device, internal anatomy and 84-day birth control pills. Among the flashcard group 96.9 % reported they “agreed” or “strongly agreed” that flashcards were helpful in understanding the topics discussed, and 98 % would recommend using them in the future. All subjects experienced an increase in understanding of the topics discussed during clinic, and there was no difference between the flashcard group and control.</div></div><div><h3>Conclusion</h3><div>Subjects using the digital flashcards during their clinical encounter reported high acceptability.</div></div><div><h3>Innovation</h3><div>Digital flashcards are accessible via smart phone use and can be easily distributed among providers to assist in reproductive health counseling in adolescents.</div></div>","PeriodicalId":74407,"journal":{"name":"PEC innovation","volume":"6 ","pages":"Article 100401"},"PeriodicalIF":0.0,"publicationDate":"2025-05-06","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144069860","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Communication across language barriers in Nordic paediatric oncology care – A cross-sectional multicentre survey with healthcare personnel","authors":"Melissa Jakobsson ,&nbsp;Helena Ventovaara ,&nbsp;Johanna Granhagen Jungner ,&nbsp;Eva Broström ,&nbsp;Elisabet Tiselius ,&nbsp;Pernilla Pergert","doi":"10.1016/j.pecinn.2025.100395","DOIUrl":"10.1016/j.pecinn.2025.100395","url":null,"abstract":"<div><h3>Objective</h3><div>The study investigated how healthcare personnel communicate with families when experiencing language barriers, and the use of interpreters in Nordic paediatric oncology care.</div></div><div><h3>Methods</h3><div>A cross-sectional multicentre survey study with registered nurses (RNs) and medical doctors (MDs) at 20 Nordic paediatric oncology centres. The “Communication over Language Barriers questionnaire” (CoLB-q) was used in the respective Nordic languages. Descriptive analysis and non-parametric tests were used to summarize and compare data.</div></div><div><h3>Results</h3><div>A total of 489 RNs and MDs completed the survey (response rate of 55 %). Although most respondents reported often or sometimes caring for families with limited proficiency in the country's majority languages, only 20 % had received education in how to use an interpreter. When communicating without an interpreter both professions had used relatives and children as language brokers to some extent. Most respondents assessed that the use of interpreters increased families' participation and improved their care relationships with the families. MDs used interpreters more often than RNs, who in turn used children as language brokers more frequently than the MDs did.</div></div><div><h3>Conclusion</h3><div>Although most respondents believed that a professional interpreter increases patients' and families' participation and safety in care, children were used as language brokers by both professions. Few had received education or training on how to use an interpreter despite that most participants often met families with limited proficiency in the country's majority language.</div></div><div><h3>Innovation</h3><div>This study highlights a critical gap and underscores the necessity for healthcare personnel to receive education and training on utilizing professional interpreter resources.</div></div>","PeriodicalId":74407,"journal":{"name":"PEC innovation","volume":"6 ","pages":"Article 100395"},"PeriodicalIF":0.0,"publicationDate":"2025-04-30","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143898551","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Bringing question notes to physicians: A nationwide cross-sectional study in Japan (INFORM study 2020)","authors":"Mariko Asai ,&nbsp;Masako Okamura ,&nbsp;Maiko Fujimori ,&nbsp;Aki Otsuki ,&nbsp;Junko Saito ,&nbsp;Akiko Yaguchi-Saito ,&nbsp;Aya Kuchiba ,&nbsp;Yosuke Uchitomi ,&nbsp;Taichi Shimazu ,&nbsp;for the INFORM Study Group","doi":"10.1016/j.pecinn.2025.100398","DOIUrl":"10.1016/j.pecinn.2025.100398","url":null,"abstract":"<div><h3>Objective</h3><div>To describe the behavior of bringing question notes to physicians in Japan and explore the factors associated with this behavior.</div></div><div><h3>Methods</h3><div>We used data from a nationwide cross-sectional study conducted in Japan on access to health information (INFORM Study 2020). Data from 3605 respondents, 3572 of whom did not miss the primary endpoint of bringing question notes to physicians, were analyzed. The prevalence of weighted ratios of four-item responses (always, usually, sometimes, never) was described, and multivariable logistic regression was used to explore associated variables with “never bringing question notes.” We also explored the differences in these factors based on the cancer diagnosis experience.</div></div><div><h3>Results</h3><div>More than 60 % of all respondents and even among those who had a history of cancer diagnosis themselves, more than 50 % had never brought question notes to physicians. Being under 40 years of age, male, employed, and in good health were significantly associated with never bringing question notes.</div></div><div><h3>Conclusion</h3><div>Those who had never brought question notes to physicians were high both overall and among those who had a cancer diagnosis.</div></div><div><h3>Innovation</h3><div>Nationwide survey data revealed that Japanese people are less proactive in bringing the notes prepared beforehand to the consultation.</div></div>","PeriodicalId":74407,"journal":{"name":"PEC innovation","volume":"6 ","pages":"Article 100398"},"PeriodicalIF":0.0,"publicationDate":"2025-04-30","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143903856","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}