慢性疾病患儿父母与兄弟姐妹之间的沟通质量

Caitlin M. Prentice , Anna Aanesen , Amalie Kirkedelen Syverstad , Torun M. Vatne , Krister W. Fjermestad
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引用次数: 0

摘要

目的本研究旨在通过基于手工的群体干预(SIBS)来改善慢性障碍患儿兄弟姐妹的沟通质量和幸福感。方法采用基于手册的Verona情绪序列编码定义(VR-CoDES)工具对20份父母-兄弟对话录音和文本进行分析。我们测量了兄弟姐妹的消极表达和父母的反应,重点关注父母如何应用SIBS的目标行为,即倾听、探索和验证反应。结果:兄弟姐妹们提出了诸如慢性疾病的遗传性、差别待遇、暴力和发脾气等话题。兄弟姐妹的消极表达有53%是暗示(隐性表达),47%是担忧(显性表达)。对于暗示和担忧,家长在74%的回复中提供了空间,这意味着他们给了进一步披露的空间。在这些回应中,家长应用了SIBS的目标行为,包括探索(59%)、验证(33%)和倾听(8%)。结论在SIBS会话中,家长主要提供空间和使用温暖的语气回应兄弟姐妹。与以往的研究相比,验证性回应的比例更高,而倾听性回应的比例更低。创新慢性疾病儿童的父母和兄弟姐妹面临着独特的挑战,这可能会对父母-兄弟姐妹的沟通质量和兄弟姐妹的心理适应产生负面影响。本研究对父母和兄弟姐妹如何在干预环境下沟通,以及干预的特征如何影响这种沟通的质量提供了新的见解。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
Communication quality between parents and siblings of children with chronic disorders

Objective

This study examines parent-sibling communication during a manual-based group intervention (SIBS) that aims to improve communication quality and well-being for siblings of children with a chronic disorder diagnosis.

Methods

Audio recordings and transcripts of 20 parent-sibling conversations were analyzed using the manual-based tool Verona Coding Definition of Emotional Sequences (VR-CoDES). We measured siblings' negative expressions and parental responses, focusing on how parents applied the SIBS target behaviours of listening, exploring and validating responses.

Results

Siblings raised topics such as heritability of the chronic disorder, differential treatment, and instances of violence and temper tantrums. Siblings' negative expressions were 53 % cues (implicit expressions) and 47 % concerns (explicit expressions). Parents provided space in 74 % of the responses to cues and concerns, meaning they gave space for further disclosure. Within these responses, parents applied the SIBS target behaviours, including exploration (59 %), validation (33 %), and listening (8 %).

Conclusion

Parents mainly provided space and used a warm tone when responding to siblings in the SIBS sessions. Responses included a higher proportion of validation responses and a lower proportion of listening responses compared with previous studies.

Innovation

Parents and siblings of children with chronic disorders face unique challenges that can negatively impact the quality of parent-sibling communication and psychological adjustment in siblings. This study contributes new insight into how parents and siblings communicate in an intervention setting, and how characteristics of the intervention may influence the quality of this communication.
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来源期刊
PEC innovation
PEC innovation Medicine and Dentistry (General)
CiteScore
0.80
自引率
0.00%
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审稿时长
147 days
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