PEC innovation最新文献

{"title":"Development and acceptability testing of a tracheostomy decision support video for parents","authors":"Stephanie K. Kukora ,&nbsp;Kerry Ryan ,&nbsp;Haoyang Yan ,&nbsp;Rachel Clarke ,&nbsp;Cynthia Arslanian-Engoren ,&nbsp;Kenneth Pituch","doi":"10.1016/j.pecinn.2025.100412","DOIUrl":"10.1016/j.pecinn.2025.100412","url":null,"abstract":"<div><h3>Objective</h3><div>To develop a clinical, bedside intervention with peer parent narratives to help parents understand the shared decision-making (SDM) process, their role in the decision, and other parents' considerations in this context.</div></div><div><h3>Patient involvement</h3><div>To ensure that the intervention reflected parents' needs, we identified eight parents who had faced a tracheostomy decision for their child and were willing to talk about their experiences on a video recording. Half of the parents had chosen tracheostomy; some children of parents making either choice had died. We included parents of diverse racial backgrounds whose children had different diagnoses. Parent interviews, along with an explanation of SDM for parents, were edited into a 17-min video guided by iterative feedback from parents and clinicians. Additional parents of children with tracheostomies then viewed the video and shared perceptions about acceptability.</div></div><div><h3>Methods</h3><div>After an iterative process of developing the video in partnership with parents, we piloted the video with 18 parents in 16 online interviews (two were couples) who were not part of video development but had faced a tracheostomy decision for their child within the last three years. Participants were asked about their experiences, viewed the video, and provided verbal feedback and reflection on the acceptability of the video and its anticipated clinical use. Interviews were transcribed and qualitatively analyzed, focusing on feedback.</div></div><div><h3>Results</h3><div>Parents who viewed the video provided generally favorable feedback, describing the video as “helpful,” and appreciating the diversity of the cases represented and the perspectives offered. They felt that it could empower parents to ask questions and voice their opinions to the medical team. Parents noted feeling a connection to the emotions expressed by the parents in the video and felt it would help parents facing these decisions to feel less alone.</div></div><div><h3>Discussion/practical value</h3><div>Video education focusing on parents' perspectives may help support the SDM process for pediatric tracheostomy and complement other strategies to support parent engagement. Similar approaches may be valuable in explaining SDM to patients or families facing other serious decisions.</div></div>","PeriodicalId":74407,"journal":{"name":"PEC innovation","volume":"7 ","pages":"Article 100412"},"PeriodicalIF":0.0,"publicationDate":"2025-06-24","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144534829","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Prospective changes in primary care patients' family communication after skin cancer genetic test offer","authors":"Caroline Salafia ,&nbsp;Smita Banerjee ,&nbsp;Jada G. Hamilton ,&nbsp;Elizabeth Schofield ,&nbsp;Yuelin Li ,&nbsp;David B. Buller ,&nbsp;Keith Hunley ,&nbsp;Andrew L. Sussman ,&nbsp;Dolores D. Guest ,&nbsp;Kimberly A. Kaphingst ,&nbsp;Marianne Berwick ,&nbsp;Jennifer L. Hay","doi":"10.1016/j.pecinn.2025.100409","DOIUrl":"10.1016/j.pecinn.2025.100409","url":null,"abstract":"<div><h3>Objective</h3><div>Given the promise of family communication to prompt cancer risk awareness, we examined how an offer for skin cancer genetic testing may prompt family cancer communication.</div></div><div><h3>Methods</h3><div>Primary care patients (<em>N</em> = 415, 45 % Hispanic) in New Mexico were randomized to a melanocortin-1 receptor (<em>MC1R)</em> genetic test invitation or usual care. We assessed whether family communication (frequency, targets of communication, and topics) differed based on whether participants were randomized to usual care, refused genetic testing, were tested and received either average- or higher-risk feedback.</div></div><div><h3>Results</h3><div>Findings showed no significant differences in frequency of family communication based on intervention exposure. Those who were tested and received higher-risk feedback displayed the highest levels of communication with certain targets, such as fathers. Some communication topics, such as the participant's risk of skin cancer, were discussed more by participants who were tested (both average- and higher-risk feedback) than those in usual care.</div></div><div><h3>Conclusion</h3><div>Findings highlight that an offer for skin cancer genetic testing may prompt aspects of family communication, such as discussion surrounding personal skin cancer risk.</div></div><div><h3>Innovation</h3><div>This study examined various elements of family communication after an offer for skin cancer genetic testing.</div></div>","PeriodicalId":74407,"journal":{"name":"PEC innovation","volume":"7 ","pages":"Article 100409"},"PeriodicalIF":0.0,"publicationDate":"2025-06-07","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144270751","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Engaged curiosity: “Hot spots” for clinical reasoning in complex patient encounters","authors":"Michael Soh ,&nbsp;Dolores Mullikin ,&nbsp;Steven J. Durning ,&nbsp;Jerusalem Merkebu","doi":"10.1016/j.pecinn.2025.100408","DOIUrl":"10.1016/j.pecinn.2025.100408","url":null,"abstract":"<div><h3>Objective</h3><div>This study explores how, if at all, engaged curiosity - a genuine, emotionally engaged interest in learning more about the complexity of another's particular emotional perspective - emerges in the clinical reasoning process and its relationship with contextual factors and clinical reasoning performance.</div></div><div><h3>Methods</h3><div>Think-alouds transcripts from nineteen physicians in internal medicine from three military training facilities were thematically analyzed for instances of engaged curiosity and examined through the lens of contextual factors and clinical reasoning performance.</div></div><div><h3>Results</h3><div>Our findings indicate that engaged curiosity can be likened to placeholders that physicians employ early on to “bookmark” sources of patient concern. These sources, or hot spots, deserve follow up, particularly when cognitive resources are unavailable to “attend” to a deeper understanding of the patient's experience.</div></div><div><h3>Conclusion</h3><div>Engaged curiosity provides a unique lens for better understanding the relationship between empathy and clinical reasoning and warrants further research on its impact on the patient and their care.</div></div><div><h3>Innovation</h3><div>Engaged curiosity could serve as a novel way to train physicians to think and engage more empathically with their patients.</div></div>","PeriodicalId":74407,"journal":{"name":"PEC innovation","volume":"7 ","pages":"Article 100408"},"PeriodicalIF":0.0,"publicationDate":"2025-06-06","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144254654","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"A novel outreach approach for identification of familial hypercholesterolemia: Interview-based formative evaluation to improve healthcare access and quality","authors":"Rachel C. Forcino ,&nbsp;Terry Sturke ,&nbsp;Mary P. McGowan ,&nbsp;Amanda N. Perry ,&nbsp;Shoshana H. Bardach ,&nbsp;Vikrant S. Vaze ,&nbsp;Kerrilynn C. Hennessey","doi":"10.1016/j.pecinn.2025.100407","DOIUrl":"10.1016/j.pecinn.2025.100407","url":null,"abstract":"<div><h3>Background</h3><div>Familial hypercholesterolemia (FH) is a genetic condition which elevates cholesterol levels and increases risk of premature cardiac events. Medical treatment greatly reduces those risks. However, in the United States, FH is markedly underdiagnosed. We aimed to design and evaluate direct outreach and referral to specialty care for patients with an elevated risk of FH identified through application of a machine learning model and expert review of the electronic health record in a rural United States health system.</div></div><div><h3>Methods</h3><div>Two sets of interviews: (1) seeking advice for designing outreach from a convenience sample comprising health professionals and members of the public both with and without FH and (2)) evaluating the outreach with a convenience sample of health professionals and patients who received the outreach. Two researchers conducted each interview. Thematic analysis included investigator triangulation.</div></div><div><h3>Results</h3><div>We conducted 15 pre-outreach interviews and 32 post-outreach interviews. Most members of the public felt the outreach should be initiated by the patient's primary care clinician, while health professionals recommended outreach directly from a lipid specialist after notifying the primary care clinician. Outreach ultimately included primary care clinician notification; a mailed letter from lipid specialists to the patient indicating partnership with primary care; a message sent through the online patient portal; and a telephone call(s) from a lipid specialist to the patient. Phone calls were most impactful in prompting a clinical evaluation for FH. We identified 4 themes: (1) Both patients and clinical team members supported direct-to-patient outreach about FH; (2) Phone calls from lipid specialists to patients were considered high-value; (3) The importance of primary care team member involvement was perceived differently between pre- and post-outreach phases; and (4)) Outreach had a broader impact beyond the individual patients reached, including family screening.</div></div><div><h3>Innovation</h3><div>This study provides key insights into the acceptable design and use of machine learning and electronic health record data for direct-to-patient outreach.</div></div><div><h3>Conclusions</h3><div>Partnership with the target population led to direct-to-patient FH outreach that was acceptable to most recipients. High-touch engagement by lipid specialists included repeat phone calls, which maximized patients' response but are unlikely to be sustained in routine practice.</div></div>","PeriodicalId":74407,"journal":{"name":"PEC innovation","volume":"6 ","pages":"Article 100407"},"PeriodicalIF":0.0,"publicationDate":"2025-06-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144204892","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Beyond motivation: Creating supportive healthcare environments for engaging in therapeutic patient education according to healthcare providers","authors":"Bob C. Mulder ,&nbsp;Hylkje Algra ,&nbsp;Esther Cruijsen ,&nbsp;J. Marianne Geleijnse ,&nbsp;Renate M. Winkels ,&nbsp;Willemieke Kroeze","doi":"10.1016/j.pecinn.2025.100405","DOIUrl":"10.1016/j.pecinn.2025.100405","url":null,"abstract":"<div><h3>Objective</h3><div>This article reports the findings of focus-group discussions with healthcare providers concerning the facilitators and barriers they experience when engaging in therapeutic patient education (TPE).</div></div><div><h3>Methods</h3><div>Five focus-group discussions were held with a total of 21 primary and secondary healthcare providers. Discussions were moderated using a topic list that was co-created with healthcare providers. All discussions were recorded, transcribed verbatim and analysed thematically.</div></div><div><h3>Results</h3><div>Healthcare providers consider TPE important, but it requires long-term, continuous effort in order to be effective. They sometimes doubt its effectiveness and their own efficacy. Moreover, healthcare providers experience a lack of a supportive environment. Overall, their experiences could be captured in four categories of determinants of engaging in TPE: Capabilities, Motivation, Physical Context and Social Context.</div></div><div><h3>Conclusion</h3><div>Therapeutic patient education requires healthcare providers to be capable and motivated. To maintain the continuous effort needed, healthcare providers need to be supported both socially (e.g. by colleagues and management) and physically (e.g. through communication infrastructure).</div></div><div><h3>Innovation</h3><div>In contrast to previous studies focusing on the motivation and capability of healthcare providers to perform TPE, this study contributes to innovation in health communication by identifying social and physical factors that determine whether TPE is delivered continuously under actual or perceived constraints in terms of time and effectiveness.</div></div>","PeriodicalId":74407,"journal":{"name":"PEC innovation","volume":"6 ","pages":"Article 100405"},"PeriodicalIF":0.0,"publicationDate":"2025-05-25","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144169444","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Perceptions of frailty and falls in older adults using an English regional ambulance service: A descriptive phenomenological study","authors":"Karl Charlton ,&nbsp;Tripta Rathour ,&nbsp;Emma Burrow","doi":"10.1016/j.pecinn.2025.100406","DOIUrl":"10.1016/j.pecinn.2025.100406","url":null,"abstract":"<div><h3>Objective</h3><div>Frailty is of increasing importance for healthcare systems as well as the personalised care agenda. Despite the evolving body of research exploring frailty and falls in the ambulance setting, the voices of frail older adults who use ambulance services, are seldom heard. Through first-hand accounts, this study set out to describe the experiences and perceptions of frailty for a cohort of older adults.</div></div><div><h3>Methods</h3><div>A descriptive phenomenological study involving eight participants with frailty who used a regional English National Health Service (NHS) ambulance service following a fall, conducted between July 2022–February 2023.</div></div><div><h3>Results</h3><div>Accounts from older adults highlight different perceptions of frailty and attitudes towards ageing. Frailty and falls were experienced through varying perceptions of identity and self<em>,</em> underpinned by acceptance, or otherwise, of an altered sense of embodiment and a life with limits<em>.</em></div></div><div><h3>Conclusion</h3><div>Older adults generally hold negative perceptions of frailty, falls and ageing, but also challenged the negative terms frequently used to describe frailty, suggesting some frail older adults remain positive and still value life. Paramedics are likely to require further training and support to manage patients with frailty effectively and improve patient experience.</div></div><div><h3>Innovation</h3><div>This study uniquely explores frailty and falls through the stories of older adults using an NHS ambulance service. It highlights that older adults in this setting often differ from the older population in general, have a higher frailty prevalence than patients in other settings and appear to view the future with greater pessimism.</div></div>","PeriodicalId":74407,"journal":{"name":"PEC innovation","volume":"6 ","pages":"Article 100406"},"PeriodicalIF":0.0,"publicationDate":"2025-05-24","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144154369","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Getting back on track: Development of a blended-care intervention for weight recurrence after metabolic bariatric surgery using intervention mapping","authors":"Vera Voorwinde ,&nbsp;Ingrid H.M. Steenhuis ,&nbsp;Ignace M.C. Janssen ,&nbsp;Valerie M. Monpellier ,&nbsp;Maartje M. van Stralen","doi":"10.1016/j.pecinn.2025.100404","DOIUrl":"10.1016/j.pecinn.2025.100404","url":null,"abstract":"<div><h3>Objective</h3><div>To systematically re-develop a blended-care intervention addressing weight recurrence after metabolic bariatric surgery (MBS). Weight recurrence poses a significant longterm challenge for around 20–30 % of MBS patients. The intervention aims to improve weight outcomes and enhance patient well-being. This study describes the novel application of the Intervention Mapping (IM) protocol, integrating scientific evidence and stakeholder input.</div></div><div><h3>Methods</h3><div>The six-step IM protocol guided the development process, ensuring the active involvement of patients and healthcare professionals. A comprehensive needs assessment using quantitative, qualitative, and literature-based approaches informed the creation of a logic model of the problem (Step 1) and a logic model of change (Step 2). Program outcomes and objectives were formulated through collaborative brainstorming and design-thinking sessions, leading to intervention design (Step 3). The intervention was co-produced with patients, implementers, and an app developer (Step 4). Detailed implementation (Step 5) and evaluation (Step 6) plans were subsequently developed.</div></div><div><h3>Results</h3><div>The IM process yielded a blended-care intervention grounded in theoretical frameworks and evidence-based methods. The intervention actively involved the target population and implementers, addressing key determinants of weight recurrence.</div></div><div><h3>Conclusion</h3><div>The IM protocol demonstrated utility in designing a tailored, theory-based intervention post-MBS. The process emphasized the value of integrating stakeholder perspectives and highlighted the feasibility of co-creating an evidence-informed intervention.</div></div><div><h3>Innovation</h3><div>This intervention incorporates newly developed elements in a novel blended-care structure. Future evaluation is necessary to determine its effectiveness in achieving the desired outcomes.</div></div>","PeriodicalId":74407,"journal":{"name":"PEC innovation","volume":"6 ","pages":"Article 100404"},"PeriodicalIF":0.0,"publicationDate":"2025-05-18","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144106301","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Psychometric characteristics of Roter interaction analysis system (RIAS) in the context of health education in a Moroccan school","authors":"Khadija Daoudi,&nbsp;Khaoula Jounaidi,&nbsp;Abdellah Gantare","doi":"10.1016/j.pecinn.2025.100403","DOIUrl":"10.1016/j.pecinn.2025.100403","url":null,"abstract":"<div><h3>Objective</h3><div>The Roter Interaction Analysis System (RIAS) is widely used to assess communication in clinical settings but has not yet been applied in educational contexts. This study explores the psychometric properties of RIAS in Moroccan school health education, assessing its feasibility, reliability, and validity while examining its potential to improve communication strategies between health educators and students.</div></div><div><h3>Methods</h3><div>A cross-sectional study was conducted with 36 Moroccan primary school students. Health education session were recorded and analyzed using RIAS to evaluate communication patterns. Two trained raters independently coded the interactions into eight communication behavior categories. Psychometric analyses, including assessments of feasibility (coding versus session duration), inter-rater reliability (using correlation coefficients), and content validity (based on category usage), were conducted to evaluate RIAS's reliability and validity.</div></div><div><h3>Results</h3><div>RIAS demonstrated feasibility with extended coding times reflecting its comprehensive nature. High inter-rater reliability (ρ = 0.96–1.00, <em>p</em> &lt; 0.01) validated its consistent application. Content validity confirmed adaptability, though challenges with social-emotional utterances and low-frequency categories suggest refinement to align with health education's unique dynamics.</div><div>Conclusion: This pilot study demonstrates the feasibility, reliability, and validity of RIAS in Moroccan school health education, highlighting its potential to enhance educator-student communication and improve health education outcomes in diverse cultural settings.</div></div><div><h3>Innovation</h3><div>This study pioneers the application of RIAS in Moroccan school health education, extending its use beyond clinical contexts. It highlights RIAS's adaptability to diverse, non-Western settings, bridging a gap in communication analysis. Findings provide a foundation for refining RIAS to align with health education and global health promotion strategies.</div></div>","PeriodicalId":74407,"journal":{"name":"PEC innovation","volume":"6 ","pages":"Article 100403"},"PeriodicalIF":0.0,"publicationDate":"2025-05-15","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144138427","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Empathy training via Kalamazoo Consensus in remote and in-person medical communication: A randomized controlled trial","authors":"Giovan Battista Previti ,&nbsp;Carlo Mazzatenta ,&nbsp;Tommaso Bellandi ,&nbsp;Francesco Niccolai ,&nbsp;Dario Nieri ,&nbsp;Valentina Ungaretti ,&nbsp;Irene Cavasini ,&nbsp;Alessandra Mazzoni ,&nbsp;Stefano Maiorano ,&nbsp;Luca Di Paolo ,&nbsp;Veronica D'Elia ,&nbsp;Monica Torre ,&nbsp;Licia Matteucci ,&nbsp;Guido Miccinesi ,&nbsp;Moreno Marcucci ,&nbsp;Michela Maielli ,&nbsp;Sergio Ardis","doi":"10.1016/j.pecinn.2025.100399","DOIUrl":"10.1016/j.pecinn.2025.100399","url":null,"abstract":"<div><h3>Background</h3><div>Empathy is crucial in healthcare, facilitating effective communication and improving patient outcomes.</div></div><div><h3>Objective</h3><div>This study aimed to evaluate the impact of tele-conference training based on the Kalamazoo Consensus Statement (KCS) on the empathy scores of newly hired physicians in a tele-visit simulation course.</div></div><div><h3>Methods</h3><div>From September 2021 to April 2022, we conducted a randomized controlled trial involving 129 medical doctors from 13 hospitals in north-western Tuscany, with an age range of 31 to 42 years. Partecipants were randomly assigned to a trained group (TG) or a control group (CG). Both groups completed the Toronto Empathy Questionnaire (TEQ) and the Balanced Emotional Empathy Scale (BEES) before (T0) and after (T1) the training. The TG underwent a 12-h online communication training course. The CG only completed the questionnaires without further intervention.</div></div><div><h3>Results</h3><div>Total sample <em>included 129 partecipants.</em> Results indicated a significant increase in TEQ scores for the TG (55,8 % of total sample; T0: 65.32; T1: 66.42, <em>p</em> = 0.032) and BEES scores (T0: 122.39; T1: 127.50, <em>p</em> = 0.000). The CG (44,2 %) experienced a decrease in TEQ scores (T0: 65.58; T1: 63.75, p = 0.000) but stable BEES scores (T0: 122.16; T1: 120.67, <em>p</em> = 0.317). Female participants consistently exhibited higher empathy scores than males, with training significantly enhancing scores for both genders.</div></div><div><h3>Conclusions</h3><div>The tele-conference training effectively improved empathy scores among newly hired physicians. We recommend the implementation of KCS-based training to enhance empathy and communication skills in medical practice.</div></div><div><h3>Innovation</h3><div>The pandemic has accelerated the use of tele-education and telemedicine, though opinions on their effectiveness remain divided. However, studies show that empathy can be enhanced through interactive online training, which offers significant innovations for both healthcare professionals' learning and patient care.</div></div>","PeriodicalId":74407,"journal":{"name":"PEC innovation","volume":"6 ","pages":"Article 100399"},"PeriodicalIF":0.0,"publicationDate":"2025-05-15","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144084189","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Acceptability of the ePOWER intervention: Managing previvors' cancer-related uncertainty and supporting decision making","authors":"Marleah Dean ,&nbsp;Bethany Jowers ,&nbsp;Claire Conley ,&nbsp;Erica Camacho ,&nbsp;Whitney Espinel ,&nbsp;Kimberly A. Kaphingst","doi":"10.1016/j.pecinn.2025.100402","DOIUrl":"10.1016/j.pecinn.2025.100402","url":null,"abstract":"<div><h3>Objective</h3><div>Previvors—unaffected individuals who have increased risk of cancer due to a pathogenic or likely pathogenic variant in a gene—experience high levels of uncertainty, which is associated with negative outcomes. The ePOWER (empowering Preventive Options for Women Experiencing Risk) intervention is designed to help <em>BRCA1/2</em> previvors manage their cancer-related uncertainty and make informed health decisions. In this study, we assessed the acceptability of ePOWER using a multiple methods approach.</div></div><div><h3>Methods</h3><div>Previvors (<em>N</em> = 24) completed individual, semi-structured interviews. Previvors first completed the Treatment Acceptability and Preference Scale (TAPS). Additionally, using a Learner Verification &amp; Revision (LV&amp;R) interviewing approach, we also elicited feedback on whether ePOWER was understandable, salient, and satisfactory to previvors. Acceptability was assessed by quantitative data (TAPS scores) and qualitative data (interviews). In analyzing the interview data and integrating the findings, deductive coding was utilized using LV&amp;R categories and inductive thematic analysis was utilized to capture additional nuances from participants' evaluation.</div></div><div><h3>Results</h3><div>Adequate acceptability was demonstrated by TAPS scores. 88 % of participants exceeded the a priori acceptability threshold (TAPS ≥3). Deductive coding using LV&amp;R categories also confirmed ePOWER was visually appealing, understandable, persuasive, cultural appropriate, and fostered self-efficacy. Inductive thematic analysis expanded on the LV&amp;R categories and identified two additional themes: (1) relatability and emotional support and (2) useful resource.</div></div><div><h3>Conclusion</h3><div>ePOWER is an acceptable intervention to help previvors manage cancer-related uncertainty and support decision making.</div></div><div><h3>Innovation</h3><div>The ePOWER intervention can be shared during healthcare appointments and then utilized continuously by previvors to manage uncertainty and facilitate decisions.</div></div>","PeriodicalId":74407,"journal":{"name":"PEC innovation","volume":"6 ","pages":"Article 100402"},"PeriodicalIF":0.0,"publicationDate":"2025-05-10","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143943104","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}