PEC innovationPub Date : 2025-08-29DOI: 10.1016/j.pecinn.2025.100429
Sander J.C. Tabernée Heijtmeijer , Noa Nicolai , Nard G. Janssen , Joël Kortes , Rick J.J. Pinkster , Behrus Puladi , Ashkan Rashad , O. Vladu , Peter A.J. Pijpker , Max J.H. Witjes , Sarina E.C. Pichardo , Joep Kraeima
{"title":"Measuring patient satisfaction with education using extended reality in orthognathic surgery: Development, validation, and reliability of the 3D orthognathic surgery questionnaire (3DOS-Q)","authors":"Sander J.C. Tabernée Heijtmeijer , Noa Nicolai , Nard G. Janssen , Joël Kortes , Rick J.J. Pinkster , Behrus Puladi , Ashkan Rashad , O. Vladu , Peter A.J. Pijpker , Max J.H. Witjes , Sarina E.C. Pichardo , Joep Kraeima","doi":"10.1016/j.pecinn.2025.100429","DOIUrl":"10.1016/j.pecinn.2025.100429","url":null,"abstract":"<div><h3>Objectives</h3><div>The effectiveness of extended reality technologies in improving patient understanding and satisfaction, particularly in orthognathic surgery, remains underexplored. No existing questionnaire specifically assesses patient satisfaction with different 3D model display techniques in this context. Therefore, this research aimed at developing and validating a questionnaire to assess patient satisfaction with preoperative education using 3D models for orthognathic surgery.</div></div><div><h3>Methods</h3><div>Building on a previous questionnaire for trauma patients, an initial questionnaire was developed and adapted for orthognathic surgery patients based on literature and pretesting with patients and specialists (Phase I). The preliminary questionnaire underwent a field psychometric performance test in a randomized controlled trial at three centers specialized in orthognathic surgery (Phase II).</div></div><div><h3>Results</h3><div>Nine patients and six specialists were included (Phase I), which resulted to a preliminary questionnaire consisting of twelve items. A total of 65 patients completed the preliminary questionnaire (Phase II). The final eleven items demonstrated strong psychometric properties, measuring a single distinct factor 4.99, Cronbach's alpha value of 0.87, for the German (α = 0.849) and Dutch (α = 0.836) versions. A Feldt test revealed no significant difference in internal consistency between the two languages (<em>p</em> = 0.401). The items together statistically significantly predicted patient satisfaction (<em>p</em> < 0.001).</div></div><div><h3>Conclusion</h3><div>The final questionnaire has a good validity, total explained variance at 45.5 %.</div></div><div><h3>Innovation</h3><div>The 3DOS-Q demonstrates significant potential as a tool for evaluating patient satisfaction with 3D models, suitable for extended reality technologies, improving patient care, and exploring satisfaction differences across patient groups and display techniques.</div></div>","PeriodicalId":74407,"journal":{"name":"PEC innovation","volume":"7 ","pages":"Article 100429"},"PeriodicalIF":0.0,"publicationDate":"2025-08-29","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144987982","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"Hidden misinformation in YouTube short videos on syphilis: A mixed-methods study","authors":"Emi Furukawa , Tsuyoshi Okuhara , Shinya Ito , Ritsuko Shirabe , Hiroko Okada , Takahiro Kiuchi","doi":"10.1016/j.pecinn.2025.100428","DOIUrl":"10.1016/j.pecinn.2025.100428","url":null,"abstract":"<div><h3>Objective</h3><div>YouTube short videos constitute a key informational resource for individuals at high risk of sexually transmitted infections (STIs). We conducted a quality assessment of short videos about syphilis intended for the general public in Japan.</div></div><div><h3>Methods</h3><div>In October 2024, a comprehensive sample of YouTube short videos on syphilis was retrieved using keywords frequently used to search for information on the disease. mDISCERN criteria were employed to assess the reliability of the information in the 72 videos selected for analysis. Reflexive thematic analysis was used to qualitatively examine misinformation embedded within the videos.</div></div><div><h3>Results</h3><div>The mean mDISCERN score of the videos was 2.0 (SD 0.9) and 80 % of the videos did not meet the reliability criteria. One in five videos potentially hindered audience engagement in health behaviors by inducing fear of the disease, reinforcing stigma and insensitivity toward high-risk individuals, and punitively portraying those infected. Some of these messages originated from healthcare professionals, indicating their potential role in reinforcing such biases.</div></div><div><h3>Conclusion</h3><div>YouTube short videos can support syphilis awareness and prevention, but difficulties with information reliability and lack of quality are common. Stigmatizing content may hinder health-seeking behaviors. Enhancing the quality and sensitivity of messages, particularly those from healthcare professionals, is essential to maximize their public health impact.</div></div><div><h3>Innovation</h3><div>This study is among the first to analyze YouTube short videos about STIs, combining qualitative and quantitative methods to assess misinformation.</div></div>","PeriodicalId":74407,"journal":{"name":"PEC innovation","volume":"7 ","pages":"Article 100428"},"PeriodicalIF":0.0,"publicationDate":"2025-08-29","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"145018845","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
PEC innovationPub Date : 2025-08-27DOI: 10.1016/j.pecinn.2025.100427
Allison Squires , Lauren Gerchow , Chenjuan Ma , Eva Liang , Sarah Miner
{"title":"Testing a novel theoretical framework to study language services implementation in health care","authors":"Allison Squires , Lauren Gerchow , Chenjuan Ma , Eva Liang , Sarah Miner","doi":"10.1016/j.pecinn.2025.100427","DOIUrl":"10.1016/j.pecinn.2025.100427","url":null,"abstract":"<div><div>Language services are used to bridge language barriers during healthcare encounters, with the goal of reducing health outcome inequities; however, the implementation of language services in healthcare is understudied. Language Planning Theory has the potential to offer a theoretical framework for studying language services implementation challenges and successes in healthcare. The purpose of this study was to test the three-level view model (3LVM) of Language Planning Theory for studying the implementation of language access services in healthcare. A qualitative secondary analysis of data generated from a study of patients with limited English proficiency receiving home healthcare services and clinicians working for the agency structured this study. Data were analyzed according to the 3LVM using directed content analysis. Results from the analysis provided insights into the factors that generate the need for language services and those that facilitate or hinder their implementation, with the theoretical framework offering clear distinctions. Analyses generated an adapted, healthcare-specific version of the model that includes clinician/staff and patient functions, which proved useful for structuring research about language access services implementation in health care.</div></div>","PeriodicalId":74407,"journal":{"name":"PEC innovation","volume":"7 ","pages":"Article 100427"},"PeriodicalIF":0.0,"publicationDate":"2025-08-27","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144921301","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
PEC innovationPub Date : 2025-08-26DOI: 10.1016/j.pecinn.2025.100426
Hanna A.A. Röwer , Aleksandrina Skvortsova , Mohamad M. Saab , Irene Hartigan , Claudia Bausewein , Sandra Martins Pereira , Pablo Hernández-Marrero , Jan Hrdlička , Kateřina Rusinová , Martin Loučka , Lucie Hrdličková , Martin Zielina , Cathy Payne , Liesbeth M. Van Vliet , Malte Klemmt , Kambiz Afshar , Stephanie Stiel
{"title":"Innovations in communication training for medical and nursing students: Virtual reality communication tool for application and evaluation with key stakeholders and students (VR-TALKS) – a study protocol","authors":"Hanna A.A. Röwer , Aleksandrina Skvortsova , Mohamad M. Saab , Irene Hartigan , Claudia Bausewein , Sandra Martins Pereira , Pablo Hernández-Marrero , Jan Hrdlička , Kateřina Rusinová , Martin Loučka , Lucie Hrdličková , Martin Zielina , Cathy Payne , Liesbeth M. Van Vliet , Malte Klemmt , Kambiz Afshar , Stephanie Stiel","doi":"10.1016/j.pecinn.2025.100426","DOIUrl":"10.1016/j.pecinn.2025.100426","url":null,"abstract":"<div><h3>Background</h3><div>In healthcare education, virtual reality (VR), simulating real-world situations, is emerging as a tool to improve communication skills, particularly in sensitive scenarios involving patients and caregivers. While promising, VR-based education also poses challenges such as avatar realism, cognitive load, and the need for pedagogical grounding.</div></div><div><h3>Objective</h3><div>This protocol paper presents the VR-TALKS project, which aims to develop, apply, and evaluate VR scenarios designed to teach healthcare students communication skills in serious illness scenarios. Barriers and facilitators to integrating VR into healthcare teaching modules, along with the usability, feasibility, and educational impact of the VR tool, will be assessed across five European countries, incorporating insights from both students and educators.</div></div><div><h3>Methods</h3><div>Phase 1 involves screening current communication courses at six partner institutions to identify opportunities for integrating VR. Phase 2 assesses the barriers and facilitators faced by approximately <em>n</em> = 70 educators in incorporating VR into communication training. Phase 3 focuses on developing VR scenarios based on the SPIKES and NURSE techniques. Phase 4 evaluates the usability and feasibility of the scenarios with <em>n</em> = 200 students and <em>n</em> = 30 educators. Feedback from this phase will inform further improvement of the tool.</div></div><div><h3>Expected results</h3><div>The project will provide valuable insights into the barriers and facilitators of VR integration, develop two VR scenarios in multiple languages, and collect data on feasibility, usability, and user satisfaction. Additionally, it will offer recommendations for effectively incorporating VR into university curricula. Potential limitations of immersive VR, such as motion sickness, will be considered during evaluation.</div></div><div><h3>Conclusions</h3><div>The project aims to enhance teaching methods for serious illness communication across Europe. The knowledge gained will be disseminated publicly through peer-reviewed publications and the project website, with plans to offer the VR training to other universities.</div></div><div><h3>Innovation</h3><div>By addressing the limitations of conventional training, VR-TALKS offers healthcare professionals the opportunity to develop crucial communication skills in a repeatable, standardized, and time-flexible environment.</div></div><div><h3>Funding</h3><div>ERASMUS+ Program through the Centre for International Cooperation in Education in the Czech Republic, “Dům zahraniční spolupráce” (DZS), spanning from 01.09.2023 to 31.08.2025.</div></div>","PeriodicalId":74407,"journal":{"name":"PEC innovation","volume":"7 ","pages":"Article 100426"},"PeriodicalIF":0.0,"publicationDate":"2025-08-26","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144908186","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"Online training for Japanese healthcare professionals in the development and use of patient decision aids to facilitate shared decision-making: An acceptability study","authors":"Wakako Osaka , Yumi Aoki , Yuki Yonekura , Hitomi Danya , Kazuhiro Nakayama","doi":"10.1016/j.pecinn.2025.100425","DOIUrl":"10.1016/j.pecinn.2025.100425","url":null,"abstract":"<div><h3>Objectives</h3><div>To 1) design an online training program for Japanese healthcare professionals (HCPs) on the development and use of patient decision aids (PtDAs); 2) assess the acceptability of the program, participants' satisfaction with it, and their intention to develop and implement PtDAs, and 3) obtain suggestions from participants to improve the program.</div></div><div><h3>Methods</h3><div>A user-centered approach was used to design an online training program for Japanese HCPs on the development and use of PtDAs. HCPs (physicians, nurses, midwives, psychologists, etc.) were recruited to evaluate the training. A total of 40 HCPs completed questionnaires regarding the acceptability of the program, their satisfaction with it, intentions to develop and use PtDAs, and suggestions for improving the program.</div></div><div><h3>Results</h3><div>Acceptability ratings for the program were high, with over 90 % of participants finding it useful and easy to understand. Thirty-nine of the 40 participants watched all the videos at least once. Ninety percent of the sample were satisfied with the program, and 95 % (<em>n</em> = 38) intended to use PtDAs in the future, although only 65 % (<em>n</em> = 26) planned to develop such tools.</div></div><div><h3>Conclusion</h3><div>Our online training program for Japanese HCPs on the development and use of PtDAs was acceptable and useful, and most professionals indicated their intentions to use such tools.</div></div><div><h3>Innovation</h3><div>There is a lack of resources on PtDAs in Japan. Our online training program is an innovative resource for HCPs that fills an important gap in facilitating shared decision-making.</div></div>","PeriodicalId":74407,"journal":{"name":"PEC innovation","volume":"7 ","pages":"Article 100425"},"PeriodicalIF":0.0,"publicationDate":"2025-08-25","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144931786","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
PEC innovationPub Date : 2025-08-22DOI: 10.1016/j.pecinn.2025.100423
M.A. van Helvoort , K.J.A. van Dijsseldonk , B. Post
{"title":"When physicians become patients: A podcast series for learning from patient experiences","authors":"M.A. van Helvoort , K.J.A. van Dijsseldonk , B. Post","doi":"10.1016/j.pecinn.2025.100423","DOIUrl":"10.1016/j.pecinn.2025.100423","url":null,"abstract":"","PeriodicalId":74407,"journal":{"name":"PEC innovation","volume":"7 ","pages":"Article 100423"},"PeriodicalIF":0.0,"publicationDate":"2025-08-22","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144908185","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
PEC innovationPub Date : 2025-08-14DOI: 10.1016/j.pecinn.2025.100422
Zeba Khan , Piper Scott-Fiddler , Sarah Munro
{"title":"How can community-based organizations be involved in the contraception care pathway for newcomer youth? Results of knowledge translation workshops","authors":"Zeba Khan , Piper Scott-Fiddler , Sarah Munro","doi":"10.1016/j.pecinn.2025.100422","DOIUrl":"10.1016/j.pecinn.2025.100422","url":null,"abstract":"<div><h3>Objective</h3><div>Despite being a basic right of all individuals, many newcomer youth in Canada face challenges in accessing sexual and reproductive health (SRH), including contraception care. Settlement service providers are a trusted source for newcomers in the community, and we explored their role in supporting equitable access to SRH.</div></div><div><h3>Methods</h3><div>We conducted an integrated knowledge translation (IKT) intervention involving two workshops and the development of an infographic to explore the barriers and opportunities for settlement service organizations to participate in the SRH care pathway for newcomer youth.</div></div><div><h3>Results</h3><div>SRH and contraception topics arise when youth access other services, such as violence prevention and mental health programming. Lack of training and resources limits their ability to support youth. Workshop participants expressed interest in training and resources and identified opportunities to strengthen the referral pathways to support youth's access to SRH.</div></div><div><h3>Conclusion</h3><div>Providing resources and training can bolster settlement service providers' awareness of newcomer youth's SRH needs and improve their capacity to support them with information.</div></div><div><h3>Innovation</h3><div>Our work identified settlement service providers as important in strengthening the SRH care pathway for newcomer youth. We demonstrated the need and opportunity to reach newcomer youth with SRH information by providing training and resources to settlement service providers.</div></div>","PeriodicalId":74407,"journal":{"name":"PEC innovation","volume":"7 ","pages":"Article 100422"},"PeriodicalIF":0.0,"publicationDate":"2025-08-14","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144890932","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
PEC innovationPub Date : 2025-08-13DOI: 10.1016/j.pecinn.2025.100421
Jeffrey A. Johnson , Ademola Joshua Itiola , Shakib Rahman , Christopher Smith , Allison Soprovich , Lisa A. Wozniak , Deborah A. Marshall
{"title":"Usability testing of an individualized decision aid for total knee arthroplasty","authors":"Jeffrey A. Johnson , Ademola Joshua Itiola , Shakib Rahman , Christopher Smith , Allison Soprovich , Lisa A. Wozniak , Deborah A. Marshall","doi":"10.1016/j.pecinn.2025.100421","DOIUrl":"10.1016/j.pecinn.2025.100421","url":null,"abstract":"<div><h3>Objectives</h3><div>Osteoarthritis (OA) is a leading cause of total knee arthroplasty (TKA), affecting over 15 % of Canadians. With an aging population and suboptimal use of non-surgical options, TKA rates and wait times are rising. Although TKA is effective, 30 % of patients are dissatisfied due to unmet expectations, suggesting some surgeries may be inappropriate. Patient decision aids can set realistic expectations, improve decision quality, and enhance satisfaction. We developed an <em>individualized</em> online patient decision aid allowing patients to compare treatment outcomes based on similar characteristics (age, sex and body mass index) and evaluated its usability before clinical implementation.</div></div><div><h3>Methods</h3><div>Participants were recruited from a high-volume urban hip and knee clinic. Eligible adults diagnosed with knee OA completed the decision aid online and subsequently filled out demographics and survey forms, including the Preparation for Decision Making Scale (PDMS), System Usability Scale (SUS), and Acceptability Scale. Data were analyzed using descriptive statistics and content analysis of open-ended responses.</div></div><div><h3>Results</h3><div>There were 20 participants (mean age 68 years, 65 % female). The average PDMS score was 66.4, indicating above-average preparedness for decision-making. The SUS score averaged 63.4, suggesting marginal usability. Females and participants under 70 years reported higher PDMS and SUS scores. Most participants rated the information presentation as “good” or “excellent,” with 75 % finding the decision aid's length appropriate and information balanced. Feedback highlighted the need to simplify content, reduce variables, and offer the aid earlier in treatment.</div></div><div><h3>Conclusions</h3><div>The decision aid demonstrated reasonable usability, acceptability, and usefulness for routine practice. Future research should explore its impact on long-term patient outcomes and satisfaction, including among non-surgical populations.</div></div><div><h3>Practice implications</h3><div>Incorporating this decision aid into routine practice can help patients set realistic expectations and make informed decisions, reducing dissatisfaction. Offering it earlier in the patient journey may enhance its impact, especially for non-surgical options.</div></div>","PeriodicalId":74407,"journal":{"name":"PEC innovation","volume":"7 ","pages":"Article 100421"},"PeriodicalIF":0.0,"publicationDate":"2025-08-13","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144864589","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
PEC innovationPub Date : 2025-07-09DOI: 10.1016/j.pecinn.2025.100420
Rebecca K. Rudel , Nicole D. Kaufmann , Shana A.B. Burrowes , Cheryl Harding , Cara Solomon , Benjamin P. Linas , Mari-Lynn Drainoni , Katherine Gergen Barnett
{"title":"Harnessing storytelling with medical students and community members to build curiosity and trust: A mixed methods evaluation of a pilot intervention","authors":"Rebecca K. Rudel , Nicole D. Kaufmann , Shana A.B. Burrowes , Cheryl Harding , Cara Solomon , Benjamin P. Linas , Mari-Lynn Drainoni , Katherine Gergen Barnett","doi":"10.1016/j.pecinn.2025.100420","DOIUrl":"10.1016/j.pecinn.2025.100420","url":null,"abstract":"<div><h3>Background</h3><div>Mistrust of medical providers disproportionately affects individuals from racialized communities. Mistrust of providers negatively influences willingness to seek care, which exacerbates health disparities. Patient-centered communication can mitigate this mistrust.</div></div><div><h3>Objective</h3><div>To assess the impact of a three-hour pilot workshop entitled <em>Storytelling to Build Medical Trust</em>, which brings medical students and Black, Indigenous and other People of Color (BIPOC) community members together to practice the skills underlying patient-centered communication, on medical student patient-centered communication self-efficacy and community member trust.</div></div><div><h3>Methods</h3><div>Medical students completed the Self-Efficacy in Patient-Centeredness Questionnaire (SEPCQ-27) before, after, and one-month post-participation in the workshop, while community members completed two sub-scales of the Collaboration Trust Scale at the same time points. Community members also participated in focus group discussions approximately one week after workshop completion. Focus group transcripts were analyzed using the Social Cognitive Theory.</div></div><div><h3>Results</h3><div>Median medical student SEPCQ-27 score increased 18 % pre to post-workshop (<em>p</em> < 0.001). Similarly, median scores of the Collaboration Trust Survey sub-scales “Trust in Communication” and “Trust in Partner Investment and Community Well-Being” increased 23.3 % (<em>p</em> = 0.025), and 18.75 % (<em>p</em> = 0.013), respectively. Analysis of focus group discussions identified five themes: 1) The workshop cultivated an open and comfortable environment; 2) Community members desire additional information and direction prior to the program; 3) Training medical students may have a downstream impact, but there is a pressing need to train current providers; 4) The workshop articulates opportunities for community members to assert their strength and empowers them to pursue them; and 5) Dismantling medical mistrust requires ongoing efforts.</div></div><div><h3>Conclusion</h3><div>The Storytelling workshop may build trust between patients from historically marginalized communities and medical practitioners.</div></div><div><h3>Innovation</h3><div>This is the first evaluation of a trust-building intervention that brings both medical providers and potential patients together in one room.</div></div>","PeriodicalId":74407,"journal":{"name":"PEC innovation","volume":"7 ","pages":"Article 100420"},"PeriodicalIF":0.0,"publicationDate":"2025-07-09","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144614554","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
PEC innovationPub Date : 2025-07-08DOI: 10.1016/j.pecinn.2025.100419
Caitlin M. Prentice , Anna Aanesen , Amalie Kirkedelen Syverstad , Torun M. Vatne , Krister W. Fjermestad
{"title":"Communication quality between parents and siblings of children with chronic disorders","authors":"Caitlin M. Prentice , Anna Aanesen , Amalie Kirkedelen Syverstad , Torun M. Vatne , Krister W. Fjermestad","doi":"10.1016/j.pecinn.2025.100419","DOIUrl":"10.1016/j.pecinn.2025.100419","url":null,"abstract":"<div><h3>Objective</h3><div>This study examines parent-sibling communication during a manual-based group intervention (SIBS) that aims to improve communication quality and well-being for siblings of children with a chronic disorder diagnosis.</div></div><div><h3>Methods</h3><div>Audio recordings and transcripts of 20 parent-sibling conversations were analyzed using the manual-based tool Verona Coding Definition of Emotional Sequences (VR-CoDES). We measured siblings' negative expressions and parental responses, focusing on how parents applied the SIBS target behaviours of listening, exploring and validating responses.</div></div><div><h3>Results</h3><div>Siblings raised topics such as heritability of the chronic disorder, differential treatment, and instances of violence and temper tantrums. Siblings' negative expressions were 53 % cues (implicit expressions) and 47 % concerns (explicit expressions). Parents provided space in 74 % of the responses to cues and concerns, meaning they gave space for further disclosure. Within these responses, parents applied the SIBS target behaviours, including exploration (59 %), validation (33 %), and listening (8 %).</div></div><div><h3>Conclusion</h3><div>Parents mainly provided space and used a warm tone when responding to siblings in the SIBS sessions. Responses included a higher proportion of validation responses and a lower proportion of listening responses compared with previous studies.</div></div><div><h3>Innovation</h3><div>Parents and siblings of children with chronic disorders face unique challenges that can negatively impact the quality of parent-sibling communication and psychological adjustment in siblings. This study contributes new insight into how parents and siblings communicate in an intervention setting, and how characteristics of the intervention may influence the quality of this communication.</div></div>","PeriodicalId":74407,"journal":{"name":"PEC innovation","volume":"7 ","pages":"Article 100419"},"PeriodicalIF":0.0,"publicationDate":"2025-07-08","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144655730","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}