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“Having providers who are trained and have empathy is life-saving”: Improving primary care communication through thematic analysis with ChatGPT and human expertise
PEC innovation Pub Date : 2024-12-28 DOI: 10.1016/j.pecinn.2024.100371
Michelle A. Stage , Mackenzie M. Creamer , Mollie A. Ruben
{"title":"“Having providers who are trained and have empathy is life-saving”: Improving primary care communication through thematic analysis with ChatGPT and human expertise","authors":"Michelle A. Stage ,&nbsp;Mackenzie M. Creamer ,&nbsp;Mollie A. Ruben","doi":"10.1016/j.pecinn.2024.100371","DOIUrl":"10.1016/j.pecinn.2024.100371","url":null,"abstract":"<div><div>In the rapidly evolving field of healthcare research, Artificial Intelligence (AI) and conversational models like ChatGPT (Conversational Generative Pre-trained Transformer) offer promising tools for data analysis. The aim of this study was to: 1) apply ChatGPT methodology alongside human coding to analyze qualitative health services feedback, and 2) examine healthcare experiences among lesbian, gay, bisexual, transgender, and queer (LGBTQ+) patients (<em>N</em> = 41) to inform future intervention. The hybrid approach facilitated the identification of themes related to affirming care practices, provider education, communicative challenges and successes, and environmental cues. While ChatGPT accelerated the coding process, human oversight remained crucial for ensuring data integrity and context accuracy. This hybrid method promises significant improvements in analyzing patient feedback, providing actionable insights that could enhance patient-provider interactions and care for diverse populations.</div><div>Innovation: This study is the first to combine ChatGPT with human coding for rapid thematic analysis of LGBTQ+ patient primary care experiences.</div></div>","PeriodicalId":74407,"journal":{"name":"PEC innovation","volume":"6 ","pages":"Article 100371"},"PeriodicalIF":0.0,"publicationDate":"2024-12-28","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11758403/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143048962","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Training healthcare workers and untrained interpreters in remote collaboration amidst COVID-19
PEC innovation Pub Date : 2024-12-26 DOI: 10.1016/j.pecinn.2024.100369
Yvan Leanza , Noelia Burdeus-Domingo , Kossigan Kokou-Kpolou , François René De Cotret
{"title":"Training healthcare workers and untrained interpreters in remote collaboration amidst COVID-19","authors":"Yvan Leanza ,&nbsp;Noelia Burdeus-Domingo ,&nbsp;Kossigan Kokou-Kpolou ,&nbsp;François René De Cotret","doi":"10.1016/j.pecinn.2024.100369","DOIUrl":"10.1016/j.pecinn.2024.100369","url":null,"abstract":"<div><h3>Objective</h3><div>In the context of the public health emergency response to the COVID-19 pandemic in Quebec in 2020, remote public service interpreting has become, within a few days, an essential practice for maintaining services to migrants and allophone refugees, a particularly vulnerable population. This study aimed to measure the impact of two training courses on remote collaboration for mediated consultations developed for healthcare workers and untrained interpreters.</div></div><div><h3>Methods</h3><div>A total of 79 healthcare workers and 65 untrained interpreters from the province of Quebec were recruited. They completed the trainings, offered as webinars, and answered the two scales (knowledge and self-efficacy) of the <em>Questionnaire de connaissances sur l'interprétation de service publique à distance</em> [Remote Public Service Interpreting Knowledge Questionnaire]. The study employed paired <em>t</em>-tests to assess the effectiveness of both webinars.</div></div><div><h3>Results</h3><div>Findings reveal a positive impact immediately after completion and at a three-month follow-up. However, there was no significant enhancement in interpreters' self-efficacy over the medium term.</div></div><div><h3>Conclusion</h3><div>Given their modality (remote) and duration (30 min for healthcare workers and three hours for interpreters), the training courses are both effective and practical to implement.</div></div><div><h3>Innovation</h3><div>This study innovatively promotes interprofessional collaboration in public service interpreting and explores online training's potential to enhance both individual and collective efficacy in the field.</div></div>","PeriodicalId":74407,"journal":{"name":"PEC innovation","volume":"6 ","pages":"Article 100369"},"PeriodicalIF":0.0,"publicationDate":"2024-12-26","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11750570/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143025863","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Safe sleep crib clinics: Promoting risk reduction strategies for sudden unexpected infant death
PEC innovation Pub Date : 2024-12-25 DOI: 10.1016/j.pecinn.2024.100370
Carolyn R. Ahlers-Schmidt , Christy Schunn , Ashley M. Hervey , Maria Torres
{"title":"Safe sleep crib clinics: Promoting risk reduction strategies for sudden unexpected infant death","authors":"Carolyn R. Ahlers-Schmidt ,&nbsp;Christy Schunn ,&nbsp;Ashley M. Hervey ,&nbsp;Maria Torres","doi":"10.1016/j.pecinn.2024.100370","DOIUrl":"10.1016/j.pecinn.2024.100370","url":null,"abstract":"<div><h3>Objectives</h3><div>Safe Sleep Community Baby Showers (CBS) provide group education to reduce risk factors of sudden unexpected infant death (SUID). Based on CBS success, Safe Sleep Crib Clinics were developed to provide individual education. This study assessed Crib Clinic outcomes and differences in Crib Clinics compared to CBSs.</div></div><div><h3>Methods</h3><div>Certified Safe Sleep Instructors facilitated CBSs and/or Crib Clinics in their communities and collected participant data related to safe sleep, tobacco avoidance and breastfeeding. Crib Clinic data was compared pre- to post-test; post-test results were compared between Crib Clinics and CBSs.</div></div><div><h3>Results</h3><div>Crib Clinic attendees exhibited significant increases in intention to have infant follow safe sleep recommendations, avoid secondhand smoke and breastfeed (all <em>p</em> &lt; 0.001). Significant differences between Crib Clinic and CBS participants related to marital status, language, tobacco, education and insurance (all <em>p</em> &lt; 0.01). CBS and Crib Clinic participants differed on items related to sleep environment, breastfeeding and tobacco (all <em>p</em> = 0.05).</div></div><div><h3>Conclusions</h3><div>Overall Crib Clinics appear to be effective in increasing knowledge, intentions and confidence related to safe sleep, tobacco avoidance and breastfeeding. Crib Clinics may offer flexibility (e.g., time, format) that increases accessibility to safe sleep education for families.</div></div><div><h3>Innovation</h3><div>Results suggest the ability to shift education delivery method based on group size was important in both rural and urban settings.</div></div>","PeriodicalId":74407,"journal":{"name":"PEC innovation","volume":"6 ","pages":"Article 100370"},"PeriodicalIF":0.0,"publicationDate":"2024-12-25","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11750555/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143025858","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Leveraging human centered design to enhance clinician communication during pregnancy care: Overcoming language barriers with Spanish-speaking patients
PEC innovation Pub Date : 2024-12-25 DOI: 10.1016/j.pecinn.2024.100366
Rose L. Molina , Kasey Bellegarde , Meghan Long , Maria Bazan , Rachel Moyal-Smith , Ami Karlage , Karen Schoenherr , Lauren Spigel , Amanda DiMeo , Yessamin Pazos Herencia , Saugata Chakraborty , Jeanne-Marie Guise , Asaf Bitton
{"title":"Leveraging human centered design to enhance clinician communication during pregnancy care: Overcoming language barriers with Spanish-speaking patients","authors":"Rose L. Molina ,&nbsp;Kasey Bellegarde ,&nbsp;Meghan Long ,&nbsp;Maria Bazan ,&nbsp;Rachel Moyal-Smith ,&nbsp;Ami Karlage ,&nbsp;Karen Schoenherr ,&nbsp;Lauren Spigel ,&nbsp;Amanda DiMeo ,&nbsp;Yessamin Pazos Herencia ,&nbsp;Saugata Chakraborty ,&nbsp;Jeanne-Marie Guise ,&nbsp;Asaf Bitton","doi":"10.1016/j.pecinn.2024.100366","DOIUrl":"10.1016/j.pecinn.2024.100366","url":null,"abstract":"<div><h3>Background</h3><div>Engaging patients in quality improvement and innovation projects is increasingly important, yet challenges persist with involving patients who speak languages other than English. This article presents design activities our team used to engage Spanish-speaking patients and cultural brokers.</div></div><div><h3>Objective</h3><div>To develop a clinician communication tool to enhance patient trust in pregnancy care clinicians, especially among minoritized populations who face language and cultural barriers, using human-centered design (HCD).</div></div><div><h3>Patient involvement and innovation</h3><div>We centered end-user experiences, including clinicians, Spanish-speaking patients, and Spanish-speaking cultural brokers, in our design process through multiple feedback sessions and modalities.</div></div><div><h3>Methods</h3><div>We used a HCD process to understand the problem, co-design a tool, and prepare for testing of a clinician tool. Design activities included a critical literature review, user interviews, design principles, solution sketching, rapid cycle feedback with subject matter experts, and field experience with pregnancy clinicians.</div></div><div><h3>Results</h3><div>We innovated on a widely used clinical communication tool, the Four Habits Model, and developed the Five Habits for Pregnancy Care to support pregnancy care clinicians in building trust by bridging cultural and language differences. We added an equity-focused habit “Pause and Reflect” to bookend the Four Habits. We refined the tool to meet different needs across pregnancy care visits based on feedback from 7 clinicians.</div></div><div><h3>Discussion</h3><div>We applied equity principles in a HCD process to understand a problem, co-design a tool, and prepare for testing by engaging with patients and cultural brokers in Spanish. Balancing the differing approaches for designers and researchers yielded important insights for enhancing equitable processes and outcomes in healthcare improvement.</div></div><div><h3>Practical value</h3><div>Communication tools designed with and for minoritized populations are critical for improving trust in all patient-clinician dyads during pregnancy care.</div></div>","PeriodicalId":74407,"journal":{"name":"PEC innovation","volume":"6 ","pages":"Article 100366"},"PeriodicalIF":0.0,"publicationDate":"2024-12-25","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11750560/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143025852","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Assessing the language availability, readability, suitability and comprehensibility of heat-health messaging content on health authority webpages and online resources in Canada
PEC innovation Pub Date : 2024-12-24 DOI: 10.1016/j.pecinn.2024.100368
Emily J. Tetzlaff , Kristina-Marie T. Janetos , Katie E. Wagar , Farah Mourad , Melissa Gorman , Victor Gallant , Glen P. Kenny
{"title":"Assessing the language availability, readability, suitability and comprehensibility of heat-health messaging content on health authority webpages and online resources in Canada","authors":"Emily J. Tetzlaff ,&nbsp;Kristina-Marie T. Janetos ,&nbsp;Katie E. Wagar ,&nbsp;Farah Mourad ,&nbsp;Melissa Gorman ,&nbsp;Victor Gallant ,&nbsp;Glen P. Kenny","doi":"10.1016/j.pecinn.2024.100368","DOIUrl":"10.1016/j.pecinn.2024.100368","url":null,"abstract":"<div><h3>Objectives</h3><div>Heat-health communication initiatives are a key public health protection strategy. Therefore, understanding the potential challenges that all Canadians and specific groups, such as those facing literacy barriers and non-native language speakers, may experience in accessing or interpreting information, is critical.</div></div><div><h3>Methods</h3><div>This study reviewed and evaluated the language availability, readability, suitability, and comprehensibility of heat-related webpages and online resources (<em>n</em> = 417) published on public health authority websites in Canada (<em>n</em> = 73). Six validated readability scales and a comprehensibility instrument were used.</div></div><div><h3>Results</h3><div>Most content was presented in English (90 %); however, only 7 % of the online resources were available in more than one language. The average reading grade level of the content (grade 8) exceeded the recommended level (grade 6), and only 22 % of the content was deemed superior for suitability and comprehensibility.</div></div><div><h3>Conclusions</h3><div>Our study evaluating web-based materials about extreme heat published by Canadian health authorities provides evidence that the current language availability, readability, suitability, and comprehensibility may be limiting the capacity for members of the public to discern key messaging.</div></div><div><h3>Innovation</h3><div>To ensure all Canadians can access and interpret information related to heat-health protection, public health authorities may consider translating their materials into additional languages and incorporating a readability evaluation to improve public understanding.</div></div>","PeriodicalId":74407,"journal":{"name":"PEC innovation","volume":"6 ","pages":"Article 100368"},"PeriodicalIF":0.0,"publicationDate":"2024-12-24","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11786110/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143082499","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Direct, non-medical out-of-pocket expenditures for mothers of moderate or late preterm infants in a level II NICU: Comparison of Alberta Family Integrated Care versus standard care II级新生儿重症监护室中中度或晚期早产儿母亲的直接非医疗自费支出:艾伯塔省家庭综合护理与标准护理的比较
PEC innovation Pub Date : 2024-12-20 DOI: 10.1016/j.pecinn.2024.100365
Jacqueline M. Wilson , Oyinda Obigbesan , Elena Lopatina , Karen M. Benzies
{"title":"Direct, non-medical out-of-pocket expenditures for mothers of moderate or late preterm infants in a level II NICU: Comparison of Alberta Family Integrated Care versus standard care","authors":"Jacqueline M. Wilson ,&nbsp;Oyinda Obigbesan ,&nbsp;Elena Lopatina ,&nbsp;Karen M. Benzies","doi":"10.1016/j.pecinn.2024.100365","DOIUrl":"10.1016/j.pecinn.2024.100365","url":null,"abstract":"<div><h3>Objective</h3><div>To compare direct, non-medical out-of-pocket expenditures (OOPE) between mothers receiving Alberta Family Integrated Care (FICare™) versus standard care (SC) during their infant's neonatal intensive care unit (NICU) admission and explore factors influencing spending extremes.</div></div><div><h3>Methods</h3><div>In this exploratory, concurrent mixed-methods sub-study, we compared mother-reported OOPE from Alberta FICare™ and SC parent journals. We thematically analyzed hand-written notes from 30 journals with the highest and lowest 5 % of OOPE.</div></div><div><h3>Results</h3><div>There was no difference in total direct, non-medical OOPE between Alberta FICare™ (<em>n</em> = 194) and SC (<em>n</em> = 132) groups (<em>U</em> = 12,679.50, <em>p</em> = 0.882). Compared to mothers receiving SC, mothers receiving Alberta FICare™ reported spending less for parking (<em>U</em> = 970.00, <em>p</em> &lt; 0.001) and more for food (<em>U</em> = 14,857.50, <em>p =</em> 0.014) and lodging (<em>U</em> = 15,160.00, <em>p</em> &lt; 0.001). Spending extremes related to travel and proximity of the NICU to their home.</div></div><div><h3>Conclusion</h3><div>Total family financial burden was similar between groups; there were differences in spending categories. Supports to offset OOPE, particularly for families living distant to the NICU or facing transportation challenges, would reduce financial burden and could enhance family-integrated care.</div></div><div><h3>Innovation</h3><div>This novel analysis describes mother-reported OOPEs and strategies to mitigate financial barriers to family integrated care.</div></div>","PeriodicalId":74407,"journal":{"name":"PEC innovation","volume":"6 ","pages":"Article 100365"},"PeriodicalIF":0.0,"publicationDate":"2024-12-20","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11732068/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142985709","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Cross cultural adaptation and validation of audiovisual educational material for use in indigenous patients with rheumatoid arthritis 类风湿关节炎土著患者使用的视听教育材料的跨文化适应和验证。
PEC innovation Pub Date : 2024-12-18 DOI: 10.1016/j.pecinn.2024.100363
Joana Aguilar-Castillo , Ingris Peláez-Ballestas , José-Luis Montiel-Hernández , Cairo Toledano-Jaimes , Mario-Alberto Garza-Elizondo , David Zepeda-González , Diana-Lizbeth Gómez-Galicia
{"title":"Cross cultural adaptation and validation of audiovisual educational material for use in indigenous patients with rheumatoid arthritis","authors":"Joana Aguilar-Castillo ,&nbsp;Ingris Peláez-Ballestas ,&nbsp;José-Luis Montiel-Hernández ,&nbsp;Cairo Toledano-Jaimes ,&nbsp;Mario-Alberto Garza-Elizondo ,&nbsp;David Zepeda-González ,&nbsp;Diana-Lizbeth Gómez-Galicia","doi":"10.1016/j.pecinn.2024.100363","DOIUrl":"10.1016/j.pecinn.2024.100363","url":null,"abstract":"<div><h3>Background</h3><div>Culturally appropriate educational materials are necessary to improve health literacy among Indigenous populations. However, practically no such materials have been cross-culturally adapted and validated for Indigenous peoples based on compliance with efficacy components.</div></div><div><h3>Objective</h3><div>To perform a cross-cultural adaptation and validation of audiovisual educational materials for adult patients with rheumatoid arthritis belonging to Indigenous communities in Chiapas, Mexico.</div></div><div><h3>Methods</h3><div>Mixed-methods study consisting of three phases: 1) Spanish–Tzotzil translation and cross-cultural adaptation of seven previously designed and validated audiovisual educational materials; 2) qualitative validation; and 3) quantitative validation based on the efficacy components (attraction, understanding, induction to action, involvement, and acceptance). The information collected during the validation phases was recorded and transcribed for content analysis.</div></div><div><h3>Results</h3><div>A total of 31 patients with rheumatoid arthritis participated in the study. Patients had a mean age of 49 years, ≥5 years since disease onset, low adherence to pharmacological treatment (&lt;20%), and a high level of illiteracy (&gt;80%). After three versions of the educational material, where elements of cultural identification were added, the efficacy components increased significantly to reach scores higher than 90%. This suggests that culturally-adapted materials could promote greater patient participation in treatment.</div></div><div><h3>Conclusion</h3><div>This study shows the importance of cross-cultural adaptation in the design and validation of audiovisual educational materials for Indigenous populations; this aspect should be considered when implementing educational strategies for patients with chronic diseases.</div></div><div><h3>Innovation</h3><div>First educational audiovisual material translated and adapted from Spanish to Tzotzil, with a cultural sensitivity approach to achieve educational goals and improve therapeutic adherence.</div></div>","PeriodicalId":74407,"journal":{"name":"PEC innovation","volume":"6 ","pages":"Article 100363"},"PeriodicalIF":0.0,"publicationDate":"2024-12-18","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11732553/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142985696","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
A lifestyle educational course as an adjunct to biologic administration in patients with severe asthma: A feasibility study 生活方式教育课程作为严重哮喘患者生物给药的辅助:可行性研究。
PEC innovation Pub Date : 2024-12-18 DOI: 10.1016/j.pecinn.2024.100364
Joseph W. Lanario , Drew Davies , Lucy Cartwright , Michael E. Hyland , Matthew Masoli
{"title":"A lifestyle educational course as an adjunct to biologic administration in patients with severe asthma: A feasibility study","authors":"Joseph W. Lanario ,&nbsp;Drew Davies ,&nbsp;Lucy Cartwright ,&nbsp;Michael E. Hyland ,&nbsp;Matthew Masoli","doi":"10.1016/j.pecinn.2024.100364","DOIUrl":"10.1016/j.pecinn.2024.100364","url":null,"abstract":"<div><h3>Objective</h3><div>To assess the feasibility and acceptability of adapting a psychoeducation course (Body Reprogramming) for severe asthma and finding suggestions for improvement.</div></div><div><h3>Methods</h3><div>Severe asthma patients were recruited from a single centre and enrolled in an online group-based course. Each course consisted of four sessions: introduction to BR, stress, exercise, and diet. Participants were asked to complete questionnaires assessing HRQoL, mood, asthma and extra-pulmonary symptoms, pre/post course. Those who attended two or more sessions were invited to provide feedback in interviews.</div></div><div><h3>Results</h3><div>Twenty-eight participants took part in one of the five courses. Thirteen (46 %) attended all four sessions and were sent post-course questionnaires, eight participants (62 %) returned them. Twelve participants provided post course feedback, Themes included: The course as a time to reflect, Appreciation of the group-format, Impact of pre-existing knowledge on enjoyment of the course and Areas of improvement. Maintaining course size, clarification of the course aims and methods were identified as areas of improvement by participants.</div></div><div><h3>Conclusion</h3><div>An educational course focused on managing extra-pulmonary symptoms is feasible and of perceived benefit to patients with severe asthma.</div></div><div><h3>Innovation</h3><div>BR could be incorporated into a rehab programme for patients with severe asthma with significant extrapulmonary symptoms.</div></div>","PeriodicalId":74407,"journal":{"name":"PEC innovation","volume":"6 ","pages":"Article 100364"},"PeriodicalIF":0.0,"publicationDate":"2024-12-18","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11733048/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143017461","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Taking a step back: Parents' experiences of the decision-making process for elective orthognathic surgery in cleft lip and palate (IPA) 退一步:父母对唇腭裂择期正颌手术决策过程的经验。
PEC innovation Pub Date : 2024-12-06 DOI: 10.1016/j.pecinn.2024.100362
Jana Safarikova , Eliane Young , Kiki Mastroyannopoulou , Paul Fisher
{"title":"Taking a step back: Parents' experiences of the decision-making process for elective orthognathic surgery in cleft lip and palate (IPA)","authors":"Jana Safarikova ,&nbsp;Eliane Young ,&nbsp;Kiki Mastroyannopoulou ,&nbsp;Paul Fisher","doi":"10.1016/j.pecinn.2024.100362","DOIUrl":"10.1016/j.pecinn.2024.100362","url":null,"abstract":"<div><h3>Objective</h3><div>This study explored parents' experiences of the transition of responsibility to their child for healthcare decisions relating to their cleft lip and/or palate (CL/P).</div></div><div><h3>Methods</h3><div>Online semi-structured interviews were conducted with 11 participants (six females and five males, aged 41 to 60 years). They were parents of young people who had decided whether to undergo orthognathic surgery. The data were transcribed and analysed using interpretative phenomenological analysis (IPA).</div></div><div><h3>Results</h3><div>A responsibility shift from participants to their children was identified in 2 main themes ‘A natural process <em>(or not)</em>’ and ‘It has to be their decision’.</div></div><div><h3>Conclusion</h3><div>The process of shifting responsibility for decision-making to the child comprised a spectrum of experiences from a relief to a shock and upset. Participants went through sometimes difficult negotiating of their ongoing involvement while supporting their child.</div></div><div><h3>Innovation</h3><div>The importance of addressing psychological aspects of the family system as well as the young person is highlighted here. Addressing the familial complexities of the transition may contribute to the success of the whole process. Clinicians need careful consideration of the potential emotional impact on parents which is not always shared.</div></div>","PeriodicalId":74407,"journal":{"name":"PEC innovation","volume":"6 ","pages":"Article 100362"},"PeriodicalIF":0.0,"publicationDate":"2024-12-06","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11699215/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142933621","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Perceived usability and acceptability of the My-Hip Fracture risk communication tool from the perspective of academic clinicians 从学术临床医生的角度来看,我髋部骨折风险沟通工具的可用性和可接受性
PEC innovation Pub Date : 2024-11-26 DOI: 10.1016/j.pecinn.2024.100360
Erin L. Hommel , James P. Flaherty , Caitlin R. Aguirre , Amber S. McIlwain , Monique R. Pappadis , Pete Wegier , Peter Cram
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