多发性硬化症患者接受职业表现指导的经验

Niloufar Malakouti , Dorothy Kessler , Marcia Finlayson , Samantha Stephens
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引用次数: 0

摘要

目的探讨职业绩效指导(OPC)对多发性硬化症(PwMS)患者日常生活自我管理的影响。方法对10例经电话OPC治疗10周的PwMS患者进行定性研究。采用解释性描述作为方法学方法。参与者在干预前和干预后接受采访,并对笔录进行专题分析。结果干预前的主题包括抵抗多发性硬化症、与多发性硬化症共存、持续的挑战和策略。干预后,抵抗MS的主题消失了,出现了提前计划、保持一致和谈论计划的子主题。参与者报告说,他们对自己的病情的抵抗力降低了,他们的注意力从问题转向了解决方案,并加强了现有的策略和/或开发了新的策略,用于克服与ms生活中的持续挑战。结论:opc可能有助于将注意力转向解决方案,并增强了PwMS的自我管理策略。创新本研究强调了OPC作为一种解决多发性硬化患者自我管理需求的有前途和创新的方法,强调了它通过培养有效的应对策略和积极的态度来提高有意义的参与的潜力。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
The experience of people with multiple sclerosis who receive occupational performance coaching

Objective

To explore how Occupational Performance Coaching (OPC) influences self-management in the daily lives of people with Multiple Sclerosis (PwMS).

Methods

A qualitative study involving 10 PwMS who underwent 6 sessions of telephone OPC over ten weeks. Interpretive description was used as the methodological approach. Participants were interviewed pre- and post-intervention, with thematic analysis performed on transcripts.

Results

Pre-intervention themes included resisting MS, living with MS, ongoing challenges, and strategies. Post-intervention, the theme of resisting MS dissipated, with emergent sub-themes of planning ahead, being consistent, and talking about the plan. Participants reported reduced resistance towards their condition, a shift in their focus from problems towards solutions, and an enhancement of existing strategies and/or development of new strategies used to overcome ongoing challenges in living with MS.

Conclusion

OPC may facilitate a shift in focus towards solutions and enhance self-management strategies in PwMS.

Innovation

This study highlights OPC as a promising and innovative approach for addressing the self-management needs of individuals with MS, emphasizing its potential to enhance meaningful participation by fostering effective coping strategies and proactive attitudes.
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来源期刊
PEC innovation
PEC innovation Medicine and Dentistry (General)
CiteScore
0.80
自引率
0.00%
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审稿时长
147 days
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