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European agrifood and forestry education for a sustainable future - Gap analysis from an informatics approach. 欧洲农业食品和林业教育可持续发展的未来-从信息学方法的差距分析。
Open research Europe Pub Date : 2025-01-15 eCollection Date: 2024-01-01 DOI: 10.12688/openreseurope.17205.2
Stephen Burleigh, Håkan Jönsson
{"title":"European agrifood and forestry education for a sustainable future - Gap analysis from an informatics approach.","authors":"Stephen Burleigh, Håkan Jönsson","doi":"10.12688/openreseurope.17205.2","DOIUrl":"10.12688/openreseurope.17205.2","url":null,"abstract":"<p><strong>Background: </strong>The NextFood Project ( www.nextfood-project.eu) started work in 2018 to identify 'Categories of Skills' that students should be equipped with to address the upcoming global challenges within agrifood and forestry disciplines. The skill groups are Innovative Mindset, Life-Long Learning, Network-Building, Strategic Management, Sustainability, Systems Perspective, Technological Knowledge and Versatility. This study is based on the initial skills and competencies mapping, but takes a different methodological approach. Instead of investigating what the research literature and professionals think are important skills for the future, this study asks how existing education programmes include or exclude these skills in the description of their programs.</p><p><strong>Methods: </strong>Python-based web-scraping scripts were used to collect texts from a selection of European Masters program websites, which were then analysed using statistical tools including Partial Least Squares regression and network analysis. A total of 14 countries, 27 universities, 1303 European Masters programs, 3305 web-pages and almost two million words were studied using this approach.</p><p><strong>Results: </strong>While agrifood and forestry Masters programs were aligned with the NextFood Project 'Categories of Skills' equal to or more often than unrelated Masters programs, we found evidence for the relative underuse of words associated with networking skills, such as collaboration, communication and eamwork. Agriculture-related programs used these words the least among the agrifood Masters programs. In contrast, agrifood programs used words associated with sustainability and system thinking more than the non-agrifood Masters programs.</p><p><strong>Conclusions: </strong>The informatics approach provides evidence that many European agrifood and forestry Masters programs are following the educational paths for meeting future challenges as outlined by the NextFood Project, with the possible exception of networking skills. This approach allows a complementary and time-efficient overview of the current state of education in the agrifood system in Europe.</p>","PeriodicalId":74359,"journal":{"name":"Open research Europe","volume":"4 ","pages":"93"},"PeriodicalIF":0.0,"publicationDate":"2025-01-15","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11757921/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143048485","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
What's in it for citizen scientists? An Analysis of Participant Inclusivity in Citizen Science Projects in Advanced Physics Research. 公民科学家有什么好处?从民主化角度分析参与者的收益。
Open research Europe Pub Date : 2025-01-14 eCollection Date: 2024-01-01 DOI: 10.12688/openreseurope.17436.2
Elisabeth Unterfrauner, Claudia Magdalena Fabian, Gary Hemming, Beatriz Garcia
{"title":"What's in it for citizen scientists? An Analysis of Participant Inclusivity in Citizen Science Projects in Advanced Physics Research.","authors":"Elisabeth Unterfrauner, Claudia Magdalena Fabian, Gary Hemming, Beatriz Garcia","doi":"10.12688/openreseurope.17436.2","DOIUrl":"10.12688/openreseurope.17436.2","url":null,"abstract":"<p><p>Citizen science projects optimise the democratisation of the production of scientific knowledge. In these initiatives, research processes do not rely solely on scientists' but on citizens' engagement, likewise with benefits on both sides. As previous work shows, the inclusivity perspective of citizen science projects might be viewed critically as some groups of citizens tend to be overrepresented in these initiatives while others are left out. This paper explores the claim of inclusivity and the citizens' benefits based on four citizen science projects in the fields of astrophysics and particle physics on the citizen science platform Zooniverse. Besides a general engagement strategy, the citizen science projects addressed two groups specifically, the elderly and people with visual impairments. The claim for inclusivity is reflected in the analysis of citizens' demographic variables as an indicator for accessibility of the research projects. We used a pre-post design with questionnaires on science attitudes, motivations, skills, self-efficacy, and knowledge to assess what citizen scientists gained from participating in the project. The demographic analysis of the data reveals that participants were quite heterogeneous and that people who feel that they belong to a group that is discriminated against are particularly motivated to participate in citizen science projects. In terms of benefits, the results indicate knowledge and scientific skills gains, but no changes on other evaluative dimensions. Their attitude towards science was, in general, already rather positive when joining the projects, thus not leaving much room for change. These results confirm the importance of and call for a diversified citizen science engagement strategy and show that even in citizen science projects where the citizens' task is limited to classifying data lead to scientific knowledge and skills gains.</p>","PeriodicalId":74359,"journal":{"name":"Open research Europe","volume":"4 ","pages":"124"},"PeriodicalIF":0.0,"publicationDate":"2025-01-14","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11549546/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142634242","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
On the need to better integrate the social environment in research on climate change and health: recommendations and thinking tools. 关于必须更好地将社会环境纳入气候变化和健康研究:建议和思考工具。
Open research Europe Pub Date : 2025-01-14 eCollection Date: 2024-01-01 DOI: 10.12688/openreseurope.17528.3
Laurence Mabile, Lola Neufcourt, Matthew Chersich, Valériane Leroy, Cyrille Delpierre, Michelle Kelly-Irving
{"title":"On the need to better integrate the social environment in research on climate change and health: recommendations and thinking tools.","authors":"Laurence Mabile, Lola Neufcourt, Matthew Chersich, Valériane Leroy, Cyrille Delpierre, Michelle Kelly-Irving","doi":"10.12688/openreseurope.17528.3","DOIUrl":"10.12688/openreseurope.17528.3","url":null,"abstract":"<p><p>Social inequality impacts health, is aggravated by the consequences of climate change, and may be influenced by inappropriate policy responses. These interdependent effects create a self-perpetuating loop exacerbating the impact of climate dysregulation on health in an uncontrolled and poorly understood way. Holistic approaches to public health such as One Health, EcoHealth or Planetary Health are well suited to tackling the considerable and complex environmental and social issues underlying climate dysregulation. However, the extent to which research using such frameworks investigates social determinants of health is not clear. In this paper we discuss the ways in which the social environment has so far been considered in the literature to problematize and analyze the relationship between climate dysregulation and health within holistic frameworks and provide tools and recommendations to facilitate their apprehension. Social factors are investigated empirically only in a minor fraction of studies addressing the relation between climate and health in holistic frameworks, and not systematically. Barriers to such approaches are discussed. This work also provides two analytical tools (a process diagram and a knowledge framework) and a set of recommendations to help include the social environment more meaningfully in such frameworks. They are meant to facilitate our understanding of the current status of this type of research and to encourage trans-disciplinary and trans-sectorial endeavors towards directions which need to be taken to ensure societal factors and inequalities are placed at the center of research on climate and health and the ensuing policy response.</p>","PeriodicalId":74359,"journal":{"name":"Open research Europe","volume":"4 ","pages":"105"},"PeriodicalIF":0.0,"publicationDate":"2025-01-14","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11736555/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143017891","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Atacama Large Aperture Submillimeter Telescope (AtLAST) science: Probing the transient and time-variable sky. 阿塔卡马大口径亚毫米望远镜(AtLAST)科学:探测瞬变和时变天空。
Open research Europe Pub Date : 2025-01-14 eCollection Date: 2024-01-01 DOI: 10.12688/openreseurope.17686.2
John Orlowski-Scherer, Thomas Maccarone, Joe Bright, Tomasz Kamiński, Michael Koss, Atul Mohan, Francisco Miguel Montenegro-Montes, Sigurd Næss, Claudio Ricci, Paola Severgnini, Thomas Stanke, Cristian Vignali, Sven Wedemeyer, Mark Booth, Claudia Cicone, Luca Di Mascolo, Doug Johnstone, Tony Mroczkowski, Martin Cordiner, Jochen Greiner, Evanthia Hatziminaoglou, Eelco van Kampen, Pamela Klaassen, Minju Lee, Daizhong Liu, Amélie Saintonge, Matthew Smith, Alexander Thelen
{"title":"Atacama Large Aperture Submillimeter Telescope (AtLAST) science: Probing the transient and time-variable sky.","authors":"John Orlowski-Scherer, Thomas Maccarone, Joe Bright, Tomasz Kamiński, Michael Koss, Atul Mohan, Francisco Miguel Montenegro-Montes, Sigurd Næss, Claudio Ricci, Paola Severgnini, Thomas Stanke, Cristian Vignali, Sven Wedemeyer, Mark Booth, Claudia Cicone, Luca Di Mascolo, Doug Johnstone, Tony Mroczkowski, Martin Cordiner, Jochen Greiner, Evanthia Hatziminaoglou, Eelco van Kampen, Pamela Klaassen, Minju Lee, Daizhong Liu, Amélie Saintonge, Matthew Smith, Alexander Thelen","doi":"10.12688/openreseurope.17686.2","DOIUrl":"10.12688/openreseurope.17686.2","url":null,"abstract":"<p><p>The study of transient and variable events, including novae, active galactic nuclei, and black hole binaries, has historically been a fruitful path for elucidating the evolutionary mechanisms of our universe. The study of such events in the millimeter and submillimeter is, however, still in its infancy. Submillimeter observations probe a variety of materials, such as optically thick dust, which are hard to study in other wavelengths. Submillimeter observations are sensitive to a number of emission mechanisms, from the aforementioned cold dust, to hot free-free emission, and synchrotron emission from energetic particles. Study of these phenomena has been hampered by a lack of prompt, high sensitivity submillimeter follow-up, as well as by a lack of high-sky-coverage submillimeter surveys. In this paper, we describe how the proposed Atacama Large Aperture Submillimeter Telescope (AtLAST) could fill in these gaps in our understanding of the transient universe. We discuss a number of science cases that would benefit from AtLAST observations, and detail how AtLAST is uniquely suited to contributing to them. In particular, AtLAST's large field of view will enable serendipitous detections of transient events, while its anticipated ability to get on source quickly and observe simultaneously in multiple bands make it also ideally suited for transient follow-up. We make theoretical predictions for the instrumental and observatory properties required to significantly contribute to these science cases, and compare them to the projected AtLAST capabilities. Finally, we consider the unique ways in which transient science cases constrain the observational strategies of AtLAST, and make prescriptions for how AtLAST should observe in order to maximize its transient science output without impinging on other science cases.</p>","PeriodicalId":74359,"journal":{"name":"Open research Europe","volume":"4 ","pages":"132"},"PeriodicalIF":0.0,"publicationDate":"2025-01-14","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11754950/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143030380","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Evidence-based exercise recommendations to improve functional mobility in older adults - A study protocol for living systematic review and meta-analysis. 基于证据的运动建议改善老年人的功能活动能力——一项活体系统评价和荟萃分析的研究方案。
Open research Europe Pub Date : 2025-01-14 eCollection Date: 2024-01-01 DOI: 10.12688/openreseurope.17823.2
Bettina Wollesen, Tamar Yellon, Antoine Langeard, Vera Belkin, Anna Wunderlich, Eleftheria Giannouli, Guoping Qian, Rafael A Bernades, Zbigniew Ossowski, Uros Marusic, Rajesh Sighdel, Yael Netz, Claudia Volecker-Rehage
{"title":"Evidence-based exercise recommendations to improve functional mobility in older adults - A study protocol for living systematic review and meta-analysis.","authors":"Bettina Wollesen, Tamar Yellon, Antoine Langeard, Vera Belkin, Anna Wunderlich, Eleftheria Giannouli, Guoping Qian, Rafael A Bernades, Zbigniew Ossowski, Uros Marusic, Rajesh Sighdel, Yael Netz, Claudia Volecker-Rehage","doi":"10.12688/openreseurope.17823.2","DOIUrl":"10.12688/openreseurope.17823.2","url":null,"abstract":"<p><strong>Background and objectives: </strong>This is a protocol for a living systematic review and meta-analysis.This review will assess the effects of state-of-the-art exercise interventions designed to promote functional mobility. Therefore, after identifying all potential interventions, we will use the F.I.T.T. principles (frequency, intensity, time, type) as well as the physical and health status of the participants as moderators to analyse the mechanisms for the positive benefits of exercise interventions.The main research questions are:Which exercise types are most beneficial for improving functional mobility in various populations of older adults?Which physical exercise characteristics in terms of frequency, intensity, time and duration will achieve the greatest benefit in terms of the defined outcomes, i.e, the functional mobility of older adults?</p><p><strong>Methods: </strong>The systematic literature research according to PRISMA guidelines will search databases like MEDLINE, APA Psych-Info and Web of Science.Inclusion criteria are: healthy older people ≥ 50 years, randomized-controlled trials including exercise intervention and a walking or mobility assessments (eg., TUG, SPPB) as an outcome measure. A preliminary search revealed more than 33,000 hits that will be screened by pairs of independent reviewers. The results will be summarized according to the effects regarding functional mobility and potential dose-response relations via respective meta-analysis.</p><p><strong>Conclusion: </strong>The systematic review will comprise the knowledge of the existing literature with regards to the effects of the physical activity interventions compared to an active or inactive control group.We will summarize the effects with respect to the F.I.T.T.. They provide a foundation for structuring an optimal exercise training program. If possible, we will also compare interventions from the different categories (eg. cardiovascular, resistance, motor-coordinative, multicomponent or mind-body exercise) as a network analysis and report the influence of moderator variables. Based on the results evidence-based guidelines following GRADE for physical exercise interventions to improve functional mobility in older adults will be provided.</p>","PeriodicalId":74359,"journal":{"name":"Open research Europe","volume":"4 ","pages":"202"},"PeriodicalIF":0.0,"publicationDate":"2025-01-14","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11770255/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143054494","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
How do we measure the costs, benefits, and harms of sharing data from biomedical studies? A protocol for a scoping review. 我们如何衡量共享生物医学研究数据的成本、收益和危害?范围审查的协议。
Open research Europe Pub Date : 2025-01-14 eCollection Date: 2023-01-01 DOI: 10.12688/openreseurope.16063.2
Lauren Maxwell, Priya Shreedhar, Ankur Krishnan
{"title":"How do we measure the costs, benefits, and harms of sharing data from biomedical studies? A protocol for a scoping review.","authors":"Lauren Maxwell, Priya Shreedhar, Ankur Krishnan","doi":"10.12688/openreseurope.16063.2","DOIUrl":"10.12688/openreseurope.16063.2","url":null,"abstract":"<p><strong>Introduction: </strong>The benefits of sharing participant-level data, including clinical or epidemiological data, genomic data, high-dimensional imaging data, or human-derived samples, from biomedical studies have been widely touted and may be taken for granted. As investments in data sharing and reuse efforts continue to grow, understanding the cost and positive and negative effects of data sharing for research participants, the general public, individual researchers, research and development, clinical practice, and public health is of growing importance. In this scoping review, we will identify and summarize existing evidence on the positive and negative impacts and costs of data sharing and how they are measured.</p><p><strong>Methods and analysis: </strong>Eligible studies will report on qualitative or quantitative approaches for measuring the cost of data sharing or its impact on participant privacy, individual or public health, researcher's careers, clinical or public health practice, or research or development. The systematic search strategy uses MeSH and text terms and is tailored for Ovid Medline, Cumulative Index to Nursing and Allied Health Literature, and Web of Science. We will apply the Arskey and O'Malley scoping review methodology. We selected a scoping rather than a systematic review approach to address multiple related questions and provide guidance related to an emerging field. Two reviewers will conduct the title-abstract and full-text screening and data charting independently. Discrepancies will be resolved through consensus and results will be summarized in a narrative form.</p><p><strong>Conclusion: </strong>Research participants, investigators, regulatory groups, ethics review committees, data protection officers, and funders cannot make informed decisions or policies about data reuse without appropriate means of measuring the effects, positive or negative, and cost of data sharing.</p>","PeriodicalId":74359,"journal":{"name":"Open research Europe","volume":"3 ","pages":"151"},"PeriodicalIF":0.0,"publicationDate":"2025-01-14","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11757919/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143048279","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Systems Leadership: a qualitative systematic review of advice for policymakers. 系统领导:对政策制定者建议的定性系统审查。
Open research Europe Pub Date : 2025-01-10 eCollection Date: 2025-01-01 DOI: 10.12688/openreseurope.18982.1
Paul Cairney, Claire Toomey
{"title":"Systems Leadership: a qualitative systematic review of advice for policymakers.","authors":"Paul Cairney, Claire Toomey","doi":"10.12688/openreseurope.18982.1","DOIUrl":"10.12688/openreseurope.18982.1","url":null,"abstract":"<p><strong>Background: </strong>'Systems leadership' research rejects the idea that complex policy problems can be solved by a few heroic leaders in the centre of government or at the top of organisations. Many people need to contribute to systems leadership by collaborating to harness the skills of actors across government and outside of government. At times, this proposition is vague and it is difficult to know who should change or what to do. We searched the academic and grey literature for further advice on how to foster effective systems leadership.</p><p><strong>Methods: </strong>We conducted a qualitative systematic review (2024) of peer reviewed journal articles (Web of Science) and grey literature reports (Policy Commons, Overton). Each text had to inform advice on systems leadership. We used an immersive inductive approach to identify key sources of ideas, highlight common themes, and relate the results to insights from policy theories.</p><p><strong>Results: </strong>84 texts met the inclusion criteria (39 Web of Science, 34 Policy Commons, 11 Overton), then we included 80 snowballed academic and grey references (total 164). Some relate leadership to complexity theory, but most provide broad accounts of systems leadership that emphasise decentralisation and collaboration. These accounts describe high aspirations and essential skills but limited evidence from activity. Nevertheless, this literature helps us produce a coherent synthesis of common insights and advice on how to foster systems leadership.</p><p><strong>Conclusions: </strong>We identify key features of systems leadership: reject heroic top-down leadership and central control in favour of collaboration across boundaries; develop attributes (e.g. humility), mindsets (e.g. big picture), and skills (e.g. facilitation) to act in complex systems (albeit without a common view on what a complex system is); and, seek organisational and political support for this approach. Some accounts identify barriers to systems leadership and negative experiences, while others redefine such obstacles as learning opportunities.</p>","PeriodicalId":74359,"journal":{"name":"Open research Europe","volume":"5 ","pages":"6"},"PeriodicalIF":0.0,"publicationDate":"2025-01-10","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11862379/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143517329","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
STRAIGHTMORPH: A Voice Morphing Tool for Research in Voice Communication Sciences. 用于语音通信科学研究的语音变形工具。
Open research Europe Pub Date : 2025-01-10 eCollection Date: 2024-01-01 DOI: 10.12688/openreseurope.18055.2
P Belin, H Kawahara
{"title":"STRAIGHTMORPH: A Voice Morphing Tool for Research in Voice Communication Sciences.","authors":"P Belin, H Kawahara","doi":"10.12688/openreseurope.18055.2","DOIUrl":"10.12688/openreseurope.18055.2","url":null,"abstract":"<p><p>The purpose of this paper is to make easily available to the scientific community an efficient voice morphing tool called STRAIGHTMORPH and provide a short tutorial on its use with examples. STRAIGHTMORPH consists of a set of Matlab functions allowing the generation of high-quality, parametrically-controlled morphs of an arbitrary number of voice samples. A first step consists in extracting an 'mObject' for each voice sample, with accurate tracking of the fundamental frequency contour and manual definition of Time and Frequency anchors corresponding across samples to be morphed. The second step consists in parametrically combining the mObjects to generate novel synthetic stimuli, such as gender, identity or emotion continua, or random combinations. STRAIGHTMORPH constitutes a simple but efficient and versatile tool to generate high quality, parametrically controlled continua between voices - and beyond.</p>","PeriodicalId":74359,"journal":{"name":"Open research Europe","volume":"4 ","pages":"154"},"PeriodicalIF":0.0,"publicationDate":"2025-01-10","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11736103/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143017894","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Genomic findings with familial implications: agenda setting in light of mainstreaming. 具有家族意义的基因组研究结果:主流化的议程设置。
Open research Europe Pub Date : 2025-01-10 eCollection Date: 2025-01-01 DOI: 10.12688/openreseurope.19128.1
Amicia Phillips, Eva Van Steijvoort, Maria Siermann, Janneke M L Kuiper, Álvaro Mendes, Sandrine de Montgolfier, Helle Vendel Petersen, Anna Rosén, Hilde Van Esch, Laurent Pasquier, Danya F Vears, Christine Patch, Wannes Van Hoof, Ainsley J Newson, Saskia Bulk, Carla van El, Eline Dancet, Emmanuelle Rial-Sebbag, Colin Mitchell, Pascal Borry
{"title":"Genomic findings with familial implications: agenda setting in light of mainstreaming.","authors":"Amicia Phillips, Eva Van Steijvoort, Maria Siermann, Janneke M L Kuiper, Álvaro Mendes, Sandrine de Montgolfier, Helle Vendel Petersen, Anna Rosén, Hilde Van Esch, Laurent Pasquier, Danya F Vears, Christine Patch, Wannes Van Hoof, Ainsley J Newson, Saskia Bulk, Carla van El, Eline Dancet, Emmanuelle Rial-Sebbag, Colin Mitchell, Pascal Borry","doi":"10.12688/openreseurope.19128.1","DOIUrl":"https://doi.org/10.12688/openreseurope.19128.1","url":null,"abstract":"<p><p>An international workshop was held in Leuven, Belgium, on June 19-20, 2023, to discuss the communication of genetic risk information within families in the context of personalized prevention. Organized as part of the Horizon Europe project PROPHET (PeRsOnalised Prevention roadmap for the future HEalThcare in Europe), the event gathered interdisciplinary stakeholders to explore the benefits and challenges of various policy approaches for returning genetic test results with implications for family members. Five key themes emerged from the discussions: (1) recognizing family communication as an ongoing process, (2) adopting a family-centered approach rather than an individual one, (3) clarifying roles and responsibilities in the communication process, (4) addressing the lack of clear guidelines and policies, and (5) ensuring sufficient resources. To enhance family communication of genetic risk information, participants emphasized the importance of improving pre-test counseling and follow-up procedures, implementing policies to clarify roles and responsibilities, and providing training for healthcare professionals both within and outside genetic services.</p>","PeriodicalId":74359,"journal":{"name":"Open research Europe","volume":"5 ","pages":"4"},"PeriodicalIF":0.0,"publicationDate":"2025-01-10","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11982804/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144061526","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Exploring the potential of blockchain technology for citizen engagement in smart governance. 探索区块链技术在公民参与智能治理方面的潜力。
Open research Europe Pub Date : 2025-01-03 eCollection Date: 2023-01-01 DOI: 10.12688/openreseurope.16153.3
Niccolò Testi, Rebecca Marconi, Edna Pasher
{"title":"Exploring the potential of blockchain technology for citizen engagement in smart governance.","authors":"Niccolò Testi, Rebecca Marconi, Edna Pasher","doi":"10.12688/openreseurope.16153.3","DOIUrl":"10.12688/openreseurope.16153.3","url":null,"abstract":"<p><p>This review article explores the potential of blockchain technology (BCT) as a key enabler for fostering transparency, trust, and citizen engagement in smart governance within smart cities. By examining the benefits of BCT in various aspects of smart city systems, such as data security and privacy, the paper highlights the advantages of implementing consortium blockchain architecture and the Proof of Authority (PoA) consensus algorithm and discusses the challenges of scalability and security concerns. Based on the literature showed in this article, we believe that the use of BCT in smart governance could significantly enhance citizen participation and help manage and deliver public services, paving the way for more effective decision-making processes and improved quality of life for citizens.</p>","PeriodicalId":74359,"journal":{"name":"Open research Europe","volume":"3 ","pages":"183"},"PeriodicalIF":0.0,"publicationDate":"2025-01-03","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11809474/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143392428","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
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