Journal of Hospice & Palliative Nursing最新文献_第2页

HPNA Position Statement: Medication Safety. HPNA立场声明：用药安全。

IF 1.3 4区医学

Journal of Hospice & Palliative Nursing Pub Date : 2026-06-01 Epub Date: 2026-03-27 DOI: 10.1097/NJH.0000000000001216

引用次数: 0

The Role of Nurses at the Intersection of Palliative Care and Death Tourism: Global Ethical Dilemmas and Professional Preparedness. 护士在姑息治疗和死亡旅游交叉点的作用：全球伦理困境和专业准备。

IF 1.3 4区医学

Journal of Hospice & Palliative Nursing Pub Date : 2026-06-01 Epub Date: 2025-10-28 DOI: 10.1097/NJH.0000000000001176

Gönül Düzgün

{"title":"The Role of Nurses at the Intersection of Palliative Care and Death Tourism: Global Ethical Dilemmas and Professional Preparedness.","authors":"Gönül Düzgün","doi":"10.1097/NJH.0000000000001176","DOIUrl":"10.1097/NJH.0000000000001176","url":null,"abstract":"Throughout history, end-of-life has posed profound ethical and emotional challenges. Today, the growing desire for control has led to two interconnected phenomena: death tourism and palliative care. Hopelessness and loss of control drive some patients to seek euthanasia or physician-assisted suicide abroad, especially where these practices are illegal in their home countries. For them, this difficult decision represents reclaiming agency in the face of unbearable suffering. In contrast, palliative care provides an alternative focused on improving quality of life for patients with life-threatening illnesses and their families. Its holistic approach-addressing physical, psychological, social, and spiritual needs-ensures dignity, comfort, and support. Expanding access to comprehensive palliative services can significantly reduce feelings of despair and diminish the demand for death tourism. By fostering a sense of being valued and supported, palliative care helps individuals face their final stages with meaning rather than fear. This underscores the critical role of nurses, whose professional preparedness is essential in addressing global ethical dilemmas and disseminating palliative practices effectively. Ultimately, the solution to protecting human dignity lies not in hastening death, but in alleviating suffering so that life, even in its final chapter, remains meaningful..","PeriodicalId":54807,"journal":{"name":"Journal of Hospice & Palliative Nursing","volume":" ","pages":"E109-E114"},"PeriodicalIF":1.3,"publicationDate":"2026-06-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"145440118","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Integrating Palliative Care in the Care of Children With Heart Failure: Findings and Recommendations From a 5-Year Experience in a Tertiary Care Center. 将姑息治疗纳入心力衰竭儿童的护理：三级护理中心5年经验的发现和建议。

IF 1.3 4区医学

Journal of Hospice & Palliative Nursing Pub Date : 2026-06-01 Epub Date: 2026-04-24 DOI: 10.1097/NJH.0000000000001188

Kim Sadler, Wejdan Alghamdi, Dimpna Calila Albert-Brotons, Mohammed El Haddad, Mansour Mohammed Alyami, Saadiya Khan, Khaled Alghamdi, Hamad Hussain Alyami, Yaser Ali Alali, Emad Ahmed Hakami

{"title":"Integrating Palliative Care in the Care of Children With Heart Failure: Findings and Recommendations From a 5-Year Experience in a Tertiary Care Center.","authors":"Kim Sadler, Wejdan Alghamdi, Dimpna Calila Albert-Brotons, Mohammed El Haddad, Mansour Mohammed Alyami, Saadiya Khan, Khaled Alghamdi, Hamad Hussain Alyami, Yaser Ali Alali, Emad Ahmed Hakami","doi":"10.1097/NJH.0000000000001188","DOIUrl":"https://doi.org/10.1097/NJH.0000000000001188","url":null,"abstract":"Heart failure is becoming an increasingly cause of hospital admissions in the pediatric population, linked to significant morbidity and mortality. Despite advances, end-stage heart disease still causes significant symptoms, extended hospitalizations, and reduced quality of life. Pediatric palliative care (PPC), aimed at improving quality of life through symptom management, emotional support, and advanced care planning, can benefit these children. This project aimed to establish specialized PPC services for children with heart failure, regardless of their care goals, at a tertiary care and transplant center in Saudi Arabia. This project is presented with a retrospective review spanning from July 1, 2019, to June 30, 2024. The steps toward integration included (1) assessing gaps, (2) developing services, (3) setting up a referral system, (4) raising awareness, (5) implementing the program, and (6) measuring outcomes. Of the 47 children included, the average age was 10 years (SD = 4), half had a transplant, and 20 (42.6%) died during the period. The main issues were family distress (100%), children's mood issues and anxiety (59.6%), and pain (40.4%). Implementing PPC improves quality of life and ensures medical care aligns with family values. Children's emotional distress, parental anxiety over the disease's unpredictable course, and aggressive end-of-life care are key issues to address.","PeriodicalId":54807,"journal":{"name":"Journal of Hospice & Palliative Nursing","volume":"28 3","pages":"124-131"},"PeriodicalIF":1.3,"publicationDate":"2026-06-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"147846376","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Beyond the Sound: Evidence-Based Nursing Care for Patients With Terminal Secretions. 声音之外：晚期分泌物患者的循证护理。

IF 1.3 4区医学

Journal of Hospice & Palliative Nursing Pub Date : 2026-06-01 Epub Date: 2025-12-16 DOI: 10.1097/NJH.0000000000001203

Jo Ann Wilson

{"title":"Beyond the Sound: Evidence-Based Nursing Care for Patients With Terminal Secretions.","authors":"Jo Ann Wilson","doi":"10.1097/NJH.0000000000001203","DOIUrl":"10.1097/NJH.0000000000001203","url":null,"abstract":"Terminal secretions, commonly referred to as the \"death rattle,\" are oropharyngeal secretions that accumulate in patients nearing the end of life who cannot clear them. Although physiologically benign, these secretions can cause emotional distress to families, nurses, and care providers. They are presumed to impact the quality of death, relating to comfort and dignity. This document reviews interventions for managing terminal secretions, emphasizing evidence-based practices. It explores pharmacologic methods, like anticholinergic medications-though little evidence supports their benefit-suggesting their use be considered individually. Nonpharmacologic interventions are recommended as first-line treatments; these include repositioning, mouth care, hydration management, communication, and family education. These strategies align well with comfort care goals. Nurse-led communication can reduce family anxiety and improve understanding of the dying process. A standard nurse-led, evidence-based approach focuses on comfort, dignity, and presence at the end of life. Barriers to implementing nonpharmacologic measures and the emotional impact on families and clinicians are addressed. Reviewed resources include clinical trials, systematic reviews, palliative care guidelines, and nursing resource guides, advocating a collaborative, interdisciplinary approach to first-line, nonpharmacologic care for terminal secretions.","PeriodicalId":54807,"journal":{"name":"Journal of Hospice & Palliative Nursing","volume":" ","pages":"e139-e145"},"PeriodicalIF":1.3,"publicationDate":"2026-06-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"145764572","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Symptom Management in Palliative Nursing: Applying the Evolving Science to Daily Practice. 缓和护理中的症状管理：将不断发展的科学应用于日常实践。

IF 1.3 4区医学

Journal of Hospice & Palliative Nursing Pub Date : 2026-06-01 Epub Date: 2026-04-24 DOI: 10.1097/NJH.0000000000001189

Betty Ferrell, Emma Woo

引用次数: 0

The Foundation of Holistic Care: Nurses' Spiritual Sensitivity Levels and Experiences. 整体护理的基础：护士的精神敏感度水平和经验。

IF 1.3 4区医学

Journal of Hospice & Palliative Nursing Pub Date : 2026-06-01 Epub Date: 2026-02-16 DOI: 10.1097/NJH.0000000000001220

Banu Cihan Erdoğan, Nevin Doğan

{"title":"The Foundation of Holistic Care: Nurses' Spiritual Sensitivity Levels and Experiences.","authors":"Banu Cihan Erdoğan, Nevin Doğan","doi":"10.1097/NJH.0000000000001220","DOIUrl":"10.1097/NJH.0000000000001220","url":null,"abstract":"This study aimed to explore nurses' spiritual sensitivity and how it shaped their everyday clinical caregiving experiences within a holistic care framework. A mixed-method approach was employed to integrate survey findings from 213 nurses with in-depth clinical narratives obtained from 32 nurses working in different hospital settings in Türkiye. Quantitative data were collected using the Nurse Information Form and the Spiritual Sensitivity Scale for Nurses, while qualitative data were gathered through semistructured individual interviews. Quantitative data were analyzed using statistical package for the social sciences, and qualitative data were evaluated through content analysis. Nurses' spiritual sensitivity levels were found to be generally high, with positive correlations identified between spiritual sensitivity, job satisfaction, and belief in spirituality's role in the healing process. Qualitative findings indicated that nurses recognized patients' spiritual needs by observing their psychological and emotional states, and that supporting religious and spiritual practices contributed not only to patients' recovery but also to nurses' professional satisfaction. Spiritual sensitivity was identified as a fundamental element of patient-centered and holistic nursing care, enhancing both the quality of care and professional satisfaction. These results highlighted the clinical relevance of spiritual sensitivity as an integral component of holistic nursing practice rather than an abstract personal attribute. Health care institutions were encouraged to actively support spiritual sensitivity through clinical guidelines, education, and organizational culture to strengthen holistic patient care.","PeriodicalId":54807,"journal":{"name":"Journal of Hospice & Palliative Nursing","volume":" ","pages":"e146-e153"},"PeriodicalIF":1.3,"publicationDate":"2026-06-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"146215007","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Pediatric Firearm Survivors as a Medically Complex Population. 儿童枪支幸存者作为一个医疗复杂人群。

IF 1.3 4区医学

Journal of Hospice & Palliative Nursing Pub Date : 2026-04-28 DOI: 10.1097/NJH.0000000000001234

Lisa C Lindley, Meaghann S Weaver

{"title":"Pediatric Firearm Survivors as a Medically Complex Population.","authors":"Lisa C Lindley, Meaghann S Weaver","doi":"10.1097/NJH.0000000000001234","DOIUrl":"10.1097/NJH.0000000000001234","url":null,"abstract":"Firearm injury is now the leading cause of death among children and adolescents in the United States, yet far more children survive gunshot wounds and encounter substantial long-term consequences. This article argues that pediatric firearm survivors constitute a population of children with medical complexity, a group defined by severe chronic health conditions, significant functional limitations, substantial service needs, and high health care utilization. Survivors often experience multisystem trauma, neurological impairment, chronic pain, organ dysfunction, and enduring functional deficits requiring long-term rehabilitation, medical technology, and educational and psychosocial support. Families frequently manage intensive caregiving responsibilities and navigate fragmented systems of care. Survivors also demonstrate elevated mental health needs and high rates of readmissions, subspecialty care, and emergency visits, reflecting chronic and resource-intensive trajectories. By applying established frameworks for children with medical complexity, this article reframes firearm survivorship as a chronic condition rather than a discrete traumatic event.Recognizing pediatric firearm survivors as medically complex has important implications for hospice and palliative care nursing practice. Such recognition supports trauma-informed, longitudinal models of palliative care and highlights the need for targeted interventions that address the persistent medical, functional, and psychosocial burdens of this growing population.","PeriodicalId":54807,"journal":{"name":"Journal of Hospice & Palliative Nursing","volume":" ","pages":""},"PeriodicalIF":1.3,"publicationDate":"2026-04-28","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"147789329","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Increasing Access to Pediatric Palliative Care in a Large Hospital System: Trials and Triumphs From an APRN Initiative. 在大型医院系统中增加儿科姑息治疗的可及性：来自APRN倡议的试验和胜利。

IF 1.3 4区医学

Journal of Hospice & Palliative Nursing Pub Date : 2026-04-01 Epub Date: 2026-02-20 DOI: 10.1097/NJH.0000000000001212

Faith Kinnear

{"title":"Increasing Access to Pediatric Palliative Care in a Large Hospital System: Trials and Triumphs From an APRN Initiative.","authors":"Faith Kinnear","doi":"10.1097/NJH.0000000000001212","DOIUrl":"10.1097/NJH.0000000000001212","url":null,"abstract":"According to the Pediatric Palliative Care Task Force formed in 2020 and hosted by the National Coalition for Hospice and Palliative Care, children with serious illness should have access to palliative care that meets the population's unique needs. A large children's hospital had expanded to include 2 satellite campuses within a 6-year timeframe. With the expansions and the complex patient population cared for, palliative care expertise was needed at the satellite campuses, both inpatient and outpatient. This was an exciting and daunting task for a pediatric nurse practitioner. Taking care to assess needs, communicate with leadership teams, develop rapport with key stakeholders, and utilize the support staff already in place allowed for successful implementation of pediatric palliative care services at 2 satellite campuses over a 5-year span. Services included inpatient and outpatient patient care; ongoing family bereavement support; compiling staff resources and providing ongoing staff training in primary pediatric palliative care skills. Each satellite campus now has dedicated pediatric palliative care providers. This article outlines how the satellite palliative care programs were developed, the challenges and successes in the process, and the role of the APRN in program development.","PeriodicalId":54807,"journal":{"name":"Journal of Hospice & Palliative Nursing","volume":"28 2","pages":"57-61"},"PeriodicalIF":1.3,"publicationDate":"2026-04-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"147357870","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Spiritual Distress Screening by Nurses to Increase Comprehensive Spiritual Support of Patients. 护士进行精神困扰筛查，增加对患者的全面精神支持。

IF 1.3 4区医学

Journal of Hospice & Palliative Nursing Pub Date : 2026-04-01 Epub Date: 2025-11-18 DOI: 10.1097/NJH.0000000000001181

Archana Nair, Dorothy Patterson, Bethany Hauver, Chelsey Labadie

{"title":"Spiritual Distress Screening by Nurses to Increase Comprehensive Spiritual Support of Patients.","authors":"Archana Nair, Dorothy Patterson, Bethany Hauver, Chelsey Labadie","doi":"10.1097/NJH.0000000000001181","DOIUrl":"10.1097/NJH.0000000000001181","url":null,"abstract":"This project aimed to address a gap in nurses' awareness of spiritual care and comprehensive spiritual support of patients in a breast oncology clinic at a National Cancer Institute (NCI)-designated Comprehensive Cancer Center through interdisciplinary collaboration with chaplaincy. Measures of nurses' comfort and understanding of spiritual care were assessed at baseline and monthly, utilizing a validated tool. Following education, nurses screened patients during their initial visit to the breast surgical oncology clinic who were experiencing moderate to severe distress for related existential themes of distress using an assessment tool and referred them to chaplaincy or social work based on the screening results. Nurse-initiated chaplain referrals increased significantly during the study period, with the most common distress themes being stress, hopes/fears, and assistance/help. Patient acceptance of referrals averaged 18.7% for chaplaincy and 33.1% for social work. By enhancing nurses' understanding of spiritual care and the role of chaplaincy, the clinic was able to improve the provision of comprehensive spiritual support, contributing to holistic patient care. Due to spirituality being a component of quality of life, this approach is transferable to other clinical settings. Future research could explore the impact of chaplain interventions on patient distress and quality of life for patients and caregivers.","PeriodicalId":54807,"journal":{"name":"Journal of Hospice & Palliative Nursing","volume":" ","pages":"99-103"},"PeriodicalIF":1.3,"publicationDate":"2026-04-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"145642949","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Supportive Care Needs of Patients with Hematologic Malignancies and Their Caregivers: A Mixed-Method Study: A Mixed Design Study. 恶性血液病患者及其护理人员的支持性护理需求：一项混合方法研究：一项混合设计研究。

IF 1.3 4区医学

Journal of Hospice & Palliative Nursing Pub Date : 2026-04-01 Epub Date: 2025-12-12 DOI: 10.1097/NJH.0000000000001186

Gül Dural

{"title":"Supportive Care Needs of Patients with Hematologic Malignancies and Their Caregivers: A Mixed-Method Study: A Mixed Design Study.","authors":"Gül Dural","doi":"10.1097/NJH.0000000000001186","DOIUrl":"10.1097/NJH.0000000000001186","url":null,"abstract":"Hematologic cancer has serious physical and psychological impacts, increasing the supportive care needs of patients and their caregivers. This study aimed to investigate the supportive care needs of patients with hematologic cancer and their caregivers. It was conducted using a convergent parallel design to understand the supportive care needs of these patients and their caregivers. More in-depth explanations were provided through simultaneous qualitative and quantitative data collection processes. At the beginning of the study, qualitative and quantitative data were collected in parallel and analyzed separately, and then the results were integrated. In the quantitative phase of the study, patients had high levels of care needs, whereas their caregivers had moderate levels of care needs. The qualitative phase provided a more detailed examination of supportive care needs. Based on the thematic analysis results, the needs of the patients and their caregivers were grouped under 3 main themes: (1) symptom management needs, (2) psychological needs, and (3) socio-economic needs. This study revealed that the care needs of patients with cancer and their caregivers are substantial, particularly in the areas of symptom management, psychological support, and socio-economic assistance.","PeriodicalId":54807,"journal":{"name":"Journal of Hospice & Palliative Nursing","volume":" ","pages":"E76-E82"},"PeriodicalIF":1.3,"publicationDate":"2026-04-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"145764606","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0