Journal of Hospice & Palliative Nursing最新文献_第3页

Regional Pediatric Education and Assistance Collaborative for Hospice Nurses (REACH): A Tele-Educational Intervention. 临终关怀护士区域儿科教育与援助合作（REACH）：远程教育干预。

IF 1.3 4区医学

Journal of Hospice & Palliative Nursing Pub Date : 2026-10-01 Epub Date: 2026-03-20 DOI: 10.1097/NJH.0000000000001225

Taylor Aglio, Alexa Bobelis, Ashley Autrey, Tracy Hills, Alexandra Superdock, Arshia Madni, Kelly Bien, Nidhi Mali, Erica C Kaye

{"title":"Regional Pediatric Education and Assistance Collaborative for Hospice Nurses (REACH): A Tele-Educational Intervention.","authors":"Taylor Aglio, Alexa Bobelis, Ashley Autrey, Tracy Hills, Alexandra Superdock, Arshia Madni, Kelly Bien, Nidhi Mali, Erica C Kaye","doi":"10.1097/NJH.0000000000001225","DOIUrl":"10.1097/NJH.0000000000001225","url":null,"abstract":"Despite the well-known benefits of hospice care for seriously ill children and their families, pediatric hospice services remain difficult to access across community settings. The vast majority of hospice organizations utilize an adult-focused paradigm, in which adult-trained providers often lack the requisite pediatric-specific education to provide high-quality hospice care for children and families. Hospice nurses self-report significant discomfort with pediatric care provision, resulting in hesitation by hospice agencies to accept pediatric patients, further exacerbating deficits in pediatric hospice access across the nation. Given the growing numbers of children with serious illness eligible for hospice in the community, innovative strategies are urgently needed. To address this gap, a multidisciplinary team comprising physicians, nurses, psychosocial clinicians, community members, and bereaved parents was convened to develop the Regional Pediatric Education and Assistance Collaborative for Hospice Nurses (REACH) initiative. Using a community-based participatory research approach, a stakeholder-driven tele-educational intervention was designed, refined, and implemented as a pilot for hospice nurses across Tennessee. Pilot data showed this hub-and-spoke model to be feasible, acceptable, and impactful, increasing hospice nurses' knowledge and comfort with provision of pediatric care in the community. Future work will focus on the expansion of REACH across Louisiana, followed by other states.","PeriodicalId":54807,"journal":{"name":"Journal of Hospice & Palliative Nursing","volume":" ","pages":"217-222"},"PeriodicalIF":1.3,"publicationDate":"2026-10-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"147488691","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Pediatric Firearm Survivors as a Medically Complex Population. 儿童枪支幸存者作为一个医疗复杂人群。

IF 1.3 4区医学

Journal of Hospice & Palliative Nursing Pub Date : 2026-10-01 Epub Date: 2026-04-28 DOI: 10.1097/NJH.0000000000001234

Lisa C Lindley, Meaghann S Weaver

{"title":"Pediatric Firearm Survivors as a Medically Complex Population.","authors":"Lisa C Lindley, Meaghann S Weaver","doi":"10.1097/NJH.0000000000001234","DOIUrl":"10.1097/NJH.0000000000001234","url":null,"abstract":"Firearm injury is now the leading cause of death among children and adolescents in the United States, yet far more children survive gunshot wounds and encounter substantial long-term consequences. This article argues that pediatric firearm survivors constitute a population of children with medical complexity, a group defined by severe chronic health conditions, significant functional limitations, substantial service needs, and high health care utilization. Survivors often experience multisystem trauma, neurological impairment, chronic pain, organ dysfunction, and enduring functional deficits requiring long-term rehabilitation, medical technology, and educational and psychosocial support. Families frequently manage intensive caregiving responsibilities and navigate fragmented systems of care. Survivors also demonstrate elevated mental health needs and high rates of readmissions, subspecialty care, and emergency visits, reflecting chronic and resource-intensive trajectories. By applying established frameworks for children with medical complexity, this article reframes firearm survivorship as a chronic condition rather than a discrete traumatic event.Recognizing pediatric firearm survivors as medically complex has important implications for hospice and palliative care nursing practice. Such recognition supports trauma-informed, longitudinal models of palliative care and highlights the need for targeted interventions that address the persistent medical, functional, and psychosocial burdens of this growing population.","PeriodicalId":54807,"journal":{"name":"Journal of Hospice & Palliative Nursing","volume":" ","pages":"237-242"},"PeriodicalIF":1.3,"publicationDate":"2026-10-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"147789329","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

One Clinician, Every Conversation: Palliative Care Delivery by Solo APRN Hospitalists in Critical Access Hospitals. 一个临床医生，每次谈话：在危重医院单独APRN医院提供姑息治疗。

IF 1.3 4区医学

Journal of Hospice & Palliative Nursing Pub Date : 2026-10-01 Epub Date: 2026-07-06 DOI: 10.1097/NJH.0000000000001241

Melissa Skoff

{"title":"One Clinician, Every Conversation: Palliative Care Delivery by Solo APRN Hospitalists in Critical Access Hospitals.","authors":"Melissa Skoff","doi":"10.1097/NJH.0000000000001241","DOIUrl":"10.1097/NJH.0000000000001241","url":null,"abstract":"Advanced practice registered nurses (APRN) who practice as solo hospitalists in critical access hospitals are often underrecognized in their role in providing palliative and end-of-life care. Palliative and hospice care specialty services are often not readily available for consultations in a timely manner, especially in highly remote areas of the country. These hospitalists routinely work without an option for palliative care consultations, ethics committees, or structured advance care planning processes. These hospitalists must simultaneously manage admissions, discharges, inpatient deteriorations, psychosocial situations with patients and families, and then carve out time to have empathic and meaningful end-of-life conversations. As a result, APRNs must independently deliver time-sensitive conversations, including goals of care discussions, health care agents' discussions, and end-of-life planning, in the hospital amid constant interruption, competing clinical priorities, and resource constraints. This article describes the full scope of the solo APRN hospitalist in a critical access hospital setting with close attention to how complex patient demands contribute to the challenges in providing high-quality end-of-life communications. This article examines clinical, educational, and ethical dimensions of this work, and presents a case example that illustrates how these pressures present during a shift. Strategies to strengthen rural palliative care capacity are discussed, including tele-palliative care, remote ethics support, and APRN-centered education. As rural workforce shortages persist and continue to rise, alongside rising patient acuity, naming and addressing these structural gaps is essential in improving quality of care and protecting the well-being of a solo APRN hospitalist.","PeriodicalId":54807,"journal":{"name":"Journal of Hospice & Palliative Nursing","volume":" ","pages":"208-213"},"PeriodicalIF":1.3,"publicationDate":"2026-10-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"148392515","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Beyond Treatment Disagreement: Ethical Conflict, Surrogate Decision-Making, and Nonbeneficial Treatment at the End of Life. 超越治疗分歧：伦理冲突、替代决策和生命末期的非有益治疗。

IF 1.3 4区医学

Journal of Hospice & Palliative Nursing Pub Date : 2026-10-01 Epub Date: 2026-08-27 DOI: 10.1097/NJH.0000000000001247

Joshua McCullough

引用次数: 0

The Embedding of a Specialized Nurse Practitioner Palliative Care Clinic within a Multiple Sclerosis Comprehensive Care Center. 在多发性硬化症综合护理中心内嵌入专业护士执业姑息治疗诊所。

IF 1.3 4区医学

Journal of Hospice & Palliative Nursing Pub Date : 2026-10-01 Epub Date: 2026-08-27 DOI: 10.1097/NJH.0000000000001230

Jennifer Abate, Dorothy Wholihan

{"title":"The Embedding of a Specialized Nurse Practitioner Palliative Care Clinic within a Multiple Sclerosis Comprehensive Care Center.","authors":"Jennifer Abate, Dorothy Wholihan","doi":"10.1097/NJH.0000000000001230","DOIUrl":"https://doi.org/10.1097/NJH.0000000000001230","url":null,"abstract":"People with multiple sclerosis (PwMS) face an uncertain future as the nature of the disease can be progressive and unpredictable, leading to chronic serious symptomatology impacting quality of life. Serious illness discussions and symptom management should be part of routine care in all outpatient neurology clinics. Yet few standard clinical approaches to palliative care exist for this population. Providers frequently lack understanding about when to incorporate specialist palliative care. The MS-Support project established a specialized nurse practitioner (NP)-led palliative care clinic embedded in an MS center. A feasibility project evaluated clinician perceptions and referral patterns, as well as the impact on symptom identification and advance care planning/serious illness discussions. Twenty-six patients were referred over 3 months, 77% were seen once; 29% were seen more than twice. The average number of symptoms identified per patient increased from 1.8 to 6.7 postintervention. Seventeen (85%) had serious illness discussions documented compared with zero preintervention. NP productivity increased by 67%. Results indicate that NP provision of embedded palliative care can increase acceptance of palliative care, increase the frequency of serious illness discussions, and improve identification of multidimensional symptoms in patients with progressive MS. An NP-embedded clinic can improve palliative care provided to this vulnerable population.","PeriodicalId":54807,"journal":{"name":"Journal of Hospice & Palliative Nursing","volume":"28 5","pages":"230-236"},"PeriodicalIF":1.3,"publicationDate":"2026-10-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"148914416","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

The Language of Compassion: Inclusive Communication in Palliative Nursing. 同情的语言：姑息护理中的包容性沟通。

IF 1.3 4区医学

Journal of Hospice & Palliative Nursing Pub Date : 2026-09-30 DOI: 10.1097/NJH.0000000000001268

Lisa Cross, Rachael Salguero, Alexander Wolf

{"title":"The Language of Compassion: Inclusive Communication in Palliative Nursing.","authors":"Lisa Cross, Rachael Salguero, Alexander Wolf","doi":"10.1097/NJH.0000000000001268","DOIUrl":"https://doi.org/10.1097/NJH.0000000000001268","url":null,"abstract":"Communication is fundamental in palliative care, yet the language used by health care providers may unintentionally perpetuate stigma, bias, or misunderstanding during emotionally challenging conversations. Inclusive language, defined as communication that is respectful, person-centered, and culturally responsive, fosters trust, supports shared decision-making, and promotes equitable care for patients and families facing serious illness. This article examines the role of inclusive language in palliative care through the lens of Carper's pattern of personal knowing and explores common communication challenges encountered in clinical practice. Using 3 fictional case studies, we illustrate how commonly used phrases may inadvertently undermine patient dignity, reinforce stigma, or create confusion about goals of care. Practical recommendations are provided to help nurses and other clinicians replace noninclusive language with communication that affirms patient values, supports meaningful dialogue, and strengthens therapeutic relationships. Strategies are presented at the individual, interdisciplinary, and systems levels to facilitate the integration of inclusive language into everyday palliative care practice. By emphasizing practical communication strategies grounded in evidence and person-centered care, this article positions inclusive language as an essential component of compassionate and equitable palliative nursing practice.","PeriodicalId":54807,"journal":{"name":"Journal of Hospice & Palliative Nursing","volume":" ","pages":""},"PeriodicalIF":1.3,"publicationDate":"2026-09-30","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"149082937","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Medically Administered Nutrition and Hydration. 医学管理营养和水合作用。

IF 1.3 4区医学

Journal of Hospice & Palliative Nursing Pub Date : 2026-09-09 DOI: 10.1097/NJH.0000000000001270

Brandon M Varilek, Margaret M Mahon, Bridget J Perry, Heather Coats, Betty Ferrell

引用次数: 0

Do Not Play: Recognizing Spiritual Distress in Serious Illness. 不要玩：认识重病中的精神痛苦。

IF 1.3 4区医学

Journal of Hospice & Palliative Nursing Pub Date : 2026-09-02 DOI: 10.1097/NJH.0000000000001262

Jeanna A Ford

{"title":"Do Not Play: Recognizing Spiritual Distress in Serious Illness.","authors":"Jeanna A Ford","doi":"10.1097/NJH.0000000000001262","DOIUrl":"https://doi.org/10.1097/NJH.0000000000001262","url":null,"abstract":"Spiritual distress is a significant yet frequently underrecognized component of serious illness and palliative care. Although spirituality is recognized as a core domain of quality palliative care, patients often express spiritual suffering through grief, mistrust, anger, identity, trauma, or existential concerns rather than explicitly religious language. This article explores the role of spiritual assessment and open-ended inquiry in recognizing spiritual distress through the case of an 86-year-old Black male with metastatic prostate cancer who repeatedly refused to answer standardized questions regarding spiritual distress. Although he identified as agnostic, broader conversations revealed profound sources of meaning, suffering, dignity, and peace shaped by experiences of racism, institutional mistrust, family, music, and legacy. The case illustrates how spiritual distress may emerge indirectly and highlights the limitations of relying solely on structured screening tools. Common spiritual assessment frameworks are reviewed, along with the importance of therapeutic presence, compassionate curiosity, and culturally responsive communication. Nurses and advanced practice registered nurses are uniquely positioned to recognize subtle manifestations of spiritual suffering and facilitate whole-person care through open-ended, trauma-informed approaches to spiritual assessment.","PeriodicalId":54807,"journal":{"name":"Journal of Hospice & Palliative Nursing","volume":" ","pages":""},"PeriodicalIF":1.3,"publicationDate":"2026-09-02","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"148876857","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Behind the Caregiving Role-Compassion Fatigue Among Family Caregivers in Palliative Care: A Qualitative Study. 姑息治疗中家庭照护者关怀角色背后的同情疲劳：质性研究。

IF 1.3 4区医学

Journal of Hospice & Palliative Nursing Pub Date : 2026-08-25 DOI: 10.1097/NJH.0000000000001249

Ulviye Ozcan Yuce, Nilay Bektas Akpinar

引用次数: 0

A Dual-Component Nurse Practitioner Intervention to Improve Symptom Management for Caregivers of Persons Living With Dementia: A Pilot Study. 双组分执业护士干预改善痴呆症患者护理者的症状管理：一项试点研究。

IF 1.3 4区医学

Journal of Hospice & Palliative Nursing Pub Date : 2026-08-24 DOI: 10.1097/NJH.0000000000001232

Veerawat Phongtankuel, Mary Ballin, Jerad Moxley, Taeyoung Park, Micah Denzel Toliver, Giancarlo Chuquitarco, Sara J Czaja, Ronald D Adelman, Vanessa Liao, M C Reid

{"title":"A Dual-Component Nurse Practitioner Intervention to Improve Symptom Management for Caregivers of Persons Living With Dementia: A Pilot Study.","authors":"Veerawat Phongtankuel, Mary Ballin, Jerad Moxley, Taeyoung Park, Micah Denzel Toliver, Giancarlo Chuquitarco, Sara J Czaja, Ronald D Adelman, Vanessa Liao, M C Reid","doi":"10.1097/NJH.0000000000001232","DOIUrl":"https://doi.org/10.1097/NJH.0000000000001232","url":null,"abstract":"The number of patients living with dementia (PLWD) has steadily increased, making it the fifth leading cause of death among adults. While hospice care is standard for end-of-life symptom management, predicting 6-month survival is challenging, leaving many who could benefit ineligible. The study team conducted a single-armed pilot study implementing a nurse-practitioner-led telehealth program for caregivers at an outpatient clinic, focusing on symptom management for PLWD. The study team recruited 15 caregivers with a mean age of 68 years. Most were women (60%), non-Hispanic (80%), White (67%), and children of the patient (67%). A total of 86 tele-visits were conducted. Overall, 14 caregivers found it easy to learn how to access the tele-visits. In 85 of 86 visits, caregivers felt it addressed their concerns, and all (N = 15) were satisfied with the program. Caregiver burden (12-item Zarit Burden Interview) decreased significantly (β = -0.79 (95% CI -1.22 to -0.36), P = .001), with no significant change in anxiety (General Anxiety Disorder-7), depression (Patient Health Questionnaire-9), or pain scores (Doloplus-2). The data suggest that a nurse-practitioner-led telehealth program is a feasible and acceptable intervention for caregivers caring for PLWD, with improvement in caregiver burden scores. Future studies are needed to examine its efficacy and broader implementation.","PeriodicalId":54807,"journal":{"name":"Journal of Hospice & Palliative Nursing","volume":" ","pages":""},"PeriodicalIF":1.3,"publicationDate":"2026-08-24","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"148801777","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0