Journal of Hospice & Palliative Nursing最新文献

Reducing Falls for Patients Receiving Hospice Care: A Quality Improvement Project. 减少接受临终关怀的病人跌倒：一项品质改善计画。

IF 1.3 4区医学

Journal of Hospice & Palliative Nursing Pub Date : 2025-10-01 Epub Date: 2025-08-21 DOI: 10.1097/NJH.0000000000001147

Michele E Gaguski

{"title":"Reducing Falls for Patients Receiving Hospice Care: A Quality Improvement Project.","authors":"Michele E Gaguski","doi":"10.1097/NJH.0000000000001147","DOIUrl":"10.1097/NJH.0000000000001147","url":null,"abstract":"Although patient falls in the acute care setting have been thoroughly studied, published studies exploring falls for patients receiving hospice care remain limited. Patients receiving hospice care present with considerable risk factors for falls, including physical and cognitive changes associated with a terminal diagnosis. An increasing pattern of patient fall rates was identified at the organization and a quality initiative was developed to address this aspect of patient care. The SMART aim of this project was to establish a sustainable process to decrease the percentage of patient falls from 5% to 3% in an organization's hospice regional branch within a 3-month period. This project adopted the Plan-Do-Study-Act process as its change model. A bundled intervention was introduced including early referrals to the therapy team for newly admitted patients, staff education, and providing supplemental patient education. The measurable outcome was to achieve a decrease in fall rates. Although the goal was not achieved within the 3-month timeframe, data did indicate a positive trend toward the intended goal. Results indicated ongoing opportunities for nurses to enhance reliability in making therapy referrals. However, nurses demonstrated consistency in providing supplemental education.","PeriodicalId":54807,"journal":{"name":"Journal of Hospice & Palliative Nursing","volume":" ","pages":"E241-E247"},"PeriodicalIF":1.3,"publicationDate":"2025-10-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144979240","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

"Deeds, Not Words: A Commitment to Our Mission". “行而不言：对使命的承诺”。

IF 1.3 4区医学

Journal of Hospice & Palliative Nursing Pub Date : 2025-10-01 Epub Date: 2025-08-21 DOI: 10.1097/NJH.0000000000001150

Kirsten Inducil Buen

引用次数: 0

A Rapid Review of States' Portable Medical Order Forms and the National POLST Paradigm for Advanced Care Planning. 快速审查国家便携式医疗订单表和国家先进护理计划的POLST范式。

IF 1.3 4区医学

Journal of Hospice & Palliative Nursing Pub Date : 2025-10-01 Epub Date: 2025-08-21 DOI: 10.1097/NJH.0000000000001149

Tracy Fasolino, Megan Pate, Nancy Dias, Rikki Hooper, Lena Burgess, Megan Golden, Savannah Horvick, Jamie Rouse, Elizabeth Snyder

{"title":"A Rapid Review of States' Portable Medical Order Forms and the National POLST Paradigm for Advanced Care Planning.","authors":"Tracy Fasolino, Megan Pate, Nancy Dias, Rikki Hooper, Lena Burgess, Megan Golden, Savannah Horvick, Jamie Rouse, Elizabeth Snyder","doi":"10.1097/NJH.0000000000001149","DOIUrl":"10.1097/NJH.0000000000001149","url":null,"abstract":"Hospice and palliative care nurses initiate goals of care conversations with patients and family members while advocating for the completion of advance directives. As leaders in these conversations, nurses must have a working knowledge of the various forms, such as portable medical orders. The National Physician Orders for Life-Sustaining Treatment (POLST) Paradigm calls for the standardization of portable medical orders to ensure goal-concordant care that can cross all healthcare settings. This rapid review provides an overview of state-level portable medical order forms, compares and contrasts them with the National POLST form, and proposes policy recommendations for hospice and palliative care nurses to advocate within their state, territory, or tribal nation. Portable medical order forms were obtained from governmental websites, and data were extracted systematically, with the National POLST form serving as the template. Only 5 states use the National POLST form, and the other 46 demonstrate wide variations in form structure, sequence of orders, and level of specificity for treatment options. No portable medical orders were identified for US territories and tribal nations. Hospice and palliative care nurses can utilize the results of this rapid review to advocate for legislative changes, such as reordering treatment options, integrating rather than always starting with high-intensity care.","PeriodicalId":54807,"journal":{"name":"Journal of Hospice & Palliative Nursing","volume":" ","pages":"230-238"},"PeriodicalIF":1.3,"publicationDate":"2025-10-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144978849","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Benefits and Burdens of Research Participation: A Mixed Methods Systematic Review in Palliative and End-of-Life Care. 参与研究的益处与负担：缓和与临终关怀的混合方法系统回顾。

IF 1.3 4区医学

Journal of Hospice & Palliative Nursing Pub Date : 2025-10-01 Epub Date: 2025-08-21 DOI: 10.1097/NJH.0000000000001140

Cara L Wallace, Stephanie P Wladkowski, Ruaa Al-Juboori, Anna Wingo, Kathryn W Coccia, Rebecca Hyde, Verna Hendricks-Ferguson

{"title":"Benefits and Burdens of Research Participation: A Mixed Methods Systematic Review in Palliative and End-of-Life Care.","authors":"Cara L Wallace, Stephanie P Wladkowski, Ruaa Al-Juboori, Anna Wingo, Kathryn W Coccia, Rebecca Hyde, Verna Hendricks-Ferguson","doi":"10.1097/NJH.0000000000001140","DOIUrl":"10.1097/NJH.0000000000001140","url":null,"abstract":"Research participation of hospice and palliative care patients and family caregivers is essential to develop and test best practices. Yet, healthcare professionals are often hesitant to ask patients and caregivers to participate in research, fearing it is too intrusive or unethical during a sensitive time. This review focused on the motivating factors, benefits, and burdens of research participation for patients with serious illness and their family caregivers. Using the Preferred Reporting Items for Systematic Reviews and Meta-Analyses Checklist, searches were conducted in 4 online databases for articles between January 1, 2015 and January 31, 2024. The team reviewed 3169 articles; 28 met inclusion criteria and findings were extracted and synthesized using the Joanna Briggs Institute's mixed-method systematic reviews methodology following evaluation of each study. Results suggest greater benefits than burdens, reporting value in participation even when a burden is experienced. Burdens point to important social determinants of health concerns in research participation. For clinicians and researchers, connecting patients and caregivers to palliative and end-of-life research may be both beneficial as a contribution to scientific literature and as an additional source of ongoing support.","PeriodicalId":54807,"journal":{"name":"Journal of Hospice & Palliative Nursing","volume":" ","pages":"E211-E224"},"PeriodicalIF":1.3,"publicationDate":"2025-10-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144978993","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

"We don't take each other for granted anymore": Preloss Grief Among Older Adult Spousal Caregivers of Someone With Advanced Cancer. “我们不再把彼此视为理所当然”：晚期癌症患者的老年配偶照顾者的临终前悲伤。

IF 1.3 4区医学

Journal of Hospice & Palliative Nursing Pub Date : 2025-10-01 Epub Date: 2025-08-21 DOI: 10.1097/NJH.0000000000001146

C Robert Bennett, Tina M Mason, Katharine Sheffield, Cindy Tofthagen

{"title":"\"We don't take each other for granted anymore\": Preloss Grief Among Older Adult Spousal Caregivers of Someone With Advanced Cancer.","authors":"C Robert Bennett, Tina M Mason, Katharine Sheffield, Cindy Tofthagen","doi":"10.1097/NJH.0000000000001146","DOIUrl":"10.1097/NJH.0000000000001146","url":null,"abstract":"Spousal caregivers of persons living with serious illnesses experience significant emotional and social challenges related to their caregiving role. The purpose of this study was to gain a deeper understanding of how spousal caregivers perceive current and anticipated losses associated with caring for a partner living with advanced cancer. Spousal caregiver participants engaged in semistructured interviews about their caregiving experiences and subsequent changes that occurred in their lives. Caregivers experienced social changes, emotional energy investment, and relationship changes as sources of grief. Social changes involved a loss of freedom and increased isolation, while emotional energy investment manifested as suppressed emotions and fears about the future. Relationship changes encompassed both positive and negative shifts in communication and roles. Targeted interventions, such as support groups and counseling, are essential to mitigate the negative impacts of caregiving and improve the well-being of older adult spousal caregivers.","PeriodicalId":54807,"journal":{"name":"Journal of Hospice & Palliative Nursing","volume":" ","pages":"E235-E240"},"PeriodicalIF":1.3,"publicationDate":"2025-10-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144978921","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Reflective Writing to Support Nursing Students' Ethical Understanding of End-of-Life Care: A Phenomenological Study. 反思性写作支持护生对临终关怀的伦理理解：现象学研究。

IF 1.3 4区医学

Journal of Hospice & Palliative Nursing Pub Date : 2025-10-01 Epub Date: 2025-08-21 DOI: 10.1097/NJH.0000000000001145

Diego Lopane, Stefano Mancin, Simone Cosmai, Alice Maria Santagostino, Sarah Scollo, Cristina Chiari, Daniela Cattani, Chiara Provasoli, Giovanni Cangelosi, Mauro Parozzi, Sara Morales Palomares, Annalisa Saetta, Laura Velutti, Beatrice Mazzoleni

{"title":"Reflective Writing to Support Nursing Students' Ethical Understanding of End-of-Life Care: A Phenomenological Study.","authors":"Diego Lopane, Stefano Mancin, Simone Cosmai, Alice Maria Santagostino, Sarah Scollo, Cristina Chiari, Daniela Cattani, Chiara Provasoli, Giovanni Cangelosi, Mauro Parozzi, Sara Morales Palomares, Annalisa Saetta, Laura Velutti, Beatrice Mazzoleni","doi":"10.1097/NJH.0000000000001145","DOIUrl":"10.1097/NJH.0000000000001145","url":null,"abstract":"End-of-life care requires nurses to integrate ethical sensitivity, emotional presence, and effective communication. Reflective writing, a key component of Narrative Medicine, offers nursing students a structured method to process complex emotional experiences and deepen their ethical understanding. This study investigated how third-year nursing students reflected on ethical issues and emotional responses related to end-of-life care through a structured reflective writing activity conducted after a film-based educational session. A qualitative phenomenological approach was applied to analyze 55 written reflections produced by Italian nursing students. The reflections were collected following a classroom screening of a film portraying terminal illness and decision-making at the end of life. Data were examined thematically using Braun and Clarke method. Four key themes emerged: emotional responses to death; relational and ethical dynamics; communication and connection; and temporal-spiritual meaning-making. Students' reflections revealed an emerging awareness of ethical dimensions such as patient autonomy, vulnerability, and the value of nonverbal communication. Through reflective writing, participants articulated emotions including fear, anger, and guilt and engaged in personal meaning-making related to self-determination and compassionate care. Overall, reflective writing facilitated the development of ethical awareness and emotional resilience among students preparing for palliative care practice. The integration of structured reflection into hospice and palliative nursing education may enhance students' readiness to deliver empathetic, person-centered care.","PeriodicalId":54807,"journal":{"name":"Journal of Hospice & Palliative Nursing","volume":" ","pages":"245-252"},"PeriodicalIF":1.3,"publicationDate":"2025-10-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144979231","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Clinical Assessment Tools for Dyspnea in People With Intellectual and Developmental Disabilities: A Review of Instruments. 智力和发育障碍者呼吸困难的临床评估工具：工具综述。

IF 1.3 4区医学

Journal of Hospice & Palliative Nursing Pub Date : 2025-10-01 Epub Date: 2025-08-21 DOI: 10.1097/NJH.0000000000001144

Caitlyn M Moore

{"title":"Clinical Assessment Tools for Dyspnea in People With Intellectual and Developmental Disabilities: A Review of Instruments.","authors":"Caitlyn M Moore","doi":"10.1097/NJH.0000000000001144","DOIUrl":"10.1097/NJH.0000000000001144","url":null,"abstract":"Effective symptom assessment and management are the cornerstone of quality palliative care, yet unique barriers exist for people with intellectual and developmental disabilities (IDD). More recently, there has been growing interest in pain assessment for people with IDD, but other symptoms, such as dyspnea, have not been as readily explored. People with IDD experience death due to respiratory conditions at rates higher than the general population, yet not much is known about dyspnea assessment in this population. Individuals with IDD are often left out of research, including studies that validate clinical assessment tools. Communication differences or cognitive abilities can impact the reliability of self-reports for some people with IDD, making the understanding of clinical assessment tools for this population more important for palliative care clinicians in managing symptoms. Currently, no clinical assessment scales have been validated for use in people with IDD. This article examines 4 commonly used and validated clinical assessment tools for dyspnea and offers recommendations for future research and comprehensive dyspnea assessment in people with IDD.","PeriodicalId":54807,"journal":{"name":"Journal of Hospice & Palliative Nursing","volume":" ","pages":"253-261"},"PeriodicalIF":1.3,"publicationDate":"2025-10-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144979021","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

End-of-Life Care Competency in Long-term Care Facilities for Care Providers in Thailand: A Delphi Study. 泰国长期照护机构照护提供者的临终照护能力：一项德尔菲研究。

IF 1.3 4区医学

Journal of Hospice & Palliative Nursing Pub Date : 2025-10-01 Epub Date: 2025-08-28 DOI: 10.1097/NJH.0000000000001134

Siriphan Sasat, Wasinee Wisesrith, Kieko Iida, Sumie Ikezaki, Mayuko Tsujimura

{"title":"End-of-Life Care Competency in Long-term Care Facilities for Care Providers in Thailand: A Delphi Study.","authors":"Siriphan Sasat, Wasinee Wisesrith, Kieko Iida, Sumie Ikezaki, Mayuko Tsujimura","doi":"10.1097/NJH.0000000000001134","DOIUrl":"10.1097/NJH.0000000000001134","url":null,"abstract":"The global shift toward an aging population, evident in Thailand, highlights the critical need for end-of-life care (EOLC) competencies among care providers in long-term care facilities (LTCFs). As the number of older people requiring complex and compassionate care at the end of life continues to rise, the competencies required for care providers in Thai LTCFs remain underexplored. This study aimed to identify the key competencies required to deliver effective EOLC in Thai LTCFs. A Delphi method was used, engaging a panel of 12 experts, including nurses, academics, and LTCF managers. The study achieved consensus on 7 core competencies, encompassing 32 subcompetencies essential for high-quality EOLC. These competencies include knowledge of EOLC, caregiving skills, communication, leadership, innovation, ethical decision-making, and professional development. This study provides a culturally relevant framework for EOLC competencies in Thai LTCFs, emphasizing the importance of integrating technical and interpersonal skills to enhance the quality of care for older people in their final stages of life. These findings can inform educational programs and policy development, ensuring that care providers are adequately prepared to meet the complex needs of this vulnerable population.","PeriodicalId":54807,"journal":{"name":"Journal of Hospice & Palliative Nursing","volume":" ","pages":"E205-E210"},"PeriodicalIF":1.3,"publicationDate":"2025-10-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144043473","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Sustainability of a Nurse-Led End of Life (PEACH) Community Model of Care. 护士主导的临终关怀（PEACH）社区模式的可持续性。

IF 1.3 4区医学

Journal of Hospice & Palliative Nursing Pub Date : 2025-10-01 Epub Date: 2025-08-21 DOI: 10.1097/NJH.0000000000001143

Josephine Sau Fan Chow, Nutan Maurya, Kim Jobburn, Janeane Harlum

{"title":"Sustainability of a Nurse-Led End of Life (PEACH) Community Model of Care.","authors":"Josephine Sau Fan Chow, Nutan Maurya, Kim Jobburn, Janeane Harlum","doi":"10.1097/NJH.0000000000001143","DOIUrl":"10.1097/NJH.0000000000001143","url":null,"abstract":"Palliative Extended and Care at Home (PEACH) program, implemented in 2013, aimed to support palliative care clients in their last days of life at their own home. Understanding the factors that influence the sustainability of a program was vital to improving the longevity, adaptability, and quality of service delivery models. This study aimed to assess the sustainability of PEACH model of care through analysis of data at different time points where services were delivered by different service providers. Deidentified data were collected retrospectively for all consecutive patients receiving a PEACH package until separation from the package to explore the clinical and sociodemographic determinants of the sustainable PEACH model of care. Additionally, feedback on the services via survey was obtained from the clients' primary carers. The majority of the PEACH package recipients who had a clear preference to die at home when the service was initiated were able to achieve their goal to die at home (77%-84%). Eighty-six percent of the carers were \"satisfied\" or \"very satisfied\" with the overall care provided by PEACH. The result shows that PEACH model of care managed to sustain and optimize the patients' outcome despite transitioning to different service providers for partnerships and collaboration.","PeriodicalId":54807,"journal":{"name":"Journal of Hospice & Palliative Nursing","volume":" ","pages":"E225-E234"},"PeriodicalIF":1.3,"publicationDate":"2025-10-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC12398344/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144979243","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Innovating for imPACT: Pilot Study Evaluation of a Pediatric Palliative Care Transition of Care Telehealth Intervention. 创新的影响：试点研究评估儿童姑息治疗过渡护理远程医疗干预。

IF 1.3 4区医学

Journal of Hospice & Palliative Nursing Pub Date : 2025-10-01 Epub Date: 2025-08-21 DOI: 10.1097/NJH.0000000000001141

Danielle Altares Sarik, Bianca Santamarina Lazo, Karina A Gattamorta, Evelyn Abrahante Terrell, Leslie Herrera, Gwen Erkonen

引用次数: 0