{"title":"Do Not Play: Recognizing Spiritual Distress in Serious Illness.","authors":"Jeanna A Ford","doi":"10.1097/NJH.0000000000001262","DOIUrl":"https://doi.org/10.1097/NJH.0000000000001262","url":null,"abstract":"<p><p>Spiritual distress is a significant yet frequently underrecognized component of serious illness and palliative care. Although spirituality is recognized as a core domain of quality palliative care, patients often express spiritual suffering through grief, mistrust, anger, identity, trauma, or existential concerns rather than explicitly religious language. This article explores the role of spiritual assessment and open-ended inquiry in recognizing spiritual distress through the case of an 86-year-old Black male with metastatic prostate cancer who repeatedly refused to answer standardized questions regarding spiritual distress. Although he identified as agnostic, broader conversations revealed profound sources of meaning, suffering, dignity, and peace shaped by experiences of racism, institutional mistrust, family, music, and legacy. The case illustrates how spiritual distress may emerge indirectly and highlights the limitations of relying solely on structured screening tools. Common spiritual assessment frameworks are reviewed, along with the importance of therapeutic presence, compassionate curiosity, and culturally responsive communication. Nurses and advanced practice registered nurses are uniquely positioned to recognize subtle manifestations of spiritual suffering and facilitate whole-person care through open-ended, trauma-informed approaches to spiritual assessment.</p>","PeriodicalId":54807,"journal":{"name":"Journal of Hospice & Palliative Nursing","volume":" ","pages":""},"PeriodicalIF":1.3,"publicationDate":"2026-09-02","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"148876857","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"Behind the Caregiving Role-Compassion Fatigue Among Family Caregivers in Palliative Care: A Qualitative Study.","authors":"Ulviye Ozcan Yuce, Nilay Bektas Akpinar","doi":"10.1097/NJH.0000000000001249","DOIUrl":"https://doi.org/10.1097/NJH.0000000000001249","url":null,"abstract":"<p><p>This study aimed to explore the experiences and perceptions of family caregivers of patients receiving treatment in the palliative care unit of a public hospital due to various chronic illnesses, with a particular focus on compassion fatigue. A qualitative descriptive design informed by an interpretivist perspective was employed. Twelve family caregivers were recruited, and face-to-face, individual interviews were conducted. Data were collected through open-ended questions using a semi-structured interview guide. The analysis revealed 5 overarching themes: perceived emotional impacts of compassion fatigue, direct experiences related to compassion fatigue, life domains compromised because of caregiving responsibilities, strategies for maintaining meaningful personal time, and acceptance of the caregiving situation. The findings highlight the necessity of recognizing compassion fatigue at an early stage to minimize its adverse effects on both caregivers and patients. Supporting caregivers' well-being helps protect their health and sustain quality palliative care.</p>","PeriodicalId":54807,"journal":{"name":"Journal of Hospice & Palliative Nursing","volume":" ","pages":""},"PeriodicalIF":1.3,"publicationDate":"2026-08-25","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"148814779","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Veerawat Phongtankuel, Mary Ballin, Jerad Moxley, Taeyoung Park, Micah Denzel Toliver, Giancarlo Chuquitarco, Sara J Czaja, Ronald D Adelman, Vanessa Liao, M C Reid
{"title":"A Dual-Component Nurse Practitioner Intervention to Improve Symptom Management for Caregivers of Persons Living With Dementia: A Pilot Study.","authors":"Veerawat Phongtankuel, Mary Ballin, Jerad Moxley, Taeyoung Park, Micah Denzel Toliver, Giancarlo Chuquitarco, Sara J Czaja, Ronald D Adelman, Vanessa Liao, M C Reid","doi":"10.1097/NJH.0000000000001232","DOIUrl":"https://doi.org/10.1097/NJH.0000000000001232","url":null,"abstract":"<p><p>The number of patients living with dementia (PLWD) has steadily increased, making it the fifth leading cause of death among adults. While hospice care is standard for end-of-life symptom management, predicting 6-month survival is challenging, leaving many who could benefit ineligible. The study team conducted a single-armed pilot study implementing a nurse-practitioner-led telehealth program for caregivers at an outpatient clinic, focusing on symptom management for PLWD. The study team recruited 15 caregivers with a mean age of 68 years. Most were women (60%), non-Hispanic (80%), White (67%), and children of the patient (67%). A total of 86 tele-visits were conducted. Overall, 14 caregivers found it easy to learn how to access the tele-visits. In 85 of 86 visits, caregivers felt it addressed their concerns, and all (N = 15) were satisfied with the program. Caregiver burden (12-item Zarit Burden Interview) decreased significantly (β = -0.79 (95% CI -1.22 to -0.36), P = .001), with no significant change in anxiety (General Anxiety Disorder-7), depression (Patient Health Questionnaire-9), or pain scores (Doloplus-2). The data suggest that a nurse-practitioner-led telehealth program is a feasible and acceptable intervention for caregivers caring for PLWD, with improvement in caregiver burden scores. Future studies are needed to examine its efficacy and broader implementation.</p>","PeriodicalId":54807,"journal":{"name":"Journal of Hospice & Palliative Nursing","volume":" ","pages":""},"PeriodicalIF":1.3,"publicationDate":"2026-08-24","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"148801777","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Sharon E Bigger, Sasha Perez-Greenemeier, Schola Matovu, Sarah Cecilia Nuñez
{"title":"Respiro: A Community-Engaged Global Learning Experience for the International Development of Latino Palliative Care: Erratum.","authors":"Sharon E Bigger, Sasha Perez-Greenemeier, Schola Matovu, Sarah Cecilia Nuñez","doi":"10.1097/NJH.0000000000001266","DOIUrl":"https://doi.org/10.1097/NJH.0000000000001266","url":null,"abstract":"","PeriodicalId":54807,"journal":{"name":"Journal of Hospice & Palliative Nursing","volume":" ","pages":""},"PeriodicalIF":1.3,"publicationDate":"2026-08-21","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"148801755","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"The Influence of Individual-Based and Community-Based Learning on Self-Compassionate Attitudes and Behaviors.","authors":"Angela Snyder, Deborah Grassman, Felicia Rapozo","doi":"10.1097/NJH.0000000000001219","DOIUrl":"https://doi.org/10.1097/NJH.0000000000001219","url":null,"abstract":"<p><p>This study focused on 3 aspects of a virtual learning program on self-compassion: (1) changes in attitude and behavior at 3 time points: course initiation, course completion, and 6 weeks postcompletion, (2) differences between 2 formats: individual learning versus community learning, and (3) impact of 6 self-help tools. Eighty-eight randomly assigned participants were assigned to either an individual-learning group (ILG) or a community-learning group (CLG). Identical course information and materials were used in both groups; the difference was that the individual group privately watched the weekly video and had access to online interaction with each other, while the CLG watched the weekly video collectively on zoom followed by a live small-group interactive discussion. The results indicate that the course significantly improved attitude scores; the improvements occurred immediately at the completion of the course and were not temporary. Behavior scores also improved in both groups; however, participants within the CLG showed more behavioral improvement than participants in the ILG. Interestingly, the CLG rated the small-group interactive discussion as the most impactful tool, while the ILG rated the online interactive chat as the least impactful tool. These findings have relevance to both personal growth and well-being, as well as professional growth and employee wellness.</p>","PeriodicalId":54807,"journal":{"name":"Journal of Hospice & Palliative Nursing","volume":" ","pages":""},"PeriodicalIF":1.3,"publicationDate":"2026-08-18","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"148801807","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"Using Case Studies to Bridge the Undergraduate Nursing Education Gap in Palliative and Hospice Care.","authors":"Katherine Adams, Lisa Cross","doi":"10.1097/NJH.0000000000001228","DOIUrl":"https://doi.org/10.1097/NJH.0000000000001228","url":null,"abstract":"<p><p>Undergraduate nursing students struggle with understanding pharmacological pain management, especially in palliative care. New nurses indicate needing more experience with pain management and ethical dilemmas surrounding pain management. Despite increased focus on palliative care, nurses struggle when they enter the workforce. Historically, skills acquisition occurs during orientation; however, increased patients presenting with complex conditions require more support than orientation permits. Misconceptions in practice roles challenge new nurses in feeling comfortable delivering quality palliative care. This project aimed to develop real-life case scenarios aligned with palliative competencies for use in undergraduate courses. Literature was reviewed for current information, guiding the development of case studies set in 4 different care locations-long-term care, community, medical-surgical, and emergency department. Cases were mapped to align with palliative competencies and the essentials; this ensures ease of implementation over coursework, promoting confidence and competence in palliative interventions. Traditionally, palliative and hospice content is delivered with community courses, possibly limiting student competency across settings. These case studies present an opportunity for formative student assessment in pharmacological and other palliative management over 4 settings. Facilitation requires reflective techniques, and nurse faculty may need support in guiding discussions. Future research on the implementation of the case studies is warranted.</p>","PeriodicalId":54807,"journal":{"name":"Journal of Hospice & Palliative Nursing","volume":" ","pages":""},"PeriodicalIF":1.3,"publicationDate":"2026-08-06","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"148681070","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"It Doesn't Have to Hurt: Palliative Care for Trauma Patients.","authors":"Sofia Wronski, Sudha Natarajan, Vanessa Battista","doi":"10.1097/NJH.0000000000001236","DOIUrl":"10.1097/NJH.0000000000001236","url":null,"abstract":"<p><p>Trauma is a leading cause of mortality and long-term morbidity in the United States, yet palliative care remains inconsistently integrated into trauma care despite strong evidence of benefit. Palliative care advanced practice registered nurses (APRNs), traditionally experienced in chronic, life-limiting illness, are uniquely positioned to address the complex and evolving needs of trauma patients despite the acute, unpredictable nature of injury. This paper argues for the routine integration of palliative care into trauma care, examines the barriers to implementation, and highlights how palliative care APRNs can play an integral role in working with trauma patients, families, and interdisciplinary teams. Using a longitudinal case example, this paper examines team-based and patient-specific challenges-including misconceptions about palliative care, communication barriers, time pressures, grief, symptom management, and long-term survivorship-and illustrates how APRNs can address these gaps. Integrating palliative care into trauma care reframes serious injury as a condition warranting the same holistic, person-centered approach applied to serious illness and underscores the critical leadership role of APRNs in advancing equitable, compassionate care for patients with serious injury across the continuum from recovery to death.</p>","PeriodicalId":54807,"journal":{"name":"Journal of Hospice & Palliative Nursing","volume":" ","pages":"154-161"},"PeriodicalIF":1.3,"publicationDate":"2026-08-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"147950318","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"One Teenager's Choice: Continue Life Support or Let Go.","authors":"Melissa Skoff","doi":"10.1097/NJH.0000000000001223","DOIUrl":"10.1097/NJH.0000000000001223","url":null,"abstract":"","PeriodicalId":54807,"journal":{"name":"Journal of Hospice & Palliative Nursing","volume":"28 4","pages":"200-201"},"PeriodicalIF":1.3,"publicationDate":"2026-08-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"148334525","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Elizabeth J Baldwin, Abigail Short, Kimberly Wehner, Ashley Zanter, Lorinda A Coombs
{"title":"Improving Access to Advance Care Planning: Integrating Nurse-Driven Advance Care Planning Follow-Up for Adult Allogeneic Bone Marrow Transplant Patients.","authors":"Elizabeth J Baldwin, Abigail Short, Kimberly Wehner, Ashley Zanter, Lorinda A Coombs","doi":"10.1097/NJH.0000000000001193","DOIUrl":"10.1097/NJH.0000000000001193","url":null,"abstract":"<p><p>Allogeneic bone marrow transplant patients face significant risks of morbidity and mortality. National guidelines recommend early and frequent advance care planning (ACP) discussions to prepare patients for these risks. At University of North Carolina Medical Center, allogeneic bone marrow transplant patients receive preadmission ACP discussions but lack follow-up during inpatient care, presenting an opportunity for nurse-driven ACP follow-up. This project aimed to improve nurse-driven ACP documentation and confidence, while reducing barriers, through an educational intervention and standardized ACP protocol. Over 3 months, a pre and post intervention quality improvement project used surveys and chart audits to assess the impact of ACP training and a standardized follow-up protocol. Pre and post surveys measured changes in nurse confidence, discussion frequency, and barriers. Chart audits tracked ACP documentation. Ten registered nurses completed 3 surveys, demonstrating significant improvements in nurse confidence ( P = .002), frequency of ACP discussions ( P = .022), and documentation ( P < .001). Reported barriers decreased significantly. Chart audits confirmed improved ACP documentation, with 100% of eligible admissions receiving ACP follow-up. Educational interventions and standardized protocols may enhance nurse involvement in ACP discussions and help reduce barriers. These findings suggest that nurse-led ACP is a promising strategy, though further research is needed to optimize workflows and assess long-term sustainability.</p>","PeriodicalId":54807,"journal":{"name":"Journal of Hospice & Palliative Nursing","volume":" ","pages":"175-181"},"PeriodicalIF":1.3,"publicationDate":"2026-08-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"145710087","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"HPNA Position Statement: Medical Cannabis.","authors":"","doi":"10.1097/NJH.0000000000001207","DOIUrl":"10.1097/NJH.0000000000001207","url":null,"abstract":"","PeriodicalId":54807,"journal":{"name":"Journal of Hospice & Palliative Nursing","volume":"28 4","pages":"151-153"},"PeriodicalIF":1.3,"publicationDate":"2026-08-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"148334469","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}