{"title":"The Role of Collaboration in Early Palliative Care Referrals for Head and Neck Cancer.","authors":"Julie A Bekius","doi":"10.1097/NJH.0000000000001192","DOIUrl":"10.1097/NJH.0000000000001192","url":null,"abstract":"<p><p>Head and neck cancer chemotherapy and radiotherapy given over a 6-week treatment regimen produces significant symptoms. These symptoms escalate during weeks 2 and 3, continuing for weeks or months after treatment. This impacts quality of life and can result in delays or cessation of treatment. Involvement of palliative care earlier in treatment can result in improved cancer-related symptoms, quality of life, and patient outcomes. The primary aim of this project was to improve the timing of palliative care referrals for patients with head and neck cancer, ideally before week 2 of treatment. The secondary aim of the project was to assess whether patient-reported pain and distress scores improved from the initial visit to visit 2 with palliative care. A retrospective chart audit was completed for baseline data. The project intervention included a multiteam collaborative huddle to educate referral sources about the benefit of earlier palliative care referrals. Results showed improved referral timing from 28% to 7% referred greater than 14 days after initiation of cancer treatment. For the 58 charts with completed pain and distress scores, 46.5% of patients had improved pain scores, and 53.4% had improvement in distress scores from the first to the second palliative care visits.</p>","PeriodicalId":54807,"journal":{"name":"Journal of Hospice & Palliative Nursing","volume":" ","pages":"132-138"},"PeriodicalIF":1.3,"publicationDate":"2026-06-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"145999794","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Monica L Beck, Katherine P Supiano, Margaret F Clayton, Kathleen Shannon Dorcy, Kristin G Cloyes
{"title":"Oncology Nurses' Perceptions of Barriers and Facilitators to Conducting Spiritual Histories.","authors":"Monica L Beck, Katherine P Supiano, Margaret F Clayton, Kathleen Shannon Dorcy, Kristin G Cloyes","doi":"10.1097/NJH.0000000000001194","DOIUrl":"10.1097/NJH.0000000000001194","url":null,"abstract":"<p><p>Nurses can relieve spiritual suffering experienced by advanced cancer patients through meaningful spiritual conversations (eg, spiritual histories), but may be reticent to do so, citing lack of knowledge, skills, and time as primary barriers. The Lift the Spirit (LtS), a novel online educational communication intervention targeting these barriers, was tested using a pilot quasi-experimental concurrent mixed-methods design. The LtS pilot integrated online education, simulated spiritual history assessment using the Faith, Importance, Community, Action tool, and post-test debriefing with nurse participants (n = 17) to elicit their perceptions of the facilitators and barriers of the LtS and conducting spiritual histories in clinical practice. Debrief interview data were deductively then inductively coded, and content analyzed to describe patterns of response. Participants described barriers and facilitators at the levels of institution/profession (lack of education and training), self (vulnerability and perceived riskiness), and patient (cultural difference) that were similar to barriers noted in the literature. Facilitators included feeling equipped and supported, and having external cues as reminders. No new barriers were uncovered, but the degree of negative affect (eg, angst, fear, and vulnerability) in the responses was discovered. The LtS, primarily the Faith, Importance, Community, Action tool and role-play components, demonstrated clinical utility in equipping nurses to overcome barriers to spiritual care in clinical practice.</p>","PeriodicalId":54807,"journal":{"name":"Journal of Hospice & Palliative Nursing","volume":" ","pages":"e130-e138"},"PeriodicalIF":1.3,"publicationDate":"2026-06-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"145710078","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"Community-Emergent Advance Care Planning Programming for LGBTQ+ Older Adults.","authors":"Elizabeth Giles","doi":"10.1097/NJH.0000000000001195","DOIUrl":"10.1097/NJH.0000000000001195","url":null,"abstract":"<p><p>The percent of the American population that self-identifies as LGBTQ+ is currently doubling generation after generation. Advance Care Planning and Health Care Proxy completion have unique challenges in this growing, aging queer community due to nontraditional family structures, as well as risk factors from historical and current discrimination. LGBTQ+ older adults benefit from a systematized and provider-led approach to assistance with making difficult decisions and mitigating their vulnerability in health settings. This article highlights the implementation of a novel, community-emergent, and evidence-based LGBTQ+-specific Advance Care Planning toolkit as a free, online resource that can be accessed and used by any patient or provider in America to address this critical palliative care need. This quality improvement project empowers nurse-led, interdisciplinary health equity initiatives using this novel online Advance Care Planning toolkit resource to serve vulnerable populations.</p>","PeriodicalId":54807,"journal":{"name":"Journal of Hospice & Palliative Nursing","volume":" ","pages":"139-143"},"PeriodicalIF":1.3,"publicationDate":"2026-06-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"145709889","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Sarah Mollman, Theresa Garren-Grubbs, Brandi Pravecek, Shelby Boettner, Charlene Berke
{"title":"Faculty and Student Preparedness for Primary Palliative Care: A Comparative Study.","authors":"Sarah Mollman, Theresa Garren-Grubbs, Brandi Pravecek, Shelby Boettner, Charlene Berke","doi":"10.1097/NJH.0000000000001185","DOIUrl":"10.1097/NJH.0000000000001185","url":null,"abstract":"<p><p>While it is recommended that nurses be prepared to deliver primary palliative care, these services remain inaccessible for many. Nurses, as frontline providers, should have the knowledge and skills to provide this care. The aim of this study was to determine faculty experiences in palliative and end-of-life care and how those experiences affected their perceptions of student preparedness to deliver primary palliative care and their preparedness to teach primary palliative care. A descriptive, comparative study in the Midwestern United States was conducted with faculty from 4 universities integrating palliative care education into their nursing programs. Faculty with teaching experience in palliative care significantly rated student preparedness to deliver primary palliative care higher than faculty without this teaching experience, P < .01. Having education or training in palliative care had a significant effect on faculty's self-reported preparedness to teach primary palliative care after controlling for years of teaching experience, F (1, 30) = 6.935, P = .013. These findings can be used as nursing schools intentionally implement palliative care in accordance with the American Association of Colleges of Nursing Essentials.</p>","PeriodicalId":54807,"journal":{"name":"Journal of Hospice & Palliative Nursing","volume":" ","pages":"117-123"},"PeriodicalIF":1.3,"publicationDate":"2026-06-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"145710112","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"Symptom Series: Anorexia and Cachexia.","authors":"Elizabeth Schack, Elizabeth Capano","doi":"10.1097/NJH.0000000000001208","DOIUrl":"https://doi.org/10.1097/NJH.0000000000001208","url":null,"abstract":"<p><p>Anorexia/cachexia syndrome is being progressively recognized as a serious aspect of advanced or terminal illness. This paper focuses on its assessment and management, which is complicated by numerous obstacles. These include a lack of clear definitions and guidelines, inconsistency in assessment and management strategies, and knowledge deficits regarding this complex clinical syndrome in health professionals and caregiving families. It focuses on the inherent role of palliative care providers as leaders striving to support, understand, and translate the developing evidence that guides our care. The complex and potentially devastating impact of this problem demands a holistic response. Palliative care nurses are optimally situated to coordinate and administer the necessary multidisciplinary approach to address anorexia and cachexia in advanced, progressive disease.</p>","PeriodicalId":54807,"journal":{"name":"Journal of Hospice & Palliative Nursing","volume":"28 3","pages":"111-113"},"PeriodicalIF":1.3,"publicationDate":"2026-06-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"147846353","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Federica Dellafiore, Maria Chiara Gandini, Laura Bertarini, Vera Canepa, Francesca Tura, Giovanna Artioli
{"title":"Exploring Spiritual Awareness Among Nurses in Advanced Palliative Education: Insights From a Qualitative Study.","authors":"Federica Dellafiore, Maria Chiara Gandini, Laura Bertarini, Vera Canepa, Francesca Tura, Giovanna Artioli","doi":"10.1097/NJH.0000000000001177","DOIUrl":"10.1097/NJH.0000000000001177","url":null,"abstract":"<p><p>Spirituality is increasingly recognized as a core element of holistic nursing care, yet its personal meaning and application in clinical practice remain underexplored-especially among nurses pursuing advanced postgraduate training. This qualitative study aimed to investigate how nurses enrolled in a Postgraduate First-Level Master's Degree in palliative care and pain therapy perceive and interpret spirituality in relation to their professional roles. Semistructured interviews were conducted with 20 nurses working in diverse hospital and community care settings. Data were analyzed using reflexive thematic analysis, following Braun and Clarke's methodology. Five key themes emerged: (1) conceptualizations of spirituality, highlighting self-awareness, existential reflection, and openness to patients' needs; (2) the relationship between spirituality and religion, revealing both overlapping and distinct perspectives; (3) pathways to connect with personal spirituality, including self-exploration and life experiences; (4) the role of education and clinical practice in fostering spiritual development; and (5) the perceived role of spirituality in alleviating suffering and supporting patients at the end of life. Findings emphasize the importance of structured educational programs and reflective practice to foster spiritual competence in palliative nursing. These insights can inform educators and health care leaders to better integrate spirituality into advanced nursing education and clinical care.</p>","PeriodicalId":54807,"journal":{"name":"Journal of Hospice & Palliative Nursing","volume":" ","pages":"E100-E108"},"PeriodicalIF":1.3,"publicationDate":"2026-06-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"145764615","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"Factors Influencing Burnout Among Hospice and Palliative Care Ward Nurses.","authors":"Young-Mi Kim, Chieun Song, Jeoungmin Park","doi":"10.1097/NJH.0000000000001182","DOIUrl":"10.1097/NJH.0000000000001182","url":null,"abstract":"<p><p>Nurses are important in delivering comfortable care and serve as central figures in patient-centered care in hospice and palliative care units. Nurse burnout negatively affects organizational outcomes by threatening patient safety and reducing the quality of nursing care. This study aimed to identify the factors influencing burnout among nurses in hospice and palliative care units. This descriptive correlational study investigated the effects of nursing practice environment, resilience, and nurses' character on burnout among hospice and palliative care ward nurses. The participants were 217 nurses working in hospice wards of 20 institutions selected from the 88 inpatient hospice and palliative care institutions designated by the Ministry of Health and Welfare in South Korea, as of 2021. The results showed that a better nursing practice environment and higher resilience were positively associated with lower burnout. Among hospice and palliative care nurses, being in their 30s and having fewer than 5 years of total clinical experience were associated with higher burnout. The explanatory power of the model is 43.6%. These findings suggest that multidimensional interventions are required to prevent burnout among nurses in hospice and palliative care settings.</p>","PeriodicalId":54807,"journal":{"name":"Journal of Hospice & Palliative Nursing","volume":" ","pages":"E123-E129"},"PeriodicalIF":1.3,"publicationDate":"2026-06-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"145544163","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Kemmarie C Beal, Coretta Jenerette, Rachael O Ajiboye, Diana J Wilkie
{"title":"Sickle Cell Warriors Discuss Palliative Care: Not Our Word, We Need It.","authors":"Kemmarie C Beal, Coretta Jenerette, Rachael O Ajiboye, Diana J Wilkie","doi":"10.1097/NJH.0000000000001178","DOIUrl":"10.1097/NJH.0000000000001178","url":null,"abstract":"<p><p>Palliative care is underutilized in sickle cell disease despite it being a serious, inherited condition plagued by severe pain, other symptoms, and frequent death in young adulthood. We sought feedback from individuals with sickle cell disease (Sickle Cell Warriors) to inform the design of a palliative care intervention. In a qualitative descriptive approach, 12 adults participated in a 90-minute virtual focus group. The session was audio-recorded, transcribed verbatim, and thematically analyzed using a structured coding process. Participants provided insights on the preferred format, delivery, and content of an intervention aimed at improving symptom management and quality of life. Three themes were identified: (1) intervention design, delivery, and check-ins, reflecting preferences for hybrid delivery, consistency, and engagement; (2) successful aging with sickle cell disease, highlighting the importance of self-care, emotional well-being, and social connection; and (3) \"palliative care\" is foreign, illustrating the stigma and misunderstanding surrounding the term \"palliative care.\" Participants expressed a strong need for mental health support, education, and flexible programming tailored to their lived experiences. Future palliative care interventions need to be culturally aligned with terminology and delivery strategies. This study offers guidance for developing patient-centered, nurse-led interventions to improve symptom management and supportive care among adults with sickle cell disease.</p>","PeriodicalId":54807,"journal":{"name":"Journal of Hospice & Palliative Nursing","volume":" ","pages":"E115-E122"},"PeriodicalIF":1.3,"publicationDate":"2026-06-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"145440059","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}