Journal of Hospice & Palliative Nursing最新文献_第10页

"You Are in the Middle of a Road, a Road With No End": Experiences of Women Who Underwent Medical Termination of Their Pregnancies: A Phenomenologıcal Study. "你在一条没有尽头的道路上"：医疗终止妊娠妇女的经历：现象学研究。

IF 1.8 4区医学

Journal of Hospice & Palliative Nursing Pub Date : 2024-04-01 Epub Date: 2024-01-11 DOI: 10.1097/NJH.0000000000001006

Rabiye Akın Işık, Mine İş, Yunus Kaya

引用次数: 0

Social Model Hospice: Providing Hospice and Palliative Care for a Homeless Population in Salt Lake City, Utah. 社会模范临终关怀:为犹他州盐湖城的无家可归者提供临终关怀和姑息治疗。

IF 1.8 4区医学

Journal of Hospice & Palliative Nursing Pub Date : 2024-04-01 Epub Date: 2023-11-17 DOI: 10.1097/NJH.0000000000001000

Francine Bench Jensen, Deborah Thorpe

{"title":"Social Model Hospice: Providing Hospice and Palliative Care for a Homeless Population in Salt Lake City, Utah.","authors":"Francine Bench Jensen, Deborah Thorpe","doi":"10.1097/NJH.0000000000001000","DOIUrl":"10.1097/NJH.0000000000001000","url":null,"abstract":"Health care for the homeless population is a complex challenge and represents a significant gap in care, particularly for those at the end of life. Hospice care may be desired but is rarely an option for people without residences, social support, and payment sources. Social model hospice is a unique paradigm of care delivery that offers a viable solution to make hospice and palliative care possible for this population. In this historical report from interviews with early organizers, prior and current leadership (n = 6), the evolution of The INN Between in Salt Lake City, Utah, is described. In 2010, The INN Between was conceptualized as a nonprofit community effort addressing this need to provide an alternative to people dying unsheltered. After 5 years of planning, it opened in 2015 and has grown to become a comprehensive community resource for homeless medically frail and terminally ill individuals. Recommendations for establishing social model hospices are made: key strategies include identifying stakeholders dedicated to alleviating end-of-life homelessness needs, doing a formal needs assessment to identify community resource deficits, and forming mentoring relationships with established programs. Social model hospice is a viable way of meeting the end-of-life needs of many communities' most vulnerable residents.","PeriodicalId":54807,"journal":{"name":"Journal of Hospice & Palliative Nursing","volume":" ","pages":"91-97"},"PeriodicalIF":1.8,"publicationDate":"2024-04-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"136400404","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Changing the Landscape of the Neighborhood: The Expanding Role of the Pediatric Palliative Advanced Practice Registered Nurse. 改变社区景观：儿科姑息治疗高级执业注册护士不断扩大的角色。

IF 1.8 4区医学

Journal of Hospice & Palliative Nursing Pub Date : 2024-04-01 Epub Date: 2024-02-16 DOI: 10.1097/NJH.0000000000001018

Nicole Sartor, Alice K Bass, Kayla Overstreet

引用次数: 0

Coming to Terms: Female Veterans' Experience of Serious Illness. 接受现实：女退伍军人的重病经历。

IF 1.8 4区医学

Journal of Hospice & Palliative Nursing Pub Date : 2024-04-01 Epub Date: 2024-01-16 DOI: 10.1097/NJH.0000000000001004

Brandon M Varilek, Mary J Isaacson

{"title":"Coming to Terms: Female Veterans' Experience of Serious Illness.","authors":"Brandon M Varilek, Mary J Isaacson","doi":"10.1097/NJH.0000000000001004","DOIUrl":"10.1097/NJH.0000000000001004","url":null,"abstract":"Female veteran populations are growing internationally and are more likely than men to develop certain serious illnesses, including some cancers. In the United States, fewer than 50% of eligible female veterans sought care at Veteran Affairs facilities. In addition, female veterans are not well represented within palliative care research, and little research exists that explores the female veteran experience of living with a serious illness. The purpose of this study was to explore female veterans' experiences of living with a serious illness. This study reports the qualitative findings from a multimethod study using qualitative inquiry to explore female veterans' experiences of living with a serious illness. Participants completed individual, semistructured interviews. Braun and Clarke's method of reflexive thematic analysis guided the analysis. Ten participants shared their experiences, and 3 themes emerged: \"You call this quality of life?\", coming to terms, and \"it\" dictates everything. This study highlights the impaired quality of life of female veterans. Palliative care can serve to improve quality of life and return a sense of control back to female veterans. Nurses at all levels can have a positive impact in improving palliative care delivery for the female veteran population in both civilian and government health care sectors.","PeriodicalId":54807,"journal":{"name":"Journal of Hospice & Palliative Nursing","volume":" ","pages":"98-103"},"PeriodicalIF":1.8,"publicationDate":"2024-04-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"139479438","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Experiences of Pediatric Palliative Care Among Bereaved Parents Who Lost a Child With Leukemia in South Korea. 儿童姑息治疗在韩国失去白血病孩子的父母中的经验。

IF 1.8 4区医学

Journal of Hospice & Palliative Nursing Pub Date : 2024-04-01 Epub Date: 2023-11-13 DOI: 10.1097/NJH.0000000000001001

Seung Jin Oh, Haeyoung Min, Sunhee Choi, Hye-Lyung Hwang, Sujeong Kim

{"title":"Experiences of Pediatric Palliative Care Among Bereaved Parents Who Lost a Child With Leukemia in South Korea.","authors":"Seung Jin Oh, Haeyoung Min, Sunhee Choi, Hye-Lyung Hwang, Sujeong Kim","doi":"10.1097/NJH.0000000000001001","DOIUrl":"10.1097/NJH.0000000000001001","url":null,"abstract":"Pediatric palliative care was introduced in South Korea in 2018, with an increased need for care of children with life-limiting conditions, such as leukemia. However, the perspective of parents, who are the primary caregivers, regarding pediatric palliative care has not been explored. This study aimed to describe the pediatric palliative care-related experiences of parents who had lost a child to leukemia to better understand their needs and care outcomes. Ten mothers of children who received pediatric palliative care were recruited. Individual in-depth interviews were conducted. Phenomenology was applied to elucidate parents' experiences during their children's illness and after bereavement. From 179 main statements and 46 meaningful units, 22 themes were derived and grouped into 11 theme clusters and 4 categories. The participants described that the pediatric palliative care team had an indispensable role in providing emotional support to them and their children; this support continued even after the child's death. In addition, the participants were satisfied with their choice to receive pediatric palliative care and hoped that more regions could benefit from the services. The study findings could contribute to advances and the popularization of pediatric palliative care in South Korea.","PeriodicalId":54807,"journal":{"name":"Journal of Hospice & Palliative Nursing","volume":" ","pages":"E74-E82"},"PeriodicalIF":1.8,"publicationDate":"2024-04-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"92157313","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Maximizing Veterans Health Affairs Community Hospice Collaborations: Review of Perceived Resource Needs to Support Veterans at End of Life. 最大限度地提高退伍军人健康事务社区安宁疗护合作:对退伍军人临终关怀资源需求的回顾。

IF 1.8 4区医学

Journal of Hospice & Palliative Nursing Pub Date : 2024-02-01 Epub Date: 2023-10-26 DOI: 10.1097/NJH.0000000000000980

Kelly A O'Malley, Lola Baird, Anica Pless Kaiser, Hannah M Bashian, Anna G Etchin, Zachary S Sager, Hannah Heintz, Lynn Korsun, Katherine Kemp, Jennifer Moye

{"title":"Maximizing Veterans Health Affairs Community Hospice Collaborations: Review of Perceived Resource Needs to Support Veterans at End of Life.","authors":"Kelly A O'Malley, Lola Baird, Anica Pless Kaiser, Hannah M Bashian, Anna G Etchin, Zachary S Sager, Hannah Heintz, Lynn Korsun, Katherine Kemp, Jennifer Moye","doi":"10.1097/NJH.0000000000000980","DOIUrl":"10.1097/NJH.0000000000000980","url":null,"abstract":"Within the United States, approximately 330 000 military veterans die annually, but only 5% of deaths occur in Veterans Health Administration (VHA) facilities. To help provide end-of-life care for veterans, the VHA built community partnerships with community hospice and palliative care (HPC) organizations. Veterans experience unique psychosocial factors making it vital to ensure HPC organizations have access to veteran-specific knowledge and resources to reduce suffering. To better understand the strengths and limitations of these partnerships, community HPC staff (N = 483) responded to quantitative and qualitative survey questions developed using an access to care theory for veterans. Survey responses demonstrated variable perceptions of access to VHA care and resources. Respondents reported excellent experiences (44%) and relationships with their local facility (50%) and had a reliable contact who provided needed assistance (92%). Thematic analysis identified a need for VHA care and barriers to access, which were associated with technical characteristics, and geographical and cultural issues. These findings can help inform future research and policy regarding access to VHA resources for end-of-life care for veterans in the community and guide resource development for community HPC providers.","PeriodicalId":54807,"journal":{"name":"Journal of Hospice & Palliative Nursing","volume":" ","pages":"21-28"},"PeriodicalIF":1.8,"publicationDate":"2024-02-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"92157314","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Advance Care Planning Affects End-of-Life Treatment Preferences Among Patients With Heart Failure: A Randomized Controlled Trial. 预先护理计划影响心力衰竭患者的临终治疗偏好：一项随机对照试验。

IF 1.8 4区医学

Journal of Hospice & Palliative Nursing Pub Date : 2024-02-01 Epub Date: 2023-10-07 DOI: 10.1097/NJH.0000000000000988

Hui-Chuan Cheng, Shu-Fang Vivienne Wu, Yi-Hui Chen, Ya-Hui Tsan, Shih-Hsien Sung, Li-Shan Ke

{"title":"Advance Care Planning Affects End-of-Life Treatment Preferences Among Patients With Heart Failure: A Randomized Controlled Trial.","authors":"Hui-Chuan Cheng, Shu-Fang Vivienne Wu, Yi-Hui Chen, Ya-Hui Tsan, Shih-Hsien Sung, Li-Shan Ke","doi":"10.1097/NJH.0000000000000988","DOIUrl":"10.1097/NJH.0000000000000988","url":null,"abstract":"This study explored the effects of advance care planning interventions on end-of-life treatment decisions among patients with heart failure. The study design was a randomized controlled trial. An intervention involving a motivational video, a cartoon version educational brochure, and a guided discussion was implemented. A total of 82 hospitalized patients with heart failure were recruited. Half of the participants received the intervention, and the other half received routine care. The Life Support Preferences Questionnaire was the primary measurement instrument. Before the advance care planning intervention, a significant difference between the experimental and control groups was observed in the cardiopulmonary resuscitation score but not the total, antibiotics, surgery, and artificial nutrition and hydration scores. In the experimental group but not in the control group, significant differences were observed between pretest and posttest total, antibiotics, cardiopulmonary resuscitation, surgery, and artificial nutrition and hydration scores. Significant differences in mean score changes were observed in total and each treatment score between the experimental and control groups. The advance care planning intervention led participants to select fewer medical treatments. This intervention may be suitable for societies where people are unfamiliar with advance care planning and may feel uncomfortable discussing death.","PeriodicalId":54807,"journal":{"name":"Journal of Hospice & Palliative Nursing","volume":" ","pages":"E13-E19"},"PeriodicalIF":1.8,"publicationDate":"2024-02-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"41184248","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Palliative Care for Infants in the Neonatal Intensive Care Unit: A Scoping Review. 新生儿重症监护病房婴儿的姑息关怀：范围界定综述》。

IF 1.2 4区医学

Journal of Hospice & Palliative Nursing Pub Date : 2024-02-01 Epub Date: 2023-12-22 DOI: 10.1097/NJH.0000000000000985

Eun Sook Kim, Sue Kim, Sanghee Kim, Sujeong Kim, So Yoon Ahn, Hyejung Lee

{"title":"Palliative Care for Infants in the Neonatal Intensive Care Unit: A Scoping Review.","authors":"Eun Sook Kim, Sue Kim, Sanghee Kim, Sujeong Kim, So Yoon Ahn, Hyejung Lee","doi":"10.1097/NJH.0000000000000985","DOIUrl":"10.1097/NJH.0000000000000985","url":null,"abstract":"This scoping review aimed to explore the characteristics of neonatal palliative care in the neonatal intensive care unit, including the features, contents, and experiences of infants, parents, and nurses during palliative care. Five databases (PubMed, Cochrane, CINAHL, Research Information Sharing Service, and Korean Studies Information Service System) were searched to identify relevant articles published between 2011 and 2020. From the systematic search and review process, 13 studies that met the eligibility criteria were selected for the analysis. From the literature review, 2 key principles were found to facilitate neonatal palliative care: family-centered care and integrative care in the neonatal intensive care unit. In addition, the themes found in this review included (1) providing comfortable care to dying infants with respect to infants and offering parents choices, (2) therapeutic communication, (3) support with respect, and (4) bereavement care for parents of dying infants in the neonatal intensive care unit. Caregivers require effective communication, manpower support, emotional support, educational programs, and well-defined protocols. The evidence mapped and synthesized in this review indicates the need to facilitate the provision of palliative care in the neonatal intensive care unit in line with the unique needs of infants, parents, and nurses.","PeriodicalId":54807,"journal":{"name":"Journal of Hospice & Palliative Nursing","volume":" ","pages":"14-20"},"PeriodicalIF":1.2,"publicationDate":"2024-02-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"138886561","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Advance Care Planning Engagement Strategies for Primary Care Providers Seeing Diverse Patient Populations: A Scoping Review. 面向不同患者群体的初级医疗服务提供者的预先护理规划参与策略：范围审查。

IF 1.2 4区医学

Journal of Hospice & Palliative Nursing Pub Date : 2024-02-01 Epub Date: 2023-12-13 DOI: 10.1097/NJH.0000000000001002

Haley Kirkpatrick, Robin K Buccheri, Claire Sharifi

{"title":"Advance Care Planning Engagement Strategies for Primary Care Providers Seeing Diverse Patient Populations: A Scoping Review.","authors":"Haley Kirkpatrick, Robin K Buccheri, Claire Sharifi","doi":"10.1097/NJH.0000000000001002","DOIUrl":"10.1097/NJH.0000000000001002","url":null,"abstract":"Diverse patients are less likely than Whites to have advance care planning. The primary purpose of this scoping review was to summarize recent evidence about advance care planning engagement interventions for primary care providers working with diverse patients. The Preferred Reporting Items for Systematic Reviews and Meta-Analyses-extension for Scoping Reviews (PRISMA-ScR) Checklist was followed. Peer-reviewed articles published in English since 2000 reporting the results of studies testing intervention programs in primary care to improve advance care planning with adult, racially diverse populations were included. Searches were conducted in 5 online databases and yielded 72 articles. Gray literature yielded 23 articles. Two authors independently reviewed the abstracts of 72 articles determining that 9 articles met the aim of this review. These studies were analyzed by communication tools and other resources, population, intervention, primary outcomes, instruments, and primary findings and organized into 3 categories: ( a ) provider-focused interventions, ( b ) patient-focused interventions, and ( c ) multilevel interventions. Improvement in advance care planning outcomes can be achieved for racially diverse populations by implementing targeted advance care planning engagement interventions for both providers and patients. These interventions can be used in primary care to increase advance care planning for diverse patients. More research is needed that evaluates best practices for integrating advance care planning into primary care workflows.","PeriodicalId":54807,"journal":{"name":"Journal of Hospice & Palliative Nursing","volume":" ","pages":"E20-E29"},"PeriodicalIF":1.2,"publicationDate":"2024-02-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"138813199","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Changing Life Plans: When to Engage Caregivers of Older Adults With Cancer in Advance Care Planning. 改变生活计划：何时让老年癌症患者的照顾者参与预先护理计划。

IF 1.8 4区医学

Journal of Hospice & Palliative Nursing Pub Date : 2024-02-01 DOI: 10.1097/NJH.0000000000000981

Jyotsana Parajuli, Kim L Larson

{"title":"Changing Life Plans: When to Engage Caregivers of Older Adults With Cancer in Advance Care Planning.","authors":"Jyotsana Parajuli, Kim L Larson","doi":"10.1097/NJH.0000000000000981","DOIUrl":"10.1097/NJH.0000000000000981","url":null,"abstract":"Advance care planning (ACP) is a continuous process where individuals discuss and document their end-of-life preferences with trusted caregivers and health care providers. Caregivers are pivotal to include in ACP discussions because they assist loved ones to navigate serious medical illness. The purpose of this study was to examine caregivers' engagement in ACP decision making with their loved ones with cancer. A qualitative descriptive design was used, informed by Engel's biopsychosocial model, with a convenience sample of 14 caregivers in North Carolina. Virtual interviews were conducted using a semistructured interview guide. Using prevalence logic, the overarching theme of \"Changing Life Plans\" was explained by two subthemes, \"Learning the Diagnosis\" and \"Keeping Them on Track.\" The timing and location of ACP conversations were important considerations. Over half of the participants (64%) had no knowledge or had misconceptions about ACP, and 5 had accurate knowledge. Nurses could develop partnerships with community leaders trained in palliative care principles to begin conversations early with community members. Advocacy groups might hold events, such as the Hello Game, in community settings to facilitate early ACP conversations.","PeriodicalId":54807,"journal":{"name":"Journal of Hospice & Palliative Nursing","volume":" ","pages":"29-35"},"PeriodicalIF":1.8,"publicationDate":"2024-02-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"10213909","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0