Journal of Hospice & Palliative Nursing最新文献

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Finding Our Collective Voice in Advocacy: The First Few Steps. 在倡导中找到我们的集体声音:最初的几个步骤。
IF 1.8 4区 医学
Journal of Hospice & Palliative Nursing Pub Date : 2023-06-01 DOI: 10.1097/NJH.0000000000000950
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引用次数: 0
"They Would Lift My Spirits": Sources of Support for Family Surrogate Decision-Makers at the End of Life. "他们会让我精神振奋":生命末期家庭代理决策者的支持来源。
IF 1.8 4区 医学
Journal of Hospice & Palliative Nursing Pub Date : 2023-06-01 Epub Date: 2023-03-11 DOI: 10.1097/NJH.0000000000000939
Marlena C Fisher, Elaina Parrillo, Claire Petchler, Joan Kub, Mark T Hughes, Daniel P Sulmasy, Deborah Baker, Marie T Nolan
{"title":"\"They Would Lift My Spirits\": Sources of Support for Family Surrogate Decision-Makers at the End of Life.","authors":"Marlena C Fisher, Elaina Parrillo, Claire Petchler, Joan Kub, Mark T Hughes, Daniel P Sulmasy, Deborah Baker, Marie T Nolan","doi":"10.1097/NJH.0000000000000939","DOIUrl":"10.1097/NJH.0000000000000939","url":null,"abstract":"<p><p>Surrogate decision-makers make critical decisions for loved ones at the end of life, and some experience lasting negative psychological outcomes. Understanding whom they rely on for support and the types of support they value may inform nursing care and that of other health team members who work with surrogates. The purpose of the study was to explore decision support and other types of support provided to surrogate decision-makers at the end of life of their loved one and perceived usefulness of the support. This secondary analysis of data from a mixed-methods study involved the examination of the transcripts of qualitative interviews with 13 surrogate decision-makers in the United States, conducted between 2010 and 2014. A constant comparative method was used to identify common themes surrounding surrogate decision support at the end of life. Surrogates valued advance directives and conversations with their loved one about treatment preferences. Surrogates described involving many different types of people in decision-making and other types of support. Finally, surrogates appreciated being reassured that they were doing a good job in making decisions and seemed to seek out this type of affirmation from various sources including the health care team, family, and friends. Nurses are well-positioned to provide this affirmation because of the time that they spend caring for the patient and family. Future research should further explore the concept of affirmation of surrogates in their role as a means of support as they make decisions for a loved one.</p>","PeriodicalId":54807,"journal":{"name":"Journal of Hospice & Palliative Nursing","volume":null,"pages":null},"PeriodicalIF":1.8,"publicationDate":"2023-06-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10175176/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"10033940","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Navigating the Storm: Documenting the Experience of Inpatient Registered Nurses Amid the COVID Pandemic-Palliative Care Team Insights. 在风暴中航行:记录住院注册护士在COVID大流行期间的经历——姑息治疗团队的见解。
IF 1.8 4区 医学
Journal of Hospice & Palliative Nursing Pub Date : 2023-06-01 DOI: 10.1097/NJH.0000000000000943
Sara Landreth, Sean Pridgeon, Bin Ge, Kevin Craig, Susan D Scott
{"title":"Navigating the Storm: Documenting the Experience of Inpatient Registered Nurses Amid the COVID Pandemic-Palliative Care Team Insights.","authors":"Sara Landreth,&nbsp;Sean Pridgeon,&nbsp;Bin Ge,&nbsp;Kevin Craig,&nbsp;Susan D Scott","doi":"10.1097/NJH.0000000000000943","DOIUrl":"https://doi.org/10.1097/NJH.0000000000000943","url":null,"abstract":"<p><p>Nominal research illustrates the lived experience of intensive care unit registered nurses during the COVID pandemic. Palliative care team leaders and nurse researchers designed this cross-sectional study to discover opportunities for palliative care team members to enhance the experience of nurses who cared for critically ill patients during this challenging time. The study aimed to compare the effect of caring for patients in COVID versus non-COVID units. Surveys were distributed after the area's initial COVID patient influx. Questions included general demographics, the Professional Quality of Life survey instrument (measuring compassion satisfaction, burnout, and secondary traumatic stress), and open-ended questions to identify protective factors and unique challenges. Across 5 care settings with 311 nurses eligible for the study in total, 90 completed the survey. The population consisted of COVID-designated unit nurses (n = 48, 53.33%) and non-COVID unit nurses (n = 42, 46.67%). Analysis between COVID-designated and non-COVID units revealed significantly lower mean compassion scores and significantly higher burnout and stress scores among those working within COVID-designated units. Despite higher levels of burnout and stress and lower levels of compassion, nurses identified protective factors that improved coping and described challenges they encountered. Palliative care clinicians used insights to design interventions to mitigate identified challenges and stressors.</p>","PeriodicalId":54807,"journal":{"name":"Journal of Hospice & Palliative Nursing","volume":null,"pages":null},"PeriodicalIF":1.8,"publicationDate":"2023-06-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10171095/pdf/jhpn-25-129.pdf","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"10040891","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Sense of Coherence at End of Life in Older People: An Interpretive Description. 老年人生命末期的连贯感:一种解释性描述。
IF 1.8 4区 医学
Journal of Hospice & Palliative Nursing Pub Date : 2023-06-01 DOI: 10.1097/NJH.0000000000000948
Rebecca Gagne-Henderson, Carol Holland, Catherine Walshe
{"title":"Sense of Coherence at End of Life in Older People: An Interpretive Description.","authors":"Rebecca Gagne-Henderson,&nbsp;Carol Holland,&nbsp;Catherine Walshe","doi":"10.1097/NJH.0000000000000948","DOIUrl":"https://doi.org/10.1097/NJH.0000000000000948","url":null,"abstract":"<p><p>As people age, losses accumulate (ie, the death of family and friends, the loss of agility, and the loss of independence). Such losses have an impact on one's Sense of Coherence, that is, one's ability to see the world as comprehensible, manageable, and meaningful. Antonovsky deemed Sense of Coherence as a mostly stable state by the age of 30 years. Until now, there has not been an investigation into how serial loss of resources affects older people as they near the end of life. Sense of Coherence was used as the theoretical framework for this study to answer the question of how older people maintain or regain a Sense of Coherence in the presence of serious illness as they near death. Data were gathered using semistructured interviews and guided by interpretive description. This investigation found new concepts that contribute to Antonovsky's midlevel theory of salutogenesis and the construct of Sense of Coherence. Those are Incomprehensibility and Serial Loss of General Resistance Resources. The results indicate that the crux of a strong Sense of Coherence for this population is excellent communication and a coherent \"big-picture\" conversation.</p>","PeriodicalId":54807,"journal":{"name":"Journal of Hospice & Palliative Nursing","volume":null,"pages":null},"PeriodicalIF":1.8,"publicationDate":"2023-06-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"10044265","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Palliative Care in the New Era of Lung Cancer Treatment. 姑息治疗在肺癌治疗的新时代。
IF 1.8 4区 医学
Journal of Hospice & Palliative Nursing Pub Date : 2023-06-01 DOI: 10.1097/NJH.0000000000000952
{"title":"Palliative Care in the New Era of Lung Cancer Treatment.","authors":"","doi":"10.1097/NJH.0000000000000952","DOIUrl":"https://doi.org/10.1097/NJH.0000000000000952","url":null,"abstract":"","PeriodicalId":54807,"journal":{"name":"Journal of Hospice & Palliative Nursing","volume":null,"pages":null},"PeriodicalIF":1.8,"publicationDate":"2023-06-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"9434950","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Palliative Care in the New Era of Lung Cancer Treatment. 姑息治疗在肺癌治疗的新时代。
IF 1.8 4区 医学
Journal of Hospice & Palliative Nursing Pub Date : 2023-06-01 DOI: 10.1097/NJH.0000000000000945
Tami Borneman, Marianna Koczywas
{"title":"Palliative Care in the New Era of Lung Cancer Treatment.","authors":"Tami Borneman,&nbsp;Marianna Koczywas","doi":"10.1097/NJH.0000000000000945","DOIUrl":"https://doi.org/10.1097/NJH.0000000000000945","url":null,"abstract":"<p><p>Lung cancer remains the most common malignancy and is recognized as having significant impact on quality of life. Advances in lung cancer treatment over the past decade have been significant, with new agents extending life, even in late-stage disease. The purpose of this study was to evaluate palliative care needs and use of supportive care services in a randomly selected sample (N = 99) of patients with lung cancer. Results indicated that despite treatment advances, these patients continue to have significant symptom and quality of life concerns and to receive limited palliative care or supportive care services. Integration of palliative care is needed in the new era of lung cancer treatment.</p>","PeriodicalId":54807,"journal":{"name":"Journal of Hospice & Palliative Nursing","volume":null,"pages":null},"PeriodicalIF":1.8,"publicationDate":"2023-06-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"10399818","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Caring Spiritually: A Study on Spiritual Care Training in a Hospice Setting. 精神关怀:安宁疗护机构的精神关怀训练研究。
IF 1.8 4区 医学
Journal of Hospice & Palliative Nursing Pub Date : 2023-06-01 DOI: 10.1097/NJH.0000000000000947
Dorte Toudal Viftrup, Frederik Rosenbæk, Hanne Højsager Damgaard, Mette Hemdrup, Marianne Nielsen, Ricko Damberg Nissen
{"title":"Caring Spiritually: A Study on Spiritual Care Training in a Hospice Setting.","authors":"Dorte Toudal Viftrup,&nbsp;Frederik Rosenbæk,&nbsp;Hanne Højsager Damgaard,&nbsp;Mette Hemdrup,&nbsp;Marianne Nielsen,&nbsp;Ricko Damberg Nissen","doi":"10.1097/NJH.0000000000000947","DOIUrl":"https://doi.org/10.1097/NJH.0000000000000947","url":null,"abstract":"<p><p>Spiritual care can improve patients' physical and emotional well-being, but patients at the end of life often experience their spiritual needs are not being sufficiently met by the health care professionals. This is caused by barriers among health care professionals that stem from inadequate education on spiritual care and lack of self-reflection on spiritual topics. By participating in spiritual care training, health care professionals seem to gain the knowledge, confidence, and skills they need to care spiritually for patients. The aim of this study was to evaluate the effect and experiences of a training course in spiritual care for 30 nurses working at a Danish hospice. This was done by means of both a before-and-after questionnaire and focus group interviews. The course focused primarily on the nurses and their personal and collegial reflections on spiritual care, whereas increased spiritual care for patients seemed to be a secondary outcome of the course. There was a significant statistical correlation between the nurses' values and spirituality, and their confidence in being able to exercise spiritual care for patients. The training course facilitated spiritual empowerment, collegial spiritual care, and spiritual language among the nurses, which led to increased spiritual care for patients.</p>","PeriodicalId":54807,"journal":{"name":"Journal of Hospice & Palliative Nursing","volume":null,"pages":null},"PeriodicalIF":1.8,"publicationDate":"2023-06-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"10100568","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
The 2023-2026 Hospice and Palliative Nurses Association Research Agenda. 2023-2026年安宁疗护与缓和疗护协会研究议程。
IF 1.8 4区 医学
Journal of Hospice & Palliative Nursing Pub Date : 2023-04-01 DOI: 10.1097/NJH.0000000000000935
Heather Coats, Katherine Doyon, Mary J Isaacson, Djin Tay, William E Rosa, Masako Mayahara, Jeannette Kates, Erica Frechman, Patricia Moyle Wright, Jackelyn Y Boyden, Elizabeth G Broden, Pamela S Hinds, Richard James, Susan Keller, Susan E Thrane, Kim Mooney-Doyle, Suzanne S Sullivan, Jiayun Xu, Julie Tanner, Maria Natal
{"title":"The 2023-2026 Hospice and Palliative Nurses Association Research Agenda.","authors":"Heather Coats,&nbsp;Katherine Doyon,&nbsp;Mary J Isaacson,&nbsp;Djin Tay,&nbsp;William E Rosa,&nbsp;Masako Mayahara,&nbsp;Jeannette Kates,&nbsp;Erica Frechman,&nbsp;Patricia Moyle Wright,&nbsp;Jackelyn Y Boyden,&nbsp;Elizabeth G Broden,&nbsp;Pamela S Hinds,&nbsp;Richard James,&nbsp;Susan Keller,&nbsp;Susan E Thrane,&nbsp;Kim Mooney-Doyle,&nbsp;Suzanne S Sullivan,&nbsp;Jiayun Xu,&nbsp;Julie Tanner,&nbsp;Maria Natal","doi":"10.1097/NJH.0000000000000935","DOIUrl":"https://doi.org/10.1097/NJH.0000000000000935","url":null,"abstract":"<p><p>The Hospice and Palliative Nursing Association established the triannual research agenda to ( a ) provide focus for researchers to conduct meaningful scientific and quality improvement initiatives and inform evidence-based practice, ( b ) guide organizational funding, and ( c ) illustrate to other stakeholders the importance of nursing research foci. HPNA Research Agendas are developed to give direction for future research to continue advancing expert care in serious illness and ensure equitable delivery of hospice and palliative care.</p>","PeriodicalId":54807,"journal":{"name":"Journal of Hospice & Palliative Nursing","volume":null,"pages":null},"PeriodicalIF":1.8,"publicationDate":"2023-04-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"10556936","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
"Unaware and Unprepared": Experiences of Critical Care Nurses Providing End-of-Life Care; A Qualitative Study. “不知情和不准备”:重症护理护士提供临终关怀的经验定性研究。
IF 1.8 4区 医学
Journal of Hospice & Palliative Nursing Pub Date : 2023-04-01 DOI: 10.1097/NJH.0000000000000934
Celia Wells, Toby Bressler
{"title":"\"Unaware and Unprepared\": Experiences of Critical Care Nurses Providing End-of-Life Care; A Qualitative Study.","authors":"Celia Wells,&nbsp;Toby Bressler","doi":"10.1097/NJH.0000000000000934","DOIUrl":"https://doi.org/10.1097/NJH.0000000000000934","url":null,"abstract":"<p><p>Modern health care delivery incorporates technology to prolong life for those with serious illnesses. As technology continues to advance, the critical care nurses' role particularly at the end of life (EOL) continues to evolve, requiring higher levels of care. This contributes to an already complex environment for nurses to practice. The aim of this study was to explore the experiences of critical care nurses in providing care for patients at EOL. This qualitative descriptive study describes the experience of 216 critical care nurses across the United States. Content analysis illuminated 5 themes: We Can't Fix Everyone, Task-Oriented Nursing, A Profession of Broken Individuals, Unaware and Unprepared, and A Hand to Hold. Study findings provide a unique perspective of critical care nurses and the health care delivery for patients and families at EOL. This study supports the imperative of creating and sustaining healthy work environments and palliative care education as essentials for critical care nurses who care for patients at EOL.</p>","PeriodicalId":54807,"journal":{"name":"Journal of Hospice & Palliative Nursing","volume":null,"pages":null},"PeriodicalIF":1.8,"publicationDate":"2023-04-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"10042424","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Association News. 协会的消息。
IF 1.8 4区 医学
Journal of Hospice & Palliative Nursing Pub Date : 2023-04-01 DOI: 10.1097/NJH.0000000000000938
{"title":"Association News.","authors":"","doi":"10.1097/NJH.0000000000000938","DOIUrl":"https://doi.org/10.1097/NJH.0000000000000938","url":null,"abstract":"","PeriodicalId":54807,"journal":{"name":"Journal of Hospice & Palliative Nursing","volume":null,"pages":null},"PeriodicalIF":1.8,"publicationDate":"2023-04-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"10407263","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
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