Journal of Hospice & Palliative Nursing最新文献_第10页

"I Am a Human": A Process Evaluation of a Nurse-Led Community-Based, Palliative Care Program in Liberia, West Africa. "我是一个人"：对西非利比里亚以护士为主导的社区姑息关怀项目的过程评估。

IF 1.8 4区医学

Journal of Hospice & Palliative Nursing Pub Date : 2023-06-01 Epub Date: 2023-04-12 DOI: 10.1097/NJH.0000000000000944

Joseph Lusaka, Julius D N Kpoeh, Jacqueline P Crowell, Martha Sekey Gowa, Dehcontee M Hardy, Viola Karanja, William E Rosa

{"title":"\"I Am a Human\": A Process Evaluation of a Nurse-Led Community-Based, Palliative Care Program in Liberia, West Africa.","authors":"Joseph Lusaka, Julius D N Kpoeh, Jacqueline P Crowell, Martha Sekey Gowa, Dehcontee M Hardy, Viola Karanja, William E Rosa","doi":"10.1097/NJH.0000000000000944","DOIUrl":"10.1097/NJH.0000000000000944","url":null,"abstract":"Liberia is a postwar, post-Ebola, and low-income nation in West Africa with minimal to no palliative care access. In 2017, Partners In Health in collaboration with the Liberian Ministry of Health invested in the development of a nurse-led, community-based palliative care team in southeastern Maryland County at JJ Dossen Memorial Hospital. Between 2017 and 2022, the 9-member team (8 nurses, 1 physician assistant) has enrolled 142 patients under their care. This is a qualitative process evaluation eliciting the experiences, perspectives, and attitudes of patients with cancer to inform future palliative care program delivery improvement and development. Using an exploratory design, n = 8 participants were interviewed using a semi-structured guide. The sample had a mean age of 48 years with an average palliative care clinic enrollment period of 22.5 weeks at the time of interview. The interdisciplinary coding team used an applied thematic text analysis approach and identified 5 themes: history and disease progression, follow-up clinic services, psychological distress and its sources, social support, and spiritual and cultural beliefs. Implications emphasize the need for increased community engagement, primary palliative care capacity development of clinical colleagues in the region, and the support of local and national decision-makers to prioritize palliative care service expansion.","PeriodicalId":54807,"journal":{"name":"Journal of Hospice & Palliative Nursing","volume":null,"pages":null},"PeriodicalIF":1.8,"publicationDate":"2023-06-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10173098/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"10043789","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Complex Care Needs at the End of Life for Seriously Ill Adults With Multiple Chronic Conditions. 患有多种慢性疾病的重症成人临终前的复杂护理需求。

IF 1.8 4区医学

Journal of Hospice & Palliative Nursing Pub Date : 2023-06-01 Epub Date: 2023-04-11 DOI: 10.1097/NJH.0000000000000946

Komal Patel Murali, John D Merriman, Gary Yu, Allison Vorderstrasse, Amy S Kelley, Abraham A Brody

{"title":"Complex Care Needs at the End of Life for Seriously Ill Adults With Multiple Chronic Conditions.","authors":"Komal Patel Murali, John D Merriman, Gary Yu, Allison Vorderstrasse, Amy S Kelley, Abraham A Brody","doi":"10.1097/NJH.0000000000000946","DOIUrl":"10.1097/NJH.0000000000000946","url":null,"abstract":"Understanding the complex care needs of seriously ill adults with multiple chronic conditions with and without cancer is critical for the delivery of high-quality serious illness and palliative care at the end of life. The objective of this secondary data analysis of a multisite randomized clinical trial in palliative care was to elucidate the clinical profile and complex care needs of seriously ill adults with multiple chronic conditions and to highlight key differences among those with and without cancer at the end of life. Of the 213 (74.2%) older adults who met criteria for multiple chronic conditions (eg, 2 or more chronic conditions requiring regular care with limitations of daily living), 49% had a diagnosis of cancer. Hospice enrollment was operationalized as an indicator for severity of illness and allowed for the capture of complex care needs of those deemed to be nearing the end of life. Individuals with cancer had complex symptomatology with a higher prevalence of nausea, drowsiness, and poor appetite and end of life and lower hospice enrollment. Individuals with multiple chronic conditions without cancer had lower functional status, greater number of medications, and higher hospice enrollment. The care of seriously ill older adults with multiple chronic conditions requires tailored approaches to improve outcomes and quality of care across health care settings, particularly at the end of life.","PeriodicalId":54807,"journal":{"name":"Journal of Hospice & Palliative Nursing","volume":null,"pages":null},"PeriodicalIF":1.8,"publicationDate":"2023-06-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10175220/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"10100570","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Evaluating the FRAIL Questionnaire as a Trigger for Palliative Care Consultation After Acute Stroke. 评估虚弱问卷作为急性中风后姑息治疗咨询的触发因素。

IF 1.8 4区医学

Journal of Hospice & Palliative Nursing Pub Date : 2023-06-01 DOI: 10.1097/NJH.0000000000000940

Megan Keiser, Roxanne Buterakos, Haley Stutzky, Laura Moran, Dawn Hewelt

{"title":"Evaluating the FRAIL Questionnaire as a Trigger for Palliative Care Consultation After Acute Stroke.","authors":"Megan Keiser, Roxanne Buterakos, Haley Stutzky, Laura Moran, Dawn Hewelt","doi":"10.1097/NJH.0000000000000940","DOIUrl":"https://doi.org/10.1097/NJH.0000000000000940","url":null,"abstract":"The American Heart Association and the American Stroke Association jointly released guidelines stating that all patients with a new diagnosis of stroke should receive palliative care consultation starting in the acute phase of care. The purpose of this project was to increase palliative care consultation rates for patients after an acute stroke by using a frailty score to trigger a palliative care consult. Provider education on palliative care and a 5-question fatigue, resistance, ambulation, illnesses, and loss of weight (FRAIL) questionnaire was delivered by a presentation, handouts, and a follow-up email using previously developed content. Patients included adults admitted to the neuroscience critical care unit of a Midwestern comprehensive stroke center with an admission diagnosis of acute stroke (n = 120). The charge nurse completed the FRAIL questionnaire as a screening tool to trigger a palliative care consult. A survey was also distributed to providers (n = 54) to understand their knowledge, thoughts, and feelings toward palliative care. There was an increase in patients who received palliative care consultation from 14.9% to 21.7% after implementation of the FRAIL questionnaire. Also, providers felt better able to provide symptom management to patients after acute stroke. Further research is necessary to determine if the FRAIL survey is an adequate trigger for palliative care consultation.","PeriodicalId":54807,"journal":{"name":"Journal of Hospice & Palliative Nursing","volume":null,"pages":null},"PeriodicalIF":1.8,"publicationDate":"2023-06-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"10042971","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

The 2 a.m. Moment and the Art of Our Science. 凌晨2点。时刻和我们科学的艺术。

IF 1.8 4区医学

Journal of Hospice & Palliative Nursing Pub Date : 2023-06-01 DOI: 10.1097/NJH.0000000000000949

William Rosa, Betty Ferrell

引用次数: 0

Finding Our Collective Voice in Advocacy: The First Few Steps. 在倡导中找到我们的集体声音:最初的几个步骤。

IF 1.8 4区医学

Journal of Hospice & Palliative Nursing Pub Date : 2023-06-01 DOI: 10.1097/NJH.0000000000000950

引用次数: 0

"They Would Lift My Spirits": Sources of Support for Family Surrogate Decision-Makers at the End of Life. "他们会让我精神振奋"：生命末期家庭代理决策者的支持来源。

IF 1.8 4区医学

Journal of Hospice & Palliative Nursing Pub Date : 2023-06-01 Epub Date: 2023-03-11 DOI: 10.1097/NJH.0000000000000939

Marlena C Fisher, Elaina Parrillo, Claire Petchler, Joan Kub, Mark T Hughes, Daniel P Sulmasy, Deborah Baker, Marie T Nolan

{"title":"\"They Would Lift My Spirits\": Sources of Support for Family Surrogate Decision-Makers at the End of Life.","authors":"Marlena C Fisher, Elaina Parrillo, Claire Petchler, Joan Kub, Mark T Hughes, Daniel P Sulmasy, Deborah Baker, Marie T Nolan","doi":"10.1097/NJH.0000000000000939","DOIUrl":"10.1097/NJH.0000000000000939","url":null,"abstract":"Surrogate decision-makers make critical decisions for loved ones at the end of life, and some experience lasting negative psychological outcomes. Understanding whom they rely on for support and the types of support they value may inform nursing care and that of other health team members who work with surrogates. The purpose of the study was to explore decision support and other types of support provided to surrogate decision-makers at the end of life of their loved one and perceived usefulness of the support. This secondary analysis of data from a mixed-methods study involved the examination of the transcripts of qualitative interviews with 13 surrogate decision-makers in the United States, conducted between 2010 and 2014. A constant comparative method was used to identify common themes surrounding surrogate decision support at the end of life. Surrogates valued advance directives and conversations with their loved one about treatment preferences. Surrogates described involving many different types of people in decision-making and other types of support. Finally, surrogates appreciated being reassured that they were doing a good job in making decisions and seemed to seek out this type of affirmation from various sources including the health care team, family, and friends. Nurses are well-positioned to provide this affirmation because of the time that they spend caring for the patient and family. Future research should further explore the concept of affirmation of surrogates in their role as a means of support as they make decisions for a loved one.","PeriodicalId":54807,"journal":{"name":"Journal of Hospice & Palliative Nursing","volume":null,"pages":null},"PeriodicalIF":1.8,"publicationDate":"2023-06-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10175176/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"10033940","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Navigating the Storm: Documenting the Experience of Inpatient Registered Nurses Amid the COVID Pandemic-Palliative Care Team Insights. 在风暴中航行:记录住院注册护士在COVID大流行期间的经历——姑息治疗团队的见解。

IF 1.8 4区医学

Journal of Hospice & Palliative Nursing Pub Date : 2023-06-01 DOI: 10.1097/NJH.0000000000000943

Sara Landreth, Sean Pridgeon, Bin Ge, Kevin Craig, Susan D Scott

{"title":"Navigating the Storm: Documenting the Experience of Inpatient Registered Nurses Amid the COVID Pandemic-Palliative Care Team Insights.","authors":"Sara Landreth, Sean Pridgeon, Bin Ge, Kevin Craig, Susan D Scott","doi":"10.1097/NJH.0000000000000943","DOIUrl":"https://doi.org/10.1097/NJH.0000000000000943","url":null,"abstract":"Nominal research illustrates the lived experience of intensive care unit registered nurses during the COVID pandemic. Palliative care team leaders and nurse researchers designed this cross-sectional study to discover opportunities for palliative care team members to enhance the experience of nurses who cared for critically ill patients during this challenging time. The study aimed to compare the effect of caring for patients in COVID versus non-COVID units. Surveys were distributed after the area's initial COVID patient influx. Questions included general demographics, the Professional Quality of Life survey instrument (measuring compassion satisfaction, burnout, and secondary traumatic stress), and open-ended questions to identify protective factors and unique challenges. Across 5 care settings with 311 nurses eligible for the study in total, 90 completed the survey. The population consisted of COVID-designated unit nurses (n = 48, 53.33%) and non-COVID unit nurses (n = 42, 46.67%). Analysis between COVID-designated and non-COVID units revealed significantly lower mean compassion scores and significantly higher burnout and stress scores among those working within COVID-designated units. Despite higher levels of burnout and stress and lower levels of compassion, nurses identified protective factors that improved coping and described challenges they encountered. Palliative care clinicians used insights to design interventions to mitigate identified challenges and stressors.","PeriodicalId":54807,"journal":{"name":"Journal of Hospice & Palliative Nursing","volume":null,"pages":null},"PeriodicalIF":1.8,"publicationDate":"2023-06-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10171095/pdf/jhpn-25-129.pdf","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"10040891","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Sense of Coherence at End of Life in Older People: An Interpretive Description. 老年人生命末期的连贯感:一种解释性描述。

IF 1.8 4区医学

Journal of Hospice & Palliative Nursing Pub Date : 2023-06-01 DOI: 10.1097/NJH.0000000000000948

Rebecca Gagne-Henderson, Carol Holland, Catherine Walshe

{"title":"Sense of Coherence at End of Life in Older People: An Interpretive Description.","authors":"Rebecca Gagne-Henderson, Carol Holland, Catherine Walshe","doi":"10.1097/NJH.0000000000000948","DOIUrl":"https://doi.org/10.1097/NJH.0000000000000948","url":null,"abstract":"As people age, losses accumulate (ie, the death of family and friends, the loss of agility, and the loss of independence). Such losses have an impact on one's Sense of Coherence, that is, one's ability to see the world as comprehensible, manageable, and meaningful. Antonovsky deemed Sense of Coherence as a mostly stable state by the age of 30 years. Until now, there has not been an investigation into how serial loss of resources affects older people as they near the end of life. Sense of Coherence was used as the theoretical framework for this study to answer the question of how older people maintain or regain a Sense of Coherence in the presence of serious illness as they near death. Data were gathered using semistructured interviews and guided by interpretive description. This investigation found new concepts that contribute to Antonovsky's midlevel theory of salutogenesis and the construct of Sense of Coherence. Those are Incomprehensibility and Serial Loss of General Resistance Resources. The results indicate that the crux of a strong Sense of Coherence for this population is excellent communication and a coherent \"big-picture\" conversation.","PeriodicalId":54807,"journal":{"name":"Journal of Hospice & Palliative Nursing","volume":null,"pages":null},"PeriodicalIF":1.8,"publicationDate":"2023-06-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"10044265","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Palliative Care in the New Era of Lung Cancer Treatment. 姑息治疗在肺癌治疗的新时代。

IF 1.8 4区医学

Journal of Hospice & Palliative Nursing Pub Date : 2023-06-01 DOI: 10.1097/NJH.0000000000000952

引用次数: 0

Palliative Care in the New Era of Lung Cancer Treatment. 姑息治疗在肺癌治疗的新时代。

IF 1.8 4区医学

Journal of Hospice & Palliative Nursing Pub Date : 2023-06-01 DOI: 10.1097/NJH.0000000000000945

Tami Borneman, Marianna Koczywas

引用次数: 0