Journal of Hospice & Palliative Nursing最新文献_第9页

Dyspnea and Palliative Care in Advanced Chronic Obstructive Pulmonary Disease: A Rapid Review. 晚期慢性阻塞性肺病中的呼吸困难和姑息治疗：快速回顾。

IF 1.2 4区医学

Journal of Hospice & Palliative Nursing Pub Date : 2024-08-01 Epub Date: 2024-06-19 DOI: 10.1097/NJH.0000000000001042

Sarah N Miller, Elizabeth Higgins, Joan Cain, Patrick Coyne, Robert Peacock, Ayaba Logan, Tracy Fasolino, Kathleen Oare Lindell

{"title":"Dyspnea and Palliative Care in Advanced Chronic Obstructive Pulmonary Disease: A Rapid Review.","authors":"Sarah N Miller, Elizabeth Higgins, Joan Cain, Patrick Coyne, Robert Peacock, Ayaba Logan, Tracy Fasolino, Kathleen Oare Lindell","doi":"10.1097/NJH.0000000000001042","DOIUrl":"10.1097/NJH.0000000000001042","url":null,"abstract":"Dyspnea is the most common and activity-limiting symptom for those with chronic obstructive pulmonary disease (COPD). Treatment is complex, palliative care (PC) dyspnea relief interventions are poorly understood, and PC remains underutilized in COPD despite national guidelines and recommendations. The purpose of this rapid review was to explore the concept of dyspnea and role of PC through the lens of providers, caregivers, and patients with COPD. A systematic approach for synthesis was used to identify 13 articles published between January 2018 and October 2023. Team members compared data via visualization and theme clustering to identify key conclusions describing operationalization of dyspnea, management, and PC implications. Dyspnea operationalization was challenging, with inconsistent measurement and terminology. Dyspnea was a significant burden in COPD and contributed to complexity of treatment. Opioids were used most often to treat dyspnea, but provider perspectives and biases can influence treatment decisions and perceptions of opioid therapy by the patient and caregiver. Evidence-based clinical practice guidelines and policies are needed to clarify the use of opioid therapy for dyspnea management to reduce stigmatization and barriers to treatment. Provider education should emphasize a multipronged approach to treatment of dyspnea in COPD with integration of PC early in the care continuum.","PeriodicalId":54807,"journal":{"name":"Journal of Hospice & Palliative Nursing","volume":" ","pages":"195-204"},"PeriodicalIF":1.2,"publicationDate":"2024-08-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141433406","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

My Partner Is My Family: Engaging and Advocating for Lesbian, Gay, Bisexual, Transgender, Queer+ Patients in Goals of Care Conversations. 我的伴侣就是我的家人：让女同性恋、男同性恋、双性恋、变性人和同性恋+患者参与到护理目标对话中并为他们进行宣传。

IF 1.2 4区医学

Journal of Hospice & Palliative Nursing Pub Date : 2024-08-01 Epub Date: 2024-04-26 DOI: 10.1097/NJH.0000000000001030

Korijna Valenti, Katherine Doyon, Brianne Morgan, Gwendolyn Quinn, David Bekelman

{"title":"My Partner Is My Family: Engaging and Advocating for Lesbian, Gay, Bisexual, Transgender, Queer+ Patients in Goals of Care Conversations.","authors":"Korijna Valenti, Katherine Doyon, Brianne Morgan, Gwendolyn Quinn, David Bekelman","doi":"10.1097/NJH.0000000000001030","DOIUrl":"10.1097/NJH.0000000000001030","url":null,"abstract":"In goals of care conversations and through the care trajectory, to avoid insensitive or discriminatory care, it is vital clinicians recognize lesbian, gay, bisexual, transgender, queer+ patients' values and wishes. In clinical settings, implicit bias operating within unconscious awareness may challenge the commitment to equitable care, negatively affecting patient outcomes. In this composite case, during a conversation with a social worker/nurse team, a cisgender woman repeatedly expressed her wishes for her female partner to be her decision maker instead of her biological family. The conversation stalled during the patient's attempts to identify her partner as her most valued and trusted person. Interviewer follow-up responses based on motivational interviewing techniques, which do not include strategies for lesbian, gay, bisexual, transgender, queer+ interactions, inaccurately reflected the patient's needs. Two ethical issues emerged, (1) autonomy and (2) beneficence. Clinicians should approach all patients using nongendered language, and allow patients to self-identify and decide which people are in their support system. Lack of inclusivity training has significant potential to affect the patient experience and decrease clinician/patient trust. Clinicians should not assume the decision maker is a cisgender, heterosexual partner or a biological family member. When patients speak about their partners, it is imperative clinicians use the patient's language and not avoid or redirect responses.","PeriodicalId":54807,"journal":{"name":"Journal of Hospice & Palliative Nursing","volume":" ","pages":"212-218"},"PeriodicalIF":1.2,"publicationDate":"2024-08-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"140873855","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Exploring Holistic Cancer Care and Survivorship in India Through the Kerala Model of Palliative Care: Role of Community Nurse and Outpatient Meetings. 通过喀拉拉邦姑息治疗模式探索印度的整体癌症护理和生存期：社区护士和门诊会议的作用。

IF 1.2 4区医学

Journal of Hospice & Palliative Nursing Pub Date : 2024-08-01 Epub Date: 2024-05-09 DOI: 10.1097/NJH.0000000000001036

Prema Naittee George, M P Ganesh

{"title":"Exploring Holistic Cancer Care and Survivorship in India Through the Kerala Model of Palliative Care: Role of Community Nurse and Outpatient Meetings.","authors":"Prema Naittee George, M P Ganesh","doi":"10.1097/NJH.0000000000001036","DOIUrl":"10.1097/NJH.0000000000001036","url":null,"abstract":"Support groups and meetings are self-help gatherings that provide a unique sense of community, unconditional acceptance, and information on cancer and its treatment. This cross-sectional study examined 12 outpatient meetings within the Kerala model of palliative care, a community-based service provided to patients irrespective of disease, stage, or prognosis starting from the time of diagnosis. The study focused on the pivotal role of community nurses in facilitating these meetings, with participants including cancer patients and survivors. Using in-depth interviews (n = 52) and participant observations, this research used a qualitative approach and explored the dynamics and outcomes of outpatient meetings. Findings highlight the indispensable contributions of these community nurses serving as linchpins in providing support, guiding discussions, and offering crucial education. Outpatient meetings effectively addressed psychosocial concerns, combatted stigmas associated with cancer, and promoted informed decision making in cancer care. The study emphasizes the need for recognizing the role played by community nurses in improving psychosocial support and diminishing stigma, and ultimately the quality of life of patients and survivors through the palliative cancer care within the Kerala model. We also underscore the need for policy initiatives, resource allocation, and training programs tailored to support these frontline health care providers effectively.","PeriodicalId":54807,"journal":{"name":"Journal of Hospice & Palliative Nursing","volume":" ","pages":"E135-E141"},"PeriodicalIF":1.2,"publicationDate":"2024-08-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"140900288","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

An Age Group Comparison of Concurrent Hospice Care: A Cost-Effectiveness Analysis. 同时提供安宁疗护的年龄组比较：成本效益分析

IF 1.2 4区医学

Journal of Hospice & Palliative Nursing Pub Date : 2024-08-01 Epub Date: 2024-05-14 DOI: 10.1097/NJH.0000000000001037

Radion Svynarenko, Melanie J Cozad, Lisa C Lindley

{"title":"An Age Group Comparison of Concurrent Hospice Care: A Cost-Effectiveness Analysis.","authors":"Radion Svynarenko, Melanie J Cozad, Lisa C Lindley","doi":"10.1097/NJH.0000000000001037","DOIUrl":"10.1097/NJH.0000000000001037","url":null,"abstract":"This study aimed to examine the cost-effectiveness of concurrent hospice care compared with standard care among pediatric patients of different age groups. Using a national Medicaid database of 18 152 pediatric patients enrolled in hospice care between 2011 and 2013, this study calculated and analyzed incremental cost-effectiveness ratios (ICERs) for concurrent care versus standard hospice care for children of 4 age categories: <1 year, 1 to 5 years, 6 to 14 years, and 15 to 20 years. The results indicated that the total Medicaid cost of hospice care was $3229 per patient per month (PPPM; SD, $8709) for those younger than 1 year, $4793 PPPM (SD, $8178) for those aged 1 to 5 years, $5411 PPPM (SD, $7456) for those aged 6 to 14 years, and $5625 PPPM (SD, $11459) for those aged 15 to 20 years. Incremental cost-effectiveness ratio values across all age groups showed that children enrolled in concurrent care had fewer live discharges but at a higher Medicaid cost of care as compared with those enrolled in standard hospice care. Concurrent hospice care was the most cost-effective in the age groups of <1 year and 1 to 5 years, with ICERs equal to $45 (95% confidence interval [CI], $23-$66) and $49 (95% CI, $8-$76), respectively. For the other older age groups, benefits of enrollment in concurrent care came at a much higher cost: in the age group of 6 to 14 years, ICER was equal to $217 (95% CI, $129-$217), and in the age group of 15 to 20 years, it was $107 (95% CI, $82-$183). Concurrent hospice is an effective way to reduce live discharges but has a higher total Medicaid cost than standard hospice care.","PeriodicalId":54807,"journal":{"name":"Journal of Hospice & Palliative Nursing","volume":" ","pages":"219-223"},"PeriodicalIF":1.2,"publicationDate":"2024-08-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11233226/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"140946420","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Pain Management at the End of Life. 临终前的疼痛管理

IF 1.2 4区医学

Journal of Hospice & Palliative Nursing Pub Date : 2024-08-01 DOI: 10.1097/NJH.0000000000001047

引用次数: 0

Responding to Soul Injury: Tools for Hope and Healing. 应对心灵创伤：希望与治愈的工具

IF 1.8 4区医学

Journal of Hospice & Palliative Nursing Pub Date : 2024-06-01 Epub Date: 2024-03-13 DOI: 10.1097/NJH.0000000000001023

Deborah Grassman, Abi Katz, Luann Conforti-Brown, Josephine F Wilson, Angie Snyder

{"title":"Responding to Soul Injury: Tools for Hope and Healing.","authors":"Deborah Grassman, Abi Katz, Luann Conforti-Brown, Josephine F Wilson, Angie Snyder","doi":"10.1097/NJH.0000000000001023","DOIUrl":"10.1097/NJH.0000000000001023","url":null,"abstract":"Soul Injury is defined as a wound that separates a person from their real self, caused by unmourned loss and hurt, unforgiven guilt and shame, and fear of helplessness or loss of control. Tools and interventions have been developed to guide people impacted by Soul Injury. This study assessed the effectiveness of 12 tools and interventions provided during a 4-day Soul Injury Leadership Institute. This 2-part investigation included an online survey of participants who had attended a 4-day Institute training and a post-Institute narrative inquiry conducted as virtual structured interviews. Ninety-one professionals completed the online survey, which inquired about the impact of specific Soul Injury tools and interventions on the respondents' personal and professional life. The Anchor Your Heart tool was the most frequently used tool and had the most enduring utilization across time and settings. Qualitative data collected in virtual interviews with 15 volunteers demonstrated the power of the Write/Tell Your Story technique in which storied narratives permit an individual to integrate powerful experiences such as traumatic events, serious illness, and even death, providing further validation that Soul Injury is an important human phenomenon.","PeriodicalId":54807,"journal":{"name":"Journal of Hospice & Palliative Nursing","volume":" ","pages":"166-171"},"PeriodicalIF":1.8,"publicationDate":"2024-06-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"140121390","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

An Evolutionary Concept Analysis of the "Fighter" in the Intensive Care Unit. 重症监护室 "战斗机 "的演变概念分析。

IF 1.8 4区医学

Journal of Hospice & Palliative Nursing Pub Date : 2024-06-01 Epub Date: 2024-02-09 DOI: 10.1097/NJH.0000000000001017

Laura Tycon Moreines, Abraham A Brody, Komal Patel Murali

{"title":"An Evolutionary Concept Analysis of the \"Fighter\" in the Intensive Care Unit.","authors":"Laura Tycon Moreines, Abraham A Brody, Komal Patel Murali","doi":"10.1097/NJH.0000000000001017","DOIUrl":"10.1097/NJH.0000000000001017","url":null,"abstract":"The purpose of this article was to analyze the concept of \"the fighter in the intensive care unit (ICU)\" per the scientific literature and the impact this mentality has on care administered in the ICU. A literature review and a concept analysis based on Rodger's evolutionary method were performed to identify surrogate terms, antecedents, attributes, and consequences pertaining to the \"fighter\" in the ICU. Thirteen articles with a focus on \"the fighter\" were included in this analysis. There is a strong desire to remain optimistic and maintain high spirits as a coping mechanism in the face of extreme prognostic uncertainty. Themes that emerged from the literature were the need to find inner strength and persist in the face of adversity. The concept of \"the fighter in the ICU\" can serve as either adaptive or maladaptive coping, depending on the larger clinical picture. Patient experiences in the ICU are fraught with physical and psychological distress. How the patient and family unit cope during this anxiety-provoking time is based on the individual. Maintaining optimism and identifying as a fighter can be healthy ways to adapt to the circumstances. This concept analysis highlights the importance of holistic care and instilling hope particularly as patients may be nearing the end of life.","PeriodicalId":54807,"journal":{"name":"Journal of Hospice & Palliative Nursing","volume":" ","pages":"158-165"},"PeriodicalIF":1.8,"publicationDate":"2024-06-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"139725063","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Understanding Family Members in the Palliative Phases of Their Loved Ones: A Qualitative Study. 了解处于亲人姑息治疗阶段的家庭成员：定性研究。

IF 1.8 4区医学

Journal of Hospice & Palliative Nursing Pub Date : 2024-06-01 Epub Date: 2024-04-10 DOI: 10.1097/NJH.0000000000001027

Tuğba Yardimci Gürel, Hatice Mert

{"title":"Understanding Family Members in the Palliative Phases of Their Loved Ones: A Qualitative Study.","authors":"Tuğba Yardimci Gürel, Hatice Mert","doi":"10.1097/NJH.0000000000001027","DOIUrl":"10.1097/NJH.0000000000001027","url":null,"abstract":"Because of aging and rising rates of chronic diseases, the demand for palliative care services is increasing worldwide, and patients need family members to care for them throughout the palliative care process. This study aimed to investigate the experiences of the relatives of palliative care patients during hospitalization. This was a qualitative study conducted with 15 family members. A topic guide was used to conduct semistructured face-to-face interviews. Content analysis was used to analyze the textual data. As a result of the analysis, 3 main themes, 6 categories, and 24 subcategories emerged. The main themes were \"reactions to the admission,\" \"feeling obligated to care,\" and \"coping processes.\" The interviews revealed that most participants had misconceptions and a lack of knowledge about palliative care. Almost all of the family members expressed that they experienced various emotions during this process and had trouble coping. The significant finding of our study is that culture and religious beliefs have a considerable influence on caregiving. A limited number of studies in the literature provide detailed insight into the state of patient relatives. Therefore, this study is critical in guiding palliative care professionals in understanding the requirements of this vulnerable group.","PeriodicalId":54807,"journal":{"name":"Journal of Hospice & Palliative Nursing","volume":"26 3","pages":"E98-E105"},"PeriodicalIF":1.8,"publicationDate":"2024-06-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"140866249","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

The Role and Professional Standards of the Adult-Gerontology Nurse Practitioner in Hospice and Palliative Care. 安宁疗护和姑息治疗中的成人老年学执业护士的角色和专业标准。

IF 1.8 4区医学

Journal of Hospice & Palliative Nursing Pub Date : 2024-06-01 Epub Date: 2024-03-14 DOI: 10.1097/NJH.0000000000001025

Heather Coats, Kelly Henrichs

引用次数: 0

The Experiences of Nurses as Double-Duty Caregivers for a Family Member at the End of Life: Interpretive Description. 护士作为临终家庭成员的双重照顾者的经历：解释性说明》（The Experiences of Nurses as Double-Duty Caregivers for a Family Member at the End of Life: Interpretive Description.

IF 1.8 4区医学

Journal of Hospice & Palliative Nursing Pub Date : 2024-06-01 Epub Date: 2024-01-08 DOI: 10.1097/NJH.0000000000001009

Sandra A Basley, Ginette G Ferszt, Susan DeSanto-Madeya

{"title":"The Experiences of Nurses as Double-Duty Caregivers for a Family Member at the End of Life: Interpretive Description.","authors":"Sandra A Basley, Ginette G Ferszt, Susan DeSanto-Madeya","doi":"10.1097/NJH.0000000000001009","DOIUrl":"10.1097/NJH.0000000000001009","url":null,"abstract":"Increasing numbers of individuals with complex, advanced illnesses are living longer and being cared for in the home by family members. As a result, family caregivers often experience physical, emotional, psychological, and social distress. A unique subset of this population are nurses who find themselves providing care in both their family lives and work lives, a phenomenon known as \"double-duty caregiving.\" This study explored the experiences of nurses providing end-of-life care for family members while continuing to work as a nurse and the consequences of this experience. A qualitative design, using semistructured, in-depth interviews, was used to capture the double-duty caregivers' experiences. Four overarching themes were identified: It Takes a Village, Driving the Bus, Juggling Many Hats, and Moving Through and Looking Back. These themes captured the components of a support system that are essential for the double-duty caregiver to perform this work, the multifaceted expectations placed upon the double-duty caregiver, the double-duty caregiver's relentless need to balance multiple roles, and the immediate and long-term impact of double-duty caregiving. As nurses, we must acknowledge the need for self-care during this experience, and as a profession, we must provide support for the double-duty caregiver to preserve their personal and professional well-being.","PeriodicalId":54807,"journal":{"name":"Journal of Hospice & Palliative Nursing","volume":" ","pages":"132-139"},"PeriodicalIF":1.8,"publicationDate":"2024-06-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"139418637","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0