Journal of Hospice & Palliative Nursing最新文献_第9页

Applying Lessons From Ars Moriendi to Foster Dying Well in Acute Care Settings. 应用 Ars Moriendi 的经验，在急症护理中促进临终关怀。

IF 1.8 4区医学

Journal of Hospice & Palliative Nursing Pub Date : 2024-06-01 Epub Date: 2024-03-13 DOI: 10.1097/NJH.0000000000001024

Kathy Forte, Danielle Larkin

{"title":"Applying Lessons From Ars Moriendi to Foster Dying Well in Acute Care Settings.","authors":"Kathy Forte, Danielle Larkin","doi":"10.1097/NJH.0000000000001024","DOIUrl":"10.1097/NJH.0000000000001024","url":null,"abstract":"Medical and technological advances have made it possible to keep people alive well beyond what was once possible, leading health care providers to focus on life-sustaining measures rather than questioning the futility of such measures and considering quality of life. In the midst of the struggle to foster dying well in a medicalized environment, acute care nurses may be challenged with shifting the focus to providing optimal end-of-life care because of lack of training, time, and resources. A remedy for the current western societal approach to medicalized dying is to look back in history to a time during the late Middle Ages, when death was an accepted part of medieval life. A literary genre called Ars Moriendi (translated \"the art of dying\") was written and illustrated to provide instruction on how to die well and how to care for the dying. Nurses can apply lessons from this text to fulfill the ethical obligation to practice with dignity and provide compassionate end-of-life care. These lessons include helping patients and families identify goals of care and accept finitude, encouraging the participation of loved ones at the bedside, and fostering reconciliation at the end of life.","PeriodicalId":54807,"journal":{"name":"Journal of Hospice & Palliative Nursing","volume":" ","pages":"172-177"},"PeriodicalIF":1.8,"publicationDate":"2024-06-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"140121389","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Effects of a Discourse Intervention on End-of-Life Knowledge and Attitudes of Bachelor of Science in Nursing Students. 论述干预对护理专业本科生临终关怀知识和态度的影响。

IF 1.8 4区医学

Journal of Hospice & Palliative Nursing Pub Date : 2024-06-01 Epub Date: 2024-01-16 DOI: 10.1097/NJH.0000000000001014

Jayme G Haynes, Catherine Dingley

{"title":"Effects of a Discourse Intervention on End-of-Life Knowledge and Attitudes of Bachelor of Science in Nursing Students.","authors":"Jayme G Haynes, Catherine Dingley","doi":"10.1097/NJH.0000000000001014","DOIUrl":"10.1097/NJH.0000000000001014","url":null,"abstract":"Several challenges exist to providing effective, formalized end-of-life education for undergraduate nursing students. The purpose of this study was to determine whether the addition of a discourse intervention to the End-of-Life Nursing Education Consortium Undergraduate Nursing Modules effectively improved junior-level prelicensure bachelor of science in nursing students' knowledge and attitudes toward end-of-life care. This quasi-experimental 2-group comparison, pretest/posttest design consisted of a sample of 135 enrolled in a medical-surgical nursing class. Applying Mezirow's transformational learning theory, a 2-hour discourse intervention that included a self-reflective journal, an unfolding case study focused on loss, and a discussion with question-and-answer session was implemented at the completion of the Undergraduate Nursing Modules for the intervention group. Knowledge and attitude toward end-of-life care were measured before and after the intervention with the Palliative Care Quiz for Nurses and the Frommelt Attitude Toward Care of the Dying. The findings indicated increased knowledge and positive attitude changes. This study supports the value of theory-based educational interventions, like a discourse intervention, to enhance effective pedagogy when addressing emotionally laden content such as end-of-life care. This study may have also given a glimpse of how a global pandemic may affect end-of-life knowledge and attitudes.","PeriodicalId":54807,"journal":{"name":"Journal of Hospice & Palliative Nursing","volume":" ","pages":"140-148"},"PeriodicalIF":1.8,"publicationDate":"2024-06-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"139479440","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Longing for a Voice: A Qualitative Study. 渴望发声：定性研究。

IF 1.8 4区医学

Journal of Hospice & Palliative Nursing Pub Date : 2024-06-01 Epub Date: 2024-02-29 DOI: 10.1097/NJH.0000000000001022

Bilge Dilek Soyaslan, Gamze Alıncak, Neslihan Ilkaz, Hilal Zengin

引用次数: 0

The Impact of Rapidly Progressing Neurodegenerative Disorders on Caregivers: An Integrative Literature Review. 快速进展的神经退行性疾病对护理者的影响:综合文献综述。

IF 1.8 4区医学

Journal of Hospice & Palliative Nursing Pub Date : 2024-04-01 Epub Date: 2023-12-22 DOI: 10.1097/NJH.0000000000000997

Antonella Mossa, Masako Mayahara, Chuka Emezue, Olimpia Paun

{"title":"The Impact of Rapidly Progressing Neurodegenerative Disorders on Caregivers: An Integrative Literature Review.","authors":"Antonella Mossa, Masako Mayahara, Chuka Emezue, Olimpia Paun","doi":"10.1097/NJH.0000000000000997","DOIUrl":"10.1097/NJH.0000000000000997","url":null,"abstract":"Neurodegenerative disorders affect over 6 million people in the United States. A subset of these patients experiences symptoms that progress rapidly, along with a 5- to 10-year life expectancy (amyotrophic lateral sclerosis). This subgroup often becomes dependent on family caregivers. Managing care demands at the end of life that are brought on by rapid disease progression has a negative impact on caregiver quality of life. The purpose of this integrative review is to highlight the gaps in the existing body of research on the effect of neuropalliative care on quality of life of this caregiver population. A total of 13 articles met inclusion criteria and were selected for review. The most frequently occurring themes and findings in the literature shed light on neuropalliative care and provided some insight into both caregivers and patients' perspective at the end of life. What sets this population apart from caregivers and patients of other terminal diseases is the nature of disease progression and the rapid life adjustments that come along with it. Integration of neuropalliative has shown to provide additional support for caregivers and patients; however, it remains underused. To promote equitable access to these services, it is necessary to address several structural barriers.","PeriodicalId":54807,"journal":{"name":"Journal of Hospice & Palliative Nursing","volume":" ","pages":"E62-E73"},"PeriodicalIF":1.8,"publicationDate":"2024-04-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"138048836","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Nursing Students' Intention to Work in Hospice Care in the Future: A Cross-sectional Study. 护理专业学生未来从事临终关怀工作的意愿：一项横断面研究。

IF 1.8 4区医学

Journal of Hospice & Palliative Nursing Pub Date : 2024-04-01 Epub Date: 2023-10-09 DOI: 10.1097/NJH.0000000000000990

Merav Ben Natan, Moran Makhoul Khuri, Haviel Hammer, Maya Yarkoni

{"title":"Nursing Students' Intention to Work in Hospice Care in the Future: A Cross-sectional Study.","authors":"Merav Ben Natan, Moran Makhoul Khuri, Haviel Hammer, Maya Yarkoni","doi":"10.1097/NJH.0000000000000990","DOIUrl":"10.1097/NJH.0000000000000990","url":null,"abstract":"Studies reveal that nursing students rank hospice nursing among their least preferred career choices. The purpose of this study was to explore the association between nursing students' intention to work in hospice care in the future and their attitudes toward caring for dying patients, death anxiety, personal and/or professional experience of caring for dying patients, and type of nursing program studied. In this cross-sectional study, 200 nursing students completed an online survey based on the Frommelt Attitude Toward Care of the Dying Scale and the Turkish Death Anxiety Scale. Only 11% of the respondents were found to express interest in working in hospice care in the future. Studying in the accelerated program for nonnursing Bachelor of Arts graduates predicted a higher intention to work in hospice care in the future, than studying in the generic program (β = 0.27, P < .001). Completion of clinical experience in a medical ward predicted lower intention (β = -0.21, P < .01). These findings suggest that nursing students in the accelerated program for nonnursing Bachelor of Arts graduates should be provided with appropriate experience and support to maintain their interest in hospice nursing. Clinical experience in medical wards does not seem to be a good substitute for clinical experience in hospice care.","PeriodicalId":54807,"journal":{"name":"Journal of Hospice & Palliative Nursing","volume":" ","pages":"E55-E61"},"PeriodicalIF":1.8,"publicationDate":"2024-04-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"41184250","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

End-of-Life Care Planning: Perspectives of Returning Citizens. 临终关怀计划:归国公民的视角。

IF 1.2 4区医学

Journal of Hospice & Palliative Nursing Pub Date : 2024-04-01 Epub Date: 2023-11-13 DOI: 10.1097/NJH.0000000000000999

Erin Kitt-Lewis, Susan J Loeb

{"title":"End-of-Life Care Planning: Perspectives of Returning Citizens.","authors":"Erin Kitt-Lewis, Susan J Loeb","doi":"10.1097/NJH.0000000000000999","DOIUrl":"10.1097/NJH.0000000000000999","url":null,"abstract":"Demographic shifts toward an older and sicker prison population present challenges for corrections leaders and incarcerated people. The priority of custody and control over care in prisons can deprive people of a modicum of autonomy even about expressing their end-of-life wishes. This study was undertaken to inform best practices and identify essential components of end-of-life care planning (EOLCP) for people who will likely die incarcerated. Individual interviews with formerly incarcerated people (n = 16) provided insights on EOLCP knowledge, perceptions, and future plans as each reflected on experiences while incarcerated. Zoom Video Communications were used for the interviews, and audio recordings were transcribed verbatim, verified, and deidentified prior to thematic analysis. Themes were defined and discussed until consensus was reached between the 2 researchers. End-of-life care planning themes included the following: understanding of and experience with advanced directives/care planning (AD/ACP), defining AD/ACP, timing of AD/ACP accessibility to health care resources, how to approach EOLCP in prison, advantages of EOLCP, and barriers to EOLCP. Formerly incarcerated peoples' knowledge, perceptions, and future plans revealed important considerations when developing a contextually relevant toolkit for EOLCP for people living in prison.","PeriodicalId":54807,"journal":{"name":"Journal of Hospice & Palliative Nursing","volume":" ","pages":"82-90"},"PeriodicalIF":1.2,"publicationDate":"2024-04-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10932894/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"92157312","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Home Care Clinicians' Perspectives on Advance Care Planning for Patients at Risk for Becoming Incapacitated With No Evident Advance Directives or Surrogates. 居家护理临床医生对无明显预先医疗指示或代理的高危失能患者预先医疗规划的看法。

IF 1.2 4区医学

Journal of Hospice & Palliative Nursing Pub Date : 2024-04-01 Epub Date: 2024-02-10 DOI: 10.1097/NJH.0000000000000998

Aviv Y Landau, Chinmayi Venkatram, Jiyoun Song, Maxim Topaz, Robert Klitzman, Jingjing Shang, Patricia Stone, Margaret McDonald, Bevin Cohen

{"title":"Home Care Clinicians' Perspectives on Advance Care Planning for Patients at Risk for Becoming Incapacitated With No Evident Advance Directives or Surrogates.","authors":"Aviv Y Landau, Chinmayi Venkatram, Jiyoun Song, Maxim Topaz, Robert Klitzman, Jingjing Shang, Patricia Stone, Margaret McDonald, Bevin Cohen","doi":"10.1097/NJH.0000000000000998","DOIUrl":"10.1097/NJH.0000000000000998","url":null,"abstract":"Advance care planning is important and timely for patients receiving home health services; however, opportunities to facilitate awareness and engagement in this setting are often missed. This qualitative descriptive study elicited perspectives of home health nurses and social workers regarding barriers and facilitators to creating advance care plans in home health settings, with particular attention to patients with few familial or social contacts who can serve as surrogate decision-makers. We interviewed 15 clinicians employed in a large New York City-based home care agency in 2021-2022. Participants reported a multitude of barriers to supporting patients with advance care planning at the provider level (eg, lack of time and professional education, deferment, discomfort), patient level (lack of knowledge, mistrust, inadequate support, deferment, language barriers), and system level (eg, discontinuity of care, variations in advance care planning documents, legal concerns, lack of institutional protocols and centralized information). Participants noted that greater socialization and connection to existing educational resources regarding the intended purpose, scope, and applicability of advance directives could benefit home care patients.","PeriodicalId":54807,"journal":{"name":"Journal of Hospice & Palliative Nursing","volume":" ","pages":"74-81"},"PeriodicalIF":1.2,"publicationDate":"2024-04-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10940180/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"139716613","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Nurse-Led, Telephone-Based Primary Palliative Care Intervention for Patients With Lung Cancer: Domains of Quality Care. 针对肺癌患者的以护士为主导、基于电话的初级姑息治疗干预：优质护理领域。

IF 1.8 4区医学

Journal of Hospice & Palliative Nursing Pub Date : 2024-04-01 Epub Date: 2023-12-14 DOI: 10.1097/NJH.0000000000001005

Lynn F Reinke, Erica V Tartaglione, Susan Ruedebusch, Patti H Smith, Donald R Sullivan

{"title":"Nurse-Led, Telephone-Based Primary Palliative Care Intervention for Patients With Lung Cancer: Domains of Quality Care.","authors":"Lynn F Reinke, Erica V Tartaglione, Susan Ruedebusch, Patti H Smith, Donald R Sullivan","doi":"10.1097/NJH.0000000000001005","DOIUrl":"10.1097/NJH.0000000000001005","url":null,"abstract":"Palliative care is traditionally delivered by specialty-trained palliative care teams. Because of a national workforce shortage of palliative care specialists, there is an urgent need to explore alternative models of palliative care delivery to meet the needs of patients living with serious illness. As part of a multisite randomized controlled trial, 2 registered nurses without previous palliative care experience were trained to deliver a primary palliative care intervention to patients with newly diagnosed lung cancer. The intervention focused on assessing and managing symptoms, psychosocial needs, education, and initiating goals-of-care discussions. The primary outcome, improved symptom burden and quality of life, was not statistically significant. Despite this finding, nurses addressed 5 of the 8 National Consensus Project Guidelines domains of quality palliative care: structure and processes of care; physical, psychological, and social aspects of care; and ethical and legal aspects. Patients' engagement in goals-of-care discussions, a measure of high-quality palliative care, increased. Clinical recommendations offered by the nurses to the patients' clinicians were addressed and accepted on a timely basis. Most patients rated satisfaction with the intervention as \"very or extremely\" satisfied. These findings may inform future nurse-led palliative care interventions on the specific quality domains of palliative care.","PeriodicalId":54807,"journal":{"name":"Journal of Hospice & Palliative Nursing","volume":" ","pages":"104-111"},"PeriodicalIF":1.8,"publicationDate":"2024-04-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"138813202","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Intensive Care Unit Nurses' Attitudes Toward Truth-Telling, Life-Sustaining Treatment, and Decision-Making Intention for End-of-Life Patients: A Cross-sectional Survey. 重症监护室护士对临终病人讲真话、维持生命治疗和决策意向的态度:一项横断面调查。

IF 1.8 4区医学

Journal of Hospice & Palliative Nursing Pub Date : 2024-04-01 Epub Date: 2023-11-17 DOI: 10.1097/NJH.0000000000000989

Mengjie Liu, Tingting Zhang, Li Chen, Yan Liu, Aini Yin, Xu Mei, Fang Qiu

{"title":"Intensive Care Unit Nurses' Attitudes Toward Truth-Telling, Life-Sustaining Treatment, and Decision-Making Intention for End-of-Life Patients: A Cross-sectional Survey.","authors":"Mengjie Liu, Tingting Zhang, Li Chen, Yan Liu, Aini Yin, Xu Mei, Fang Qiu","doi":"10.1097/NJH.0000000000000989","DOIUrl":"10.1097/NJH.0000000000000989","url":null,"abstract":"Truth-telling and life-sustaining treatment decisions are important elements of the quality of patients' care at the end of life. As the primary caregivers of patients at the end of life in intensive care units (ICUs), ICU nurses play an important role in patient decision making and hospice care. This study aimed to investigate and analyze ICU nurses' attitudes toward truth-telling, attitudes toward end-of-life life-sustaining treatment, and end-of-life decision-making behavioral intentions. One hundred twenty-two ICU nurses participated in this cross-sectional survey. Data were collected using a validated questionnaire. The results showed that ICU nurses' attitudes toward telling patients the truth and end-of-life life-sustaining treatment were both positive, but further improvement is needed. Nurses have a higher willingness to make palliative care decisions for patients at the end of life and to help patients achieve a good death. The truth-telling attitude, the life-sustaining treatment attitude, and whether they knew that cardiopulmonary resuscitation could be legally forgone at the end of life were factors influencing ICU nurses' behavioral intention toward decision making for patients at the end of life (all P s < .05). We conclude that nurses' participation in truth-telling and end-of-life decision making should be promoted, and timely hospice care should be provided to patients to help them achieve a good death.","PeriodicalId":54807,"journal":{"name":"Journal of Hospice & Palliative Nursing","volume":" ","pages":"E46-E54"},"PeriodicalIF":1.8,"publicationDate":"2024-04-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"136400403","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

A Review of Parental Bereavement Interventions: Implications for Clinical Practice, Research, and Policy. 父母丧亲干预综述：对临床实践、研究和政策的影响。

IF 1.8 4区医学

Journal of Hospice & Palliative Nursing Pub Date : 2024-04-01 Epub Date: 2024-01-15 DOI: 10.1097/NJH.0000000000001016

Nancy Dias, Abigail Floyd, Rhea Ramkumar, Savannah Horvick, Amanda Haberstroh, Verna L Hendricks-Ferguson, Tracy Fasolino

{"title":"A Review of Parental Bereavement Interventions: Implications for Clinical Practice, Research, and Policy.","authors":"Nancy Dias, Abigail Floyd, Rhea Ramkumar, Savannah Horvick, Amanda Haberstroh, Verna L Hendricks-Ferguson, Tracy Fasolino","doi":"10.1097/NJH.0000000000001016","DOIUrl":"10.1097/NJH.0000000000001016","url":null,"abstract":"The untimely death of a child is an incredibly traumatic experience for parents and their loved ones. It uproots every aspect of their life, leading the bereaved parents to be far more likely to have poorer physical and mental health outcomes. This traumatic form of bereavement should have comprehensive grief-focused, high-quality interventions available for parents and extended family members. The purpose of this rapid review was to explore and describe the bereavement interventions available for parents and family that have been published within the past 5 years. Records identified 123 full-text articles that were reviewed, and 14 of those were included for data extraction and synthesis, using Cochrane Rapid Reviews Methods Group with the addition of keyword searches. The 14 articles were analyzed by evaluating description of bereaved parents, accessibility of interventions, who delivered interventions, and the type and delivery time of interventions. Four types of interventions were identified, including Web-based, community-based, hospital-based, and psychotherapy interventions. This rapid review has implications for clinical practice, research, and health care policy that can increase the availability of support and quality of interventions for bereaved parents and family members.","PeriodicalId":54807,"journal":{"name":"Journal of Hospice & Palliative Nursing","volume":" ","pages":"60-67"},"PeriodicalIF":1.8,"publicationDate":"2024-04-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"139479435","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0