Journal of Hospice & Palliative Nursing最新文献_第9页

Bereavement Support for Oncology Nurses Caring for Patients and Families. 肿瘤科护士照顾病人和家属的丧亲支持。

IF 1.3 4区医学

Journal of Hospice & Palliative Nursing Pub Date : 2026-04-01 Epub Date: 2026-02-20 DOI: 10.1097/NJH.0000000000001218

引用次数: 0

A Rapid Review of Qualitative Studies on the Latino Dementia Caregiving Experience. 拉丁裔痴呆症护理经验定性研究的快速回顾

IF 1.3 4区医学

Journal of Hospice & Palliative Nursing Pub Date : 2026-04-01 Epub Date: 2026-02-20 DOI: 10.1097/NJH.0000000000001205

Leah V Estrada, Diego Rivera, Carla M McNulty, Barbara Squeri, Jennifer M Reckrey

{"title":"A Rapid Review of Qualitative Studies on the Latino Dementia Caregiving Experience.","authors":"Leah V Estrada, Diego Rivera, Carla M McNulty, Barbara Squeri, Jennifer M Reckrey","doi":"10.1097/NJH.0000000000001205","DOIUrl":"10.1097/NJH.0000000000001205","url":null,"abstract":"The Latino population is at an increased risk of developing dementia. Nurses have been identified as a main source of dementia care support for dementia caregivers. Latino dementia caregivers may have unique challenges due to factors including language barriers and cultural values and expectations. A rapid review was conducted to synthesize the qualitative literature on the experiences of Latino family caregivers of persons living with dementia to support nursing integration of palliative care for Latino family caregivers of persons living with dementia. Fifteen articles were included in this rapid review. Five emergent themes were identified from the included articles: (1) Culture and Caregiving Values; (2) Caregiving Challenges; (3) Health Care System Navigation; (4) Managing Dementia Care Without Formal Supports; and (5) Understanding of Dementia. Latino family caregivers often cited cultural values (eg, familismo) as central to their caregiving identities and balanced their own life and that of their loved one with limited support. This rapid review provides implications for practice, policy, and research that can better support the palliative care needs of Latino family caregivers of persons living with dementia and their caregivers.","PeriodicalId":54807,"journal":{"name":"Journal of Hospice & Palliative Nursing","volume":"28 2","pages":"62-71"},"PeriodicalIF":1.3,"publicationDate":"2026-04-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"147357829","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Religious Leaders' Experience of Advance Care Planning and Death-Related Discussions With Korean Americans: A Qualitative Study Identifying Obstacles and Strategies. 宗教领袖与韩裔美国人预先护理计划和死亡相关讨论的经验：一项确定障碍和策略的定性研究。

IF 1.3 4区医学

Journal of Hospice & Palliative Nursing Pub Date : 2026-04-01 Epub Date: 2025-12-11 DOI: 10.1097/NJH.0000000000001168

Dahee Wi, Seo Yoon Lee, Min Su Kim, Ardith Z Doorenbos, Li-Ting H Longcoy

{"title":"Religious Leaders' Experience of Advance Care Planning and Death-Related Discussions With Korean Americans: A Qualitative Study Identifying Obstacles and Strategies.","authors":"Dahee Wi, Seo Yoon Lee, Min Su Kim, Ardith Z Doorenbos, Li-Ting H Longcoy","doi":"10.1097/NJH.0000000000001168","DOIUrl":"10.1097/NJH.0000000000001168","url":null,"abstract":"Advance care planning is a critical process that allows individuals to articulate their values and preferences for end-of-life care before a medical crisis occurs. This study explored the challenges that religious leaders experience when engaging in advance care planning and death-related conversations with first- and second-generation Korean Americans, and the strategies employed to overcome these challenges. Using a descriptive qualitative study design, interviews were conducted with 12 religious leaders in the United States who provide spiritual/pastoral care to Korean Americans. Analysis revealed both cultural and structural obstacles to advance care planning. Cultural obstacles include emotional suppression, stigma around death, intergenerational conflict, and religious ambivalence. Structural obstacles included knowledge gaps and misconceptions about advance care planning. Despite these obstacles, religious leaders acted as cultural mediators by employing strategies, such as waiting for emotional readiness, building long-term trust, adapting communication to family needs, reframing death through spiritual narratives, utilizing teachable moments for end-of-life conversations, and offering practical guidance. These findings underscore religious leaders' unique role in bridging health care and cultural values, and highlight the need for community-based, community-specific approaches to improve end-of-life communication and planning for Korean Americans.","PeriodicalId":54807,"journal":{"name":"Journal of Hospice & Palliative Nursing","volume":" ","pages":"E25-E32"},"PeriodicalIF":1.3,"publicationDate":"2026-04-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"145727155","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Bereavement Support for Oncology Nurses Caring for Patients and Families. 肿瘤科护士照顾病人和家属的丧亲支持。

IF 1.3 4区医学

Journal of Hospice & Palliative Nursing Pub Date : 2026-04-01 Epub Date: 2025-10-28 DOI: 10.1097/NJH.0000000000001180

Tami Borneman, Paige Hayward, Haley Buller

{"title":"Bereavement Support for Oncology Nurses Caring for Patients and Families.","authors":"Tami Borneman, Paige Hayward, Haley Buller","doi":"10.1097/NJH.0000000000001180","DOIUrl":"10.1097/NJH.0000000000001180","url":null,"abstract":"Grief and bereavement support are essential for patients and family members facing serious illness and the end of life. In total, 126 participants attended a 2-day palliative care training for oncology, the End-of-Life Nursing Education Consortium Oncology advanced practice registered nurse course, supported by a grant from the National Cancer Institute. Participants were asked to complete 3 open-ended questions and an 11-item survey assessing their confidence in providing bereavement support for patients and family members facing serious illness and end of life in postcourse evaluations. Results indicated that the lowest confidence scores were related to basic assessment of grief in adults and pediatrics and the highest confidence scores were providing emotional support for patients/families in their grief and supporting colleagues in their grief. Six themes emerged from the open-ended question that asked participants to share case studies describing a patient or family member that they had cared for who was experiencing grief and nurse interventions: (1) treatment failure/out of options, (2) unexpected death or recent loss, (3) impending death, (4) multiple or overlapping losses, (5) coping, and (6) anticipatory grief. Hospice and Palliative Care nurses can provide bereavement support for oncology patients, their families, and the oncology nurses who care for them.","PeriodicalId":54807,"journal":{"name":"Journal of Hospice & Palliative Nursing","volume":" ","pages":"84-93"},"PeriodicalIF":1.3,"publicationDate":"2026-04-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC12616665/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"145440032","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Promoting Continuity of Care During End-of-Life in Bangkok: An Action Research Study. 促进曼谷临终关怀的连续性：一项行动研究。

IF 1.3 4区医学

Journal of Hospice & Palliative Nursing Pub Date : 2026-04-01 Epub Date: 2025-12-11 DOI: 10.1097/NJH.0000000000001173

Nisa Wongchan, Kittikorn Nilmanat, Tippamas Chinnawong

{"title":"Promoting Continuity of Care During End-of-Life in Bangkok: An Action Research Study.","authors":"Nisa Wongchan, Kittikorn Nilmanat, Tippamas Chinnawong","doi":"10.1097/NJH.0000000000001173","DOIUrl":"10.1097/NJH.0000000000001173","url":null,"abstract":"Continuity of care prioritizes patient-centered approaches. Effective continuity of care is essential for ensuring high-quality service delivery and benefits for patients in the end-of-life phase. Although continuity of care has been well-established, few studies have focused on promoting continuity of care in big cities. The purpose of this action research was to develop a model for continuity of care during the end-of-life phase in Bangkok. Key participants were 8 nurses involved in continuity of care services. The data collection consisted of in-depth interviews, focus group discussions, observation, and document reviews. The research process followed the action research cycle. Content analysis was employed. The 3 emerging domains of continuity of care during the end-of-life included (1) comprehensive patient information; (2) collaborative care management; and (3) technology-supported care. The participants indicated that the key factors to successful continuity of care during the end-of-life involved: (1) clear goals; (2) effective communication; (3) proactive coordination; and (4) good health care provider-client relationships. The model motivated nurses and other providers in the hospital to change practices associated with continuity of care for palliative care patients. This study's findings provide a foundation for future research to strengthen sustainable care continuity and develop palliative care networks in urban Thailand.","PeriodicalId":54807,"journal":{"name":"Journal of Hospice & Palliative Nursing","volume":" ","pages":"E33-E40"},"PeriodicalIF":1.3,"publicationDate":"2026-04-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"145727185","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Hearing the Patient Voice at the Crossroads. 在十字路口听到耐心的声音。

IF 1.3 4区医学

Journal of Hospice & Palliative Nursing Pub Date : 2026-04-01 Epub Date: 2026-02-20 DOI: 10.1097/NJH.0000000000001202

Anne E Hysong

引用次数: 0

Palliative Care Perceptions and Needs Among Total Cancer Care Patients Undergoing Immunotherapy: A Mixed Methods Study. 接受免疫治疗的癌症患者的姑息治疗认知和需求：一项混合方法研究。

IF 1.3 4区医学

Journal of Hospice & Palliative Nursing Pub Date : 2026-04-01 Epub Date: 2025-02-20 DOI: 10.1097/NJH.0000000000001108

Malek Alnajar, Nahyun Kim, Ellie Roark, Min Jung Park, Megan Rose, Natasha Ansari, Rebekah Perkins, Amanda Keddington, Lee Ellington, Djin L Tay

{"title":"Palliative Care Perceptions and Needs Among Total Cancer Care Patients Undergoing Immunotherapy: A Mixed Methods Study.","authors":"Malek Alnajar, Nahyun Kim, Ellie Roark, Min Jung Park, Megan Rose, Natasha Ansari, Rebekah Perkins, Amanda Keddington, Lee Ellington, Djin L Tay","doi":"10.1097/NJH.0000000000001108","DOIUrl":"10.1097/NJH.0000000000001108","url":null,"abstract":"Immunotherapies are increasingly used in advanced cancers, including lung, head, and neck cancers, and may contribute to misconceptions about reduced palliative care (PC) needs due to prolonged survival. This convergent mixed-methods study examined patients' knowledge, perceptions, and PC-related needs. A survey (n = 33) and semistructured interviews (n = 16) were conducted with patients from 5 Western United States. Quantitative data were analyzed descriptively, and qualitative data underwent thematic analysis. Participants had a mean age of 66.1 years, and 65.2% were male. Most perceived their treatment as aimed at controlling disease progression. The majority (81.8%) reported inadequate knowledge of PC, and 45.5% identified physicians as responsible for initiating PC discussions. Key emotional and spiritual needs included preparedness for the future (M = 4.85, SD = 1.9), emotional support for patients (M = 4.27, SD = 2.2) and families (M = 4.06, SD = 1.9), and spiritual support (M = 3.91, SD = 2.2). Qualitative findings highlighted themes related to treatment expectations, PC awareness, unmet needs, and timing of integration. Proactive education and early PC integration are essential to improve the quality of life, symptom management, and psychosocial and spiritual support for this population.","PeriodicalId":54807,"journal":{"name":"Journal of Hospice & Palliative Nursing","volume":" ","pages":"E83-E95"},"PeriodicalIF":1.3,"publicationDate":"2026-04-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"146214932","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Developing and Implementing a Spiritual Self-Care Program for Hospice Team Members. 为安宁疗护团队成员发展及实施精神自我照护计划。

IF 1.3 4区医学

Journal of Hospice & Palliative Nursing Pub Date : 2026-04-01 Epub Date: 2025-12-05 DOI: 10.1097/NJH.0000000000001184

Sunhee Jang, Hyeongnam Yeo, Minyeong Kim, Namjoo Je, Misung Bang

{"title":"Developing and Implementing a Spiritual Self-Care Program for Hospice Team Members.","authors":"Sunhee Jang, Hyeongnam Yeo, Minyeong Kim, Namjoo Je, Misung Bang","doi":"10.1097/NJH.0000000000001184","DOIUrl":"10.1097/NJH.0000000000001184","url":null,"abstract":"The purpose of this study was to develop a spiritual self-care program for hospice team members and to evaluate its effects on stress management, spiritual self-care, and burnout. The research method was a quasi-experimental study with a nonequivalent control group pre-post design, and the participants were hospice team members working in a hospice care organization, with 20 participants in the experimental group and 19 participants in the control group. The experimental group completed a spiritual self-care program over 7 sessions, which included topics such as self-awareness, finding meaning in life, and mindfulness. Stress management, spiritual self-care, and burnout were assessed before the program and immediately after the program ended. The results showed that stress management and spiritual self-care scores significantly increased in the experimental group compared with the control group. Burnout scores also decreased significantly in the experimental group. The spiritual self-care program for hospice team was found to be effective in improving stress management and reducing burnout. This study emphasizes the necessity for developing self-care programs aimed at supporting the emotional and psychological health of hospice team and suggests providing educational programs on a regular basis with the establishment of an organizational-level support system.","PeriodicalId":54807,"journal":{"name":"Journal of Hospice & Palliative Nursing","volume":" ","pages":"E68-E75"},"PeriodicalIF":1.3,"publicationDate":"2026-04-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"145710048","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

The Experiences of Primary Caregivers of Children Receiving Palliative Care: A Qualitative Study. 儿童主要照顾者接受姑息治疗的经验：一项质性研究。

IF 1.3 4区医学

Journal of Hospice & Palliative Nursing Pub Date : 2026-04-01 Epub Date: 2026-02-17 DOI: 10.1097/NJH.0000000000001169

Mürşide Zengin, Emriye Hilal Yayan, İrem Kenç

{"title":"The Experiences of Primary Caregivers of Children Receiving Palliative Care: A Qualitative Study.","authors":"Mürşide Zengin, Emriye Hilal Yayan, İrem Kenç","doi":"10.1097/NJH.0000000000001169","DOIUrl":"10.1097/NJH.0000000000001169","url":null,"abstract":"Pediatric palliative care presents a complex landscape for primary caregivers, who play a pivotal role in managing the care and well-being of children with life-limiting or life-threatening conditions. The present study aimed to explore the life experiences of primary caregivers of children receiving pediatric palliative care. This study used semistructured interviews that were audio recorded with 19 family caregivers of children who had received pediatric palliative care in the pediatric intensive care unit. Most of the primary caregivers included in the study were the children's mothers. The results of the study revealed 4 main themes with 13 subthemes: (1) adjusting to a new life; (2) primary caregivers' adaptation to the illness; (3) ongoing challenges; and (4) maintaining social networks. Primary caregivers of the children receiving palliative care have social and financial difficulties that will affect their life cycle, including their daily and social life. Strategies to support caregivers should be developed to create an environment in which the problems of caregivers of children receiving palliative care are refined, and necessary changes should be encouraged through the development of training programs.","PeriodicalId":54807,"journal":{"name":"Journal of Hospice & Palliative Nursing","volume":" ","pages":"76-83"},"PeriodicalIF":1.3,"publicationDate":"2026-04-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"146214954","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Auricular Acupuncture for Symptom Management in Inpatient Palliative Care. 耳针在住院姑息治疗中的症状管理。

IF 1.3 4区医学

Journal of Hospice & Palliative Nursing Pub Date : 2026-04-01 Epub Date: 2026-02-20 DOI: 10.1097/NJH.0000000000001183

Anup Bhushan, Dan Mazanec, Jessica Bullington, Justin Marsden, Jingwen Zhang, Kacie Bhushan, Patrick Coyne

{"title":"Auricular Acupuncture for Symptom Management in Inpatient Palliative Care.","authors":"Anup Bhushan, Dan Mazanec, Jessica Bullington, Justin Marsden, Jingwen Zhang, Kacie Bhushan, Patrick Coyne","doi":"10.1097/NJH.0000000000001183","DOIUrl":"10.1097/NJH.0000000000001183","url":null,"abstract":"Palliative care teams treat patients with intractable pain and debilitating symptoms on a daily basis. Nurses play a significant role in the assessment and intervention of patients with chronic pain, and the complicated constellation of symptoms with which they present are often quite challenging to manage. Complementary therapy with acupuncture has proven to be helpful, but to date, there is little research examining the efficacy of auricular acupuncture in treating the acute-on-chronic symptoms associated with life-limiting illness in hospitalized patients. This observational, nonrandomized, pragmatic study of 101 participants examined auricular acupuncture's impact on pain and symptom management, as well as pre- and post-intervention opioid utilization, when applied by volunteer physicians within an inpatient palliative care program. This study demonstrated statistical improvement in pain, nausea, dyspnea, and anxiety scores. Nurses and other providers trained in auricular acupuncture can provide a nonpharmacological intervention that improves pain and related symptoms for patients with serious illness.","PeriodicalId":54807,"journal":{"name":"Journal of Hospice & Palliative Nursing","volume":"28 2","pages":"94-98"},"PeriodicalIF":1.3,"publicationDate":"2026-04-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"147357862","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0