Journal of Hospice & Palliative Nursing最新文献_第9页

Palliative Care Needs of Families of Adults With Advanced Cancer. 晚期癌症成人家庭的姑息治疗需求。

IF 1.8 4区医学

Journal of Hospice & Palliative Nursing Pub Date : 2023-08-01 DOI: 10.1097/NJH.0000000000000954

Carolina Rojas-Garcia, Lina María Vargas-Escobar, Mónica Giraldo-Castro

{"title":"Palliative Care Needs of Families of Adults With Advanced Cancer.","authors":"Carolina Rojas-Garcia, Lina María Vargas-Escobar, Mónica Giraldo-Castro","doi":"10.1097/NJH.0000000000000954","DOIUrl":"https://doi.org/10.1097/NJH.0000000000000954","url":null,"abstract":"Diagnosis and treatment of a terminal illness can significantly impact patients and their families, as well as their functionality and daily routines. This study aimed to understand the palliative care needs of a group of families with an adult relative with advanced cancer receiving palliative care. A qualitative approach was used to conduct a content analysis. Fourteen semistructured interviews were carried out with family members in Cundinamarca (Colombia) between March and April 2022. The information was analyzed by coding and categorizing the emerging themes using NVivo. Three main categories emerged: the diagnosis' harsh surprise, the family's coping with the disease, and the palliative care needs of families. Identifying the resources available to families to care for relatives with advanced cancer can facilitate the work of palliative care teams. It is necessary to prevent the family from giving up on caring, which can result from exhaustion due to various causes. Families who have an adult relative with advanced cancer in palliative care face significant challenges. Their situation involves accepting the diagnosis, changing family routines, dealing with the disease and the health care system, and coping with circumstances that create needs of different kinds.","PeriodicalId":54807,"journal":{"name":"Journal of Hospice & Palliative Nursing","volume":null,"pages":null},"PeriodicalIF":1.8,"publicationDate":"2023-08-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"10399842","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Advancing Trauma-Informed Care Education for Hospice and Palliative Staff: Development and Evaluation of Educational Videos. 推进针对安宁疗护与姑息治疗工作人员的创伤知情护理教育：教育视频的开发与评估。

IF 1.2 4区医学

Journal of Hospice & Palliative Nursing Pub Date : 2023-08-01 DOI: 10.1097/NJH.0000000000000804

Kelly A O'Malley, Anna G Etchin, Elizabeth J Auguste, Anica Pless Kaiser, Lynn Korsun, Rachel E Weiskittle, Hannah M Bashian, Zachary S Sager, Jennifer Moye

{"title":"Advancing Trauma-Informed Care Education for Hospice and Palliative Staff: Development and Evaluation of Educational Videos.","authors":"Kelly A O'Malley, Anna G Etchin, Elizabeth J Auguste, Anica Pless Kaiser, Lynn Korsun, Rachel E Weiskittle, Hannah M Bashian, Zachary S Sager, Jennifer Moye","doi":"10.1097/NJH.0000000000000804","DOIUrl":"10.1097/NJH.0000000000000804","url":null,"abstract":"Nurses play an essential role in managing mental health conditions, such as posttraumatic stress disorder (PTSD), especially in rural areas where access to mental health care is limited. Posttraumatic stress disorder may emerge at the end of life and complicate health care and is a particular concern for aging Vietnam veterans. We describe the development of 3 videos that illustrate how to recognize PTSD, respond to trauma disclosures, and manage PTSD in cognitive impairment during an in-home hospice nurse visit. Through problem identification and needs assessment, we identified 6 goals and 28 specific content objectives presented through cinematic action with flashbacks or voice-over narration with graphics. Videos were evaluated through a survey (N = 155) and analysis of \"chat\" responses (N = 186) to targeted questions during a webinar presentation to clinicians (N = 345). Approximately 75% rated videos as \"very much\" relevant to needs, having helped learn something new, and realistic. Analysis of chat responses showed videos conveyed most content objectives (92%). In addition, participants stated videos were helpful in demonstrating nursing skills of listening, responding, and displaying empathy, as well as showing case presentations involving cognitive impairment and the patient experience. Participants expressed a desire for longer videos/more information including a wider range of PTSD presentations and comorbidities.","PeriodicalId":54807,"journal":{"name":"Journal of Hospice & Palliative Nursing","volume":null,"pages":null},"PeriodicalIF":1.2,"publicationDate":"2023-08-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9002316/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"10041316","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Factors Associated With Mode of Separation for People With Palliative Diagnoses With Preference for Home Death Receiving Care From a Nurse-Led End of Life (Palliative Extended and Care at Home) Program. 姑息性诊断患者倾向于接受护士主导的临终关怀(姑息性延长和家庭护理)计划的家庭死亡与分离模式相关的因素。

IF 1.8 4区医学

Journal of Hospice & Palliative Nursing Pub Date : 2023-08-01 DOI: 10.1097/NJH.0000000000000841

Meera R Agar, Wei Xuan, Jessica Lee, Greg Barclay, Alan Oloffs, Kim Jobburn, Janeane Harlum, Nutan Maurya, Josephine Sau Fan Chow

{"title":"Factors Associated With Mode of Separation for People With Palliative Diagnoses With Preference for Home Death Receiving Care From a Nurse-Led End of Life (Palliative Extended and Care at Home) Program.","authors":"Meera R Agar, Wei Xuan, Jessica Lee, Greg Barclay, Alan Oloffs, Kim Jobburn, Janeane Harlum, Nutan Maurya, Josephine Sau Fan Chow","doi":"10.1097/NJH.0000000000000841","DOIUrl":"https://doi.org/10.1097/NJH.0000000000000841","url":null,"abstract":"Palliative Extended and Care at Home (PEACH) is a rapid response nurse-led package of care mobilized for palliative care patients who have an expressed preference to die at home. This study aimed to identify the demographic and clinical predictors of home death for patients receiving the package. Deidentified data were used from administrative and clinical information systems. Univariate and multivariate analyses were conducted to assess association of sociodemographic factors with mode of separation. Furthermore, 1754 clients received the PEACH package during the study period. Mode of separation was home death (75.7%), hospital/palliative care unit admission (13.5%), and alive/discharged from the PEACH Program (10.8%). Of participants with clear preference to die at home, 79% met their wish. Multivariate analysis demonstrated cancer diagnosis, patients who wished to be admitted when death was imminent, and patients with undecided preference for location of death were associated with an increased likelihood of being admitted to the hospital. Compared with those with spousal caregivers, those cared for by their child/grandchild and other nonspouse caregivers were significantly associated with a decreased likelihood of being admitted to the hospital/palliative care unit. Our results show that opportunities to tailor home care based on referral characteristics to meet patient preference to die at home, at individual, system, and policy levels, exist.","PeriodicalId":54807,"journal":{"name":"Journal of Hospice & Palliative Nursing","volume":null,"pages":null},"PeriodicalIF":1.8,"publicationDate":"2023-08-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"10035032","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Suffering 2.0. 2.0。

IF 1.8 4区医学

Journal of Hospice & Palliative Nursing Pub Date : 2023-08-01 DOI: 10.1097/NJH.0000000000000960

引用次数: 0

Predictors of Advance Care Planning Engagement Among Muslim Americans. 穆斯林美国人提前护理计划参与的预测因素。

IF 1.8 4区医学

Journal of Hospice & Palliative Nursing Pub Date : 2023-08-01 DOI: 10.1097/NJH.0000000000000966

引用次数: 0

Nursing Home Resident, Family, and Staff Perspectives on Achieving Comfort at End of Life: A Qualitative Study. 疗养院居民、家庭和工作人员在生命结束时实现舒适的观点:一项定性研究。

IF 1.8 4区医学

Journal of Hospice & Palliative Nursing Pub Date : 2023-08-01 DOI: 10.1097/NJH.0000000000000953

Ruth M Tappen, Janet Sopcheck

{"title":"Nursing Home Resident, Family, and Staff Perspectives on Achieving Comfort at End of Life: A Qualitative Study.","authors":"Ruth M Tappen, Janet Sopcheck","doi":"10.1097/NJH.0000000000000953","DOIUrl":"https://doi.org/10.1097/NJH.0000000000000953","url":null,"abstract":"Increasing numbers of US older adults die in long-term care facilities. This qualitative study explored nursing home resident, family member, and staff perspectives and preferences regarding end-of-life care for the resident. From 67 potential participants referred by staff, 47 were found eligible and consented, including 16 residents, 10 family members, and 20 staff. A semistructured questionnaire guided the interview process and included questions such as what matters most at the end of life and whether participants would opt for any of the 8 aggressive treatments proposed for a resident at the end of life. Data were analyzed using descriptive and pattern coding for thematic interpretation. The 3 themes that emerged were centrality of comfort, what matters most at the end of life, and promoting comfort. All participant groups overwhelmingly endorsed comfort as a priority. Some participants would accept aggressive treatment to alleviate suffering and promote comfort. Residents were concerned about the well-being of their families, whereas family members emphasized the importance of their presence and that their dying relatives were not suffering. Staff sometimes filled this role on their behalf. Ancillary staff emphasized bathing, dressing, and grooming the resident to preserve the resident's dignity. The results support comfort as a priority for care at the end of life and the need for more discussion to increase mutual agreement on goals of care and what promotes comfort for the resident and family.","PeriodicalId":54807,"journal":{"name":"Journal of Hospice & Palliative Nursing","volume":null,"pages":null},"PeriodicalIF":1.8,"publicationDate":"2023-08-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"10041413","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

"I Am a Human": A Process Evaluation of a Nurse-Led Community-Based, Palliative Care Program in Liberia, West Africa. "我是一个人"：对西非利比里亚以护士为主导的社区姑息关怀项目的过程评估。

IF 1.8 4区医学

Journal of Hospice & Palliative Nursing Pub Date : 2023-06-01 Epub Date: 2023-04-12 DOI: 10.1097/NJH.0000000000000944

Joseph Lusaka, Julius D N Kpoeh, Jacqueline P Crowell, Martha Sekey Gowa, Dehcontee M Hardy, Viola Karanja, William E Rosa

{"title":"\"I Am a Human\": A Process Evaluation of a Nurse-Led Community-Based, Palliative Care Program in Liberia, West Africa.","authors":"Joseph Lusaka, Julius D N Kpoeh, Jacqueline P Crowell, Martha Sekey Gowa, Dehcontee M Hardy, Viola Karanja, William E Rosa","doi":"10.1097/NJH.0000000000000944","DOIUrl":"10.1097/NJH.0000000000000944","url":null,"abstract":"Liberia is a postwar, post-Ebola, and low-income nation in West Africa with minimal to no palliative care access. In 2017, Partners In Health in collaboration with the Liberian Ministry of Health invested in the development of a nurse-led, community-based palliative care team in southeastern Maryland County at JJ Dossen Memorial Hospital. Between 2017 and 2022, the 9-member team (8 nurses, 1 physician assistant) has enrolled 142 patients under their care. This is a qualitative process evaluation eliciting the experiences, perspectives, and attitudes of patients with cancer to inform future palliative care program delivery improvement and development. Using an exploratory design, n = 8 participants were interviewed using a semi-structured guide. The sample had a mean age of 48 years with an average palliative care clinic enrollment period of 22.5 weeks at the time of interview. The interdisciplinary coding team used an applied thematic text analysis approach and identified 5 themes: history and disease progression, follow-up clinic services, psychological distress and its sources, social support, and spiritual and cultural beliefs. Implications emphasize the need for increased community engagement, primary palliative care capacity development of clinical colleagues in the region, and the support of local and national decision-makers to prioritize palliative care service expansion.","PeriodicalId":54807,"journal":{"name":"Journal of Hospice & Palliative Nursing","volume":null,"pages":null},"PeriodicalIF":1.8,"publicationDate":"2023-06-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10173098/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"10043789","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Complex Care Needs at the End of Life for Seriously Ill Adults With Multiple Chronic Conditions. 患有多种慢性疾病的重症成人临终前的复杂护理需求。

IF 1.8 4区医学

Journal of Hospice & Palliative Nursing Pub Date : 2023-06-01 Epub Date: 2023-04-11 DOI: 10.1097/NJH.0000000000000946

Komal Patel Murali, John D Merriman, Gary Yu, Allison Vorderstrasse, Amy S Kelley, Abraham A Brody

{"title":"Complex Care Needs at the End of Life for Seriously Ill Adults With Multiple Chronic Conditions.","authors":"Komal Patel Murali, John D Merriman, Gary Yu, Allison Vorderstrasse, Amy S Kelley, Abraham A Brody","doi":"10.1097/NJH.0000000000000946","DOIUrl":"10.1097/NJH.0000000000000946","url":null,"abstract":"Understanding the complex care needs of seriously ill adults with multiple chronic conditions with and without cancer is critical for the delivery of high-quality serious illness and palliative care at the end of life. The objective of this secondary data analysis of a multisite randomized clinical trial in palliative care was to elucidate the clinical profile and complex care needs of seriously ill adults with multiple chronic conditions and to highlight key differences among those with and without cancer at the end of life. Of the 213 (74.2%) older adults who met criteria for multiple chronic conditions (eg, 2 or more chronic conditions requiring regular care with limitations of daily living), 49% had a diagnosis of cancer. Hospice enrollment was operationalized as an indicator for severity of illness and allowed for the capture of complex care needs of those deemed to be nearing the end of life. Individuals with cancer had complex symptomatology with a higher prevalence of nausea, drowsiness, and poor appetite and end of life and lower hospice enrollment. Individuals with multiple chronic conditions without cancer had lower functional status, greater number of medications, and higher hospice enrollment. The care of seriously ill older adults with multiple chronic conditions requires tailored approaches to improve outcomes and quality of care across health care settings, particularly at the end of life.","PeriodicalId":54807,"journal":{"name":"Journal of Hospice & Palliative Nursing","volume":null,"pages":null},"PeriodicalIF":1.8,"publicationDate":"2023-06-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10175220/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"10100570","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Evaluating the FRAIL Questionnaire as a Trigger for Palliative Care Consultation After Acute Stroke. 评估虚弱问卷作为急性中风后姑息治疗咨询的触发因素。

IF 1.8 4区医学

Journal of Hospice & Palliative Nursing Pub Date : 2023-06-01 DOI: 10.1097/NJH.0000000000000940

Megan Keiser, Roxanne Buterakos, Haley Stutzky, Laura Moran, Dawn Hewelt

{"title":"Evaluating the FRAIL Questionnaire as a Trigger for Palliative Care Consultation After Acute Stroke.","authors":"Megan Keiser, Roxanne Buterakos, Haley Stutzky, Laura Moran, Dawn Hewelt","doi":"10.1097/NJH.0000000000000940","DOIUrl":"https://doi.org/10.1097/NJH.0000000000000940","url":null,"abstract":"The American Heart Association and the American Stroke Association jointly released guidelines stating that all patients with a new diagnosis of stroke should receive palliative care consultation starting in the acute phase of care. The purpose of this project was to increase palliative care consultation rates for patients after an acute stroke by using a frailty score to trigger a palliative care consult. Provider education on palliative care and a 5-question fatigue, resistance, ambulation, illnesses, and loss of weight (FRAIL) questionnaire was delivered by a presentation, handouts, and a follow-up email using previously developed content. Patients included adults admitted to the neuroscience critical care unit of a Midwestern comprehensive stroke center with an admission diagnosis of acute stroke (n = 120). The charge nurse completed the FRAIL questionnaire as a screening tool to trigger a palliative care consult. A survey was also distributed to providers (n = 54) to understand their knowledge, thoughts, and feelings toward palliative care. There was an increase in patients who received palliative care consultation from 14.9% to 21.7% after implementation of the FRAIL questionnaire. Also, providers felt better able to provide symptom management to patients after acute stroke. Further research is necessary to determine if the FRAIL survey is an adequate trigger for palliative care consultation.","PeriodicalId":54807,"journal":{"name":"Journal of Hospice & Palliative Nursing","volume":null,"pages":null},"PeriodicalIF":1.8,"publicationDate":"2023-06-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"10042971","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

The 2 a.m. Moment and the Art of Our Science. 凌晨2点。时刻和我们科学的艺术。

IF 1.8 4区医学

Journal of Hospice & Palliative Nursing Pub Date : 2023-06-01 DOI: 10.1097/NJH.0000000000000949

William Rosa, Betty Ferrell

引用次数: 0