了解处于亲人姑息治疗阶段的家庭成员:定性研究。

IF 1.2 4区 医学 Q3 NURSING
Tuğba Yardimci Gürel, Hatice Mert
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引用次数: 0

摘要

由于老龄化和慢性病发病率的上升,全球范围内对姑息关怀服务的需求日益增加,患者在整个姑息关怀过程中都需要家人的照顾。本研究旨在调查姑息关怀患者亲属在住院期间的经历。这是一项定性研究,共有 15 位家庭成员参与。研究人员使用主题指南进行了半结构化的面对面访谈。内容分析法用于分析文本数据。分析结果显示,出现了 3 个主题、6 个类别和 24 个子类别。主要的主题是 "对入院的反应"、"感觉有责任照顾 "和 "应对过程"。访谈显示,大多数参与者对姑息关怀存在误解,缺乏相关知识。几乎所有的家庭成员都表示,他们在这一过程中经历了各种情绪,难以应对。我们研究的重要发现是,文化和宗教信仰对护理工作有相当大的影响。文献中能详细了解病人亲属状态的研究数量有限。因此,这项研究对于指导姑息关怀专业人员了解这一弱势群体的需求至关重要。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
Understanding Family Members in the Palliative Phases of Their Loved Ones: A Qualitative Study.

Because of aging and rising rates of chronic diseases, the demand for palliative care services is increasing worldwide, and patients need family members to care for them throughout the palliative care process. This study aimed to investigate the experiences of the relatives of palliative care patients during hospitalization. This was a qualitative study conducted with 15 family members. A topic guide was used to conduct semistructured face-to-face interviews. Content analysis was used to analyze the textual data. As a result of the analysis, 3 main themes, 6 categories, and 24 subcategories emerged. The main themes were "reactions to the admission," "feeling obligated to care," and "coping processes." The interviews revealed that most participants had misconceptions and a lack of knowledge about palliative care. Almost all of the family members expressed that they experienced various emotions during this process and had trouble coping. The significant finding of our study is that culture and religious beliefs have a considerable influence on caregiving. A limited number of studies in the literature provide detailed insight into the state of patient relatives. Therefore, this study is critical in guiding palliative care professionals in understanding the requirements of this vulnerable group.

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来源期刊
CiteScore
2.60
自引率
11.10%
发文量
203
审稿时长
6-12 weeks
期刊介绍: Journal of Hospice & Palliative Nursing (JHPN) is the official journal of the Hospice & Palliative Nurses Association and is the professional, peer-reviewed journal for nurses in hospice and palliative care settings. Focusing on the clinical, educational and research aspects of care, JHPN offers current and reliable information on end of life nursing. Feature articles in areas such as symptom management, ethics, and futility of care address holistic care across the continuum. Book and article reviews, clinical updates and case studies create a journal that meets the didactic and practical needs of the nurse caring for patients with serious illnesses in advanced stages.
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