Journal of Hospice & Palliative Nursing最新文献_第8页

Hospice Family Caregivers' Uncertainty, Burden, and Unmet Needs in Prospective Audio Diaries. 临终关怀家庭护理人员在前瞻性音频日记中的不确定性、负担和未满足的需求。

IF 1.8 4区医学

Journal of Hospice & Palliative Nursing Pub Date : 2023-12-01 Epub Date: 2023-10-18 DOI: 10.1097/NJH.0000000000000975

Megan C Thomas Hebdon, Kristin G Cloyes, Marilisa Vega, Susan J Rosenkranz, Maija Reblin, Djin Tay, Kathi Mooney, Lee Ellington

{"title":"Hospice Family Caregivers' Uncertainty, Burden, and Unmet Needs in Prospective Audio Diaries.","authors":"Megan C Thomas Hebdon, Kristin G Cloyes, Marilisa Vega, Susan J Rosenkranz, Maija Reblin, Djin Tay, Kathi Mooney, Lee Ellington","doi":"10.1097/NJH.0000000000000975","DOIUrl":"10.1097/NJH.0000000000000975","url":null,"abstract":"Hospice cancer caregivers' (HCCs') burden and unmet needs are well documented in the literature through retrospective, standardized self-report surveys. Hospice cancer caregiver daily experiences of burden and unmet needs are rarely captured within a real-time context. The purpose of this secondary data analysis was to characterize HCCs' day-to-day burden and unmet needs with prospective HCC (N = 50) audio diary data between hospice enrollment and patient death. Uncertainty theory provided a framework for analysis. Diaries were transcribed, analyzed deductively and inductively, and organized thematically. Uncertainty in day-to-day experiences was an important driver of HCC burden and unmet needs. Unmet needs included unclear/unmet expectations regarding hospice care team support; not understanding the extent of HCC role and involvement; and communication challenges with hospice team members. Sources of HCCs' burden were dissonance between how they \"should\" feel and how they actually felt; feeling alone/having no outlet to express feelings; concerns about their own health and subsequent patient impact; and feeling helpless/occupying a liminal space. Uncertainty surrounding HCCs' experiences encompassed interactions with hospice care teams and the nature of end-of-life caregiving with symptom management, the dying process, and the HCC role. Hospice care teams can respond to uncertainty through assessment, understanding, and recognition of the daily context of HCCs.","PeriodicalId":54807,"journal":{"name":"Journal of Hospice & Palliative Nursing","volume":null,"pages":null},"PeriodicalIF":1.8,"publicationDate":"2023-12-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10843703/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"49685198","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Staff and Proxy Views of Multiple Family Member Involvement in Decision Making for Nursing Home Residents With Advanced Dementia. 养老院老年痴呆患者多家庭成员参与决策的工作人员和代理意见。

IF 1.8 4区医学

Journal of Hospice & Palliative Nursing Pub Date : 2023-10-01 Epub Date: 2023-05-26 DOI: 10.1097/NJH.0000000000000957

Ashley Roach, Anita Hendrix Rogers, Susan L Mitchell, Ellen P McCarthy, Ruth Palan Lopez

{"title":"Staff and Proxy Views of Multiple Family Member Involvement in Decision Making for Nursing Home Residents With Advanced Dementia.","authors":"Ashley Roach, Anita Hendrix Rogers, Susan L Mitchell, Ellen P McCarthy, Ruth Palan Lopez","doi":"10.1097/NJH.0000000000000957","DOIUrl":"10.1097/NJH.0000000000000957","url":null,"abstract":"Decision making for nursing home (NH) residents with Alzheimer disease and related dementias often involves input from multiple family members and NH staff to address goals of care at the end of life. Using data from the Assessment of Disparities and Variation for Alzheimer's disease Nursing home Care at End of life research study, a secondary analysis of qualitative data was conducted involving interviews of 144 NH staff and 44 proxies in 14 NHs to examine the perspectives of NH staff and proxies for NH residents with Alzheimer disease and related dementias on the involvement of multiple family members in decision making about end-of-life care decisions. Interviews took place between 2018 and 2021. Nursing home staff and proxies had differing perspectives of the involvement of multiple family members in decision making, with NH staff primarily viewing families as a source of conflict, whereas proxies viewed families as a source of support. Nursing home staff also had differing opinions of their role with families; some attempted to ameliorate conflict, and some did not get involved. Some NH staff felt that Black families had more conflict than White families, indicating unacceptable bias and stereotyping of Black families by NH staff. These findings suggest training and education is needed for NH staff to facilitate better communication with families and to support proxies in end-of-life decision making to address goals of care for NH residents with Alzheimer disease and related dementias.","PeriodicalId":54807,"journal":{"name":"Journal of Hospice & Palliative Nursing","volume":null,"pages":null},"PeriodicalIF":1.8,"publicationDate":"2023-10-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10524298/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"10290462","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

The Contribution of Cancer-Specific Psychosocial Factors to the Pain Experience in Cancer Survivors. 癌症特异性心理社会因素对癌症幸存者疼痛体验的贡献。

IF 1.8 4区医学

Journal of Hospice & Palliative Nursing Pub Date : 2023-10-01 Epub Date: 2023-07-04 DOI: 10.1097/NJH.0000000000000965

Katie Fitzgerald Jones, Lisa Wood Magee, Mei R Fu, Rachelle Bernacki, Hailey Bulls, Jessica Merlin, Melissa McTernan

{"title":"The Contribution of Cancer-Specific Psychosocial Factors to the Pain Experience in Cancer Survivors.","authors":"Katie Fitzgerald Jones, Lisa Wood Magee, Mei R Fu, Rachelle Bernacki, Hailey Bulls, Jessica Merlin, Melissa McTernan","doi":"10.1097/NJH.0000000000000965","DOIUrl":"10.1097/NJH.0000000000000965","url":null,"abstract":"Palliative care teams are increasingly called up to manage chronic pain in cancer survivors. Chronic pain is common in cancer survivors and is heavily influenced by biopsychosocial factors. This study aimed to determine the relative contribution of unique cancer-specific psychosocial factors, pain catastrophizing, and multisite pain to the pain experience in 41 cancer survivors who completed curative cancer treatment. To test the research hypotheses, a series of nested linear regression models were used with likelihood ratio testing to test the individual and collective contribution of cancer-specific psychosocial factors (fear of cancer recurrence, cancer distress, cancer-related trauma), pain catastrophizing, and the number of pain sites on the pain experience. The results indicate pain catastrophizing and multisite pain explained a significant degree of variance in pain interference scores ( P < .001) and pain severity ( P = .005). Cancer-specific psychosocial factors did not significantly predict variability in pain interference ( P = .313) or pain severity ( P = .668) over and above pain catastrophizing and the number of sites of pain. In summary, pain catastrophizing and multisite pain contribute to the chronic cancer-related pain experienced by cancer survivors. Palliative care nurses are well positioned to improve chronic pain among cancer survivors by assessing and treating pain catastrophizing and multisite pain.","PeriodicalId":54807,"journal":{"name":"Journal of Hospice & Palliative Nursing","volume":null,"pages":null},"PeriodicalIF":1.8,"publicationDate":"2023-10-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"10240317","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Understanding Dying Concerns in Parents With Advanced Cancer With Dependent Children for Their Coparent: A Phenomenological Study. 理解晚期癌症父母对其父母的死亡担忧：一项现象学研究。

IF 1.8 4区医学

Journal of Hospice & Palliative Nursing Pub Date : 2023-10-01 Epub Date: 2023-06-10 DOI: 10.1097/NJH.0000000000000956

Cinzia Caparso, Emma Noble, MaryAnne McCoy, April Vallerand, Ramona Benkert

{"title":"Understanding Dying Concerns in Parents With Advanced Cancer With Dependent Children for Their Coparent: A Phenomenological Study.","authors":"Cinzia Caparso, Emma Noble, MaryAnne McCoy, April Vallerand, Ramona Benkert","doi":"10.1097/NJH.0000000000000956","DOIUrl":"https://doi.org/10.1097/NJH.0000000000000956","url":null,"abstract":"Parents with advanced cancer and their dependent children experience high psychological distress, decreased quality of life, and decreased family functioning due to cancer-related concerns. Dying concerns are defined as fluctuating thoughts or feelings that are conscious or unconscious about an anticipated and approaching death that is attributed to a palliative/terminal diagnosis. This study used Gadamer's phenomenological approach to gain a shared understanding of the perspectives of the parents with advanced cancer about dying concerns, family life before and after advanced cancer diagnosis, and family resources to manage the crisis of advanced cancer for the coparent. The sample consisted of 4 patients from a Midwestern cancer hospital. Data were collected through 2 virtual semistructured interviews and were qualitatively analyzed using the hermeneutic rule and the theoretical concepts from McCubbin and McCubbin's Family Resiliency Model. Four major themes emerged: “Uncertainty in End-of-Life Decisions,” “Effectless Communication,” “Parental Skepticism,” and “Psychological Well-being.” The results showed that parents with advanced cancer have concerns for their coparent outside their parental role. Understanding dying concerns from all family members may increase nurse-initiated communication to improve family outcomes.","PeriodicalId":54807,"journal":{"name":"Journal of Hospice & Palliative Nursing","volume":null,"pages":null},"PeriodicalIF":1.8,"publicationDate":"2023-10-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10565875/pdf/nihms-1933782.pdf","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"41220445","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Knowledge and Practice Behaviors Toward the Care of the Dying Among Chinese Oncology Nurses: A Cross-Sectional Survey. 中国肿瘤科护士临终关怀知识与实践行为的横断面调查。

IF 1.8 4区医学

Journal of Hospice & Palliative Nursing Pub Date : 2023-10-01 Epub Date: 2023-08-01 DOI: 10.1097/NJH.0000000000000967

Xiaoting Hou, Xin Li, Renxiu Guo, Yun Wang, Shuangzhi He, Hong Yang, Dongli Bai, Yuhan Lu

{"title":"Knowledge and Practice Behaviors Toward the Care of the Dying Among Chinese Oncology Nurses: A Cross-Sectional Survey.","authors":"Xiaoting Hou, Xin Li, Renxiu Guo, Yun Wang, Shuangzhi He, Hong Yang, Dongli Bai, Yuhan Lu","doi":"10.1097/NJH.0000000000000967","DOIUrl":"10.1097/NJH.0000000000000967","url":null,"abstract":"The quality of care provided to patients with cancer at the end of their lives remains unsatisfactory, especially during their last days and hours of life. This study aimed to investigate knowledge and practice behaviors of oncology nurses in relation to the care of the dying and to analyze the influencing factors. A convenience sample of 222 oncology nurses was recruited from 14 hospitals in Beijing, China, in January 2022. These nurses completed an online survey that included a demographic and work characteristics questionnaire and knowledge and practice behavior questionnaires regarding the care needs of dying cancer patients. The self-perceived knowledge and practice behavior of oncology nurses toward the care of the dying were found to be moderate. However, their understanding of airway management, restlessness, and delirium management was insufficient. In addition, their ability to effectively communicate recommendations for discontinuing unnecessary procedures, medications, treatments, and monitoring was inadequate. Nurses' previous end-of-life care education and experience of caring for dying patients influenced their knowledge. Nurses' practice settings, experience of caring for dying patients, and their knowledge were key factors in shaping their behaviors. Providing targeted continuing education for nurses in hospital settings and exploring the nursing pathway may be important ways to bridge their knowledge gap and enhance their practice behaviors toward caring for dying patients.","PeriodicalId":54807,"journal":{"name":"Journal of Hospice & Palliative Nursing","volume":null,"pages":null},"PeriodicalIF":1.8,"publicationDate":"2023-10-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"10586071","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Cancer Hospice Caregivers' Self-care Behaviors: The Role of Caregiving Tasks, Burden, and Mental Health. 癌症临终关怀护理人员的自我关怀行为：护理任务、负担和心理健康的作用。

IF 1.8 4区医学

Journal of Hospice & Palliative Nursing Pub Date : 2023-10-01 Epub Date: 2023-06-22 DOI: 10.1097/NJH.0000000000000962

Djin L Tay, Maija Reblin, Eli Iacob, Kristin G Cloyes, Megan C Thomas Hebdon, Miranda Reynaga, Kathi Mooney, Lee Ellington

{"title":"Cancer Hospice Caregivers' Self-care Behaviors: The Role of Caregiving Tasks, Burden, and Mental Health.","authors":"Djin L Tay, Maija Reblin, Eli Iacob, Kristin G Cloyes, Megan C Thomas Hebdon, Miranda Reynaga, Kathi Mooney, Lee Ellington","doi":"10.1097/NJH.0000000000000962","DOIUrl":"10.1097/NJH.0000000000000962","url":null,"abstract":"Cancer hospice family caregivers provide intensive support for patients at the end of life, sometimes at the expense of self-care. This secondary analysis examined the role of caregiving burden, activities of daily living, and mental health on self-care behaviors among cancer hospice family caregivers. Logistic regression models were adjusted for sociodemographic and caregiver characteristics, and model fit was evaluated with Hosmer-Lemeshow tests. Participants (N = 86) were mostly women (n = 62, 72.09%), White (n = 76, 88.37%), and spousal caregivers (n = 44, 51.16%). Almost half reported not getting enough rest (47.67%), time to exercise (47.67%), or time to slow down and rest when feeling ill (46.51%). Caregivers with better mental health reported being more likely to have enough time to exercise (adjusted odds ratio [OR adj ], 1.15, [1.05, 1.26]; P = .004), rest (OR adj , 1.11, [1.01, 1.22]; P = .031), and slow down when ill (OR adj , 1.16, [1.04, 1.30]; P = .010). Controlling for sociodemographic and caregiver characteristics, men caregivers had 88% lower odds of being able to rest when ill (OR adj , 0.12, [0.03, 0.52]; P = .005) compared with women. Number of care tasks, not caregiving burden, was associated with self-care behaviors. Findings provide a preliminary understanding of factors related to caregiver self-care and have implications for increased assessment of caregiver mental health and self-care needs to better support family-oriented hospice care.","PeriodicalId":54807,"journal":{"name":"Journal of Hospice & Palliative Nursing","volume":null,"pages":null},"PeriodicalIF":1.8,"publicationDate":"2023-10-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10524198/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"10238315","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

2024 HPNA Fellow in Palliative Care Nursing Application Update. 2024年HPNA缓和护理应用更新研究员。

IF 1.8 4区医学

Journal of Hospice & Palliative Nursing Pub Date : 2023-08-01 DOI: 10.1097/NJH.0000000000000959

引用次数: 0

Impediments to Signing Advance Directives in Nursing Home Residents: A Qualitative Study. 疗养院住客签署预先指示的障碍:一项质性研究。

IF 1.8 4区医学

Journal of Hospice & Palliative Nursing Pub Date : 2023-08-01 DOI: 10.1097/NJH.0000000000000955

Hsin-Tzu Sophie Lee, Chia-Ling Yang, Wen-Yu Hu

引用次数: 0

Predictors of Advance Care Planning Engagement Among Muslim Americans. 穆斯林美国人提前护理计划参与的预测因素。

IF 1.8 4区医学

Journal of Hospice & Palliative Nursing Pub Date : 2023-08-01 DOI: 10.1097/NJH.0000000000000842

Ghaith Ahmad Bani Melhem, Debra C Wallace, Judith A Adams, Ratchneewan Ross, S Sudha

{"title":"Predictors of Advance Care Planning Engagement Among Muslim Americans.","authors":"Ghaith Ahmad Bani Melhem, Debra C Wallace, Judith A Adams, Ratchneewan Ross, S Sudha","doi":"10.1097/NJH.0000000000000842","DOIUrl":"https://doi.org/10.1097/NJH.0000000000000842","url":null,"abstract":"Advance care planning (ACP) enables people to discuss their physical, psychological, social, and spiritual needs before nearing death. Most literature examining the determinants of ACP engagement is limited and does not include minority faith communities in the United States, including Muslim communities. The purpose of this cross-sectional correlational study was to examine ACP engagement determinants among Muslims in the United States. Using the Social Ecological Model, we conceptualized the determinants of ACP engagement into intrapersonal, interpersonal, and community factors. The study self-administered questionnaires were distributed using convenience and snowball techniques. Multiple linear regression was used to predict ACP engagement. The total sample was 148 Muslim adults. The age range was 18 to 79 years. Among all tested factors, being Asian American, knowing a deceased person who had received aggressive or minimal medical treatments near death, being born in the United States, having knowledge and awareness about ACP, and being accepting of the American culture were the determinants of ACP engagement. Engagement in ACP is a multifactorial behavior. Several intrapersonal and interpersonal factors, but none of the community factors, were associated with ACP engagement among Muslim adults. Future ACP interventions targeted toward Muslim Americans should be planned with an understanding of the multifactorial nature of ACP engagement.","PeriodicalId":54807,"journal":{"name":"Journal of Hospice & Palliative Nursing","volume":null,"pages":null},"PeriodicalIF":1.8,"publicationDate":"2023-08-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"10398304","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Development and Effectiveness of an End-of-Life Care Program for Faculty in the Critical Care Field: A Randomized Controlled Trial. 为重症监护领域的教师开发临终关怀课程及其效果：随机对照试验

IF 1.8 4区医学

Journal of Hospice & Palliative Nursing Pub Date : 2023-08-01 Epub Date: 2023-05-19 DOI: 10.1097/NJH.0000000000000951

Yoko Tamura, Chika Nishiyama, Sayaka Takenouchi, Ryuhei Sato, Kosuke Kiyohara, Kazuko Nin

引用次数: 0