Journal of Hospice & Palliative Nursing最新文献_第7页

Faculty and Student Preparedness for Primary Palliative Care: A Comparative Study. 教师和学生对初级姑息治疗的准备：比较研究。

IF 1.3 4区医学

Journal of Hospice & Palliative Nursing Pub Date : 2026-06-01 Epub Date: 2025-12-09 DOI: 10.1097/NJH.0000000000001185

Sarah Mollman, Theresa Garren-Grubbs, Brandi Pravecek, Shelby Boettner, Charlene Berke

{"title":"Faculty and Student Preparedness for Primary Palliative Care: A Comparative Study.","authors":"Sarah Mollman, Theresa Garren-Grubbs, Brandi Pravecek, Shelby Boettner, Charlene Berke","doi":"10.1097/NJH.0000000000001185","DOIUrl":"10.1097/NJH.0000000000001185","url":null,"abstract":"While it is recommended that nurses be prepared to deliver primary palliative care, these services remain inaccessible for many. Nurses, as frontline providers, should have the knowledge and skills to provide this care. The aim of this study was to determine faculty experiences in palliative and end-of-life care and how those experiences affected their perceptions of student preparedness to deliver primary palliative care and their preparedness to teach primary palliative care. A descriptive, comparative study in the Midwestern United States was conducted with faculty from 4 universities integrating palliative care education into their nursing programs. Faculty with teaching experience in palliative care significantly rated student preparedness to deliver primary palliative care higher than faculty without this teaching experience, P < .01. Having education or training in palliative care had a significant effect on faculty's self-reported preparedness to teach primary palliative care after controlling for years of teaching experience, F (1, 30) = 6.935, P = .013. These findings can be used as nursing schools intentionally implement palliative care in accordance with the American Association of Colleges of Nursing Essentials.","PeriodicalId":54807,"journal":{"name":"Journal of Hospice & Palliative Nursing","volume":" ","pages":"117-123"},"PeriodicalIF":1.3,"publicationDate":"2026-06-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"145710112","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Symptom Series: Anorexia and Cachexia. 症状系列：厌食和恶病质。

IF 1.3 4区医学

Journal of Hospice & Palliative Nursing Pub Date : 2026-06-01 Epub Date: 2025-03-16 DOI: 10.1097/NJH.0000000000001208

Elizabeth Schack, Elizabeth Capano

引用次数: 0

Exploring Spiritual Awareness Among Nurses in Advanced Palliative Education: Insights From a Qualitative Study. 探讨高级姑息教育中护士的精神意识：来自定性研究的见解。

IF 1.3 4区医学

Journal of Hospice & Palliative Nursing Pub Date : 2026-06-01 Epub Date: 2025-12-12 DOI: 10.1097/NJH.0000000000001177

Federica Dellafiore, Maria Chiara Gandini, Laura Bertarini, Vera Canepa, Francesca Tura, Giovanna Artioli

{"title":"Exploring Spiritual Awareness Among Nurses in Advanced Palliative Education: Insights From a Qualitative Study.","authors":"Federica Dellafiore, Maria Chiara Gandini, Laura Bertarini, Vera Canepa, Francesca Tura, Giovanna Artioli","doi":"10.1097/NJH.0000000000001177","DOIUrl":"10.1097/NJH.0000000000001177","url":null,"abstract":"Spirituality is increasingly recognized as a core element of holistic nursing care, yet its personal meaning and application in clinical practice remain underexplored-especially among nurses pursuing advanced postgraduate training. This qualitative study aimed to investigate how nurses enrolled in a Postgraduate First-Level Master's Degree in palliative care and pain therapy perceive and interpret spirituality in relation to their professional roles. Semistructured interviews were conducted with 20 nurses working in diverse hospital and community care settings. Data were analyzed using reflexive thematic analysis, following Braun and Clarke's methodology. Five key themes emerged: (1) conceptualizations of spirituality, highlighting self-awareness, existential reflection, and openness to patients' needs; (2) the relationship between spirituality and religion, revealing both overlapping and distinct perspectives; (3) pathways to connect with personal spirituality, including self-exploration and life experiences; (4) the role of education and clinical practice in fostering spiritual development; and (5) the perceived role of spirituality in alleviating suffering and supporting patients at the end of life. Findings emphasize the importance of structured educational programs and reflective practice to foster spiritual competence in palliative nursing. These insights can inform educators and health care leaders to better integrate spirituality into advanced nursing education and clinical care.","PeriodicalId":54807,"journal":{"name":"Journal of Hospice & Palliative Nursing","volume":" ","pages":"E100-E108"},"PeriodicalIF":1.3,"publicationDate":"2026-06-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"145764615","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Factors Influencing Burnout Among Hospice and Palliative Care Ward Nurses. 影响安宁疗护及缓和疗护病房护士职业倦怠的因素。

IF 1.3 4区医学

Journal of Hospice & Palliative Nursing Pub Date : 2026-06-01 Epub Date: 2025-11-18 DOI: 10.1097/NJH.0000000000001182

Young-Mi Kim, Chieun Song, Jeoungmin Park

{"title":"Factors Influencing Burnout Among Hospice and Palliative Care Ward Nurses.","authors":"Young-Mi Kim, Chieun Song, Jeoungmin Park","doi":"10.1097/NJH.0000000000001182","DOIUrl":"10.1097/NJH.0000000000001182","url":null,"abstract":"Nurses are important in delivering comfortable care and serve as central figures in patient-centered care in hospice and palliative care units. Nurse burnout negatively affects organizational outcomes by threatening patient safety and reducing the quality of nursing care. This study aimed to identify the factors influencing burnout among nurses in hospice and palliative care units. This descriptive correlational study investigated the effects of nursing practice environment, resilience, and nurses' character on burnout among hospice and palliative care ward nurses. The participants were 217 nurses working in hospice wards of 20 institutions selected from the 88 inpatient hospice and palliative care institutions designated by the Ministry of Health and Welfare in South Korea, as of 2021. The results showed that a better nursing practice environment and higher resilience were positively associated with lower burnout. Among hospice and palliative care nurses, being in their 30s and having fewer than 5 years of total clinical experience were associated with higher burnout. The explanatory power of the model is 43.6%. These findings suggest that multidimensional interventions are required to prevent burnout among nurses in hospice and palliative care settings.","PeriodicalId":54807,"journal":{"name":"Journal of Hospice & Palliative Nursing","volume":" ","pages":"E123-E129"},"PeriodicalIF":1.3,"publicationDate":"2026-06-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"145544163","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Sickle Cell Warriors Discuss Palliative Care: Not Our Word, We Need It. 镰状细胞勇士讨论姑息治疗：不是我们的词，我们需要它。

IF 1.3 4区医学

Journal of Hospice & Palliative Nursing Pub Date : 2026-06-01 Epub Date: 2025-10-28 DOI: 10.1097/NJH.0000000000001178

Kemmarie C Beal, Coretta Jenerette, Rachael O Ajiboye, Diana J Wilkie

{"title":"Sickle Cell Warriors Discuss Palliative Care: Not Our Word, We Need It.","authors":"Kemmarie C Beal, Coretta Jenerette, Rachael O Ajiboye, Diana J Wilkie","doi":"10.1097/NJH.0000000000001178","DOIUrl":"10.1097/NJH.0000000000001178","url":null,"abstract":"Palliative care is underutilized in sickle cell disease despite it being a serious, inherited condition plagued by severe pain, other symptoms, and frequent death in young adulthood. We sought feedback from individuals with sickle cell disease (Sickle Cell Warriors) to inform the design of a palliative care intervention. In a qualitative descriptive approach, 12 adults participated in a 90-minute virtual focus group. The session was audio-recorded, transcribed verbatim, and thematically analyzed using a structured coding process. Participants provided insights on the preferred format, delivery, and content of an intervention aimed at improving symptom management and quality of life. Three themes were identified: (1) intervention design, delivery, and check-ins, reflecting preferences for hybrid delivery, consistency, and engagement; (2) successful aging with sickle cell disease, highlighting the importance of self-care, emotional well-being, and social connection; and (3) \"palliative care\" is foreign, illustrating the stigma and misunderstanding surrounding the term \"palliative care.\" Participants expressed a strong need for mental health support, education, and flexible programming tailored to their lived experiences. Future palliative care interventions need to be culturally aligned with terminology and delivery strategies. This study offers guidance for developing patient-centered, nurse-led interventions to improve symptom management and supportive care among adults with sickle cell disease.","PeriodicalId":54807,"journal":{"name":"Journal of Hospice & Palliative Nursing","volume":" ","pages":"E115-E122"},"PeriodicalIF":1.3,"publicationDate":"2026-06-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"145440059","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

When a Hospice Patient Refuses Disaster Preparedness: Ethical Challenges in Emergency Planning. 当安宁疗护病人拒绝备灾：应急计划中的伦理挑战。

IF 1.3 4区医学

Journal of Hospice & Palliative Nursing Pub Date : 2026-06-01 Epub Date: 2026-03-13 DOI: 10.1097/NJH.0000000000001214

Jason Lesandrini, Natalie McNeal

引用次数: 0

HPNA Position Statement: Medication Safety. HPNA立场声明：用药安全。

IF 1.3 4区医学

Journal of Hospice & Palliative Nursing Pub Date : 2026-06-01 Epub Date: 2026-03-27 DOI: 10.1097/NJH.0000000000001216

引用次数: 0

Integrating Palliative Care in the Care of Children With Heart Failure: Findings and Recommendations From a 5-Year Experience in a Tertiary Care Center. 将姑息治疗纳入心力衰竭儿童的护理：三级护理中心5年经验的发现和建议。

IF 1.3 4区医学

Journal of Hospice & Palliative Nursing Pub Date : 2026-06-01 Epub Date: 2026-04-24 DOI: 10.1097/NJH.0000000000001188

Kim Sadler, Wejdan Alghamdi, Dimpna Calila Albert-Brotons, Mohammed El Haddad, Mansour Mohammed Alyami, Saadiya Khan, Khaled Alghamdi, Hamad Hussain Alyami, Yaser Ali Alali, Emad Ahmed Hakami

{"title":"Integrating Palliative Care in the Care of Children With Heart Failure: Findings and Recommendations From a 5-Year Experience in a Tertiary Care Center.","authors":"Kim Sadler, Wejdan Alghamdi, Dimpna Calila Albert-Brotons, Mohammed El Haddad, Mansour Mohammed Alyami, Saadiya Khan, Khaled Alghamdi, Hamad Hussain Alyami, Yaser Ali Alali, Emad Ahmed Hakami","doi":"10.1097/NJH.0000000000001188","DOIUrl":"10.1097/NJH.0000000000001188","url":null,"abstract":"Heart failure is becoming an increasingly cause of hospital admissions in the pediatric population, linked to significant morbidity and mortality. Despite advances, end-stage heart disease still causes significant symptoms, extended hospitalizations, and reduced quality of life. Pediatric palliative care (PPC), aimed at improving quality of life through symptom management, emotional support, and advanced care planning, can benefit these children. This project aimed to establish specialized PPC services for children with heart failure, regardless of their care goals, at a tertiary care and transplant center in Saudi Arabia. This project is presented with a retrospective review spanning from July 1, 2019, to June 30, 2024. The steps toward integration included (1) assessing gaps, (2) developing services, (3) setting up a referral system, (4) raising awareness, (5) implementing the program, and (6) measuring outcomes. Of the 47 children included, the average age was 10 years (SD = 4), half had a transplant, and 20 (42.6%) died during the period. The main issues were family distress (100%), children's mood issues and anxiety (59.6%), and pain (40.4%). Implementing PPC improves quality of life and ensures medical care aligns with family values. Children's emotional distress, parental anxiety over the disease's unpredictable course, and aggressive end-of-life care are key issues to address.","PeriodicalId":54807,"journal":{"name":"Journal of Hospice & Palliative Nursing","volume":"28 3","pages":"124-131"},"PeriodicalIF":1.3,"publicationDate":"2026-06-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"147846376","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

The Role of Nurses at the Intersection of Palliative Care and Death Tourism: Global Ethical Dilemmas and Professional Preparedness. 护士在姑息治疗和死亡旅游交叉点的作用：全球伦理困境和专业准备。

IF 1.3 4区医学

Journal of Hospice & Palliative Nursing Pub Date : 2026-06-01 Epub Date: 2025-10-28 DOI: 10.1097/NJH.0000000000001176

Gönül Düzgün

{"title":"The Role of Nurses at the Intersection of Palliative Care and Death Tourism: Global Ethical Dilemmas and Professional Preparedness.","authors":"Gönül Düzgün","doi":"10.1097/NJH.0000000000001176","DOIUrl":"10.1097/NJH.0000000000001176","url":null,"abstract":"Throughout history, end-of-life has posed profound ethical and emotional challenges. Today, the growing desire for control has led to two interconnected phenomena: death tourism and palliative care. Hopelessness and loss of control drive some patients to seek euthanasia or physician-assisted suicide abroad, especially where these practices are illegal in their home countries. For them, this difficult decision represents reclaiming agency in the face of unbearable suffering. In contrast, palliative care provides an alternative focused on improving quality of life for patients with life-threatening illnesses and their families. Its holistic approach-addressing physical, psychological, social, and spiritual needs-ensures dignity, comfort, and support. Expanding access to comprehensive palliative services can significantly reduce feelings of despair and diminish the demand for death tourism. By fostering a sense of being valued and supported, palliative care helps individuals face their final stages with meaning rather than fear. This underscores the critical role of nurses, whose professional preparedness is essential in addressing global ethical dilemmas and disseminating palliative practices effectively. Ultimately, the solution to protecting human dignity lies not in hastening death, but in alleviating suffering so that life, even in its final chapter, remains meaningful..","PeriodicalId":54807,"journal":{"name":"Journal of Hospice & Palliative Nursing","volume":" ","pages":"E109-E114"},"PeriodicalIF":1.3,"publicationDate":"2026-06-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"145440118","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Beyond the Sound: Evidence-Based Nursing Care for Patients With Terminal Secretions. 声音之外：晚期分泌物患者的循证护理。

IF 1.3 4区医学

Journal of Hospice & Palliative Nursing Pub Date : 2026-06-01 Epub Date: 2025-12-16 DOI: 10.1097/NJH.0000000000001203

Jo Ann Wilson

{"title":"Beyond the Sound: Evidence-Based Nursing Care for Patients With Terminal Secretions.","authors":"Jo Ann Wilson","doi":"10.1097/NJH.0000000000001203","DOIUrl":"10.1097/NJH.0000000000001203","url":null,"abstract":"Terminal secretions, commonly referred to as the \"death rattle,\" are oropharyngeal secretions that accumulate in patients nearing the end of life who cannot clear them. Although physiologically benign, these secretions can cause emotional distress to families, nurses, and care providers. They are presumed to impact the quality of death, relating to comfort and dignity. This document reviews interventions for managing terminal secretions, emphasizing evidence-based practices. It explores pharmacologic methods, like anticholinergic medications-though little evidence supports their benefit-suggesting their use be considered individually. Nonpharmacologic interventions are recommended as first-line treatments; these include repositioning, mouth care, hydration management, communication, and family education. These strategies align well with comfort care goals. Nurse-led communication can reduce family anxiety and improve understanding of the dying process. A standard nurse-led, evidence-based approach focuses on comfort, dignity, and presence at the end of life. Barriers to implementing nonpharmacologic measures and the emotional impact on families and clinicians are addressed. Reviewed resources include clinical trials, systematic reviews, palliative care guidelines, and nursing resource guides, advocating a collaborative, interdisciplinary approach to first-line, nonpharmacologic care for terminal secretions.","PeriodicalId":54807,"journal":{"name":"Journal of Hospice & Palliative Nursing","volume":" ","pages":"e139-e145"},"PeriodicalIF":1.3,"publicationDate":"2026-06-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"145764572","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0