终末期肾病患者的姑息治疗:未满足需求和经历问题的检查。

IF 1.2 4区 医学 Q3 NURSING
Muhammad W Darawad, Lynn F Reinke, Amani Khalil, Ghaith Bani Melhem, Malek Alnajar
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引用次数: 0

摘要

终末期肾病患者面临许多身体、情感和经济负担,需要姑息治疗(PC)干预。本横断面研究评估了来自6家医院的129例肾透析患者的问题和未满足的需求。调查结果显示,64.7%的参与者经历了重大挑战,主要是经济困难(78.5%),自治问题(68.8%)和信息需求(68.0%)。超过一半(51.9%)的人表示需要PC,特别是在治疗疲劳(78.3%)、疼痛(79.8%)和抑郁(72.9%)时。未满足的需求很常见(47.6%),其中最显著的缺口是财政支持(52.5%)和信息提供(50%)。相关分析显示,报告的问题、护理需求和未满足需求之间存在强正相关(r < 0.90, P < 0.001)。透析途径类型差异有统计学意义(F = 5.71, P = 0.001),动静脉瘘患者报告的问题和未满足的需求较高。增加的透析频率与更多的问题和未满足的需求相关(F = 7.24, P < 0.001)。此外,有合并症的患者出现的问题、护理需求和未满足需求明显更高(均p < 0.001)。这些发现强调了为终末期肾病患者量身定制PC干预措施的迫切需要,特别是在解决症状管理、社会心理和精神支持、经济支持和信息缺失方面,以提高他们的生活质量。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
Palliative Care for Patients With End-Stage Renal Disease: An Examination of Unmet Needs and Experiencing Problems.

Patients with end-stage renal disease face numerous physical, emotional, and financial burdens, necessitating palliative care (PC) interventions. This cross-sectional study assessed the problems and unmet needs of 129 patients under renal dialysis from 6 hospitals. Findings revealed that 64.7% of participants experienced significant challenges, primarily financial difficulties (78.5%), autonomy concerns (68.8%), and a need for information (68.0%). More than half (51.9%) reported needing PC, particularly for managing fatigue (78.3%), pain (79.8%), and depression (72.9%). Unmet needs were common (47.6%), with the most notable gaps in financial support (52.5%) and information provision (50%). Correlation analysis demonstrated strong positive associations between reported problems, care needs, and unmet needs ( r > 0.90, P < .001). Significant differences were observed by dialysis access type ( F = 5.71, P = .001), with arteriovenous fistula patients reporting higher problems and unmet needs. Increased dialysis frequency was linked to more problems and unmet needs ( F = 7.24, P < .001). In addition, patients with comorbidities experienced significantly higher problems, care needs, and unmet needs (all P s < .001). These findings underscored the urgent need for tailored PC interventions for end-stage renal disease patients, particularly in addressing symptom management, psychosocial and spiritual support, financial support, and information deficits, to enhance their quality of life.

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来源期刊
CiteScore
2.60
自引率
11.10%
发文量
203
审稿时长
6-12 weeks
期刊介绍: Journal of Hospice & Palliative Nursing (JHPN) is the official journal of the Hospice & Palliative Nurses Association and is the professional, peer-reviewed journal for nurses in hospice and palliative care settings. Focusing on the clinical, educational and research aspects of care, JHPN offers current and reliable information on end of life nursing. Feature articles in areas such as symptom management, ethics, and futility of care address holistic care across the continuum. Book and article reviews, clinical updates and case studies create a journal that meets the didactic and practical needs of the nurse caring for patients with serious illnesses in advanced stages.
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