Disability and Rehabilitation最新文献

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Examining recovery trajectories of physical function, activity performance, cognitive and psychological functions, and health related quality of life in COVID-19 patients treated in ICU: a Swedish prospective cohort study.
IF 2.1 4区 医学
Disability and Rehabilitation Pub Date : 2025-02-08 DOI: 10.1080/09638288.2025.2460722
Susanne Palmcrantz, Gabriela Markovic, Kristian Borg, Catharina Nygren Deboussard, Alison K Godbolt, Monika Löfgren, Eva Melin, Marika C Möller
{"title":"Examining recovery trajectories of physical function, activity performance, cognitive and psychological functions, and health related quality of life in COVID-19 patients treated in ICU: a Swedish prospective cohort study.","authors":"Susanne Palmcrantz, Gabriela Markovic, Kristian Borg, Catharina Nygren Deboussard, Alison K Godbolt, Monika Löfgren, Eva Melin, Marika C Möller","doi":"10.1080/09638288.2025.2460722","DOIUrl":"https://doi.org/10.1080/09638288.2025.2460722","url":null,"abstract":"<p><strong>Purpose: </strong>To investigate the recovery trajectories of physical function, activity performance, cognitive and psychological functions, and health related quality of life, as well as potential interaction effects, in individuals with COVID-19 treated in an intensive care unit (ICU).</p><p><strong>Methods: </strong>This prospective cohort study included patients with confirmed COVID-19 infection, treated in an ICU. Clinical assessments and self-ratings of functioning, disability and health were performed > 1 month and > 12 months after discharge from hospital.</p><p><strong>Results: </strong>Among the 65 included individuals (mean age 56.6, SD 11) significant improvements in physical and psychological function were observed over time, although not reaching population norms. Cognition remained unchanged (MoCA median 27, IQR 4). At the 12-month follow-up, physical limitations in activity (RAND-36) were found to be associated with dyspnea (mMRC-Dyspnea), mental and physical fatigue (MFI-20), and walking endurance (6-minute walk test) (r<sup>2</sup> 0.509 <i>p</i> < 0.001). Role limitations due to physical health (RAND-36) was found to be associated with physical and mental fatigue (MFI-20) and pain (r<sup>2</sup> 0.530 <i>p</i> < 0.001).</p><p><strong>Conclusion: </strong>Despite improvements in functioning and health in this group of predominantly younger age recovery did not reach population norms. These results highlight persistent impairments and activity limitations that may necessitate long-term healthcare interventions.</p>","PeriodicalId":50575,"journal":{"name":"Disability and Rehabilitation","volume":" ","pages":"1-10"},"PeriodicalIF":2.1,"publicationDate":"2025-02-08","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143374211","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Management of suicidality in stroke patients with and without aphasia-a national survey among healthcare professionals in Sweden.
IF 2.1 4区 医学
Disability and Rehabilitation Pub Date : 2025-02-07 DOI: 10.1080/09638288.2025.2458182
Camilla Olsson, Ellika Schalling
{"title":"Management of suicidality in stroke patients with and without aphasia-a national survey among healthcare professionals in Sweden.","authors":"Camilla Olsson, Ellika Schalling","doi":"10.1080/09638288.2025.2458182","DOIUrl":"https://doi.org/10.1080/09638288.2025.2458182","url":null,"abstract":"<p><strong>Purpose: </strong>Investigating how stroke healthcare professionals manage suicidality in stroke patients with and without aphasia.</p><p><strong>Materials and methods: </strong>A cross-sectional survey of 981 professionals in Sweden was conducted.</p><p><strong>Results: </strong>Nearly 60% of respondents had encountered suicidality in stroke patients without aphasia, while 40% had encountered it in patients with aphasia. SLPs were more likely to meet patients with aphasia and suicidality. Routine screening was rare, while 40% reported that suicidality was assessed when needed. Psychologists, physicians, and social workers were seen as responsible for assessments, with 13% of respondents feeling it was their responsibility to assess suicidality. Less than half of those felt competent to assess patients with aphasia. Aphasia was viewed as a barrier to assessment. Uncertainty was widespread regarding intervention, particularly in patients with aphasia, and there were concerns about the competence to handle such cases when referred to psychiatry. Free-text responses highlighted a perceived lack of competence, tools, and routine procedures for handling suicidality in aphasia, alongside calls for more mental health professionals and better interprofessional collaboration regarding suicidality in stroke rehabilitation.</p><p><strong>Conclusions: </strong>Management of suicidality in stroke patients, particularly with aphasia, is surrounded by uncertainty. Greater competence in suicidality, aphasia-friendly communication, and improved interdisciplinary efforts are needed.</p>","PeriodicalId":50575,"journal":{"name":"Disability and Rehabilitation","volume":" ","pages":"1-14"},"PeriodicalIF":2.1,"publicationDate":"2025-02-07","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143374407","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Participation and quality of life among Australian children with developmental coordination disorder.
IF 2.1 4区 医学
Disability and Rehabilitation Pub Date : 2025-02-07 DOI: 10.1080/09638288.2024.2447370
Matthew C McQueen, Jill G Zwicker, Scott Ruddock, Jacqueline Williams
{"title":"Participation and quality of life among Australian children with developmental coordination disorder.","authors":"Matthew C McQueen, Jill G Zwicker, Scott Ruddock, Jacqueline Williams","doi":"10.1080/09638288.2024.2447370","DOIUrl":"https://doi.org/10.1080/09638288.2024.2447370","url":null,"abstract":"<p><strong>Purpose: </strong>Children with Developmental Coordination Disorder (DCD) experience difficulty in the acquisition and performance of movement skills, threatening participation and quality of life. Environmental influences on participation and quality of life were investigated in children with DCD and their neurotypical peers.</p><p><strong>Materials and methods: </strong>Quality of life and participation data were collected from 30 parents of children with DCD and 19 parents of neurotypical children via the <i>Pediatric Quality of Life Inventory</i> and the <i>Participation and Environment Measure for Children and Youth</i>. The association between participation, environmental factors, and quality of life were investigated alongside group differences in home, school, and community settings.</p><p><strong>Results: </strong>Children with DCD were less involved than their neurotypical peers in school and community activities. Across all settings, parents of children with DCD reported more barriers to participation, less helpful environments, a greater desire for change in participation, and lower overall environmental support. Children with DCD experienced poorer quality of life, which was predicted by overall community and school support.</p><p><strong>Conclusions: </strong>Results have several implications for therapy. Individual (e.g., cognitive and physical demands) and environmental factors (e.g., additional school and community resources) should be considered in intervention development to promote participation frequency and involvement.</p>","PeriodicalId":50575,"journal":{"name":"Disability and Rehabilitation","volume":" ","pages":"1-11"},"PeriodicalIF":2.1,"publicationDate":"2025-02-07","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143366474","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Breaking the frailty cycle with rehabilitation programs. A systematic review and meta-analysis of randomized controlled trials.
IF 2.1 4区 医学
Disability and Rehabilitation Pub Date : 2025-02-07 DOI: 10.1080/09638288.2025.2460728
Bruna da Silveira, Amanda Farias E Farias, Victória Brum, Marlus Karsten, Darlan Laurício Matte
{"title":"Breaking the frailty cycle with rehabilitation programs. A systematic review and meta-analysis of randomized controlled trials.","authors":"Bruna da Silveira, Amanda Farias E Farias, Victória Brum, Marlus Karsten, Darlan Laurício Matte","doi":"10.1080/09638288.2025.2460728","DOIUrl":"https://doi.org/10.1080/09638288.2025.2460728","url":null,"abstract":"<p><strong>Purpose: </strong>To investigate how different sets of rehabilitation programs can contribute to breaking the frailty cycle.</p><p><strong>Methods: </strong>Systematic review with meta-analysis of randomized controlled trials that investigated the effects of rehabilitation programs for adults with FS. Search for references on Embase, PEDro, SciELO, Web Of Science, Pubmed, EBSCO and Scopus, published until September 2024. Methodological quality was assessed with the PEDro scale, risk of bias with ROB 2.0, and certainty of evidence with the GRADE approach.</p><p><strong>Results: </strong>Thirty-four studies (34) were included, with high methodological quality and a low risk of bias. There is significant evidence that rehabilitation programs were able to improve performance in activities of daily living (SMD = 0.83; 95%CI: 0.26, 1.40; <i>p</i> = 0.004; low certainty), lower extremity function and mobility (SMD = 0.63; 95%CI: 0.40, 0.86; <i>p</i> < 0.001; moderate certainty) and gait speed (SMD = 1.07; 95%CI: 0.17, 1.97; <i>p</i> = 0.002; low certainty), reducing frailty score (SMD = -1.57; 95%CI: -2.97, -0.17; <i>p</i> ≤ 0.001; very low certainty) and prevalence of frailty (RR = 0.76; 95%CI: 0.65, 0.89; <i>p</i> = 0.006; very low certainty), with minimal to no reports of adverse effects.</p><p><strong>Conclusions: </strong>Rehabilitation programs consisting of multicomponent moderate-intensity physical exercise associated with nutritional monitoring, cognitive training, educational strategies, and medical and social support are effective to break the frailty cycle.Implications for rehabilitationRehabilitation programs for older people can prevent and reverse pre-frailty.Performance, mobility, gait speed and strength improve with rehabilitation programs.Rehabilitation professionals should considerer these key components when designing rehabilitation programs for the frail and pre-frail older people: multicomponent exercises, nutrition, and cognitive training.Rehabilitation professionals should be aware that adherence is the main barrier in older peoples frailty rehabilitation programs.</p>","PeriodicalId":50575,"journal":{"name":"Disability and Rehabilitation","volume":" ","pages":"1-22"},"PeriodicalIF":2.1,"publicationDate":"2025-02-07","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143366350","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Feasibility of the TRANSITION program as an add-on to regular daily living support for young adults: an open mixed-methods study.
IF 2.1 4区 医学
Disability and Rehabilitation Pub Date : 2025-02-07 DOI: 10.1080/09638288.2025.2459889
Maria Löthberg, Jenny Meyer, Andrea Niman, Steve Berggren, Tatja Hirvikoski, Sven Bölte, Ulf Jonsson
{"title":"Feasibility of the TRANSITION program as an add-on to regular daily living support for young adults: an open mixed-methods study.","authors":"Maria Löthberg, Jenny Meyer, Andrea Niman, Steve Berggren, Tatja Hirvikoski, Sven Bölte, Ulf Jonsson","doi":"10.1080/09638288.2025.2459889","DOIUrl":"https://doi.org/10.1080/09638288.2025.2459889","url":null,"abstract":"<p><strong>Purpose: </strong>TRANSITION is a structured behavioral and educational program to support young adults with mental, behavioral, and neurodevelopmental conditions transitioning into adulthood. This study investigated its feasibility as an add-on to regular daily living support in social services.</p><p><strong>Materials and methods: </strong>A non-randomized single-arm mixed method design was used. Twenty-eight service users, aged 19-29, were enrolled to participate in the program for 20 weeks alongside their support workers. They rated their engagement and satisfaction and reported any adverse effects. Eighteen support workers received training in the program. A subsample of service users (<i>n</i> = 11) and support workers (<i>n</i> = 9) was interviewed about their experiences. Qualitative content analysis using an abductive approach and quantitative analyses with descriptive statistics was integrated and mapped to specific feasibility areas in a joint display.</p><p><strong>Results: </strong>Service users completing the study (<i>n</i> = 26) generally rated satisfaction and engagement highly. While some service users experienced stress related to their participation, no serious adverse events were reported. Service users and support workers highlighted the program's clear structure and focus on specific goals as particularly valuable.</p><p><strong>Conclusions: </strong>The results indicate that TRANSITION is a feasible complement to regular support in social service settings. Further evaluation of the program is justified.Implications for rehabilitationThe TRANSITION program is a feasible add-on to regular support in daily living for young adults with mental, behavioral, and neurodevelopmental conditions.Support workers can deliver the program, although training, practice, and regular supervision are needed.Service users perceive that the program adds clarity and valued direction to their support.The program may help service users and support workers become more aware of the inherent benefits of user engagement in daily living support.</p>","PeriodicalId":50575,"journal":{"name":"Disability and Rehabilitation","volume":" ","pages":"1-14"},"PeriodicalIF":2.1,"publicationDate":"2025-02-07","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143374405","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Learning health systems and learning organisations in post-acute rehabilitation care: a scoping review.
IF 2.1 4区 医学
Disability and Rehabilitation Pub Date : 2025-02-07 DOI: 10.1080/09638288.2025.2458746
Lauren Christophers, Zsofia Torok, Clare Hudson, Tom Rafter, Áine Trayer, George Chao-Chi Hong, Áine Carroll
{"title":"Learning health systems and learning organisations in post-acute rehabilitation care: a scoping review.","authors":"Lauren Christophers, Zsofia Torok, Clare Hudson, Tom Rafter, Áine Trayer, George Chao-Chi Hong, Áine Carroll","doi":"10.1080/09638288.2025.2458746","DOIUrl":"https://doi.org/10.1080/09638288.2025.2458746","url":null,"abstract":"<p><strong>Purpose: </strong>This study aimed to assess the prevalence of literature applying LHS and learning organisation (LO) concepts to rehabilitation, gather definitions and core features, and document their application and resultant organisational changes.</p><p><strong>Materials and methods: </strong>We searched five electronic databases and included peer-reviewed qualitative, quantitative, and mixed-methods studies, reviews, and grey literature in English. Full texts were screened, resulting in 27 included papers.</p><p><strong>Results: </strong>Most of the included papers discussed the concept of LHS, emphasising key aspects like infrastructure and learning mechanisms. However, only a minority described practical implementation (<i>n</i> = 4) or assessed the effects of applying LHS frameworks within rehabilitation settings (<i>n</i> = 1).</p><p><strong>Conclusions: </strong>This scoping review highlights the limited empirical focus on implementing and operationalising LHS frameworks in rehabilitation services. Based on the available literature, we offer recommendations for rehabilitation services transitioning to a LHS. Our findings emphasise the need for increased dissemination of knowledge and research on the implementation and evaluation of rehabilitation-focused LHS.</p>","PeriodicalId":50575,"journal":{"name":"Disability and Rehabilitation","volume":" ","pages":"1-9"},"PeriodicalIF":2.1,"publicationDate":"2025-02-07","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143366505","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Socio-demographic, health, treatment, and labour market characteristics of sick-listed employees diagnosed with and treated for a mental disorder in Germany.
IF 2.1 4区 医学
Disability and Rehabilitation Pub Date : 2025-02-06 DOI: 10.1080/09638288.2024.2447376
Fiona Starke, Inge Houkes, Alexandra Sikora, Uta Wegewitz, Angelique de Rijk
{"title":"Socio-demographic, health, treatment, and labour market characteristics of sick-listed employees diagnosed with and treated for a mental disorder in Germany.","authors":"Fiona Starke, Inge Houkes, Alexandra Sikora, Uta Wegewitz, Angelique de Rijk","doi":"10.1080/09638288.2024.2447376","DOIUrl":"https://doi.org/10.1080/09638288.2024.2447376","url":null,"abstract":"<p><strong>Purpose: </strong>To examine the socio-demographic, health, treatment, organisation, job, and labour market characteristics of 484 German sick-listed employees diagnosed with a mental disorder (MD), along with gender differences.</p><p><strong>Methods: </strong>This cross-sectional study used online baseline self-report data from sick-listed employees diagnosed with and treated for a MD, recruited as part of an evaluation trial for a return to work (RTW) intervention (DRKS00026232). Descriptives and <i>t</i>-tests/chi-squared tests were performed.</p><p><strong>Results: </strong>Mean age was 42.6 years (range 20-60 years). Nearly 60% were female, 31% highly educated, and more than half fell into lower gross household income groups. Recurrent depression was a common diagnosis. The employees reported moderate depressive symptoms, low RTW self-efficacy, and poor work ability. Gradual RTW was rated the most common workplace accommodation need for RTW. Significant gender differences were found regarding socio-demographic, health, job, and labour market characteristics.</p><p><strong>Conclusions: </strong>Despite the majority having permanent, fulltime, white-collar jobs, the results highlight the vulnerability of persons with a diagnosed MD in the labour market, suggesting an urgent need for more clinical and work-directed aftercare. Women seem more disadvantaged than men but not regarding treatment and organisation characteristics, emphasising the importance of addressing gender differences in mental health and practice.</p>","PeriodicalId":50575,"journal":{"name":"Disability and Rehabilitation","volume":" ","pages":"1-14"},"PeriodicalIF":2.1,"publicationDate":"2025-02-06","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143257294","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Use of the Neurological Hand Deformity Classification in clinical practice for children with cerebral palsy: a case study approach.
IF 2.1 4区 医学
Disability and Rehabilitation Pub Date : 2025-02-05 DOI: 10.1080/09638288.2025.2458752
Simon Garbellini, Dave Parsons, Christine Imms
{"title":"Use of the Neurological Hand Deformity Classification in clinical practice for children with cerebral palsy: a case study approach.","authors":"Simon Garbellini, Dave Parsons, Christine Imms","doi":"10.1080/09638288.2025.2458752","DOIUrl":"https://doi.org/10.1080/09638288.2025.2458752","url":null,"abstract":"<p><strong>Introduction: </strong>The management of hand deformities of people with neurological impairment is complex and challenging. The use of orthoses to manage hand deformity in clinical practice continues despite low level evidence. Understanding the purpose of an orthosis supported by a biomechanical framework, the Neurological Hand Deformity Classification (NHDC), to identify deforming forces and how to resolve them with appropriate orthotic intervention may reduce controversy surrounding orthosis use.</p><p><strong>Methods: </strong>Detailed case descriptions were used to demonstrate how the NHDC can be clinically applied to aid orthotic decision making. In the description of the participants presented, the use of the NHDC provided structure to: observe and classify the dynamic movement of the wrist and hand musculature; identify the dynamic forces causing deformity; and guide decision making for intervention strategies.</p><p><strong>Results: </strong>The identification of the structures involved in the deforming forces on the hand and how orthotic intervention to resolve the deforming forces was guided by the NHDC is discussed. Context is provided regarding the reason, purpose and description of the orthoses used, and timing and dosage of wear is outlined.</p><p><strong>Conclusion: </strong>The NHDC can form part of a comprehensive upper limb assessment to inform intervention decisions including upper limb orthotic intervention.</p>","PeriodicalId":50575,"journal":{"name":"Disability and Rehabilitation","volume":" ","pages":"1-9"},"PeriodicalIF":2.1,"publicationDate":"2025-02-05","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143191234","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Impact of phonological awareness intervention combined with transcranial direct current stimulation on rapid automatized naming and verbal short term memory in developmental dyslexia: a randomized controlled trial.
IF 2.1 4区 医学
Disability and Rehabilitation Pub Date : 2025-02-04 DOI: 10.1080/09638288.2025.2455530
Seyyedeh Samaneh Mirahadi, Bahar Arshi, Michael A Nitsche, Reyhane Mohamadi
{"title":"Impact of phonological awareness intervention combined with transcranial direct current stimulation on rapid automatized naming and verbal short term memory in developmental dyslexia: a randomized controlled trial.","authors":"Seyyedeh Samaneh Mirahadi, Bahar Arshi, Michael A Nitsche, Reyhane Mohamadi","doi":"10.1080/09638288.2025.2455530","DOIUrl":"https://doi.org/10.1080/09638288.2025.2455530","url":null,"abstract":"<p><strong>Purpose: </strong>This study evaluates the effects of phonological awareness (PA) and combined PA/transcranial direct current stimulation (tDCS) interventions to improve rapid automatized naming (RAN) and verbal short-term memory (VSTM) in developmental dyslexia.</p><p><strong>Methods: </strong>In this randomized, double-blind, sham-controlled clinical trial, we included a PA+sham tDCS group [Mean age: 9.54 (1.15), 71% male] and a PA+ active tDCS group [Mean age: 9.18 (1.30), 85% male] in which we applied tDCS over the left parieto-temporal junction. Each volunteer participated in 15 intervention sessions (session duration 60 min, 3 times per week × 5 weeks). Data of the groups over time were analyzed by a mixed model analysis of variance (ANOVA) with the between-subject factor group and the within-subject factor time.</p><p><strong>Results: </strong>The PA intervention led to increased RAN and VSTM test scores in both groups after the end of interventions (<i>p</i> < 0.05). tDCS had no further effect on outcome measures as compared to PA intervention alone.</p><p><strong>Conclusions: </strong>PA training is valuable to improve RAN and VSTM abilities in dyslexia. Anodal tDCS during the PA intervention had no further therapeutic effect on these skills. Therefore, the use of anodal tDCS over the left parieto-temporal junction is not recommended to improve RAN and VSTM functions in dyslexia.</p>","PeriodicalId":50575,"journal":{"name":"Disability and Rehabilitation","volume":" ","pages":"1-12"},"PeriodicalIF":2.1,"publicationDate":"2025-02-04","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143124104","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
A qualitative analysis of patients' day-to-day living with functional cognitive disorder (FCD).
IF 2.1 4区 医学
Disability and Rehabilitation Pub Date : 2025-02-04 DOI: 10.1080/09638288.2025.2460725
Nadia Mantovani, Norman Poole, Sarah Cope, Serena Vanzan, Aimee Duffus, Tatiana Williams, Jared G Smith, Barbara Barrett, Martin Scicluna, Sarah Beardmore, Mark J Edwards, Robert Howard
{"title":"A qualitative analysis of patients' day-to-day living with functional cognitive disorder (FCD).","authors":"Nadia Mantovani, Norman Poole, Sarah Cope, Serena Vanzan, Aimee Duffus, Tatiana Williams, Jared G Smith, Barbara Barrett, Martin Scicluna, Sarah Beardmore, Mark J Edwards, Robert Howard","doi":"10.1080/09638288.2025.2460725","DOIUrl":"https://doi.org/10.1080/09638288.2025.2460725","url":null,"abstract":"<p><strong>Purpose: </strong>Functional cognitive disorder (FCD) is an increasingly recognised condition which causes significant disability and distress. While it is known to be associated with depression, anxiety and reduced functioning, like other functional neurological disorders it may be marred by stigma. To date, little is known about the lived experience of those with FCD.</p><p><strong>Materials & methods: </strong>As part of a randomised controlled feasibility trial of online group Acceptance and Commitment Therapy (ACT) for FCD we conducted in-depth qualitative interviews and utilised a thematic analysis approach to explore the challenges of living with FCD; how individuals cope with the symptoms; and their experiences of healthcare services.</p><p><strong>Results: </strong>We recruited six women and three men, with a median age of 54. They described living with FCD which included experiences of loss of identity, altered role, feelings of confusion, frustration and low self-esteem, stigma, social isolation, and dismissal by healthcare services. Nevertheless, suffers strove to find strategies to ameliorate their symptoms.</p><p><strong>Conclusions: </strong>FCD is a common and disabling condition which like other functional neurological symptoms leads to altered sense of self and unsatisfactory interactions with others, including healthcare professionals. The diagnosis should be made on positive grounds, clearly explained, and potential therapies investigated.</p>","PeriodicalId":50575,"journal":{"name":"Disability and Rehabilitation","volume":" ","pages":"1-12"},"PeriodicalIF":2.1,"publicationDate":"2025-02-04","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143191230","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
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