Disability and Rehabilitation最新文献_第3页

The effectiveness of interventions to support informal stroke carers: a systematic review. 支持非正式脑卒中照护者的干预措施的有效性：系统回顾。

IF 2 4区医学

Disability and Rehabilitation Pub Date : 2026-05-01 Epub Date: 2025-09-07 DOI: 10.1080/09638288.2025.2552876

Laura Jane Farrell, Fergus Gracey, Melinda Warty, Catherine Elaine Longworth Ford

{"title":"The effectiveness of interventions to support informal stroke carers: a systematic review.","authors":"Laura Jane Farrell, Fergus Gracey, Melinda Warty, Catherine Elaine Longworth Ford","doi":"10.1080/09638288.2025.2552876","DOIUrl":"10.1080/09638288.2025.2552876","url":null,"abstract":"Purpose: Stroke affects one in four adults in the UK, with over a third relying on informal carers. The burden of care can have detrimental effects on the mental and physical health of carers, which may impact the rehabilitative process. Despite this, interventions have focused on the physical demands of caregiving, prioritising the stroke survivor. This review aimed to identify effective psychosocial interventions that reduce burden, strain, depression, or anxiety in informal stroke carers.Methods: A systematic review of the literature was conducted using MEDLINE, EMBASE, PsycINFO, the Cochrane Library, and PubMed, with final searches on the 8th May 2025. Randomised controlled trials (RCTs) published in English from 1980 onwards, including participants aged 18 years or older, were eligible. Risk of bias was assessed using the CASP tool for RCTs. Results were reported using narrative synthesis.Results: Seven studies were rated as having good methodological quality, fourteen moderate, and three weak. Fourteen studies reported significant findings. Interventions varied widely, with characteristics of effective interventions including skills-based problem-solving content, telephone delivery, longer duration, and increased contact time.Conclusions: Providing remote support over extended durations may improve the psychological well-being of informal stroke carers. Tentative conclusions are presented, and further research is required.","PeriodicalId":50575,"journal":{"name":"Disability and Rehabilitation","volume":" ","pages":"2593-2606"},"PeriodicalIF":2.0,"publicationDate":"2026-05-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"145008556","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Cochlear implant recipient volunteer partnerships: perceptions of an adult peer community. 人工耳蜗接受者志愿者伙伴关系：成人同伴社区的看法。

IF 2 4区医学

Disability and Rehabilitation Pub Date : 2026-05-01 Epub Date: 2025-09-17 DOI: 10.1080/09638288.2025.2555977

Carli Diffenthal, Lidia Pottas, Victoria Soobrayen, Talita le Roux

{"title":"Cochlear implant recipient volunteer partnerships: perceptions of an adult peer community.","authors":"Carli Diffenthal, Lidia Pottas, Victoria Soobrayen, Talita le Roux","doi":"10.1080/09638288.2025.2555977","DOIUrl":"10.1080/09638288.2025.2555977","url":null,"abstract":"Purpose: To describe adult cochlear implant (CI) recipient volunteer partnerships, as perceived by CI volunteers, in terms of support and informational counselling. By exploring the dynamics of these partnerships, valuable insights are gained into the effectiveness of volunteer support systems, contributing to peer-based interventions and the overall well-being of CI recipients navigating the complexities of cochlear implantation.Materials and methods: Focus group discussions were conducted with eight adult CI volunteers, and qualitative data were thematically analysed.Results: Four overarching themes were identified: (1) Sharing personal experiences, (2) Information broker, (3) Providing support, and (4) Recommendations for CI volunteer partnerships.Conclusions: Insights from CI volunteers highlight the value of peer support in enhancing person-centred audiological care. The study identifies a need for structured volunteer involvement in CI programs and marks an initial exploration of CI volunteering and mentoring.","PeriodicalId":50575,"journal":{"name":"Disability and Rehabilitation","volume":" ","pages":"2653-2669"},"PeriodicalIF":2.0,"publicationDate":"2026-05-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"145076133","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

From clinic to smartphone evaluating the i-TUG for balance and fall risk in chronic stroke. 从临床到智能手机评估慢性卒中患者平衡和跌倒风险的i-TUG。

IF 2 4区医学

Disability and Rehabilitation Pub Date : 2026-05-01 Epub Date: 2025-11-08 DOI: 10.1080/09638288.2025.2583733

Merve Sevınc Gunduz, Rustem Mustafaoglu, Ibrahim Halil Ural, Semiramis Ozyılmaz

{"title":"From clinic to smartphone evaluating the i-TUG for balance and fall risk in chronic stroke.","authors":"Merve Sevınc Gunduz, Rustem Mustafaoglu, Ibrahim Halil Ural, Semiramis Ozyılmaz","doi":"10.1080/09638288.2025.2583733","DOIUrl":"10.1080/09638288.2025.2583733","url":null,"abstract":"Purpose: To determine the test-retest reliability and construct validity of the Instrumental- Timed Up and Go Test (i-TUG), TUG, and Berg Balance Scale (BBS) using EncephaLog in individuals with stroke.Methods: The study was conducted with 37 individuals diagnosed with chronic ischemic stroke. Participants were assessed using the i-TUG, TUG, BBS, and additional postural sway parameters collected via EncephaLog. Two test sessions were conducted to assess test-retest reliability. Pearson correlation coefficients were used to evaluate construct validity, and the Standard Error of Measurement and Minimal Detectable Change (MDC) were also calculated.Results: High correlation was found between i-TUG and TUG (r = 0.92; r = 0.70), and moderate correlation between i-TUG and BBS (r= -0.54; r= -0.63). Postural sway parameters had negligible correlations with BBS and TUG. Test-retest reliability was excellent for i-TUG (ICC = 0.76), TUG (ICC = 0.83), BBS (ICC = 0.88), Time To Stand Up From The Chair (SUT) (ICC = 0.82), and Time To Sit Down On The Chair (SDT) (ICC = 0.79), but poor for Mediolateral Sway (MLsway) (ICC = 0.27) and Anteroposterior Sway (APsway) (ICC = 0.23). MDC values were as follows: i-TUG (12.36), TUG (9.21), BBS (7.48), MLsway (0.29), APsway (0.29), SUT (0.57), and SDT (0.51).Conclusions: EncephaLog-based i-TUG demonstrated high reliability and good validity, comparable to conventional clinical tests in chronic ischemic stroke. While sway parameters showed low correlation and reliability, i-TUG provides a promising, accessible, and objective tool for balance assessment.","PeriodicalId":50575,"journal":{"name":"Disability and Rehabilitation","volume":" ","pages":"2880-2891"},"PeriodicalIF":2.0,"publicationDate":"2026-05-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"145472492","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Exploring the experiences of Colombian family carers of children with traumatic brain injuries. 探索哥伦比亚家庭照顾创伤性脑损伤儿童的经验。

IF 2 4区医学

Disability and Rehabilitation Pub Date : 2026-05-01 Epub Date: 2025-09-20 DOI: 10.1080/09638288.2025.2563019

R Leonard, J C Arango-Lasprilla, M A Linden

{"title":"Exploring the experiences of Colombian family carers of children with traumatic brain injuries.","authors":"R Leonard, J C Arango-Lasprilla, M A Linden","doi":"10.1080/09638288.2025.2563019","DOIUrl":"10.1080/09638288.2025.2563019","url":null,"abstract":"Purpose: Brain injury is a leading cause of death and disability, with family carers playing a critical support role. In Low- and Middle-Income Countries (LMICs), research has largely focused on quantitative data, limiting insight into carers' lived experiences. This study explores the experiences and support needs of family carers of children with traumatic brain injury in Colombia.Materials and methods: Semi-structured online interviews were conducted with carers recruited through voluntary sector organisations. Data were analysed using thematic analysis.Results: Three main themes and eight subthemes were identified. Carers described challenges navigating healthcare, worsened by social stigma and a general lack of awareness about brain injury. Families experienced major disruptions to all aspects of life, leading to emotional distress and grief for their previous normalcy. Adapting to their child's condition was a continual struggle. Carers expressed a strong need for accessible information about brain injury and peer support.Conclusions: Families in LMICs face similar emotional challenges to those in high-income countries, but issues like poor healthcare access and financial instability add further strain. While systemic change is needed, culturally tailored online support programs could offer practical, immediate assistance to families navigating life after brain injury.","PeriodicalId":50575,"journal":{"name":"Disability and Rehabilitation","volume":" ","pages":"2736-2748"},"PeriodicalIF":2.0,"publicationDate":"2026-05-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"145103176","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Valid measures of cognitive assessment with Aboriginal and Torres Strait Islander peoples are urgently needed: construct and concurrent validity of the Perceive, Recall, Plan and Perform Assessment (PRPP-A). 原住民和托雷斯海峡岛民认知评估急需有效的测量方法：感知、回忆、计划和执行评估（PRPP-A）的建构效度和并行效度。

IF 2 4区医学

Disability and Rehabilitation Pub Date : 2026-05-01 Epub Date: 2025-09-07 DOI: 10.1080/09638288.2025.2554305

Rebecca Leanne Jarrott, Melissa Nott, Judy Ranka

{"title":"Valid measures of cognitive assessment with Aboriginal and Torres Strait Islander peoples are urgently needed: construct and concurrent validity of the Perceive, Recall, Plan and Perform Assessment (PRPP-A).","authors":"Rebecca Leanne Jarrott, Melissa Nott, Judy Ranka","doi":"10.1080/09638288.2025.2554305","DOIUrl":"10.1080/09638288.2025.2554305","url":null,"abstract":"Purpose: Initial studies identified the Perceive, Recall, Plan and Perform Assessment (PRPP-A) as a cognitive assessment with potential for culturally safe use with Aboriginal and Torres Strait Islander peoples with neurocognitive impairments in the Northern Territory of Australia. This study examines construct and concurrent validity of the PRPP-A.Methods: Data were collected from a medical record review. Construct validity was examined using multifaceted Rasch analysis on 44 PRPP-A scores. Concurrent validity was evaluated using Pearson's product-moment correlation to examine relationships between the PRPP-A and Functional Independence Measure Cognitive subscale (FIM Cognition).Results: PRPP-A test items demonstrate good fit with the Rasch model, supporting unidimensionality. A hierarchy of cognitive strategies was generated. Ordering of test items was representative of the information processing skills required for task performance. There was a statistically significant, positive correlation between PRPP-A Total scores with FIM Cognition scores (r = 0.60, p = 0.003). The strongest relationship was identified between the PRPP-A Plan Quadrant and FIM Cognition scores (r = 0.68, p < 0.001). The strength of the relationship suggests evidence for concurrent validity.Conclusions: The findings present emerging evidence supporting the construct and concurrent validity of PRPP-A when used with Aboriginal and Torres Strait Islander peoples in the Northern Territory with neurocognitive impairment.","PeriodicalId":50575,"journal":{"name":"Disability and Rehabilitation","volume":" ","pages":"2839-2854"},"PeriodicalIF":2.0,"publicationDate":"2026-05-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"145008581","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Non-pharmacological intervention experiences and expressed needs of people with young onset dementia: a scoping review. 非药物干预经验和表达需求的人与年轻发病痴呆：范围审查。

IF 2 4区医学

Disability and Rehabilitation Pub Date : 2026-05-01 Epub Date: 2025-09-18 DOI: 10.1080/09638288.2025.2558224

D P Mack, T Araten-Bergman, C Bigby

{"title":"Non-pharmacological intervention experiences and expressed needs of people with young onset dementia: a scoping review.","authors":"D P Mack, T Araten-Bergman, C Bigby","doi":"10.1080/09638288.2025.2558224","DOIUrl":"10.1080/09638288.2025.2558224","url":null,"abstract":"Purpose: Non-pharmacological interventions are increasingly recommended for people with dementia, to delay the progression of their symptoms and maximise their independence. Evaluation is required of how interventions are experienced by people with young onset dementia and if they are meeting their distinct additional needs. This review aimed to examine the empirical evidence on non-pharmacological intervention experiences and expressed needs of this population.Methods: We followed the Joanna Briggs Institute (JBI) methodology and the PRISMA-Extension for Scoping Reviews checklist of reporting items. Five databases were searched for experiences with non-pharmacological physical, functional, cognitive, psychological, or social interventions by people with young onset dementia between 2013-2024. Twenty-three articles were reviewed.Results: Intervention experiences were disparate and delivered across fragmented services. Experiences with specific interventions were not well described although age appropriate, individually tailored services with navigation support were requested. Psychosocial interventions were particularly lacking and did not address the social relationships and activities that had been lost post-diagnosis but remained significant to people with young onset dementia.Conclusions: Further research is needed to examine how psychosocial interventions are experienced and how delivery can be structured to cohesively meet the psychosocial intervention gaps and expressed needs of people with young onset dementia.","PeriodicalId":50575,"journal":{"name":"Disability and Rehabilitation","volume":" ","pages":"2607-2629"},"PeriodicalIF":2.0,"publicationDate":"2026-05-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"145082327","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

The Short Physical Performance Battery is a valid tool in survivors of critical illness: international clinimetric secondary analysis. 短物理性能电池是一个有效的工具，在幸存者的危重疾病：国际临床计量二级分析。

IF 2 4区医学

Disability and Rehabilitation Pub Date : 2026-05-01 Epub Date: 2025-09-23 DOI: 10.1080/09638288.2025.2563768

Dominic Truong, Kirby P Mayer, Michael J Berry, Lisa J Beach, Shaza Abo, Sunita Mathur, Catherine L Granger, Selina M Parry, Peter E Morris

{"title":"The Short Physical Performance Battery is a valid tool in survivors of critical illness: international clinimetric secondary analysis.","authors":"Dominic Truong, Kirby P Mayer, Michael J Berry, Lisa J Beach, Shaza Abo, Sunita Mathur, Catherine L Granger, Selina M Parry, Peter E Morris","doi":"10.1080/09638288.2025.2563768","DOIUrl":"10.1080/09638288.2025.2563768","url":null,"abstract":"Purpose: Evaluate the clinimetric properties and clinical utility of the Short Physical Performance Battery (SPPB) in survivors of critical illness up to 6 months post-hospital discharge.Materials and methods: Clinimetric analysis of three international datasets (n = 488 ICU survivors) from the United States and Australia.Results: At hospital discharge, the SPPB demonstrated moderate-to-excellent construct validity with the six-minute walk test (rho = 0.81, p < 0.001), Timed Up and Go (TUG) (rho = -0.87, p < 0.001), and dual TUG (rho = -0.75, p < 0.001); and fair-to-moderate construct validity with handgrip and quadriceps strength. At hospital discharge it predicted minimal to mild limitations (score 7-12) at 6 months post (AUC 0.78 [0.72-0.84]). Responsiveness was observed, with the largest effect size (0.72) between hospital discharge and 3 months. Minimal clinical difference (from distribution-based methods) ranged from 1.21 to 1.43 out of 12 across timepoints. Floor effects were present at hospital discharge (18.8%) and ceiling effects at 3- and 6-months post (26.5% and 28.1%). At 3 months post, participants with moderate-to-severe limitations (score 0-6) performed worse on physical and strength-based measures.Conclusions: The SPPB is a valid tool that can be used to monitor physical function recovery. It may have the potential for prediction of physical limitations particularly at hospital discharge, however further validation is required.","PeriodicalId":50575,"journal":{"name":"Disability and Rehabilitation","volume":" ","pages":"2855-2866"},"PeriodicalIF":2.0,"publicationDate":"2026-05-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"145126430","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Transcultural adaptation and psychometrics properties of the symbolic ableism scale in the Brazilian population. 巴西人群中象征性残疾量表的跨文化适应和心理测量学特征。

IF 2 4区医学

Disability and Rehabilitation Pub Date : 2026-05-01 Epub Date: 2025-11-07 DOI: 10.1080/09638288.2025.2583732

Roberta Pasqualucci Ronca, Silvana Maria Blascovi-Assis, Alexandre Luiz de Oliveira Serpa, Natália Becker

{"title":"Transcultural adaptation and psychometrics properties of the symbolic ableism scale in the Brazilian population.","authors":"Roberta Pasqualucci Ronca, Silvana Maria Blascovi-Assis, Alexandre Luiz de Oliveira Serpa, Natália Becker","doi":"10.1080/09638288.2025.2583732","DOIUrl":"10.1080/09638288.2025.2583732","url":null,"abstract":"Purpose: The objective of this study was to translate, culturally adapt, and validate the Symbolic Ableism Scale for the Brazilian context and assess its psychometric properties.Materials and methods: This cross-sectional, descriptive, and exploratory study followed five steps for cross-cultural adaptation, ensuring conceptual, semantic, and operational equivalence. A total of 383 Brazilian adults (mean age = 22.4 years; standard deviation = 6.72) participated by completing the Brazilian version of the Symbolic Ableism Scale. Data analysis included factor analysis and internal consistency assessment using Cronbach's alpha to evaluate reliability.Results: The results supported the construct validity of the adapted scale, identifying two factors consistent with the original version: Individualism and Recognition of Continuing Discrimination. Internal consistency was very good, with Cronbach's alpha coefficients of 0.90 and 0.87, respectively.Conclusion: The Brazilian version of the Symbolic Ableism Scale preserved the original intent of the instrument while reflecting specific aspects of the Brazilian cultural context. Despite structural modifications during the adaptation process, psychometric analyses confirmed its validity and reliability, supporting its use as a brief, user-friendly tool for research and clinical assessment of explicit ableist attitudes toward people with disabilities in Brazil.","PeriodicalId":50575,"journal":{"name":"Disability and Rehabilitation","volume":" ","pages":"2867-2879"},"PeriodicalIF":2.0,"publicationDate":"2026-05-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"145472470","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

"I feel a lot more connected with my body after a session": a focus group exploration of the impact of exoskeleton walking on highly experienced robotic exoskeleton walkers. “在一次训练后，我感觉和我的身体联系更紧密了”：一个焦点小组探讨外骨骼行走对经验丰富的外骨骼机器人行走者的影响。

IF 2 4区医学

Disability and Rehabilitation Pub Date : 2026-05-01 Epub Date: 2025-11-03 DOI: 10.1080/09638288.2025.2582980

Ronan Langan, Siobhán O'Connor, Sinéad O'Keeffe, Enda Whyte

{"title":"\"I feel a lot more connected with my body after a session\": a focus group exploration of the impact of exoskeleton walking on highly experienced robotic exoskeleton walkers.","authors":"Ronan Langan, Siobhán O'Connor, Sinéad O'Keeffe, Enda Whyte","doi":"10.1080/09638288.2025.2582980","DOIUrl":"10.1080/09638288.2025.2582980","url":null,"abstract":"Purpose: Robotic exoskeleton walking has become increasingly prevalent in the management of paralysis. To support better integration into clinical practice, there is a need to understand the users' perceptions of the effects of exposure to large volumes of robotic walking. This study aims to describe the patient perspective of exoskeleton walking for the expert user.Methods: Focus groups were conducted with 19 participants (group size range 3-4) who had experienced large numbers of exoskeleton walking sessions (>24). The qualitative methodology used an interpretive phenomenological design and themes were identified using reflexive thematic analysis.Results: Four themes were identified; feeling a perception of normality again, preference for exoskeleton technology, feeling a part of a community, and sustained benefits and therapeutic effects. The perception of feeling normal again, which grew with experience in the device contributed to a positive experience with exoskeleton walking.Conclusions/implications: Experienced users of exoskeletons develop a rich and meaningful perception of robotic walking over time. In addition to the physical benefits, a sense of community and general preference for exoskeleton walking, they develop a deeper meaning around the experience of walking that may be linked to embodiment of the device and/or re-embodiment of the paralysed limbs.","PeriodicalId":50575,"journal":{"name":"Disability and Rehabilitation","volume":" ","pages":"2906-2919"},"PeriodicalIF":2.0,"publicationDate":"2026-05-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"145439650","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Perceptions of self-managing pain among individuals with traumatic brain injury. 创伤性脑损伤患者自我管理疼痛的认知。

IF 2 4区医学

Disability and Rehabilitation Pub Date : 2026-05-01 Epub Date: 2025-11-08 DOI: 10.1080/09638288.2025.2582976

Michael W Williams, Angelle M Sander

{"title":"Perceptions of self-managing pain among individuals with traumatic brain injury.","authors":"Michael W Williams, Angelle M Sander","doi":"10.1080/09638288.2025.2582976","DOIUrl":"10.1080/09638288.2025.2582976","url":null,"abstract":"Purpose: To explore the ways in which individuals with traumatic brain injury (TBI) self-manage pain in their daily lives.Materials and methods: A semi-structured interview was conducted via Zoom with 30 community-dwelling individuals with TBI and chronic pain. Qualitative analysis focused on two interview questions: (1) what have you tried to help with your pain? and (2) how did you figure out how to manage or cope with pain? Audio transcripts were coded independently by two researchers, using thematic analysis. The codebooks and interpretations were discussed with the study's advisory board, consisting of two people with TBI and chronic pain, two care partners for people with TBI and chronic pain, and two providers for people with TBI and chronic pain.Results: Four main themes (accessing resources, psychological strategies, behavioral strategies, and religious/spiritual engagement) emerged in capturing how individuals self-managed pain.Conclusions: Despite varying levels of formal knowledge of pain management, individuals with TBI reported utilizing a wide array of strategies to self-manage pain - often informed by \"trial-and-error.\" Guided self-management training may enhance the effectiveness of their approach as well as possibly increase the efficiency in which they develop an effective approach and make subsequent adjustments.","PeriodicalId":50575,"journal":{"name":"Disability and Rehabilitation","volume":" ","pages":"2768-2779"},"PeriodicalIF":2.0,"publicationDate":"2026-05-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"145472477","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0