{"title":"Experiences of occupational engagement in young & middle-aged women post-stroke: a qualitative systematic review.","authors":"Li Kiang Regina Toh, Tanja Križaj","doi":"10.1080/09638288.2025.2515448","DOIUrl":"https://doi.org/10.1080/09638288.2025.2515448","url":null,"abstract":"<p><strong>Purpose: </strong>Young and middle-aged women engage in distinct occupations, facing unique post-stroke challenges that complicate their recovery. However, little is known about their experiences with occupational engagement following a stroke. This qualitative systematic review aimed to explore the post-stroke experiences of women aged 18-65 from an occupational perspective of health.</p><p><strong>Methods: </strong>A comprehensive search of five databases identified qualitative studies on post-stroke experiences of women aged 18-65. Two reviewers independently appraised the methodological quality of eligible studies. Data were extracted and synthesised using the Joanna Briggs Institute (JBI) method of meta-aggregation.</p><p><strong>Results: </strong>Seven studies were included. From 103 extracted findings, 18 aggregated categories and six synthesised findings emerged, relating to impacts on (1) daily life, domestic roles, self-efficacy and identity (2) work (3) relationships (4) health and recovery (5) adjustment and coping, and (6) experiences with healthcare.</p><p><strong>Conclusion: </strong>Post-stroke occupational engagement in young and middle-aged women was disrupted across various life domains, reflecting its dynamic and intersectional nature with individual experiences of doing, being, belonging and becoming. Systematic barriers and societal attitudes posed additional challenges to recovery. These findings underscore the need for equitable, person-centred interventions to facilitate occupational engagement for health and well-being in this population.</p>","PeriodicalId":50575,"journal":{"name":"Disability and Rehabilitation","volume":" ","pages":"1-17"},"PeriodicalIF":2.1,"publicationDate":"2025-06-17","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144318577","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Nora Bakaa, James Gillet, Raja Rampersaud, Brian Drew, Aleksa Cenic, Lisa Carlesso, Joy MacDermid, Douglas P Gross, Joanne Thorne, Luciana Gazzi Macedo
{"title":"A qualitative exploration of unmet healthcare needs for individuals undergoing surgery for symptomatic lumbar spinal stenosis.","authors":"Nora Bakaa, James Gillet, Raja Rampersaud, Brian Drew, Aleksa Cenic, Lisa Carlesso, Joy MacDermid, Douglas P Gross, Joanne Thorne, Luciana Gazzi Macedo","doi":"10.1080/09638288.2025.2520995","DOIUrl":"https://doi.org/10.1080/09638288.2025.2520995","url":null,"abstract":"<p><strong>Purpose: </strong>This study aimed to gain an in-depth perspective of the perioperative experiences, including unmet needs and expectations, of individuals with the Canadian healthcare system before or after surgery for symptomatic lumbar spinal stenosis (SLSS).</p><p><strong>Methods: </strong>We used qualitative interpretive phenomenology to study individuals with SLSS. We conducted semi-structured qualitative interviews that lasted 30 to 90 min. Inclusion criteria were individuals 55 or older, diagnosed with SLSS, scheduled for or undergone lumbar spine surgery, and able to speak English.</p><p><strong>Results: </strong>A total of 32 participants (Men: <i>n</i> = 18; Women: <i>n</i> = 14) were included in this study. Among those participants, 15 were interviewed preoperatively (before surgery) and 17 postoperatively (after surgery). Patients described varied perioperative challenges, requiring a tailored approach to meet their unique needs. We constructed 4 major themes that participants highlighted as factors affecting their perioperative experience: (1) Frustration and barriers to navigating the healthcare system, (2) Insufficient education and preparation for surgery, (3) Challenges with postoperative recovery and rehabilitation, and (4) Unmet needs for peer and emotional support.</p><p><strong>Conclusion: </strong>This study highlights the importance of developing patient-centered perioperative standard of care to help individuals undergoing surgery for SLSS navigate the Ontario healthcare system.</p>","PeriodicalId":50575,"journal":{"name":"Disability and Rehabilitation","volume":" ","pages":"1-8"},"PeriodicalIF":2.1,"publicationDate":"2025-06-17","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144318574","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"Beyond limitations: a qualitative inquiry into the lived experiences of adults with congenital radioulnar synostosis.","authors":"Rochelle Kingston, Alysha Skuthan","doi":"10.1080/09638288.2025.2520999","DOIUrl":"https://doi.org/10.1080/09638288.2025.2520999","url":null,"abstract":"<p><strong>Purpose: </strong>This study explored the lived experiences of individuals with congenital radioulnar synostosis (CRUS), focusing on how the condition effects their daily occupations from diagnosis through adulthood.</p><p><strong>Materials and methods: </strong>A phenomenological approach with thematic analysis was used. Eleven individuals diagnosed with CRUS, adults, participated in semi-structured Zoom interviews. They shared personal accounts about physical limitations, adaptations, and interactions with the healthcare system.</p><p><strong>Results: </strong>Three central themes emerged: (1) I can't move that way-capturing the physical limitations imposed by CRUS; (2) This is my normal-reflecting the ways participants adapt and normalize their condition in everyday life; and (3) I know more than my doctor-highlighting their deep personal understanding of CRUS and challenges with medical professionals. Participants often became their own advocates due to limited professional knowledge about the condition.</p><p><strong>Conclusion: </strong>CRUS presents complex challenges that require tailored, client-centered care. Occupational therapy practitioners should integrate anatomical knowledge and adaptive strategies to support functional goals. A holistic, interdisciplinary approach and improved communication between patients and providers can enhance outcomes. Advocacy and awareness efforts are essential to empower individuals and promote more effective, empathetic care.</p>","PeriodicalId":50575,"journal":{"name":"Disability and Rehabilitation","volume":" ","pages":"1-9"},"PeriodicalIF":2.1,"publicationDate":"2025-06-17","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144318575","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Natascha Ekdahl, Marianne Lannsjö, Britt-Marie Stålnacke, Marika C Möller
{"title":"The relationship between cognitive reserve, cognitive performance, and outcomes of return to work and life satisfaction after brain injury: a retrospective cohort study.","authors":"Natascha Ekdahl, Marianne Lannsjö, Britt-Marie Stålnacke, Marika C Möller","doi":"10.1080/09638288.2025.2517240","DOIUrl":"https://doi.org/10.1080/09638288.2025.2517240","url":null,"abstract":"<p><strong>Purpose: </strong>Cognitive reserve and neuropsychological test results are linked to outcomes after acquired brain injury (ABI), but their interaction and their impact on different types of outcomes remains to be explored. This study aimed to explore how cognitive reserve, measured by education, is related to neuropsychological outcomes, return-to-work and life satisfaction after ABI.</p><p><strong>Methods: </strong>Long term follow-up of 83 patients with ABI, 5-15 years after specialized brain injury rehabilitation. Logistic regression was used to analyze the relationship between independent variables and outcomes (return-to-work and life satisfaction).</p><p><strong>Results: </strong>Return-to-work was associated with cognitive reserve (OR = 1.31, <i>p = 0.024</i>), age (OR = 0.95, <i>p = 0.042</i>), general fatigue (OR = 0.77, <i>p = 0.034</i>), and Cognitive Profiency Index (measures of working memory and processing speed, OR = 1.06, <i>p = 0.037)</i>. Verbal and spatial abilities were related to education, but not to return-to-work. General fatigue was related to satisfaction with mental health in both univariate (OR = 0.78, <i>p = 0.008</i>) and multivariate analyses (OR = 0.8, <i>p = 0.037</i>), but no other variables were significantly associated with life satisfaction in multivariate analyses.</p><p><strong>Conclusion: </strong>Patients with lower cognitive reserve paired with slower processing speed and poor working memory may need additional support for successful return-to-work, while life satisfaction appears to depend more on other factors.</p>","PeriodicalId":50575,"journal":{"name":"Disability and Rehabilitation","volume":" ","pages":"1-11"},"PeriodicalIF":2.1,"publicationDate":"2025-06-16","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144303516","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"Concerns regarding falling after stroke: analysis of the psychometric properties of the Taiwan Chinese version of the Iconographical Falls Efficacy Scale in people with stroke.","authors":"Shu-Chun Lee, Chi-Tzu Feng, Chen-Ju Lin, Yu-Ting Huang, Guan-Ru Ho, Yi-Shiung Horng","doi":"10.1080/09638288.2025.2517248","DOIUrl":"https://doi.org/10.1080/09638288.2025.2517248","url":null,"abstract":"<p><strong>Purpose: </strong>This study evaluated the validity and reliability of the 30- and 10-item Taiwan Chinese version of the Iconographical Falls Efficacy Scale (Icon-FES (TW)) for people with stroke.</p><p><strong>Methods: </strong>Sixty people with chronic stroke completed the Taiwanese version of the Icon-FES, the International Falls Efficacy Scale, and the World Health Organization Quality of Life Questionnaire Brief version. They also completed the Berg Balance Scale (BBS) and the Short Physical Performance Battery (SPPB). After one week, they recompleted the Icon-FES. Discriminant validity, construct validity, internal consistency, and test-retest reliability were assessed.</p><p><strong>Results: </strong>The 30- and 10-item Icon-FESs had high internal consistency (Cronbach's <i>α</i> = 0.971 and 0.912). Both versions significantly correlated with the International Falls Efficacy Scale (<i>r</i> = 0.87, 0.92) and showed associations with the SPPB, BBS, and the physical domain of the World Health Organization Quality of Life Questionnaire. They effectively differentiated people based on concern levels and BBS/SPPB scores. Test-retest reliability was high (ICC = 0.87, 0.86).</p><p><strong>Conclusions: </strong>The Icon-FES is a reliable and valid tool for assessing concerns regarding falling in people with stroke.</p>","PeriodicalId":50575,"journal":{"name":"Disability and Rehabilitation","volume":" ","pages":"1-9"},"PeriodicalIF":2.1,"publicationDate":"2025-06-15","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144303515","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Tang Zhi Lim, Cila Umat, Pei-Hua Chen, Yu-Ting Lai, Chun Hong Gan, Bee See Goh
{"title":"Support provided by the parent-to-parent support group to parents of children with cochlear implants and candidates in Malaysia: a qualitative study.","authors":"Tang Zhi Lim, Cila Umat, Pei-Hua Chen, Yu-Ting Lai, Chun Hong Gan, Bee See Goh","doi":"10.1080/09638288.2025.2515445","DOIUrl":"https://doi.org/10.1080/09638288.2025.2515445","url":null,"abstract":"<p><strong>Purpose: </strong>The present study aimed to explore the support provided by the parent-to-parent support group (PPSG) to families whose children are cochlear implant (CI) users or candidates during each stage of the intervention procedure.</p><p><strong>Method and materials: </strong>The present study conducted semi-structured interviews to explore the helpfulness and supportiveness of the support provided by experienced parents to parents in the PPSG. Sixteen parents of children with CI and candidates (ages 11-90 months) agreed to participate in this study. After sharing their experiences, parents rated the PPSG's helpfulness and supportiveness on a five-point scale.</p><p><strong>Results: </strong>The study identified three main themes that emerged from parents' experiences who received support from experienced parents in the PPSG throughout their CI intervention journey. These themes included (a) informational - providing informational support to newly diagnosed families; (b) psychological - providing emotional support; and (c) social - forming a sense of belonging to the community. Additionally, each theme generated several sub-themes that focused on the feelings and experiences of parents during their journey through CI intervention.</p><p><strong>Conclusion: </strong>The findings support the PPSG as a helpful and supportive resource for parents whose children are CI users or candidates throughout their intervention journey.</p>","PeriodicalId":50575,"journal":{"name":"Disability and Rehabilitation","volume":" ","pages":"1-12"},"PeriodicalIF":2.1,"publicationDate":"2025-06-13","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144295258","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"Effectiveness of pilates on fatigue in persons with chronic conditions: a systematic review and meta-analysis.","authors":"Ulric Sena Abonie, Martin Ackah, Michael Kelly","doi":"10.1080/09638288.2025.2512406","DOIUrl":"https://doi.org/10.1080/09638288.2025.2512406","url":null,"abstract":"<p><strong>Purpose: </strong>To examine the effectiveness of Pilates on fatigue, quality of life and physical function in persons with chronic conditions and explore potential intervention moderators.</p><p><strong>Materials and methods: </strong>PubMed, SPORTDiscus, AMED and CINAHL were systematically searched from database inception to September 2024, to identify relevant studies. Two independent reviewers screened and selected the articles and evaluated methodological quality. Studies were included if they were randomised controlled trials of Pilates to improve fatigue in persons with chronic conditions.</p><p><strong>Results: </strong>Eighteen studies involving 812 participants were included. Pilates had a significant effect on fatigue, quality of life and physical function. Meta-analyses showed Pilates had significant effect on physical function [Hedge's <i>g</i> = 0.85 (95% CI: 0.30; 1.40), <i>p</i> = 0.01] but the effects on fatigue [Hedge's g = -0.43 (95% CI: -0.96; 0.11), <i>p</i> = 0.12] and quality of life [Hedge's <i>g</i> = 0.49 (95% CI: -0.40; 1.37), <i>p</i> = 0.28] were not significant. Interventions with smaller duration (6-8 weeks) influenced Pilates effect on fatigue. The type of chronic condition and control did not influence effect.</p><p><strong>Conclusions: </strong>Pilates has beneficial effects on physical function and may help reduce fatigue and improve quality of life in persons with chronic conditions. Pilates exercises used in rehabilitation settings can influence health outcomes.</p>","PeriodicalId":50575,"journal":{"name":"Disability and Rehabilitation","volume":" ","pages":"1-10"},"PeriodicalIF":2.1,"publicationDate":"2025-06-11","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144276514","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Kirsty Laurie, Louise Gustafsson, Michele M Foster, David N Borg
{"title":"Service access networks at 3- and 6-months after discharge from brain injury rehabilitation: an ego-network analysis.","authors":"Kirsty Laurie, Louise Gustafsson, Michele M Foster, David N Borg","doi":"10.1080/09638288.2025.2513047","DOIUrl":"https://doi.org/10.1080/09638288.2025.2513047","url":null,"abstract":"<p><strong>Purpose: </strong>To map the 3- and 6-month post-acute rehabilitation and healthcare networks from the perspective of people with Acquired Brain Injury and examine how these relate to funding provision and participation in a specialist transitional rehabilitation service.</p><p><strong>Materials and methods: </strong>Fifteen adults with an Acquired Brain Injury (mean age 43; range 20-63) participated in semi-structured telephone interviews at 3- and 6-month post-discharge from inpatient rehabilitation with a total of 29 interviews conducted. The interview guide was based on a social network framework and data were obtained regarding the composition, size, density, and stability of networks.</p><p><strong>Results: </strong>Results indicated that participants' networks ranged from 3-10 health professionals. Five typologies were apparent including cohesive, cluster, core, star, and kite network. Participants' networks generally decreased in size and density at 6-month post-discharge. The networks of participants were varied, and differences in network measures were observed when comparing those who were funded by National Injury Insurance Scheme-Queensland and National Disability Insurance Scheme and those that did or did not attend Transitional Rehabilitation Service.</p><p><strong>Conclusions: </strong>The study highlighted the diversity of individuals' personal networks when assessing their composition and structural characteristics. Through the study, a deeper understanding of the networks and individuals' experiences of service provision under the existing funding and program frameworks was developed.</p>","PeriodicalId":50575,"journal":{"name":"Disability and Rehabilitation","volume":" ","pages":"1-11"},"PeriodicalIF":2.1,"publicationDate":"2025-06-10","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144259270","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Claire Bennington, Jytte Isaksen, Ciara Shiggins, Emma Beesley, Kim Beesley, Nina Simmons-Mackie, Linda Worrall, Yina M Quique, Oscar Aguilar, Emily Guo, Sarah J Wallace
{"title":"International priorities for a unified aphasia awareness campaign: a nominal group technique study across five countries.","authors":"Claire Bennington, Jytte Isaksen, Ciara Shiggins, Emma Beesley, Kim Beesley, Nina Simmons-Mackie, Linda Worrall, Yina M Quique, Oscar Aguilar, Emily Guo, Sarah J Wallace","doi":"10.1080/09638288.2025.2510558","DOIUrl":"https://doi.org/10.1080/09638288.2025.2510558","url":null,"abstract":"<p><strong>Purpose: </strong>Despite many campaigns over the last two decades, aphasia awareness remains low internationally. To address this issue, we aimed to gain multi-stakeholder consensus on the essential elements of an international aphasia awareness campaign.</p><p><strong>Materials and methods: </strong>Online focus groups using the nominal group technique were conducted in Australia, Colombia, Denmark, Singapore, and the United States of America. Participants were: (1) people living with aphasia (PLWA), and (2) people working with PLWA (workers). Participants generated and ranked essential campaign elements. Priorities were analysed across groups using descriptive statistics and qualitative content analysis.</p><p><strong>Results: </strong>Twelve focus groups were held across the five countries and 26 PLWA and 29 workers participated. Collectively, participants prioritised 115 ideas for an international aphasia awareness campaign. \"Reintegration of people with aphasia into society\" was an essential goal, aligning with the desired outcome that, \"one day the world's population will understand aphasia and all people with aphasia will be treated with respect and kindness.\" There was agreement that campaign messages should include: what aphasia is and how to support communication.</p><p><strong>Conclusions: </strong>Consensus was gained on essential elements for an international aphasia awareness campaign. These will guide the co-design of a future campaign to raise awareness of aphasia globally.</p>","PeriodicalId":50575,"journal":{"name":"Disability and Rehabilitation","volume":" ","pages":"1-21"},"PeriodicalIF":2.1,"publicationDate":"2025-06-09","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144250651","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Eunice Kombe, Yeliz Prior, Helen Louise Ackers, Sarah Day, Maggie Donovan-Hall
{"title":"A qualitative synthesis to explore clinician and user experiences of accessing prosthetic and orthotic services in low- and middle-income countries using the three-delays model as a framework.","authors":"Eunice Kombe, Yeliz Prior, Helen Louise Ackers, Sarah Day, Maggie Donovan-Hall","doi":"10.1080/09638288.2025.2516170","DOIUrl":"https://doi.org/10.1080/09638288.2025.2516170","url":null,"abstract":"<p><strong>Purpose: </strong>To use the \"three delays model\" as a framework to identify and synthesise qualitative literature that identifies barriers to accessing and utilising P&O services in low-middle-income countries from the perspective of individuals with disabilities and clinicians.</p><p><strong>Methods: </strong>A systematic search of four databases was used to identify research exploring user and clinician experiences in accessing P&O services in LMICs. Selected search terms and combinations identified through an adapted version of the SPIDER tool were used to identify studies. All retrieved articles were critically appraised using the CASP tool. Data were extracted, and themes were synthesised using a deductive thematic approach guided by the three-delays model.</p><p><strong>Results: </strong>Ten key themes were generated and linked to the three-delays model. Fear of perceived financial implications, transportation, and respectful care were some of the themes affecting accessibility in the first, second, and third delays, respectively. The findings suggest that the delays are interconnected components that might have a cascading effect on access to P&O services as a whole. Minimising delays can improve the accessibility of P&O services in low-middle-income countries.</p>","PeriodicalId":50575,"journal":{"name":"Disability and Rehabilitation","volume":" ","pages":"1-15"},"PeriodicalIF":2.1,"publicationDate":"2025-06-09","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144250649","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}