Disability and Rehabilitation最新文献

{"title":"An ICF framework analysis of the CVID quality of life questionnaire.","authors":"Ecran Cinkavuk, Nisa Akyazi, Ebru Calik, Sevil Bilgin","doi":"10.1080/09638288.2026.2662748","DOIUrl":"https://doi.org/10.1080/09638288.2026.2662748","url":null,"abstract":"<p><strong>Purpose: </strong>This study aimed to link the Common Variable Immune Deficiency Quality of Life (CVID-QoL) and Short Form-36 (SF-36) questionnaires to the International Classification of Functioning, Disability and Health (ICF) using ICF linking rules and to compare their ICF-based content coverage.</p><p><strong>Methods: </strong>Two researchers independently analyzed each CVID-QoL and SF-36 item following the ICF linking rules by Cieza et al. Meaningful concepts were identified, linked to the most appropriate ICF categories, and evaluated for inter-rater agreement using kappa, with discrepancies resolved by expert consultation.</p><p><strong>Results: </strong>A total of 32 CVID-QoL items yielded 47 ICF code assignments, corresponding to 25 unique ICF categories, whereas the SF-36 yielded 61 assignments, corresponding to 25 unique ICF categories. In the CVID-QoL, the most represented main-concept domains were b1 mental functions, b4 cardiovascular, hematological, immunological, and respiratory functions, and d7 interpersonal interactions and relationships, whereas in the SF-36 the most represented domains were b1 mental functions, d2 general tasks and demands, and d4 mobility.</p><p><strong>Discussion: </strong>The CVID-QoL appears to assess the disease more broadly, as it includes content related to body functions and structures, activities and participation, and environmental factors. Therefore, compared with the generic SF-36, it may better reflect the disease-specific impact of CVID.Implications for RehabilitationUsing ICF-linked disease-specific tools in clinical practice can improve the assessment process and guide more holistic, patient-centered interventions for individuals with Common Variable Immunodeficiency (CVID).Linking the Common Variable Immune Deficiency Quality of Life (CVID-QoL) questionnaire to the ICF framework enables a comprehensive understanding of disease-specific functional limitations in patients with Common Variable Immune Deficiency (CVID).The Common Variable Immune Deficiency Quality of Life (CVID-QoL) captures unique aspects of physical, emotional, and environmental challenges not addressed in generic Health-Related Quality of Life (HRQoL) tools, such as the SF-36, highlighting its relevance for individualized rehabilitation planning.</p>","PeriodicalId":50575,"journal":{"name":"Disability and Rehabilitation","volume":" ","pages":"1-12"},"PeriodicalIF":2.0,"publicationDate":"2026-05-04","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"147822990","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Avoidance behavior after proximal humerus fracture: implications for rehabilitation and a clinically relevant cutoff for the Avoidance of Daily Activities Photo Scale (ADAP Shoulder Scale).","authors":"Giovanna Magagnini Fernandes Gazalli, Jaqueline Martins, Walter Ansanello Netto, Felipe de Souza Serenza, Anamaria Siriani de Oliveira","doi":"10.1080/09638288.2026.2665082","DOIUrl":"https://doi.org/10.1080/09638288.2026.2665082","url":null,"abstract":"<p><strong>Purpose: </strong>Avoidance behavior contributes to disability after proximal humerus fracture (PHF), yet its psychosocial determinants and clinical identification remain unclear. This study examined biopsychosocial correlates of avoidance and developed a clinically relevant cutoff for the Avoidance of Daily Activities Photo Scale (ADAP Shoulder Scale).</p><p><strong>Materials and methods: </strong>In this cross-sectional study, 105 adults with PHF completed measures of avoidance (ADAP Shoulder Scale), shoulder disability (SPADI), kinesiophobia (TSK-17), pain-related self-efficacy (PSEQ-10), resilience (Connor-Davidson Resilience Scale, CD-RISC-25), depressive symptoms (Patient Health Questionnaire, PHQ-9), and catastrophizing (PCS). Multiple regression and receiver operating characteristic (ROC) analyses were performed.</p><p><strong>Results: </strong>Avoidance (mean ADAP = 58.0) was most strongly associated with lower pain-related self-efficacy (<i>β</i> = -0.46, <i>p</i> < 0.001). Additional associations included female sex (<i>β</i> = 0.22, <i>p</i> = 0.008), shorter time since injury (<i>β</i> = -0.29, <i>p</i> = 0.001), and greater social support (<i>β</i> = 0.17, <i>p</i> = 0.049). The ADAP showed good discrimination of disability (AUC = 0.86). A cutoff score ≥61 may indicate relevant avoidance.</p><p><strong>Conclusions: </strong>Avoidance behavior, a significant contributor to disability after PHF, is strongly associated with lower pain-related self-efficacy. The ADAP cutoff may help clinicians identify patients with relevant avoidance, enabling early, targeted interventions to enhance confidence and engagement in rehabilitation.</p>","PeriodicalId":50575,"journal":{"name":"Disability and Rehabilitation","volume":" ","pages":"1-12"},"PeriodicalIF":2.0,"publicationDate":"2026-05-04","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"147845587","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"The neuroplasticity-based model (NBM): an updated neurorehabilitation model that emphasizes evidence-informed strategies to induce neuroplastic changes.","authors":"David Morris, Sarah Dos Anjos, Mary H Bowman, Alexandra Evancho, Elizabeth Wylie, Brian King, Keith M McGregor","doi":"10.1080/09638288.2026.2662103","DOIUrl":"https://doi.org/10.1080/09638288.2026.2662103","url":null,"abstract":"<p><strong>Purpose: </strong>Since its inception, neurorehabilitation principles guiding patient/client assessment and management have evolved alongside scientific discoveries. Historically, three models have shaped neurorehabilitation assessment and intervention: muscle-reeducation, neurotherapeutic facilitation, and contemporary task-oriented approaches, grounded in reflex, hierarchical, and systems theories of motor control and recovery. In recent decades, neuroplasticity research has challenged established principles of neurorehabilitation, supporting a shift toward an updated model. The purpose of this paper is to describe the implications of neuroplasticity research for neurorehabilitation and propose a new model that integrates emerging theories of adaptive neuroplasticity promotion in rehabilitation.</p><p><strong>Methods: </strong>This special interest paper explores the current understanding of neuroplasticity and the implications of these findings for management of neurologic movement dysfunction. Based on the current literature, we propose and describe a fourth neurorehabilitation model, the Neuroplasticity-Based Model (NBM), that may better guide clinical assessment and management.</p><p><strong>Results: </strong>The NBM's five therapeutic aims include optimal intervention delivery, experiences designed to focus attention, intentional experiences to induce physiological stress, health promotion strategies, and behavioral change support. These aims are tailored to individual factors to create client-centered interventions that promote adaptive neuroplasticity.</p><p><strong>Conclusion: </strong>The NBM offers a comprehensive framework for integrating emerging neuroplasticity discoveries into neurorehabilitation practice.</p>","PeriodicalId":50575,"journal":{"name":"Disability and Rehabilitation","volume":" ","pages":"1-17"},"PeriodicalIF":2.0,"publicationDate":"2026-05-03","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"147822966","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Parents with physical disabilities and their parenting experiences: a scoping review of qualitative studies.","authors":"L Hu, R Bindman, M Heyman, S Jabroun, N Lomerson, M Mitra, L Swinford, S R Hilberink","doi":"10.1080/09638288.2025.2550626","DOIUrl":"10.1080/09638288.2025.2550626","url":null,"abstract":"<p><strong>Purpose: </strong>Parents with physical disabilities experience social marginalization, reflecting pervasive ableism and stigma. It is critical to understand their experiences related to parenting to develop targeted and supportive programs. The primary objective was to examine the extent of existing knowledge on parental experiences of physically disabled parents by conducting a scoping review of peer-reviewed qualitative studies.</p><p><strong>Methods: </strong>Studies were included if they reported qualitative data on the parenting experiences of parents with physical disabilities and were published between 1990 and 2024. Medline, Cinahl, PsychInfo, and Scopus were used. A standardized data extraction form was developed and tested prior to data extraction.</p><p><strong>Results: </strong>25 publications (23 studies) met the inclusion criteria and were included in the review. These studies reflected the experiences of parents with diverse physical disabilities. Studies highlighted numerous aspects of parents' experiences, including 1) Navigating a multitude of barriers and challenges; 2) Parent experiences with other family members (excluding their children): supportive and challenging; 3) Diverse parent experiences with non-family support persons; and 4) Adaptation, resilience, and positivity in disabled parenting.</p><p><strong>Conclusions: </strong>Parents described adaptation and resilience in response to pervasive challenges. Rehabilitation programs that serve disabled parents should leverage the strengths and assets of the persons served.</p>","PeriodicalId":50575,"journal":{"name":"Disability and Rehabilitation","volume":" ","pages":"2579-2592"},"PeriodicalIF":2.0,"publicationDate":"2026-05-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144977335","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Validity, reliability and responsiveness of the brief resilience scale (BRS) in individuals with rotator cuff related shoulder pain.","authors":"Dayana Patricia Rosa, Jean-Sébastien Roy","doi":"10.1080/09638288.2025.2585785","DOIUrl":"10.1080/09638288.2025.2585785","url":null,"abstract":"<p><strong>Purpose: </strong>To determine the internal consistency, test-retest reliability, construct validity, and responsiveness of the Brief Resilience Scale (BRS) in a sample of adults with persistent rotator cuff-related shoulder pain (RCRSP).</p><p><strong>Material and methods: </strong>A total of 115 adults with persistent RCRSP participated in the study. All participants completed the BRS at baseline and again at 12 weeks to evaluate responsiveness. Of these, 92 completed the BRS 1-2 weeks after baseline to evaluate test-retest reliability. Additionally, construct validity was investigated through a-priori hypothesis testing, comparing the BRS with patient-reported outcome measures that assess various biopsychosocial constructs.</p><p><strong>Results: </strong>The BRS is reliable (α = 0.83; Intraclass Correlation Coefficient =0.83; Standard Error of Measurement = 0.33 points; Minimal Detectable Change = 0.91 points) and valid, as all a-priori hypotheses were confirmed. Positive associations were found with measures of self-efficacy and social support, while negative associations were observed with pain intensity, perceived stress, catastrophizing, and symptoms of depression and anxiety. However, the estimated Area Under the Curve (AUC = 0.47) indicated insufficient responsiveness.</p><p><strong>Conclusion: </strong>While the BRS demonstrated adequate reliability and construct validity in estimating resilience levels in individuals with persistent RCRSP, it lacks sufficient responsiveness in this population.</p>","PeriodicalId":50575,"journal":{"name":"Disability and Rehabilitation","volume":" ","pages":"2892-2905"},"PeriodicalIF":2.0,"publicationDate":"2026-05-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"145483595","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Building community through engagement in a Hub-and-Spoke, Peer-led Community Aphasia Group program: the perspectives of participants with aphasia and their close others.","authors":"Lucette Lanyon, Ciara Shiggins, Cassie Wilcox, John E Pierce, Dana Wong, Michelle Attard, Marcella Carragher, Patricia Fenner, Miranda Rose","doi":"10.1080/09638288.2025.2583075","DOIUrl":"10.1080/09638288.2025.2583075","url":null,"abstract":"<p><strong>Purpose: </strong>Long-term social support is a key protective factor for living well with chronic disabilities. Community Aphasia Groups (CAGs) provide opportunities for connection and recovery. To address service availability challenges, we developed the Hub-and-Spoke, Peer-led CAG program in which a \"Hub\" of clinical staff supports \"Spokes\"-community members with and without aphasia-to facilitate high-quality CAGs. A pilot, mixed-methods study confirmed the feasibility and acceptability of this model.</p><p><strong>Materials and methods: </strong>This nested qualitative study explored program acceptability from the perspective of group members and their close others. Semi-structured interviews were conducted immediately following the 12-session program and analysed using inductive thematic analysis.</p><p><strong>Results: </strong>All 13 participants in the pilot consented to interviews. Analysis generated five themes across the two participatory groups and six recommendations for future iterations.</p><p><strong>Conclusions: </strong>Findings support the acceptability of this novel CAG model, showing benefits in purpose, confidence, support and expanded roles. Greater attention to activity programming, close other needs, and group roles is essential. Conducted within a research centre, the model's generalisability to standard healthcare settings may be limited. Further research is needed to examine scalability and wider applicability to understand the implementation potential of a Hub-and-Spoke, Peer-led CAG model.</p>","PeriodicalId":50575,"journal":{"name":"Disability and Rehabilitation","volume":" ","pages":"2780-2800"},"PeriodicalIF":2.0,"publicationDate":"2026-05-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"145551623","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Response to letter to the editor regarding \"DMA Clinical Pilates^TM exercises improved clinical and biomechanical outcomes for adults with nonspecific chronic low back pain: a randomized controlled trial\".","authors":"Boon Chong Kwok, Pui Wah Kong","doi":"10.1080/09638288.2026.2630788","DOIUrl":"10.1080/09638288.2026.2630788","url":null,"abstract":"","PeriodicalId":50575,"journal":{"name":"Disability and Rehabilitation","volume":" ","pages":"2923-2924"},"PeriodicalIF":2.0,"publicationDate":"2026-05-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"146198194","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Patient participation in team meetings - experiences of individuals with cognitive communication disorders after acquired brain injury.","authors":"Maja Karrberg, Ulrica Antepohl, Camilla Olsson","doi":"10.1080/09638288.2025.2561859","DOIUrl":"10.1080/09638288.2025.2561859","url":null,"abstract":"<p><strong>Purpose: </strong>Patient participation is a key aspect of person-centered care. In rehabilitation settings, team meetings gathering the patient, rehabilitation team, and family members are an important tool to achieve patient participation. However, such meetings may represent a challenge for persons with cognitive communication disorder (CCD). This study aimed to explore the experiences of participation in team meetings among individuals with CCD.</p><p><strong>Materials and methods: </strong>Semi-structured interviews were conducted with a purposive sample of 13 participants with CCD. Data were analyzed using qualitative content analysis.</p><p><strong>Results: </strong>The analysis yielded four categories: Defining patient participation for oneself; Overload disrupts communication; Factors facilitating communication; and Making the journey easier - recommendations for the future. Results indicate a mismatch between participants' abilities and the complexity and cognitive load at the meeting, particularly early in the rehabilitation process. An overarching theme captured that patient participation is not present from start, but may develop as insights, skills, and adaptations evolve during the rehabilitation process.</p><p><strong>Conclusion: </strong>Merely attending a meeting does not ensure patient participation. To facilitate patient participation for individuals with CCD, the communication challenges must be addressed. The results offer insights about how team meetings could be arranged to meet the needs of individuals with CCD.</p>","PeriodicalId":50575,"journal":{"name":"Disability and Rehabilitation","volume":" ","pages":"2718-2735"},"PeriodicalIF":2.0,"publicationDate":"2026-05-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"145114884","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Perspectives of healthcare professionals on the purpose, design and content of a health communication passport for stroke.","authors":"Norma O' Leary, Anne Barrett, Helen Kelly","doi":"10.1080/09638288.2025.2582178","DOIUrl":"10.1080/09638288.2025.2582178","url":null,"abstract":"<p><strong>Introduction: </strong>The Irish National Stroke Strategy (2022-2027) (Health Service Executive (HSE), 2022) has recommended the introduction of a Stroke Passport. The Stroke Passport aims to streamline the transition from acute care to community care for stroke patients and their family/caregivers. However, the perspectives of Healthcare Professionals (HCPs), on the purpose, design, format, and content of a Stroke Passport are not yet known.</p><p><strong>Methods: </strong>Focus groups were conducted with HCPs who worked in an acute stroke ward, an Early Supported Discharge (ESD) team, or both. Interview data were analysed using Braun & Clark's (2022) six-step Thematic Analysis framework.</p><p><strong>Results: </strong>Twenty-two HCPs took part in one of the four focus groups (acute stroke ward <i>n</i> = 19, ESD <i>n</i> = 3). Four themes and 12 subthemes were generated from the data namely (1) Information provision: Patient Factors, (2) Information provision: External Factors, (3) Benefits and usability of a Stroke Passport and (4) Logistics of Implementation.</p><p><strong>Conclusion: </strong>The provision of a resource such as a Stroke Passport was considered an asset to patient care. However, greater attention to addressing current gaps in the Irish healthcare system, particularly digital infrastructure, during the transition from hospital to home is required. These findings have international relevance, particularly for nations facing similar barriers to healthcare digitalisation.</p>","PeriodicalId":50575,"journal":{"name":"Disability and Rehabilitation","volume":" ","pages":"2749-2767"},"PeriodicalIF":2.0,"publicationDate":"2026-05-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"145427113","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"The effectiveness of interventions to support informal stroke carers: a systematic review.","authors":"Laura Jane Farrell, Fergus Gracey, Melinda Warty, Catherine Elaine Longworth Ford","doi":"10.1080/09638288.2025.2552876","DOIUrl":"10.1080/09638288.2025.2552876","url":null,"abstract":"<p><strong>Purpose: </strong>Stroke affects one in four adults in the UK, with over a third relying on informal carers. The burden of care can have detrimental effects on the mental and physical health of carers, which may impact the rehabilitative process. Despite this, interventions have focused on the physical demands of caregiving, prioritising the stroke survivor. This review aimed to identify effective psychosocial interventions that reduce burden, strain, depression, or anxiety in informal stroke carers.</p><p><strong>Methods: </strong>A systematic review of the literature was conducted using MEDLINE, EMBASE, PsycINFO, the Cochrane Library, and PubMed, with final searches on the 8th May 2025. Randomised controlled trials (RCTs) published in English from 1980 onwards, including participants aged 18 years or older, were eligible. Risk of bias was assessed using the CASP tool for RCTs. Results were reported using narrative synthesis.</p><p><strong>Results: </strong>Seven studies were rated as having good methodological quality, fourteen moderate, and three weak. Fourteen studies reported significant findings. Interventions varied widely, with characteristics of effective interventions including skills-based problem-solving content, telephone delivery, longer duration, and increased contact time.</p><p><strong>Conclusions: </strong>Providing remote support over extended durations may improve the psychological well-being of informal stroke carers. Tentative conclusions are presented, and further research is required.</p>","PeriodicalId":50575,"journal":{"name":"Disability and Rehabilitation","volume":" ","pages":"2593-2606"},"PeriodicalIF":2.0,"publicationDate":"2026-05-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"145008556","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}