Disability and Rehabilitation最新文献_第10页

Accessibility, usability and universal design - still confusing? Harmonisation of key concepts describing person-environment interaction to create conditions for participation. 可访问性、可用性和通用设计——还困惑吗？协调描述人与环境互动的关键概念，为参与创造条件。

IF 2.1 4区医学

Disability and Rehabilitation Pub Date : 2025-04-21 DOI: 10.1080/09638288.2025.2491831

Per-Olof Hedvall, Agneta Ståhl, Susanne Iwarsson

{"title":"Accessibility, usability and universal design - still confusing? Harmonisation of key concepts describing person-environment interaction to create conditions for participation.","authors":"Per-Olof Hedvall, Agneta Ståhl, Susanne Iwarsson","doi":"10.1080/09638288.2025.2491831","DOIUrl":"https://doi.org/10.1080/09638288.2025.2491831","url":null,"abstract":"Purpose: To contribute to an in-depth understanding of how the concepts accessibility, usability, and universal design interact and can be harmonised to create conditions for participation in the 21st century.Material and methods: Ideas, empirical research, and selected literature from health science, engineering, and design constituted the material for a scientifically grounded analysis.Results: We describe recent developments, how the concepts relate to and complement each other, and the synergies they create. Reflecting on the lack of clarity in their application, we argue that definitions are crucial and that the concepts can be combined and harmonised in a synergistic entity: The participation of all is the ultimate goal of society. Universal Design is the value-based vision and approach to design grounded in human rights that, through intersectionality and involvement, should permeate all aspects of society to create the best possible conditions for participation for all citizens. Accessibility and usability are tools for operationalising and translating universal design into practice, applicable at the individual, group, and societal levels.Conclusion: Intended for implementation at all these levels, we propose a harmonised model where the concepts are explicitly defined and closely connected, with each other and the conditions to reach participation at scale.","PeriodicalId":50575,"journal":{"name":"Disability and Rehabilitation","volume":" ","pages":"1-10"},"PeriodicalIF":2.1,"publicationDate":"2025-04-21","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144042105","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Stroke survivor and caregiver perspectives in the development of a community water-based therapeutic exercise program. 中风幸存者和护理人员的观点在发展社区水为基础的治疗性运动计划。

IF 2.1 4区医学

Disability and Rehabilitation Pub Date : 2025-04-21 DOI: 10.1080/09638288.2025.2494226

O J Manning, J R Tomasone, M Finlayson, B R Ritsma, V DePaul

{"title":"Stroke survivor and caregiver perspectives in the development of a community water-based therapeutic exercise program.","authors":"O J Manning, J R Tomasone, M Finlayson, B R Ritsma, V DePaul","doi":"10.1080/09638288.2025.2494226","DOIUrl":"https://doi.org/10.1080/09638288.2025.2494226","url":null,"abstract":"Background: Water-based therapeutic exercise (WBTE) is an effective approach for stroke survivors to regain strength, mobility, and quality of life. However, existing trials have not included stroke survivors' perspectives in intervention development, which are critical to ensure a WBTE program meets the needs of stroke survivors and provides supports to enable engagement in ongoing exercise.Methods: Qualitative semi-structured interviews were completed with stroke survivors and caregivers with the aim to have them (1) provide feedback on elements of the intervention resulting from a preceding scoping review and (2) identify barriers, facilitators and other considerations that may impact implementation. Literature on the development of complex health interventions and implementation science informed interview topics. Interviews were analyzed using generic coding and thematic analysis for open-ended and closed-ended questions, respectively.Results: Stroke survivor and caregivers largely confirmed findings from the scoping review regarding intervention characteristics. Four main considerations for implementation were identified in interview analysis: (1) safety, (2) knowledge and beliefs, (3) environment, and (4) individual characteristics.Conclusion: It is essential to consider stroke survivor and caregiver perspectives when developing interventions to promote ongoing exercise following formal rehabilitation. The unique needs of each stroke survivor should be evaluated to optimize participation in WBTE.","PeriodicalId":50575,"journal":{"name":"Disability and Rehabilitation","volume":" ","pages":"1-10"},"PeriodicalIF":2.1,"publicationDate":"2025-04-21","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144051385","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Lower limb orthopedic surgery in children and adolescents with cerebral palsy is well captured using individualized Goal Attainment Scale (GAS) and Canadian Occupational Performance Measure (COPM) goals. 使用个性化目标实现量表（GAS）和加拿大职业绩效测量（COPM）目标很好地捕获了患有脑瘫的儿童和青少年的下肢骨科手术。

IF 2.1 4区医学

Disability and Rehabilitation Pub Date : 2025-04-21 DOI: 10.1080/09638288.2025.2493227

Sarah Carman, Sarah Wall, Kirsty Stewart, Anita Mudge, Matthias Axt

{"title":"Lower limb orthopedic surgery in children and adolescents with cerebral palsy is well captured using individualized Goal Attainment Scale (GAS) and Canadian Occupational Performance Measure (COPM) goals.","authors":"Sarah Carman, Sarah Wall, Kirsty Stewart, Anita Mudge, Matthias Axt","doi":"10.1080/09638288.2025.2493227","DOIUrl":"https://doi.org/10.1080/09638288.2025.2493227","url":null,"abstract":"Purpose: To investigate individualized goals set and goal attainment following lower limb orthopedic surgery for children and adolescents with cerebral palsy (CP).Materials and method: Retrospective chart review. Individualized goals set prior to orthopedic surgery using the Canadian Occupational Performance Measure (COPM) and/or Goal Attainment Scaling (GAS) with follow-up within 18 months post-surgery were analyzed. Goals were categorized into functional mobility, leisure, self-care and productivity.Results: 44 children met the inclusion criteria, mean age 12.5 years (range 4.8-18.2yrs, SD 3.9), GMFCS I = 6, II = 19, III = 6, IV = 9, V = 4. In total 111 goals were analyzed, n = 79 COPM goals and n = 32 GAS goals. Clinically and statistically positive change was demonstrated in the COPM post-surgery, with mean changes of 3.74 (<0.0001) for performance and 4.26 (p < 0.0001) for satisfaction with performance. Of the 32 GAS goals set, 22 had an expected to much greater than expected outcome.Conclusions: COPM goals demonstrated clinically and statistically significant improvement in performance and satisfaction with performance for children of all GMFCS levels post-surgery. GAS goals were not universally met. This study highlights the importance of individualized goal setting and recommends further evaluation into non-achievement of goals and the relationship between goal outcomes and surgery type.","PeriodicalId":50575,"journal":{"name":"Disability and Rehabilitation","volume":" ","pages":"1-6"},"PeriodicalIF":2.1,"publicationDate":"2025-04-21","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144059741","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Adapting and providing a virtual psychosocial intervention, iSibWorks, for siblings of youth with disabilities, a qualitative acceptability study. 适应和提供虚拟的心理社会干预，iSibWorks，为残疾青年的兄弟姐妹，定性的可接受性研究。

IF 2.1 4区医学

Disability and Rehabilitation Pub Date : 2025-04-21 DOI: 10.1080/09638288.2025.2493220

Marie Hooper, Hiba Al-Hakeem, Shona Casola, Alex Elkader, Mary E Desrocher, Shannon E Scratch

{"title":"Adapting and providing a virtual psychosocial intervention, iSibWorks, for siblings of youth with disabilities, a qualitative acceptability study.","authors":"Marie Hooper, Hiba Al-Hakeem, Shona Casola, Alex Elkader, Mary E Desrocher, Shannon E Scratch","doi":"10.1080/09638288.2025.2493220","DOIUrl":"https://doi.org/10.1080/09638288.2025.2493220","url":null,"abstract":"Purpose: The objectives included: (1) Adapt the SibWorks group intervention for use on a virtual platform with siblings; and (2) Assess the acceptability of the adapted intervention, iSibWorks.Materials and methods: Participants were youth aged 8 to 12 years who had a sibling with a disability, and their caregivers. iSibWorks was implemented with siblings on a weekly basis for six weeks. Sessions were conducted using Zoom for Healthcare and lasted approximately 60 min each. One week after the final session, siblings and their caregivers were invited to participate in separate semi-structured interviews. Qualitative content analysis of interview transcripts was utilized to assess intervention acceptability.Results: Adapting SibWorks to iSibWorks was achieved. Three categories were developed based on sibling and caregiver feedback. First, participants shared their satisfaction with the delivery of iSibWorks, reporting enjoyable experiences and valuing its interactive design. Next, participants perceived their involvement in the intervention as beneficial, due to opportunities to connect with others, learn applicable coping strategies, and improve self-esteem and mood. Finally, participants provided suggestions regarding the intervention's future delivery, content, and participation.Conclusions: iSibWorks is an acceptable virtual group intervention for siblings of youth with a disability. Families noted positive experiences and perceived benefits with intervention participation.","PeriodicalId":50575,"journal":{"name":"Disability and Rehabilitation","volume":" ","pages":"1-11"},"PeriodicalIF":2.1,"publicationDate":"2025-04-21","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144038816","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

A description of functional needs of community-dwelling stroke survivors in Rwanda: a prospective observational cohort study. 卢旺达社区居住中风幸存者的功能需求描述：一项前瞻性观察队列研究。

IF 2.1 4区医学

Disability and Rehabilitation Pub Date : 2025-04-18 DOI: 10.1080/09638288.2025.2490225

Anne Kumurenzi, Tiago S Jesus, Julie Richardson, Lehana Thabane, Jeanne Kagwiza, Lynn Cockburn, Peter Langhorne, Vincent DePaul, Rita Melifonwu, Leah Hamilton, Gerard Urimubenshi, Patrick Bidulka, Martin Kaddumukasa, Jackie Bosch

{"title":"A description of functional needs of community-dwelling stroke survivors in Rwanda: a prospective observational cohort study.","authors":"Anne Kumurenzi, Tiago S Jesus, Julie Richardson, Lehana Thabane, Jeanne Kagwiza, Lynn Cockburn, Peter Langhorne, Vincent DePaul, Rita Melifonwu, Leah Hamilton, Gerard Urimubenshi, Patrick Bidulka, Martin Kaddumukasa, Jackie Bosch","doi":"10.1080/09638288.2025.2490225","DOIUrl":"https://doi.org/10.1080/09638288.2025.2490225","url":null,"abstract":"Purpose: Stroke survivors in low- and middle-income countries have different needs compared to those in high-income countries. Our aim was to describe the unmet functional needs of Rwandan stroke survivors at discharge and three months after stroke.Methods: A study using an adapted modified Needs Assessment Questionnaire (mNAQ) was conducted at six hospitals in Rwanda. Moderate or severe needs are described using descriptive statistics and logistic regression models.Results: A total of 337 participants, with a mean age of 61 years, were recruited. Most were female (59%), and 70% had an ischemic stroke, while 71% had hypertension. At discharge, 97% of participants had moderate to severe needs. Follow-up at three months was available for 78% of participants and 22% died. At three months, over 70% of participants continued to have moderate to severe needs.Conclusions: Almost all Rwandan stroke survivors have moderate to severe needs and disability at the time of discharge, and for those that survive, over 70% continue to have moderate to severe needs at 3 months. This estimate is much higher than previously reported. Improving functioning in the community is essential for Rwandan stroke survivors.","PeriodicalId":50575,"journal":{"name":"Disability and Rehabilitation","volume":" ","pages":"1-8"},"PeriodicalIF":2.1,"publicationDate":"2025-04-18","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144059738","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

The first-time guide dog-person partnership: an interpretative phenomenological analysis. 第一次导盲犬与人的伙伴关系：解释性现象学分析。

IF 2.1 4区医学

Disability and Rehabilitation Pub Date : 2025-04-18 DOI: 10.1080/09638288.2025.2492308

Tin Su Liang, Johnathan A Smith, Dave Kent, John Fellenor

{"title":"The first-time guide dog-person partnership: an interpretative phenomenological analysis.","authors":"Tin Su Liang, Johnathan A Smith, Dave Kent, John Fellenor","doi":"10.1080/09638288.2025.2492308","DOIUrl":"https://doi.org/10.1080/09638288.2025.2492308","url":null,"abstract":"Purpose: The diverse benefits of the guide dog service for people with impaired vision have been widely described. However, research has tended not to discriminate between the perspectives of first-time service recipients and recurring clients. This study aims to gain a detailed understanding of first-time guide dog-person partnership.Material and methods: Eleven participants took part in face-to-face, semi-structured interviews. Interview accounts were processed and analyzed following the approach of Interpretative Phenomenological Analysis.Results: Three recurrent themes were identified. \"Inconsistency and unpredictability\" captures participants' early uneasiness and insecurity in responding to their dog partners' occasional guiding mistakes. \"The demand of managing control\" highlights the participants taking up dynamic and sometimes conflicting positions of control in relation to their dog partners. \"Stepping into an acquired sensibility toward the guide dog\" addresses the empathetic and embodied openness toward the dog partners that the participants come to experience with the advancement of the partnership.Conclusion: The participants' perspectives reflect that working/walking with a guide dog is neither a generic phenomenon nor an overnight achievement. Rather, the partnership entails continuous and somewhat personalized adjustment by individual participants as they navigate the unique challenges and conflicts associated with the working partnership.","PeriodicalId":50575,"journal":{"name":"Disability and Rehabilitation","volume":" ","pages":"1-17"},"PeriodicalIF":2.1,"publicationDate":"2025-04-18","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144025646","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

The effect of a healthy lifestyle on reducing the utilisation of healthcare professionals and prescription medications among stroke survivors: a longitudinal investigation using linked administrative data. 健康的生活方式对中风幸存者减少医疗保健专业人员和处方药使用的影响：一项使用相关行政数据的纵向调查。

IF 2.1 4区医学

Disability and Rehabilitation Pub Date : 2025-04-17 DOI: 10.1080/09638288.2025.2491123

Md Sazedur Rahman, Jon Adams, Wenbo Peng, David Sibbritt

{"title":"The effect of a healthy lifestyle on reducing the utilisation of healthcare professionals and prescription medications among stroke survivors: a longitudinal investigation using linked administrative data.","authors":"Md Sazedur Rahman, Jon Adams, Wenbo Peng, David Sibbritt","doi":"10.1080/09638288.2025.2491123","DOIUrl":"https://doi.org/10.1080/09638288.2025.2491123","url":null,"abstract":"Purpose: The aim of the study was to examine whether a healthy lifestyle was associated with reduced utilisation of healthcare professionals and/or prescription medications for stroke survivors.Methods: The study utilised data obtained from the 45 and Up Study, linked to the Medicare claims and Pharmaceutical Benefits Scheme data. The outcome variables were the number of times a person received care from a range of healthcare professions and the number of different prescription medications used by participants. The risk factors were smoking, alcohol consumption, physical activity, and supplement use. Generalised Estimating Equation models were employed to assess the longitudinal association between an outcome variable and risk factors.Results: Stroke survivors who engaged in moderate-to-high levels of physical activity were significantly less likely to receive care from a general practitioner, a nurse, and an allied health professional, as well as to take blood-thinning medications. Stroke survivors who smoked were more likely to receive care from a specialist doctor. Moreover, stroke survivors who consumed supplements were more likely to receive care from an allied health professional.Conclusion: The findings carry substantial implications for stroke rehabilitation and secondary prevention, highlighting the positive effects of moderate-to-high physical activity and the associated risks of smoking.","PeriodicalId":50575,"journal":{"name":"Disability and Rehabilitation","volume":" ","pages":"1-9"},"PeriodicalIF":2.1,"publicationDate":"2025-04-17","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144024493","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

How are adolescents with acquired brain injury using computer-mediated communication?: a systematic review of the literature. 获得性脑损伤青少年如何使用计算机媒介交流？对文献的系统回顾。

IF 2.1 4区医学

Disability and Rehabilitation Pub Date : 2025-04-17 DOI: 10.1080/09638288.2025.2489763

Lisa Kakonge, Sam Moghaddam, Minseo Sunny Kim, Michelle Phoenix, Briano Di Rezze, Catherine Wiseman-Hakes, Lyn S Turkstra

{"title":"How are adolescents with acquired brain injury using computer-mediated communication?: a systematic review of the literature.","authors":"Lisa Kakonge, Sam Moghaddam, Minseo Sunny Kim, Michelle Phoenix, Briano Di Rezze, Catherine Wiseman-Hakes, Lyn S Turkstra","doi":"10.1080/09638288.2025.2489763","DOIUrl":"https://doi.org/10.1080/09638288.2025.2489763","url":null,"abstract":"Purpose: To systematically review the literature on the use of computer-mediated communication (CMC) for social participation by adolescents with acquired brain injury (ABI), characterize patterns of use, perceived benefits and challenges, and existing supports for this population.Methods: Following PRISMA guidelines, we searched seven databases (CINAHL, Ovid Medline, APA PsycINFO, Allied and Complementary Medicine Database (AMED), Embase, SpeechBITE and the Cochrane Database for Systematic Reviews) and grey literature from inception to January 2024, and hand-searched references. The PCC framework guided the inclusion of English-language articles on adolescents aged 13-18 with ABI, focusing on CMC use in community or outpatient settings. Quality of the included studies was assessed using the Critical Appraisal Skills Programme (CASP) checklists. Results were synthesized using thematic analysis.Results: Nine studies met inclusion criteria. Thematic analysis identified five major themes: navigating adolescent ABI, the digital landscape, technology as a facilitator, leveraging CMC and parental involvement to support autonomy, and synergies for CMC within rehabilitation settings.Conclusion: CMC can support social participation for adolescents with ABI; however, significant knowledge gaps exist regarding access barriers and effective supports. Further research is needed to develop specialized training for rehabilitation professionals to support adolescents with ABI in accessing CMC safely.","PeriodicalId":50575,"journal":{"name":"Disability and Rehabilitation","volume":" ","pages":"1-21"},"PeriodicalIF":2.1,"publicationDate":"2025-04-17","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143993273","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Revealing the protective mindfulness-moderation on loneliness, depression, and quality of life among spinal cord injury survivors in a mixed-methods study. 在一项混合方法研究中揭示保护性正念-适度对脊髓损伤幸存者的孤独、抑郁和生活质量的影响。

IF 2.1 4区医学

Disability and Rehabilitation Pub Date : 2025-04-17 DOI: 10.1080/09638288.2025.2491120

Mengqi Li, Xiaoxiao Mei, Yan Li, Janelle Yorke, Tsz Ching Sun, Yueying Wang, Yvonne Tran, Ashley Craig

{"title":"Revealing the protective mindfulness-moderation on loneliness, depression, and quality of life among spinal cord injury survivors in a mixed-methods study.","authors":"Mengqi Li, Xiaoxiao Mei, Yan Li, Janelle Yorke, Tsz Ching Sun, Yueying Wang, Yvonne Tran, Ashley Craig","doi":"10.1080/09638288.2025.2491120","DOIUrl":"https://doi.org/10.1080/09638288.2025.2491120","url":null,"abstract":"Purpose: Loneliness, prevalent in people with spinal cord injuries (SCI), is negatively associated with mental health and quality of life. Mindfulness is a potential moderator that may buffer the negative impact of loneliness. This study aimed to explore the moderation effects of mindfulness on the relationship between loneliness, depression, and quality of life among people with SCI.Methods: We conducted an explanatory sequential mixed-methods study on SCI survivors in Hong Kong. Survey data (n = 72) including socio-demographics, mindfulness, loneliness, depression, and quality of life were analyzed using moderated regression with the SPSS PROCESS macro. Focus group interviews (n = 15) were analyzed using thematic analysis.Results: Mindfulness significantly moderated the positive association between loneliness and depression (B= -0.060, p = 0.006), and a cutoff value (>116.569) for moderation was identified. The mindfulness moderation on the relationship between loneliness and quality of life was insignificant. Three themes were generated: connectedness contributes to subjective well-being, mindful perceptions foster emotional resilience and happiness, and mindful perceptions enhance physical health and social connections.Conclusions: This study revealed the protective moderation mechanism of mindfulness in buffering the negative impacts of loneliness on depression, providing a strong theoretical foundation for the use of mindfulness-based interventions in improving mental well-being among SCI survivors.","PeriodicalId":50575,"journal":{"name":"Disability and Rehabilitation","volume":" ","pages":"1-10"},"PeriodicalIF":2.1,"publicationDate":"2025-04-17","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144042306","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Implementation considerations of key knowledge users for building online mindfulness-based interventions for people with multiple sclerosis. 为多发性硬化症患者建立在线正念干预措施的关键知识用户的实施考虑。

IF 2.1 4区医学

Disability and Rehabilitation Pub Date : 2025-04-16 DOI: 10.1080/09638288.2025.2492312

Ashvene Sureshkumar, Dorothy Luong, Sarah Munce, Mark Bayley, Monika Kastner, Jillian Scandiffio, Nanette Lai, Gregory Feng, Jiwon Oh, Andrea D Furlan, Abhimanyu Sud, Anthony Feinstein, Robert Simpson

{"title":"Implementation considerations of key knowledge users for building online mindfulness-based interventions for people with multiple sclerosis.","authors":"Ashvene Sureshkumar, Dorothy Luong, Sarah Munce, Mark Bayley, Monika Kastner, Jillian Scandiffio, Nanette Lai, Gregory Feng, Jiwon Oh, Andrea D Furlan, Abhimanyu Sud, Anthony Feinstein, Robert Simpson","doi":"10.1080/09638288.2025.2492312","DOIUrl":"https://doi.org/10.1080/09638288.2025.2492312","url":null,"abstract":"Purpose: Mindfulness-based interventions (MBIs) can effectively reduce stress in people with multiple sclerosis (PwMS). Online MBIs address access barriers, but large-scale implementation from the perspectives of key knowledge users remains understudied. This study explored the implementation considerations of PwMS, care partners, MS clinicians and MBI instructors for building online MBIs for PwMS.Materials and methods: A qualitative descriptive design with an integrated knowledge translation (iKT) approach. Virtual semi-structured interviews explored the perspectives of PwMS (n = 10), care partners (n = 3), MS clinicians (n = 8), and MBI instructors (n = 8). An inductive thematic analysis approach was used.Results: Four themes were identified: (1) daily mindfulness: structuring and conceptualizing mindfulness for PwMS, (2) unlocking access through enhanced clinician awareness and advocacy: building pathways to MBIs for PwMS, (3) validating mindfulness experiences: the importance of MBI group composition and instructor interactions for PwMS, and (4) sustained engagement: resources to create and navigate MBIs for PwMS.Conclusions: PwMS valued diverse participant groups and control over tailoring MBIs to their needs. However, guidance from a clinician may be needed to foster self-agency for PwMS. MBIs serve a multifaceted role for PwMS, extending beyond the diagnosis. Shared decision-making amongst knowledge users can enhance flexible programming of online MBIs.","PeriodicalId":50575,"journal":{"name":"Disability and Rehabilitation","volume":" ","pages":"1-13"},"PeriodicalIF":2.1,"publicationDate":"2025-04-16","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144056825","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0