Disability and Rehabilitation最新文献_第9页

'We're all on the same journey; some are just a bit further down the road than others': a qualitative study exploring peer mentors' experiences in Active Rehabilitation camps for individuals with acquired brain injury. 我们都在同一条路上，只是有些人比其他人走得更远一些"：一项定性研究，探讨同伴导师在后天性脑损伤患者积极康复营中的经历。

IF 2.1 4区医学

Disability and Rehabilitation Pub Date : 2025-05-01 Epub Date: 2024-08-26 DOI: 10.1080/09638288.2024.2394646

P Wedege, A Divanoglou, F E Abrahamsen, S Mæland

{"title":"'We're all on the same journey; some are just a bit further down the road than others': a qualitative study exploring peer mentors' experiences in Active Rehabilitation camps for individuals with acquired brain injury.","authors":"P Wedege, A Divanoglou, F E Abrahamsen, S Mæland","doi":"10.1080/09638288.2024.2394646","DOIUrl":"10.1080/09638288.2024.2394646","url":null,"abstract":"Purpose: This study aimed to explore how peer mentors experience their role and practice in Active Rehabilitation camps for individuals with acquired brain injury.Methods: Sixteen peer mentors with acquired brain injury were interviewed, and the data were analysed using Systematic text condensation. Self-determination theory was used to interpret the results.Results: Six themes were constructed: \"Altruistic motives drive peer mentors\" engagement\", \"What does it mean to be a peer mentor?\", \"Peer mentors question their qualifications\", \"Camp is tough-Nothing can compare\", \"Being a peer mentor-A part of one's rehabilitation process\", and \"Closeness and trust-A bubble of understanding\". The peer mentors reported personal benefits, such as increased knowledge about brain injury, self-esteem, motivation, physical activity, community participation, and social networks. They perceived that mutual understanding among peer mentors and mentees created a safe camp atmosphere, which led to positive experiences.Conclusion: The peer mentors benefitted from their role and described it as part of their rehabilitation journey. We recommend that peer mentors receive training before entering this position, feedback on their performance, and camp schedules that accommodate time for rest and informal meetings between mentees and peer mentors.","PeriodicalId":50575,"journal":{"name":"Disability and Rehabilitation","volume":" ","pages":"2366-2377"},"PeriodicalIF":2.1,"publicationDate":"2025-05-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142074471","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Enabling decision-making: what assists people with motor neurone disease when they consider gastrostomy insertion? 辅助决策：当运动神经元病患者考虑插入胃造瘘管时，如何帮助他们？

IF 2.1 4区医学

Disability and Rehabilitation Pub Date : 2025-05-01 Epub Date: 2024-08-28 DOI: 10.1080/09638288.2024.2395473

Anne Hogden, Julie Labra, Emma Power

{"title":"Enabling decision-making: what assists people with motor neurone disease when they consider gastrostomy insertion?","authors":"Anne Hogden, Julie Labra, Emma Power","doi":"10.1080/09638288.2024.2395473","DOIUrl":"10.1080/09638288.2024.2395473","url":null,"abstract":"Purpose: This study explores the views of people living with Motor Neurone Disease (MND) when they consider Percutaneous Endoscopic Gastrostomy (PEG) insertion, to understand their priorities and how their decisions were informed or supported.Materials and methods: The study took place in single multidisciplinary specialised MND clinic in New South Wales, Australia. Nine people with MND (5 male and 4 female; age range 52-73 years; disease duration 6-99 months) who were considering, or had recently undergone PEG insertion, participated. Semi-structured interviews were conducted with participants to examine individual's experience of decision-making about PEG. The data were synthesised and analysed thematically.Results: Three main themes and two sub-themes captured participant views on their decision-making. The first, \"What matters most to me,\" comprised optimising quality of life and maintaining family membership. The second theme explored \"Understanding PEG and the clinical pathway.\" The third theme was \"Thoughts on using a decision aid.\"Conclusions: This study provides a foundation for future studies examining the longer-term outcomes of accepting, delaying or declining PEG. Insights from this study may be applicable to decision-making for any aspect of MND care where the outcomes or benefits are uncertain.","PeriodicalId":50575,"journal":{"name":"Disability and Rehabilitation","volume":" ","pages":"2535-2542"},"PeriodicalIF":2.1,"publicationDate":"2025-05-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142082464","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Positive behaviour supports in disability and community services (PBS-DCS): a tiered model for foundational, targeted, and specialist supports. 残疾和社区服务中的积极行为支持（PBS-DCS）：基础、目标和专业支持的分层模式。

IF 2.1 4区医学

Disability and Rehabilitation Pub Date : 2025-05-01 Epub Date: 2024-09-08 DOI: 10.1080/09638288.2024.2398778

Alinka Fisher, Glenn Kelly

{"title":"Positive behaviour supports in disability and community services (PBS-DCS): a tiered model for foundational, targeted, and specialist supports.","authors":"Alinka Fisher, Glenn Kelly","doi":"10.1080/09638288.2024.2398778","DOIUrl":"10.1080/09638288.2024.2398778","url":null,"abstract":"Purpose: Positive behaviour support (PBS) is recommended as a service response to challenging behaviours. In Australia, however, there has been concern regarding PBS policy and implementation. In response, this article proposes a tiered PBS service model for disability and community settings, which is evidence-based and rights-driven.Materials and methods: Relevant literature, policy guidelines, and clinical experience are used to inform a positive behaviour support service model for community implementation.Results: The Positive Behaviour Support in Disability and Community Service (PBS-DCS) model articulates systems-wide practices that support effective PBS provision within a human rights approach. The model describes three tiers of behaviour support: Tier I (Foundational), Tier II (Targeted), and Tier III (Specialist), and considers who should deliver which intervention elements and when.Conclusions: The PBS-DCS model provides a framework to support quality PBS practice in community settings. It is proposed that a proof-of-concept model of community-based PBS should be investigated-and that this would help to ensure current practice aligns with the professional expectations of PBS and deliver high quality services to people living with disability.","PeriodicalId":50575,"journal":{"name":"Disability and Rehabilitation","volume":" ","pages":"2693-2702"},"PeriodicalIF":2.1,"publicationDate":"2025-05-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142156537","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Association between upper limb clinical tests and accelerometry metrics for arm use in daily life in children with unilateral cerebral palsy. 单侧脑瘫儿童上肢临床测试与日常生活中手臂使用的加速度测量指标之间的关联。

IF 2.1 4区医学

Disability and Rehabilitation Pub Date : 2025-05-01 Epub Date: 2024-08-27 DOI: 10.1080/09638288.2024.2393801

Jenny Hedberg-Graff, Lucian Bezuidenhout, Lena Krumlinde-Sundholm, Jenny Hallgren, David Moulaee Conradsson, Maria Hagströmer

{"title":"Association between upper limb clinical tests and accelerometry metrics for arm use in daily life in children with unilateral cerebral palsy.","authors":"Jenny Hedberg-Graff, Lucian Bezuidenhout, Lena Krumlinde-Sundholm, Jenny Hallgren, David Moulaee Conradsson, Maria Hagströmer","doi":"10.1080/09638288.2024.2393801","DOIUrl":"10.1080/09638288.2024.2393801","url":null,"abstract":"Purpose: To evaluate the association between upper-limb (UL) clinical tests and UL accelerometry-derived metrics in children with unilateral Cerebral Palsy (CP).Methods: In this cross-sectional study, twenty children with unilateral CP and Manual Ability Classification System level I-III were included. Outcomes of the Assisting Hand Assessment, Box and Block-Test and accelerometry metrics were collected in the clinical setting and in daily life. UL asymmetry index (i.e., the ratio between the well-functioning UL and the affected UL use) was evaluated in different physical activity levels and relative use of UL was evaluated during daily living. Spearman's correlation was used to determine the association between UL clinical tests and accelerometry metrics in a clinical setting and in daily life.Results: The strongest negative association was between the Assisting Hand Assessment units and accelerometry metrics during the sedentary time in daily life (rs = -0.64). The asymmetries between ULs were highest during the child's sedentary time (asymmetry index: 45.15) compared to when the child was in light (asymmetry index: 23.97) or higher intensity physical activity (asymmetry index: 13.39). The children used both ULs simultaneously for 44% of the time during daily life.Conclusion: Accelerometry metrics may provide additional objective information to clinical tests by quantifying the amount of UL movements and the amount of asymmetry between the upper limbs in daily life.","PeriodicalId":50575,"journal":{"name":"Disability and Rehabilitation","volume":" ","pages":"2436-2442"},"PeriodicalIF":2.1,"publicationDate":"2025-05-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142082463","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Physiotherapists' delivery of cognitive functional therapy in clinical practice: perceived facilitators and barriers from a socioecological perspective. 物理治疗师在临床实践中提供认知功能治疗：从社会生态学的角度来看，感知的促进因素和障碍。

IF 2.1 4区医学

Disability and Rehabilitation Pub Date : 2025-04-29 DOI: 10.1080/09638288.2025.2495199

P Simpson, R Holopainen, R Schutze, P O'Sullivan, P Kent, N-R Klem, A Smith

{"title":"Physiotherapists' delivery of cognitive functional therapy in clinical practice: perceived facilitators and barriers from a socioecological perspective.","authors":"P Simpson, R Holopainen, R Schutze, P O'Sullivan, P Kent, N-R Klem, A Smith","doi":"10.1080/09638288.2025.2495199","DOIUrl":"https://doi.org/10.1080/09638288.2025.2495199","url":null,"abstract":"Purpose: Cognitive functional therapy (CFT) is a person-centred biopsychosocial intervention for chronic low back pain, with large sustained clinical and economic benefits. This study explored the experiences of physiotherapists delivering CFT in their usual clinical practice after being trained to competency for the RESTORE clinical trial.Materials and methods: A qualitative study design was used. Fifteen primary care physiotherapists were interviewed (seven female, clinical experience 3-25 years). An inductive-deductive content analysis was used, including the Theoretical Domains Framework and socioecological model.Results: Facilitators and barriers were identified within and between individual, micro (clinical interface), meso (health service), and macro (health system) levels. Physiotherapists reported feeling competent and skilled delivering CFT. At the microsystem, this was influenced by time and their evolving professional identity. At the mesosystem, social support within the clinical community and positive patient outcomes facilitated CFT, while disunity in pain management across the health system and inadequate remuneration were barriers. Societal beliefs about pain, shifts in professional identity, and funding models influenced delivery at the macrosystem.Conclusions: This study highlights multilevel facilitators and barriers that physiotherapists perceive when implementing CFT. Targeting these may help to optimise the implementation of this promising intervention, thereby contributing to better patient outcomes.","PeriodicalId":50575,"journal":{"name":"Disability and Rehabilitation","volume":" ","pages":"1-13"},"PeriodicalIF":2.1,"publicationDate":"2025-04-29","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144004219","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Empathy heals: patients' perception after an upper limb fracture and their experiences during and after the treatment discharge: a qualitative study. 共情疗愈：上肢骨折患者的知觉与治疗出院时及出院后的体验：一项定性研究。

IF 2.1 4区医学

Disability and Rehabilitation Pub Date : 2025-04-29 DOI: 10.1080/09638288.2025.2494730

Marília M S Augusto Rizzato, Letícia Jonas de Freitas, Felipe De Souza Serenza, Anamaria Siriani de Oliveira

{"title":"Empathy heals: patients' perception after an upper limb fracture and their experiences during and after the treatment discharge: a qualitative study.","authors":"Marília M S Augusto Rizzato, Letícia Jonas de Freitas, Felipe De Souza Serenza, Anamaria Siriani de Oliveira","doi":"10.1080/09638288.2025.2494730","DOIUrl":"https://doi.org/10.1080/09638288.2025.2494730","url":null,"abstract":"Purpose: To explore patients' experiences, identify barriers and facilitators to recovery, and analyze their perceptions of treatment following upper limb fractures.Materials and methods: A qualitative study using semi-structured interviews was conducted with 25 patients (10 men, 15 women) at a tertiary referral hospital. A purposive sampling approach was used, and data analysis followed Braun and Clarke's thematic analysis method.Results: Four key themes emerged: the need for information to engage in treatment; the impact of physical and mental health on fracture patients; the role of physiotherapy in recovery; and the relationship with the healthcare team and treatment perception.Conclusion: Although patients felt supported by the healthcare team, they expressed a need for a deeper understanding of the recovery process. Empathy and the patient-physiotherapist bond were crucial for treatment adherence and successful rehabilitation.","PeriodicalId":50575,"journal":{"name":"Disability and Rehabilitation","volume":" ","pages":"1-10"},"PeriodicalIF":2.1,"publicationDate":"2025-04-29","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144023260","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Factors associated with mental health outcomes among family caregivers to adults with COVID: a scoping review. 与COVID成人家庭照顾者心理健康结果相关的因素：范围审查

IF 2.1 4区医学

Disability and Rehabilitation Pub Date : 2025-04-28 DOI: 10.1080/09638288.2025.2494223

James David Sessford, Alison Dodwell, Katarina Elms, Monique Gill, Meera Premnazeer, Orianna Scali, Michelle Roque, Jill I Cameron

{"title":"Factors associated with mental health outcomes among family caregivers to adults with COVID: a scoping review.","authors":"James David Sessford, Alison Dodwell, Katarina Elms, Monique Gill, Meera Premnazeer, Orianna Scali, Michelle Roque, Jill I Cameron","doi":"10.1080/09638288.2025.2494223","DOIUrl":"https://doi.org/10.1080/09638288.2025.2494223","url":null,"abstract":"Purpose: Family caregivers (FCGs) are essential to the health and wellbeing of people affected by COVID. Protecting mental health of FCGs is essential to sustaining their caregiving role. The objective of this scoping review was to synthesise identified risks factors and protective factors for mental health of FCGs to adults with COVID.Materials and methods: Using the Joanna Briggs Institute (JBI) methodology, the search was conducted across Medline, CINAHL, and PsycINFO. Original studies conducted since the pandemic began were included. The population was adult FCGs to adults with COVID, and studies reported mental health outcomes and related factors.Results: Of 3474 identified articles, 22 met inclusion criteria (14 quantitative, seven qualitative, one mixed-methods, 18/22 conducted in Iran). Across all study designs, risk factors included limited support, financial burden, family challenges, unpredictable nature of COVID, inexperience, isolation, and unpleasant experiences. Protective factors included accessing support services, self-reinforcement, coping strategies, professional help, and online intervention.Conclusions: Quantitative and qualitative research identified common mental health risk factors and protective factors for FCGs to adults with COVID. These factors may inform development of supports and services for FCGs to people with COVID, such as online interventions. Studies did not distinguish acute versus long COVID.","PeriodicalId":50575,"journal":{"name":"Disability and Rehabilitation","volume":" ","pages":"1-18"},"PeriodicalIF":2.1,"publicationDate":"2025-04-28","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144013584","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

What does "tele" do to rehabilitation? Thematic analysis of therapists' and families' experiences of pediatric telerehabilitation. “远程”对康复有什么作用？儿童远程康复治疗师及家庭经验的专题分析。

IF 2.1 4区医学

Disability and Rehabilitation Pub Date : 2025-04-28 DOI: 10.1080/09638288.2025.2496355

Pnina Steinberg, Naomi Gefen, Patrice L Weiss, Maurit Beeri, Janna Landa, Tal Krasovsky

{"title":"What does \"tele\" do to rehabilitation? Thematic analysis of therapists' and families' experiences of pediatric telerehabilitation.","authors":"Pnina Steinberg, Naomi Gefen, Patrice L Weiss, Maurit Beeri, Janna Landa, Tal Krasovsky","doi":"10.1080/09638288.2025.2496355","DOIUrl":"https://doi.org/10.1080/09638288.2025.2496355","url":null,"abstract":"Purpose: Pediatric telerehabilitation has become increasingly common with the advent of simple video-conferencing technologies and following the COVID-19 pandemic. This research aimed to ascertain the impact of the technology-facilitated shift in therapy format from in-person to remote (at home) settings, as experienced and described by families and therapists.Methods: Two focus groups were conducted, one with 10 families who received telerehabilitation and another with 14 therapists who provided these services for children in care at two rehabilitation institutions. A six-phase inductive thematic analysis was conducted.Results: Three themes were generated, describing the dynamic processes set in motion when remote rehabilitation was introduced: (1) reconstructing conventional therapy, (2) deconstructing conventional therapy, and (3) home as a new therapeutic opportunity.Discussion: Inspired by actor-network-theory, we contend that \"technology\", and \"home\" are added as actors when the pediatric therapeutic alliance is conducted remotely. This new therapeutic alliance network has the intended consequences of rehabilitating function and skills, but it also impacts the relationships, roles, and self-perceptions of all participants (unintended consequences). A deeper understanding of these changes facilitates a rethinking of pediatric telerehabilitation's goals and toolboxes. Practically, we suggest a remapping of roles, goals, and relationships in the light of the new therapeutic opportunities offered by telerehabilitation.","PeriodicalId":50575,"journal":{"name":"Disability and Rehabilitation","volume":" ","pages":"1-9"},"PeriodicalIF":2.1,"publicationDate":"2025-04-28","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144052233","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Self-management interventions involving care partners of individuals with neurodegenerative movement disorders: a scoping review. 涉及神经退行性运动障碍患者护理伙伴的自我管理干预：范围综述。

IF 2.1 4区医学

Disability and Rehabilitation Pub Date : 2025-04-28 DOI: 10.1080/09638288.2025.2496784

Olivia Crozier, Stephanie R Cimino, Liliana Alvarez, Andrew M Johnson, Jeff D Holmes

{"title":"Self-management interventions involving care partners of individuals with neurodegenerative movement disorders: a scoping review.","authors":"Olivia Crozier, Stephanie R Cimino, Liliana Alvarez, Andrew M Johnson, Jeff D Holmes","doi":"10.1080/09638288.2025.2496784","DOIUrl":"https://doi.org/10.1080/09638288.2025.2496784","url":null,"abstract":"Purpose: This scoping review aims to explore the components of existing self-management interventions involving care partners of individuals with neurodegenerative movement disorders (NMDs). The review seeks to describe the key components, categorize different types and approaches using the PRISMS taxonomy.Methods: A comprehensive search was conducted in five databases: SCOPUS, CINAHL, MEDLINE, PsycINFO, and Embase. Articles were included if they involved self-management interventions for adult care partners of individuals with NMDs. Data extraction was guided by the PRISMS, TEDSS and TIDieR frameworks, focusing on intervention characteristics, components, outcome measures, theories, and formats.Results: The review included 34 articles, with most interventions targeting Parkinson's Disease. Interventions varied widely in structure, delivery format, setting and content. Psychological and internal strategies were the most frequently utilized components. Notably, only 11 interventions were specifically designed for care partners.Conclusion: This scoping review provides key insights into the diverse elements of self-management interventions for NMDs, including their structure, delivery format, and components. It highlights the lack of comprehensive dyadic interventions that support both individuals with NMDs and their care partners. Future research should explore the integration of personalization, communication training and dyadic coping strategies.","PeriodicalId":50575,"journal":{"name":"Disability and Rehabilitation","volume":" ","pages":"1-20"},"PeriodicalIF":2.1,"publicationDate":"2025-04-28","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144046559","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Meta-analysis is a powerful but sensitive tool. 元分析是一个强大而敏感的工具。

IF 2.1 4区医学

Disability and Rehabilitation Pub Date : 2025-04-27 DOI: 10.1080/09638288.2025.2496357

Mikhail Saltychev

引用次数: 0