Disability and Rehabilitation最新文献_第9页

"He's my legs, I'm his rock": experiences of adaptation and change in couple relationships following spinal cord injury. “他是我的腿，我是他的磐石”：脊髓损伤后夫妻关系的适应和改变经验。

IF 2.1 4区医学

Disability and Rehabilitation Pub Date : 2025-03-06 DOI: 10.1080/09638288.2025.2472989

Luned Mair, Jennifer Moses

{"title":"\"He's my legs, I'm his rock\": experiences of adaptation and change in couple relationships following spinal cord injury.","authors":"Luned Mair, Jennifer Moses","doi":"10.1080/09638288.2025.2472989","DOIUrl":"https://doi.org/10.1080/09638288.2025.2472989","url":null,"abstract":"Purpose: Experiencing spinal cord injury (SCI) can cause several challenges and changes within romantic relationships immediately after injury and in the long-term. However, there is a lack of research concerning the formation, maintenance and adjustment of couple relationships post-SCI. This study uses qualitative methods to explore how SCI may impact on couple relationships.Methods: Four females and five males with SCI participated in a semi-structured interview. Some were with their current partner at the time of injury; others established their relationship following SCI. The data were analysed using interpretative phenomenological analysis.Results: Analysis produced themes showing that communication, negotiating and maintaining clearly defined roles, mutual support and changing definitions of intimacy were important processes for adjustment and maintenance of romantic relationships following SCI.Discussion: The study's results provide further insight into factors that are important for couples when maintaining and adjusting their relationship post-SCI. They have implications for healthcare providers, charities and other agencies supporting couples following SCI and for dyads learning to negotiate intimacy and relational challenges post-injury.","PeriodicalId":50575,"journal":{"name":"Disability and Rehabilitation","volume":" ","pages":"1-13"},"PeriodicalIF":2.1,"publicationDate":"2025-03-06","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143568767","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Reliability and validity of the Persian version of the Fatigue Scale for Motor and Cognitive Functions (P-FSMC) in Iranian people with multiple sclerosis. 波斯语版运动和认知功能疲劳量表（P-FSMC）在伊朗多发性硬化症患者中的信度和效度

IF 2.1 4区医学

Disability and Rehabilitation Pub Date : 2025-03-06 DOI: 10.1080/09638288.2025.2466716

Marzeih Heidari, Ghorban Taghizadeh, Seyed Massood Nabavi, Iris-Katharina Penner, Laleh Lajevardi, Malahat Akbarfahimi

{"title":"Reliability and validity of the Persian version of the Fatigue Scale for Motor and Cognitive Functions (P-FSMC) in Iranian people with multiple sclerosis.","authors":"Marzeih Heidari, Ghorban Taghizadeh, Seyed Massood Nabavi, Iris-Katharina Penner, Laleh Lajevardi, Malahat Akbarfahimi","doi":"10.1080/09638288.2025.2466716","DOIUrl":"https://doi.org/10.1080/09638288.2025.2466716","url":null,"abstract":"Purpose: This study evaluated the psychometric feature of the Persian version of the Fatigue Scale for Motor and Cognitive Functions (P-FSMC) in Iranian People with Multiple Sclerosis (PwMS).Materials and methods: In this cross-sectional study, 303 PwMS and 102 healthy controls participated. Structural validity was explored using exploratory factor analysis (EFA) and confirmatory factor analysis (CFA). Construct validity was determined through correlations of P-FSMC with the Fatigue Severity Scale (FSS) and the Fatigue Impact Scale (FIS), besides expected differences in P-FSMC scores and by examining score variations based on disability and depression levels. Fatigue discrimination and diagnostic accuracy between PwMS and healthy controls were evaluated.Results: The P-FSMC demonstrated excellent test-retest reliability and high internal consistency. EFA revealed two factors explaining 70.08% of the variance, with good fit model. The P-FSMC showed moderate to high correlations with FSS and FIS and distinguished different levels of disability and depression. The total score discriminated fatigue with 86.7% accuracy, 84.5% sensitivity, and 93.1% specificity. Cut-off scores for mild, moderate, and severe fatigue severity were ≥46, ≥56, and ≥66, respectively, with high sensitivity (81.52-91.42%) and specificity (80.02-99.01%).Conclusions: The P-FSMC is a reliable and valid questionnaire for assessing fatigue in Iranian PwMS.","PeriodicalId":50575,"journal":{"name":"Disability and Rehabilitation","volume":" ","pages":"1-10"},"PeriodicalIF":2.1,"publicationDate":"2025-03-06","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143568771","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Developing a new aphasia therapy for a virtual world: the virtual enhanced semantic features analysis (VESFA) intervention. 开发一种新的虚拟世界失语症治疗方法：虚拟增强语义特征分析（VESFA）干预。

IF 2.1 4区医学

Disability and Rehabilitation Pub Date : 2025-03-05 DOI: 10.1080/09638288.2025.2470401

Niamh Devane, Jane Marshall, Stephanie Wilson, Katerina Hilari

{"title":"Developing a new aphasia therapy for a virtual world: the virtual enhanced semantic features analysis (VESFA) intervention.","authors":"Niamh Devane, Jane Marshall, Stephanie Wilson, Katerina Hilari","doi":"10.1080/09638288.2025.2470401","DOIUrl":"https://doi.org/10.1080/09638288.2025.2470401","url":null,"abstract":"Purpose: Stroke research Priority Setting Partnerships identified a need for interventions that address wellbeing and communication. This paper outlines the development of a communication and wellbeing intervention for delivery in the virtual world, EVA Park, for people with aphasia called Virtual Elaborated Semantic Feature Analysis.Materials and methods: The Medical Research Council framework for developing complex interventions was followed to combine evidence (literature review), underpinning theory (semantic processing theories, framework for situated language use and learning theories) and involvement with stakeholders (four people with aphasia and three speech and language therapists) in an intervention that addresses word finding, situated language and wellbeing.Results: Evidence for the semantic word interventions and situated conversation interventions was synthesised. Theory underpinning the proposed intervention included Hebbian learning, the hub and spokes model of semantic processing, semantic spreading activation theory, the framework for situated language use and learning theories. Stakeholders with aphasia identified intervention content, an acceptable intervention regimen and gave feedback on a taster session. Speech therapists advised how the intervention could be implemented in clinical practice.Conclusion: Virtual Elaborated Semantic Feature Analysis is a user-informed, theory-based complex aphasia intervention that is expected to improve word finding, word use in situated conversation and wellbeing.","PeriodicalId":50575,"journal":{"name":"Disability and Rehabilitation","volume":" ","pages":"1-13"},"PeriodicalIF":2.1,"publicationDate":"2025-03-05","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143558712","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Capacity building for youth with disabilities: principles and key ingredients identified through a scoping review. 残疾青年能力建设：通过范围审查确定的原则和关键要素。

IF 2.1 4区医学

Disability and Rehabilitation Pub Date : 2025-03-04 DOI: 10.1080/09638288.2025.2471572

Mallory Ryan, Nahid Fathi, Michelle Phoenix, Mats Granlund, Fiona Graham, Dana Anaby

{"title":"Capacity building for youth with disabilities: principles and key ingredients identified through a scoping review.","authors":"Mallory Ryan, Nahid Fathi, Michelle Phoenix, Mats Granlund, Fiona Graham, Dana Anaby","doi":"10.1080/09638288.2025.2471572","DOIUrl":"https://doi.org/10.1080/09638288.2025.2471572","url":null,"abstract":"Purpose: This knowledge synthesis aimed to 1) Map the extent and nature of the literature on capacity building in the field of rehabilitation for transition-age youth with disabilities (12-30 years old) and 2) Describe how capacity building is conceptualized and identify principles and key ingredients underpinning this concept.Materials and methods: A scoping review using JBI methodology was employed. A search of six databases resulted in 2169 English documents; 34 were retained. Two reviewers charted and analyzed the data, supported by the third reviewer. Inductive content analysis was used to identify principles and key ingredients.Results: Seven documents provided explicit definitions of capacity or capacity building. Content analysis revealed four principles describing capacity building as: 1) individualized approach with real-world application 2) fostering a preferred future 3) youth taking ownership for change and 4) an ongoing process. Six key ingredients detail how to build capacity: 1) individualized and flexible approach in natural context 2) shared responsibility 3) use of accessible information and resources 4) cultivate strengths 5) opportunities for full participation and 6) facilitate reflection on experiences.Conclusion: Clinicians and researchers can draw upon identified capacity building principles and ingredients to support meaningful real-world outcomes for transition-age youth.","PeriodicalId":50575,"journal":{"name":"Disability and Rehabilitation","volume":" ","pages":"1-25"},"PeriodicalIF":2.1,"publicationDate":"2025-03-04","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143544250","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Development and validation of the Persian Prosthesis Embodiment Scale for Lower Limb Amputees. 下肢截肢者波斯假肢体现量表的开发和验证。

IF 2.1 4区医学

Disability and Rehabilitation Pub Date : 2025-03-04 DOI: 10.1080/09638288.2025.2471012

Alireza Khani, Robin Bekrater-Bodmann, Zahra Fattahi, Vahideh Moradi, Mehdi Rezaee, Taher Babaee

{"title":"Development and validation of the Persian Prosthesis Embodiment Scale for Lower Limb Amputees.","authors":"Alireza Khani, Robin Bekrater-Bodmann, Zahra Fattahi, Vahideh Moradi, Mehdi Rezaee, Taher Babaee","doi":"10.1080/09638288.2025.2471012","DOIUrl":"https://doi.org/10.1080/09638288.2025.2471012","url":null,"abstract":"Purpose: To investigate the psychometric features of the Persian version of the recently introduced Prosthesis Embodiment Scale for Lower Limb Amputees (PEmbS-LLA), as well its revised form.Materials and methods: In this cross-sectional study, the translation process for the PEmbS-LLA followed internationally recommended guidelines. Scale reliability was determined by assessing internal consistency and test-retest reliability (after two weeks) using Cronbach's alpha and Spearman's correlation coefficients, respectively. The validity was evaluated using the Persian Trinity Amputation and Prosthetic Experience Scales (TAPES). We compared our findings to that obtained in a German sample.Results: With a total of 126 persons with lower limb amputation participating in the study, the Persian PEmbS-LLA showed good internal consistency (Cronbach's alpha ≥0.79) and test-retest reliability (Spearman's Rho ≥0.83). There were small to moderate correlations between the Persian PEmbS-LLA and TAPES subscales. Factor analysis revealed only one component with eigenvalue larger than 1, explaining 69.72% of the variance and suggesting unidimensionality. The PEmbS-LLA total score in the Iranian sample was significantly lower than in the German sample (p < 0.01).Conclusions: The Persian PEmbS-LLA is a valid and reliable instrument. Interpretation of significant differences in prosthesis embodiment between the samples requires further research.","PeriodicalId":50575,"journal":{"name":"Disability and Rehabilitation","volume":" ","pages":"1-7"},"PeriodicalIF":2.1,"publicationDate":"2025-03-04","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143544324","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Factors influencing recovery following non-catastrophic injury in a motor vehicle accident: client perspectives. 机动车事故中影响非灾难性伤害后恢复的因素：客户观点。

IF 2.1 4区医学

Disability and Rehabilitation Pub Date : 2025-03-04 DOI: 10.1080/09638288.2025.2472982

Katelyn Bridge, Dorothy Kessler, Tricia Morrison, Michel Lacerte

{"title":"Factors influencing recovery following non-catastrophic injury in a motor vehicle accident: client perspectives.","authors":"Katelyn Bridge, Dorothy Kessler, Tricia Morrison, Michel Lacerte","doi":"10.1080/09638288.2025.2472982","DOIUrl":"https://doi.org/10.1080/09638288.2025.2472982","url":null,"abstract":"Purpose: Injuries sustained in motor vehicle accidents (MVAs) can result in persistent impairments which contribute to decreased quality of life, chronic pain, and increased rates of mental health symptoms. A more explicit understanding of the factors influencing recovery from the perspective of injured persons is needed to inform clinical decision making and rehabilitation service delivery in the Canadian context. This study addressed the following research question: From the perspective of injured persons, what factors are identified as influencing recovery following a non-catastrophic injury sustained in an MVA?Methods: This study employed a qualitative interpretive descriptive study design. Data was collected through semi-structured interviews with five occupational therapy clients with non-catastrophic injuries receiving auto insurer funded occupational therapy post-MVA. Constant comparative analysis was used for analysis of interview transcripts.Results: Prominent factors identified as influencing recovery post-MVA included accepting a new version of self, poor mental health, social support, navigating the insurance system, and access to healthcare.Conclusion: Findings from this study emphasize that recovery from an MVA must be understood within the context of the insurance system, adding to previous research which suggests that claim-related factors impact recovery following an MVA.","PeriodicalId":50575,"journal":{"name":"Disability and Rehabilitation","volume":" ","pages":"1-9"},"PeriodicalIF":2.1,"publicationDate":"2025-03-04","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143544386","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

"You need to know that you are not alone": the sustainability of community-based dance programs for people living with Parkinson's disease. “你需要知道你并不孤单”：帕金森病患者社区舞蹈项目的可持续性。

IF 2.1 4区医学

Disability and Rehabilitation Pub Date : 2025-03-04 DOI: 10.1080/09638288.2025.2472053

Morgan Senter, Orfhlaith Ni Bhriain, Amanda M Clifford

{"title":"\"You need to know that you are not alone\": the sustainability of community-based dance programs for people living with Parkinson's disease.","authors":"Morgan Senter, Orfhlaith Ni Bhriain, Amanda M Clifford","doi":"10.1080/09638288.2025.2472053","DOIUrl":"https://doi.org/10.1080/09638288.2025.2472053","url":null,"abstract":"Purpose: To identify factors contributing to the long-term sustainability of community-based dance programs for people living with Parkinson's disease in order to inform the design and development of sustainable programs.Methods: Multi-site ethnographic fieldwork was conducted at four different preexisting dance programs for people living with Parkinson's disease. Dancer, facilitator, and community stakeholder perspectives were gathered via semi-structured interviews in order to create a deeper understanding of how existing programs navigate challenges and maintain stability. Transcripts and field notes were analyzed via reflexive thematic analysis.Results: Interviews were conducted with 18 participants (eight dancers with Parkinson's disease, seven dance facilitators, one classroom assistant, and two community stakeholders). Four key areas for supporting program sustainability were identified: (1) finding an organizational structure that works, (2) balancing funding, fundraisers, and fees, (3) prioritizing dancer experience and satisfaction, and (4) recruiting and retaining committed, high-quality facilitators.Conclusion: Cultivating multiple funding sources; forging strategic connections with local Parkinson's organizations and arts institutions; building a critical mass of facilitators and administrators with diverse skillsets; offering hybrid online delivery where possible; and ensuring that the dancer experience is low-pressure, varied, and enjoyable can support the long-term sustainability of dance programs for people living with Parkinson's disease.","PeriodicalId":50575,"journal":{"name":"Disability and Rehabilitation","volume":" ","pages":"1-14"},"PeriodicalIF":2.1,"publicationDate":"2025-03-04","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143544247","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Validation and reliability of the Persian version of Gillette functional assessment questionnaire in patients with cerebral palsy. 波斯语版吉列功能评估问卷在脑瘫患者中的有效性和可靠性。

IF 2.1 4区医学

Disability and Rehabilitation Pub Date : 2025-03-04 DOI: 10.1080/09638288.2025.2472985

Saeid Fatorehchy, Razieh Sadeghian Afarani, Mehdi Rassafiani, Nazila Akbarfahimi, Mohsen Vahedi

{"title":"Validation and reliability of the Persian version of Gillette functional assessment questionnaire in patients with cerebral palsy.","authors":"Saeid Fatorehchy, Razieh Sadeghian Afarani, Mehdi Rassafiani, Nazila Akbarfahimi, Mohsen Vahedi","doi":"10.1080/09638288.2025.2472985","DOIUrl":"https://doi.org/10.1080/09638288.2025.2472985","url":null,"abstract":"Purpose: This research aimed to evaluate the content, concurrent validity and test-retest reliability of The Gillette Functional Assessment Questionnaire (FAQ) for assessing functional mobility in children and adolescents with cerebral palsy (CP).Materials and methods: The Persian FAQ were translated and verified according to international standards. To assess concurrent validity, Spearman's coefficient was used to correlate the FAQ scores with the Gross Motor Function Classification System (GMFCS) levels and Functional Mobility Scale (FMS) ratings of 148 participants. In addition, test-retest reliability was evaluated among 30 participants by calculating weighted kappa coefficients.Results: The study demonstrated almost perfect test-retest reliability (κw = 0.836, p < 0.001) and strong concurrent validity. Spearman correlation coefficients between the FAQ and GMFCS were -0.913, while correlations between the FAQ and FMS were calculated separately for each of the three FMS distances, ranging from 0.880 to 0.914 (p < 0.001).Conclusions: These findings confirm the validity and reliability of the Persian FAQ in assessing functional mobility across diverse settings for children with CP. The Persian FAQ proves to be a valuable tool for clinicians and researchers in understanding and addressing functional mobility challenges in children with CP.","PeriodicalId":50575,"journal":{"name":"Disability and Rehabilitation","volume":" ","pages":"1-6"},"PeriodicalIF":2.1,"publicationDate":"2025-03-04","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143544388","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Experiences and reflections on living with a personal assistance service: a qualitative study of people with neuromuscular disease or spinal cord injury. 个人援助服务的生活体验与反思：一项针对神经肌肉疾病或脊髓损伤患者的定性研究。

IF 2.1 4区医学

Disability and Rehabilitation Pub Date : 2025-03-01 Epub Date: 2024-06-11 DOI: 10.1080/09638288.2024.2364828

Karoline Yde Andersen, Sophie Lykkegaard Ravn, Marlene Krogh, Charlotte Handberg

{"title":"Experiences and reflections on living with a personal assistance service: a qualitative study of people with neuromuscular disease or spinal cord injury.","authors":"Karoline Yde Andersen, Sophie Lykkegaard Ravn, Marlene Krogh, Charlotte Handberg","doi":"10.1080/09638288.2024.2364828","DOIUrl":"10.1080/09638288.2024.2364828","url":null,"abstract":"Purpose: To investigate how people with neuromuscular disease or spinal cord injury experience living with a personal assistance service.Materials and methods: Qualitative study using the Interpretive Description methodology with Aaron Antonovsky's theory of sense of coherence as a theoretical framework. The method was semi-structured individual interviews (n = 3) and focus group interviews (n = 5). In all, 19 adults with neuromuscular disease (n = 13) or spinal cord injury (n = 6) participated. The study adhered to the Consolidated Criteria for Reporting Qualitative Research (COREQ) guidelines.Results: Three themes were identified to understand living with personal assistance and how this affected everyday life: 1) Making meaning of a personal assistance service, 2) Managing a personal assistance service, and 3) Living with a personal shadow. Our findings provide an understanding of living with assistance and how it, among other things, is influenced by the legislation and the local authorities' administration of the service. Participants explained this by an experience of a sense of coherence.Conclusion: For people with NMD and SCI, there are complex nuances associated with living with a personal assistance service. The findings illustrate that despite personal challenges of managing assistance services, it can meaningfully contribute to one's life by enhancing one's sense of coherence.","PeriodicalId":50575,"journal":{"name":"Disability and Rehabilitation","volume":" ","pages":"1146-1155"},"PeriodicalIF":2.1,"publicationDate":"2025-03-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141302054","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Limited consensus on the diagnosis and treatment of lymphedema after head and neck cancer: results from an International Delphi study. 头颈癌术后淋巴水肿诊断和治疗的有限共识：国际德尔菲研究的结果。

IF 2.1 4区医学

Disability and Rehabilitation Pub Date : 2025-03-01 Epub Date: 2024-06-14 DOI: 10.1080/09638288.2024.2366004

Coralie R Arends, Kaat Van Aperen, Lisette van der Molen, Michiel W M van den Brekel, Martijn M Stuiver

{"title":"Limited consensus on the diagnosis and treatment of lymphedema after head and neck cancer: results from an International Delphi study.","authors":"Coralie R Arends, Kaat Van Aperen, Lisette van der Molen, Michiel W M van den Brekel, Martijn M Stuiver","doi":"10.1080/09638288.2024.2366004","DOIUrl":"10.1080/09638288.2024.2366004","url":null,"abstract":"Purpose: To explore current practice variation and degree of consensus among international clinical experts regarding the diagnosis, classification, measurement, and treatment of head and neck lymphedema (HNL) after head and neck cancer treatment.Materials and methods: We conducted an online Delphi study. Eligible participants were clinical researchers who had (co)authored at least one publication on HNL and healthcare professionals who had treated at least five patients with HNL the last two years. The first round was to collect views about current best practices. The second and third rounds delved deeper into these topics using statements with 7-point adjective rating scales.Results: An expert panel of seventeen participants (7 clinicians, 8 researchers, and 2 others) from 8 countries completed all rounds. Regarding diagnosis, there was limited consensus on most subjects, with palpation being most endorsed. No consensus was reached on the need to use standardized classification systems. As a treatment method, complex decongestive therapy (CDT) was the most commonly used in practice and investigated in the literature. However, no consensus was reached on the importance of aspects of CDT.Conclusions: There is substantial intra- and international practice variation in the management of HNL. This calls for more robust evidence and guidelines.","PeriodicalId":50575,"journal":{"name":"Disability and Rehabilitation","volume":" ","pages":"1234-1242"},"PeriodicalIF":2.1,"publicationDate":"2025-03-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141318905","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0