Disability and Rehabilitation最新文献

{"title":"'You have to make it accessible and it's really not': priority actions to support disabled people to be physically active.","authors":"Shelby Carr, Andrew J Atkin, Karen Milton","doi":"10.1080/09638288.2024.2417032","DOIUrl":"10.1080/09638288.2024.2417032","url":null,"abstract":"<p><strong>Purpose: </strong>Disabled people are more likely than non-disabled people to be physically inactive, placing them at increased risk of ill-health. Many disabled people want to be more physically active yet feel there is inadequate support to do so. Evidence on the tangible actions that would support disabled people to be active is limited. The aim of this study was to explore the key actions that would best support disabled people's participation in physical activity.</p><p><strong>Materials and methods: </strong>Twenty-one disabled people (62% >45 years, 48% male) were purposively sampled to take part in online focus groups (2-6 participants per group). Six focus groups were undertaken using a semi-structured guide, with transcripts thematically analysed.</p><p><strong>Results: </strong>Thirteen themes were identified across four levels of the ecological model - interpersonal, institutional, community, and policy. Priority actions include mandatory training on how to support disabled people, improvements to the accessibility of facilities and equipment, improved frequency of public transport to activity centres, and actions to improve societal attitudes towards disabled people.</p><p><strong>Conclusions: </strong>A systems-based approach is needed, combining actions across levels of the ecological model, to ensure equitable access to physical activity for disabled people.</p>","PeriodicalId":50575,"journal":{"name":"Disability and Rehabilitation","volume":" ","pages":"3144-3150"},"PeriodicalIF":2.1,"publicationDate":"2025-06-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142479779","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"A qualitative description of primary health care patients' perspectives on factors influencing demand for rehabilitation in Zimbabwe.","authors":"Maria Yvonne Charumbira, Farayi Kaseke, Karina Berner, Quinette Abegail Louw","doi":"10.1080/09638288.2024.2400595","DOIUrl":"10.1080/09638288.2024.2400595","url":null,"abstract":"<p><strong>Purpose: </strong>Although the need for rehabilitation is increasing in Zimbabwe, rehabilitation remains undervalued. Currently, Zimbabwe struggles to provide rehabilitation services at primary health care. To justify the need for establishing rehabilitation at this level of care, the demand for these services needs to be understood. This study describes the factors influencing the demand for rehabilitation by adults attending primary healthcare in Zimbabwe.</p><p><strong>Materials and methods: </strong>The study used a qualitative descriptive approach. In-depth interviews were conducted with 18 purposefully selected patients in the Shona language and audio recorded. Transcribed data were translated and back-translated. Thematic analysis was done using Atlas.ti. version 22.2^®.</p><p><strong>Results: </strong>Most patients at primary health care were not actively seeking nor were they able to utilise rehabilitation services because of several factors. The factors identified from the patients' responses were categorised into (i) patient and family-, (ii) healthcare professional-, and (iii) health system-related factors. Key factors included rehabilitation awareness and availability of rehabilitation.</p><p><strong>Conclusion: </strong>The identified factors may inform rehabilitation service and policy planners in improving primary health care patients' access to rehabilitation in similar low-resource settings. Future studies may determine how the identified factors may be addressed to ensure that high need translates to high demand.</p>","PeriodicalId":50575,"journal":{"name":"Disability and Rehabilitation","volume":" ","pages":"2748-2759"},"PeriodicalIF":2.1,"publicationDate":"2025-06-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142156534","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Navigating childhood hearing loss: the experiences of parents, grandparents and siblings.","authors":"Denise Siying Loh, Rebecca L Packer, Nerina A Scarinci","doi":"10.1080/09638288.2024.2403723","DOIUrl":"10.1080/09638288.2024.2403723","url":null,"abstract":"<p><strong>Purpose: </strong>This study aimed to explore the impact of childhood hearing loss on the family unit and their resulting intervention needs.</p><p><strong>Materials & methods: </strong>Qualitative descriptive methodology was used, with in-depth interviews analysed using reflexive thematic analysis. Four family units of children with hearing loss participated in the study, including parents (<i>n</i> = 5), grandparents (<i>n</i> = 7), and siblings (<i>n</i> = 5).</p><p><strong>Results: </strong>Five themes were developed from interview data: (1) the daily grind; (2) we're all in this together; (3) family dynamics; (4) the early intervention experience and (5) personal growth and adaptations. Family members were impacted in multi-faceted ways and identified informational and emotional intervention needs, with an integrative theme highlighting the emotional toll of childhood hearing loss on families.</p><p><strong>Conclusions: </strong>Early intervention services have a crucial role in addressing third-party disability through a multi-disciplinary service delivery model that addresses the needs of all family members, beyond the child with hearing loss.</p>","PeriodicalId":50575,"journal":{"name":"Disability and Rehabilitation","volume":" ","pages":"2846-2857"},"PeriodicalIF":2.1,"publicationDate":"2025-06-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142331683","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"The effects of resistance training on health-related physical fitness of people with down syndrome - A systematic review and meta-analysis.","authors":"Stefan Stojanović, Doroteja Rančić, Tamara Ilić, Marko Aleksandrović, Stefan Đorđević, Miljan Hadžović, Bojan Jorgić","doi":"10.1080/09638288.2024.2419421","DOIUrl":"10.1080/09638288.2024.2419421","url":null,"abstract":"<p><strong>Purpose: </strong>This overview of systematic reviews with meta-analysis aimed to summarize the effects of resistance training (RT) on physical fitness of people with Down syndrom (DS).</p><p><strong>Material and methods: </strong>A comprehensive search was conducted across multiple databases, including PubMed, Google Scholar, Cochrane, MEDLINE, Web of Science, and SPORTDiscus, up until January 30th, 2024. The search included key terms like resistance training, strength training, weight training, intellectual disability, and Down syndrome. The quality of the included studies was assessed using the Cochrane Collaboration assessment tool. Eighteen articles were reviewed, with nine included in the meta-analysis.</p><p><strong>Results: </strong>The results demonstrated that RT interventions positively impacted physical fitness in individuals with DS, with significant improvements in both upper and lower limb strength and cardiorespiratory endurance, as indicated by VO_2peak (<i>p</i> = 0.000). Eleven studies were classified as high quality with low risk of bias, four had some methodological concerns, and three non-randomized studies exhibited a high risk of bias.</p><p><strong>Conclusion: </strong>RT interventions appear to significantly enhance physical fitness, including muscle strength, functional abilities, cardiorespiratory fitness, and balance, among individuals with DS, regardless of variations in training methods or program designs.</p>","PeriodicalId":50575,"journal":{"name":"Disability and Rehabilitation","volume":" ","pages":"3214-3223"},"PeriodicalIF":2.1,"publicationDate":"2025-06-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142512293","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Psychometric validation of the Chinese version of the longer-term Unmet Needs after Stroke monitoring tool for stroke patients.","authors":"Fanling Li, Chang Gao, Yan Qu, Xiaohong Hu, Yue Ma, Wenxuan Ding, Xiaomei Li, Jingjun Zhang","doi":"10.1080/09638288.2024.2422467","DOIUrl":"10.1080/09638288.2024.2422467","url":null,"abstract":"<p><strong>Purpose: </strong>This study aimed to translate, adapt, and test the psychometric properties of the Longer-term Unmet Needs after Stroke (LUNS) monitoring tool for Chinese stroke patients.</p><p><strong>Materials and methods: </strong>The LUNS monitoring tool was translated and cross-culturally adapted using the Functional Assessment of Chronic Illness Therapy translation methodology and two rounds of expert consultation. A cross-sectional study was conducted to test the validity and reliability of the Chinese version of the tool from April to October 2023 in Xi'an.</p><p><strong>Results: </strong>The Chinese version of the LUNS monitoring tool had a Cronbach's alpha value of 0.702 and the ICC was 0.732 (<i>p</i> < 0.001). The I-CVIs were above 0.90 and the S-CVI/Ave was 0.983. The factor analysis extracted eight factors, collectively accounting for 66.283% of the data variance. The correlation coefficient between the LUNS and WSO needs assessment questionnaire was 0.105 (<i>p</i> = 0.019).</p><p><strong>Conclusions: </strong>The study confirmed good reliability and validity of the Chinese version of the LUNS monitoring tool in measuring the prevalence and level of unmet need in stroke patients. It will help identify the unmet needs of stroke patients, and to guide rehabilitation service response during individual patient consultations, facilitate service development, and inform commissioning decisions.</p>","PeriodicalId":50575,"journal":{"name":"Disability and Rehabilitation","volume":" ","pages":"3452-3458"},"PeriodicalIF":2.1,"publicationDate":"2025-06-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142548676","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"An exploration of spirituality and spiritual care with rehabilitation inpatients.","authors":"Kate Fiona Jones, Julie Pryor, Megan C Best","doi":"10.1080/09638288.2024.2420848","DOIUrl":"10.1080/09638288.2024.2420848","url":null,"abstract":"<p><strong>Purpose: </strong>The aim of this study was to explore spirituality in inpatient rehabilitation care from the patient's perspective.</p><p><strong>Materials and methods: </strong>Participants were recruited from three inpatient rehabilitation services in Sydney, Australia. A qualitative research design was adopted. Demographic data collected included religious affiliation, age and gender. Participants completed a short survey, where they indicated the level of acceptability for 14 items which could be used in a spiritual history. This was followed by a semi-structured interview where participants discussed how they would like to be asked about spirituality, and by whom.</p><p><strong>Results: </strong>Eighteen participants were recruited (10 females, 8 males; mean age 68.8 years) and were undertaking either general rehabilitation (<i>n</i> = 9) or neurorehabilitation (spinal cord injury <i>n</i> = 6, traumatic brain injury <i>n</i> = 3). The impact of loss and existential struggle was evident for participants with long-lasting injuries. These participants could identify sources of spiritual strength which helped them engage with hardship and described how staff could facilitate access to these sources of strength.</p><p><strong>Conclusions: </strong>Rehabilitation inpatients are willing to explore issues around spirituality. Staff can support inpatients to access sources of spiritual strength by creating a safe and trusting environment and finding out what is most meaningful to the patient.</p>","PeriodicalId":50575,"journal":{"name":"Disability and Rehabilitation","volume":" ","pages":"3367-3374"},"PeriodicalIF":2.1,"publicationDate":"2025-06-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142548737","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Assessing cognitive impairment in chronic pain: a cross-sectional study with healthy controls.","authors":"Alejandro Arévalo-Martínez, Carlos Barbosa-Torres, Juan Manuel Moreno-Manso, María Elena García-Baamonde, César Luis Díaz-Muñoz","doi":"10.1080/09638288.2024.2425057","DOIUrl":"10.1080/09638288.2024.2425057","url":null,"abstract":"<p><strong>Purpose: </strong>The aim of this study is to clarify inconsistencies in the literature regarding the neuropsychological impact of chronic pain and determine how pain catastrophizing and pain intensity may explain cognitive impairment.</p><p><strong>Methods: </strong>This cross-sectional study involved 30 participants with chronic primary musculoskeletal pain and 30 healthy controls without pain. The instruments used were the Pain Catastrophizing Scale, the Visual Analogue Scale, the Beck Anxiety Inventory, the Beck Depression Inventory-II, the Wisconsin Card Sorting Test, the Stroop Test, and the Working Memory Index of the Wechsler Adult Intelligence Scale.</p><p><strong>Results: </strong>Chronic pain patients showed slight cognitive impairments in selective attention, sustained attention, working memory, problem solving, planning, abstract reasoning, inhibition, and resistance to interference. The data also indicate that higher levels of pain catastrophizing and pain intensity were independently associated with greater cognitive impairment in patients with pain, specifically in attention and executive functioning. Additionally, the interaction between these pain-related variables predicted further cognitive impairment.</p><p><strong>Conclusions: </strong>This research has contributed to establishing the neuropsychological profile of patients with chronic primary musculoskeletal pain and reinforces evidence of the impact of chronic pain on cognition. These findings may help guide the design of programs aimed at improving cognitive performance.</p>","PeriodicalId":50575,"journal":{"name":"Disability and Rehabilitation","volume":" ","pages":"3394-3401"},"PeriodicalIF":2.1,"publicationDate":"2025-06-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142631971","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"The role of race and ethnicity in leisure participation among children and youth with disabilities: a systematic review.","authors":"Narges Abdeahad, Sally Lindsay","doi":"10.1080/09638288.2024.2424440","DOIUrl":"10.1080/09638288.2024.2424440","url":null,"abstract":"<p><strong>Purpose: </strong>Racial and ethnic minoritized children and youth with disabilities participate less often in structured leisure activities compared to their white peers and yet, little is known about the role of race/ethnicity in their participation. The purpose of this review was to understand the role of race/ethnicity in leisure participation of children and youth with disabilities.</p><p><strong>Methods: </strong>We systematically assessed peer-reviewed studies published from 2000 to 2023 in six international databases. We independently screened and identified thirteen studies meeting our inclusion criteria.</p><p><strong>Results: </strong>Three themes emerged from our findings: (1) rates of leisure participation; (2) factors affecting leisure participation (i.e., ableism and racism; fear of harassment and safety; systemic factors; disability-related factors and intersectional factors); and (3) benefits and impact of culture on leisure participation (i.e., perceived benefits of leisure participation; perceived constraints of leisure participation; parents' advocacy; importance of family participation).</p><p><strong>Conclusions: </strong>Findings revealed how disability and racial discrimination, systemic factors, cultural preferences, and availability of financial resources all shape leisure experiences and rate of participation for racial/ethnic minoritized children and youth with disabilities. Future research should explore the impact of culture on leisure participation in more depth.</p>","PeriodicalId":50575,"journal":{"name":"Disability and Rehabilitation","volume":" ","pages":"3307-3322"},"PeriodicalIF":2.1,"publicationDate":"2025-06-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142632042","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"\"Optimizing Wellness and Neurorehabilitation with Mindfulness (OWNMindfulness)\": feasibility of a novel mindfulness-based rehabilitation intervention for Persisting Symptoms after Concussion.","authors":"Brenda C Lovette, Kathleen Doyle Lyons, Jonathan Greenberg, Ruth Palan Lopez","doi":"10.1080/09638288.2024.2423783","DOIUrl":"10.1080/09638288.2024.2423783","url":null,"abstract":"<p><strong>Background: </strong>Persisting Symptoms after Concussion (PSaC) are common and difficult to treat. Mindfulness-based interventions can support recovery but are rarely included in rehabilitative care. We developed <i>OWNMindfulness</i>, an eight-week live-video mindfulness-based group for PSaC.</p><p><strong>Purpose: </strong>To assess feasibility and preliminary clinical effects of <i>OWNMindfulness.</i></p><p><strong>Methods: </strong>Fourteen individuals with PSaC enrolled in this mixed-methods single-arm feasibility study. We assessed enrollment/retention, adherence, fidelity, instrument completion, safety, and satisfaction. We evaluated preliminary trends in the impact of the intervention on mindfulness (CAMS-R), concussion symptoms (PCSS), and QOL (WHOQOL-BREF). Qualitative analysis of exit interviews explored participants' perceptions of the effects of the intervention, and framework analysis assessed adequacy of the quantitative measures to capture perceived effects.</p><p><strong>Results: </strong>Feasibility results met a priori benchmarks. Mindfulness, concussion symptoms, and QOL scores improved (CAMS-R: <i>adjusted p</i> = 0.01, large effect size; PCSS: <i>adjusted p</i> = 0.03, moderate effect size; WHOQOL-BREF: not significant, small effect size). Qualitative analysis of interview data found benefits including validation, compassion, self-awareness, self-efficacy, concussion symptoms, resilience, life participation, social relationships, and QOL. Framework analysis demonstrated that quantitative tools captured change in concussion symptoms but did not comprehensively assess the other benefits identified through qualitative methods.</p><p><strong>Conclusions: </strong><i>OWNMindfulness</i> shows preliminary feasibility and promise for improving clinical outcomes. Results suggest the need for additional quantitative tools for comprehensive measurement of the effects and may point to potential mechanisms of action.</p>","PeriodicalId":50575,"journal":{"name":"Disability and Rehabilitation","volume":" ","pages":"3410-3420"},"PeriodicalIF":2.1,"publicationDate":"2025-06-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC12066800/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142631966","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Psychometric properties of the WHODAS 2.0 in patients with orthopedic injuries from road traffic crashes in Bangladesh.","authors":"Mohammad K Khalaf, Heather E Rosen, Nino Paichadze, Samid Siddiqi, Kazuyuki Neki, Jennifer Seager, Sudeshna Mitra, Yan Wang, A K M Fazlur Rahman, Adnan A Hyder","doi":"10.1080/09638288.2024.2425755","DOIUrl":"10.1080/09638288.2024.2425755","url":null,"abstract":"<p><strong>Purpose: </strong>Road traffic injuries (RTIs) are a leading cause of disability in low- and middle-income countries. This study assesses the psychometric properties of 12-item World Health Organization Disability Assessment Schedule (WHODAS) 2.0 among patients with orthopedic injuries from road traffic crashes in Bangladesh across two timepoints after hospital discharge.</p><p><strong>Materials and methods: </strong>Confirmatory factor analysis (CFA) assessed WHODAS 2.0 construct validity and investigated measurement invariance among a sample of RTI patients at an orthopedic hospital one month and three months post-discharge. Cronbach's alpha measured reliability.</p><p><strong>Results: </strong>A single-factor structure was identified in CFA for the one-month sample (χ2(53)=894.337, <i>p</i> < 0.001; CFI = 0.989, TLI = 0.986; SRMR = 0.052, RMSEA = 0.151) and the three-month sample (χ2(53)=630.119, <i>p</i> < 0.001; CFI = 1.000, TLI = 1.000; SRMR = 0.022, RMSEA = 0.130). Measurement invariance was supported, and internal consistency was excellent (α > 0.9) at each timepoint. Mean disability score decreased from 37.89 (out of 48, SD = 10.44) one-month post-discharge to 27.19 (SD = 18.10, <i>p</i> < 0.001) three months post-discharge indicating improvement in functional status over time.</p><p><strong>Conclusions: </strong>WHODAS 2.0 is valid and reliable for measuring disability among patients with RTIs in Bangladesh and has validity for making meaningful comparisons in disability level over time. Future research should include samples with different types of RTIs to strengthen the evidence supporting the use of the instrument.</p>","PeriodicalId":50575,"journal":{"name":"Disability and Rehabilitation","volume":" ","pages":"3421-3435"},"PeriodicalIF":2.1,"publicationDate":"2025-06-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142649550","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}