Meaghan McAllister, Daniel McAullay Noongar, Dave Parsons, Linda Cresdee Murri, Jane White, Kerri Colegate Noongar Yamatji, Rebecca Clinch Ngadju Yamatji, Angela Dos Santos Gumbaynggirr Kwiamble, Elizabeth Armstrong
{"title":"Rehabilitation after stroke for Aboriginal and Torres Strait Islander peoples and Indigenous peoples globally: a scoping review and critical content analysis.","authors":"Meaghan McAllister, Daniel McAullay Noongar, Dave Parsons, Linda Cresdee Murri, Jane White, Kerri Colegate Noongar Yamatji, Rebecca Clinch Ngadju Yamatji, Angela Dos Santos Gumbaynggirr Kwiamble, Elizabeth Armstrong","doi":"10.1080/09638288.2026.2731081","DOIUrl":"https://doi.org/10.1080/09638288.2026.2731081","url":null,"abstract":"<p><strong>Purpose: </strong>In settler-colonial contexts Indigenous peoples experience greater incidence of stroke alongside issues of access and quality of health care and rehabilitation. This scoping review aimed to understand the extent and range of the literature relating to rehabilitation after stroke for Indigenous peoples and to critically explore where values and worldviews of Indigenous peoples are considered.</p><p><strong>Materials and methods: </strong>This scoping review followed the guidance of the Joanna Briggs Institute. An Aboriginal Advisory Group guided data extraction and analysis and principles of Indigenist research framed a critical content analysis. A comprehensive search of databases and specific Indigenous health journals was conducted to identify all potential sources of evidence including grey literature.</p><p><strong>Results: </strong>This review ultimately included 108 sources. The research varied in foci and methodologies, contributing a broad awareness of multi-factorial issues in rehabilitation for Indigenous peoples. Critical content analysis revealed rehabilitation after stroke is influenced by the multiple mechanisms and ongoing consequences of colonisation, including racism and the dominance of western understandings of health in rehabilitation.</p><p><strong>Conclusion: </strong>Tenets of recovery from Indigenous peoples' perspectives were evident and future research towards realising self-determined rehabilitation is needed to transform clinical care and respond to the sovereignty of Indigenous peoples.</p>","PeriodicalId":50575,"journal":{"name":"Disability and Rehabilitation","volume":" ","pages":"1-28"},"PeriodicalIF":2.2,"publicationDate":"2026-10-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"149117876","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"Rehabilitation through a cultural lens: the experience of culturally and linguistically diverse traumatic brain injury survivors in Australia.","authors":"Halima Nalaye, Marina Downing, Jennie Ponsford","doi":"10.1080/09638288.2026.2646725","DOIUrl":"10.1080/09638288.2026.2646725","url":null,"abstract":"<p><strong>Purpose: </strong>Studies have suggested that culturally and linguistically diverse (CALD) traumatic brain injury (TBI) survivors show poorer outcomes than those from the dominant culture; the reasons for this are not well understood. Our study aimed to explore the lived experience of CALD TBI survivors in Australia, focusing on how culturally bound factors may have interacted with their rehabilitation and recovery.</p><p><strong>Materials and methods: </strong>A qualitative research design was utilised, with 17 CALD TBI survivors (aged 21-79) from 12 different countries participating in semi-structured interviews. Data were analysed using reflexive thematic analysis.</p><p><strong>Results: </strong>Six themes and 18 subthemes were identified. Participants were grateful for access to fully funded care and supportive rehabilitation clinicians. Challenges such as limited English proficiency or differences in cultural norms affected engagement. Many relied on their belief systems and familial support to guide recovery. Some acknowledged experiencing stigma and isolation attributed to limited understanding of TBI within their families and communities, as well as broader cultural differences in understanding of brain injury and mental health.</p><p><strong>Conclusion: </strong>These findings highlight the importance of understanding how culturally bound factors can shape the lived experience of CALD TBI survivors, with the potential to inform best practice to achieve optimal outcomes.</p>","PeriodicalId":50575,"journal":{"name":"Disability and Rehabilitation","volume":" ","pages":"6557-6572"},"PeriodicalIF":2.2,"publicationDate":"2026-10-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"147534272","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Marieke Nijmeijer, Katja Braam, Paul Keessen, Robert G Memelink, Linda J M Valent, Rutger Osterthun, Sonja de Groot, Anke Tigchelaar, Rita J G van den Berg-Emons, Jasmijn F M Holla
{"title":"Transmural collaboration in lifestyle care: views of healthcare professionals and individuals with spinal cord injury, cauda equina syndrome, or spina bifida.","authors":"Marieke Nijmeijer, Katja Braam, Paul Keessen, Robert G Memelink, Linda J M Valent, Rutger Osterthun, Sonja de Groot, Anke Tigchelaar, Rita J G van den Berg-Emons, Jasmijn F M Holla","doi":"10.1080/09638288.2026.2643977","DOIUrl":"10.1080/09638288.2026.2643977","url":null,"abstract":"<p><strong>Purpose: </strong>Individuals with spinal cord injury, cauda equina syndrome or spina bifida often face challenges in maintaining a healthy lifestyle. A coordinated lifestyle care pathway beginning in the rehabilitation center and continuing into primary care may support the conditions needed for sustainable lifestyle behavior. This study aimed to identify determinants to inform the development and implementation of a lifestyle care pathway.</p><p><strong>Methods: </strong>We conducted semi-structured interviews with 19 healthcare professionals and 24 individuals with spinal cord disorders. Separate topic guides were developed for each group to explore experiences, needs and views to identify determinants for implementing lifestyle care across the rehabilitation continuum and a transmural pathway. Transcripts were analyzed thematically.</p><p><strong>Results: </strong>Determinants spanned three main phases of the pathway. In rehabilitation: embedding integrated lifestyle care within treatment, defining professional responsibilities, coordinating lifestyle care through collaborative, patient-centered practices. In the transition phase: building networks between rehabilitation and primary care, integrating lifestyle support into transition processes, securing sustainable financial structures. Post-rehabilitation: increasing knowledge on condition-specific lifestyle needs, promoting a coaching attitude among professionals, strengthening collaboration and community support.</p><p><strong>Conclusions: </strong>The findings emphasize that successful delivery of lifestyle care requires coordinated, well-aligned efforts among professionals and settings throughout the entire care trajectory.</p>","PeriodicalId":50575,"journal":{"name":"Disability and Rehabilitation","volume":" ","pages":"6529-6544"},"PeriodicalIF":2.2,"publicationDate":"2026-10-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"147522692","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"<i>Can I come along?</i> Focusing on activities in the community for a better understanding of the participation of a man living with severe poststroke expressive aphasia.","authors":"Carole Anglade, Claire Croteau, Guylaine Le Dorze","doi":"10.1080/09638288.2026.2636397","DOIUrl":"10.1080/09638288.2026.2636397","url":null,"abstract":"<p><strong>Purpose: </strong>Interactions with unfamiliar communication partners-such as buying groceries or ordering in a restaurant-can be challenging for people living with aphasia. These situations remain poorly understood, particularly for individuals with severe expressive aphasia. This study aimed to explore how a man living with severe expressive aphasia managed service interactions with unfamiliar providers.</p><p><strong>Materials and methods: </strong>A case study was conducted using an ethnographic approach combining Go-Along observations, semi-structured interviews, and participant-generated discussions. Over ten weeks, the participant was accompanied during six community outings. Data included video and audio recordings of service interactions and interviews, field notes, and informal conversations. Thematic analysis was carried out through iterative coding and team-based discussion.</p><p><strong>Results: </strong>Despite severe expressive limitations, the participant engaged autonomously in varied service-based interactions. He expressed confidence in completing tasks and being perceived as a \"good client,\" relying on non-verbal communication, selective disclosure of aphasia, and markers of social competence. Confidence was context-dependent and actively maintained.</p><p><strong>Conclusions: </strong>Findings suggest that some people with severe aphasia can participate meaningfully in service-based interactions without assistance. Results underscore the importance of confidence and interactional positioning.</p>","PeriodicalId":50575,"journal":{"name":"Disability and Rehabilitation","volume":" ","pages":"6476-6487"},"PeriodicalIF":2.2,"publicationDate":"2026-10-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"147291779","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Lee Helen Haifley, Christopher John Barr, Ruth Marshall, Maayken Elizabeth Louise van den Berg
{"title":"Experiences of using immersive virtual reality in people with spinal cord injury with neuropathic pain: a mixed methods study.","authors":"Lee Helen Haifley, Christopher John Barr, Ruth Marshall, Maayken Elizabeth Louise van den Berg","doi":"10.1080/09638288.2026.2647655","DOIUrl":"10.1080/09638288.2026.2647655","url":null,"abstract":"<p><strong>Purpose: </strong>Neuropathic pain (NP) is a common and particularly disabling type of pain experienced by those with spinal cord injury (SCI), significantly impacting on injury management and recovery. This study exposed people with NP due to SCI to immersive virtual reality (IVR) and evaluated their perceptions of pain management, level of engagement and practical end-user interface considerations.</p><p><strong>Materials and methods: </strong>A single group mixed methods study. Participants took part in a single session of IVR using two different games from commercially available equipment, participated in semi-structured interviews which were thematically analysed, and reported their levels of pain pre and post exposure.</p><p><strong>Results: </strong>Eleven people with SCI participated in the study. Three main themes were identified: immersive experiences, lived experiences and physical experiences. Qualitative findings indicate a high degree of acceptability and perceived effectiveness for short-term pain management. Participants reported an average reduction in NPRS score from 4.27 ± 1.79 pre-exposure to 2.91 ± 2.12 post-exposure (<i>p</i> = 0.07).</p><p><strong>Conclusions: </strong>Findings suggest a single exposure to IVR can positively impact NP for people with SCI. Participants reported high levels of satisfaction and enjoyment. Mainstream IVR may be a potential adjunct to usual care for NP management.</p>","PeriodicalId":50575,"journal":{"name":"Disability and Rehabilitation","volume":" ","pages":"6636-6647"},"PeriodicalIF":2.2,"publicationDate":"2026-10-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"147516397","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"Embedding lived experience in healthcare education to improve accessibility and inclusion for people with disability.","authors":"Tana Cuming, Tracey Parnell, Bronwyn Connelly","doi":"10.1080/09638288.2026.2647437","DOIUrl":"10.1080/09638288.2026.2647437","url":null,"abstract":"<p><strong>Purpose: </strong>People with disability often encounter barriers in mainstream healthcare, including unmet needs, poor communication, and limited person-centred care. This study examines how participatory design can embed lived experience into healthcare education to enhance accessibility and inclusivity.</p><p><strong>Materials and methods: </strong>A qualitative descriptive design was employed, drawing on interviews with people with disability and carers who contributed as design partners to a four-year health staff education project in regional Australia. Interview data were analysed using reflexive thematic analysis to identify patterns across accounts of project involvement and perceived impact.</p><p><strong>Results: </strong>Participants reported that their involvement enhanced feelings of empowerment and respect, and they observed shifts in staff attitudes, empathy, and responsiveness. Project resources were perceived as more relevant and effective in addressing accessibility barriers. Nonetheless, participants highlighted concerns about sustaining these improvements, noting the risk of change diminishing without structural and organisational support.</p><p><strong>Conclusions: </strong>The study demonstrates that participatory design strengthens healthcare education by embedding lived experience, fostering inclusive practice, and promoting cultural change. Sustainable impact, however, requires ongoing investment in lived experience leadership, training, and system-level reform. These findings contribute to the evidence base for disability-inclusive healthcare and are relevant to rehabilitation and health system development.</p>","PeriodicalId":50575,"journal":{"name":"Disability and Rehabilitation","volume":" ","pages":"6573-6588"},"PeriodicalIF":2.2,"publicationDate":"2026-10-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"147583076","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"Using biopsychosocial models to describe and explain depression in rehabilitation medicine.","authors":"Fukumi Hiragami, Carol Ann Macdonald","doi":"10.1080/09638288.2026.2633594","DOIUrl":"10.1080/09638288.2026.2633594","url":null,"abstract":"<p><strong>Background: </strong>The Biopsychosocial (BPS) model is widely invoked in rehabilitation medicine to understand depression, yet it often remains more descriptive than explanatory.</p><p><strong>Aim: </strong>This paper explores the capacity of various BPS models to explain depression, from simple visual representations to complex developmental and dynamic systems-based frameworks.</p><p><strong>Methods: </strong>A conceptual analysis of BPS models was carried out based on criteria of descriptive and explanatory adequacy. The analysis considered how the models address mediating or moderating variables, temporal dynamics, socio-cultural specificity and risk factors.</p><p><strong>Results: </strong>Simpler BPS diagrams may lack causal clarity, while dynamic systems and attributional-behavioural-cognitive models offer richer explanatory frameworks, especially when incorporating genetic, gender, developmental history, and social contexts. Empirical complexity may limit clinical utility.</p><p><strong>Conclusion: </strong>Examining Major Depressive Disorder highlights the need for BPS models in rehabilitation medicine that move beyond static representations and support clinically useful reasoning about mechanisms, context, and change over time.</p>","PeriodicalId":50575,"journal":{"name":"Disability and Rehabilitation","volume":" ","pages":"6714-6728"},"PeriodicalIF":2.2,"publicationDate":"2026-10-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"147318888","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Alaa M Albishi, Sarah S Almhawas, Zainab S Alshammari
{"title":"Translation, cross-cultural adaptation, and psychometric properties of the Arabic version of the Rivermead Mobility Index (RMI) scale for patients with multiple sclerosis.","authors":"Alaa M Albishi, Sarah S Almhawas, Zainab S Alshammari","doi":"10.1080/09638288.2026.2636399","DOIUrl":"10.1080/09638288.2026.2636399","url":null,"abstract":"<p><strong>Purpose: </strong>The Rivermead mobility index (RMI) is a patient self-reported outcome (PRO) that measures patients' mobility. This study aimed to translate and cross-culturally adapt the (RMI) into Arabic and to assess its validity and psychometric properties.</p><p><strong>Method: </strong>RMI was translated into Arabic in accordance with international consensus guidelines. Using a cross-sectional design, one hundred patients with Multiple Sclerosis completed the Arabic version of the Rivermead Mobility Index (RMI-Ar), the Barthel Index (BI), and the Multiple Sclerosis Impact Scale-29 (MSIS-29), which includes two subscales for the physical (PHYS) and psychological (PSYCH). To assess test-retest reliability, fifty participants were asked to retake the RMI-Ar after a two-week interval.</p><p><strong>Results: </strong>The RMI-Ar was simple and understandable to patients with MS in Saudi Arabia. The internal consistency of the RMI-Ar was excellent (Cronbach's alpha = 0.908), and test-retest reliability was strong (ICC = 0.908). The minimal detectable change between the test and retest was 26.8% for RMI. Additionally, the RMI-Ar demonstrated good face and content validity, confirming that all items were relevant, clear, and concise, as well as construct validity, shown by strong positive correlations with the Barthel Index (rho = 0.73) and weak negative correlations with the MSIS-29 psychological domain (rho = -0.23). No floor or ceiling effect was observed, affirming the scale's capacity to differentiate between participation levels.</p><p><strong>Conclusion: </strong>The RMI-Ar questionnaire is a valid and reliable outcome measure to use in clinical and research settings.</p>","PeriodicalId":50575,"journal":{"name":"Disability and Rehabilitation","volume":" ","pages":"6679-6689"},"PeriodicalIF":2.2,"publicationDate":"2026-10-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"147488254","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"Exploring the aftermath of long-term challenges in patients with Transient Ischemic Attack: a qualitative study.","authors":"Caroline Mathilde Knudsen Andersen, Kristina Krogh Christensen, Kathrine Winther Nielsen, Birgitte Hede Ebbesen, Jane Andreasen","doi":"10.1080/09638288.2026.2647625","DOIUrl":"10.1080/09638288.2026.2647625","url":null,"abstract":"<p><strong>Purpose: </strong>The reported incidence of Transient Ischemic Attack (TIA) in Western countries ranges from 29 to 63 cases per 100,000 people. TIA is often considered transient, and patients are typically discharged with limited follow-up. However, one-third of patients experience long-term physical, psychological, cognitive, and social challenges affecting everyday life. This study explores the aftermath experiences of patients facing long-term challenges after TIA, focusing on significant factors for returning to everyday life.</p><p><strong>Materials and methods: </strong>Twelve individual semi-structured interviews were conducted with patients 5-10 months post-TIA. A critical hermeneutic approach guided the study, with analysis and interpretation inspired by critical theory.</p><p><strong>Results: </strong>Three themes emerged: 1) My everyday life has changed, and I still feel different; 2) I am struggling to return to my everyday life; and 3) I feel let down by the healthcare system. The findings show that people with TIA face long-term challenges that are often overlooked, making it difficult to resume everyday life. Many feel unsupported by healthcare services.</p><p><strong>Conclusion: </strong>Patients report significant and lasting impacts on their lives following TIA, often without sufficient healthcare support. These findings highlight a need for improved, tailored healthcare strategies to meet the complex needs of this patient group.</p>","PeriodicalId":50575,"journal":{"name":"Disability and Rehabilitation","volume":" ","pages":"6605-6617"},"PeriodicalIF":2.2,"publicationDate":"2026-10-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"147516429","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"Why cognition matters: perspectives in post-stroke motor rehabilitation research.","authors":"Faye Tabone, Rachel C Stockley, Nele Demeyere","doi":"10.1080/09638288.2026.2652832","DOIUrl":"10.1080/09638288.2026.2652832","url":null,"abstract":"<p><strong>Purpose: </strong>Post-stroke cognitive impairment (PSCI) is common (reported prevalence 20-80%) and can limit engagement with motor rehabilitation, yet it is often overlooked in research. This perspective aims to highlight a gap in post-stroke motor rehabilitation research: whilst cognition critically impacts post-stroke motor rehabilitation, the current evidence base does not represent individuals with PSCI.</p><p><strong>Materials: </strong>We draw on peer-reviewed literature, stroke rehabilitation guidelines and ethical guidance on including adults with impaired capacity to consent.</p><p><strong>Methods: </strong>Using a narrative synthesis of selected literature and rehabilitation guidelines, we critically appraise how cognition is addressed in guideline-informing trials, highlight common cognition-related exclusion practices, and draw on illustrative examples of inclusive approaches. Consent processes are considered as a modifiable barrier to inclusion.</p><p><strong>Results: </strong>Guideline-informing trials often exclude or underreport cognitive impairment, limiting generalisability to routine stroke populations. Barriers extend beyond capacity: studies should incorporate cognitive strategies and adopt inclusive recruitment pathways. Importantly, cognitive impairment should be distinguished from decision-making capacity, with consultee involvement where needed.</p><p><strong>Conclusions: </strong>Motor rehabilitation risks inequity and poor real-world translation unless trials routinely include and characterise PSCI. NIHR-INCLUDE emphasises inclusion of under-served groups, supporting the need for trials and service models that adapt interventions for cognitive impairment rather than excluding affected individuals.</p>","PeriodicalId":50575,"journal":{"name":"Disability and Rehabilitation","volume":" ","pages":"7033-7039"},"PeriodicalIF":2.2,"publicationDate":"2026-10-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"147640481","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}