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Rehabilitation through a cultural lens: the experience of culturally and linguistically diverse traumatic brain injury survivors in Australia. 文化视角下的康复:澳大利亚不同文化和语言的创伤性脑损伤幸存者的经历。
IF 2.2 4区 医学
Disability and Rehabilitation Pub Date : 2026-10-01 Epub Date: 2026-03-28 DOI: 10.1080/09638288.2026.2646725
Halima Nalaye, Marina Downing, Jennie Ponsford
{"title":"Rehabilitation through a cultural lens: the experience of culturally and linguistically diverse traumatic brain injury survivors in Australia.","authors":"Halima Nalaye, Marina Downing, Jennie Ponsford","doi":"10.1080/09638288.2026.2646725","DOIUrl":"10.1080/09638288.2026.2646725","url":null,"abstract":"<p><strong>Purpose: </strong>Studies have suggested that culturally and linguistically diverse (CALD) traumatic brain injury (TBI) survivors show poorer outcomes than those from the dominant culture; the reasons for this are not well understood. Our study aimed to explore the lived experience of CALD TBI survivors in Australia, focusing on how culturally bound factors may have interacted with their rehabilitation and recovery.</p><p><strong>Materials and methods: </strong>A qualitative research design was utilised, with 17 CALD TBI survivors (aged 21-79) from 12 different countries participating in semi-structured interviews. Data were analysed using reflexive thematic analysis.</p><p><strong>Results: </strong>Six themes and 18 subthemes were identified. Participants were grateful for access to fully funded care and supportive rehabilitation clinicians. Challenges such as limited English proficiency or differences in cultural norms affected engagement. Many relied on their belief systems and familial support to guide recovery. Some acknowledged experiencing stigma and isolation attributed to limited understanding of TBI within their families and communities, as well as broader cultural differences in understanding of brain injury and mental health.</p><p><strong>Conclusion: </strong>These findings highlight the importance of understanding how culturally bound factors can shape the lived experience of CALD TBI survivors, with the potential to inform best practice to achieve optimal outcomes.</p>","PeriodicalId":50575,"journal":{"name":"Disability and Rehabilitation","volume":" ","pages":"6557-6572"},"PeriodicalIF":2.2,"publicationDate":"2026-10-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"147534272","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Transmural collaboration in lifestyle care: views of healthcare professionals and individuals with spinal cord injury, cauda equina syndrome, or spina bifida. 生活方式护理中的跨壁协作:医疗保健专业人员和脊髓损伤、马尾综合征或脊柱裂患者的观点。
IF 2.2 4区 医学
Disability and Rehabilitation Pub Date : 2026-10-01 Epub Date: 2026-03-27 DOI: 10.1080/09638288.2026.2643977
Marieke Nijmeijer, Katja Braam, Paul Keessen, Robert G Memelink, Linda J M Valent, Rutger Osterthun, Sonja de Groot, Anke Tigchelaar, Rita J G van den Berg-Emons, Jasmijn F M Holla
{"title":"Transmural collaboration in lifestyle care: views of healthcare professionals and individuals with spinal cord injury, cauda equina syndrome, or spina bifida.","authors":"Marieke Nijmeijer, Katja Braam, Paul Keessen, Robert G Memelink, Linda J M Valent, Rutger Osterthun, Sonja de Groot, Anke Tigchelaar, Rita J G van den Berg-Emons, Jasmijn F M Holla","doi":"10.1080/09638288.2026.2643977","DOIUrl":"10.1080/09638288.2026.2643977","url":null,"abstract":"<p><strong>Purpose: </strong>Individuals with spinal cord injury, cauda equina syndrome or spina bifida often face challenges in maintaining a healthy lifestyle. A coordinated lifestyle care pathway beginning in the rehabilitation center and continuing into primary care may support the conditions needed for sustainable lifestyle behavior. This study aimed to identify determinants to inform the development and implementation of a lifestyle care pathway.</p><p><strong>Methods: </strong>We conducted semi-structured interviews with 19 healthcare professionals and 24 individuals with spinal cord disorders. Separate topic guides were developed for each group to explore experiences, needs and views to identify determinants for implementing lifestyle care across the rehabilitation continuum and a transmural pathway. Transcripts were analyzed thematically.</p><p><strong>Results: </strong>Determinants spanned three main phases of the pathway. In rehabilitation: embedding integrated lifestyle care within treatment, defining professional responsibilities, coordinating lifestyle care through collaborative, patient-centered practices. In the transition phase: building networks between rehabilitation and primary care, integrating lifestyle support into transition processes, securing sustainable financial structures. Post-rehabilitation: increasing knowledge on condition-specific lifestyle needs, promoting a coaching attitude among professionals, strengthening collaboration and community support.</p><p><strong>Conclusions: </strong>The findings emphasize that successful delivery of lifestyle care requires coordinated, well-aligned efforts among professionals and settings throughout the entire care trajectory.</p>","PeriodicalId":50575,"journal":{"name":"Disability and Rehabilitation","volume":" ","pages":"6529-6544"},"PeriodicalIF":2.2,"publicationDate":"2026-10-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"147522692","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Exploring barriers and facilitators to healthcare professional implementation of a stroke physical activity behaviour change intervention to inform targeted strategies: a qualitative study. 探索医疗保健专业人员实施中风身体活动行为改变干预的障碍和促进因素,以告知有针对性的策略:一项定性研究。
IF 2.2 4区 医学
Disability and Rehabilitation Pub Date : 2026-10-01 Epub Date: 2026-03-25 DOI: 10.1080/09638288.2026.2649043
Sarah A Moore, Jessica Calder, Jerry Folorunsho, Sebastian Potthoff
{"title":"Exploring barriers and facilitators to healthcare professional implementation of a stroke physical activity behaviour change intervention to inform targeted strategies: a qualitative study.","authors":"Sarah A Moore, Jessica Calder, Jerry Folorunsho, Sebastian Potthoff","doi":"10.1080/09638288.2026.2649043","DOIUrl":"10.1080/09638288.2026.2649043","url":null,"abstract":"<p><strong>Purpose: </strong>Physical activity improves outcomes after stroke, but barriers exist to healthcare professionals promoting physical activity in this population. This study explored barriers and facilitators to healthcare professional implementation of a stroke physical activity behaviour change intervention, Physical Activity Routines After Stroke (PARAS), to inform targeted implementation strategies.</p><p><strong>Methods: </strong>UK stroke rehabilitation teams participated in one-hour workshops discussing PARAS implementation. Transcripts were analysed inductively and deductively using the Theoretical Domains Framework (TDF), facilitating the mapping of behaviour change techniques (BCTs) (Behaviour Change Techniques Taxonomy V1) and implementation strategies (Expert Recommendations for Implementing Change compilation).</p><p><strong>Results: </strong>Five teams (35 healthcare professionals, predominantly physiotherapists) participated. Key themes included system and resource constraints, stakeholder and stroke survivor engagement, intervention adaptation, and knowledge and skills. Nine TDF domains were identified as central to implementation behaviour. Fifteen BCTs and 14 implementation strategies were mapped, with operationalisation methods including training, stakeholder engagement, identifying local determinants, audit, and resource adaptation.</p><p><strong>Conclusions: </strong>This is the first study applying the TDF to understand healthcare professionals' experiences implementing a physical activity behaviour change intervention post-stroke. Using the TDF enabled systematic mapping of tailored strategies supporting implementation. Findings offer practical solutions for PARAS implementation, with broader applicability across stroke rehabilitation contexts.</p>","PeriodicalId":50575,"journal":{"name":"Disability and Rehabilitation","volume":" ","pages":"6664-6678"},"PeriodicalIF":2.2,"publicationDate":"2026-10-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"147516459","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Evaluation of a multi-faceted strategy for implementation of mobility exercises using digital devices within an inpatient rehabilitation setting: phase I of a feasibility hybrid type II implementation-effectiveness randomised controlled trial. 评估在住院康复环境中使用数字设备实施活动能力练习的多方面策略:可行性混合II型实施-有效性随机对照试验的第一阶段。
IF 2.2 4区 医学
Disability and Rehabilitation Pub Date : 2026-10-01 Epub Date: 2026-04-04 DOI: 10.1080/09638288.2026.2651680
Nisha Aravind, Daniel Treacy, Sakina Chagpar, Lisa A Harvey, Joanne V Glinsky, Catherine Sherrington, Whitney Harris, Stephanie Potts, Nina Brodaty, Leanne Hassett
{"title":"Evaluation of a multi-faceted strategy for implementation of mobility exercises using digital devices within an inpatient rehabilitation setting: phase I of a feasibility hybrid type II implementation-effectiveness randomised controlled trial.","authors":"Nisha Aravind, Daniel Treacy, Sakina Chagpar, Lisa A Harvey, Joanne V Glinsky, Catherine Sherrington, Whitney Harris, Stephanie Potts, Nina Brodaty, Leanne Hassett","doi":"10.1080/09638288.2026.2651680","DOIUrl":"10.1080/09638288.2026.2651680","url":null,"abstract":"<p><strong>Purpose: </strong>Digital devices can be used to deliver mobility exercises in rehabilitation. However, the best way to implement this intervention into practice is unclear. This paper describes the feasibility of delivering strategies to implement digital devices as part of a feasibility hybrid type II implementation-effectiveness trial.</p><p><strong>Materials and methods: </strong>Physiotherapists were recruited from a public hospital rehabilitation ward. Training a clinical champion, loaning equipment and changing the gym environment, education and training, facilitation, and audit and feedback strategies were to support implementation. Feasibility outcomes were fidelity and dose of implementation strategies delivered and use of digital devices after receiving implementation strategies, collected from an implementation diary and surveys.</p><p><strong>Results: </strong>Twenty-seven physiotherapists were recruited and received implementation strategies, mostly delivered by the clinical champion. Strategies were delivered as intended (fidelity) but at a higher dosage than anticipated, including 122 h of training (dose). All physiotherapists reported using digital devices with their patients after receiving the implementation strategies.</p><p><strong>Conclusions: </strong>A multi-faceted implementation strategy was feasible to support physiotherapists to use digital devices to train mobility in rehabilitation. The clinical champion played a central role in embedding digital devices into the clinical setting.</p><p><strong>Trial registration: </strong>Australian and New Zealand Clinical Trial Registry; ACTRN12621000938808.</p>","PeriodicalId":50575,"journal":{"name":"Disability and Rehabilitation","volume":" ","pages":"6793-6805"},"PeriodicalIF":2.2,"publicationDate":"2026-10-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"147618432","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Enhancing community allied health professionals' goal-setting practices: a mixed methods study using the Theoretical Domains Framework. 加强社区联合卫生专业人员的目标设定实践:使用理论领域框架的混合方法研究。
IF 2.2 4区 医学
Disability and Rehabilitation Pub Date : 2026-10-01 Epub Date: 2026-03-27 DOI: 10.1080/09638288.2026.2649661
Sarah Brighton-Hall, Natasha A Lannin, Alison Wighton, Kylie Gough, Catherine Dean, Katharine Scrivener
{"title":"Enhancing community allied health professionals' goal-setting practices: a mixed methods study using the Theoretical Domains Framework.","authors":"Sarah Brighton-Hall, Natasha A Lannin, Alison Wighton, Kylie Gough, Catherine Dean, Katharine Scrivener","doi":"10.1080/09638288.2026.2649661","DOIUrl":"10.1080/09638288.2026.2649661","url":null,"abstract":"<p><strong>Purpose: </strong>There is evidence goal-setting promotes self-efficacy and maximises outcomes for people living with disability. Effective goal-setting in the disability sector remains challenging due to organisational structure, resource limitations and stakeholder involvement. This study aimed to explore barriers/facilitators and enhance effective goal-setting guided by the Theoretical Domains Framework (TDF) and behaviour change techniques.</p><p><strong>Materials and methods: </strong>A mixed methods implementation study was conducted within an allied health (AH) organisation (<i>n</i> = 213 staff). Goal-setting practices were assessed by auditing goals and surveying AH professionals (AHPs) at baseline. TDF guided development of tailored intervention including multimodal training/resources. The audit and survey were repeated post-intervention (6-months) and at follow-up (12-months).</p><p><strong>Results: </strong>Goals set post-intervention had improved across all criteria (measurable/meaningful/time-bound/specific). At follow-up, improvements continued. Goals were more measurable (18%, pre-50%, post-68%), meaningful (23%, pre-54%, post-77%), time-bound (29%, pre-37%, post-66%) and specific (32%, pre-37%, post-69%). AHPs reported their goal-setting to be more collaborative, holistic and multidisciplinary (13%, pre-69%, post-82%) however, goals were less often shared with the person and their support network (-11%, pre-69%, post-58%).</p><p><strong>Conclusion: </strong>Multimodal intervention improved goal setting practices in AHPs, with most gains maintained at follow-up. The TDF informed intervention could be adapted for similar organisations seeking to strengthen goal-setting practice.</p>","PeriodicalId":50575,"journal":{"name":"Disability and Rehabilitation","volume":" ","pages":"6748-6757"},"PeriodicalIF":2.2,"publicationDate":"2026-10-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"147522657","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
"Fragments that define my shape": a qualitative study of self-identity on social media after an acquired brain injury. “定义我形状的碎片”:一项获得性脑损伤后社交媒体上自我认同的定性研究。
IF 2.2 4区 医学
Disability and Rehabilitation Pub Date : 2026-10-01 Epub Date: 2026-04-06 DOI: 10.1080/09638288.2026.2651302
M T V Lam, M Brunner, C V Talbot
{"title":"\"Fragments that define my shape\": a qualitative study of self-identity on social media after an acquired brain injury.","authors":"M T V Lam, M Brunner, C V Talbot","doi":"10.1080/09638288.2026.2651302","DOIUrl":"10.1080/09638288.2026.2651302","url":null,"abstract":"<p><strong>Purpose: </strong>Self-identity is disrupted when encountering significant life changes such as an acquired brain injury (ABI). Use of social media can facilitate self-expression, providing an opportunity for identity exploration. For people living with other neurological conditions, online self-expression has been described as being beneficial for sense of self, advocacy, and connection. We aimed to learn more about online self-identity after an ABI to inform rehabilitation approaches.</p><p><strong>Materials and methods: </strong>In this qualitative study, we interviewed 11 people with ABI and used reflexive thematic analysis to explore their self-expression on social media platforms and factors that influenced this.</p><p><strong>Results: </strong>Individuals described how they used social media for belonging, support, and visibility. Some people revealed their ABI in their online identity, whilst others concealed this due to perceived stigma. Social media was used as a way to control their self-narrative in varying ways, sharing only fragments of their identity, often to appear more positive, resilient, and capable.</p><p><strong>Conclusions: </strong>Online self-identity is complex and multifaceted, with people often employing a 'balancing act' as they navigate reconstruction of self after their brain injury. Social media has potential to be used during rehabilitation for self-discovery and to showcase self-narrative, supporting people in their recovery journey.</p>","PeriodicalId":50575,"journal":{"name":"Disability and Rehabilitation","volume":" ","pages":"6780-6792"},"PeriodicalIF":2.2,"publicationDate":"2026-10-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"147624613","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Evaluating the construct validity of five concern for falling outcome measures and the concern for falling framework in people with lower limb loss using the International Classification of Functioning, Disability and Health framework. 使用国际功能、残疾和健康分类框架评估下肢丧失患者中五个关注跌倒结果测量和关注跌倒框架的结构效度。
IF 2.2 4区 医学
Disability and Rehabilitation Pub Date : 2026-10-01 Epub Date: 2026-03-11 DOI: 10.1080/09638288.2026.2639926
Kristin Nugent, Leslee Ward, Ricardo Viana, Michael W Payne, Janelle Unger, Susan W Hunter
{"title":"Evaluating the construct validity of five concern for falling outcome measures and the concern for falling framework in people with lower limb loss using the International Classification of Functioning, Disability and Health framework.","authors":"Kristin Nugent, Leslee Ward, Ricardo Viana, Michael W Payne, Janelle Unger, Susan W Hunter","doi":"10.1080/09638288.2026.2639926","DOIUrl":"10.1080/09638288.2026.2639926","url":null,"abstract":"<p><strong>Purpose: </strong>To evaluate construct validity of five concern for falling (CFF) outcome measures: 1) Locomotor Capability Index (LCI); 2) Prosthetic Limb Users Survey-Mobility (PLUS-M); 3) Consequences of Falling (COF) Scale; 4) Perceived Ability to Manage a Fall (PAMF) Scale; and 5) Perceived Control Over Falling (PCOF) Scale in people with lower limb loss (PWLLL).</p><p><strong>Methods: </strong>Two coders independently linked ICF codes to measures using established linking rules. Consensus was achieved through discussion and consultation with an additional author. Inter-rater reliability was assessed using Cohen's kappa. ICF codes were compared with established CFF construct codes using descriptive statistics, and codes from limb loss-specific measures (PLUS-M, LCI) were compared against concepts identified in generic measures (COF, PAMF, PCOF).</p><p><strong>Results: </strong>Inter-rater reliability ranged from moderate to very good (kappa values = 0.52-0.91, <i>p</i> < 0.001); values could not be calculated for the PCOF due to limited items. Forty-seven items were linked; the most common codes were d4602 (<i>n</i> = 11) ('<i>Moving around outside the home/buildings</i>') and d4551 (<i>n</i> = 9) (<i>'Climbing/going up/down steps/hills'</i>), concentrated within the Activities and Participation ICF component.</p><p><strong>Conclusion: </strong>While the ICF offers a standardized framework, greater specificity for limb loss-related mobility demands may enhance its clinical utility for PWLLL.</p>","PeriodicalId":50575,"journal":{"name":"Disability and Rehabilitation","volume":" ","pages":"6888-6900"},"PeriodicalIF":2.2,"publicationDate":"2026-10-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"147437132","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Can I come along? Focusing on activities in the community for a better understanding of the participation of a man living with severe poststroke expressive aphasia. 我能一起去吗?重点关注社区活动,以便更好地了解患有严重中风后表达性失语症的男性的参与情况。
IF 2.2 4区 医学
Disability and Rehabilitation Pub Date : 2026-10-01 Epub Date: 2026-02-25 DOI: 10.1080/09638288.2026.2636397
Carole Anglade, Claire Croteau, Guylaine Le Dorze
{"title":"<i>Can I come along?</i> Focusing on activities in the community for a better understanding of the participation of a man living with severe poststroke expressive aphasia.","authors":"Carole Anglade, Claire Croteau, Guylaine Le Dorze","doi":"10.1080/09638288.2026.2636397","DOIUrl":"10.1080/09638288.2026.2636397","url":null,"abstract":"<p><strong>Purpose: </strong>Interactions with unfamiliar communication partners-such as buying groceries or ordering in a restaurant-can be challenging for people living with aphasia. These situations remain poorly understood, particularly for individuals with severe expressive aphasia. This study aimed to explore how a man living with severe expressive aphasia managed service interactions with unfamiliar providers.</p><p><strong>Materials and methods: </strong>A case study was conducted using an ethnographic approach combining Go-Along observations, semi-structured interviews, and participant-generated discussions. Over ten weeks, the participant was accompanied during six community outings. Data included video and audio recordings of service interactions and interviews, field notes, and informal conversations. Thematic analysis was carried out through iterative coding and team-based discussion.</p><p><strong>Results: </strong>Despite severe expressive limitations, the participant engaged autonomously in varied service-based interactions. He expressed confidence in completing tasks and being perceived as a \"good client,\" relying on non-verbal communication, selective disclosure of aphasia, and markers of social competence. Confidence was context-dependent and actively maintained.</p><p><strong>Conclusions: </strong>Findings suggest that some people with severe aphasia can participate meaningfully in service-based interactions without assistance. Results underscore the importance of confidence and interactional positioning.</p>","PeriodicalId":50575,"journal":{"name":"Disability and Rehabilitation","volume":" ","pages":"6476-6487"},"PeriodicalIF":2.2,"publicationDate":"2026-10-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"147291779","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Experiences of using immersive virtual reality in people with spinal cord injury with neuropathic pain: a mixed methods study. 沉浸式虚拟现实在脊髓损伤伴神经性疼痛患者中的应用体验:一项混合方法研究。
IF 2.2 4区 医学
Disability and Rehabilitation Pub Date : 2026-10-01 Epub Date: 2026-03-25 DOI: 10.1080/09638288.2026.2647655
Lee Helen Haifley, Christopher John Barr, Ruth Marshall, Maayken Elizabeth Louise van den Berg
{"title":"Experiences of using immersive virtual reality in people with spinal cord injury with neuropathic pain: a mixed methods study.","authors":"Lee Helen Haifley, Christopher John Barr, Ruth Marshall, Maayken Elizabeth Louise van den Berg","doi":"10.1080/09638288.2026.2647655","DOIUrl":"10.1080/09638288.2026.2647655","url":null,"abstract":"<p><strong>Purpose: </strong>Neuropathic pain (NP) is a common and particularly disabling type of pain experienced by those with spinal cord injury (SCI), significantly impacting on injury management and recovery. This study exposed people with NP due to SCI to immersive virtual reality (IVR) and evaluated their perceptions of pain management, level of engagement and practical end-user interface considerations.</p><p><strong>Materials and methods: </strong>A single group mixed methods study. Participants took part in a single session of IVR using two different games from commercially available equipment, participated in semi-structured interviews which were thematically analysed, and reported their levels of pain pre and post exposure.</p><p><strong>Results: </strong>Eleven people with SCI participated in the study. Three main themes were identified: immersive experiences, lived experiences and physical experiences. Qualitative findings indicate a high degree of acceptability and perceived effectiveness for short-term pain management. Participants reported an average reduction in NPRS score from 4.27 ± 1.79 pre-exposure to 2.91 ± 2.12 post-exposure (<i>p</i> = 0.07).</p><p><strong>Conclusions: </strong>Findings suggest a single exposure to IVR can positively impact NP for people with SCI. Participants reported high levels of satisfaction and enjoyment. Mainstream IVR may be a potential adjunct to usual care for NP management.</p>","PeriodicalId":50575,"journal":{"name":"Disability and Rehabilitation","volume":" ","pages":"6636-6647"},"PeriodicalIF":2.2,"publicationDate":"2026-10-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"147516397","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Embedding lived experience in healthcare education to improve accessibility and inclusion for people with disability. 将生活经验纳入保健教育,以改善残疾人的可及性和包容性。
IF 2.2 4区 医学
Disability and Rehabilitation Pub Date : 2026-10-01 Epub Date: 2026-03-30 DOI: 10.1080/09638288.2026.2647437
Tana Cuming, Tracey Parnell, Bronwyn Connelly
{"title":"Embedding lived experience in healthcare education to improve accessibility and inclusion for people with disability.","authors":"Tana Cuming, Tracey Parnell, Bronwyn Connelly","doi":"10.1080/09638288.2026.2647437","DOIUrl":"10.1080/09638288.2026.2647437","url":null,"abstract":"<p><strong>Purpose: </strong>People with disability often encounter barriers in mainstream healthcare, including unmet needs, poor communication, and limited person-centred care. This study examines how participatory design can embed lived experience into healthcare education to enhance accessibility and inclusivity.</p><p><strong>Materials and methods: </strong>A qualitative descriptive design was employed, drawing on interviews with people with disability and carers who contributed as design partners to a four-year health staff education project in regional Australia. Interview data were analysed using reflexive thematic analysis to identify patterns across accounts of project involvement and perceived impact.</p><p><strong>Results: </strong>Participants reported that their involvement enhanced feelings of empowerment and respect, and they observed shifts in staff attitudes, empathy, and responsiveness. Project resources were perceived as more relevant and effective in addressing accessibility barriers. Nonetheless, participants highlighted concerns about sustaining these improvements, noting the risk of change diminishing without structural and organisational support.</p><p><strong>Conclusions: </strong>The study demonstrates that participatory design strengthens healthcare education by embedding lived experience, fostering inclusive practice, and promoting cultural change. Sustainable impact, however, requires ongoing investment in lived experience leadership, training, and system-level reform. These findings contribute to the evidence base for disability-inclusive healthcare and are relevant to rehabilitation and health system development.</p>","PeriodicalId":50575,"journal":{"name":"Disability and Rehabilitation","volume":" ","pages":"6573-6588"},"PeriodicalIF":2.2,"publicationDate":"2026-10-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"147583076","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
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