Disability and Rehabilitation最新文献_第4页

The Optimal Physical Recovery After Hospitalization (OPRAH) intervention to improve physical activity and protein intake after oncological surgery: a feasibility study.

IF 2.1 4区医学

Disability and Rehabilitation Pub Date : 2025-02-04 DOI: 10.1080/09638288.2025.2456583

Marijke de Leeuwerk, Suzanne Ten Dam, Marieke van der Heide, Hinke Kruizenga, Edwin Geleijn, Vincent de Groot, Marike van der Leeden, Marike van der Schaaf

{"title":"The Optimal Physical Recovery After Hospitalization (OPRAH) intervention to improve physical activity and protein intake after oncological surgery: a feasibility study.","authors":"Marijke de Leeuwerk, Suzanne Ten Dam, Marieke van der Heide, Hinke Kruizenga, Edwin Geleijn, Vincent de Groot, Marike van der Leeden, Marike van der Schaaf","doi":"10.1080/09638288.2025.2456583","DOIUrl":"https://doi.org/10.1080/09638288.2025.2456583","url":null,"abstract":"Purpose: (1) To assess the feasibility of a blended intervention, combining a smartphone app for self-monitoring of physical activity and protein intake with coaching from a physiotherapist and dietician after hospitalization and (2) to evaluate the associated study procedures.Methods: A single-arm feasibility study was performed with adult patients scheduled for curative intent gastrointestinal or lung cancer surgery. Patients were provided with a smartphone app and accelerometer one week before surgery, which they used for six weeks following discharge. In addition, patients received coaching from a physiotherapist and dietician. Feasibility was assessed by evaluating participation and completion rates, user adherence, system usability score (SUS), as well as experiences and safety, based on predefined criteria.Results: In total, 32 patients were included, with participation and completion rates of 69 and 75%, respectively. User adherence to wearing the accelerometer was deemed satisfactory (91%), while user adherence to protein intake was suboptimal (59%). The mean SUS was acceptable (73.5). Patient experiences were predominantly positive, although some patients mentioned a lack of options in the protein registration tool.Conclusion: The intervention is feasible for implementation in a larger study. To improve adherence, modifications are needed regarding self-recording of protein intake. Study procedures require minor modifications.","PeriodicalId":50575,"journal":{"name":"Disability and Rehabilitation","volume":" ","pages":"1-13"},"PeriodicalIF":2.1,"publicationDate":"2025-02-04","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143123029","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Trauma patients' perspectives on the needs, understanding and usefulness of personalized predictions for life after injury: a qualitative interview study using thematic analysis.

IF 2.1 4区医学

Disability and Rehabilitation Pub Date : 2025-02-03 DOI: 10.1080/09638288.2025.2453638

Saar Hommes, Ruben Vromans, Mariska de Jongh, Thymen Houwen, Nadine Bol, Eveline de Groot, Marjolijn Antheunis, Emiel Krahmer

{"title":"Trauma patients' perspectives on the needs, understanding and usefulness of personalized predictions for life after injury: a qualitative interview study using thematic analysis.","authors":"Saar Hommes, Ruben Vromans, Mariska de Jongh, Thymen Houwen, Nadine Bol, Eveline de Groot, Marjolijn Antheunis, Emiel Krahmer","doi":"10.1080/09638288.2025.2453638","DOIUrl":"https://doi.org/10.1080/09638288.2025.2453638","url":null,"abstract":"Purpose: To explore trauma patients' perspectives on the need, understanding and usefulness of personalized predictions after injury to assist in rehabilitation.Methods: We performed semi-structured online interviews. Participants (N = 30 trauma patients, admitted to the hospital for an injury in the past 5 years) were exposed to a support tool that provides personalized predictions on recovery after injury. Interview data were transcribed verbatim and thematically analyzed.Results: Four themes were identified. Patients expressed (1) a need for personal information and felt that information about recovery was lacking. The most important (2) reasons for needing to receive personalized predictions were reassurance and managing expectations. However, (3) understanding the prediction model was challenging. Patients expressed receiving relatively poor predictions would not undermine (4) usefulness in practice, as they would rather know about what life has in store for them so they can prepare for life after injury better.Conclusions: Trauma patients have a need for receiving personalized predictions as they perceive them to be a useful addition to clinical practice. Understanding such predictions might be challenging, so more time should be spent on how these can be communicated.","PeriodicalId":50575,"journal":{"name":"Disability and Rehabilitation","volume":" ","pages":"1-11"},"PeriodicalIF":2.1,"publicationDate":"2025-02-03","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143081987","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Outcome measurement instruments for adult brachial plexus injury: a systematic review of development and measurement properties.

IF 2.1 4区医学

Disability and Rehabilitation Pub Date : 2025-02-03 DOI: 10.1080/09638288.2025.2456588

Caroline Miller, Jane Cross, Jack Jeffrey, Christina Jerosch-Herold

{"title":"Outcome measurement instruments for adult brachial plexus injury: a systematic review of development and measurement properties.","authors":"Caroline Miller, Jane Cross, Jack Jeffrey, Christina Jerosch-Herold","doi":"10.1080/09638288.2025.2456588","DOIUrl":"https://doi.org/10.1080/09638288.2025.2456588","url":null,"abstract":"Purpose: To review candidate outcome measurement instruments (OMIs) for the core outcome set (COS) for brachial plexus injury (BPI) and identify those with the strongest measurement properties.Methods: We conducted a PRISMA-compliant systematic review to identify studies on the measurement properties of domain-specific OMIs for adult BPI. OMIs with adequate content validity were further evaluated. Two independent reviewers assessed the methodological quality of each study using the COSMIN Risk of Bias checklist and assessed overall quality using a modified GRADE approach.Results: Nineteen development/validation studies concerning nine OMIs were identified. The Brachial Assessment Tool (BrAT) and the Impact of Brachial Plexus Injury Questionnaire (IMBPIQ) (both measuring carrying out daily routine) had sufficient content validity to proceed to full evaluation. The BrAT had moderate quality evidence to support its psychometric properties. The IMBPIQ needs further research to evidence structural validity and internal consistency. The Brief Pain Inventory has strong psychometric properties in other populations and is recommended for the core measurement set (CMS) for chronic pain.Conclusions: The BrAT and the Brief Pain Inventory are recommended for inclusion in the BPI CMS. Further consensus work is needed to identify the most appropriate OMI for voluntary movement.Systematic Review Registration: PROSPERO (CRD42022307564).","PeriodicalId":50575,"journal":{"name":"Disability and Rehabilitation","volume":" ","pages":"1-11"},"PeriodicalIF":2.1,"publicationDate":"2025-02-03","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143081967","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Priority setting for multicenter research among adults with cerebral palsy: a qualitative study.

IF 2.1 4区医学

Disability and Rehabilitation Pub Date : 2025-02-03 DOI: 10.1080/09638288.2025.2459893

Cristina A Sarmiento, Mary Gannotti, Jocelyn Cohen, Edward Hurvitz

{"title":"Priority setting for multicenter research among adults with cerebral palsy: a qualitative study.","authors":"Cristina A Sarmiento, Mary Gannotti, Jocelyn Cohen, Edward Hurvitz","doi":"10.1080/09638288.2025.2459893","DOIUrl":"https://doi.org/10.1080/09638288.2025.2459893","url":null,"abstract":"Purpose: Identify priorities for adult cerebral palsy (CP) research by engaging individuals with lived experience, clinical investigators, and community leaders.Materials and methods: Qualitative descriptive study using iterative focus groups, followed by inductive thematic analysis. Participants included adults with CP and caregivers, clinical investigators, and community leaders in the CP and disability spaces. We explored research priorities among three research areas identified a priori- bone health, kidney health, and preventive care.Results: We conducted four focus groups (20 participants with lived experience; 10 clinical investigators; 9 community leaders). Most participants felt all topic areas were very important, though preventive care emerged as the top priority. We identified three overarching themes that cut across the various research areas discussed: patient and provider knowledge gaps; a precision medicine approach for adult CP care; and the need to address ableism.Conclusions: Adults with CP face unique healthcare needs and risks as they age, and the evidence base to guide their care lags significantly behind. Our study identified preventive care as the top research priority for the adult CP research agenda. Next steps in this line of research should focus on interventions to facilitate primary and preventive care interactions for adults with CP.","PeriodicalId":50575,"journal":{"name":"Disability and Rehabilitation","volume":" ","pages":"1-12"},"PeriodicalIF":2.1,"publicationDate":"2025-02-03","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143124115","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

The long road back to physical activity: the experience of people with moderate-to-severe traumatic brain injury.

IF 2.1 4区医学

Disability and Rehabilitation Pub Date : 2025-02-03 DOI: 10.1080/09638288.2025.2459338

Abby Haynes, Liam Johnson, Rhys Ashpole, Anthony Mamo, Sakina Chagpar, Gavin Williams, Kelly Clanchy, Nick Waters, Gabby Vassallo, Adam Scheinberg, Catherine Sherrington, Sean Tweedy, Kerry West, Leanne Hassett

{"title":"The long road back to physical activity: the experience of people with moderate-to-severe traumatic brain injury.","authors":"Abby Haynes, Liam Johnson, Rhys Ashpole, Anthony Mamo, Sakina Chagpar, Gavin Williams, Kelly Clanchy, Nick Waters, Gabby Vassallo, Adam Scheinberg, Catherine Sherrington, Sean Tweedy, Kerry West, Leanne Hassett","doi":"10.1080/09638288.2025.2459338","DOIUrl":"10.1080/09638288.2025.2459338","url":null,"abstract":"Purpose: People with moderate-to-severe traumatic brain injury (TBI) are frequently inactive with increased risk of higher rates of chronic health conditions, mortality and economic burden than peers without TBI. Understanding how this population experience physical activity participation may help us develop better pathways and supports to community-based physical activity.Materials and methods: Using an interpretive description approach, we conducted a secondary analysis of focus group and interview data. Themes were generated in two stages of inductive coding and refined in a workshop by the author team which comprised multidisciplinary researchers, clinicians and people with lived experience of moderate-to-severe TBI.Results: Twenty-two people with moderate-to-severe TBI took part. They experienced physical activity in diverse and often changing ways, reflecting the numerous, powerful tensions that people with TBI are striving to navigate. Four themes were identified: 1. What is my new normal?, 2. Invisible injuries, hidden needs, 3. The long road back to physical activity, and 4. Expanding horizons.Conclusions: People with moderate-to-severe TBI have to work hard to be physically active. Results indicate that physical activity promotion should include person-centred information and support, appropriate community-based options that go beyond rehabilitation, and insurance funding that recognises the value of life-long physical activity.","PeriodicalId":50575,"journal":{"name":"Disability and Rehabilitation","volume":" ","pages":"1-12"},"PeriodicalIF":2.1,"publicationDate":"2025-02-03","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143081969","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Participation at home of adults with multiple disabilities and influencing factors from their parents' perspective.

IF 2.1 4区医学

Disability and Rehabilitation Pub Date : 2025-02-03 DOI: 10.1080/09638288.2025.2460719

Gabrielle Cutnam, Elisa Iavorova Kroumova, Annie Rochette

{"title":"Participation at home of adults with multiple disabilities and influencing factors from their parents' perspective.","authors":"Gabrielle Cutnam, Elisa Iavorova Kroumova, Annie Rochette","doi":"10.1080/09638288.2025.2460719","DOIUrl":"https://doi.org/10.1080/09638288.2025.2460719","url":null,"abstract":"Purpose: To understand participation at home of adults with multiple disabilities and the indicators of their engagement from the parents' perspective as well as to explore the influencing environmental factors.Methods: A qualitative, descriptive design was used. Participants had to be the parent of an adult presenting multiple disabilities aged between 21 and 65 with no degenerative diagnosis. Semi-structured interviews were conducted using an interview guide, anchored in the Human Development Model - Disability Creation Process and developed through an iterative process. Data were analyzed using a 6-step qualitative analysis process.Results: The majority (5/8) of participating parents were aged between 56 and 61 years and were the parents of an adult with multiple disabilities aged between 21 and 41. Two themes for participation were generated: communication to build relationships, and they are disabled, but not so much whereas four themes relating to environmental factors were generated: context as a determinant of meaningful activity, the effects of the caregiver's attitude on social participation, the importance of the relationship of trust, and facilitating participation through adaptations.Conclusion: Non-verbal communication and context of realization of activities of adults with multiple disabilities should be considered as they contribute to making participation meaningful.","PeriodicalId":50575,"journal":{"name":"Disability and Rehabilitation","volume":" ","pages":"1-12"},"PeriodicalIF":2.1,"publicationDate":"2025-02-03","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143081968","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Evaluating patient-reported health outcome profiles of lower limb orthosis users.

IF 2.1 4区医学

Disability and Rehabilitation Pub Date : 2025-02-03 DOI: 10.1080/09638288.2025.2458195

Geoffrey S Balkman, Brian J Hafner, Alyssa M Bamer, Rana Salem, Sara J Morgan, Phillip M Stevens, Eric L Weber

{"title":"Evaluating patient-reported health outcome profiles of lower limb orthosis users.","authors":"Geoffrey S Balkman, Brian J Hafner, Alyssa M Bamer, Rana Salem, Sara J Morgan, Phillip M Stevens, Eric L Weber","doi":"10.1080/09638288.2025.2458195","DOIUrl":"https://doi.org/10.1080/09638288.2025.2458195","url":null,"abstract":"Purpose: To construct self-reported health outcomes profiles of lower limb orthosis users and compare scores to a normative sample representative of the United States general population.Materials and methods: A cross-sectional online survey, which included the Patient-Reported Outcomes Measurement Information System Profile v2.0 (PROMIS-29), was administered to a national sample of adult lower limb orthosis users who had at least 6 months of experience using their orthosis.Results: Relative to the U.S. general population, the 1,036 study participants report significantly worse anxiety, fatigue, pain interference, physical function, and ability to participate in social roles and activities (all p < 0.001). Differences in pain interference, physical function, and ability to participate in social roles and activities were all greater than 5 points. Subgroup analyses indicate those who also use assistive devices (e.g. canes, walkers) in addition to their orthoses generally have worse scores across multiple PROMIS domains.Conclusions: Results of this study indicate lower limb orthosis users, as a group, report significantly worse health outcomes than the general population. These findings highlight health constructs that may be important to assess in clinical care and research and provide references scores for this patient population.","PeriodicalId":50575,"journal":{"name":"Disability and Rehabilitation","volume":" ","pages":"1-9"},"PeriodicalIF":2.1,"publicationDate":"2025-02-03","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143124103","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Rehabilitation service utilization among individuals with long COVID in Laval, Canada.

IF 2.1 4区医学

Disability and Rehabilitation Pub Date : 2025-02-03 DOI: 10.1080/09638288.2025.2459894

Barbara Mazer, Stephanie Haynes, Venezia Ficara, Anna Streib, Daria St-Jean, Anne-Marie Spiridigliozzi, Rosa Minichiello, Debbie Ehrmann Feldman

{"title":"Rehabilitation service utilization among individuals with long COVID in Laval, Canada.","authors":"Barbara Mazer, Stephanie Haynes, Venezia Ficara, Anna Streib, Daria St-Jean, Anne-Marie Spiridigliozzi, Rosa Minichiello, Debbie Ehrmann Feldman","doi":"10.1080/09638288.2025.2459894","DOIUrl":"https://doi.org/10.1080/09638288.2025.2459894","url":null,"abstract":"Purpose: (1) investigate utilization of rehabilitation services (Physical Therapy [PT], Occupational Therapy [OT], Speech Language Pathology [SLP], and Psychology [Psych]) among adults with long-COVID in Laval, Quebec; (2) determine unmet needs; (3) determine factors associated with receiving services; (4) examine satisfaction.Materials and methods: Using an electronic survey, participants completed the Newcastle Post-COVID Syndrome Follow-Up Screening Questionnaire, COVID-19 Yorkshire Rehabilitation Scale, and the COVID-19 Rehabilitation Needs Questionnaire. Descriptive statistics were used to describe rehabilitation services received, reasons for unmet needs, and satisfaction. Bivariate analysis and multivariable logistic regression were used to determine factors associated with receiving services.Results: Of 1031 persons with long-COVID, 37(3.6%) accessed OT, 80(7.8%) PT, 2(0.2%) SLP, and 63(6.1%) Psych. One quarter of participants who did not access rehabilitation services reported needing them. Factors associated with receiving services included hospitalization, vaccination, comorbidities, ≥1 year since COVID-19, female, ≥55 years, married/living together, and unemployed. Reasons for unmet needs were not knowing who to turn to, no referral, and financial. Most were satisfied with the services they received (70-84%).Conclusion: The majority of participants with long-COVID did not access rehabilitation services to address their impairments and disabilities. Accessible, multidisciplinary rehabilitation services to address the functional needs of people with long COVID is needed.","PeriodicalId":50575,"journal":{"name":"Disability and Rehabilitation","volume":" ","pages":"1-9"},"PeriodicalIF":2.1,"publicationDate":"2025-02-03","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143124117","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Standardization use of the international classification of functioning, disability and health in the determination of health status in patients with post-acute COVID-19 syndrome. 在确定急性 COVID-19 后综合征患者的健康状况时，标准化使用国际功能、残疾和健康分类。

IF 2.1 4区医学

Disability and Rehabilitation Pub Date : 2025-02-01 Epub Date: 2024-06-04 DOI: 10.1080/09638288.2024.2358897

Ana Clara Gonçalves da Costa, Taís Ferreira Martins, Vinicius Zacarias Maldaner da Silva, Camila Ferreira Leite, Shamyr Sulyvan de Castro, Gerson Cipriano, Graziella França Bernardelli Cipriano

{"title":"Standardization use of the international classification of functioning, disability and health in the determination of health status in patients with post-acute COVID-19 syndrome.","authors":"Ana Clara Gonçalves da Costa, Taís Ferreira Martins, Vinicius Zacarias Maldaner da Silva, Camila Ferreira Leite, Shamyr Sulyvan de Castro, Gerson Cipriano, Graziella França Bernardelli Cipriano","doi":"10.1080/09638288.2024.2358897","DOIUrl":"10.1080/09638288.2024.2358897","url":null,"abstract":"Purpose: To propose a standardized method for the use of the International Classification of Functioning, Disability and Health (ICF) to describe the health status in Post-Acute COVID-19 Syndrome (PACS) and investigate interrater agreement in the linking process in instruments and clinical exams using the ICF categories.Materials and methods: Cross-sectional and interrater agreement study that followed the Guidelines for Reporting Reliability and Agreement Studies. Two raters performed the linking coding process in instruments of quality of life, anxiety and depression, fatigue and pulmonary function, inspiratory muscle strength and cardiopulmonary exercise testing. The codes were qualified by standards defined to each instrument and exams.Results: The instrument with the lowest Cohen's Kappa coefficient was anxiety and depression (k = 0.57). Forty ICF codes were linked to clinical instruments and exams. The fatigue instrument presented a higher degree of disability by the qualification process, from severe to complete, in the linked codes.Conclusion: The study presents a standardized method for the assessment of the health status of patients with PACS through ICF. Restriction in work performance, socialization and family relationships as well as disabilities in physical endurance, fatigue and exercise tolerance were found in the sample. The agreement between the raters was moderate to perfect, demonstrating that the method can be reproducible.","PeriodicalId":50575,"journal":{"name":"Disability and Rehabilitation","volume":" ","pages":"696-708"},"PeriodicalIF":2.1,"publicationDate":"2025-02-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141248982","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Understanding the experience of assistance dog providers supporting people with disability: an exploratory study. 了解辅助犬提供者支持残疾人的经验：一项探索性研究。

IF 2.1 4区医学

Disability and Rehabilitation Pub Date : 2025-02-01 Epub Date: 2024-05-31 DOI: 10.1080/09638288.2024.2354512

Jessica Hill, Jessie Gui, Kiara Moodley, Carlie Driscoll

{"title":"Understanding the experience of assistance dog providers supporting people with disability: an exploratory study.","authors":"Jessica Hill, Jessie Gui, Kiara Moodley, Carlie Driscoll","doi":"10.1080/09638288.2024.2354512","DOIUrl":"10.1080/09638288.2024.2354512","url":null,"abstract":"Purpose: Assistance dogs can provide many health and wellbeing benefits to people with disability, however challenges remain. Assistance dog providers provide crucial support to assistance dog handlers, however limited literature exists exploring their experience working with people with disability. This study aimed to understand the experiences of assistance dog providers working in Australia.Materials and methods: Twelve assistance dog providers participated in semi-structured interviews. Inductive thematic analysis was used to analyse the transcripts.Results: Five themes emerged describing the participant experience. Theme one discussed instances of discrimination experienced by assistance dog handlers, stemming from the lack of public awareness. Theme two captured the inconsistencies regarding the training of assistance dog providers with a specific focus on the gaps in the disability specific knowledge. Theme three emphasised the lack of clarity regarding legislation outlining the training requirements of assistance dog providers and the public access rights of the handlers. Theme four emphasised funding barriers, and theme five discussed barriers to interprofessional collaboration between assistance dog providers and allied health professionals.Conclusion: These findings contribute to understanding the current barriers experienced by assistance dog providers and assistance dog handlers, as well as the legislative changes required to better support people with disability.","PeriodicalId":50575,"journal":{"name":"Disability and Rehabilitation","volume":" ","pages":"625-632"},"PeriodicalIF":2.1,"publicationDate":"2025-02-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141184992","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0