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Development and evaluation of an online professional development course to support delivery of tiered school-based rehabilitation services. 开发和评估在线专业发展课程,以支持提供分层校本康复服务。
IF 2.1 4区 医学
Disability and Rehabilitation Pub Date : 2025-06-01 Epub Date: 2024-10-26 DOI: 10.1080/09638288.2024.2417769
Basiliki Passaretti, Cheryl Missiuna, Anthony J Levinson, Lyn S Turkstra, Tiffany Gallagher, Wenonah Campbell
{"title":"Development and evaluation of an online professional development course to support delivery of tiered school-based rehabilitation services.","authors":"Basiliki Passaretti, Cheryl Missiuna, Anthony J Levinson, Lyn S Turkstra, Tiffany Gallagher, Wenonah Campbell","doi":"10.1080/09638288.2024.2417769","DOIUrl":"10.1080/09638288.2024.2417769","url":null,"abstract":"<p><strong>Purpose: </strong>The <i>Facilitating Integration of Rehabilitation Services Through Training (FIRST) Course</i> provides online professional development on tiered service delivery models for rehabilitation professionals working in education settings. Created by content and e-learning experts, this study describes our use of the Analysis, Design, Development, Implementation, Evaluation (ADDIE) instructional design model and the Successive Approximation Model (SAM) to develop, implement, and evaluate the <i>FIRST Course</i>, and reports the findings of an initial program evaluation.</p><p><strong>Method: </strong>Rehabilitation professionals who completed the <i>FIRST Course</i> were invited to complete a cross-sectional survey to evaluate its utility.</p><p><strong>Results: </strong>Between May 1, 2020, and August 11, 2023, 314 occupational therapists, 54 physiotherapists, and 170 speech-language pathologists completed the online course and survey. Respondents perceived the <i>FIRST Course</i> content to be relevant to their practice and to meet their learning needs regarding tiered services in education settings. Most respondents viewed the course positively and would recommend it to colleagues. More experienced respondents suggested a need for training on tiered service delivery models beyond an introductory level.</p><p><strong>Conclusions: </strong>The ADDIE and SAM instructional design models were successfully applied to develop, implement, and evaluate online professional development for school-based rehabilitation professionals who wish to learn about tiered service delivery models.</p>","PeriodicalId":50575,"journal":{"name":"Disability and Rehabilitation","volume":" ","pages":"3201-3213"},"PeriodicalIF":2.1,"publicationDate":"2025-06-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142512281","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Investigating the reporting of participant characteristics relating to health equity in randomised controlled trials of non-pharmacological interventions for post-stroke anxiety and/or depression: a scoping review. 调查中风后焦虑和/或抑郁非药物干预随机对照试验中与健康公平相关的参与者特征报告:范围界定综述。
IF 2.1 4区 医学
Disability and Rehabilitation Pub Date : 2025-06-01 Epub Date: 2024-10-11 DOI: 10.1080/09638288.2024.2407506
Georgina Ottaway, Crina Ene, Fergus Gracey, Niall M Broomfield
{"title":"Investigating the reporting of participant characteristics relating to health equity in randomised controlled trials of non-pharmacological interventions for post-stroke anxiety and/or depression: a scoping review.","authors":"Georgina Ottaway, Crina Ene, Fergus Gracey, Niall M Broomfield","doi":"10.1080/09638288.2024.2407506","DOIUrl":"10.1080/09638288.2024.2407506","url":null,"abstract":"<p><strong>Purpose: </strong>The review aims to identify what characteristics are reported in randomised controlled trials for the non-pharmacological management of post-stroke anxiety and/or depression and whether research has explored the correlation between participant characteristics and their outcomes.</p><p><strong>Methods: </strong>A comprehensive systematic search was completed of five databases: CINAHL, Medline, PsychInfo, Web of Science, and The World Health Organisation. Google Scholar was also accessed. The reporting of participant characteristics was assessed by adapting the PROGRESS-Plus framework, a research framework of protected characteristics known to impact health equity (such as, age).</p><p><strong>Results: </strong>19 papers (<i>n</i> = 2187) were included. There was generally poor reporting of characteristics associated with an increased likelihood of post-stroke anxiety and/or depression. All studies reported the gender/sex of participants, 18 studies reported the age of participants, and 11 studies reported lesion location. None of the studies reported the sexual orientation or pre-existing disabilities of participants.</p><p><strong>Conclusion: </strong>There was variation in the reporting and analyses of protected characteristics. Future research should follow a health equity framework to ensure reporting of protected characteristics to support clinicians in identifying whether the proposed interventions are relevant to their stroke population and consider undergoing subgroup analyses to compare outcomes across protected characteristics.</p>","PeriodicalId":50575,"journal":{"name":"Disability and Rehabilitation","volume":" ","pages":"2997-3008"},"PeriodicalIF":2.1,"publicationDate":"2025-06-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142401857","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
The accuracy of respiratory muscle strength in identifying systolic dysfunction in patients with Chagas cardiomyopathy. 呼吸肌强度在识别南美锥虫病心肌病患者收缩功能障碍方面的准确性。
IF 2.1 4区 医学
Disability and Rehabilitation Pub Date : 2025-06-01 Epub Date: 2024-11-08 DOI: 10.1080/09638288.2024.2425749
Keity Lamary Souza Silva, Alessandra de Carvalho Bastone, Matheus Ribeiro Ávila, Marcus Alessandro de Alcantara, Renato Guilherme Trede Filho, Luciano Fonseca Lemos de Oliveira, Whesley Tanor Silva, Lucas Fróis Fernandes de Oliveira, Vanessa Amaral Mendonça, Ana Cristina Rodrigues Lacerda, Vanessa Pereira Lima, Sanny Cristina de Castro Faria, Mauro Felippe Felix Mediano, Pedro Henrique Scheidt Figueiredo, Henrique Silveira Costa
{"title":"The accuracy of respiratory muscle strength in identifying systolic dysfunction in patients with Chagas cardiomyopathy.","authors":"Keity Lamary Souza Silva, Alessandra de Carvalho Bastone, Matheus Ribeiro Ávila, Marcus Alessandro de Alcantara, Renato Guilherme Trede Filho, Luciano Fonseca Lemos de Oliveira, Whesley Tanor Silva, Lucas Fróis Fernandes de Oliveira, Vanessa Amaral Mendonça, Ana Cristina Rodrigues Lacerda, Vanessa Pereira Lima, Sanny Cristina de Castro Faria, Mauro Felippe Felix Mediano, Pedro Henrique Scheidt Figueiredo, Henrique Silveira Costa","doi":"10.1080/09638288.2024.2425749","DOIUrl":"10.1080/09638288.2024.2425749","url":null,"abstract":"<p><strong>Purpose: </strong>To verify the accuracy of respiratory muscle strength in identifying systolic dysfunction in patients with Chagas cardiomyopathy (ChC), and to validate optimal cutoff points based on respiratory muscle strength.</p><p><strong>Methods: </strong>First, 72 patients with ChC were enrolled and underwent echocardiography and assessment of respiratory muscle strength by manovacuometry. Inspiratory and expiratory muscle strength was defined by maximal inspiratory pressure (MIP) and maximal expiratory pressure (MEP), respectively. Systolic dysfunction was defined by left ventricular ejection fraction (LVEF) values below 52% (for men) or 54% (for women). Then, the validation of the cutoff points was verified by the percentage of true and false positives in another 30 ChC patients.</p><p><strong>Results: </strong>The MIP showed adequate accuracy (<i>p</i> = 0.004) in identifying patients with systolic dysfunction (AUC = 0.73). The MEP did not show satisfactory accuracy in identifying those patients. The optimal MIP cutoff point to identify systolic dysfunction in ChC was ≤62 cmH<sub>2</sub>O, with a positive predictive value of 87%. In the validation analysis, MIP values below 62 cmH<sub>2</sub>O were able to identify 77% of patients with systolic dysfunction.</p><p><strong>Conclusion: </strong>MIP has potential value in identifying systolic dysfunction in patients with ChC. This finding may aid in screening and risk stratification when echocardiography is not available.</p>","PeriodicalId":50575,"journal":{"name":"Disability and Rehabilitation","volume":" ","pages":"3436-3440"},"PeriodicalIF":2.1,"publicationDate":"2025-06-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142607452","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Patients' experiences of very early supported discharge after stroke: safety, emotional support and feelings of control in everyday life. 中风后患者在早期支持下出院的体验:安全、情感支持和日常生活中的控制感。
IF 2.1 4区 医学
Disability and Rehabilitation Pub Date : 2025-06-01 Epub Date: 2024-10-20 DOI: 10.1080/09638288.2024.2415332
Karin Törnbom, Gunnel E Carlsson, Åsa Nordin, Katharina S Sunnerhagen
{"title":"Patients' experiences of very early supported discharge after stroke: safety, emotional support and feelings of control in everyday life.","authors":"Karin Törnbom, Gunnel E Carlsson, Åsa Nordin, Katharina S Sunnerhagen","doi":"10.1080/09638288.2024.2415332","DOIUrl":"10.1080/09638288.2024.2415332","url":null,"abstract":"<p><strong>Objective: </strong>Early supported discharge (ESD) aims to enable the transition of care from specialised stroke units to patients' homes. Even though ESD is well-researched, little is known about the experiences faced by persons with stroke in very early supported discharge (VESD). The aim of this study was to understand these experiences when participating in a VESD rehabilitation program.</p><p><strong>Methods: </strong>Qualitative individual and semi-structured interviews were held (at 3 months post-discharge) with stroke survivors discharged home at a very early stage and participating in a VESD programme. A thematic analysis process was applied.</p><p><strong>Results: </strong>Nine participants living in Sweden and following a mild or moderate stroke expressed their narratives through the following themes: \"The importance of the VESD team intervention during the initial home rehabilitation\"; \"Everyday life was perceived as a struggle depending on close relatives\"; \"Experiencing problems with fatigue and low energy\" and \"Feeling angrier or more worried in everyday life\".</p><p><strong>Conclusions: </strong>Home-based VESD rehabilitation was important for increasing patients' sense of independence and control in daily life, while at the same time making them feel secure in the support from the rehabilitation team. Future research may investigate how VESD functions in other countries and healthcare systems.</p>","PeriodicalId":50575,"journal":{"name":"Disability and Rehabilitation","volume":" ","pages":"3100-3107"},"PeriodicalIF":2.1,"publicationDate":"2025-06-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142479775","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Parent-young person lived experience of sensory dysregulation in children with tic disorders: a qualitative study. 抽动障碍儿童感官调节失调的家长和青少年生活体验:定性研究。
IF 2.1 4区 医学
Disability and Rehabilitation Pub Date : 2025-06-01 Epub Date: 2024-09-26 DOI: 10.1080/09638288.2024.2403727
Nicolette Soler, Iain E Perkes, Russell C Dale, Paula Bray
{"title":"Parent-young person lived experience of sensory dysregulation in children with tic disorders: a qualitative study.","authors":"Nicolette Soler, Iain E Perkes, Russell C Dale, Paula Bray","doi":"10.1080/09638288.2024.2403727","DOIUrl":"10.1080/09638288.2024.2403727","url":null,"abstract":"<p><strong>Purpose: </strong>To understand the breadth of sensory dysregulation on participation in daily tasks for young people with tic disorders, as research identified that sensory dysregulation experiences are broader than the symptoms being assessed.</p><p><strong>Methods: </strong>Eighteen semi-structured interviews were conducted with 16 families with children (5-16 years) with tic disorders. Interviews ranged from 45 to 120 min and were transcribed verbatim. Data collected from parents and young people were analysed and coded together. Thematic analysis using inductive and open coding methods was implemented using NVivo.</p><p><strong>Results: </strong>The impact of sensory dysregulation on daily life may be understood through the higher-order theme: ''sensory, emotions and tics; it's a ticking time bomb'', and three subthemes: (1) we sacrifice and adapt to get daily activities done in the home, (2) my child's experience of the community environment hinders participation, and (3) sensory preferences impact our entire family.</p><p><strong>Conclusion: </strong>Sensory dysregulation experiences impact the entire family's quality of life, yet patient-reported sensory measures do not adequately capture the impact on the family unit and breath of symptoms. A sensory-based measure for children with tics is needed to comprehensively assess sensory dysregulation sensitivities for this population, ensuring patients' needs and effectiveness of therapy can be measured.</p>","PeriodicalId":50575,"journal":{"name":"Disability and Rehabilitation","volume":" ","pages":"2858-2876"},"PeriodicalIF":2.1,"publicationDate":"2025-06-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142331684","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Effect of serious games over conventional therapy in the rehabilitation of people with multiple sclerosis - a systematic review and meta-analysis. 严肃游戏对多发性硬化症患者康复的效果优于传统疗法--系统回顾和荟萃分析。
IF 2.1 4区 医学
Disability and Rehabilitation Pub Date : 2025-06-01 Epub Date: 2024-10-18 DOI: 10.1080/09638288.2024.2415328
Ita Daryanti Saragih, Willy Gervais, Jean-Philippe Lamora, Charles Sebiyo Batcho, Gauthier Everard
{"title":"Effect of serious games over conventional therapy in the rehabilitation of people with multiple sclerosis - a systematic review and meta-analysis.","authors":"Ita Daryanti Saragih, Willy Gervais, Jean-Philippe Lamora, Charles Sebiyo Batcho, Gauthier Everard","doi":"10.1080/09638288.2024.2415328","DOIUrl":"10.1080/09638288.2024.2415328","url":null,"abstract":"<p><strong>Purpose: </strong>This meta-analysis aimed to quantify the effect of serious games over conventional therapy on upper-limb activity, balance, gait, fatigue, and cognitive functions in people with multiple sclerosis.</p><p><strong>Materials and methods: </strong>Search strategies were developed for PubMed, Embase, Cochrane Library, and Scopus. Studies were selected if participants were adults with multiple sclerosis; the intervention consisted of a virtual reality serious game-based program; the control group received conventional therapy; outcomes included upper limb activity, balance, gait, fatigue, or cognitive functions; and used a randomized controlled trial design. Data were synthesized using a standardized mean difference with a random-effects model.</p><p><strong>Results: </strong>From 2532 studies, seventeen trials were selected (<i>n</i> = 740). Overall, serious games programs effect on upper limb activity, gait, verbal memory, verbal fluency and attention seemed neutral. Balance functions appeared to be improved by semi-immersive virtual reality serious games (SMD = 0.48;95%CI = 0.12-0.84;<i>p</i> = 0.01;I<sup>2</sup>=0%), fatigue by treadmill serious games (SMD = 0.80;95%CI = 0.40-1.20;<i>p</i> < 0.001) and visuo-spatial memory by semi-immersive virtual reality general cognitive serious games (SMD = 0.35;95%CI = 0.04-0.65;<i>p</i> = 0.03;I<sup>2</sup>=0%).</p><p><strong>Conclusion: </strong>This review suggests, with a very-low-to-low certainty of evidence, that while some specific serious games may improve balance, fatigue and visuo-spatial memory, their overall effect on upper limb activity, gait, and other cognitive functions appears neutral.</p>","PeriodicalId":50575,"journal":{"name":"Disability and Rehabilitation","volume":" ","pages":"3224-3244"},"PeriodicalIF":2.1,"publicationDate":"2025-06-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142479771","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Identified needs to enhance life for people with spinal cord injury: a part of the Swedish Needs Assessment Project. 为改善脊髓损伤患者的生活而确定的需求:瑞典需求评估项目的一部分。
IF 2.1 4区 医学
Disability and Rehabilitation Pub Date : 2025-06-01 Epub Date: 2024-10-02 DOI: 10.1080/09638288.2024.2406982
Johanna Wangdell, Emelie Axwalter, Gunilla Åhrén, Åsa Lundgren Nilsson, Katharina S Sunnerhagen, Jeanette Melin
{"title":"Identified needs to enhance life for people with spinal cord injury: a part of the Swedish Needs Assessment Project.","authors":"Johanna Wangdell, Emelie Axwalter, Gunilla Åhrén, Åsa Lundgren Nilsson, Katharina S Sunnerhagen, Jeanette Melin","doi":"10.1080/09638288.2024.2406982","DOIUrl":"10.1080/09638288.2024.2406982","url":null,"abstract":"<p><strong>Purpose: </strong>To identify factors that contribute to the enhanced life of people with spinal cord injury (SCI) in Sweden.</p><p><strong>Materials and methods: </strong>This cross-sectional study combined workshops (<i>n</i> = 38) and survey data (<i>n</i> = 243) from people living with SCI and their relatives, health professionals, and personal care assistants working with people living with SCI. The data were first categorized using Bronfenbrenner's bioecological model, followed by a conventional content analysis.</p><p><strong>Results: </strong>The factors that contribute to an enhanced life for people living with SCI are similar to those of the general population, including relationships, leisure activities, and occupation within the mesosystem. However, the unique components of the exosystem and macrosystem are specifically associated with people living with SCI. The exosystem, particularly in healthcare, plays a major role for medical reasons but also tends to obtrude and minimize the mesosystem. The macrosystem is essential, as it sets the rules that govern the actors in the other layers, creating prerequisites for meeting the needs of the mesosystem and exosystem.</p><p><strong>Conclusions: </strong>The needs that contribute to an enhanced life are multifaceted and individualized. Therefore, these systems must be flexible throughout the lifespan of individuals with SCI.</p>","PeriodicalId":50575,"journal":{"name":"Disability and Rehabilitation","volume":" ","pages":"3030-3041"},"PeriodicalIF":2.1,"publicationDate":"2025-06-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142362451","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Characterizing post-traumatic growth in individuals with traumatic brain injury according to social participation, self-awareness, and self-identity. 根据社会参与、自我意识和自我认同来描述脑外伤患者的创伤后成长。
IF 2.1 4区 医学
Disability and Rehabilitation Pub Date : 2025-06-01 Epub Date: 2024-09-28 DOI: 10.1080/09638288.2024.2405571
Rinni Mamman, Jennifer Fleming, W Ben Mortenson, Julia Schmidt
{"title":"Characterizing post-traumatic growth in individuals with traumatic brain injury according to social participation, self-awareness, and self-identity.","authors":"Rinni Mamman, Jennifer Fleming, W Ben Mortenson, Julia Schmidt","doi":"10.1080/09638288.2024.2405571","DOIUrl":"10.1080/09638288.2024.2405571","url":null,"abstract":"<p><strong>Purpose: </strong>After traumatic brain injury (TBI), individuals may face challenges in their social participation, self-awareness, and self-identity. However, positive life changes can also be experienced (i.e., post-traumatic growth). This study aimed to characterize the social participation, self-awareness, and self-identity of individuals with TBI displaying post-traumatic growth.</p><p><strong>Materials and methods: </strong>Fifteen participants (male = 10, mean age = 49.7 years) with moderate to severe TBI (average years post-injury = 15.2) were included in this mixed-methods study. Self-report questionnaires were used to assess social participation, self-awareness, and self-identity. Qualitative data, collected using semi-structured interviews, were used to categorize participants into two groups: higher (<i>n</i> = 8) and lower (<i>n</i> = 7) post-traumatic growth. Descriptive statistics were used to characterize participants in each group in terms of their social participation, self-awareness, and self-identity.</p><p><strong>Results: </strong>Participants with higher post-traumatic growth had increased social participation, higher self-awareness, and fewer negative discrepancies between their pre- and post-injury self-identities, compared to participants with lower post-traumatic growth.</p><p><strong>Conclusion: </strong>This study contributes to a more comprehensive understanding of post-traumatic growth through the use of both qualitative and quantitative data. These findings can inform future research and development of programs to promote post-traumatic growth post-TBI.</p>","PeriodicalId":50575,"journal":{"name":"Disability and Rehabilitation","volume":" ","pages":"2914-2921"},"PeriodicalIF":2.1,"publicationDate":"2025-06-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142331682","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Participation experiences of young people with limb difference in sports and recreation in Australia: a qualitative study. 澳大利亚肢体残疾青少年参与体育和娱乐活动的经历:一项定性研究。
IF 2.1 4区 医学
Disability and Rehabilitation Pub Date : 2025-06-01 Epub Date: 2024-10-17 DOI: 10.1080/09638288.2024.2413180
Rachel Toovey, Free Coulston, Holly Shuttleworth, Michelle Jelleff, Jamie Villalon, Sarah Anderson, Nora Shields, Meleita Finnigan, Simon Lalor, Jennifer McGinley
{"title":"Participation experiences of young people with limb difference in sports and recreation in Australia: a qualitative study.","authors":"Rachel Toovey, Free Coulston, Holly Shuttleworth, Michelle Jelleff, Jamie Villalon, Sarah Anderson, Nora Shields, Meleita Finnigan, Simon Lalor, Jennifer McGinley","doi":"10.1080/09638288.2024.2413180","DOIUrl":"10.1080/09638288.2024.2413180","url":null,"abstract":"<p><strong>Purpose: </strong>The primary objective was to investigate the experiences of young people with limb difference participating in sports and recreation.</p><p><strong>Materials and methods: </strong>A qualitative study using an interpretive description approach was undertaken with nine family dyads (<i>n</i> = 9 young people; <i>n</i> = 9 parents) recruited across Australia via convenience sampling. Data were collected via 18 semi-structured interviews and analysed in line with the interpretive description approach. Young people were aged between 9-16 years (mean 14 y 1 m), with unilateral (<i>n</i> = 7) or bilateral (<i>n</i> = 2) limb differences. All participating parents were mothers.</p><p><strong>Findings: </strong>Three themes were interpreted from the data: (1) <i>\"Just treat me like everyone else\":</i> equitable participation in sports and recreation, (2) <i>\"Provide them opportunities and let them take the lead\":</i> genuine choice within activities, and (3) <i>\"I wish they were easier to get\":</i> the impact of sports-specific prostheses on participation. Facilitators and barriers to participation were mapped to illustrate the socio-ecological levels at which these influences operate, and a conceptual model was developed to guide application in practice.</p><p><strong>Conclusions: </strong>This study provides guidance for practitioners, coaches, and families on how to support participation for young people with limb difference, and future research may operationalise this conceptual model into policy or practice interventions.</p>","PeriodicalId":50575,"journal":{"name":"Disability and Rehabilitation","volume":" ","pages":"3088-3099"},"PeriodicalIF":2.1,"publicationDate":"2025-06-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142479774","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Maintenance hemodialysis patients participate in a virtual reality rehabilitation training experience: a qualitative study. 维持性血液透析患者参与虚拟现实康复训练体验:一项定性研究。
IF 2.1 4区 医学
Disability and Rehabilitation Pub Date : 2025-06-01 Epub Date: 2024-10-23 DOI: 10.1080/09638288.2024.2417029
Shihai Hu, Qianqian Yang, Siyuan Qi, Jie Li, Lina Wang, Lili Ma, Qijing Hao
{"title":"Maintenance hemodialysis patients participate in a virtual reality rehabilitation training experience: a qualitative study.","authors":"Shihai Hu, Qianqian Yang, Siyuan Qi, Jie Li, Lina Wang, Lili Ma, Qijing Hao","doi":"10.1080/09638288.2024.2417029","DOIUrl":"10.1080/09638288.2024.2417029","url":null,"abstract":"<p><p>Maintenance hemodialysis patients' psychology and physiology will have negative effects. Adherence to exercise can effectively enhance the physical function of maintenance hemodialysis patients and reduce the negative psychological emotions. In recent years, virtual reality technology has been gradually applied to the hemodialysis group, providing a new way for the rehabilitation training and healthy life of maintenance hemodialysis patients.</p><p><strong>Objectives: </strong>To understand the real experience of maintenance hemodialysis patients participating in virtual reality rehabilitation training, and to make reference for the future clinical development of a more perfect virtual reality rehabilitation training program.</p><p><strong>Metchods: </strong>Phenomenological research method was used to conduct semi-structured interviews with 10 maintenance hemodialysis patients, and the interview data were compiled and analyzed using Colaizzi's seven-step analysis.</p><p><strong>Results: </strong>Four themes were distilled: (1) Maintenance hemodialysis patients' overall perceptual experience of the virtual reality rehabilitation system; (2) Physical and psychological improvement of maintenance hemodialysis patients with virtual reality rehabilitation system; (3) Individualized needs of maintenance hemodialysis patients during virtual reality rehabilitation training; (4) Future improvements and recommendations for the virtual reality rehabilitation system.</p><p><strong>Conclusion: </strong>The results of the study suggest that virtual reality improves patients' motivation to recover and shows positive results and potential benefits in improving physical functioning and negative emotions in maintenance hemodialysis patients.</p>","PeriodicalId":50575,"journal":{"name":"Disability and Rehabilitation","volume":" ","pages":"3151-3156"},"PeriodicalIF":2.1,"publicationDate":"2025-06-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142512290","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
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